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SARAHTAIT's Photo SARAHTAIT Posts: 26,229
4/3/13 11:33 A

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emoticon Go to April chat!


"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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4/2/13 12:17 P

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Praying you through your days Belle...today esp for the BP and for wisdom and help to come along side your son in his endeavors to win in parenting/visiting issues for his child.

Dottie good to see you, I still have not gotten to know you. Will go explore your page soon.

Praying for Sarah's busy and hard week.

My medical trip was long hard day but accomplished...my fibro is in full pain and exhaustion levels today but will just rest and medicate and tomorrow will be better. The trip too and from was hard but at least i did not have to drive except for the first and last half hours to get to the van. Dx confirmed of peripheral neuropathy is why feet are gradually going "numb with bee sting feelings in them" Dr was pretty matter of fact about not getting better but to protect them and the circulation in my feet and asked if my hands were affected "yet" and I admitted that some numbness, but not the pain ... He was most gentle and supportive but did comment that "This does seem to be part of the fibromyalgia picture and mystery too"...will be getting diabetic shoes and socks in future purchases and must get in the practive/habit of examining feet each evening for 'unfelt' wounds. Dr says that threats to circulation and infections are the two main concerns when you have no feeling.
The hour on the hard Xray table was painful but now they have full idea of what my bones look like and also did bone density..so I will get results from them later.

If you ever get discouraged with your own physical welfare though, go spend a day at a Veteran's facility and you will go home willing to deal with your aches or pains and count your blessings..I did and will recall that each day I feel down or pain. I am sooooooo blessed!!


Edited by: LINDAF49 at: 4/2/2013 (12:46)
Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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BELLELUVSXMAS's Photo BELLELUVSXMAS Posts: 2,558
4/1/13 5:59 P

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Linda: thank you but I'm learning some things I do not have control over. This situation with my son is one of them. I spent years homeschooling him for him to fight me every step of the way. Suddenly at 19 he sees what I was trying to say all along. Now the situation with him...I have no clue but he finally decided to take legal action to see his child versus relying on the mother and maternal grandmother's good feelings that day. He says he's taking a break from the relationship but I need a clear definition of that one. Life gives us lemons....I just keep making lemon bars.

The thing I keep praying about is how God wants or what I am to do to start this ministry. Everyone I talk to and everywhere I go says it's a huge need...even today at the Prosecutor's office but figuring out how to get in the door so to speak has been our problem.

Blood pressure is up again we expected it with all that is going on.

Hugs (gently)
Belle

Philippians 4:13 "I can do all things through Christ Jesus who strengthens me."


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4/1/13 9:00 A

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Good morning to my Christian Fibro-Friends.
Welcome to the group, Michelle. You will find a great amount of support and information here.

Gentle hugs,
Dotti
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"Vitality shows in not only the ability to persist, but in the ability to start over." ~ F. Scott Fitzgerald


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LINDAF49's Photo LINDAF49 SparkPoints: (59,131)
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3/31/13 11:39 P

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Michelle, I have good days that are carefully paced and continual efforts with supplements, diet and enough exercise but not overdoing. I would not call it remission, but control of symptoms. The least bit of "too much" effort or stress or exercise or sugar or heat or cold or most anything...and I pay for it for 1-3 days ...no I would not call that remission.

Sarah, praying you through your next week of travel and visits with the Boys and their each troublesome situations. So thankful you have your little bundles of Yorkie joy but they do add to the work and stress in a way. Praying specifically that the med routine will go smoothly and correctly this month. Hugs!

Belle - praying for your near constant pain and stresses - wishing you could have a chance to catch your breath and get ahead of the pressures on you...I hoped that the end of classes would bring relief, but seems like they just keep building.

I am so blesses with my retirement and contentment there-of that bloomed this winter...now this flurry of Dr appointments is a hassle but trusting that eventually they will result in better health and I know the weight loss battle WHEN won will bring much better health. So I press on...going to the big city tomorrow ...see you-all Tues Morning Lord willing.

Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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SARAHTAIT's Photo SARAHTAIT Posts: 26,229
3/31/13 2:38 P

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OK I admit it: I forgot what life with a new puppy is like...and its only been 1 1/2 years since my Lily was a pup. I cleaned up the house yesterday and the little girl was under my feet all day. She is very needy and wants me to hold her constantly. The bad news is that I tend to want to sit and hold her all day every day and nothing gets done.

I am leaving tomorrow to go visit my eldest son who lost his job as an air traffic controller. It breaks my heart because they just bought a new house up there. Anyway home Thursday...wash and water plants, repack and off to visit youngest son and granddaughter for the weekend...Fri, Sat and Sun. Then home. Yes I am pushing it...but I have to..I have cancelled on my eldest son twice and my grandson is growing up without me.
Please pray the pain and fatigue behave.

Back to the issue with getting my meds for those of you who remember that mess. I called last week to refill my meds....the office was closed Fri-Sun so I have to try to get them tomorrow. I hate the huge hassle that goes with getting my meds...some times they are not ready..some times the nurse argues with me...sometimes they just are clueless. It is so frustrating. I have to get written prescriptions every month for my pain meds. The go to the pharmacy and all...but it is getting the scripts that is so hard.

Hope you all had a blessed and Happy Easter.

Hugs,
Sarah

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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BELLELUVSXMAS's Photo BELLELUVSXMAS Posts: 2,558
3/31/13 11:02 A

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Have a Blessed Easter!

Belle

Philippians 4:13 "I can do all things through Christ Jesus who strengthens me."


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BELLELUVSXMAS's Photo BELLELUVSXMAS Posts: 2,558
3/30/13 11:47 P

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I have been diagnosed since 1997 and personally have never seen "remission" I have found days that are good and days that are bad. I'm not sure I would agree with a book that says you can go into "remission" from fibro. That is me personally. Add my mother was diagnosed in 1995 and never has seen "remission". The emotional roller coaster that fibromyalgia gives is one of the most difficult things to first understand and then second manage. Depression is one of those areas.

I will not rule out it can happen. Chat with us here. Check in daily. We try and share what has worked and what has not for us...hoping one day to experience what I term as a "free day"

Belle

Philippians 4:13 "I can do all things through Christ Jesus who strengthens me."


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MICHELLEMATT98's Photo MICHELLEMATT98 Posts: 1,423
3/30/13 8:50 P

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I just wanted to stop in and introduce myself. I was just recently diagnosed with fibro. in September. It was a long hall to get the diagnosis. My biggest thing is fatigue and the depression. I have been dealing with that for about 2years now it just doesn't seem to get better. The pain started last and that can be mild to serve. I'm reading a book called the Fibromyalgia solution. This book clams that you can recover from fibro. But much of the research I read says otherwise.

I was wondering have any of you went into remission for a long time or does it not get better. Michelle

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BELLELUVSXMAS's Photo BELLELUVSXMAS Posts: 2,558
3/30/13 12:50 P

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I spent a lot of time reading and playing the Wii with the kids this past week. Also a situation that's been ongoing has worsened My young 19 year old son needs massive prayer. He's caught in a situation that youth doesn't give him the wisdom he needs and he won't listen to those who has the wisdom. As a parent I am now a back seat driver as he is an adult to a degree and the decisions are not mine to make.

Preparing what we can today for Easter........

Philippians 4:13 "I can do all things through Christ Jesus who strengthens me."


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LINDAF49's Photo LINDAF49 SparkPoints: (59,131)
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3/29/13 4:33 P

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Gentle hugs for painful days and those with heavy hearts ...Fibro is not kind to us but we know who makes us strong...blessings on the GOOD Friday

Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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3/28/13 5:32 P

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Quiet team ...
Belle, stick to what is good for you to do ...glad you are taking care of you emotionally and physically.
I feel quiet too...going to take a short nap then get a little something done.

God bless you this Holy week -
emoticon Up from the grave He Arose... emoticon

Edited by: LINDAF49 at: 3/28/2013 (17:32)
Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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BELLELUVSXMAS's Photo BELLELUVSXMAS Posts: 2,558
3/25/13 9:28 P

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This week I'm doing little so I can enjoy the Easter holiday. I discussed it with my parents that even thought g'mas house is not complete this week I simply am not available. 2 reasons for this...the first is because I need time to clear my head and be ready for next wave of memories and the second we got 7 inches of snow and I don't want to go out in the cold. Not sure I made a hit but she did agree.

Belle

Philippians 4:13 "I can do all things through Christ Jesus who strengthens me."


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3/25/13 3:47 P

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Jeannie - praying with you for your family gathering - praying that there be precious moments of sharing Christ's love with them and that they would feel a hunger in their lives for His Abundant life.

Sarah - anxious to hear how the weekend went with family and son;s issues are hitting you this week - lots of prayers and trusting the Father to show you the way to walk through each situation.

Belle how are you doing - praying it was a positive weekend for you

Fibro is such a strange thing - I had such a good time yesterday all day and felt I was restful but the good things in life stress our weird bodies too and today I can hardly put one foot in front of the other. Need a long nap!!!

Edited by: LINDAF49 at: 3/25/2013 (15:48)
Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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MADAMEJEANNE's Photo MADAMEJEANNE SparkPoints: (12,655)
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3/25/13 2:35 P

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Sarah I will be praying for your son and custody and your other son's job situation. Pray for me that I will have good sleep and strength as I prepare for a family gathering. My biggest request is that the unsaved of our family will see Jesus in those of us who are saved and think about the Savior.

Matthew 11:28 Come unto me all ye that are heavy laden and I will give you rest unto your soul.


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3/23/13 9:16 P

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Hello everyone,

Just stopping in to wave at you all again. Belle, it is good to see you still here. Sarah, I'm so sad about you losing your dog. I'm just putting one foot in front of the other.

Gentle hugs,
Dotti
emoticon

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Smoke-Free one day at a time since 02/09/08
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"Vitality shows in not only the ability to persist, but in the ability to start over." ~ F. Scott Fitzgerald


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3/23/13 5:24 P

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Belle, I pray you are taking good care of you and dealing with the emotions as well as the physical efforts in clearing Gma's home - step by step and be sure you are eating well and Drinking LOTS of water when working at the stressful stuff. I literally set a timer for half hours when we cleared mama's house...the timer range and we all grabbed a cup of tea or whatever and sat for a few minutes - good times to process thoughts and feelings too.

Sarah T Praying for your son and situation. I know you have been trying to brace yourself for this - step by step it will work out. Hope you and Tiny Willow are doing OK through your busy weekend of the wedding...Hugs and prayers

Sarah Suncraver - how are you doing far from your southern home? These cold mornings here have made me think of you. Keep us in the loop of how you are for real...we care.

This is a routine weekend for us - work a little, play a little ...Retirement is so strange that way but my house is showing that i am not keeping up on cleaning etc...will have to develop a routine for keeping it up. Enough just sitting and not doing much! Thankful for the sunny days and really in better pain control than most of the winter was. Gradually beginning to be able to do a little more exercise by really careful pacing.


Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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BELLELUVSXMAS's Photo BELLELUVSXMAS Posts: 2,558
3/23/13 8:54 A

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Sarah: take time to enjoy the family while in town....enjoy the wedding. We never know what tomorrow brings.

J returned early Friday morning...while I was excited to have him return scared the dickens out of me as he was 12 hours earlier than the expected arrival.

We are expecting a major snow storm sometime between tonight and tomorrow morning. Yes I even looked twice at the calendar to see what month we are in. The size of the storm tells us we won't miss this one.

I'm off to grandmas again for more cleaning out..........

Belle

Philippians 4:13 "I can do all things through Christ Jesus who strengthens me."


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3/22/13 8:12 P

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Congrats, Linda

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SARAHTAIT's Photo SARAHTAIT Posts: 26,229
3/22/13 6:36 P

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Wow Linda...5 pounds is great. It does seem that your blood levels are doing better...hopefully they will keep coming on down. Cholesterol is hard to bring down and slow....I know you can do it tho.

I have relatives here from out of town...my niece is getting married tomorrow...we are all going out to eat tonight. I have been running crazy for a few days now and more to come. My son is flying in today and will be here for the weekend. He has court about custody Tuesday...I will be driving 2 hours to go to court with him.

PLEASE PRAY...my eldest son lost his job as an air traffic controller due to the government cutbacks....now small airports will not have controllers which is VERY dangerous....so when people die I guess they will change things. Anyway...they just bought a house and he needs a job. I think they are going to rent out the house and live with me!

I got a new yorkie puppy I named Willow. She weighs only 1 pound. Photos to come when things slow down for me later.....

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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3/21/13 7:22 P

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This was Dr Day...for those who might not read blogs, I copied part of the report...Dr appointments this morning and good news was: loss of weight on their scales---5# in one month!! ; blood pressure better by the Dr than my home record for the past week; blood sugar still below the pre-diabetic level but showing some insulin resistance so CAREFUL!! Then the hard news was those Cholesterol #s have three months to COME DOWN or I have to go on medication...so guess who has added incentive to get the pounds off!!!

Sarah, the Winter Challenge is a separate team that runs just 8 weeks and the challenge is to lose 5% of your weight which for me is 12 # in that 8 weeks ... There are a lot of details in it but each day I report minutes of exercise which adds to team miles per minute for imaginary travel to different cities each week. Then each week there is another challenge - the first week was for drinking water, second week was for blogging daily, third week was learning to stretch, this week is healthy breakfasts/finding recipes. And then the team sharing and other challenges within the groups... This is the first one I have done and I was afraid of letting down the team at first because of my limitations of exercise but I have grown and encouraged others and have as a result of this finally accepted that chair exercises are a good and valid thing for me to do for my health. Also has encouraged me to really work at LIKING smoothies and trying different kinds...these changes will be long lasting in my efforts toward better health.

Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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3/20/13 10:39 A

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Linda..I am not sure what it is you are doing but it sounds great. I would be interested (after this crazy week) Great to hear from you! I want to hear about some of the things you are doing on the challenge! Is it a team?

I could not sleep at all last night. I got up to the sofa and slept an hour....thank goodness I have some fatigue medication to get me through. I take mom out today and we are getting out nails done for the wedding...actually I am just getting a pedicure...I do my own nails.

Sunshine here today...hope it is as nice as yesterday..it hit 75. Love it!

Hope you all have a great day today...without pain!

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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3/19/13 11:12 P

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Hi girls, I have been kind of out of it the last bit - working hard on the winter weight loss challenge and not getting much other sparking done. Have you-all done one of the 8 week challenges? they requie a lot of effort and time but I think this one is good for me - first time to do it and I wouldn;t want one going all the time but am really learning and seeing some good things for a life change if I will be consistent.

Our weather is cold but the snow is gone so I trust it will warm up sometime. I tried walking outside a few days but too cold and windy and brought pain levels too high. I'll just take my sunshine through the big picture window for a while!

Sarah - you have a huge week ahead of you - praying for strength and patience with mom and joy in the wedding occasion = I hope there will be some good family times through it all.

Bell, keep up your working on the writing and projects - step by step, set a goal and meet it - be encouraged. Hugs for this time when J is gone for family needs - it is good to do these times so no regrets when they are no longer with us. keep up your spirits - i'm praying specially for clear mind and confidence in the right way to proceed with all the details.
Blessings to all who hurt with fibro and are so very tired with fatigue...God understands and cares!



Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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3/19/13 7:18 P

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Poor Belle...it was 75 here today with awesome sunshine. I sat outside 2 hours reading...loved it. You are invited...but let me warn you....it gets so humid here in the summer it is miserable.
I can relate tho gal since I hate cold weather...it makes me so stiff and hurt so much more. It is actually painful for me to be cold.
Don't be so hard on yourself!!!!!!!!!!!!!!!!!!!!!!!!!

I walked my dog 2 miles today and it was a HUGE struggle. I was not motivated and seemed to be out of breath, fatigued and felt yucky. Was glad when I got done. Afterwards I washed and vacuumed out my car and did a bit of housework.

I take my mom out tomorrow to get our nails done and of course eat out which is her favorite thing to do. I am not that fond of it. Strange hunh? I just don't particularly like restaurant food....Red Lobster is good but much else is just blah to me.

Pain is controlled today but fatigue is tough. Hope you all are feeling as well as possible.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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BELLELUVSXMAS's Photo BELLELUVSXMAS Posts: 2,558
3/19/13 4:12 P

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J is out of town this week.........he went to see his great aunt as she's not in good health. Hasn't seen her in years and I am not up for the whirlwind trip he's doing. Other than that the heart scare we had was just that a scare oh and he has to change a few eating habits though. I feel lost without him actually but move forward. I will send you a brochure as soon as it is done.

Today I just can't get warm I actually asked God what happened to the hot flashes lord I'm freezing my hinnie off here. This weather just goes straight through us.

I still need to get more focused on the writing. But I am back to daily devotion reading. I still get angry at myself. No wonder my focus is all off.........(sigh)

Belle

Philippians 4:13 "I can do all things through Christ Jesus who strengthens me."


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3/19/13 11:41 A

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OK guys..it must be going around. I am struggling with deep deep fatigue too. So bad it is hard to get off the sofa and have a life. I have to push myself to move. I have NEVER felt this tired in my entire life and I hate it.
I am praying for you all and know God can get us through this.....

We had a bad storm last night and I had no power. I went to bed early....but didn't sleep all that well. I have to take a ton of meds to sleep...I just can't fall asleep.

We have my nieces wedding Saturday. Company is coming in to town..relatives to attend. I was supposed to take my mom out today but she is not up to it. We need to get her nails done and I will be tied up helping her alot this week.
Anyway since today has been cancelled I am going to sit out in the sunshine. It used to revive my batteries and give me energy...but lately it barely helps...but oh how I love the sun on my skin. Yes it is not good...I have had skin cancer and know the risk..but if I die from it them I die happy and tan.

Belle....i would love to see one of your brochures. I am sure they will be great. I am praying for your success and health. How is J?

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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BELLELUVSXMAS's Photo BELLELUVSXMAS Posts: 2,558
3/17/13 10:18 P

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Nancy: I understand the fatigue. J told me the past 3 mornings I have slept through my alarm that I was using to get up for quiet time and devotional reading. I have had to resort to taking notes either on my phone or on paper when a thought comes in. Then the anger at the entire situation........then I remember something my grandfather told me right before he passed away. When we are at our tiredest is when God works the hardest. I miss my grandfather everyday.

I am working on redefining the strategic plan. For now it's pray I can pull together brochures to send out and receptiveness when I do.

Belle

Philippians 4:13 "I can do all things through Christ Jesus who strengthens me."


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3/17/13 9:33 P

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Sarah,
I have not been doing well. Extremely fatigued. I seem to sleep a lot so am wondering if I have chronic fatigue. I don't think it is depression because the fatigue is a lot like the the fibro, so deep that I just can not physically do anything else.

Wondering if I need a second opinion. Still having a hard time accepting this. It is like everyone was saying earlier, it is an emotionakl roller coaster.
Thanks for asking.

Nancy

SARAHTAIT's Photo SARAHTAIT Posts: 26,229
3/17/13 9:23 P

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Nancy....my wiener dog was a rescue also. I was told a year ago by the vet that she was terminal (liver issue) unless we went the long expensive and difficult road. I chose to let her live as best as she can as long as she was comfortable and happy. She was. She died after having me hold and pet her most of the morning. I had to take my father somewhere and I believe she died right after I left. It was as though she didn't want to die with me there.
Anyway....thanks for caring.....it is difficult!
How are you doing? You have been quiet lately. I hope you are feeling well. This fibro is a tough one to deal with. People that don't ahve it have no idea.

I have not tried the gluten free diet nor the fibro type diet but I do try to follow somewhat what I have read is best for fibro patients.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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3/17/13 9:07 P

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Sarah,
Sorry about you dog. It is hard losing a pet. I lost two dogs within 6 months of each other about 3 years ago. That was hard but they both had cancer and had suffered enough. They were both rescue dogs. Sometimes I wonder if that had anything to do with their cancer.
Belle,
I will pray that you will be able to get this service going. There is such a need for it.
I have a question-Has anyone tried the fibro diet or gluten free diet and did it make any difference?

Nancy

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3/17/13 7:59 P

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Sarah, BIG hugs for the loss of your "big dog" - your wiener dog - I know you have nursed him along and am sad that he is gone but so very thankful you have your Lily Yorkie to help ease your pain and that she is not grieving openly either...It may show more in the next day or two though...talk to her a lot and love on her and get lots of sunshine for both of you..

Belle - you sound like talking through the possibilities are helping you formulate a wonderful and much needed ministry. Yes there is a huge need for the emotional support of those with fibro - especially the younger ones, I think it takes a greater toll on them than it did when I got my Diagnosis at 50...I had lived a full life and over done of course but I was also able to continue in my child care ministry/job for another 10 years by carefully pacing myself and telling the parents the truth. I learned to do so much while sitting and even laying on the padded floor or couch. I was the queen of timers and loving and book reading and teaching children to come to me rather than going to them. And for the families of Alz. ..WOW such a huge need for support teams and hospice worker and knowledge sharing...all together. What can we do to encourage, come along beside what ever - I hope you will keep talking with us about it. Hugs and hi-5s..Go go go...I applaud and honor you and your knowledge and desire to do this along with meeting the emotional needs of the abused and hurting others. Keep talking through is and expand or narrow it to fit your true dreams and feelings and abilities.



Linda F in WA state
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3/17/13 1:58 P

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Thanks Belle for the sympathy.....I knew she was dying yet that didn't really help. But I am glad she is not suffering. Now I watch my yorkie for signs of sadness or loss...but so far she seems fine. She and Daisy were not close...Daisy was old and grumpy.

I hate that for your son.....and my taste of CFS has been horrifying. I HAD NO IDEA. It sucks the life out of you. Maybe your son could qualify for reserves....

It is cloudy here today and not the type of day I wanted....it was supposed to hit 80 today but I do not think that will happen as the air is chilly. I am unable to get any sunshine...and yesterday I was only out for awhile since I had to take care of my dog......
Sunshine recharges my batteries. I am gonna try to go walk today.....but the fatigue has me.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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3/17/13 1:04 P

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Sarah: exactly I think where my head is. I just am so drained lately. But I will take down what you said and yes Chronic Fatigue is just as emotionally draining. My son only 19 was diagnoes recently with CFS. He has been rejected by the military because of it and he lost his dream. He sits in a state of depression and "what is for me now?".

I'm sorry about your dog.........pets are a part of you.

Philippians 4:13 "I can do all things through Christ Jesus who strengthens me."


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3/17/13 12:56 P

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Belle..you could combine the two (fibro and alz.) and include all people struggling with medical conditions. I personally find the stress of dealing with chronic illness incapacitating.....it gets so terrible at times.....even chronic fatigue I have learned is a horror....feeling worthless about ourselves because we can't function as we would like or as others expect.
A Christian ministry for those who struggle is a great need....and you can even include those involved in domestic abuse...why does it have to be one thing. Just having a Christian place where people can find help...find information...find care....even maybe a retreat of some sorts where people with illnesses can go to feel better...both physically and emotionally.
Just some of my thoughts.....
I am praying for you gal..I know how you struggle.


Yesterday my wiener dog died. It was a hard day and today I find myself in a funk not wanting to do anything.....

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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I come asking for prayers. I feel convicted God wants the new ministry that is being started. The possibilities are endless. But I feel we are stagnate and fear of failure has taken over and we sit spinning our wheels. This prayer request is two-fold. 1. We find the right direction soon. and 2. for the past couple of weeks I have found myself truly thinking about emotional healing and what things impact our emotional health. I had originally thought this foundation would be about surviving domestic abuse while that is still a part I believe God is calling me to search every emotional cranny of life. I sit with two areas in my lap that I live with daily fibro and watching my grandmother deteriorate. There are a great many books out there on what fibro is and what it will do to you but zero on the emotional roller coaster it places you and your family on (also for the past week I have dreamt nightly that I am speaking on the emotional path of fibro.) also the second is Alzheimers. I find few books on seeing the illness through the eyes of the family and the emotional pain one suffers when time to clean out the home.

Today I only plan to relax (or try to) and watch the race. I brought a bunch of yarn home from my granmothers house and will use it to make a lap blanket for when she's in her wheelchair.

Belle

Philippians 4:13 "I can do all things through Christ Jesus who strengthens me."


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3/16/13 11:16 P

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My busy Saturday got sidlined with chills, fever and splitting headache - not a happy girl tonight - i have business meeting after church tomorrow and need to be there - bugs GO AWAY!!


Linda F in WA state
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3/15/13 11:19 P

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Sarah: J is J says little that retired seal in him......just helps with the boxes. He went and took a couple things to my grandmother in the nursing home. She didn't even remember him or my father. I find plenty of books about a patient going through ALZ......but the ones who feel the grief are those watching. It's an hour by hour trial if she remembers us or what year she is even in. My son can't stand to go see her any longer. She thinks he's my grandfather who passed away 16 years ago.........it's just hard. As for my sister, well she doesn't go up and help. My mother has deemed she's unable to do to health. Which well is exact opposite what any therapist or dr. is saying. I just bite my tongue and say nothing found it's safer that way. Can't say it's doing good for the blood pressure.... but it's not causing any family fight right now.



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3/15/13 8:25 P

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Belle...you have plenty of reasons to be tired. Let God have your burdens. Take some time for you.....reconnect with God...absorb the Word!

I had a hair appointment today. It is in a town about 24 miles from me. There are lots of different stores there so I hit Burlington Coat Factory....great place to get designer clothes at a great price. I found alight pink and black dress to wear to me niece's wedding. I went to Macy's and found some costume jewelry...light pink necklace and earrings to wear with it. I went to Lowes looking for a comfy lounge chair for me to sit out in the sunshine it. It has been a huge deal drying to find it....people have cushions but no chairs. I finally found a with plastic type and got it and a comfy cushion to put on it.

Anyway..I was out most of the day....I am tired now and need to go to bed kinda early so I can get up and take my dad to the commissary...he wants me to come at 10am....that is early for me to be up and gone....I am not a morning person.

My pain level is moderate....controllable...which is good since it can be horrible. Fatigue is the huge issue lately....I hate it and having to MAKE myself move.

Belle...so sorry for your loss. I know going through all her stuff is hard for you. Hang in there.
How is your sister? How is J?

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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3/15/13 1:43 P

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we've been packing up my grandmother's house....it's emotionally draining me to the point I sit with guilt because I haven't been writing. It's a vicious circle I know but i try each day.

The pain has been quite high again I attribute to the packing we are doing.

I'm just tired lately.

Belle

Philippians 4:13 "I can do all things through Christ Jesus who strengthens me."


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3/13/13 5:35 P

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Well I have been making myself get up and move. Yesterday I cleaned my house...today I walked around the block twice and mowed my back yard. My pain level has been fair...I can tell my body is sore from increased movement.
I am also getting out in the sun for as long as I am able. It used to really help me but is not helping as much with the fatigue this year.
I have always been a long sleeper but this is different...this is total exhaustion where it is hard to even get on the computer or do anything but sit and watch tv. It is terrible.
I am going to keep pushing more and more to get back active again.

My niece is getting married next weekend and I have to be able to help my mom get herself all ready...take her to get her nails done..help her with jewelry and hair, and dressing and take her to the wedding...so I need my strength.

Linda...would love to know some of your smoothie recipes. I make mine with spinach leaves, strawberries, blackberries...sometimes banana or blueberries...etc....add protein powder and ice and yum yum.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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3/12/13 2:42 P

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Praying for each in pain again today - I am thankful for new stretch routines that seem to help ease the pain and the determined eating improvement is showing some results...

Interesting to begin to feel some genuine hunger gurgles in the tummy - not just eating from time schedules of rote or "wants" but from deisre for true nurishment.

Visited with a friend yesterday that shared some smoothie recipes and encouragement - she has been reading book by Furhman on immume system eating ... so i'm going to get out some of my freezer stash of berries and try some things... Have a good and healthy day dear friends ...please get better and be encouraged.

Linda F in WA state
*John 10:10b Jesus came to give me life,
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3/11/13 8:00 P

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Thanks Linda...I am struggling to get to the computer these days....still deep fatigue and not feeling well.....

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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3/10/13 8:03 P

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Gentle encouragement for all to check out other threads in our team ...several new postings form new member and old member with new name ...Needing lots of encouragement in dealing with pain and with colds that hang on and just wanting Spring to come fully into our lives and hearts with joy, health and new-found strength for our life situations.

Our God is an Awesome God and this is His resurrection celebration season so rejoice in Him.

Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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3/9/13 8:23 P

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I was out in the sunshine for over an hour reading and relaxing today. It was great. I hope to repeat tomorrow.
I feel some better but still have a bit of nose issue....fatigue is a bit better...Praise the Lord.

Don't forget to turn your clocks back......

Linda..I enjoyed reading your routine.....sounds great!

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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3/9/13 7:40 P

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emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon
Praying sunshine and spring feelings as well as flowers for each of you.
SarahT especially praying for you to get better...out of the cold and crud and fatigue...One thing I have done in the past when this stuff just drags on and on and on is to write out a plan with alarm clock beside it and "snocker" myself with maximum dose of antihistamine [I like Dimetappe because the Bromo part of it relaxes, the drying part dries up the runny nose a bit and the sleepy part is wonderful], max dose of advil for me and max dose of vitamins and garlic capsules with 16 oz of juice/7-UP mix, have the steamer at the bedside and sleep till alarm rings in 4 hours then do it all again x24 hours
Then I eat a meal of scrambled eggs, and chicken soup and all the fruit I can force myself to eat then shower and then back to bed for another round..
48 hours later I come off all the meds, keep drinking and switch to dry warm air blowing in the bedroom and do nothing but lounge four hours, sleep four hours ...I remember my puppy loving the first 24 hours but restless the second day and ready to run outside while I sat and watched the third day.
Three days later I am well or I go and tell DR Something is not right here - even Fibro cannot be blamed for this and go the antibiotic/yogurt/Kefir route.
I have been so blessed this winter with not a single cold!!! Makes a difference when I am not caring for little people that bring all those lovely bugs with them as they did the 26 years of day care.

I love your idea of sitting in the sunshine if you can get it!

Linda F in WA state
*John 10:10b Jesus came to give me life,
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3/8/13 9:45 P

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Thanks Linda....if I thought there was anything the doctor could do I would go but alas...I just have a stuffy/runny nose...and deep fatigue. I have bouts of chronic fatigue...especially after being active...and I just got through with 2 weeks with my son so that may be why the fatigue....anyway...this nose stuff is the pitts.

I had to go out today tho to buy some groceries as I was out of everything. I came home and my pain level was a 10 so back to the sofa.
I need to clean house but oh well....

I started vitamin C today...that usually helps my colds. I know I have a crappy immune system. I was on biologics for a long while due to RA but now am off them...but they play havoc on immune systems. I also deal with chronic fatigue. I always have been a sleeper which means sleeping average 10 hours or more per night.

We are supposed to have sunshine tomorrow so I want to try to sit out in the yard for awhile. We shall see how I feel.

Hope you are feeling well.....hang in there....

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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3/8/13 2:21 P

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Sarah is it time to go get this checked out??? You have ben down for a long time !
I know we always take longer to rebound that the average person but you gotta get ahead of this immunity thing... Taking all the right supplements? Ever try Lysine to boost the immune?
Lots of citrus fruits? Good pure protein like chicken or turkey breast? scrambled eggs?
Hot soups with onion, garlic and turmeric in 'em?
I know you have puppy loves so you just gotta get better. Hugs from out west. I care.

Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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3/7/13 5:28 P

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OK guys...this is rediculous.....I am still suffering from the head cold....it is not going away. I am so tired of stuffy nose.....and the fatigue is terrible.

I pray you all are feeling well.

Check in and let us know how you are!

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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3/6/13 10:07 P

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So glad you had a good trip Linda. It sounds wonderful. i totally understand what you mean by adjusting your schedule for flexibility. Glad you are home safe and sound.

I still have this cold....It is now day 5 and I am sick and tired of it. It is causing me great fatigue and I am so ready for it to go away. I am resting today...my son left at 1 pm and is now in Little Rock Arkansas for his job. I plan to rest tomorrow unless I wake up feeling better.

Hope you guys are feeling well.....

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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3/6/13 8:37 P

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Home again ...I continue to get lessons in flexibility of schedule and always exciting to see God's hand in things...
Snowy forecasts delayed my leaving home by an hour just to give roads an extra hour to thaw and good drive all the way ...stopped a few times to take some pictures and get out and walk a bit, still made it in 3 hours ... DD called at my last stop and told me her work schedule had gotten changed ...double checked with Dear Aunt that I was to visit for lunch and saw her in the evening plus stayed at her home for the night.
Shopping with DD was fun and then met a niece at Red Robin for lunch with the gluten free menu...they thought it was so fun taking me out to lunch and good for me to see how my daughter handles the extreme Gluten Free requirements she has - we had a real sweet waitress and all went well.
Eye appointment also was wonderful - young lady doctor told me I have very healthy eyes, very little change in Rx, no sign of glaucoma [family history on both sides!], no blood pressure damage or diabetes signs [those often show in eyes before other clinical signs] and no sign of cataract which is surprising for 64 years old. She did encourage leafy greens and when I told her I was having trouble with that with poor teeth she said to put them in smoothies and suggested recipes! It was very cloudy so the dilation was minimal problem for me.
Then to my Aunts...saddened at her physical decline...I must see her more often and be supportive to my cousins in these later years of her and Uncle's life. There was an elliptical machine in my bedroom!! She said to enjoy it and it is a lot fancier than mine so I could write down her settings, do my 15 minutes and re set it for her.
This morning was up early as a farmer's wife, good breakfast and then out the door by 8am as they had Dr appointments today. Went to dollar stores and two Goodwill stores and then headed home by 11:30 ...took three and a half hours driving through hard rain... a little frightened at the fatigue that swept over me but had lots of protein with me, stopped and got a diet Mountain Dew for some caffeine and did fine... Good to be home but so thankful for the feeling of independence, good Dr report, good time with DD and good food plan.

Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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3/5/13 11:42 A

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Thanks so much for the birthday wishes....I had a quiet day at home....watched movies.
This head cold is getting the best of me...I am so tired of it...it seems like I have had it forever.
Today I am still all stuffed up and can hardly hear...or talk.

Dottie..sure have missed you. How are you doing?

No ice here in Georgia..but we have rain today. Ugly out.

Tomorrow it is supposed to start getting spring like here...temps in the 70's finally. I am so so ready to get outdoors some.

belle...so sorry your family is giving you issues....hang tough...God will see you through.

Hope you all are staying warm and pain free....lets pray for warmer weather.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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3/4/13 7:28 P

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Dottie!!!!!!!!!!!!!! nice to see you.

Sarah: Happy Birthday dear. I hope it was a blessed one.

I suddenly realized it was March. Not sure how I missed the beginning but I did. We this week start to clean out my grandmother's house. Pray for patience and endurance. There are many issues with this situation the first that my mother is not a fan of Jay and I refuse to help without him. He's my lifter and he carries the heavy stuff for me. Second, I see things very differently from my family. I will have to hold and bite my tongue a lot and remember they too are God's children.

Salmon fillets? Ohhhhh we defrost ours; spray a casserole dish then lay thin lemon slices on top of each fillet sprinkled with white pepper bake til flakey. Serve on a bed of wild rice with grilled asparagus.

We are in the middle of another ice storm.

Hugs Belle

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3/3/13 8:37 P

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Hi emoticon

It's me, the disappearing Dotti, just stopping by to wish Sarah a HAPPY BIRTHDAY. I see that you haven't been feeling well and am sorry to hear that. Glad to see that you were able to spend time with your precious family, though and I hope you were able to get some good rest after getting home.

Lots of love and gentle hugs to all,
Dotti
emoticon

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3/3/13 8:32 P

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Sarah, any chance you son could get the RedLobster as a take out and bring it to the house?

I pray your Birthday will be a blessed day . of improveing health, joy and thankfulness in your new home and all.

It is time for you to get better! Gentle hugs, lots of hot lemonade and hot steamy shower for the sinuses, followed by some iced orange juice mixed with 7-up ... Rest and positive thinking. Rest and a good movie....Hot chicken soup and Rest and a good book? Iced Cranberty juice with dash of Fresca ... Rest and scrapbook of precious pictures...
I just want you to fell better for your own special day of the year. Love and more prayers.

Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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3/3/13 3:32 P

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I have only ever made salmon patties...but your way sounds great..I will try it.

I don't cook much...its no fun to cook for one.....

I am still sick...terrible sinus issues....almost lost my voice and exhaustion....

We leave today..drop off granddaughter at 6 then 2 hour ride home....I am praying I feel better since tomorrow is my birthday.....I think I want to stay home and rest instead of going to Red Lobster as previously planned....

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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3/2/13 6:21 P

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I don;t cook anything exotic ...simple fare and simple methods.
The salmon comes individual from frozen section at store
I thaw them in fridge
Spray pyrec baking dish with olive oil
put in fillets and spray again
sprinkle with lemon pepper
cover with foil and enjoy!!!'
Usually serve with a little mayo and dill reslish mixed in to make my own tartar sauce and favorite meal is to have a side of mashed potatoes and one of petite frozen peas. Really fancy we get Lemon aide in iced stemmed glasses and small lemon or lime sherbert for desert.

Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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3/2/13 4:16 P

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Linda..I really related to you when you said you didn't want your daughter to see how badly you hurt...I often hide my pain from my family...I don't want to upset them or have them grow tired of me complaining so I try to hide how badly I hurt.
How are you fixing the salmon fillets? Sound really good.
When my pain is unbearable I take muscle relaxers...hit the tub for a warm soak and then they relax me enough to conk out for awhile. I sometimes feel better when I wake up. I also have a tens unit if my pain is from my back and I need to be active/awake. I sit on the heating pad...and try to distract myself....anything and everything to stop the pain.

We have my granddaughter...I am at Monkey Joes..a crazy place with kids running everywhere...but she is having fun. I am still stuffed up and feel yucky...but doing my best to enjoy our time.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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LINDAF49's Photo LINDAF49 SparkPoints: (59,131)
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3/1/13 8:02 P

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5pm our time and I am finally starting to feel almost human ... plannig a salmon fillet dinner and early to bed again ..DD is visiting this weekend and I don't want her to see me hurting too bad ... plus I want to play and talk and talk and play...haha
will keep the closk set for liquids and meds for another 24 hours though - brain is still really foggy but DH says my speach is clearing so htere is hope for this tunnel!

So tell me, what do you do when your pain goes "over the top of the scale of 1-10??? I need some input besides don't let it get that bad to start with...I wish!

Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


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SARAHTAIT's Photo SARAHTAIT Posts: 26,229
3/1/13 1:21 P

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Wow a new month.

I am headed out of town to visit granddaughter....please pray all goes well. My head feels terrible....so runny and sinus pain.

Linda..prayers for you to feel better!


"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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