That is awful and sorry about all the problems you have been through. Intestinal problems are no fun to deal with, to say the least!
I saw this testimonial the other day about vitamin D3 helping one Crohn's suffer greatly. If you have not already, might be an idea to try. Your doctor should be able to help with testing. I know for me when I began supplementing with D3, taking 6000ius a day to reach a testing level between 60 to 70ng/ml, my gut problems all but stopped. The grumpy gut acts up from time to time - today was a bad day - but overall I'm so much healthier than I used to be.
"After I came out from hospital, I threw away the 6-mp and just stayed on the Vitamin D and weaned myself off the prednisolone over the following 8 weeks. To my surprise, I noticed that my Crohnís was starting to disappear and my bowels were coming back to normal. My energy levels were increasing and I was less tired. I noticed that my skinís legions were clearing up also. After approximately 6 months on vitamin D at 3000 IU per day my Crohnís had completely disappeared and the best thing of all for the first time in 10 years I had normal health.
I even surprised my gastrologist who was skeptical at first but after examining me and reviewing the blood tests he realized I had no signs at all of Crohnís disease, I could see his amazement in his eyes and I told him about the Vitamin D. He told me not to come back unless I had a relapse. So far, so good. Itís been almost 12 months and still no signs of Crohnís disease. I thank vitamin D."
I have had Crohns for 26 years. I have had 2 major surgeries. I have had 12 inches of my intestines removed and 1/3 of my colon. I had illestomy for 6 months and then they reconnected me back and removed the bag. I was glade when they removed the ostomy bag. I am on 8 pentasa a day. I have my good days and bad days. Seems like know one really understands that don't have this condition and they think you can do the impossible, and like magic it will go away. It makes me angry to have to fight with this,plus weight problems and being a diabetic also. I had to have my kidney removed in 2007 it was cancer. two years after having the 2 major surgeries for the Crohns. I really get depressed,and I get tired and have a lack of energy that keeps me from doing all the things that I want to do. It will be good to talk with people that share the same disease.
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