Hi, I'm new to the team. wondering if this team still has active spark people since the posts are not so recent. I have ankylosing spondylitis and my husband has depression, and both of these things make it harder to lose weight or even maintain weight lost.
The most challenging part of A.S. to me is the ups and downs of it all. Okay, maybe just the downs, lol. But seriously, when I feel like it's heading toward remission and then it suddenly changes directions... that's the worst part.... that's just plain depressing. It's like handing a kid an ice cream cone and then waiting til just before it reaches their mouth before grabbing it back. I guess what I'm trying to say is that more than anything I hate the false hope.
I can deal with the fact that sometimes my mobility is no-bility, and I seem to deal with the pain when I need to, but I sure wish my AS could give me some sort of schedule of events. Like, I'm planning a flare up to start early April, within a month you'll no longer be able to work.. or, I'll be especially aggressive next fall so cancel that trip and buy a wheel chair.
Sometimes it really does feel like there is a persona attached to AS. On my worst days I find myself saying, stop attacking me! It's almost like maybe it hurts me more when it's in a bad mood or having a bad day. LOL maybe this is just me wishing there was some explanation to why and when it changes it's course.
Anyway, like I haven't rambled long enough, my AS seems to be "tired" lately, so I have been moving a little better, not great, but better than before. I don't know how long it's gonna go like this, but I plan use this time to lose the weight again, maybe even more weight than before. That would sure please my rheumatologist.
So, whose with me? Anyone there???
I'm on my way :-)
| Pounds lost: 29.4