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REALGIRL2's Photo REALGIRL2 SparkPoints: (568)
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8/23/11 3:50 P

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don't give up hope AARCHER65! you sure have been through a lot!

my gi has said that people on steroids regularly gain a lot of water weight and fat. the steroids effect the entire body. but regardless of the great support and encouragement from my gi, it is such a huge blessing to be on sparkpeople and relate to others that have gone through similar struggles. :)

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AARCHER65's Photo AARCHER65 SparkPoints: (1,247)
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8/22/11 2:57 P

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i've had crohns since, at least, january 6, 2009 .. i quit smoking (after 35 years) on the day i went into the hospital with an intestinal blockage .. the pain was really bad .. i could hardly walk .. i had started menopause and had already gained about 20 lbs .. the gi doc put me on entocort ce .. i gained lots more .. i stopped taking it because of the steroids .. i was told the steroids only worked on the gut, not the rest of the body .. the gi doc said as long as i do daily exercise, get plenty of sleep and be careful with what i put in my mouth, i should be ok .. but, he stressed that i'm to call him immediately upon any kind of flare up .. i had my gallbladder taken out at age 21 (it was full of stones) .. i was very thin during my 20's, when i wasn't pregnant .. people would see me eat 2 or 3 plate loads of food and wonder where it all was going .. now, i can barely finish half of what's on my plate .. it's frustrating when your own children say you're lying because you're too fat to have crohns .. i was starting to wonder if i was the only one .. my gi doc said he never had a crohns patient who needed to 'lose' weight before .. thanks to sparkpeople and this team, i don't feel so alone :) .. btw - i'll be 53 in december of 2011.

Edited by: AARCHER65 at: 8/22/2011 (15:04)
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REALGIRL2's Photo REALGIRL2 SparkPoints: (568)
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8/20/11 11:24 P

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i can completely empathize with the steroid "look" a pretty good friend (who is in the medical profession) told me the first time that i went through steroid treatment .... you sure do have the chipmunk cheeks and the buffalo hump! WOW, could have killed her! steroids do work to control the inflammation like nothing else i've ever seen!

not sure about everyone, but it is encouraging, and comforting to me that there are others ((like yourself)) you feel the same way and really understand the struggle!

here's to our better health, control of the IBD, and the weight!!!!

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BEADDEB1 Posts: 7
8/20/11 10:38 P

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I've had Crohns for 28 years. During that time my weight has fluctuated between 118 and 184. The scenario generally goes, I have a bad flare up and lose quite a bit of weight (20+ lbs), I have to go on Prednisone, and then I gain 20- 30 lbs and sometimes more. My latest bout started last August when I went off steroids to get allergy tested for foods. Between August and December my weight droped 35 pounds. I had to go back on steroids (60mg) to get things back under control and I have gained back 25lbs. This time I am determined to get the weight gain under control.

I understand what you mean about people's comments. Sometimes the hardest part is what people say. This last time I had to go back on steroids I had a family member ask me if I was going to get fat again and if my face was going to get really round again. Yes, to both. It is what the medication does. But it is the only thing that works. I really don't have a choice right now.

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REALGIRL2's Photo REALGIRL2 SparkPoints: (568)
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8/19/11 11:18 P

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of all the difficult questions/comments i have had to dodge from people is just this --- if you go all the time and have crohn's why are you gaining weight, how can you be overweight, i thought it was a skinny person's disease!!??!

so what is your experience of struggling with Inflammatory Bowl Disease AND your weight?? one of the greatest benefits of this spark people team for me has been seeing that others with C & C gained weight in their disease/treatment!

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