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TDICOIO's Photo TDICOIO SparkPoints: (7,157)
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8/15/13 12:58 P

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Okay, so we ended up needing surgery anyhow! Just got him home this week and other than the pain from the actual incisions he hasn't had any more pain from the insides. This is good, hopefully he won't need any more surgeries!

~TDiCoio


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TDICOIO's Photo TDICOIO SparkPoints: (7,157)
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6/16/13 8:25 P

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OMGIMSOHAPPY!!!!!!!!!!!!

We met with the surgeon and she said that because he's responding fairly well to the meds, she would rather NOT do surgery on him. Apparently she doesn't like to do surgery on Crohn's patients unless absolutely necessary. Since the symptoms can flare up anywhere in the GI track it makes sense. Cutting out a piece will only make it move the next flare up. Better to keep it where it is and try to control the symptoms. She figures the fistula should heal up eventually and even though there's now a hole between two parts of his intestines, nothing is going in a place it shouldn't, so it isn't a huge deal.

YAY!

~TDiCoio


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TDICOIO's Photo TDICOIO SparkPoints: (7,157)
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5/30/13 6:48 P

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So my husband had a CT scan on Wednesday. The Dr. at the office looks at his results and says to him, "You need to go to the hospital and have emergency surgery." So of course he calls me to come pick him up and I'm freaking out. In the meantime they call his gastroenterologist office. His main doctor isn't there, but this other doctor who we don't like answers. He says, "You need to use the barium dye." My husband vomits when he drinks that stuff, so it's pointless if you don't keep it down. We've explained this. This is why we don't see this particular doctor. So when my husband said, "No, what about the injection?" the jerk of a doctor tells him to go home. So one guy says emergency surgery, and the other says go home. So I get there, we go into the gastro office and the doctor who had originally diagnosed him 7 years ago, Dr. Islam, (he's ancient, with a long beard, and has an Indian accent) and have a nice long chat about the evils of bloated insurance companies and the stifling effects of Obamacare on health services in the US. Then he sets my husband up with a specialized surgeon and tells him he needs to start coming in every 3-6 months, no more excuses, even after he's healed from the surgery. So now we're waiting to see the surgeon and hopefully this will turn out decent. Dr. Islam mentioned a new study they're working on that involves some sort of parasite larva that when taken in a capsule is showing full remission in 80% of patients. So we'll see how that goes too. Sadly the fistula means he can't participate in the study, because it labels him as "severe" Crohns, not moderate.

Anyone heard of the treatment? I have a link to a NJ study that sounds like it's the same thing our gastro office is doing, except the linked study uses a saline solution not a pill:

www.nj.com/bergen/index.ssf/2013/05/
do
ctors_turn_to_parasite_eggs_to_treatR>_crohns_disease.html


~TDiCoio


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