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CINDYTW
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1/7/13 7:19 P

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Ramona it is called a Celiac panel and basically it measures whether your body is throwing off immune attacks toward gluten, which is what damages the intestines. I forget the exact components, I believe they all begin with IG...IGA, IGG, etc. I listened to an entire college lecture online about how this test can be horribly innacurate unless you have total villous atrophy=Celiac disease. You can still react to gluten, but it has not YET gotten this bad. It still can and a negative test does not mean for certain you don't have a gluten problem, only that it has not probably wrecked your intestines yet.

Cindy

"To get something you never had you have to do something you never did"



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_RAMONA
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1/6/13 9:34 P

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Cindy, thanks for clarifying (pretty sure I would have stopped short of the biopsy myself... 4 colonoscopies, 2 gastroscopies and countless rounds of stool collection were more than enough)!

What's an immune response blood test, and what does it tell you? I wonder if there is any value in it for either me or my daughter? Incidentally, despite my medical history, nobody has ever suggested testing for Celiac, and my daughter tested negative three years ago when she first became very ill.

I was diagnosed with IBS over 30 years ago... and have struggled with many other chronic (but not diagnosable) issues for all this time as well. I've lived in the 'feeling like crap, but there's nothing wrong with you' camp all of my life. Because eating Paleo/Primal has me experiencing my first real wellness EVER, I am content to simply live WELL and not worry about a diagnosis. I feel the same for my daughter (she's only 8 now)... should she, as an adult, choose to go back to eating gluten, and should her health deteriorate, I would at that point encourage her to get tested all over again. Perhaps in 15-20 years there will be better testing available. Until then, I plan to keep her as well as is possible, and eliminating gluten has made all of the difference for her, too.

I'm glad you've got a happy ending, too!


'An Apple A Day' keeps the doctor away...
www.marksdailyapple.com/primal-bluep
rint-101/#axzz28X8ooJ1H



NOTE: My weight tracker is NOT a truthful representation of my weight. Instead, I am using it as a tool to help me visualize my goal as though it's already been achieved!

www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=2108522


 current weight: 135.0 
 
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163.75
135


HOUNDLOVER1
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1/6/13 7:32 P

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Makes sense, I had no idea the autoimmune test only shows positive with full-blown celiac. I agree it's easier to just eliminate since that's the only treatment anyhow.
Birgit

Edited by: HOUNDLOVER1 at: 1/6/2013 (21:57)
You can talk to God all you want and that's great, but the changes happen when you start listening to him.

BE THE CHANGE YOU WANT TO SEE IN OTHERS.




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CINDYTW
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1/6/13 7:28 P

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Ramona and Brigit, the blood testing for gluten is 1 of 2 things: a genetic test fo the markers for Celiac disease, or an immune response test that is only accurate really for people who have full blown Celiac disease. There are a lot of other folks who have all types of gluten symptoms and yet test negative. Gluten intolerance or sensitivity does not have its own test. There is also wheat allergy, which is a whole other thing that I believe is a skin prick test.

For full Celiac testing you have to be on gluten for a MINIMUM of 2 weeks. My GI doc said way more than that, like a month or 2! I refused to have the biopsy (the next step after blood test) because of this. I had already been off gluten 30 days by the time I got in. Since there is no treatment other than gluten free diet, it was hardly worth it for me to make myself sick just to have Celiac stamped on my chart. Instead he and my PCP conceded that my high numbers on the immune response blood test were enough. I was so sick when I went off gluten I literally teared up when he suggested going back on for the biopsy!

I am sure that there is something less mainstream, but this is what the mainstream medical community does. If all of this is negative yet you still feel like crap, you get labeled with all types of other things including IBS, but certainly not limited to that.

Cindy

"To get something you never had you have to do something you never did"



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JANAMP09
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1/6/13 8:55 A

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I think that is why the Belly Fat Cure does not allow fruit - as all of it would be over 15 grams. Ketchup and many condiments are also not allowed. AS I said, I don't follow it I just thought anyone who had a sugar addiction my find it go be good reading.

Janet

Always look through the windshield and not the rearview mirror


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HOUNDLOVER1
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1/5/13 1:48 P

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Just putting my 2 cents in here. 15 grams of sugar would be way too much for me and would still let me return to my sugar addiction. Actually even one banana is far worse than a few pieces of very dark chocolate for me, the first contains about 30 grams of sugar, depending on size, 6 small squares of 85% chocolate (about 1 oz) contain about 12 grams of sugar. I may have one or two of those a day just to not feel deprived. Any more and my body reacts by producing too much insulin.
Birgit

You can talk to God all you want and that's great, but the changes happen when you start listening to him.

BE THE CHANGE YOU WANT TO SEE IN OTHERS.




 Body Fat %: 18.3
 
23.6
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20.8
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JANAMP09
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1/5/13 1:40 P

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Englishrose. The Fat Belly Cure may be a book of interest for you. His preaching is reducing sugar. 15 grams a day only. Because that means no fruit at all but I am not addicted to sugar as you are. I was able to get from our local library

Janet

Always look through the windshield and not the rearview mirror


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ENGLISHROSE
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1/5/13 1:33 P

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Good luck with it.
I tend to have bacon and eggs for breakfast which is traditional in England anyway (although some people wouldn't want processed bacon but ours has no sugar added etc); then a typical lunch for me is salmon steak often fried, spinach with butter and today I had raw carrots and then dinner fried chicken with stir fry vegetables.

I am experimenting with no fruit and no dried fruit which is very very hard for me but I need a break from them. I am the arch fruit eater who can eat 8 bananas at a time and never eats a reasonable amount once in a while. It is my sugar hit, my candy and it just seems for me to spike up my blood sugar just like chocolate so I am trying total abstinence.

I am not really in favour of unnatural things, supplements, shakes etc but I am taking glutamatine powder in water at the moment and chromium picolinate which supposedly stop sugar urges (I am and always will be a total sugar addict even when I am abstaining, just like alcoholics are always alcoholics even when they stop drinking) which seems to be working well but it may just be a placebo effect. I put on about 28 pounds since I destroyed my earlier successes by having one chocolate item about 2 years ago, I ruined all the good work and once I was back hooked on it that was that. So I must get off it now for my own good health and happiness - sugar makes me cry and be sad and for my daughter's wedding later this year - I cannot be a fat mother of the bride. I need to go back to how I was in terms of weight.

Good luck to everyone else, from England.



_RAMONA
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1/5/13 11:54 A

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Hey, Birgit. I don't know about a definitive test specifically for gluten sensitivity (I vaguely recall a similar impression though... that there is one), but I know for the celiac test you would have return to eating gluten for two weeks at least before testing to get any conclusive results... the other option being a bowel biopsy... and you would still have to be eating gluten at the time of biopsy. For myself and my daughter, these are simply not an option.

I'm taking the 'if it looks, talks, walks, acts like a duck... it's a duck' approach, LOL! For us, dropping gluten has had such dramatic results (and increased wellness), it really can't be anything else. I was able to manage my IBS really well... long before I came to understand gluten was my issue and finally began to actually heal. By the time I stopped eating grains/legumes IBS was by far the least of my concerns.

...And while IBS isn't necessarily present with respect to gluten sensitivity/celiac or vice versa (most people with gluten sensitivity of any sort are very aware of the systemic impact... my daughter's issues are systemic alone, while mine include both IBS and systemic issues), I agree that if IBS symptoms *ARE* present that gluten sensitivity, if not full-blown celiac disease, is a better than good possibility. I also agree with Cindy that, "A lot of people with "IBS" (and most non-specific health issues) really have specific food issues that traditional medicine doesn't bother figuring out. Paleo removes most of the big triggers for people." It's a really good place to start at any rate... though for whatever reason, doctors don't usually suggest the possibility. If someone hasn't already started down a gluten-free path, I would recommend insisting on testing.

Has anyone gone through the process of being tested? Where you happy with the results (did you find the information/follow-up you received useful)?

Edited by: _RAMONA at: 1/5/2013 (18:51)

'An Apple A Day' keeps the doctor away...
www.marksdailyapple.com/primal-bluep
rint-101/#axzz28X8ooJ1H



NOTE: My weight tracker is NOT a truthful representation of my weight. Instead, I am using it as a tool to help me visualize my goal as though it's already been achieved!

www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=2108522


 current weight: 135.0 
 
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192.5
163.75
135


HOUNDLOVER1
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1/4/13 11:20 P

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Cindy, isn't there a blood test for gluten-sensitivity as well? Maybe I remember this wrong, but even if there is one it would be good to find out how accurate it is.
Birgit

You can talk to God all you want and that's great, but the changes happen when you start listening to him.

BE THE CHANGE YOU WANT TO SEE IN OTHERS.




 Body Fat %: 18.3
 
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20.8
19.4
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JANAMP09
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1/4/13 6:19 P

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Thanks Ramona for so much info. I have never been diagnosed with IBS pretty sure that I had some form of it. I also see my mother who is constantly complaining of having trouble with her bowels again. She gets very weak from it. I went Paleo a month ago and feel better. I have tried convincing my mother but she insists she doesn't need to be tested for a gluten allergy or need to revamp her diet

Callibili
I am sure if you try Paleo for a month you will feel so much better and your IBS willl be better

Edited by: JANAMP09 at: 1/4/2013 (18:22)
Janet

Always look through the windshield and not the rearview mirror


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LILY_SPARK
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1/4/13 9:22 A

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I'd like to say:

I'm Celiac and I do not have IBS.

That's not the only symptom. Mine were systemic (hair loss, malabsorption for YEARS, I took RX supplements throughout childhood until I moved out at 15 and as a 15yo, didn't bother; fevers, joint swelling and pain and more).

IBS can be from a lot of things AND it can include gluten sensitivity but doesn't mean Celiac and vice versa (Celiac does not mean IBS, as I'm the poster child).

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_RAMONA
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1/3/13 10:58 P

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You're so welcome, CALIBILLY4! Paleo will absolutely address your IBS... I don't even remember what symptoms are like! As for your daughter, just keep doing what you can do and I'm certain that as she sees you improve she will want the same result. I didn't even bother trying to convince my family. For our daughter (who is only 8), I just started feeding her differently, without a lot of fanfare, the foods she could have and presented in the most appealing ways. She LOVES fresh everything, and give her a rare steak and she's in heaven (and who can say no to bacon every morning), LOL! For my husband, he was on board as soon as he realized I was healing for the first time in my life (having ahealthy wife is very compelling)... and now he's healing, too!

...and everyone else, THANK YOU for sharing your stories... I find it immensely encouraging to read how others have been positively impacted by the diet change.

Here's to a great year for all of us!


'An Apple A Day' keeps the doctor away...
www.marksdailyapple.com/primal-bluep
rint-101/#axzz28X8ooJ1H



NOTE: My weight tracker is NOT a truthful representation of my weight. Instead, I am using it as a tool to help me visualize my goal as though it's already been achieved!

www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=2108522


 current weight: 135.0 
 
250
221.25
192.5
163.75
135


CINDYTW
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1/3/13 9:24 P

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Brigit there is just a test for Celiac that is often not accurate for gluten sensitive folks. It only "sees" people with totlly obliterated intestinal villi.

Cindy

"To get something you never had you have to do something you never did"



 current weight: 185.4 
 
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HOUNDLOVER1
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1/3/13 8:56 P

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You may also want to consider getting tested for gluten-sensitivity. I would say it is rare for people with IBS not to be gluten-sensitive so eliminating it completely may do the trick.
Birgit

You can talk to God all you want and that's great, but the changes happen when you start listening to him.

BE THE CHANGE YOU WANT TO SEE IN OTHERS.




 Body Fat %: 18.3
 
23.6
22.2
20.8
19.4
18


CINDYTW
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1/3/13 7:23 P

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A lot of people with "IBS" really have specific food issues that traditional medicine doesn't bother figuring out. Paleo removes most of the big triggers for people. There are exceptions as noted before, but most of us feel great grain, dairy and legume free! Especially those of us with digestive issues!

Cindy

"To get something you never had you have to do something you never did"



 current weight: 185.4 
 
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CALIBILLY4
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1/3/13 5:44 P

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Omg Ramona thank you sooo much for taking the time to post all of that! emoticon ! What a lot of great information. Thank you everyone else for your input too. I really appreciate it. It is good to hear from other people who are eating this way. It would be sooo awesome to have this ibs under control. So I'm going to give it a try. I hope I can get my daughter(who has ibs too) to give it a try. But she is young and wants to act like she can eat whatever..even though she pays for it. Thanks again.


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LILY_SPARK
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1/3/13 9:33 A

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It's was HARD for me to give up legumes! I'm a huge bean/ pea/ etc lover (or was).

I 'found' paleo through the backdoor. I was already doing the strictest form of it 'plus' more foods taken out. I found paleo (and some other things) were very close to what I had to do.

I am Celiac. Therefore, gluten foods are out, obviously. I went through a year of doctor-supervised (sorry for anybody who has read this 3,000 times!--it's still true!) elimination testing (google for more), which is basically VERY STRICT eating for a 'control' period, then testing one food at a time ('food challenge' period). I have MANY foods that are problematic! I believe everybody does and few go through these tests (done at home but it takes 100% willpower to perform and that gets OLD).

Back to it:
Legumes, my love? Out. When it came around to testing another food, I chose my fave: chickpeas. After that, I did several others (the common ones and not-so-common as I grew up eating LOADS of legumes we raised...on a ranch, the meat's your INCOME, you eat cheaper!).

Dairy? While I knew that I was bad on dairy since infancy (I was a soy baby 4 decades ago), I HOPED what I'd read in a lot of Celiac forums might be true: when you're healed the villia can process dairy. Not for me and I did the grass-fed only dairy.

I'm not perfect by a long shot but I didn't come to lose weight. In fact, when I got off grains I gained weight because my body healed and could absorb nutrients for the first time! That is VERY COMMON for Celiacs (but not for 'normals'). Normal people usually lose weight, which you're read some about already.

I've been doing this (except stricter, less foods) for about 18 months now. My hair filled back in, my skin got clearer (until recently, I've had horrible problem but that's autoimmune) -- my face is the clearest it has been since age 9, when I started my period!

I believe unprocessed, whole foods is the way for EVERYBODY.

I believe removing known 'problem foods' is a smart experiment.

I believe it's worth trying. Long answer, sorry! :)

my SparkPage is friends-only: let's be friends!


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UGOOGLY
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1/3/13 8:32 A

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Calibilly, I too had the same concerns when I first started out. I also had ibs, my triggers were wheat and onions, which, are fructan sugars. I knew that sometimes an apple would set me off, or even ice cream. Apples have fructose which is EXTREMELY close to fructans, and wouldn't you know, most ice creams are sweetened with fructose (or HFCS).
Since dropping grains, I am no longer starving every 2 hours, I can actually go 4-6 hours between meals without becoming cranky, my cycle is now near perfect, my skin has cleared and I no longer have ibs. I only have good things to say about paleo and I feel that if everyone followed this diet, most diseases could be prevented. I can't remember who said this (of all the great Greeks) but food is thy medicine and medicine is thy food... or something like that. I think it was Hippocrates...

Sarah
-----------------------------

To succeed in your goals is to go outside your comfort zone, push yourself constantly and realize that you only get back what you put in, so give it 110% all the time, everytime!


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HOUNDLOVER1
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1/2/13 10:27 P

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Ramona already gave you a ton of good resources so I'll just explain in a few words why I like a Paleo-type diet (I'm not very strict because I eat dairy).

Most people who are significantly overweight are insulin-resistant, a pre-stage to diabetes. The reason could be in part genetic but also because most of us were raised on far too much sugar, especially in the form of HFCS. Any carbohydrates are converted to sugar in our body and grains, beans and sugars are the highest in carbs, producing the highest insulin-response. Many fruits are also very high in sugar so it's a good idea to consume those only rarely or never and stay with lower-carb fruit in moderation. The reason is that most fruit has been selectively bred for an abnormally high sugar content and low fiber content (because of extra large size the percentage of skin is lower per serving size).
In addition to this a large percentage of the population has some problems handling gluten, which is in the most common grains: wheat, barley and rye.
Wheat in particular has many other toxic effects on the body.
Recent research has shown that meat, dairy and eggs that comes from pastured animals is very healthy and contains omega 3 fatty acids which protecct the heart. Saturated fat is not the cause of heart disease at all, rather it is carbohydrates that cause inflammation and damage to many parts of our bodies.
The degree to which people can handle dairy differs. Many people can handle some types of dairy, especially raw dairy and some can only tolerate dairy from goats or sheep but not from cows. Paleo is a way of eating that is evolving as we learn more about how the human body works.
Birgit

Edited by: HOUNDLOVER1 at: 1/2/2013 (22:29)
You can talk to God all you want and that's great, but the changes happen when you start listening to him.

BE THE CHANGE YOU WANT TO SEE IN OTHERS.




 Body Fat %: 18.3
 
23.6
22.2
20.8
19.4
18


_RAMONA
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1/2/13 8:55 P

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I have had nothing but good experiences eating Paleo/Primal for over a year now... I started eating this way with the hope of addressing a host of chronic, lifetime, debilitating health issues (in addition to my weight... I've lost close to 70 lbs now). I will never go back to eating grains, or other foods once thought to be nutritious and necessary (grains, dairy, legumes aren't necessary... you can get all of the nutrients they provide from other sources without the associated problems, and fruits only need to be limited if you have issues with fructose, or if you need to really keep your blood glucose levels stable). Here is my experience in more detail:

How far are you willing to go?
www.sparkpeople.com/mypage_public_journal_
individual.asp?blog_id=4912471


PALEO... Do you REALLY know what you're talking about?
www.sparkpeople.com/mypage_public_journal_
individual.asp?blog_id=4964697


Paleo? Why?
www.sparkpeople.com/mypage_public_journal_
individual.asp?blog_id=4970706


CALORIES... Do you REALLY know what you're talking about?
www.sparkpeople.com/mypage_public_journal_
individual.asp?blog_id=5036421


You Are What You Eat... Food for Thought
www.sparkpeople.com/mypage_public_journal_
individual.asp?blog_id=5057764


*COMPREHENSIVE* Paleo Resource
www.sparkpeople.com/mypage_public_journal_
individual.asp?blog_id=5143118




Honestly, the best you can do for yourself is read all you can and educate yourself so that you can address the questions in your own mind. Here's a good site to help you with that:

Mark's Daily Apple
www.marksdailyapple.com/primal-blueprint-1
01/#axzz2Gq9v0Qe3




Here are a few other threads/links/resources you might want to check out (the conversations are GREAT, and they all have tons of links... sometimes your body does some really interesting things as it adjusts, and it's helpful to know where to go for answers):

Women, Paleo and your cycles
www.sparkpeople.com/myspark/team_messagebo
ard_thread.asp?board=0x28224x49247253


More Fat Please
www.sparkpeople.com/myspark/team_messagebo
ard_thread.asp?board=0x28224x49797087


I think I ruined my relationship with food...
www.sparkpeople.com/myspark/team_messagebo
ard_thread.asp?board=0x28224x49610532


I'm pre-diabetic?
www.sparkpeople.com/myspark/team_messagebo
ard_thread.asp?board=0x28224x49878752


~ Recipes only ~
www.sparkpeople.com/myspark/team_messagebo
ard_thread.asp?board=22565x53672x49816
876


Bruising
www.sparkpeople.com/myspark/team_messagebo
ard_thread.asp?board=0x28224x49668733




Specific to your questions about protein: "Avoid lean protein. Eat protein that has fat attached, as a focus on protein (rather than meat, which has both fat and protein) could lead to your body converting excess amino acids to glucose."
https://www.marksdailyapple.com/what-does-
it-mean-to-be-fat-adapted-part-2-qa/


How Much Protein Can You Absorb and Use from One Meal?
www.marksdailyapple.com/dear-mark-how-much
-protein-can-you-absorb-and-use-from-o
ne-meal/#axzz2CPiQaAQ7




...it's important to keep in mind that as your body/metabolism/liver detoxes and heals, you won't always necessarily feel great, but over time you will feel better and better... I've never felt better in my life (no more IBS, skin issues, migraines, insomnia, inflamation), and I'm 51, LOL!




Edited by: _RAMONA at: 1/3/2013 (22:27)

'An Apple A Day' keeps the doctor away...
www.marksdailyapple.com/primal-bluep
rint-101/#axzz28X8ooJ1H



NOTE: My weight tracker is NOT a truthful representation of my weight. Instead, I am using it as a tool to help me visualize my goal as though it's already been achieved!

www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=2108522


 current weight: 135.0 
 
250
221.25
192.5
163.75
135


CALIBILLY4
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1/2/13 8:39 P

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Okay so I read my book and did some research on the interenet concerning Paleo Diet. It sounds great. Especially taking out "junk" food and sugars. BUT it sounds weird to me to take out all grains, dairy and limit my fruit intake. I have always heard that these things are good for the body. What are everyones take on this? Also is it really healthy to be eating soo much meat? I really want to give this a try and I am going to for at least 30 days. I'm hoping that this will help my ibs, that I will feel better and that I will drop some weight. I just don't want to be doing harm to my body.
I would love to hear some input on others who have been doing the paleo diet for awhile. Thanks


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