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11/2/14 1:17 A

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Thank you. For your understanding. I've managed to keep my A1C down. it's not 5.6 it last checked a month ago. My A1C was 13,1 when i was diagnosed with diabetes. I feel though i've been depriving myself of social activities, due to depression and diabetes. I'm 36 male and single. And living alone in Japan. I cannot take SSRIs or SSNRIs or any psychotropic drugs as they cause automic nerve damage to people with mitochodria disease. My friends are fed up with my negative attitude, but Mitochondria is a progressive , non curable, non treatable disease (You can treat the symptoms though), and it's fatal. Look up life expectancy for Melas. So I've been have trouble treating my depression. i'm facing diabetes burn out.As well. i'm a little sick of needles and checking my blood sugar levels. And i can't continue to buy test strips. And my Japanese National Insurance only covers about 4 test strips a day.I test about 8 times or more. Before breakfast when i first get up in the morning. I get up at 4am then when i get to work at 8 am then before lunch at 12;30 pm again just after work at 3:30 and as soon as i get home at 5:30 pm as i have 2 hour commute. I usually have dinner when i get home. So don't need to check before i eat.if go to the gym i check my blood sugar before i drive. and again after the work out. Then one last time before i go to bed an wake up to wash, rinse, and repeat the cycle over again. I'm frustrated with diabetes. and i know there's no cure. I eat well. But healthy food is expensive. And lonely, too. No wants to go on dates with with someone who's depressed, diabetic and and has a weird mitochondria disease no has ever herd of. I'm sorry for the rant. I don't know if i should've posted it here or the depression group, or where i can go for help. I'm at a loss as to what to do.

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10/30/14 9:22 P

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I'm sorry, I just do not know a great deal about mitochondrial disease. It sounds like you do have MIDD. There have been a lot of different terms used to describe the different types of diabetes over the years. Type 1 used to be described as an autoimmune disease diagnosed in childhood to early adulthood, but now it is just termed insulin-dependent diabetes because more people are being diagnosed with it at later ages for unknown reasons. I know it can be discouraging to not have an exact diagnosis, but the most important thing is to keep your A1C below 7% through diet, exercise, oral meds, and/or insulin, whatever it takes to keep your A1C in control in order to prevent diabetes-related complications. Please let me know if I can help with any other questions.

Natalie E. Markis, MSN, RN


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JEFFJAPAN SparkPoints: (1,589)
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10/30/14 6:26 P

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i'm sorry but i feel as if i'm being trivialized here. Diabetes is one of many serious complications that develop because of Melas. Melas (Mitochondria ecephalomyopathy with lactic acidosis and stroke like symptoms is is a rare complex Mitochondria genetic disorder that causes all sorts ranging from strokes to oragan failure to death in my family most don't survive past 30though my mother )istAt first i was diagnosed with type 2 by my endocrinologist here in Japan. i think i might have either MIDD (maternally inherited diabetes and deafness ) which is caused by a similar genetic Mitochondria disorder or type 1.5 LADA. Isn't type 1 diabetes defined as caused by an autoimmune disorder in which the the white blood cells attack the insulin producing beta cells thus causing insulin dependence? Hasn't type 1 diabetes typically called juvenile diabetes? i became diabetic at age 35. That's not your typical age for diabetes. i was the youngest one in the diabetic ward in the hospital. i'm always depressed and now i'm adding diabetes burn out to my list of problems. i'm sorry for my rant but i feel like you weren't taking me seriously like my endocrinologist in Japan. and all my other doctors. it's frustrating enough when medical professionals don't even know what is happening to you and ignore your pleads for an MRI or get refused to be seen by a cardiologist just because he doesn't work with Mitochondria.

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10/30/14 2:08 P

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You could maybe use the word "remission" for someone who was able to lose enough weight to control their type 2 diabetes with just diet and exercise; however, once you have diabetes, you will always have it. Being "in control" is having an A1C under 7%. Keeping your sugars below 7% is the most important thing, whether it's just with diet and exercise or with the addition of medication. Sounds like you are doing a great job! Keep up the good work.

Natalie E. Markis, MSN, RN


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GUNNY2004 Posts: 14
10/30/14 1:53 P

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At what point would a doctor consider someone with Type 2 diabetes be in "remission" ? Does that also mean off all diabetic meds ?

In the last 3 months my A1C has gone from 7.0 to 6.4 (from a high of 7.4 at one time). I take glipizide 5mg twice a day and am working on losing weight....


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10/29/14 9:54 P

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I'm not 100% sure what type you have, but type 1 diabetes is defined by being insulin dependent.

Natalie E. Markis, MSN, RN


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JEFFJAPAN SparkPoints: (1,589)
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10/26/14 1:56 A

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Hi, i'm Jeff and i'm from California but i live in Japan.
Last year i was diagnosed with diabetes type two. I think its it's a miss diagnosis. I have melas (mitochondria encephalomyopahy with lactic acidosis and stroke like symptoms). So i can't take metformin. (it's a mitochondria toxin. Google "Mitochondria toxins" and causes myopathy in mitochondria disease patients. So i've been shooting up novorapid and lantus insulin. Do you know what type of diabetes comes with Melas? i know Melas also comes the mtDNA A3243G mutation. There aren't any mitochondria doctors at my hospital. i came down with Diabetes a few months after having a Melas stroke that left me with depression. and Balance issues.I'm also losing my hearing. I have tinnitus too. I started hearing aids this year in June. I'd just like to know what type of diabetes i have have. Because I have dawn phenomenon. But i can't take oral meds.
Thank you.

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10/21/14 2:56 P

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What diabetes meds are you on? How often did your doctor tell you to check and how often were you actually checking in the past? How has your A1C and blood sugars been running?

Natalie E. Markis, MSN, RN


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10/21/14 10:50 A

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I am in a place where financially I cannot afford to test my glucose every day. I am working on my diet consistently, and also my stress levels. M
In my situation, what do you recommend?
Should I test once every other day?



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10/13/14 10:59 P

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HI Lilypudge! I would recommend seeing a podiatrist regularly as well as having your PCP check your feet every visit and wearing diabetic shoes. If your A1C has been out of control in the past, it may be difficult to reverse past damage that has been done; however, keeping your A1C below 7% helps prevent all further complications of diabetes.

Natalie E. Markis, MSN, RN


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LILYPUDGE's Photo LILYPUDGE Posts: 102
10/13/14 2:02 P

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Was in the hospital this weekend with cellulitis and a wound on one toe under a heavy callous. I'm taking my meds...was put back on insulin Lantis and Regular when sugar spiked to 250-310 fasting and return of c-diff infection yet again.

I'm so frustrated and starting to get scared.

Walking is painful. I'm so quickly exhausted. How can I get all this turned back around?!

Edited by: LILYPUDGE at: 10/13/2014 (14:05)
I can do all things through Christ who strengthens me. Philippians 4:13



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10/9/14 11:57 A

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Don't get discouraged, you are doing great. You don't have to have grains in your diet. If you do, look for high fiber foods like high fiber bread or pasta, oatmeal, quinoa, or whole-grain rice.

Natalie E. Markis, MSN, RN


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10/9/14 9:54 A

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OK. This is a normal breakfast for me so I went back to see what my blood sugars have done in the past two weeks. It seems I always get a higher reading than before after this meal. Perhaps it is something in the english muffin? I am really having a terrible time getting grains into my diet when I stick to 60 carbs or les per meal unless I go really low like this one.

Again. UGH.

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10/9/14 9:39 A

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So frustrated the past twenty four hours -- I am about 2.5 weeks into a really strong effort to get my blood sugar under control. I've been having great readings.

Had 59 cards at dinner last night, but my fasting this morning was 147. OK, less fat that normal at dinner, probably metabolized faster.

This morning I had an english muffin, sausage, egg & cheese - LESS THAN 30 carbs, and I'm allowed 45-60. I've taken my meds this morning (metformin & glimiperide). 2 hours after breakfast... 233. UGH. Makes me want to stop trying!! I expect these blood sugars when I don't behave. I just wish I knew what I had done for them to start slipping back to before.

Edited by: CFODEL at: 10/9/2014 (09:40)
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7/19/14 10:01 A

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You are doing amazing! Keep up the great work with your diet and exercise and weaning yourself down on your insulin.

Natalie E. Markis, MSN, RN


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7/19/14 5:24 A

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Many thanks, that is good to know. Maybe I should show that list to my doctor. He is French and expects me to be eating a French diet so he says - how much bread, how much chacuterie (cured meats), how much patisserie (cakes). I just keep saying none none none but he doesnt seem to get it.

Seeing a nutritionist would be pointless as they too would have the French attitude and cannot understand my diet.

Anyway, I am satisfied you think it is a good diet so I will continue and reduce the insulin. I used 24 units again last night and was 71 this morning so have only take 2 diamicron (normally 3), slowly slowly I will sort it out.

I also forgot to say I have a pool in my garden and swim around 60 mins daily or in winter do the same amount in aerobics - usually 5 days a week.

Many thanks

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7/18/14 7:26 P

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You are eating a great diet! You probably just need to reduce your insulin. You don't want to have to eat more carbs to keep your blood sugar up.

Natalie E. Markis, MSN, RN


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SUNSHINE-GIRL's Photo SUNSHINE-GIRL Posts: 212
7/18/14 5:44 P

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Thanks Natalie, sorry, should have mentioned insulin.

I eat lots of fruit and in fact I have been told I eat too much and to watch the sugar content. What I need to get over being scared of are the starchy carbs. Here is a typical days diet

Breakfast - plain yoghurt with strawberries, raspberries and flaked almonds. Glass of juice served half and half with water.
Lunch- massive salad, lettuce, tomatoes, cucumber, sweetcorn, beetroot, spring onions (scallions in america I think), homemade coleslaw (low fat) with 2 slices of ham or chicken. Fruit yoghurt or fruit - Today I had melon.
Dinner - homemade soup with white haricot beans.
Snacks - afternoon - slice of cold meat and a few nuts. Evening - Ryvita biscuit with tuna mayo (low fat)
Drinks - 1.5 litres of water, the juice drink, 1 green tea, 1 coffee.

Where am I going wrong. The only deviation from this is Sunday when I have a roast dinner.

Many thanks
Denise

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7/18/14 5:23 P

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Yes, I would probably reduce your insulin as your doctor advised. Some good carbs are fruits. Exercise and a low saturated fat diet will help reduce your lipid levels, but you may just have high cholesterol from genetics, in which case you will need medication.

Natalie E. Markis, MSN, RN


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7/18/14 8:31 A

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My problem seems to be the opposite, how do I keep my numbers up and my cholesterol low. I keep accurate readings daily and they have been 69, 70, 63, 77, 109, 85 79, 60 and 71 over the last week (mainly fasting - morning tests) hence I had a massive hypo the other day. Doctor told me to reduce insulin from 28 nightly to 24. I know I don't eat enough carbs - none in fact most days - so what good carbs can I eat. I have homemade soup most days with white haricot beans but stay away from bread, potatoes, pasta and rice. Help, I seem to have got into a rut.

My cholesterol went high when doc messed around with meds and now I am not taking anything for it until we see what my next test shows but I am desperately trying to keep them down naturally. Bit of a balancing act with diabetes and high cholesterol.

Help
Denise

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7/17/14 4:58 P

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Yes, that is correct. When you have pizza, I would try to get thin crust with minimal cheese and lots of veggies to help cut the carbs and fat.

Natalie E. Markis, MSN, RN


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GUNNY2004 Posts: 14
7/17/14 4:23 P

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Ignore this post (but not my previous).... I really wish there was a way to remove posts. Sorry

Edited by: GUNNY2004 at: 7/17/2014 (16:31)
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GUNNY2004 Posts: 14
7/17/14 2:20 P

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Had 2 slices of pizza and a diet soda for lunch... my after lunch blood sugar spiked to 201....

Did a little research and found out that, because pizza is high in fat, this can happen for up to 8 hours after ingestion...

Just retested my sugar (4 hours after lunch) and it's down to 100....

Does this make sense ?

Edited by: GUNNY2004 at: 7/17/2014 (16:29)
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7/15/14 4:31 P

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Hi, JSTETSER, good question. Here are 2 really good websites that help explain. Let me know if you have any other questions.

www.diabeticconnect.com/diabetes-inf
or
mation-articles/general/37-how-weathR>er-changes-can-affect-your-blood-sugar


www.everydayhealth.com/diabetes/how-
we
ather-affects-your-blood-sugar.aspx


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7/15/14 6:23 A

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How much does weather play in my daily glucose reading?
My levels have been high some days (140-155) for no apparent reason.
Good days, my readings are 105-125. Today it is 132.
I am very active, and get in about 1 hour of strenuous exercise every day.
Today I'm taking a rest.




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5/21/14 9:22 A

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Sounds like you are doing well, keep up the great work!

Natalie E. Markis, MSN, RN


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5/21/14 4:16 A

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I'm due for an A1c. Two years ago I was over 10. Last was 7.2 though. I test twice a day fasting AM always and then in evening. Flared with sciatica so was put on prednisone four 4 days. Prior to that I was in 115-129 range fasting daily.

I can do all things through Christ who strengthens me. Philippians 4:13



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5/20/14 9:31 A

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Hi LILYPUDGE! It's nice to meet you. That is great that you have lost weight and improved your diabetes control! Do you still continue to check your blood sugars? How are they running? How was your last A1C?

Natalie E. Markis, MSN, RN


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5/19/14 6:56 P

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HI I'm new to this page but been diabetic for almost 10 years. I was recently taken off insulin (Lantus and Regular) and put onto Victoza and Metformin.due to improved weight loss and BG management after many years in denial. I want to keep getting better. Hope I can continue doing better. Does this even sound workable?

Thanks!

I can do all things through Christ who strengthens me. Philippians 4:13



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5/10/14 6:04 P

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Hi Candy, you need to be on Metformin. This medication will not drop your blood sugar. It will help keep your fasting blood sugars lower.

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5/9/14 6:04 P

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Lately my numbers have been all over the place. The highest being a little over 200 and lowest being in the 90's . Today i ate some eggs for breakfast. No bread or anything else . When i first got up I was at 154. I was doing lots of house work and forgot to eat lunch and was starting to feel a little weird so i took it and it was 97. I was going to get something to eat but instead got the laundry out before it wrinkled and lost track of time and two hours later without eating anything it is up to 148. I don' t understand. If it does that without eating anything , what would it be if i actually at something. I am type 2 and we are just trying to control it with diet and exercise right now because he is afraid i would go too low at times if he puts me on medicines. Although he does think at some point , i will have to take it. I just dont know what is up with my body lately and it feels like it is kind of doing its own thing no matter what I do. Any advice?

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2/24/14 7:21 P

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Hi ILIVE1X, yes you are in the right place! You should test your blood sugar anytime you want more info about how it is running, such as first thing in the morning before you eat, before meals, 2 hrs after the start of a meal, before bedtime, before and after exercise, or anytime you don't feel well. Your blood sugars should generally run somewhere between 70 and 180. Some ideas for snacks are veggies and dip such as peanut butter or hummus, crackers or a small apple with a piece of cheese, a handful of nuts and/or seeds such as a trail mix, air-popped popcorn with parmesan cheese, roasted chickpeas, a cup of high fiber cereal such as Kashi, frozen grapes, a handful of baked chips with some salsa. In terms of yogurt, I would suggest greek yogurt which is very good for you, low in carbs and high in protein. Hope this helps!

Nurse Natalie

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2/24/14 4:47 P

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I hope I am in the right area to ask questions to the diabetes educator. If so, as a new type 2 diabetic, I have a couple of questions. First, as for testing. Is testing to see where my blood sugar is at any given point or is it supposed to be in comparison to say, before a meal? Second, as I track I see where carbs are and am in need or some snacks that are "good" for me. I especially would like something crunchy. Last question for now, is yogurt good for a diabetic or not so good. Thanks in advance for your advice.

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11/17/13 12:29 P

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Hi Sam, keeping your A1C below 7% should also keep you from getting sick. Do you know how your A1C has been running? Have you ever thought about getting an insulin pump? I know a great deal of type 1 diabetics that really like the pump.

Natalie

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11/17/13 1:19 A

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I have had type one diabetes nearly 30 years and am on Lantus & Novolog. My husband buys me 1000mg vitamin C packets I mix in my water every am. I am no longer getting sick as often.

Final weight goal of 140 pounds & maintain my fitness with excellent blood sugar management.


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10/28/13 8:58 A

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Thanks for the info - that answered my question. Lantus is a slow acting insulin that you take only 1x a day. My dr knew I was going to be cutting back and wanted to get off the insulin totally. He told me to do it slowly which I have. I can't afford to go to the dr till Dec. Probably won't be able to get labs done till January. thanks again.

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10/27/13 8:46 P

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Here is some info on diabetes and altitudes. diabetes.sanofi.us/dear-diabetes-alt
it
ude/
. If you were on short acting insulin, I would say to go ahead and take it, but I'm not sure about the Lantus. Does your doctor know you went off it? Try taking your blood sugar 2-hrs after the start of a meal. It should be less than 180. If it is not below 180 by 2 hrs post-meal, you probably need to decrease the amount of carbs in your meals.

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10/27/13 8:32 P

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I was on Lantus. 2 reasons for going off of it - It's very expensive and I don't have insurance. But I also found as I'm losing weight, exercising more - my numbers kept going down too low - even after I ate my meals - down to 70's and 60's. As I decreased my insulin my numbers would stabilize for a day or two and then start going down too low again. Once I stopped taking it, my numbers are stabilizing at a decent level - 90's in the morning for fasting and during the day - 150-170 - 3 hrs after meals - depending on how much I ate. (I'm still working on that part, making note of which meals drives my numbers higher so I can adjust my meals accordingly.) I eat at 5 hr intervals so by the time my next meal comes - I'm usually below or just slightly above 100.

Edited by: JOYFULTYPER at: 10/27/2013 (20:43)
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10/27/13 12:07 P

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What type of insulin were you on? Why are you going off it?

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10/27/13 9:59 A

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Got a question - I live in Henderson Nv and will be going to Flagstaff Az this next weekend - a much higher altitude. I'll have been off my insulin a good week and a half by then. I've done well at home, watching what I eat and exercising but I'll be eating out while I'm there. While I will be careful how much and what I eat - and will still be getting plenty of exercise - walking and they have a fitness room there.... I'm wondering if I should bring my insulin just in case I need a little boost - or will that mess up my system since I've been off of it??? Thanks. I'm concerned the higher altitude will affect me?

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9/19/13 11:05 A

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Pretty much just drinking the water. I do add some of the Dasani drops every once in a while though. I was kind of wanting something warm like a nice hot tea. I guess it is just wishful thinking for what I can not have. I picked up some MucinexDM at the store so maybe that will help.


Edited by: MCANDIES at: 9/19/2013 (11:06)
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9/19/13 10:10 A

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Do you like Crystal Light or maybe you do the low carb/cal Gatorade?

Natalie E. Markis, MSN, RN


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9/19/13 9:32 A

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I have a sinus infection that has me dealing with a sore throat right now. I don't do coffee and my kidney doctor says I have to stay away from the tea due to kidney stones. Any suggestions on what I could drink to help my throat. Water is not getting it. :(


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9/17/13 10:32 P

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Keep up the awesome work, Valerie! Yes, it definitely sounds like you don't need as much long acting insulin as you have been taking. Hopefully it won't take much longer to find the secret number to keep you between 80-110 fasting.

Natalie

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9/17/13 9:59 P

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My fasting numbers are still low - 60's and 70's. I decrease my insulin a little at a time and wait a few days before I decide to decrease again. That's the way my dr said to do it whether I'm increasing or decreasing - just do a little at a time. I don't see him for a couple more months. Then it's time for refills and lab work. Can't wait to see how the labs come out since I've lost weight and exercising. He's going to be so surprised!!

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9/16/13 11:30 A

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You are very welcome. Let us know how it goes. How have your fasting blood sugars been?

Natalie

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9/16/13 9:09 A

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Thank you so much. I'll try that.

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9/15/13 9:50 P

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Hi JOYFULTYPER. I am so happy that you are exercising, that is great! I would suggest having protein, healthy fat, and some fiber with all meals and snacks. I would especially have these things with a snack before you exercise or try doing your exercise after a meal. You could also split up your exercise and do a 10 minute walk after every meal. Some snack suggestions include half a peanut butter sandwich on high fiber bread; turkey, spinach and dijon mustard on an english muffin; small apple with cheese; handful of nuts; hummus and veggies; cottage cheese; greek yogurt; Kashi also has some really good breakfast bars. Hope this helps, let me know if you have any other questions.

Natalie

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9/15/13 8:57 P

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Wow - I saw your suggestion about doing a puree for fruits and veggies. I might try that!!
I have a question what to do - I've lost about 10 pounds and am exercising regularly - been building up to half an hour, (not much but its a start). This last week - my sugar keeps dropping low constantly. I'm used to high numbers and trying to bring them down. I'm type 2 - and taking insulin - Lantus - a slow acting insulin I take once a day. I'm decreasing my insulin but so far I still drop during the day - to the 60's and 70's between meals. I end up going over my calories and fear I'll be gaining weight back if it keeps up?

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9/6/13 7:11 P

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Hi Candy, I'm glad I was able to help clarify that for you. You are correct, stress on the body, such as surgery and pain, can elevate blood glucose levels. I am glad yours are starting to come down. Talk with your doctor about what your exact goals should be. In the mean time, the ADA has some general guidelines that you can take a look at. www.diabetes.org/living-with-diabete
s/
treatment-and-care/blood-glucose-conR>trol/checking-your-blood-glucose.html
. Fasting: 70-130 and Two Hours Post-Prandial (after the start of a meal): less than 180. Let me know if you have any other questions.

Natalie

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9/6/13 6:05 P

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Thanks Natalie, That does make sense. Another question for you. What numbers should I be aiming for. My numbers have come way down from what they were during my surgeries. I figure alot of that was the stress from the surgeries and the stint causing so much pain. Now that they have some down, I was kind of wondering for sure what numbers I need to try to shoot for.
Thanks for all your help.


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9/5/13 6:49 P

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Hi Candy, the liver is at work at night or other periods of time to put out sugar for our body when we are fasting. Unfortunately, the liver does not realize in the diabetic person that they already have enough sugar in their blood and continues to put sugar out for them. It is a survival mechanism which actually works against the diabetic. Metformin is a drug that helps work against this function of the liver to keep blood glucose levels down. Hope this helps. Let me know if I need to explain it better.

Take care,

Natalie

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9/5/13 3:25 P

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I recently had three different surgeries to remove kidney stones in the tube and also in my bladder that were all too big to pass. It was at my last surgery that they decided to take my blood sugars for some reason. I had been having trouble with my heart rate being inthe 110 or even 120's. Anyways the tested my sugar and it was high. Numbers were in the 200 and 300's for a while but have come way down now. My question is why if I take my blood sugar at night before bed it is one thing. Then when ii get up in the morning after being in bed all night and not eating anything after i took it at night, why would your blood sugar be higher in the morning then it was at night. I don't understand.

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6/30/13 1:41 P

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I would suggest cutting out the rice when you eat those types of foods if you can't eat veggies. Also, you could maybe try blending up fruits and veggies to a puree and adding spices to help minimize the taste and change the texture. Do you think you could do more veggies like that in a smootie or soup?

Natalie E. Markis, MSN, RN


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