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MEESSHH SparkPoints: (48)
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10/20/14 3:47 A

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Sent from my iPadThanks Sheri - you are spot on about addressing emotional aspects. Will I really feel thirst for water again? In Spain I only drank 4 cups of hot tea a day bc I had no thirst except when eating bread or salty foods. I had to force in those 4 cups and only had with meals bc if ate or drank I between I would be too full and sick to eat with the tour, (I typically only felt hungry once a day in the morning...that is how slow my system is.)

I am scared to feel sick and when I eat solids - real food - I tend to get so clogged I can't sleep am nauseous and feel as if to burst (gas?) so I usually drink shakes to get hydration and calories otherwise I eat fruit to hydrate and get too full and dehydrated. My body won't say it is thirsty.

The Problem with sweet drinks for me is then the sweet taste gives me cravings so badly i can't focus and then I eat solids and often get nauseous from being blown up in abdomen. In my attempt to avoid solid food, I also will drink too much liquid food too fast and get nauseous . I am so nervous whether and what I should eat or drink since not hungry or thirsty that I end up sick mostly because I think I eat and drink too fast (mostly standing up on the go) I am too tense and I am not hungry. But if I don't force it in, I am lethargic and grumpy and feel awful. The calorie liquids make me feel best as do fruits. I prefer these to eating crackers nut butter and baby food, my other safe choice.

I was trying a fruitarian healing plan for crohns and colitis by David Klein, then I tried fresh juice feast to heal this, also went to health institute in Florida which uses wheatgrass and all raw foods, then i saw a naturopath that also was pro- raw diet and told me to blend the fruits and veggies but only eat one cup so I was clogged with fiber and unsatisfied....they all follow rules of food combining and are anti- processed foods. All these varying theories on what to eat to heal chronic health conditions leave me conflicted and worried - I also feel badly about myself bc I didn't make it thru each program successfully.

My mind is in angst over this. Tonight I can't sleep - was it something I ate or drank? I was so sick today I could have easily not forced in a meal replacement this evening...I wonder if all that sugar is keeping me up. I feel so guilty now I will have to be late to work.

I read about clear liquid diets I don't think I could stick to it - tried before and ended up eating candy or solids because the sugar cravings were through the roof. ... fruit juice broth and gelatin....how do you cope with that? Also can you work too?

I sincerely appreciate your and everyone's direction and support. I am afraid I will burst my stomach sometimes (pyloric valve clamps shut when I eat in tension which seems to be always). I tried a few therapists and they either don't believe me, are intimidated by this condition and just say create life you love, but I need help coping with fears worries upsets. I will look for another.

The safest thing that helps me sleep and avoid nausea is when I am at my mom's house - she has set mealtimes on an elegant table and I refuse to be sick there so I eat and drink bare minimum, all processed carbs and puréed veggies and protein shakes. The minute I eat real food, I am blown up and that causes nausea. I don't think I am digesting my food.

Won't clear liquid diet make me more constipated? I think I have sibo but doc doesn't test for it. I plan to go to the mayo clinic. I had a ct scan and they said my colon was completely clogged and in spasm. This has been going on for 20 years. I am afraid and don't believe I can ever trust my body. I also feel to blame - I think all the stress and then catching a virus gave me gp and bc I didn't get more help my gums have all receded so that is my fault too. I feel like a bad person.

Sorry for long post here - yelled at self all weekend for making self so nauseated and worried I will never feel functional again. I literally went over 24 hours and my body wanted no liquid and no food. I always have to force it then when I feel sick I blame self. It only takes two extra bites to get really nauseous for rest of day. Ps the dietician agrees with you - she said get more tests to make sure nothing else is going on, and that for gi problems she may not have the magic answer I am seeking.

1STATEOFDENIAL's Photo 1STATEOFDENIAL SparkPoints: (133,634)
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10/20/14 1:12 A

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When a person is first diagnosed they're told to go on a strictly clear liquid diet (if you don't know what that means, try doing a search online) for several days. As I said, that allows your body to clear out what has backed you up so bad. Then you're told to move on to a full liquid diet (again, there will be examples online) to see if you can tolerate that. If you don't clear out what's making you sick, you're just going to make things worse no matter what you eat. After that, add in 1 food per 2-3 days and see if you react. If you don't, then that's probably one of your safe foods. If you feel sick, then it's a problem and you should avoid it. It will take weeks to build up a solid base of foods your body will accept.

No one can tell you what your body will or won't accept. You need to figure it out between your efforts, your doctor, and your nutritionist. Also, eating the exact same foods 3x/day for the rest of your life is not only not going to give you proper nutrition, it can cause you to become allergic to those foods or at the very least you are going to become extremely sick of those very quickly.

We can give ideas, but we could end up telling you thousands of foods that all make you sick. 99% of people might be able to tolerate it but you might react. Get an appt with a GI doctor (keep trying - you will find one who can help you) to get the proper testing (you can even find out information on the tests for GP and bring it to the doctor to suggest they run those tests) and get an appointment with a nutritionist quickly. If there's any chance you don't have GP, but something else instead, (you said your doctor didn't know what to do) it's better to find that now before you change your whole life around it.

Lastly, GP sucks. We must accept that we have this condition and that our lives will be altered because of it. If we don't, we can't even consider putting in the time and effort we need to in order to live the best lives we can. This includes learning about the condition and the needs of our own bodies and doing what we can to support those needs without making our condition worse. It is extremely difficult to live with GP, especially in the beginning and especially for those who completely lose the ability to eat (I've been there and it is so much worse than still being able to have some liquids and soft foods). Everyone has the right to be upset by it, but we still need to accept that this is happening. We all know how it feels to be exceptionally hungry, even starving, but not be able to eat the foods we want. It feels like torture. But hunger is not always what people think it is. There is hunger for food, thirst for water (real water not juice or soda or shakes), and even emotional hunger where we eat to hide from our emotions. Until we can separate our what our body is really craving, we can't trust our body's signals.

You said yourself that you eat to excess things you know makes you feel sick because of your emotions then eat very little for days later. You need to deal with that otherwise you will continue to eat the wrong foods and keep making yourself sick. Maybe a good idea would be for you to see a therapist to help you deal with the emotional aspect of this condition, as well as any other issues that are leading to you not being able to do what you know is best for your body. No GI doctor or nutritionist will be able to deal with the emotional aspect.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


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MEESSHH SparkPoints: (48)
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10/19/14 1:30 A

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Thank you all so much for your replies and support! I am so nauseous from overfilling on fruits and juice and crackers this morning in a desperate attempt to get energy ( I feel terrible in the mornings) - I might be up sick all night and the last solids I ate was at 11:30am!

I will go to liquids for several days as that helped before unless I swallow air...I can't help but think it is all my fault. I am so desperate to feel better I would eat bricks but then I pay for it for a week. My GI doc does not know what to do. I have been to five such docs and they all say find what works for you. I would like to see the nutritionist at the hospital. I could really yes some guidance.

Sheri would these be good meals to try and do I eat them even if not hungry or just drink instead? I think I might feel too empty?

3 meals:
0.5 cup gluten free crackers with nut butter or guacamole or hummus or vegan cheese or egg
0.5 cup cooked veggies/entree mix
0.51cup warm water

3 snacks:
0.5 cup grapes or banana or melon
0.5 cup juice and 1 oz nondairy cheese

6 cups drinks:
3 protein shakes
3 cups juice


Edited by: MEESSHH at: 10/19/2014 (01:40)
1STATEOFDENIAL's Photo 1STATEOFDENIAL SparkPoints: (133,634)
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10/18/14 9:18 P

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Meesshh: What you are eating is actually adding to your symptoms, not helping them. I encourage you to check back in with your doctor about your symptoms and concerns so they can do more testing. Also, you should be seeing a dietician after you see your doctor to help you figure out how to get in better nutrients and fewer common problem foods. Working with a dietician over several visits, tracking your food and symptoms before and between visits, should help.

First, I want to address a concern I see about testing. Barium testing is NOT to test for GP, it is to look at the placement and inside of the small intestines. A Gastric Emptying Study (GES) has several versions depending on the doctor performing it, but at the heart it is eating eggs (scrambled or an omelet style) with radioactive isotopes and usually some bread and water. Then they use an x-ray style machine to take pictures every 15-60 minutes over 4 hours to see how the food has moved through the stomach. These are very different tests looking for very different information.

When first diagnosed with GP, the best thing to do is eat a clear liquid diet for several days so what's stored up in the body can move through. Then you move on to a full liquid diet for at least several days. If that's handled okay then you can SLOWLY introduce solid foods (just small amounts to start and building up from there). This is important to note because if ever you have a flare-up, you should move back a step in the process for several days to a week then slowly introduce solid foods again. When the digestive tract is backed up, the last thing you want to do is keep piling on top of it. Also, as you slowly introduce solid foods, keep track of your symptoms over several days so when you have a bad reaction to a food you know what food it is, instead of guessing. As you get a list of tolerable foods you'll know what your body accepts and what it doesn't.

Eating solid fruits and veggies is not a good idea until you've found other low fat and low fiber foods you can tolerate. Then you can try to have a little bit of solid fruits and veggies once in a while. Eating nuts is not a good idea, because they're full of fat. It's healthy fat, but fat is very hard for the body to digest and slows the GI tract way down. (Having just a couple or a few pieces when you are sure your body can handle it shouldn't do a lot of harm.) Candy and gum are big time no-no items because when you suck on candy or chew on gum you are swallowing a lot of air. This will only add to your gas issues and distention. Having a small piece of candy at the end of a meal to help your saliva move down food into your stomach might be okay on occasion, but it is definitely not recommended. Also, eating candy and gum alone makes your body think its about to get solid food, so insulin is released, causing your blood sugar to drop, which signals your body to make you feel extra hungry, then you start to crave sugary foods (sugar is easily digestible and a quick way to raise your blood sugar which is why you crave it), which can cause a quick burst of energy that fades quickly and leads to fatigue and more hunger. It's not a good cycle at all.

Crackers can help, but it's better to eat them with a protein (like peanut butter or low fat cheese) otherwise you get carbs and fat without hardly any protein. Cookies are not a good idea because they're full of sugar and fat but very little nutrition. Filling yourself with empty calories instead of better nutrition can cause you to become fatigued, depressed, and anxious as well as many other health problems.

The best idea is to plan ahead good options for small, frequent meals. 6-10 mini-meals and snacks per day is best. So having 4 small meals and 4 small snacks is a good idea. Space them just a few hours apart at scheduled times. Prepare as many of them in advance as you can to make it easier. If you have a healthy small snack ready to eat then you can just grab and eat it instead of debating about what you want to eat and grabbing something you shouldn't eat. Working with a nutritionist will help you figure out what foods to eat when so you can get a balanced diet that works with your body. It takes time to set it up but it is worthwhile to put in the effort to be your healthiest self.

Another thing to remember is that much of our social lives and time spent at events revolves around food in some way. Family gatherings occur around food and there are always people around trying to sell you food (frequently it's unhealthy food). This makes separating having a social life from eating very difficult. It becomes very difficult to resist temptation and just give in, even when you know you shouldn't be eating those foods. You have to get the mindset that your health is more important and what you eat, where you eat, who you're eating with, and how you're eating (on the go, sitting alone, etc) doesn't define who you are socially. People who care about your health won't care that you're eating differently and will not encourage you to just give in. Think about people who are diabetic. If they eat incorrectly it can do serious harm; it's the same thing with GP. Part of eating with GP is relearning how to eat. How you approach food and eating must change. If it doesn't, your symptoms will worsen and your quality of life will drop significantly. Having GP doesn't mean you must feel sick all the time - if you eat properly and work with your doctors then you can still live a healthy and fulfilling life. But that means putting in the time and effort to work with your body not against it.

I really encourage you to check in with your GI specialist and your primary doctor. Tell them how you're feeling, what you're eating, what your symptoms are, etc. Be honest and ask them for help to make the necessary changes. They may want to do further testing and might consider other treatments. Then ask to see a dietician if they don't recommend you to one. Work with him/her over several visits and keep track of everything you eat and drink, as well as the symptoms you're having each day. This really does more good than you realize. After you've talked with the professionals, really take the time and effort to change your habits. When you reach for a food you're craving, stop and ask yourself why you're really eating it and if there is a better option. Slowing down and considering options will help you make better choices instead of just falling on old habits. Over a few months you should learn to listen to and understand your body better and you'll start feeling better. Eventually, you'll form better, healthier habits that you can rely on.

Edited by: 1STATEOFDENIAL at: 10/18/2014 (21:19)
~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
NPA4LOSS's Photo NPA4LOSS SparkPoints: (133,653)
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10/18/14 2:18 P

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Sugar will also slow down your digestion. Try to increase your protein. Eggs are easily digestible and full of protein. I use egg beaters to decrease the fat from the eggs but love regular eggs as they do not disturb my tummy. Eating carbs will actually lead to cravings. Sweets keep you feeling hungry and craving. I eat almost no vegetables, just tomato juice or an occasional baked potato.
GPers refer to the distension as Baby Tummy and many have issues with it. Nuts are not a good choice for those with GP as our tummy is not able to digest them.
Have you been diagnosed with a Hiatal Hernia. That will sometimes increase the reflux and can cause problems with throwing up.
I try to eat about every two hours a very small amount. The foods I can tolerate change all the time. I am constantly making adjustments. I do have a little frozen yogurt with my ensure to make it thicker and more tasty. Soups are a good source of vitamins and minerals. be sure that your foods are chopped very fine so that your tummy does not have to work so hard. I sometimes will puree my food when I am going through a flare.
I hope that you have a good GI. Check out resources on the web. GPACT and their support groups have helped me deal with much of my problem and I have found some friends in my state that have supported me as I have them. WE are here for you and will help in any way we can.

Nola

Kansas~ CST
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MEESSHH SparkPoints: (48)
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10/18/14 1:17 A

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Hi all, so nice to find friends who understand! I am told I have severe gp, my stomach is abnormally enlarged, and it barely moved when I drank the barium liquid. The ibs spastic colon is more trying for me since I can't bm or only after a week or more and gas can't escape so abdomen blows up like I am pregnant and feel as if can't breathe. Drama! Trying to just keep my job without being up sick every night. I can't seem to vomit unless I press hard on a super full stomach of solids and a few specks and lots of air may come out.

Lately after severe sick and distention episodes, I mostly eat watery liquids like protein shakes, juices, and thinned smoothies with watery fruits and nuts and crackers and candy/gum (so I won't eat or drink food before bed and then regurg all night).

Like others I used to eat raw veggies and fruits and bread and wraps. They feel like rocks now and if I eat solids I have no room for liquids. Crackers and cookies go down easily as does sugar since they take up no room.

I stopped eating cooked veggies because I tend to eat too many with crackers or bread, then drink something and then feel terrible. I tried juicing to heal my body but I cannot seem to do for very long and I always eat solids.

I know guides say only 1 cup per 2 hours but that seems impossible to me. Liquids go in easily unless anxious and then I am full of swallowed sir and can't burp so stomach blows up. I feel as if all I eat are sweet things bc other food feels too heavy and is up appealing since rarely hungry unless I have gone eight hours on no food and no drink...then I get true hunger.

I was wondering if you eat set mealtimes or graze all day? I graze mostly bc I have constant sugar cravings esp. If stomach upset or colon is plugged up which is always. Water also makes me nauseous so I just mainly drink calorie drinks.

I would love to see what others of you eat at what times and in what amounts. Some days I drink hardly a thing and others I am constantly eating and drinking. I would like to listen to my body but it speaks a foreign language!!!

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7/31/14 3:56 P

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I'll keep trying.

NPA4LOSS's Photo NPA4LOSS SparkPoints: (133,653)
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7/29/14 1:14 P

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Renie, many of us gain weight with GP. Be kind to yourself!

Nola

Kansas~ CST
Each step taken is a calorie left behind!

Don't quit! Tomorrow is another day to Sparkle.







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7/28/14 4:56 P

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Thank you, StateofDenial!!! You have explained why I continue to gain weight when I thought I was being careful with what I ate and exercised EVERY DAY! Not only do I have GP, but Diabetes2 that is hard to control.

You are a blessing, and I plan on sharing this with my doc and my care provider.

emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon

Luv ya,
Renie

Edited by: RENIESSPARKIN2 at: 7/28/2014 (16:57)
DEEPFOREST's Photo DEEPFOREST Posts: 126
3/13/14 8:44 P

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I know what you mean about missing cheese. I have not been able to tolerate most dairy products either, esp. constipating cheese. I just tried some Sesmark rice thins cheddar, and I'll see how that settles with me. You made some good points in your post. Thanks!

Change happens when the pain of holding on becomes greater than the fear of letting go.


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3/13/14 8:40 P

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Hi There,
I just posted my mainstay recipe in the Sparkpeople recipe area. It is called "GP Friendly Homemade Comforting Chicken Vegetable Soup." Yesterday, when making my soup, I was tired and didn't feel like peeling and chopping up all that sticky garlic for my soup. So, I bought some Christopher Ranch fresh, peeled garlic. Then here's the amazing trick I came up with. I put about 10 cloves of the garlic, after cutting off the root end, into my NutriBullet with some water. I blended it for a minute or so, until it was all creamy. Then, I just poured it into my soup stock. It is yummy and healthy! That saved me a lot of chopping, plus, chopping the garlic is a sticky mess. I eat my GP friendly soup almost every day. It is low calorie, low protien, and has easy to digest fiber. I put peeled carrots, potatoes, and winter squash in it, and then cook it until all the vegetables are falling apart. I can only handle small amounts of shredded dark meat chicken, with the skin removed in a soup type recipe. My doctor found all the chicken breast meat I had eaten over 12 hours earlier, still sitting in my stomach undigested, so since my gp dx, I am very careful about what I eat. Interestingly, when I shred the dark chicken meat, eat only a little, and dilute it in the broth, it goes down okay. Anyway, I would love for you to check out my new recipe. Let me know what you think!!!

Change happens when the pain of holding on becomes greater than the fear of letting go.


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2/27/14 5:12 P

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Thank you for the ideas, that pumpkin smoothie sounds yummy!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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2/27/14 10:28 A

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Hi folks,

I've been in the middle of a bad flare up, and I wanted to share some of the things I've been experimenting with.

1: I missed vegetables so much! My partner and I looked at pureed soup recipes, and found a few that I really look forward to eating.

We made this garlic soup, with double the garlic, and added white beans which we pureed into the broth: http://www.wholeliving.com/154641/30-clove
-garlic-soup

We also made this creamy broccoli soup, and left out the pine nuts for me: http://www.wholeliving.com/130293/creamy-b
roccoli-white-bean-soup

2: I've been having a smoothie every day. My current smoothie base is one cup of kefir (cultured milk, tastes like yogurt but is easier to digest) with one scoop of soy protein, one scoop of whey protein, and a dash of vanilla. I talked to a nutritionist who suggested to add egg whites from a carton to my smoothies, and my protein intake has gotten much better as a result!

Smoothies are fun to play around with, ingredient-wise. Coconut flour + cocoa powder + hazelnut agave nectar tastes kind of like a Samoa cookie! I also like to add fruits, like mangoes or cherries, or concentrated juices, like tart cherry juice, so I can get that chocolate-cherry taste without the fiber. Another smoothie flavor that surprised me was pumpkin! 1/2 cup of canned pumpkin puree and a little bit of cinnamon tasted like a real treat.

One thing I'm struggling with right now is trying to find fiber sources that I can digest. I've been using ground flax seed, and that has been okay so far.

3: My favorite thing in this category has been Honeycomb cereal. I just really like the taste! And because it's a puffed cereal, it's basically just powder after you chew it.

Trader Joe's has Gorgonzola flavored crackers, which are light and have a tangy cheese flavoring. I miss cheese a lot, and I really like eating these crackers by themselves as a snack or with the pureed soups.


Thanks for sharing your food ideas! I really appreciate being able to talk with people who are having a similar struggle. I hope these ideas help someone else!

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Nola

Kansas~ CST
Each step taken is a calorie left behind!

Don't quit! Tomorrow is another day to Sparkle.







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Trying to recommit to SP; so I was going back through my teams when I found this tread. I just wanted to update some of you with the success I've had with eating..well..progress I guess I should say.. I'll let you decided lol

Upon finding out I had G.P. and the stomach tumors it gave me I complete changed my diet. I found I could Not eat the food that the doc suggested for this diet so I went through trial and error. I was gaining a lot of weight by then. When suddenly I found a blogger who was vegan cook. After reading some of her recipes and research on veganism I decided I would try it.
Cutting out diary first because I didn't think I could give up chicken. That helped quite a bit. I wasn't throwing up nearly as much (before it was as high as 7 times a day). So I thought, what if I tried cutting out the meat? So I did and ate mostly raw for 3 years. Within those 3 years we discovered my gallbladder wasn't working and had it removed, and now I digest my food like a normal person! When they removed my gallbladder we had them scope my stomach for a tumor update since I was already knocked out.. and I'm still tumor free!
This year I have started eating some chicken every once in a while so that I can up my protein for body building , and to my amazement it hasn't made me sick..a little sluggish but not physically sick so I'm happy with that at least.
I'm not here to "convert" anyone, but to simply let you know that if your suffering from severe symptoms like I was, keep a food journal and maybe slowly start trying a few vegan meals a couple days a weeks and see if it helps. Maybe it can help restart your system like it did me.

Edited by: AUTUMSUN at: 2/13/2014 (14:01)
They call me ~ Gypsy ~


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Nola

Kansas~ CST
Each step taken is a calorie left behind!

Don't quit! Tomorrow is another day to Sparkle.







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1/3/14 6:08 P

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If you can eat sweet potatoes, I found a product at Aldi that makes them very easy to prepare.

The brand name is Season's Choice, and I found them in the frozen food section. They are mashed sweet potatoes formed into patties, and there is 16 per package. You can microwave or bake them. I love the fact that they are frozen into single serving size portions, so you do not have to use the entire package at once. And best of all, no peeling! I love sweet potatoes, but I don't always have the energy to prepare them from scratch.

I tried a couple last night; I spread the tops with light butter, and sprinkled on some cinnamon and brown sugar, then baked them for 15 minutes, they were so good! The only negative is that I think they are a seasonal item, only available during the holiday season. So next year, I will look for them again and stock up.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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Just checking in. I have not visited in ages! I am sorry about that.

Wishing everyone the best, chris emoticon

GOAL: Reduce A1C,BP,tryglicerides,and weight. HOW? By not eating added sugar, using Omega3s, base meals on veggies, water aerobics at least 3X week and using NuStep when I can't get to the pool.

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30 lbs. gone. Now to work on the next 10 lbs.


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BEACHGIRL679 Posts: 18
4/9/13 6:29 P

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I did cancel my appointment, but made one with another endocronologist for a second opinion, which is what I really need. Not sure the other doc and I have the same mindset. She seems to be from another point of view than me. Thanks so much, this thread made me realize I am not well physically, and don't want to settle for some half-way existance. I believe I can be healthier, and am not about to settle for what I can get, unless I have to.

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4/4/13 1:13 A

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I didn't mean to say you don't have a right to your feelings, just that it could be worse if you gave up on doctors all together. I know how you feel. I waited 30 years to be diagnosed with genetic conditions that should've been diagnosed when I was a kid and now I have 11 diagnoses but the doctors don't seem to be able to do a dang thing about any of them. And Mayo is the absolute most horrible institution I've been to. That place is worthless to anyone who isn't 'important'. They could've killed me if I hadn't removed myself from their care; at minimum they threatened to put me in the mental health ward if I didn't stop complaining because there "couldn't possibly be anything wrong" with me. They are at best middle of the pack for GP treatment and low on the pack for current research.

At the same time, I know if I had been able to keep pushing to see different doctors and getting different treatment options I wouldn't be as bad off as I am now. For years I said 'screw it' and stopped seeing doctors besides the bare minimum, so when I desperately needed a doctor to help me I didn't have one who knew anything about me. Instead they chose to overdose me with antidepressants, then instead of treating the overdose I was told I had tooth pain. I had to be come my own advocate, track and prove my symptoms, and if a doctor refused to treat me well I found another who would. Then the diagnoses started rolling in, but the few treatment options have failed because I waited so long to try them. So now I'm 31 and my body is failing with little hope of getting much better.

My point is I know how you feel and I'm hoping you won't write off all doctors and cancel your appointment because you've had a couple really sucky doctors. I hope you never end up in as bad medically as I am, but God forbid you did it's better to have a doctor who knows you than to have an unknown doctor making false assumptions. What you choose is wholly up to you, I'm just hoping someone can benefit from my experience.

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BEACHGIRL679 Posts: 18
4/3/13 3:07 P

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No worries, I'm not an all-or-nothing person, the list is just a good place to start. I noticed the same as I was reading it that I can eat this, yeah, that gives me trouble....it is just difficult because as I believe the mayo clinic website said, it is counter-intuitive. What you would expect to eat to be healthy is the exact opposite of what it suggests. White bread instead of wheat, processed carbs before whole grains, very little fruit, etc.
And yes, doctors are human and make mistakes, but they need to try their best and get down off their high horse if they really want to help people. Don't worry, I have a therapist and if you knew my whole story you would understand why I have a fundamental distrust of those in the medical field, it is well-earned by them. Bottom line is, all they are missing is a few minutes of their lives, I've spent the last 5 years feeling poopy because they didn't want to take the time to listen. Even my gallbladder surgeon didn't listen to me when I went back to my 10-day checkup when I told him my naval sutures were killing me. He didn't even look at them, but I had blown two of his cross-stitch sutures, so every time I moved the incision was torn open again. Had to go to a walk in clinic a week later and luckily the doc on call was a retired surgeon and snipped the connecting sutures for me so it would finally heal. I appreciate the advice, but please don't suggest that I don't have a right to my feelings or that I should continue to make excuses for people.

Edited by: BEACHGIRL679 at: 4/3/2013 (15:11)
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I'd suggest NOT cancelling the appointment. Doctors are human; they make mistakes, they have bad days, they only know what they've been exposed to, and they don't get along with everyone. Patients and doctors have a relationship, and just like any romantic, family, or friendship relationship both sides must work at having that relationship be healthy. You didn't have the right GI doctor but it sounds like your Endo is trying, so give him/her the benefit of the doubt. Try again for a new GI doctor and make sure you keep your primary doctor in the loop so that relationship doesn't get strained. Trust me, I've had far more than my share of doctors because of my numerous and unique conditions, and giving up on doctors and ignoring symptoms only makes things worse. Just like when dating to find a husband/wife we must try different people to find who is a good fit for us. Some people prefer to have a doctor never tell them what's wrong and just give them a pill to 'fix it' whereas others want to know what's going on in their body and do everything possible to help make things better. Some doctors work better with the former while others with the latter. Keep looking and keep trying. You might even ask your Endo if he knows any GI doctors that might be helpful to you. No matter what, I encourage you to keep trying to find a doctor that fits. After all, (God forbid) if your GP were to get worse then you would need treatment ASAP and that's not the time to be searching for a doctor.

The calories in/calories out formula is the standard rule, but medical conditions make each of us a unique case. If your body isn't functioning properly then the rules no longer fully apply. There are metabolic disorders, problems with hormones and organ functioning, and other reasons that break the standard rule. Doctors stick by the standard rules as much as possible, but when a person has a medical condition they should be looking to rule out the exceptions before reverting back to the rule. One thing that might help you would be to use all the tracking on SP and even journaling to keep track of what's happening in your body. That way if the doctor doesn't believe you when you say "I eat xxx calories and burn roughly xxx calories" you can prove it to them. Often times just saying you can prove it and how is enough to get them to swallow their disbelief. The extra positive is you can keep track of yourself; you can keep close track of your symptoms and try to find what's causing them and if there's any pattern. That way you can do your best to manage your symptoms and issues.

Be cautious using any suggested diet of 'don't eat these foods' and 'eat these foods' because each of our bodies responds differently. The best thing to do is to figure out what works for you. I think I mentioned it; start with a very simple diet and add 1 new food every 2-3 days and watch for how your body reacts. It's a very long process but it is the best way to know what your body wants and doesn't want. Many of us are given pamphlets and lists of what foods to eat and not eat and most of us end up not responding well to those; they're only good for examples and an idea where to start, not a definitive list of what works. That's why I started the list below.

And as I said, give yourself more time after you eat before you work out. Even a 'normal' digestive system has half of what the person ate left in their stomach after 2 hours, so anyone trying to exercise 1 hour after eating could easily get sick. Keep in mind that when you exercise, your blood supply is concentrated to your muscles, heart and lungs and is diverted from places like your digestive tract. Basically your stomach will slow down when working out, leaving the food to sit even longer. Same thing happens when you're highly stressed out and prone to the fight or flight repsonse - your body diverts blood and nerve signals away from areas like your digestive tract to your brain so you can decide what to do then to your muscles, heart, and lungs so you can react. So lowering your stress levels will also be helpful.

Keep us informed on your progress and what happens with the doctor.

~ Sheri ~

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BEACHGIRL679 Posts: 18
4/2/13 9:39 P

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Hi Stateofdenial,
You. have got. to be kidding me.
I gained 50 pounds in 6 months after I moved here, and I was working out (with a trainer, at a gym) the ENTIRE way up. Even the trainer was scratching his head cause he couldn't figure out how I was working out 1-2 hours every day and gaining 10 pounds a month.
When I finally went to the gastro, I was fat by then, but was a size 8 when I got here! He was so rude to me, said that there is absolutely no reason people gain weight besides calories in, calories out. I explained to him that I was eating right and exercising but I guess he didn't believe me. He shrugged his shoulders and said he would check my gallbladder if I wanted (after the endoscopy and gastric emptying test) but suspected it wouldn't find anything, because I just needed to eat right and exercise and be honest. That's why I fired him, he didn't listen to me or give me credit for knowing my body.
This information has been really helpful to me, thanks! And to answer your question, I usually eat about an hour before I work out, and try to eat protein. I am tempted to cancel the Dr. appointment and try the GP diet I found online. The doctors are the reason I'm sick, I've wasted YEARS listening to them and they didn't listen to me. I am grateful my endo thought to check my gallbladder.
Thanks again!

Edited by: BEACHGIRL679 at: 4/2/2013 (21:45)
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4/2/13 6:59 P

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Hi BeachGirl. GP can be cumulative, because if you eat something that the body doesn't like and it slows down your system, then everything behind it will be digested slower as well. (Imagine being in traffic - you can only go as fast as or slower than the person in front of you.) It's also possible that whatever is causing your GP is not a continuous problem and that it fluctuates. It's like that for me.

There are plenty of cases where the gallbladder isn't working properly and that adds to the GP, but while removing it is helpful it isn't a cure. Also keep in mind that when you don't have your gallbladder it makes it difficult to digest fat, so you should be on a low fat diet because of that. Eating a high fat diet without your gallbladder can cause a lot of problems in the body. Also note that if someone gives you mayo or butter when you requested without, you have every right to send it back and ask them to fix it. If you were allergic to a food and they forgot to leave it out would you still eat it and risk your life? One thing that will also help is looking the server in the eye and saying "I have a medical condition and I can't have ____ (food)." This puts emphasis on the reason you are asking for the modification and often times they will be more careful. Another option is resolving to cook more at home where you can control what you eat.

You said you fired your GI specialist and are going back to your Endo... Did you replace your GI specialist? Endos are not knowledgeable about the GI tract as it's not their job so I hope you're looking for another GI specialist. Some people with GP will gain weight because their body is unable to get the nutrition it needs and their body is starving so it gains weight instead of loses. Every body's reaction is different so some lose while others gain. As long as you don't have diabetes, consider trying some liquid nutriton such as ensure or carnation instant breakfast. And always take a multivitamin; the gummy vitamins work for some of us better than the pills.

As for nausea from working out, when do you work out in conjuction to eating? Do you eat, wait 2 hours, then exercise? Do you exercise before eating? That will make a difference. For a 'normal' digestive system, at 4 hours there should be less than 10% remaining in the stomach, but for someone with GP there can be a lot of food left in the stomach even 4 hours after eating. That weight is pulling your stomach down, so if you start moving around a lot whatever is in your stomach will start bouncing around and that'll make you nauseous. You could try eating a very easy to digest breakfast (liquid, applesauce, non-fat yogurt, etc), waiting 2-4 hours, performing moderate exercise, then eating a meal 30-60 mins later. If you want to work out later in the day you'll have to wait several hours before working out and doing gentle to moderate exercise only. Keep in mind that after meals very light movement, such as taking a calming walk, should help your stomach empty easier.

You may also want to start paying close attention to what you do before, during, and after eating. That will affect how your stomach empties. If you haven't done so yet, consider doing the process of finding out YOUR GP diet by going down to a simple, clear liquid diet and slowly adding 1 new food every 2-3 days to find what foods your body will accept and which it won't. That should help you immensely.

I hope this helps. If you have more questions, please let me know.

~ Sheri ~

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BEACHGIRL679 Posts: 18
4/2/13 5:19 P

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Thanks for replying, I can see where that could happen with sit-ups. This is anything though, especially cardio. Weights, swimming, anything that gets my heart rate up will make me sick and make me feel drained and depleted. LIke I said, I've been working out my whole life, so I can't imagine what is going on.

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4/2/13 4:08 P

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I don't get nauseated with most exercise, but doing anything like sit ups will cause nausea for me. I had that problem before I had the GP, so I think it's from acid reflux. I found I can do kind of a modified sit up on a stability ball and that doesn't seem to cause me as many problems.


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BEACHGIRL679 Posts: 18
4/2/13 4:00 P

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Hi all,
I am new here, and really getting frustrated. I was sort of diagnosed with GP about 4 years ago, after having chronic nausea for about a year after moving to a new city. When they did the endoscopy there was undigested food in my stomach, but the gastric emptying was fine. Gastro said it was probably early stages and works some of the time and freezes up sometimes. Kind of shrugged his shoulders and said "Who knows? Beats me." I fired him.
I'd always been perfectly healthy before, and could eat anything I wanted, but was also health conscious so it's not like I made it a habit of eating fried foods. I've always had to work really hard to maintain a healthy weight, ran 5 miles a day and had a physical job. Even so, I couldn't eat a normal meal without gaining weight. The new city has a tendency to eat a very greasy diet, and even when I ask them to leave the mayo or butter on the bun off, they don't. Also very gravy happy here. I pretty much don't eat out as a result, but I miss it because it is something fun and relatively cheap my kids and I can do together. We get 10 months of rain a year so it's not like getting outdoors is much of an option for family time.
They took my gallbladder out a year ago, and we thought that was the problem, but I guess not. I still can't eat any fat or fiber and throw up a lot still. It's hard to lose weight when you can't eat apples, oranges, broccoli, cauliflower, lettuce, spinach, celery, carrots, bananas, corn, rice, quinoa, oats, what is left that is healthy? I also have reactions to gluten, so although I eat it I have to limit wheat. Oddly, I tolerate nuts just fine.
I'm going back to my endocronologist Thursday for the first time since the surgery. She had put me on thyroid medication to see if it would stimulate my metabolism, but it didn't.
Eating frequent snacks has not helped, it actually made my gallbladder flare up. Not sure what to do, hopefully the doc has some ideas.
Has anyone noticed that working out makes you nauseated? It always made me feel good before, but now it makes me want to crawl into bed for the rest of the day. Weird!

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3/31/13 9:20 P

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Every person's GP flare/attack is different, because every person's body and symptomology is different. When you're having a flare you'll know it. I'm more unique than most because I have so many unique conditions, but I get tearing pains in my stomach, I become so severely bloated that I can't bend over and look 7 months pregnant, food starts backing up into my esophagus, I have to fight vomiting, I get stabbing pains through my intestines, etc. My flares can last for days to weeks.

There are foods (such as spices, chocolate, caffeine, coffee, citrus, mint, etc) that aggrivate GERD but don't necessarily flare GP. Remember GERD is a symptom of GP, but a condition by itself. Some nuts have a higher fat content than others, so some might work better than others. Also be sure to avoid low fat peanut butter due to your diabetes; in foods where they remove fat they add sugar and when they remove sugar they add fat to compensate for taste changes.

~ Sheri ~

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3/31/13 2:38 A

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Thanks Sheri a lot of good things to try here. And I found the article Shari linked us to most interesting. I think after reading this thread and the others I've posted in that there may be many foods causing me distress I just wasn't aware of. I'm not a big spice person, use herbs mostly and avoid salt. But I never could tolerate hot spices like chilies and never thought it could be connected. Its funny but it hits me exactly the same way as a banana does recently and I never thought about it. Between GP and D2 it almost seems impossible to figure out what I am able to eat or how I should eat. I know its not but soooo confusing. I don't find Peanut butter or nuts bother me normally, but now I wonder just what an "attack" is. Is it just pain and bloating or is there more to it I should be watching for?

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3/27/13 4:36 P

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Stress is most definitely a factor. Stress is often an extention of chronic fight-or-flight, in which blood and nerve signals are maximized to the brain, heart, lungs, and skeletal muscles and minimized elsewhere. So someone who has severe and chronic stress will have less blood and nerve signals being sent to their digestive system for long periods of time. It is important for us to attempt to lessen our stress whenever possible... which I know is almost impossible for many of us.

I do hope it's not the pseudo-chili. If you react again then yes it could be the problem.

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I did have a flare yesterday but don't think it was from the mock chili. I was under some stress and wonder if that might be the problem. I tried a small bowl of the chili last night and will see if I have another flare and then will know for sure if it was the problem. I am having a problem with water though and am not sure why. emoticon

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3/26/13 12:35 A

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See, when you think outside the box a bit and do substitutions you can have something similar to what you want with less risk. I really hope you can handle it! If not, try another adjustment another day.

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3/25/13 9:45 P

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I did try the chili idea that you gave me. I cannot tolerate tomato sauce so I substitute canned vegetable soup -peas and corn. I chopped rotisserie chicken added that to the soup and about 1-1.5 tsp mild chili seasoning and some low sodium V8 juice. I simmered it for about 30 min and mashed the veggies and ABC's with a potato masher to make it thicker. I will know soon if I can tolerate that much tomato product but a 1/2 C serving with crackers was my dinner. We do what we can do! emoticon I can tolerate the ingredients individually.

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3/25/13 12:20 A

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Jamierhf - I hope it gives you a place to start. Just remember to add foods very slowly. Unfortunately, we all have to give up some foods on this diet, but it's better than some who have to give up all foods. As long as you can still eat some foods, there's always a chance of eating something similar. You might not be able to have extra crispy fried chicken, but it's possible to still have baked chicken with a light breadcrumb coating. You might not be able to eat peppers, but still being able to eat spices might make up for it if you find the right spices. If you crave a certain food so much you can't stand it but it's one that doesn't agree with your belly, then find a way to have a similar version of it, or make it at home with ingredients that are easier on your belly. It's all about making the best of a not-so-good situation.

Nola - Sounds like you're doing pretty good. Having a good list of basic foods you can tolerate is a great starting place that you can return to any time. And trying 1 new food every few days or more will allow you to test your belly a little bit while still keeping a tight watch on your progress. Better to know what 1 food is the problem than not sure which of 5 it is!

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3/23/13 3:30 P

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Since I now have an idea of what foods I can eat, I simply try a new food every few days and I soon know what is the culprit of any pain. emoticon

Nola

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3/22/13 9:58 P

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Hey, this is really helpful. Thanks for posting this!

My GP is really mild - heavily seasoned & high fat meats are the worst. I'm a Southern gal by birth, and I'm sad to say that ribs kill my hunger faster than just about anything. Luckily I can handle spices fairly well, so I can still have Indian food, as long as it's vegetarian (and not outrageously hot).

I guess I should let go of my fantasy of trying a bite of ghost pepper (especially since I can't handle more than a little bit of regular capsicum).

=^v^=
Jamie

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10/29/12 4:52 P

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emoticon for the information. I have a feeling that Phase 2 is where I am going to be most comfortable on. I tried egg beaters on Sunday and did not do well with them. I am not sure if I had too much or it was too soon after being on liquids. I will try taking things a little slower.

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It will probably take a few weeks to get a real group of tolerable foods. This is because you should only add a new food every 2-3 days to help you be sure which of the foods is causing an issue. Unfortunately, that means it takes a long time to add foods in. But take heart - most of us have been through this at least once (sometimes 2-3x depending on the specific causes) so you'll get through it too. You'll get frustrated, but it is very important so hang in there.

Since they believe you're a relatively mild case, the good news is that you may find most foods will be okay for you, only leaving out high fat and high fiber foods. It's also possible that there could be some food allergies (milk, gluten, artificial sweeteners, etc) that add to it, so by tracking your foods here on SP and keeping track of what foods cause problems and which don't you might be able to find groups of items to avoid without having to try them all.

You're probably dizzy because your body isn't used to being on a liquid diet. Make sure to cut back on activities for a few weeks while you become more accustomed to this new way of eating. Be sure to keep your doctor informed of your progress and make sure they know that you were dizzy and if it gets better or not as you progress in acceptable foods. This will help keep you safe in the short term and help them better understand your individual degree of GP.

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emoticon I did 36 hours of Phase one but am discontinuing it now due to dizziness. I am going to be adding some full liquids today. I am not sure how long it will take for me to know which foods I am not accepting. this seems to mimic other issues I have such as lactose intolerance.

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10/28/12 1:52 A

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I'm glad you found us. Several of us have been living with GP for years, so we have a good idea. As much as it sucks to have GP, it's good that your case is mild. Hopefully once you figure out what your body will accept you'll do well.

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10/27/12 5:10 P

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I was just diagnosed 2 days ago and my Dr. said that I have a mild case. I started the liquid diet yesterday and am to do it for 2 days and then try phase 2 and see what I can add. One of my Spark Friends told me about the team and I am so glad to find you. I already know some of the team so it is wonderful to be among a comfortable group. I am reading a lot of the information and am looking forward to leaning more. Nola

Nola

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8/2/12 4:16 P

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That's a great answer - thanks for sharing! The GP diet is a guideline, not a rule. Each person must figure out what their body will and won't accept.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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MOM2ACAT's Photo MOM2ACAT SparkPoints: (165,475)
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8/1/12 10:07 A

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I thought this was a good answer to the question, Can I eat foods that aren't GP friendly?

livingwithgastroparesis.com/eating-f
oo
ds-that-are-not-gp-friendly/


I know from past experience though, that there are certain foods I will continue to avoid. Blueberries top that list. I love them, but they cause so much pain!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

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5/31/12 10:31 P

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Good to see that ya'll are figuring it out.

As for Ensure, have you heard about the new clear version? It has no fat in it and is a thin liquid. The regular type I cut 50/50 with water (1 cup of water for 1 cup of Ensure, mixed together) or even with double the water. The new clear version goes down easier as it isn't thick. So check it out if you haven't yet. I often find coupons for Ensure in the newspaper, or Ensure's website has a coupon for $2 off: ensure.com/coupons-samples-promotion
s


~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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My sparkfriends are my greatest support and I'm grateful for it.
DONN999's Photo DONN999 Posts: 2
5/31/12 10:16 P

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I use the Isagenix products and eat one meal of soft foods, or a small amount of whatever I feed my daughter once a day. Since I started eating this way I have been feeling SO MUCH better. I am so glad that I can still eat yogurt. I love Chobani and thier pineapple flavor is really good. Thanks to the Isagenix I can drink my fruits and vegetables. Now I have nausea only if I eat too much solid food or if it is still in my stomach the next day. (happens about once a week now). Making my diet mainly liquids has really made a difference to me and how I feel. Havent vomited in ages, rarely have diarrhea.. just feel so much better and have energy.. This is just what has worked best for me. Oh,, and my treat is now sweet potato fries! When I bake them I dont let them get crispy and do ok...

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5/31/12 12:40 A

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I miss fresh pineapple too! I have noticed with the beans they can only have a few spices in them. Chili beans are a no-no for me because of the spices. I also have to use soft shells and the beans have to be refried or else I have to mash them myself since most of the fiber is in the skin of the bean. I have to take is slow again because of this set back. But now I know a little of what I am dealing with and reading all the blogs helps me understand my disease better. I am glad that I ran across the GP group. I have learned a lot. Thanks!
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5/30/12 3:23 P

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I miss fresh pineapple!

I can't eat apples fresh at all, even peeled. The only way I can eat them is in applesauce. I have a friend who cans and she makes unsweetened applesauce for me.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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5/30/12 2:11 A

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I can handle the Rice Krispies, but too many of the treats have milk or eggs in them. Just like Ensure. I have tried to stay away from treats and desserts and eat the fruits instead. I still have to watch that I don't eat them with the skins on them. Like apples, pears, peaches, nectarines, grapes and plums. I like these fruits and the only way I can have them with their skins is in a smoothie with the fruit well ground. I also like pineapples, but because of the fiber the only way I can have them is in a smoothie. I love fruit, but when they are in a smoothie I really have to watch the calories.

'I can do all things through Christ who strengthens me.' Phil 4:13


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9/4/11 6:40 P

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So it sounds like rice krispie treats are definitely a good food to try!

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
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9/4/11 5:07 P

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I always make sure I have the Rice Krispy treats in my house! I buy the ready made ones; I know it's cheaper to make them, but with the way I feel so much of the time, they wouldn't get done, plus I like that the prepackaged ones are already portion controlled.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/3/11 3:40 P

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Another good treat that tastes just like Rick Krispie treats is Safeway brand vanilla marshmallow rice cakes. No fat, no fiber, 6 gms of sugar, low calorie. I got them at Tom Thumb's.

1STATEOFDENIAL's Photo 1STATEOFDENIAL SparkPoints: (133,634)
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9/2/11 6:52 P

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A new food I just found that I'm totally shocked by:
1 - rice krispie treats!

In the past two weeks I've been through two flares, one more CIP and one more GP, and through both of them if I had one or two treats as a snack between smoothies it didn't bother me at all! There are 2 grams of fat, no (or minimal) fiber, and 90 calories per treat. I ate them slow and chewed them well and I didn't have a twinge of pain from them.

These might not work as well for everyone else, but wow this shocked me and I like it!

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
MOM2ACAT's Photo MOM2ACAT SparkPoints: (165,475)
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8/30/11 5:22 P

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Be sure to check the label when buying white bread products too; it's surprising how much fiber are in some of those; I noticed that one day when I was wanting to buy some of those sandwich thins. Even the ones labeled as "white" had too much fiber in them for me.

Another easy to digest food for me are frozen perogies; Mrs. T's makes good ones; you can boil them, or even bake them. I get the kind that just have potatoes and cheese in them for filling.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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8/25/11 7:28 P

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In addition to the examples below, here are some more from me:
2 - nonfat yogurt (no fruit pieces), honeydew, cantalope, and watermelon (I let melons get a little over-ripe), bananas, rice chex, frosted flakes, fruity pebbles, rice krispies, skim milk
3 - broiled tilapia with a little parmesan cheese, fruit leather (dried fruit puree, I get Stretch Island Fruit Co), broiled/baked chicken, broiled/baked asparagus or zuchini with a little parmesan cheese,
4 - lucky charms (I give this a 4 because who can eat only 3/4 cup of lucky charms and it's 2g fiber per serving), cocoa pebbles/krispies (remember cocoa can aggrivate GERD), peanut butter, 1/4 cup pretzel or coconut M&Ms
5 - Arby's regular roast beef and potato cakes (request no seasoning if spices bother your stomach), ice cream sandwich, whopper w/o mayo or onion

Foods to avoid: be careful if you eat cereal. More companies are adding fake fiber (inulin, chicory extract, etc) to cereals to artificially raise the fiber counts.

Edited by: 1STATEOFDENIAL at: 8/25/2011 (19:31)
~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
1STATEOFDENIAL's Photo 1STATEOFDENIAL SparkPoints: (133,634)
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8/25/11 6:58 P

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I've seen a lot of people asking 'what can I eat?' when they join our group. I thought I would start a thread for us to post what foods to try and what foods to avoid. Since every person has a different level of food intake, it would be appreciated if you also gave an idea of how easy to digest it is.

A note for anyone new to GP: start out with very easy to digest foods that are low fat/low fiber or no fat/no fiber. Then slowly add one food every 1-2 days to allow your body to tell you if it likes that or not. If you're only adding in one new food a stomachache or bloating will probably be due to the one new food. This is easier than adding a lot of new foods and not knowing what caused the problem. If you build a base of foods that work for you, then you'll know what to eat when you're out of your normal routine.

As for how easily digestible a food is, consider this scale:
1 - liquid, puree, no chewing necessary OR up to 2 grams of fat, up to 1 gram of fiber
2 - minimal chewing, easy to swallow OR up to 3 grams of fat, up to 2 grams of fiber
3 - chewing necessary but not crunchy OR up to 5 grams of fat, up to 3 grams of fiber
4 - time needed to properly chew the food OR up to 8 grams of fat, up to 4 grams of fiber
5 - foods that fill up a person without GP in 1-2 servings OR 9+ grams of fat, 5+ grams of fiber

Examples:
1 - baby food, ensure, carnation instant breakfast, applesauce, broth
2 - homemade smoothies with low fat/low fiber ingredients, malt-o-meal
3 - saltines, oatmeal, some cereals, low fat meat and fish, cottage cheese
4 - low fiber fruits/veggies like carrots and peaches or cooked veggies, some cheeses
5 - salad with fixings, fast food, restaurant meals

If you're not sure what level a food would be considered, take your best guess or give the two levels it could be. Also, if you have a recipe you would like to share, there is a "recipes" thread you can share those in.

TIP: If you click on 'reply' under my name on the left side of this post (NOT at the top of the thread!), you will see this post under the box when you type your message. This will allow you to see the levels and examples above while you type!
emoticon

Edited by: 1STATEOFDENIAL at: 8/25/2011 (19:30)
~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
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