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KAJIRA_CALLA's Photo KAJIRA_CALLA Posts: 693
5/13/13 10:51 A

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i probably joined about a year ago after i was first diagnosed and then probably never posted after than and now i'm just ready to give up. If i exercise in the least i'm down for the next 2 days completely immobile. If i stress out at all (even good stress) the pain is soo bad i can't function so either i live in a vacuum and not leave my recliner other than to use the bathroom or the pain is unbearable.

Disability seems to think i can still do my job of standing on my feet for 8 to 16 hours a day in the blaring sun, cold winds or whatever mother nature decides to throw at us at that moment.

And no body who doesn't already suffer from this understands and it sucks. Yeah i know i'm preaching to the choir.

Shannon Buddy

Love yourself first because if you don't who will?

Happiness often sneaks in a door you did not know was open.
Author Unknown.

Never apologize for showing feeling. When you do so, you apologize for the truth.
Benjamin Disaraeli


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NEEDY6's Photo NEEDY6 Posts: 6
1/13/13 5:15 P

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hi iam new here and id like to join all of u in a lil ranting for myself. iam always open also as a friend and have an ear to all that wants to talk. emoticon

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DDESERTDDAWN's Photo DDESERTDDAWN Posts: 793
9/8/12 9:35 P

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It feels like firecrackers on a string sometimes. This one thing triggering another and yet another! I'm glad to know that there is help out there but it is not so easy to get to sometimes.

Having an MRI just about killed me. Well not really, just felt like it would! When preople know that the pain we go through is not going to cause 'harm' they sort of discount it! What is that about? I mean reallY?

I mean really? giving up two days to pain in order to find out what to do?

Tired sometimes, tired. Pacing takes energy too.

..
Thanks for whining place.

emoticon
dDawn



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LUCKYLADYKATIE's Photo LUCKYLADYKATIE SparkPoints: (14,548)
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5/15/12 1:23 A

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my carpal tunnel gets triggered way too easily! My body is just too sensitive to everything and if I'm not really really careful I trigger pain :(

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CHOCOHOLICLADY's Photo CHOCOHOLICLADY Posts: 81
4/30/12 7:23 P

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Agreed 100% emoticon

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LUCKYLADYKATIE's Photo LUCKYLADYKATIE SparkPoints: (14,548)
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4/30/12 12:29 A

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damn this chronic fatigue!

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ASHAIXIM's Photo ASHAIXIM Posts: 2,611
2/29/12 4:43 P

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Having a doctor to work WITH YOU is vital, having the brains to work for yourself IS MANDATORY!! I completely agree with you!! I've lucked out because I got a doc who will work with me and have a system in place. A lot of folks are NOT as lucky. I'm lucky in part BECAUSE I'm smart and I work in healthcare... for instance, I got a referral to the rhumotologist to get diagnosed for fibro AFTER I researched and researched and then TOLD MY DOCTOR what I had and then I came to work and told one of the nurses and three people said, no you are not going to THAT rheumotologist, you are going to THIS one (everyone told me the same person to go to cause she's the best). I also know how to TALK to doctors. I really feel bad for people without an additional support group who can help with who to go to, what to say, etc.

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LUCKYLADYKATIE's Photo LUCKYLADYKATIE SparkPoints: (14,548)
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2/25/12 5:26 P

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Glad to hear everyone expressing! It's important to think positive and keep a positive attitude but the anger, frustration, sadness and pain are all real valid emotions too that we need to express in order to be healthy.

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CHOCOHOLICLADY's Photo CHOCOHOLICLADY Posts: 81
2/22/12 11:44 A

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Wonderful idea! Thank you...don't mind if I do! Between degenerative spinal arthritis and fibro, etc. etc. there are some days you can't win for losing when it comes to disabling pain.
One winter the pain was so bad one month that I took 28 pain pills in a 30 day period, ordered one every 6 to 8 hours as needed, but when I called to have the prescription renewed I was told that I'd have to wait two weeks, not because I'd misused it or that it was too soon for it to be renewed, but because they wanted to protect me from potential addiction. For two weeks I suffered! At one point making my way to bathroom I involuntarily screemed. Someone I didn't know walking down the sidewalk heard and pounded on the door asking if everything was alright. I didn't have it in me to answer the door so yelled "Fine! Go away!" and finished making my way to the bathroom and back again. No sooner than I'd finally gotten situated back in my recliner there were two policemen at the door! I lost it, told them everything, even showed them my prescription bottle. They offered to take me to the E.R. and I told them I'd rather they arrest my doc for torture and abuse. Now I go to appointments I tell them to keep their prescription pads to themselves. I don't need to be subjected to their power plays. And I can't stand the side effects. One routine med caused me to have a grand mal seizure (when I became too ill to keep anything down) for the sudden lack of it and it had NO risk for for addiction! I won't be subjected to that either. If I have to be tortured from time to time I'd rather it be because of my refusal than somebody else's! And this is what goes through my head anytime the pain becomes too much to bear and keeps me firm and strong in my stance.
Today is one of those days. But I'd rather bear the pain, shed tears, scream if it comes to that than go have some idiot doctor offer me crap that doesn't work and has horrible side effects or thinks they know my body better than I do!

Edited by: CHOCOHOLICLADY at: 2/22/2012 (11:54)
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ASHAIXIM's Photo ASHAIXIM Posts: 2,611
2/22/12 10:22 A

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Granny, I hope your surgery went well and you are able to be back on your feet and with us shortly!! emoticon

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GRANNYS5's Photo GRANNYS5 SparkPoints: (84,152)
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2/20/12 5:16 P

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good day, well I hope I'm allowed to post here - because I'm not ranting, or venting emoticon I want to say emoticon emoticon emoticon to the new team leader. I have not been around for some time, I moved and have been trying to settle in for a month now, went without internet for a couple of weeks, and now I am getting ready for hip surgery. I hope that I will be back in full work mode VERY soon. I am so sick of being in pain and not being able to even walk very far; let a long workout... I will get back at it this year, most of last year I could do nothing and I have gained back every bit + in weight that I had lost.
So welcome luckyladykatie, and hope you'll to be seeing more of me in the weeks to come.
My surgery is tomorrow, I'll be in the hospital for a few days; as soon as I can I'll be back on here.
everyone have a great day, and I'll see ya all soon.

emoticon emoticon emoticon emoticon emoticon jill

Edited by: GRANNYS5 at: 2/20/2012 (17:17)
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ASHAIXIM's Photo ASHAIXIM Posts: 2,611
2/11/12 11:07 P

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LOL!! This is a great!! idea!! LOVE it!!

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LUCKYLADYKATIE's Photo LUCKYLADYKATIE SparkPoints: (14,548)
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2/9/12 5:10 P

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Some days it's hard to keep a positive attitude and you just need to vent and rant to get it all out of your system. Post here!

Are you highly sensitive? Team Highly Sensitive People www.sparkpeople.com/myspark/groups_i
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