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TDICOIO's Photo TDICOIO SparkPoints: (7,157)
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5/22/13 9:04 A

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So my husband, who has Crohn's, hasn't gone to the doctor about it for 6 years. Technically that's a lie, he went because he got nodules on his legs about 9 months ago, but there was only a bit of blood work done, and I'll be honest, they didn't have any suggestions for the nodules but to wait them out. Sure enough, 6 weeks after appearing, they just disappeared, leaving behind a few spots that look like bruises that haven't gone away.

But as far as stomach issues, no problems for 6 years (his initial diagnosis, BTW. He was 23 then.) we've been managing with diet, and very well, I might add! But it's gotten to the point where everything hurts. So finally, after getting a fever and wondering if we ought to go to the hospital, he gets an appointment to see the doctor.

Surprise, surprise, they want him to do all the tests again. He's going for a colonoscopy, a CT scan and a bunch of blood work again. They've prescribed Entocort, which is MAD expensive, but not as bad as the Pentasa he stopped taking 4 years ago when it changed to a Tier 3 drug on our insurance and was $90 a month. If we're lucky, he'll take the Entocort, which is 3 pills a day, at $30 a month (I say mad expensive based off what our insurance is paying, about $12 a pill, over $20k a year, I kid you not!) and wean himself down to one pill a day once the symptoms go into remission.

Has anyone else taken Entocort? Please share your experiences!

~TDiCoio


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