I'm sorry to say it, but it seems you didn't find the right doctor to treat you. You're right - we need to keep our fiber low. Fiber does NOT help the stomach contract. It adds bulk to what we eat and may help healthy intestines move what you've eaten easier, but when the digestive system has some paralysis bulk and slow movement are bad ideas!
As long as you still have significant movement (as in only some slowing not major paralysis) you can incorporate some fiber. The going recommendation is 10g/day or less. Things like melons and bananas are usually okay whereas things like celery and berries are often problems. Always take vitamins - that's standard. But how much your body will accept really is for you to figure out. Start with a minimal diet and slowly add in one food every 2-3 days and see what you react to. Another idea is to puree foods and/or make smoothies. When food is in liquid form it often helps make it easier to pass through the pyloris, though it's not guaranteed.
As for info from doctors, I tend to teach my doctors about GP, not the other way around. That's because I've come across many doctors who have never heard of it or have prejudicial ideas of what GP is or how it happens. Most of what I've learned is through doing my own research online from many different sources. It's because off that when a doctor tells me something that makes no sense (like GP can only be caused by diabetes - a complete lie) I can correct them or walk out. Though always remember that doctors are human and make mistakes, plus there have been some steps forward in diagnosis in treatment over the last few years, so if the doctor learned about it in med school 20 years ago and haven't read up on it, they won't know the new info. You can try to provide the doctor some information (make sure it's a reputable source, such as academia research) or you can try a new doctor. Calling ahead of time and asking the staff how many patients with GP the doctor is treating might be a way to establish if the doctor is up-to-date on information or you're his/her first case.
I'm sorry you didn't have luck with this doctor, but know you're not alone with this problem. I went to the Mayo Clinic in Rochester, MN, and was treated terribly by doctors who are supposed to be the best but most definitely are not. When I realized I was being hurt not helped by them I removed myself from their care and kept looking. Eventually I found a GI specialist who is awesome, but I have to fly from MN to PA every few months to see him. Not ideal, but at least when my primary doctor tried to say GP isn't a devistating or dangerous condition I was able to have the two speak and she's now changed her tune to realize I'm much worse off than she was able to understand.
Hang in there and I hope you have more luck with another doctor or can provide information to this doctor so he can help you better.
~ Sheri ~
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