Fortunately I have the best oncologist out there (I'm biased). I'm so sorry that you have to deal with a doctor who sounds like a jerk. You need to take control and if this guy doesn't treat you the way you need to be treated, then go to someone, anyone, higher up and complain. I agree that you MUST be your own advocate. Change doctors as many times as you need to until you find the right "fit." It'll be worth it. Good luck to you.
My problem is that I have to go to that hospital for everything unless they refer me to somewhere else. I didn't have any insurance with the job I had and they didn't even give me enough hours to live on (I was looking for another job), so I have the state indigent care program backing up the Medicare and it can only be used at the one hospital if a person lives in the city. If they refuse to treat me for something, I will go to my PCP and see if she will refer me to somewhere else. I can trust her. She went through that one report and read it out loud to me when they said the cancer was back. The report specifically said there were no signs of the cancer returning.
One thing I have learned in my journey with cancer, you have to be you own best advocate. Remember the doctors work FOR YOU! Ask nurses who the best doctors are. I am in the process of "firing" my oncologist. I have a very rare sarcoma, and he either doesn't want to admit he doesn't know much about it, or doesn't know he doesn't know. But I've taken upon myself to learn as much as I can about this disease and know that my life depends on being informed. A good doctor will be your advocate not a source of stress. If he isn't find one that is. Go to or call a support group and get some referrals. It is not an easy thing to find a new doctor, but is so worth it. You should have confidence in him/her, that he/she has your best interest at heart. They are there to serve you. Keep that in the right order. Good luck.
Debbie Make progress not excuses. "Whatever your hand finds to do, do it with all your might." Ecclesiastes 9:10
I would like some advice how to deal with this if possible. I finally had an Oncologist (Attending) who understood that I did not want all the negative, no hope attitude that they have in the Oncology unit at the hospital. Friday I was told she was leaving. I now have to get a completely new Fellow for my doctor, plus a new Attending. After the troubles I had with the department, particularly the head of the department, I am really scared of what this will result in. The head of the department apparently just wants to keep the status quo (however you say that) of 2 years survival and when he told the radiologist that he was wrong and I had cancer back a couple years ago (I didn't, it was arthritis changes caused by the radiation), he told me they couldn't do anything about it, then tried to send me to psychotherapy and put me on anti-depressants. He was extremely rude and I had to go to the Patient Advocate to even get the other doctor and get treated like a human being. I have since had a friend go with to all my appointments but the one after the rudeness. At that one I broke down in tears before I even got checked in. I don't know what I am going to do now, but fear is not helpful to survival.
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