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LILYPAD36's Photo LILYPAD36 Posts: 181
5/26/10 6:15 P

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I too have been neglecting this site. I was off work until the end of March and am now back to my normal routine (except I'm working 4 days instead of 5). Everything has been good for me. I have, unfortunately, regained a fair portion of the weight I lost while off sick and I regret that. However, I am happy to be feeling better. Now I just have to focus on better food choices and exercise on a regular basis instead of here and there. I do find that I am more aware now when I'm not eating well, but that's just because I am now paying attention to my body signals instead of ignoring them. No flare ups and I'm sure hoping to never head down that road again. I have not put any limits on what I eat.

Good luck MSCHELLE on your surgery. The road to recovery is different for everybody. Just focus on each day and what you can do that day. Eventually you will be feeling well again and you can catch up on everything. I'm at that point now and I learned a lot about myself during my illness and recovery. I definitely have a much better way of looking at life now. Every cloud has a silver lining. I'll keep you in my prayers!

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DUSTY57's Photo DUSTY57 Posts: 165
5/26/10 8:52 A

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MSCHELLE I hope that you are doing well. Good luck on your upcoming surgery. I hope and pray all goes well for you. So far so good with me. It will be a year June 8th for me since surgery. I now eat anything I want, but am still skeptical about nuts, seeds, etc. Just scheduled a colonoscopy with my GI surgeon for July. I hope everything is the way it's supposed to be in there. Keep us posted how you are doing. Good luck!!!

"You did what you knew how to do, and when you knew better, you did better". Maya Angelou


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DUSTY57's Photo DUSTY57 Posts: 165
5/26/10 8:48 A

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LILYPAD-hope you are doing better and back to feeling well again. So sorry I haven't been on here in months. Been neglecting this site for too long. Just wanted to say hello and wish you well. Praying that you are better--and stay that way!

"You did what you knew how to do, and when you knew better, you did better". Maya Angelou


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MSCHELLE0370's Photo MSCHELLE0370 Posts: 312
5/25/10 11:44 A

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Well I am glad I looked at this post. My first episode of diverticulitis was on March 1 of this year.(2010) I waited too long to go to the hospital and ended up with a small perforation and abscess. 9 days in the hospital. 5 days without any food or water (IV fluids only). Then I was finally weaned back to regular foods before I was sent home. If I would have perforated any worse, I would have had to have surgery and it would have required the colostomy bag. I was told it would be 6 months with the colostomy bag. Not an ideal choice for a very active person (or any person for that matter). So we got things calmed down for a little while. Small flare up beginning of April treated with oral antibiotics at home. Another flare up end of April which required another 3 days in the hospital. Was sent home with antibiotics again. Colonoscopy planned for next week, surgery schedule for middle of June. I am on antibiotics 3x daily until the surgery. Fortunately my doctor is one who will do it laprascopically, providing everything goes well and he is able to do it without any problems. I was just curious though for those who had the surgery, what the chances of more flare ups after the surgery?

~Michelle~


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LILYPAD36's Photo LILYPAD36 Posts: 181
1/28/10 7:40 P

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Dusty - I'm glad your surgery went well. Seeing your message reminded me that I forgot to post my update. I had my scan on Jan 8th and felt terrible for a few days after. I was admitted to hospital on Jan. 12 with another abscess (9 cm. diameter). My surgery was on Sunday, Jan. 17th where they did most of the removal by laproscopic methods but because the mass was so large, I now have a 4 1/2" incision. Of course it is now infected, so I have a nurse coming daily to change my dressings. I am 11 days post surgery and still finding it quite uncomfortable. I'm being a bit of a wimp, but I'm really just tired of all this abdominal pain. I hope my recovery is as successful as yours.

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DUSTY57's Photo DUSTY57 Posts: 165
1/28/10 10:20 A

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Hi everyone. Hope you don't mind me joining in here. I haven't been on SP in a long time. Had a rough year last year. If you look at my personal info it will fill you in on my road to recovery with diverticulitis. I had my first colonoscopy in the fall of "08. They removed two benign polyps and said I had mild diverticulitis. Told me to eat lots of fiber which I do anyway. All was fine until last spring when I had a sudden attack that lasted over a week before I realized it was not a stomach virus anymore coming down with a fever. Anyhow 5 days in the hospital with a drain tube for a 3 mm abscess that was stage 3 out of 4. Thank God that it didn't perforate! That was h--- in itself but the Levaquin really did a number on me and I can not take it again. Discussed everything with the dr, asked a lot of questions before I decided to have the surgery. I was so scared to NOT have it. The thought of having to restrict my diet so much and my state of mind at the time made me realize I did not want to live like this. I know surgery isn't the easiest thing for any of us to decide, but for me it was the right choice. I feel sooooo much better. I can eat now the foods I always loved and believe me I am careful about what I eat. I hope you all get some relief from this tortuous disease. I know that everyone needs to make the right decisions for yourselves. Just wanted to let you know that some of us that have had the surgery are doing well with it. No tummy problems at all anymore. Praying it stays that way. I look back now and I am so glad I had it done. Hugs and prayers to all of you. Keepin' the faith...Dawn

PS I have a VERY good and reputable website that was very helpful for me during this difficult time-don't know if I can post it here or not. If not, pm me and I can give it to anyone interested...healthboards.com-go to message boards under bowel disorders. It's run by WebMD

Edited by: DUSTY57 at: 1/28/2010 (10:29)
"You did what you knew how to do, and when you knew better, you did better". Maya Angelou


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LILYPAD36's Photo LILYPAD36 Posts: 181
1/3/10 9:33 A

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Pat - I'll bet you are relieved to not be having surgery now. I have been off work since the end of October with a bout that started September 17th. The meds didn't clear the infection and I ended up with an abscess that was drained by CT guidance. I'm still off work and have another CT scan on Jan. 8th. They say that the abscess can takes months to completely heal, and I am still experiencing some days of pain, which make me wonder if I will be having surgery too. I have really only had 2 attacks, both in 2009, but this last one was terrible. I guess if it were to happen this way again, I wouldn't suffer so long before knowing what was wrong. I had a fever between 38 & 40.5 degrees for 17 days before having the drain. IT WAS TERRIBLE. My doctor and local surgeon both said surgery, but the specialist in the city is not so convinced. I will know more after my scan. If the abscess isn't healing, I guess I don't have a choice.

I've always found it difficult to change my eating habits, but I must say that this is a great motivator. I watched people scarf down nachos & hotdogs at the movies yesterday and knew that I would NEVER be able to do that. I hope you stay in good health. I have been recording everything I eat in hopes of having an answer to what could be causing pain. In looking back over the past couple days of pain, I'm thinking that not enough water may be to blame. I will do better today. The holidays have definitely been tougher to manager.

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PAT41164's Photo PAT41164 Posts: 264
1/2/10 8:28 P

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LOL! emoticon I know what you mean!

The good news is that my recent colonoscopy found nothing new, except a little irritation that was NOT an issue.

So Doc and I have decided to wait things out. Surgery is NOT out of the question in the future for me. But I am making some big dietary/lifestyle changes and I'd like to see if that makes a difference. I've been staying away from the old enemies (seeds, nuts, popcorn) for a long time now, so my attacks seem to be triggered by something else, perhaps fat. We'll see what the new changes bring. If my lifestyle changes do NOT work, I'll be seriously considering surgery. The fear of dying from an infection is over-riding my fear of the surgery and its outcome.

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NEUTRALHILLS's Photo NEUTRALHILLS SparkPoints: (20,093)
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12/13/09 4:28 P

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Yeh, after my last attack the doctor mentioned that surgery was a future option. I warned him that I'd be trying to remove his colon at the same time he was trying to remove mine. I think he got the message.

Please keep us informed of how you're doing!

s.

Just another camera toting redneck!


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PAT41164's Photo PAT41164 Posts: 264
12/3/09 11:46 P

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Well, I'm past the attack now... Finally starting to feel back to normal after 3 weeks. I managed to stay out of the hospital, but even my GI thinks that surgery may be the way to go for me. However, we're going to do another colonoscopy first, to see if anything is different down there than 2 years ago. I don't mind the test itself, but the PREP! UGH!!!! emoticon That'll be in a couple of weeks.

I have done my homework on the surgery. An elective surgery has a 99 percent success rate, and the chance of getting diverticulitis again is only 12 percent after having the surgery. The surgery can be done laparoscopically now, so that's a plus. Ideally, one would have the one part surgery, rather than the two-part, where the intestines are not reconnected until a second surgery is performed. That leaves you with a colostomy bag for about 6 weeks... No fun. But these infections alone are scary and full of risks.

All still to be seen... but now I'm staying open to the idea. I'll let you all know what happens...

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MEXGAL1's Photo MEXGAL1 SparkPoints: (245,638)
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11/20/09 4:18 P

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No surgery for me either. I am very strick with my diet and eat only good fats like avacado, no salt, no sugar, beef, etc. As is everyone else it is very confusing what to eat and not eat. I do hope if you have to have the surgery that all goes well for you. I would do some more research on the internet and see if you can chat with others that have experienced the surgery. If it would keep you off antibotics and help lessen your flare ups, might be worth it.

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NEUTRALHILLS's Photo NEUTRALHILLS SparkPoints: (20,093)
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11/14/09 12:43 A

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No surgery here (yet). I'm doing everything I can to avoid it. Hoping you don't need it, but that you come through it alright if it turns out that you do.

Best,

Sean M.

Just another camera toting redneck!


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PAT41164's Photo PAT41164 Posts: 264
11/9/09 3:36 P

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SURGERY.

I had to see my regular doctor today, so when I started to feel a diverticulitis attack coming on, I just waited to see him.

This is my 5th attack in less than 2 years time. And that's why the doctor mentioned maybe the time has come from surgery.

By the same token, it probably isn't a severe attack. That is, I've caught it early, as I did two other ones, and I'm hoping at-home antibiotics will do the trick. The other two were hospital stays, the first being the worst, requiring 3 nights on an antibiotic IV.

As much as I'd hate to go through it, he might be right. I'm only 45 now... and the infections seem to come just about every 4 - 6 months. Load me up with antibiotics, send me on my way... only for me to return. I have large to medium diverticula throughout my system. I guess they'd remove the part that was consistently infected.

So I'm wondering if anyone else on the board has gone through surgery, and what it was like and what has life been like since. Would anyone like to share his/her thoughts?

Thanks in advance!

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