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KRMUTTON Posts: 15
2/26/14 11:27 A

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I have been struggling to stay Gluten free for a couple of years now. I go very long periods of time without gluten and then I indulge and I regret it each time. My reaction is not a severe as vomiting. It includes - hives that are itchy and make me look like I am a teenager with acne again, migraines, bloating, constipation, lots of mucus, mood swings. As you all know...it's not pleasant. I have noticed the main reason I fall off the gluten free wagon is a result of falling into a food rut. I am looking for recipes that can be frozen, or are relatively easy to prepare. As a single working mom of 2 (12 and 14) it's difficult to find the time necessary to make meals from scratch every night so finding ones to make on weekends and freeze or recipes for the crock pot are essential. I did get off the topic and I find the best way to recover from being glutened is lots of water, green tea, probiotics, ginger (great to heal the intestines) and Epsom salt baths. Have a good day everyone.

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AERYN3SUN's Photo AERYN3SUN Posts: 1
2/19/14 3:53 P

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When I get gluttened (depending on the amount) I have either the Big D alone or with throwing up for a few days. I feel tired for about a week and very very very angry. The last time I got gluttened, I even got a rash. The only thing that I can suggest is to eat very plain. I like to boil potatoes down to a soup consistency (No added fat and with just a bit of salt and black pepper) and eat it with glutten free cornbread.

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2SNOWCRANES Posts: 363
2/11/14 5:42 P

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My doctor never mentioned any tests like that. Right now she is testing my gluten sensitivity again to confirm it and we go from there. Definitely incentive here to stay gluten free,

Edited by: 2SNOWCRANES at: 2/11/2014 (17:44)
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DANCESTAMP's Photo DANCESTAMP Posts: 725
2/9/14 9:29 P

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hi,

I just went back to GF lifestyle, I did it for 3 weeks at a time in both nov & dec and decided that when I do eat gluten, I am more tired and my fingers and wrists hurt more. I just had a friend from work email me the other day saying her RA is worse than ever and she is going to eat a GF diet, so she was asking me questions. I don't mind the GF stuff anymore, it tastes way better than it used to. I am also cooking at home instead of eating out, saving me more money and not having to worry about my food being GF or not.

2snowcranes - are you having more tests done to find out if you are bleeding internally, I had both the colonoscopy & the upper endoscopy done and then I also had to swallow a camera and make sure I wasn't bleeding internally in the midsection where the other two scopes don't reach. good luck, hope you are not.

carla
It never gets easier, you just get better.

Motivation is what gets you started, habit is what keeps you going!


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2SNOWCRANES Posts: 363
2/9/14 7:18 P

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I just got back from my doctor and found out some really weird information. I am a regular blood donor and when they check my hemoglobin for giving blood it's always been high. The hemoglobin levels are supposed to be between 125 to 145 and mine is 152. When I give blood I can have nausea, dizziness, passout or in the few days following I have trouble with feeling very tired,cold and some really nasty symptoms. I also have noticing my hair beginning to thin and my nails either brittle or thin. I talked to my doctor and she sent me for a blood test. The blood test checked the levels of iron in reserve in the liver, spleen or Marrow and not the iron that is in the blood itself. The ironing reserves are supposed to be between 20 and 200 and mine was 19,before I donated blood. Hate to think of what it was afterwards.
My doctor thinks that because of the irritable bowel syndrome and the gluten sensitivity I have I may be bleeding internally. This certainly shows the danger of not addressing gluten insensitivity

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EBACHAR SparkPoints: (2,483)
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1/2/14 2:57 P

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I get very severe migraines and am extremely lethargic for 2-3 days after. I have taken to keeping an emergency bottle of Excedrin everywhere (apartment, purse, car, best friend's house, etc.) which was a measure from the pre-diagnosis days that I have carried over for emergencies. I also drink a TON of hot green tea and water. I had never heard of the BRAT diet before reading this, but its funny because I often feel only in the mood for rice or Udi's toast when I've been glutened, and now I feel justified in eating it! It also helps if you can anticipate it. For example, if I realized I've eaten gluten at a certain meal, I can usually count on my headache to start about 12 hours later (so I go ahead and take Excedrin around that time even if it hasn't started yet) and my lethargy usually hots the next morning when its nearly impossible to get out of bed. Knowing doesn't really make it any easier, but at least you won't be caught off guard!

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HIKELUV's Photo HIKELUV Posts: 177
1/1/14 8:26 P

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Hi HISLILBRAT -
Sorry to hear you are feeling terrible! I've been there! When I eat gluten, even in tiny (I assume) amounts, I get terrible nausea, fever, exhaustion, and a very unhappy gut (loose stools for a few days). All these symptoms can last a week.

What I have done when I've accidentally eaten something with gluten is:
1) drink a daily green drink or two with lots of lettuce/parsley/carrot and any fruit that makes it taste good (the fiber will help push the offending food out quicker, and I believe the nutrients HAVE to help my body heal)
2) take marshmallow root (it helps the gut heal)

For years I would follow the BR portion of the BRAT diet (bananas, white rice) when I felt ill from hidden gluten. However, I honestly think the green drinks and marshmallow root got me back on my feet quicker.

As for how to avoid the gluten, some questions... Did you eat out when you got ill? I'd avoid that restaurant in the future. Even restaurants with "good" reputations can make us ill. Or, did you use a prepared food? Check the ingredients list. Some hidden items to look for might be modified food starch (usually from wheat unless it says another specific source), barley, barley malt, soy sauce. Did you eat food prepared for you by a friend or acquaintance? Could their "safe" food have been cross-contaminated in a non-GF kitchen?

Hope this helps! I wish you speedy healing!!

Winners do daily what others do occasionally (Pete Thomas).


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KALLEN68 SparkPoints: (120)
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1/1/14 5:24 P

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I'm a new member, looking for others who suffer from gluten intolerance, and who would like to lose some weight. I saw that someone had posted a list of things they do to lessen the effect when they've accidentally (or not so accidentally) ingested some gluten. Please, share MORE!! I know there must be a way to block or reduce symptoms.

When I eat gluten I; get migraines, become very bloated, constipated, I have horrible joint and muscle pain, restless leg syndrome, anxiety, extreme PMS, sore breasts, lethargy, foul taste in my mouth, declined quality of hearing (I have moderately severe hearing loss), stuffy nose, increased snoring. more I may not be thinking of right now :)



LINDAF49's Photo LINDAF49 SparkPoints: (58,551)
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12/14/13 7:16 P

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When I realize I have been glutened I first begin serious flushing of system with water or dilute peppermint or ginger tea or 7-up. I take Benadryl if I don't have to be driving --definitely take some at bedtime for two or three nights to slow down the histamine response. A few tums every few hours eases pain and bloating. And I immediately cut back to brat diet - Banana, plain rice, applesauce, and toast - I keep Udie's on hand in the freezer for this need since I don't eat much bread routinely. I also add in lightly scrambled eggs or other quality protein like chicken breast.

Then gggressively search for what brought this attack on and do not repeat. Practice how to word your talk to other family members, future hostesses, resturant people etc.

Keep working at it - our health is worth it.

Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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TASNIM2014's Photo TASNIM2014 SparkPoints: (13,470)
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12/13/13 3:00 A

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I don't react to small amounts (as far as I can tell), but if I eat a sandwich or pizza for example, I get bloated, feel heavy and get really sleepy.

"-You may not control all the events that happen to you, but you can decide not to be reduced by them." - Maya Angelou


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2SNOWCRANES Posts: 363
12/11/13 8:31 P

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Same things happen to me.

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DIANNAWATSON1's Photo DIANNAWATSON1 Posts: 627
11/13/12 9:08 A

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Vigilance, vigilance, vigilance - read labels - again. Eating out is a gamble, I've found a few places that appear to really work at the GF experience and those are the ones I patronize.

When I've been glutened, I get Irritable bowel syndrome (IBS) and hemorrhoids. I was treated for it for several years until it cleared up after being GF for several weeks/months. No gluten is far better than all those meds. That is all that happens to me.

Do you have a list of OTC meds that have gluten?
Hang in there - it does get better.


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TEDDYBEARDONNA's Photo TEDDYBEARDONNA Posts: 11,914
11/13/12 7:30 A

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When I am glutened nothing generally happens. I may or may not have the big D. Very seldom do I get somach pains. Sometimes I might feel achy and if that happens I just take a Tylenol. .

One has to always check and recheck labels. Many time I have bought something that was GF and then I look months later and they now have trace amounts.

Donna



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HISLILBRAT's Photo HISLILBRAT SparkPoints: (17,331)
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11/13/12 7:26 A

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I am sure as you first started your trek into gluten free you were doing well and whammo- glutened! well this is the second time it has happened to me - and I have to say...OUCH! I have been gluten free since July and 2 times now when I have accidentally ingested gluten I have had stomach cramps, bloating, constipation, nausea, joint aches - and on the bright side it reminds me of why I don't eat gluten now...but on the down side it makes it really difficult for 3-4 days to do the simple things in life....so what a few questions

1) What happens to you when you are glutened?

2) some tips from you wiser less new to the lifestyle to avoid being glutened

3) when you have been glutened what do you do to get rid of symptoms faster or maybe lessen the devastation?

Sharyl

My word for the year - Persistence - firm or obstinate continuance in a course of action in spite of difficulty or opposition.

Galatians 6:9 - And let us not be weary in well doing: for in due season we shall reap, if we faint not.

“The three great essentials to achieve anything worthwhile are, first, hard work; second, stick-to-itiveness; third, common sense.”
― Thomas A. Edison


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