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LITTLEFAY Posts: 319
12/30/10 1:19 A

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To Fancyqtr, No, it is not at the abdomen. Mine is for breast. Now I see why you have the extra side effect. I wish your doctor would tell you what to eat and what to avoid. Look into visualization and calming breaths. I need to remind myself of that too.

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FANCYQTR's Photo FANCYQTR Posts: 5,919
12/29/10 11:27 P

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Phyllis does your radiation go through your intestines to reach where they are aiming it? I had ovarian and uterine cancer so it went through my intestines. I went through the Immodium at the rate of 10 a day until they gave me Lomotil, which I went through at 8 a day (maximum allowed). It took a while after that to stop the problem, but I have to be right next to a bathroom if the IBS hits me now. That is why I can't go back to working.

I hope that your radiation doesn't hit you too hard and you will soon have it over with and be better.

Darlene

Darlene


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LITTLEFAY Posts: 319
12/29/10 11:03 P

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To FANCYQTRs, I am in my 2nd week of radiation. Was not aware that this is a side effect. I thought it was the worrying going around in my head when I am not in denial that caused the IBS. Anyway I am in your corner. Imodium is my friend, but know it, too, is expensive. The old fashioned prescription used for colic in babies, Paregoric, works for me if I am really not getting relief from Immodium. Maybe your drugstore can quote you a price and call your Dr. for a call-in prescription. I keep it in my cabinet for 3 years for a small bottle because I only use it as a last resort when I feel I can't leave the house because of urgent trips to the bathroom. Maybe the health food stores have a natural and less expensive item or two. Since you are on the computer, maybe you can find other solutions for this problem. Google or the Free Library are 2 good resources. Good luck to you and me on our health journeys. Phyllis

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FANCYQTR's Photo FANCYQTR Posts: 5,919
12/28/10 7:09 P

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I have had the problems with IBS since I was about 18. At certain times of the month I couldn't eat salads. Then I couldn't eat them at all. Well, I found out that it was the iceberg lettuce I couldn't eat, but could eat leaf lettuce. Now I eat baby spinach and baby Romaine and usually I'm okay. Not yesterday.

Everything got a lot worse after I had radiation therapy. That, of course, gives you the runs in the first place, but it also weakens muscles around there, so I don't have any time to run across the hall when anything hits (or if I'm out somewhere, to run to wherever the restroom is). I have to carry an extra set of clothes with me.

I would like to try the Digestive Advantage if it would help with the D side of IBS, but I never have enough to pay for something like that every month or so. I cannot go get a job and the IBS at the stage it has advanced to is the main reason.

Darlene


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ADAJLIM's Photo ADAJLIM Posts: 4,633
12/28/10 6:49 P

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I would not be able to eat a thing if I didn't take Digestive Advantage every day of my life without a lot of pain and suffering. How I wish I could just watch what I ate and didn't have to take another pill~thank you goodness it is not a prescription but still it costs extra money! Yogurt is my best friend, along with plain tap water!

Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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KCBYTHEC's Photo KCBYTHEC Posts: 1,148
12/28/10 6:46 P

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I'm with all of you. This disease is not nice, but it is doable. It's inconvenient yes. Right now as I write this I'm feeling nauseous, and for the best part of the day I was. I go from constipation, then I try to balance that with moderate fibre, balance is the key but it's finding your own balance. What works for me may not work for you.

Having said all that, I am lactose sensitive but I take an enzyme for that and I'm okay. BUT, I'm trying something new, I have a juicer, you get 95% of your nutrients from fresh juices, veg or fruit, and you can save the pulp to add into other recipes if you need the fibre later. i.e. in a meatloaf, spaghetti sauce. I can't eat whole wheat pasta, nor the new white high fibre pasta, anything with chicory or inulin or soy or it's derivatives. I am an obsessive label reader, the things they add in food are terrible. I have gone as far as only putting free range meat into our diet when we have meat. If I'm having an episode I find a poached egg on toast is good even if nauseous.

Stress is IBS's enemy as others have said. I have read the books, but the real thing I have found is that you have to find your own normal. For stress yoga and meditation are also helpful.

I hope my little rant provides even one iota of relief for you, it's not pretty and it's not nice to say I know where every washroom in the city are.

Just bear in mind that it will take awhile for things to come to an aha moment, and I find beans are best mashed in small amounts, with the more tender skinned beans being the best.

Please keep us posted on your progress and anything new you might find. We can all help each other.

And where else would you find a weight loss program with an IB group eh? Pretty neat I'd say.

Karen emoticon

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ADAJLIM's Photo ADAJLIM Posts: 4,633
12/28/10 5:13 P

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I didn't have a problem with IBS until I had brain surgery! Then it hit me and I notice it has to do a lot with my emotions. If I get upset about something it goes straight to my stomach and I get a stomach ache whereas I might have used to wait until nighttime and have a full blown seizure. Sometimes I wonder which is better?!?

Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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FANCYQTR's Photo FANCYQTR Posts: 5,919
12/28/10 2:29 P

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I have done the food journaling, but it doesn't help me other than for bloating. There I know that the cruciferous vegetables will cause it. And I know that almost all beans cause the runs. But I didn't have that and the times before yesterday I had just regular foods, nothing that would trigger an episode. I am NOT wheat or lactose intolerant (actually, those are usually helpful) and everything I read about IBS it says you MUST give up those foods. Not even the doctors can come up with any reason this is hitting the way it does.

Darlene


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EASYSPIRIT12 Posts: 28
12/28/10 10:11 A

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To anyone that may be newly diagnosed with IBS, I highly recommend Heather Van Vorous' website: www.helpforibs.com and her book "The First Year: IBS".
Learning the differences between soluble and insoluble fiber and keeping a food diary are key since we differ as individuals and there are many other helpful hints offered by Heather. May the New Year bring good health and happiness. emoticon

SUNSHINES3 Posts: 648
12/28/10 8:48 A

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Sorry to hear this IBS is getting you down. I have been battling this IBS for about 30 years now.... One thing I can suggest is defintely do a food journal ...it will help you find your trigger foods. For me I have given up all processed deli meats, salads, fried foods, bread, mayo, ketchup etc. My diet is very bland. That being said I still have the bloating and pain on some days. STRESS is a big factor.... therefore find something you enjoy whether it is swimming, spinning and stick to it. It will help relieve your stress.


On a more positive note I have managed to loose 70 lbs and presently maintaining. I wish you well .


Hope this helps a little .

Sunshine


FANCYQTR's Photo FANCYQTR Posts: 5,919
12/28/10 1:25 A

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I hate this disease. I hate getting sick with no warning all the time. It is so hard to go anywhere or do anything. Does anyone have any suggestions so that a person can make it from one room to the other without getting sick on the way? And after that problem, I now feel like it is going to come up the other way, too.

Darlene


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