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CELLOPLAYER1's Photo CELLOPLAYER1 Posts: 1,635
12/4/12 7:17 P

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A second pair of ears is a must. My hubby still goes with me to my check ups.

-Julie

Life isn't about waiting for the storm to pass.

It's about learning to dance in the rain.


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AMYKRU76 SparkPoints: (1,971)
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12/4/12 3:23 P

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I found a great online forum for my cancer - the people were extremely helpful and I learned so much before my first appointment about my cancer and the standard treatment. Going in armed with some info was a relief - I don't like surprises. I agree - bring someone with you. I had my husband for my initial appointment. For my chemo treatments I have two friends who are nurses take turns going with me.
Also, thinking past your first appointment and depending on what kind of treatment you'll be getting - start thinking of people who can help with running errands, household chores, and meals. I live in Ohio and both of our families are on the west coast - and we'd only been here 18 months when I was diagnosed so having friends help out was such a blessing- especially with our 2 little boys. Its really hard to predict how you will react to your treatment. I just had chemo and I was fortunate to only miss work the day of treatment and a 3 other days for colds and fatigue.
Praying for some peace to you!

Editited to add:
As far as eating- focus on high calorie, nutrient dense foods.

Edited by: AMYKRU76 at: 12/4/2012 (15:25)
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SNUZSUZ's Photo SNUZSUZ Posts: 14,889
12/3/12 9:26 P

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my daughter went with me for my first oncology appointment and what a blessing that was! She thought to ask questions that I didn't, and she took in a lot more information than I did because I was still trying to process just having cancer at all.

Sue (snoozy suzy)
PST. Carmichael, California
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ALLENJOSEPH's Photo ALLENJOSEPH SparkPoints: (66,938)
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12/3/12 8:31 P

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What wonderful advice that is to have an extra pair of ears to listen for you. I'm sure that must seem stressful, so it would be so helpful to have someone you're close to, listening and asking questions for you. Have a list with you of questions you want answered, TASHA.
My prayers are with you all.
emoticon Janis



Edited by: ALLENJOSEPH at: 12/3/2012 (21:50)
Nothing Is Impossible with God.
Each Day Is A New Beginning.
When You Draw Close To God, God Will Draw Close To You.

Spark People Team Leader, GLITTERGIRL, from Team, "I Can't Do This On My Own", helped me reach my goal in 2012. I was able to maintain my weight for several months, but now I have to get serious again as much of my hard work I let go of, putting my focus on another issue. I will keep on, until I get back to my goal.


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MOM2ACAT's Photo MOM2ACAT SparkPoints: (160,758)
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12/3/12 4:41 P

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You are in my prayers!
Another suggestion I would add is to bring along a trusted friend or family member; in situations like that, it helps to have another pair of "ears" in case you miss something. Sometimes when you are under stress, it's hard to focus on everything the doctor is saying.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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SNUZSUZ's Photo SNUZSUZ Posts: 14,889
12/3/12 10:09 A

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I'm sorry to hear about your cancer. My husband passed from cancer 4 years ago and now I have cancer too, so my poor kids are all already predisposed to having cancer. It's very scary for them knowing both parents have/had cancer. I understand about the "hand me downs"!

Sue (snoozy suzy)
PST. Carmichael, California
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TASHATRIX SparkPoints: (2,125)
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12/3/12 9:52 A

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I was diagnosed with stage iv ovarian cancer. It is the sister cancer to breast cancer if you are as lucky as i am to have it run in the family. Kinda makes me tired of hand me downs.

We all have what it takes within ourselves to accomplish absolutely anything and everything imaginable in this world. We just need to make up our minds to just do it! Not one single thing in this world is impossible. We can do it!


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SNUZSUZ's Photo SNUZSUZ Posts: 14,889
12/2/12 11:43 P

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My prayers are with you also! I have lung cancer stage 3, and I had radiation and chemo at the same time. I was more sick from the radiation. It has been 6 months since my last chemo and I am still tired all the time. I take a nap everyday. I think you are sleeping a lot from the morphine. It will make you sleep constantly. I had chemo once a week for 7 weeks with a 3 week break, then 7 more weeks. The first 7 weeks, I had radiation 5 days a week. The radiation only took about 30 minutes but the chemo was for 3 hours, one day a week. I didn't see where you said what kind of cancer you have or what stage it is in, so I just thought I'd let you know how the treatment schedule was for me.

Sue (snoozy suzy)
PST. Carmichael, California
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ALLENJOSEPH's Photo ALLENJOSEPH SparkPoints: (66,938)
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12/2/12 10:53 P

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Tasha, I'm sorry that I do not have enough knowledge on different cancers. I had breast cancer back in November of 2008. I will tell you though, you will be in my daily prayers.
I'm sure a number of the people on this team have much knowledge and will share it with you.
emoticon emoticon Janis

Edited by: ALLENJOSEPH at: 12/2/2012 (22:53)
Nothing Is Impossible with God.
Each Day Is A New Beginning.
When You Draw Close To God, God Will Draw Close To You.

Spark People Team Leader, GLITTERGIRL, from Team, "I Can't Do This On My Own", helped me reach my goal in 2012. I was able to maintain my weight for several months, but now I have to get serious again as much of my hard work I let go of, putting my focus on another issue. I will keep on, until I get back to my goal.


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TASHATRIX SparkPoints: (2,125)
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12/2/12 9:39 P

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Unfortunately i still have all my tumors. I wish they had taken them out last month when hey found them all. Im tired of my own belly aching, let alone my belly aching. So i haven't started any of the recovery process yet. The have me on 8 hour time release morphine for the pain. It only brings it down to tolerable so i can function enough to make me something to eat and to go to the bathroom. I don't have energy for much else. I do believe other than eating and bathroom I have been asleep the last 4 days. I was studying treatments and therapies before i began hibernating lately. And is this much sleep normal? And at should i be eating to get my strength and weight back?? Or i guess more importantly what shouldn't i be eating? Thank you both for your advice. I just wish i had a second set of ears.

We all have what it takes within ourselves to accomplish absolutely anything and everything imaginable in this world. We just need to make up our minds to just do it! Not one single thing in this world is impossible. We can do it!


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PEPPERMINT125's Photo PEPPERMINT125 Posts: 1,420
12/2/12 9:11 P

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I read your blogs and what you are going through is definitely scary. Your cancer is different than mine was (breast cancer) but I would say learn everything about different treatments for your condition before your oncologist appointment. Make a list of every question you can think of. You get a limited amount of time with these doctors so you need to make the most of the time. Also, consider bringing your 21 year old daughter or a sister or other close family member or friend, so that they also hear everything the doctor says. You will be receiving a lot of information all at once, a lot to process as well as may be emotional. So having another person there may help make sure you don't miss any important information.
Hope this helps a little. I will pray for you as you are going through a lot right now.


Patty
EST Grand Rapids Michigan (yes same time zone as Maine)

If the first thing you do when you wake up in the morning is eat a live frog, then nothing worse can happen for the rest of the day!" Mark Twain

If a man really wants something he will find a way, if he doesn't he will find an excuse." Stephen Dolley, Jr

It is not enough to take steps which may some day lead to a goal; each step must be itself a goal and a step likewise.
Johann Wolfgang von Goethe


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IVYLASS's Photo IVYLASS SparkPoints: (115,458)
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12/2/12 9:09 P

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I would ask what treatment I will be getting, how long does the infusion last, how long and how often will I be getting the treatments, and how they will treat the side effects.

As a breast cancer survivor, I can tell you that except for the hair loss, the loss of appetite, and the bone pain from the Neulasta shots, I handled the treatment rather well. I took a half day on the day of my chemo, left early the next day for my Neulasta shot, and other than that, I didn't miss any work.

Do you have a port? Insist on a numbing spray before they put in the IV for your treatment. I had one nurse who didn't want to bother one day and I hollered...it's a pretty big needle. She apologized all over herself, and made sure she didn't forget after that!

If you have ANY side effects, ask if they can prescribe you a pill to offset it. I took anti-nausea medicine during my first four treatments and only experienced a bit of queasiness one morning when I was a bit late taking my Compezine. No vomiting, no nausea.

If you don't understand something, ask the doctor to explain it again. It may be helpful to take someone with you to the appointment. Four ears are better than two.

Good luck...you are on the road to recovery!

Edited by: IVYLASS at: 12/2/2012 (21:11)
One stumble does not a failure make.

Everything in moderation.


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12/2/12 7:59 P

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I am suppose to be meeting my first oncologist for the first time on the 12th. I have not a single clue what to expect nor what to ask . Please can anyone give me a clue as to what i need to ask/need to know?

We all have what it takes within ourselves to accomplish absolutely anything and everything imaginable in this world. We just need to make up our minds to just do it! Not one single thing in this world is impossible. We can do it!


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