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PRINCESSALLIE's Photo PRINCESSALLIE Posts: 111
7/29/11 12:39 P

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I'm so grateful for all of the support I find in communities like this SparkTeam. As much as people in my life are sympathetic to the conditions, I don't find the kind of empathy that I need and find here with those who also deal with IBS. emoticon to all and I am thinking of all of you!

-Allie

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STITCHINGNAN's Photo STITCHINGNAN Posts: 10,793
7/29/11 6:33 A

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SALLIE
I am sure most of us can relate to your problem . Its a one day thing with me usually after 2 days lf bloatinag, discomfort and C. I call it 2nd stage iBS day when I can't go far from a bathroom Today is such a day!
I am reluntant to take Immodium as it does stop d but causes c and it starts the cylcle all over again.
It rules our lives I agree Iam a lot older than you I didnt suffer with it when I was young ,that must be very distressing. You may have a trigger that sets it off if only you can trace what that is. Iam becoming more sure with me its stress related not food though certain foods also set it off. Warm Wishes Irene emoticon

Irene in Nottinghamshire UK
LTUX1234's Photo LTUX1234 SparkPoints: (1,323)
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7/28/11 2:44 P

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I'm sorry you are going through all this! I think we can all relate, even if just a little. I was there just recently...overwhelmed, frustrated, in pain, exhausted and just DONE wanting to deal with it all. Try to hang in there. There will be better days ahead. Keep researching, keep plugging away, keep trying EVERYTHING you can. You will find your answers and your relief...even if just for a few days...you will find some relief. And keep, somewhere in the back corners of your mind, there are others out here rooting for you and supporting you and going through this with you. It SUCKS to the ultimate extreme...but we all have no other choice...there is no giving up in this game...so grab our virtual hands and we will all push through this pain together.

GIANT HUGE BEAR emoticon

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7/27/11 4:06 P

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Bless your heart! Have you seen your doctor? Will your doctor let you take some immodium? I think that is the medicine that delays bowel movements. I hope your Colorado friend understands and knows what you are going through. My problems with IBS are bloating and a painful abdomen. I can empathize with you concerning side effects of IBS not going away, even when you use the bathroom. Think positively! That will help you go on through the ordeal. emoticon

AUNTMARYANNE Posts: 106
7/27/11 12:33 P

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I am sorry you are overwhelmed at this point in your life. I know it's hard, I personally know where every public bathroom is in Cincinnati. And some places are such triggers, it is pure torture.

I don't know what to say to help you, except just knowing that you are not alone in this sometimes helps.

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NEELIXNKES's Photo NEELIXNKES Posts: 6,631
7/27/11 9:22 A

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~Deb

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PRINCESSALLIE's Photo PRINCESSALLIE Posts: 111
7/26/11 10:04 P

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oh please stop ruling my life!

I just need to vent a little. It's been that kind of day.. I've heard the term "living from paycheck to paycheck" before. I am 24 years old and living life from bathroom to bathroom. I know how people offer encouraging support, not to let these conditions take over...but they kind of do. If I thought my bathroom usage had a grip on me before, a few months ago I came down with what I labeled "phantom UTIs." this was recently diagnosed as Interstitial Cystitis, as I noted in a recent thread. my desperate needs for bathrooms all the time are now coming from both sides. I have to know where the restroom is every where I go, and if there isn't one, my chances of going there are very very slim. Even careful restroom mapping doesn't always offer the peace of mind I'd like to have when I venture away from my home toilet. The IBS-D and IC can strike suddenly with painful urges. I just...am tired of living this way. It feels like an incomplete way to live. I want to be an adult! I want my IBS and IC and Chronic Fatigue Syndrome and Fibromyalgia to be under control and well managed so I can have a full time job and live on my own and have nights and weekends to do fun things with friends! I tell myself so many times that I can't let these take control...but they do in a lot of ways. and then there's the humiliation of it. Say I go out on a shopping trip or to a movie with a friend, and then how do I explain why I need 5 trips to the bathroom? or I'm babysitting a five year old and his mom wants me to take him to the city to go to a museum or zoo, and then I'm the one who has to make several pit stops? ugh.

I really want to make a weekend trip this fall to Colorado to visit one of my dearest friends from college. We decided it would definitely happen, but then he decided we would definitely go on a hike. I should be so excited about this. I am! He shows me all these pictures of the mountains that are so crazy beautiful and I want to go there so much. But a day in the mountains sans restroom? I feel like that thought is daunting to me, and that daunting thought has a really strong grasp on my life, has limited those things that I want to do down to those things that I can do...I want this to be over :( I want these painful conditions to go away.

Edited by: PRINCESSALLIE at: 7/26/2011 (22:06)
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