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DOTSLADY's Photo DOTSLADY Posts: 10,024
1/31/12 6:41 P

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emoticon Hi ya'all. I'm preparing to move and haven't been online much. I hope everyone is doing well. My uncle died of esophageal cancer and in trying to explain to my cousin about gluten I came across a blog about a man who has esophageal cancer and found out he had "silent celiac" ... he writes about his journey. I hope we never have to go through this, but I thought it important to share. I like to create awareness. Unfortunately I don't have time to read through everything he has written, but from the few I read at the beginning of his diagnosis (for celiac), his doctor tells him he doesn't have to be strict in adhering to the gluten free diet. emoticon This doctor is 100% wrong!!!! You DO have to be strict. If you cheat or accidentally ingest gluten, it could take as long as 6 mos. to heal inside again. Maybe even longer depending on your recovery rate/immunity. As evidenced by this blogger, he doesn't feel his damage ...

Coffee is acidic, so I don't drink it. I drink a lot of water. emoticon (But I struggle to do so in winter ...)

Please consider learning more about gluten and esophageal cancer by googling around. Here's his blog story: bit.ly/xJ3LUK

(Why am I not surprised he has a son on the autism spectrum?)

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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GRAMKRIS's Photo GRAMKRIS Posts: 738
1/23/12 11:38 P

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Haven't been on this sight for a while and am glad to see new people on the sight

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LINDAGERDGIRL's Photo LINDAGERDGIRL Posts: 9
1/4/12 4:09 P

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#What kind of coffee did you get? What do you use for a creamer?

LINDAGERDGIRL's Photo LINDAGERDGIRL Posts: 9
1/4/12 4:07 P

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Hello to you! I just joined this website. A friend at work uses it and recommended it to me. I am happy to find there is a section or team for people with GERD and able to converse with. I go tomorrow to a specialist to find out what he can do for me and will probably say I need a scope done. Write me anytime, ok?

RUTHIDELL Posts: 2
1/1/12 2:47 P

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Folgers smooth works well for me, both reg and decaf. I also use Kava as an instant. It is supposed to have less acid. I am on an elimination diet right now so heartburn is a lot better. There's not much left to eat. I can have fruit and vegetables, except any corn and tomatoe. I can have some chicken, turkey and lamb (which I don't like). I have more chicken tenders in the crockpot now. I am trying to find a different way to serve them! I really don't want to make two separate meals. I have about 17 days to go!! Also, no milk, dairy, eggs, wheat, etc. I can have Udi's bread ($5.00 a loaf) and almond milk which is quite good. Thanksgiving was a real challenge!! I am hoping to get to the bottom of some of my health problems, especially the digestive ones. Hope your Christmas and New Years were happy. Ruth :)

INTHEWORKS1 Posts: 978
11/21/11 8:09 P

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Thanks for all the great ideas. I would love to hear reviews of the new kind of coffee. I am happy to report that post gall bladder removal I have had less GERD problems. Sadly, I waited way to long to get the gall bladder out.

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RUTHIDELL Posts: 2
9/15/11 10:55 P

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someone mentioned a new kind of coffee. I use folger's smooth decaf and it seems to work ok. I might try the teecino they mentioned though.

DOTSLADY's Photo DOTSLADY Posts: 10,024
7/8/11 1:22 P

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emoticon bit.ly/peS1Yy

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DOTSLADY's Photo DOTSLADY Posts: 10,024
6/8/11 10:17 A

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What are the symptoms of gluten sensitivity?

Although there may be no detectable symptoms of the immune response to gluten, the typical symptoms people develop occur when the reaction begins to damage the intestines. The symptoms, resulting from malabsorption or improper digestion of dietary nutrients, include abdominal bloating or pain, diarrhea, constipation, gaseousness, or nausea with or without vomiting. It appears that acid reflux in the esophagus, manifesting as heartburn, may be a potential symptom as well. Other symptoms people experience include fatigue, joint pains, mouth ulcers, bone pain, abnormal menses in women, and infertility.

bit.ly/j8rqKB

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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GRAMKRIS's Photo GRAMKRIS Posts: 738
5/10/11 7:28 P

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got my coffee today and have tried one and really liked it, can't wait to try more. It did not take long to get here.Thanks ever so much for the information.

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DOTSLADY's Photo DOTSLADY Posts: 10,024
5/9/11 1:04 P

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I have shared info on teeccino on the Celiac team, so GOOD for you! Have a good cuppa.
emoticon emoticon

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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GRAMKRIS's Photo GRAMKRIS Posts: 738
5/8/11 12:29 A

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I ordered this new coffee over the interent called teeccino will let you know how it works they also have tea, I ordered the sample packets to try it.


emoticon emoticon

Happy Mothers Day everyone, kris

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DOTSLADY's Photo DOTSLADY Posts: 10,024
5/4/11 2:16 P

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She's seen a lot of issues in her practice. I like that she knows women's hormones.

Sorry you've been having some issues. I remember how uncomfortable it was. Have you changed diet any?

Someone on another team was having GERD issues, and I remembered another author/doctor which might be of interest here.

Dr. Robert O. Young re: GERD: bit.ly/iyO5yu

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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GRAMKRIS's Photo GRAMKRIS Posts: 738
4/26/11 12:21 A

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Listened to her video and it was helpful. Sounds like she has some interesting books on weight loss

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GRAMKRIS's Photo GRAMKRIS Posts: 738
4/25/11 11:57 P

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I am doing ok, some heartburn at times. Weather needs to clear up, I have only lost 1# and working on 1-2 a week, I think then I can keep it off.

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DOTSLADY's Photo DOTSLADY Posts: 10,024
4/22/11 10:18 A

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www.youtube.com/watch?v=LykS7XPLoSA
Ann Louise Gittleman interview about GERD, hiatal hernia, toxins, keeping gut ACIDIC w/HCl, probiotics, etc.

How's it going ya'll?

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DOTSLADY's Photo DOTSLADY Posts: 10,024
4/7/11 10:14 P

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Recent study showing freeze-dried berries (which, hellooo, are alkaline and full of nutrients!) are helping reverse esophageal cancer: bit.ly/htyNdU . (Saw a report by Diane Sawyer tonight on the news, so googled for the study.)
emoticon

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DOTSLADY's Photo DOTSLADY Posts: 10,024
3/28/11 11:00 P

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Here's another one (her site is great, actually). I hope you check it out: bit.ly/celiacnurseGERD

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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GRAMKRIS's Photo GRAMKRIS Posts: 738
3/26/11 12:37 A

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thank you, have looked at half the sites and found out some helpful information, please keep in touch.

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DOTSLADY's Photo DOTSLADY Posts: 10,024
3/25/11 12:44 A

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More links about GERD, gut health and diet:

Part I: bit.ly/ejmMft
Part II: bit.ly/iiR48u

coffee and your health (mentions gluten ...): bit.ly/hQJKCC



KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DOTSLADY's Photo DOTSLADY Posts: 10,024
3/24/11 11:04 P

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I only hope it helps GramKris. You are right, there are a lot of GERD sufferers out there. :(

You can drink lots of water or (real) lemon water :). You can drink herb tea. I would try that for now. It's gentle and non-acidy I think. You know what I find gives me great energy? I know this is a far cry from coffee or pop (which might be part of the problem), but green smoothies: different lettuces, maybe some fruit of choice in it to make it more palatable. I can't speak enough good things that come from green smoothies. You can google 'green smoothie recipes' to get ideas. Smoothies deliver alkalinity and nutrients quickly vs chewing. You should also CHEW your food well because those enzymes start food break down in the mouth first ... sometimes, when I remember, I also chew my smoothies! :) (I must've read that somewhere, I don't remember where.)

It's about changing up the gut environment. You need living food to feed the good bacteria, ie fiber-rich veg and fruit. I, personally, steer away from "whole grains" because my OLD diet consisted of too much of that (long story on my SP page). I didn't realize my health was worsening BECAUSE of them. I try to eat a lot of veg/fruit and get plenty of soluble and insoluble fiber to get at least of minimum of fiber suggested/day.

I look forward to reading your thoughts about the links. I'm really impressed with your good attitude, cause change is hard. I hope it goes well. I would give it a good month or two. (Try for no grains at first, too, just to see how you feel.)
emoticon

Edited by: DOTSLADY at: 3/24/2011 (23:07)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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GRAMKRIS's Photo GRAMKRIS Posts: 738
3/18/11 9:46 P

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thank you for your information. That is what I was hoping to gain from my topic.
I feel that there are alot of people out there with reflux problems and we need to
talk about what works for one and what helps.
please post again and I am going to try the three plate idea, and look up the different sites you posted.
What are you able to drink? I am still drinking decafe coffee and some pop.

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DOTSLADY's Photo DOTSLADY Posts: 10,024
3/16/11 6:15 P

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This is my first post, and as it doesn't look like an active team, I will only post this brief intro here. I do not have Barrett's, but I thought I was "going there" because of my health history. I had horrible GERD before my celiac disease diagnosis, and it actually got worse when I went gluten-free. Have you heard of gluten yet? Celiac is an autoimmune response in the sm. intestine which creates a leaky gut from having ingested gluten (wheat, rye, barley and cross-contaminated oats). If you have opened junctures within your gut, you allow larger than normal proteins and toxins into your blood stream. You become toxic, and have all sorts of other seemingly unrelated symptoms, BUT the underlying problem with all of this is HYPOCHLORYDRIA or not enough stomach acid.

I don't know what you've been told, but I was told I was producing too much stomach acid and given the "purple pill" to help ease my symptoms. This was right after my celiac dx. I did not know what in the heck to eat, so I turned to eating yogurt (Yoplait cherry ... loved it) up to four times a day. My symptoms worsened, I took the purple pill, problem solved. Or so I thought. I am a curious person, so I looked up Nexium side-effects and learned that these type of drugs actually can prevent nutrient absorption. With celiac disease already being a disease of malabsorption/malnutrition I couldn't believe the doc had me taking these! I stopped immediately. However, I still had bouts of GERD so bad I wanted to die. The bed was raised, the pillow was raised, I didn't eat 3-4 hrs before bed, I didn't eat spicy, I (did eat a lot of butter a lot!) yada. Bile tastes wicked! emoticon

What I learned is that I could take the purple pill AFTER the fact (vs before a meal as instructed), and it still worked. Curious me still took a while before I stumbled upon a site which made the emoticon turn on. So back to HYPOCHLORYDRIA ...

After reading about it, I stopped eating gluten-free processed foods (you kinda go into shock and don't know what to eat, like I said, but I was in my "investigative" stage trying to learn new ways to cook and gaining weight ...right here on SP!) and so much dairy (which also had a lot of sugar). I ate more "alkaline" foods or vegetables/fruits vs "acid" foods or grains, meat, legumes, dairy. Problem solved! NO MORE GERD!!! emoticon A.MAZING!

However, it took another long while for me to address the underlying cause as to WHY I had to eat that way .. and we go back to HYPOCHLORYDRIA! I may have prescribed myself a better diet vs a purple pill, but dealing with WHY I had to eat that way wasn't dealt with.

Many people are born with low stomach acid (a gift from your parents). Stress eats away at your gut (really)! Or diet also contributes (too high/many acid foods as listed above). What do most "diets" have in common? Veg and fruit!

If you don't have enough stomach acid, you cannot digest your food proteins adequately. If you don't adequately digest your food, you are malnourished.

As a background to my health history I will go back some by telling you that I am almost half Irish (the other wee bit Welsh). The Irish have a history of starvation (stress). My father is alcoholic (HIS gut is stressed) and I grew up extremely stressed around him. I likely never had the adequate tools to deal with stress which then my diet added insult to injury.

I don't know how you deal with stress, but many people turn to baked goods (grains). Grains, rather, the gluten protein in them temporarily raises your serotonin and it's a cycle often repeated.

Maybe you don't have this type of history at all! Maybe you come by low stomach acid a different way, I am just sharing my experience and you take from it what might help you. And I hope it does.

I now take supplemental enzymes before and during meals (betaine HCl, and pancreatic) to help me digest my macronutrients. I hope at some point to not need them and I'm unsure if I will ever not have to take them.

Know that there is a STRONG correlation of gluten (which is often wrapped in starches and sugars) to GERD symptoms. I saved a study I was going to share, but I can't find it at the moment. I will come back when I find it, to share with you all.

My maternal grandmother (Irish/Welsh) died from Barrett's - that's why I take seriously what I have learned from the celiac community, and my own experience.

So, as a quick list of foods to eat MORE of than anything else on your plate:

1/2 vegetables,
1/4 protein,
1/4 fruit.

It took a few weeks for me to feel more normal. And the weight comes off as a bonus.

I guess everyone's different, but I have felt compelled to share for a long time. I hope you don't mind, and I hope you give it some thought and try it. If it helps, please come back to share with others so they can feel better, too.

I will leave you with some links I think help reiterate what I've tried to share.

snarky, but good re: antacid products: bit.ly/gnf8NN

bit.ly/77VI9T

Candida/sugars: bit.ly/hqwTfP (I have been researching at least 5 hrs a day for 5 yrs. This article is like it was written about me. I know most people won't know they have a copper imbalance, but I got tested, and DO, so I share in case someone sees a naturopathic doctor or holistic nutritionist like I do).

Leaky Gut: bit.ly/dVx18G

Gluten and "non-corrosive" GERD: bit.ly/hg9P8t

Gluten and GERD: bit.ly/gImpvG

(Keep in mind when people tell you they felt relief from going gluten-free ONLY - cause you can find anecdotal stories like that, unlike me who got worse on gluten-free because I was eating too much sugar in my dairy, that they likely were eating better than me!) Maybe you eat better than me, too (at the time). I don't have a problem since I eat "paleo" now. Paleo is eating veg, fruit, and meat, eggs, nuts, seeds.

There is also another diet which might help guide you if you are desperate, you can contact the site-owner. But read the info first. I heard about this when I was first diagnosed, and was scared off - lol. I'm about doing it now through trial and error anyway! It helps repopulate the digestive tract. You should at least know about it, so I share.

bit.ly/fQSkPx

There are many roads to a leaky gut (and my celiac disease is but only one): bit.ly/hRDmIq
bit.ly/e0un5C

Hypochlorydria: bit.ly/hhep72

Done! I hope this helps someone. Please share if it did so you can help pay it forward!
emoticon

Edited by: DOTSLADY at: 3/17/2011 (15:49)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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GRAMKRIS's Photo GRAMKRIS Posts: 738
3/12/11 5:53 P

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It would be nice to share what drinks and foods work for others. We have already started, but we need all the help we can get.

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