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MICHELLELEA77 Posts: 32
9/12/12 9:53 P

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i dont think the vitamin D necessarily 'cures' IBS, but i think it has an impact on a lot of things in the body. when one thing is out of wack, it affects us. and those of us with IBS, i think we get those effects in our guts :(



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EJEANNIE68's Photo EJEANNIE68 Posts: 21
9/12/12 9:17 P

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Maybe you just need a different dose. I have been taking it for some time now I had went off it for awhile but had to get back on it. I only take it once a day but we found out in May my 17 y/o daughter has IBS and she is taking it 3 times a day. It works well for me I haven't had to take immodium in a long time. My daughter has some bad days still but way better than it was. I didn't know that vitamin D had anything to do with IBS but last year my dr tested mine and it was less than 10, I now have to take 50,000 once a week.

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1/21/2013 170-been stuck there for awhile.


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MICHELLELEA77 Posts: 32
9/10/12 4:46 P

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Vitamin D makes such a difference. if i skip a day, i'm so tired i can barely stay awake, miss more than 2-3 days, and i'll have an IBS attack.

i kind of wonder if it has something to do with vitamin D helpin calcium uptake. calcium helps relax smooth muscles (ie our poor tummies!) and i used to take calcium, and that always helped. i still do on occassion, but since you cant take it within 2-3 hours of other meds, i tend to forget it :/



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9/10/12 4:35 P

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Amazing! Last time I had bloodwork my D was low but the doctor didn't suggest a supplement. I'll run all this by them. There's 3 drs. taking care of me! Thanks!

MICHELLELEA77 Posts: 32
9/10/12 2:14 P

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i've taken dycyclomine as needed for years.. however, i use it to avoid the cramps and D that come with being anxious/nervous, and i dont take it all the time. so when i need it, it works.

i used to also take immodium at least once a week (that would keep me 'normal' for most of the week)

but honestly, the only thing that's made me feel normal is vitamin D and a low dose of elavil. my doc tested me for Vitamin D, and i was crazy low. so i started supplements for those. she also put me on a super low dose of elavil (25mg) a day. Now normally Elavil is an antidepressant - but it's prescribed in much higher doses. lower doses are used for pain maintenance, like mine. What i've found is it took the edge off my anxiety - which always led to an attach, and it has a C side effect. i'm not nervous anymore to go out, and i can finally be a little more spontaneous. it's honestly like 'magic'. i've been on both for about 2 years, and i hope it lasts. talk to your doctor, see what they think. it honestly cant hurt to try - i suffered for 20 years and was ready to try anything!! how do i know both are working? if i miss either one a few days in a row, i feel it.



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9/6/12 10:48 A

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I'm happy that you are no longer suffering!!! My GI put me on 20 mg. as you already know, then he wanted to take 10 mg. back. I told him that it had only been a month and talked him into letting me have the 20 mg. You are on the maximum dose. That's what the pharmacist said. Well, continued good health!

MISSLORI5's Photo MISSLORI5 Posts: 2,580
9/5/12 9:50 P

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I agree that having a specialist, a GI doctor helps! My family practice doctor realized he was a bit out of his league with me when I was in so much pain he couldn't help me. My GI had a colonoscopy done, a very falsely feared procedure, and he was able to get a better idea of what was happening with me. It was through him that I became more familiar with what to eat and as well as the proper dosage and meds. to use . I, too, am on dycyclomunine, but a little bit larger dosage, 40 mgs. That keeps my spasms under control during an attack, which fortunately happens seldomly nowadays! I hope you are able to keep searching for help, this can be kept under control, but sometimes it takes a lot of work to get there! emoticon

"I can do all things through Christ who strengthens me" Phillipians 4:13 Pacific time zone


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9/4/12 11:19 A

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This is so true but there are probably more people looking on a website first. I just wanted to add to the info the GI gave me.I also want other people to know that the tests are not as scary as you think. Really!!

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9/3/12 9:22 P

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Yes, the colonoscopy is the best tool to diagnose. The doctor that diagnosed my IBS is a gastroenterologist. Seeing a specialist is what should be done before looking at websites.

Edited by: LINDA! at: 9/3/2012 (21:36)
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9/3/12 5:05 P

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thank you

SUZIEBOO Posts: 86
9/3/12 4:18 P

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yea that's strange, you would think they would tell you to watch your diet and "journal" what you can eat and what seems to bother you.
I actually don't have a GI doc. I just know what to stay away from. It's hard cos I really like different flavored coffees and I know they bother me but sometimes I'll just "bite the bullet"
I hope yours gets better! I have been using soluble fiber before meals and avoiding drinks with a fizz. seems to help alot.
Have you ever checked out Heathers IBS website?it's a good one!
Sue

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9/3/12 3:08 P

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Yeah, he's my GI. He ordered a colonoscopy before he told me I had IBS. I have more D than C. But, I told him I didn't want to live my life chained to a toilet. He told me the meds wouldn't make me perfect and never mentioned diet. Weird.

SUZIEBOO Posts: 86
9/3/12 12:02 P

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Iam guessing that is a perscriptioin drug for D? What kind of tests has he done so far?
Iam going to my GYN next month and Iam asking her what I can do. I think special docs know more than the fam. doc. obviously....
I guess all we can do is keep track of our own diet and see what triggers ourselves.
Sue

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9/3/12 10:24 A

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I've been taking 20 mg. of dycyclomine for a few months and still have to take immodium every day. I have a doctors appointment Thursday and he keeps me tested and does all things necessary. I don't or can't eat right. I'm hoping someone out there has an idea I can use.

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