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LETYAK's Photo LETYAK Posts: 361
8/24/11 10:48 P

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i suffer from chronic migraines and hypothryoidism. my new doctor recommended me going gluten free. ive been reading up on it and it seems like it may help. i tend to feel sick after i eat and have irregular bowel movements as well.

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DIANNAWATSON1's Photo DIANNAWATSON1 Posts: 638
8/11/11 6:37 A

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Lee - thanks for the tip about using ginger in beans. I'll do this this week!

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LEESCOOKING Posts: 11
8/11/11 1:21 A

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In RE: Beano before eating beans. I add powdered ginger to my beans when I start them cooking. Since it is a sort of sweet taste, it does not affect the taste to the beans. For 2 cups of dried beans, I add 1 tbsp of ginger powder. If I did not add that ginger, I would get a very big case of gas. One of my sisters adds fresh ginger with the same result: no-toot beans!

HIKELUV's Photo HIKELUV Posts: 177
8/10/11 9:36 P

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Hi Sabrina -
My husband and I just figured out that gluten was a huge trigger for my daughter's asthma. He and I have had to be GF for a while, but she was still eating some gluten-containing foods. To try to smooth the transition I bought a cookbook called Cooking for Isaiah. It's by a mom who had to find foods that her picky gluten and dairy intolerant son would eat. The recipes are really good. The pizza crust is the best I've had in three years of GF. She also includes recipes for savory waffles that work great for sandwiches, and some great sweets like donuts. I also have always made cornbread to accompany our meals, and it is very simple and done in 20 minutes. I just made the recipe on the cornmeal container, but substituted GF flour blend and 1/2 tsp xanthan gum for the regular flour (make sure you whisk the dry ingredients before adding the wet so the xanthan gum is well distributed).

Hope this helps!!

Winners do daily what others do occasionally (Pete Thomas).


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DIANNAWATSON1's Photo DIANNAWATSON1 Posts: 638
8/2/11 10:05 A

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Welcome, Sabrina,
This is a good place to start. I've recently been diagnosed, but from your description of your son, sounds right on with the celiac thing. You need to get him diagnosed by an MD for the record, but he has to still be eating wheat when the diagnosis is made. I'm sure others will be happy to address dealing with a child and changing his diet.

HEY GANG! 'this is for all of you who ever take Beano. We always chewed a couple before beans, and just TODAY, I discovered a graphic of WHEAT on the label! Read it and, yes, it has wheat in it. Even that little bit caused some digestive problems. Must check all the labeld of herbal supplements!!!!!!!!!!

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SABRINA1024's Photo SABRINA1024 Posts: 160
8/2/11 9:51 A

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hi guys! i'm Sabrina. I don't have any allergy to gluten.. that i know of, but my son is ADHD and mildly Autistic (PDD-NOS). he also has digestive issues as well as growth issues, he's the size of a 3rd grader and hes 13 and in the 8th grade. i was doing research for a friend of mine and came across the symptoms when you have a gluten allergy. BAMMMO! nail on the head for my kid AND husband!!! so, i was wondering.. how do i explain this new diet were all about to start to my ADD/Autistic child??? hes sooooo picky as it is. and i would GREATLY appreciate some easy starter recipies to ease us into this new lifestyle. thanks a-bunch in advance.

Mr. Goodbar, there is only ONE man for me, ... and you are NOT him!


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LEESCOOKING Posts: 11
8/1/11 9:36 P

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It's all in how well you get along with your doctor. Sometimes, we need to change doctors.
I was sick all of the time, anemic and having symptons of rheumatoid arthritis. I do not have it based on medical tests, yet I am dealing with the symptons now. I did a lot of research on gluten-intolerance and found that the new info is people who are highly gluten-intolerant will develop celiac, unless the diet is changed. It also stated that that same group will have damage done to their other organs and not neccesarily the intestine.

I don't want to appear to have medical knowledge - just that I sat down and discussed with my primary doctor that with all of my symptons, how could I get a diagnosis added to my medical records since I am very sensitive to wheat/gluten? She reviewed my records and agreed that it needed to be added because everytime I accidently ingested some, I got excructiating stomach aches, diarrhea and nausea for anywhere from 12 to 24 hours. All of the vomiting was irritating my voice too.

One of the reasons I asked for the diagnosis is that I am retired and could at some point spend time in a care facility. Without that diagnosis, I would not have coverage for the additional expense. It was more in planning for the future than the deduction that I could get now.
here is info from National Institute of Health: http://digestive.niddk.nih.gov/ddiseases/p
ubs/celiac/


LEESCOOKING Posts: 11
8/1/11 9:10 P

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One of the benefits of having a written diagnosis is that the additional cost of gluten-free food is deductible as medical expenses, if you can itemize.

But who knows with all of the budget wrangling, we may just lose the deduction in a few years.




If interested here is one link ;http://celiac-disease.com/can-celiac-trea
tment-be-a-tax-deduction/
another one: http://www.irs.gov/pub/irs-wd/0941003.pdf



KAZAN1 Posts: 2
8/1/11 8:55 P

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Once you quit eating gluten you can not be tested for Celiac disease. There is not blood test. I am also self diagnosed and in my research I discovered that Dr. would want me to eat two slices of bread for 2 months before they would test. The reason is that they look for damage in the intestines and that can only be determined is you are actually eating gluten. For an adult this is not really a big deal, but for a child it is very important because schools will not be helpful on food issues without a Dr. verification.
How did you get a Dr. to put this on your medical file? My Dr. just said, good for you and went on to other issues.

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SOAPSANDROPES's Photo SOAPSANDROPES Posts: 582
8/1/11 7:14 P

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In all fairness I probably could have gotten a diagnosis from a doctor but I felt that I could figure this one out for myself. I could chart symptoms and the foods I ate and I knew that I had a family history of Celiacs. I am so glad that it worked out the way I hoped it would. I haven't felt this comfortable in a long time and I don't have to worry as much about traveling or going out.

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LEESCOOKING Posts: 11
7/31/11 3:20 P

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I, like SOAPSANDROPES, also had to self-diagnose. I had all of the symptom of Celiac and more. I was being treated for GERD, IBS, anemia instead of looking for a reason why my nutrient stores were low. And, I was over-weight!
I had severe stomach aches off and on over 20 years. Finally in 2006, they became about every other day, still I was prescribed a drug that stops the intestines from moving. By then I suspected it was food, but didn't know which one. I like spicy foods, so I eliminated spices first, onion/garlic, etc. After about 2 weeks. I was on fruit, salads, vegetables and oatmeal for breakfast. Accidentally in the process, I stopped eating bread and any sweets, so that eliminated the wheat.
I was feeling so good, I had to try to remember what I ate the last time I had an attack. It was an Italian Restaurant where I had pasta with spicy sausage. Didn't think it was the peppers, because I had not had them in previous attacks.
I got my prescription ready, some GAS-X and the barf can ready. I ate a couple saltines. Within half an hour, I could feel my stomach blowing up. Rather than waiting, I took about 4 gas-x and kept drinking water to rush it thru my system. That was a horrible 4 hours.
I scheduled an appt with my PCP about a week later, who decided to run allergy tests. There was no wheat in my system, so it came back negative.
It took almost 5 years for my PCP to add "severe wheat/gluten intolerance" to my medical records.
If you do not have a designation on your medical records, insist that it be added. If the request is questioned, as the doctor to prove that you do not have wheat/gluten intolerance.

SOAPSANDROPES's Photo SOAPSANDROPES Posts: 582
7/26/11 7:24 P

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I am self diagnosed gluten intolerant. Gluten really made my intestines hurt. I feel so much better but I have a few friends who don't get it. I have explained what gluten is and the ingredients that I look out for. My friend is always asking me if corn is okay or rice, seriously he is a scientist!

We are making some gluten free beer this month, I am very excited!

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FRANCIE-N-BELLA's Photo FRANCIE-N-BELLA Posts: 14,117
7/24/11 2:19 P

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I am not a celiac but I have a digestive tract issue similar to IBS except severe diarrhea sometimes, am a Candida yeast carrier, and have lupus so my Dr put me on a NO Gluten, NO Wheat, NO yeast, and NO refined sugar. I am also a Type II diabetic. I have been on it almost a month and down 8 lbs. I know half of that was water but I will take it. :-) This is a hard but much healthier lifestyle. I am having to retrain myself in lots of ways. So far I can tell it is helping.

Edited by: FRANCIE-N-BELLA at: 7/24/2011 (14:20)
Francie
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DIANNAWATSON1's Photo DIANNAWATSON1 Posts: 638
7/24/11 9:34 A

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Know what you mean. I have actually met a few chefs who were truly concerned about cooking something for me that would meet my needs - one was in a tiny place in Arkansas, but he came to our table to talk to me about the gluten issues and told me that he was allergic to beef! He could handle it and cook it, just couldn't eat it.

Those folks who think we are making a mountain out of a molehill haven't faced similar mountains in their own lives. Glad they don't have to face this one, but do wish they would develop some understanding for needs different from their own!

Hang in there - the anxiety issues may fade with the diet! Took 3 mos for one of my health issues to begin to subside.

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TEDDYBEARDONNA's Photo TEDDYBEARDONNA Posts: 11,986
7/24/11 9:31 A

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I don't see how people think doing a GF diet is a good way to lose weight. A lot of us gain weight. I did.




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MSMARTHALILIAN's Photo MSMARTHALILIAN Posts: 129
7/24/11 9:11 A

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I get this ALL the time. It seems like lately more and more people are looking to GF as a quick way to lose weight and don't fully understand gluten allergies and sensitivities and things like celiac. In my case. I have an auto-immune disorder that affects my thyroid. Even with medication, my levels still were getting progressively worse until I eliminated gluten from my diet.

Gluten has been know to trigger auto-immune responses and after just a few days I could see a huge difference, primarily in my digestion issues, as well as my energy and focus. Now if only there was a quick dietary fix for my anxiety issues!

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