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ADAJLIM's Photo ADAJLIM Posts: 4,633
7/9/11 9:15 P

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Hi Allie~
I take Digestive Advantage every morning before I eat anything and watch what I eat but still have bouts of IBS-C almost weekly, although not as bad as before. STRESS is why I had the brain surgery in the first place and you can't get rid of all stress in your life. I had epilepsy since I was 10 years old and it got worse after getting married, having 2 kids and working full time at a job that paid well. Had to give up the job and go on disability but now I get to volunteer my time at church and help out others who need a ride or just someone to talk to about life!!! Life can be good!
HUGS, Janet


Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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PRINCESSALLIE's Photo PRINCESSALLIE Posts: 111
7/9/11 8:09 P

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thank you for your support! I'm learning a lot from the ic-network. I'm so sorry to here about the OB-GYN, AdaJLim! that sounds awful.. I hope you can get some much needed relief soon, and that your IBS can be under control soon. I know exactly how that stress feels! emoticon

Allie

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ADAJLIM's Photo ADAJLIM Posts: 4,633
7/9/11 7:40 P

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PrincessSalie~I can relate to your having the IBS except I have IBS-C most of the time. I actually had a complete hysterectomy because the OB-GYN said it was my fibroids that were causing the IBS-C! Afterwards I found out I had something else entirely and could have another surgery but I said 'NO WAY~I will just live with it!'. Just had brain surgery 7 months before the hysterectomy and vowed to never have another surgery again after finding out about the misdiagnosis on the hysterectomy I developed severe depression after the brain surgery and especially after the hysterectomy~I could have killed the OB-GYN that did that horrible thing to me just to make some money!!!
For me the IBS-C has a lot to do with thje stress levels in my life and learning not to let things overwhelm me is sooooooo hard! But I take it one day at a time. Good luck to you!
emoticon

Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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EASYSPIRIT12 Posts: 28
7/9/11 7:28 P

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Hi Princess,

Sorry to hear about your added diagnosis. There is an Interstitial Cystitis Network that might provide some useful information for you.

www.ic-network.com/patientlinks.html

Hope you feel better soon. ...... emoticon

PRINCESSALLIE's Photo PRINCESSALLIE Posts: 111
7/9/11 6:53 P

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After a cystoscopy with hydrodistention two days ago, it seems I now have the following:
- IBS-D (diagnosed in 2004)
- Fibromyalgia (diagnosed about a year ago)
- Chronic Fatigue Syndrome (diagnosed with Fibromyalgia)
- and now Interstitial Cystitis (newly diagnosed this week!)

I have heard that that these conditions can go together.. www.ncbi.nlm.nih.gov/pubmed/20719340

I just...hope there isn't a fifth I can expect anytime soon! I know we all know how difficult IBS can be to deal with at times, but there seem to be a number of related conditions, that make it that much harder emoticon

anybody else have these too? or other disorders that relate to IBS?

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