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MELBA321's Photo MELBA321 Posts: 66
8/18/13 12:35 P

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Hi. I joined Spark a while back, but I am just now truly using the site. I have had endo for roughly 20 years, I am in my later 30's now and was first diagnosed at age 20. I experienced excruciating pain during my teens (required use of high doses of prescription vicodin along with prescription muscle relaxants and anti-inflammatories), but no doctor "knew" what I had. It was brushed off and prescriptions given for chronic pelvic pain and/or arthritic pain. It wasn't until age 20, approx. 12 hours near death & internal bleeding from a ruptured cyst/emergency surgery that a doctor diagnosed I had endo as well as the ovarian cyst that ruptured. My experience with endo has been interesting, to say the least. LOL I must admit, I have learned to develop a sense of humor and have a much more optimistic view on life with this disease. It definitely teaches you a lot about yourself and others around you actually.

I was happy to see an endo group that is at least a little active here. I am hoping we all can learn and help each other in some way. I am willing to help as much as I can, regardless if it's for motivation, being a listening ear, sharing experience, being an accountability buddy or whatever is needed. Good luck to all & I wish you all great success in whatever your goals may be and many pain free days. =)

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SCARFOS's Photo SCARFOS SparkPoints: (11,552)
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7/5/13 4:50 P

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Hi there,

I was diagnosed with endometriosis in May when I had a laparoscopy. They cauterized the scary but unfortunately that didn't rid me of the pain, although it was no longer an everyday occurrence. I started the endometriosis diet soon after the surgery and noticed a change in pain almost immediately. It is very evident that this diet is really helping, especially when I have "cheat" days and the pain returns almost immediately. I was also put on these new pills recently that are specific for endometriosis, hopefully they will help reduce the pain that comes when I do decided to "cheat" on my diet.

So far the only good thing about being diagnosed and having the surgery is that I am no longer bloated and have lost almost 10 pounds. If anyone else is thinking about changing their diets, I highly recommend it. Recipes and diet for the Endometriosis is a very good book explaining why each item is not allowed to be eaten.

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ARIHOOVER's Photo ARIHOOVER SparkPoints: (855)
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6/19/13 1:50 A

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Hi. Started SparkPeople yesterday. I was diagnosed about 3 years ago when my doc did surgery to remove cysts from my ovaries due to PCOS. She then began removing the scar tissue & what not. My husband & I have been trying to conceive for 4 years now. I hope that by getting healthier & losing the weight it might happen.



Even if you fall on your face, you're still moving forward.
-Victor Kiam


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EUGENA3025's Photo EUGENA3025 SparkPoints: (53)
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5/8/13 12:12 P

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Hello.. I was diagnosed this past year with endo during a lap and had scar tissue taken out, endo taken out, cysts and lesions.. I am on bc pills and pain meds for this and feel very very let down by myself because I have gained so much weight. I need to lose 100 pounds so that I can be the best me for my family, hubby and kiddos. Thanks so much for having me in this group!

Progress not perfection!


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PADDLERCHICK SparkPoints: (556)
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2/3/13 5:21 P

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Hi, I am 24 and was diagnosed with endometriosis last year. I had a laparoscopy and am now taking I3C a natural supplement and have completely overhauled my diet. I already have severe life threatening food allergies, and so cutting other things out was not that big a deal for me though it's been tough. No sugars at all, No grains whatsoever, no dairy, no starch, nuts, soy, lentils and limited fruit. I only have berries from time to time. Limited red meat too. I cut all these foods out a month ago, january first and in 31 days I have shed 10 lbs, with NO exercise!!! Pure inflammation and water retention. Endo pain is almost NUL! I have never felt better and my energy is sky high now! emoticon

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1/5/13 11:11 P

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Hi! I'm Susan, 24, from Texas. So glad I found this group! I was diagnosed with endometriosis in May of 2012. My OBGYN found out through a laproscopic surgery I was having to remove cysts that had resulted from PCOS. As of right now, I think it's under control, but it still sucks just as much. I'm happy to be trying to drop the weight with fellow endometriosers. Ignore that made up word.

:]



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POEDAUGHTER7's Photo POEDAUGHTER7 SparkPoints: (61,989)
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6/11/12 6:12 P

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Wishing people luck. emoticon

Edited by: POEDAUGHTER7 at: 6/12/2012 (16:39)
"You don't drown by falling in the water, only by staying there." pg 129 "The Spark"
See my artwork at www.fh7publishing.com

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POEDAUGHTER7's Photo POEDAUGHTER7 SparkPoints: (61,989)
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6/11/12 5:37 P

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Hi I am a girl from Texas. I was not happy to find out that there is a genetic condition some people are born with called endometriosis. I am studying nursing, and this problem badly lacks research.

Edited by: POEDAUGHTER7 at: 6/12/2012 (16:39)
"You don't drown by falling in the water, only by staying there." pg 129 "The Spark"
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BREWEDBLISSCHIC's Photo BREWEDBLISSCHIC SparkPoints: (601)
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3/21/12 9:41 P

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Hello,

My name is Alishia. I am 41 and have suffered with severe pelvic pain since I got my period when I was 12 years old. I have not ever been tested for endo. However, my new Dr feels that I most likely have it. I am scheduled for a laprascopy (sp?) and to be honest, am afraid of finding out if I do or don't have it. If I do, then it explains a lot and there are therapies... right? If I don't, then what is wrong with me and WHY do I have so much pain? (am I crazy?) All I know is that it has continued to get worse to the point where I pretty much only have one good week a month. I don't know. I need answers and I know they will come soon. It helps to know I am not alone and there are others out there who know the pain, although I would NEVER wish this pain on anyone! I need to lose 100+ lbs, I have a feeling taking off the weight will help...I am gluten and dairy and soy free. Just doing everything I can to be as healthy as I can. I need to get moving. I am finding it so hard to be motivated to exercise when I am in pain...but I know I MUST get moving too.
Thanks so much for listening :-)

~The Brewed Bliss Chic~ www.brewedbliss.com


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CHANGA8's Photo CHANGA8 SparkPoints: (0)
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11/26/11 3:25 A

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Hi, Adela here, Im 28. Diagnosed in 2008, by laparascopy. Tried bc, and depo, they intensified the pain plus made me extra moody. I had a break in 2010, God bless my husband & I with a beutiful boy (22 mo) For pain, I do meditation, exercise and keep my brain busy. I am deadly allergic to pain killers. Im in the process of trying new nutrition plan, that takes out wheat,sugar,red meat ( allowed in small portions only if its grassfed) preservatives, artificials,and tap water. The point is to be as natural as you can. Ive started it a month ago, noticed less pain and more energy. I also tried a natural detox. It works wonders but do not do it right before period(was mentally, physically and spiritually exahusted).I am so happy to find a support group. Keep fighting, ladies! ;-)

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VIOTTI99's Photo VIOTTI99 Posts: 234
7/12/11 9:16 A

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If you do have to go the surgery route, don't worry but don't let people talk you into things either. Most surgeries are laproscopic which is cool, hardly any down time and relatively painless (compared to a laparatomy). I had a laparotomy because I had a watermelon sized fibroid they had to remove. I was in my early 20s and I had to fight to find someone that would do something about it and the endo without a radical hysterectomy. The thing you should know is that it gave me about 4 years of "normal" without hormones. It's starting to get back to the extreme symptoms again but it was nice to be clean and free for a few years. I didn't realize how bad we endo suffers have it until after the surgery. I don't regret it even if I had to go through the long recovery time. I can understand and relate to being a young person in a situation that they always tell you - this shouldn't happen for 20 more years. It can be hard but it makes you a stronger person forsure.

*~*Jess*~*





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PINKLILIES88 Posts: 3
7/10/11 6:32 P

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I am so completely excited that I found this website and this group!!! I have struggled with endo since I was 16 and at 23 I am putting my foot down and saying enough with the weight gain!! My doc said I might gain some weight, but I've gained over 40lbs in the last 2 years. So far, lucky, my doctor has stayed away from surgeries because of how young I am, but I am nervous that I am running out of options... I had started with birth control pills, and I was switching brands every 6-8 months because my body would override the pills. Then I did 3 separate stints with Lupron (6 months on, 6-8 months off with bc pills) and after awhile my body stopped responding to the Lupron as well. About a year ago, my doc decided the next best course of action was a combo of Mirena and bc pills. At first everything was wonky but once by body got use to the IUD things were good-REALLY good, like for the first time ever!! And now, after about 9 months of a pain free (but weight gaining/water retaining) life, I fear its happening again.. hopefully a change in bc pills will do the trick, so fingers crossed!!! Its gotten to the point that I am more afraid of the pain coming back than anything else in life. I am hoping getting into shape will help, or at least keep my mind off of things!

~Rachel



Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love.





Shoot for the moon, but if you happen to miss, you'll still be among the stars. -Les Brown



If you want a good life, you gotta sacrifice more of your soul and body. If you want a extraordinary life you must sacrifice everything just to get a little bit of heaven. -Gregory Rundell, friend and fallen soldier


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AMBOZARTH's Photo AMBOZARTH Posts: 299
6/26/11 9:44 A

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Hello everyone! I am go glad to find this team and other women who suffer with endo. I am 37 years old and I was diagnosed in 2008 and had 2 surgeries that same year. The first to remove a cyst and the 2nd, 10 days later, because I developed a hematoma. At the same time I had the first surgery, my dr also did an ablasion hoping that would help with my symptoms by lightening or even eliminating my periods. It helped for a little while but the pain is getting worse again every month and my periods are getting heavier again. Sex can be very painful at times and so are bowel movements. My dr also recommended BC pills but I'm reluctant to take them because of the link to cervical cancer. I was diagnosed last year with HPV and they found pre-cancerous cells on my cervix. For now, I am just muddling thru like a lot of us are. I see more surgeries in my future though.

Angel :)

"Even if you are on the right track, you'll get run over if you just sit there."


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CHEIZER1979's Photo CHEIZER1979 SparkPoints: (0)
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6/16/11 5:01 P

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Hi Everyone! My name is Charity and I am so glad I found a group like this. I just signed up of SparkPeople and would like to lose 50 pounds by Christmas of this year.

I was diagnosed with endo after my husband I started trying to have another child in 2008. I probably have the same story as most of you...I started having pain during my period that gradually increased until I went to my gyn. Originally, she thought I was releasing too many eggs off of my left ovary and told me that we should just push ahead because a pregnancy would clear up the pain. After another month, the pain got worse and she decided I had a cyst on my ovary instead of releasing too many eggs, so I went on Vicoden so we could keep trying...which led to Extra Strength Vicoden (I didn't even know such a marvelous pill existed) and then Percocet.

My pain got so bad that I was drugged up for the majority of the month and sex reduced me to tears, so my husband and doctor finally convinced me to go in for a DX Laparoscopy, cystectomy on my left ovary, and to have my tubes flushed out. I was a surgical tech and knew my gyn very well, so when I was pretty confident that I would be in and out in an hour or so and back to trying in a few weeks.

When I woke up from surgery I was told that I had severe endo and she had to call in a general surgeon to help her free up all the adhesions because my tubes and ovaries were stuck to my colon, my colon was stuck to my uterus and my uterus was stuck down in my cal de sac. She said she couldn't even get the scope all the way in because of all the adhesions and had to open into a laparotomy. She removed 2 large "chocolate" cysts off of each ovary and another medium cyst off of my left ovary. She said that, had she not known that we wanted another child, she would have done a total hysterectomy and I would have needed a partial bowel resection and temporary colostomy to get it all out.

To add insult to injury...she told me that my tubes were completely shredded from the scar tissue and lesions and she thought it was very unlikely we would be able to conceive another child naturally. I had an HSG the following month and found out my left tube is completely blocked and my right tube is open. When I talked to my doctor about the possibility of trying with the one tube, she said that I had a cyst on the end of my tube, which puts me at a high risk for a tubal pregnancy, and I probably had 3 months to a year before I would need a hysterectomy after I went off my meds.

We have an almost ten year old daughter (who we got pregnant with before we were married and "trying") so I always assumed we would just get pregnant right away. I went through a really depressed period, but we have decided that I will go off my meds at the end of the year and we will try to get pregnant until my pain comes back full force and then I will just have my hysterectomy and move on.

I figure one tube is more than enough if God wants us to have another biological child and if that is not his plan for us, I will accept that. I need to lose 45 pounds to be within a healthy BMI range, so that is my plan. I want to spend the next 12-18 weeks improving my physical, spiritual and mental outlook and I figure it might help with the infertility to drop the weight too.

Well, that is enough blabbing from me. I am looking forward to getting to know everyone better and encouraging each other towards our goals. Have a great week!

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5/25/11 2:40 A

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Hi everyone! I finally decided to fully give sparkspeople a try to help focus on maintaining a more healthy lifestyle. I suffer from endo on an hourly basis it seems and it takes a lot away from being able to enjoy daily activities with my son. I'm glad there is a group for endo! It's really encouraging.

SCW0091's Photo SCW0091 Posts: 94
4/6/11 8:45 P

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Hello everyone!

I am 22 years old and I was diagnosed with Endometriosis when I was 16. I gained 30 pounds in one month from all of the different medications and I am still trying to take that weight off. I'm currently only on Depo, but it seems to be wearing off now, and also I don't want to take it much longer because of the bone loss. I am hoping that losing weight and getting healthy will help reduce the pain, so I guess we will see. I've lost 17 pounds so far... about 55 more to go!

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SWIMSTAR347's Photo SWIMSTAR347 SparkPoints: (0)
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2/14/11 1:30 P

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Hi Mel,
Thank you for posting. Juicing sounds like a great idea. I've got to start eating healthier. I tried no sugar and no gluten for a month and actually lost a lot of weight that I promptly gained back, I had tons more energy as well, but it didn't stop my endo pain so I gave up. looking back the benefit far outweigh the fact that my endo pain was still alive and well so I need to go back to that way of eating. Don't you find that when you give a new way of eating a good couple of weeks then it seems be a lot easier to follow? I'm so sorry you're still in pain. Endo is an awful disease that there is no cure for at this time. It can be very depressing if we let it get us down. it helps to be part of a support group. thanks again for sharing what helps you.

Anna

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TRANSFORM724's Photo TRANSFORM724 Posts: 1,174
2/4/11 6:58 P

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Hello everyone. I have endo and it is really causing problems one week out of a month. On New Years Eve, I decided to begin juicing on the weekends. When my cycle came on, it wasn't as painful as it normally is. I also began eating more fiber which helps me with my movements when on my cycle. I stopped eating wheat bread too and switched to multi-grain. For medicine, I begin taking the pain killers a few days before my cycle. Sadly, I think I am going into menopause now because my cycle is unpredictable. I hope this will help someone with dealing with the pain. It is soooo painful and I can't sit down the first couple of days of my cycle...which means I can't work out! Good luck to everyone.


"It is never too late to be what you might have been"

~George Eliot

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SWIMSTAR347's Photo SWIMSTAR347 SparkPoints: (0)
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1/13/11 3:12 P

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sometimes the only thing that will help is a pain pill and going to sleep.

When I'm at work I try and go for a little walk, I have a yoga mat a friend gave me that I stretch out on for about 15 minutes, I also take my mind of the pain with my ipod.

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MELLYBEANS0919's Photo MELLYBEANS0919 SparkPoints: (23,887)
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1/13/11 12:39 P

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I see this topic doesn't get a lot of activity...

Wondering what you all do to try to help relieve the pain?

For me it is a bath or hot water bottle, use ice, laying in bed curled up...it doesn't make it go away, but helps a bit.

"Don't let perfection be the enemy of good enough!"


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1/7/11 5:45 P

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Hello,

I'm not sure if this is how I start so I apologize if it's not. I'm excited to find this group. I honestly wish I was diagnosed 20 years ago with endo when I was doubled over with pain. Finally after ruling everything else out they did a lap and discovered severe endo. I guess it's good because I am blessed with a healthy 12 year old...she is the swimstar(my username...the ones I wanted were taken.). My doctor decided to conduct nearly a full hysterectomy immediately, everything but my cervix. this was in May of 2009. In 2010 the pain came back. At first I was told it was impossible to have endo again, however sure enough after another lap and removal of my cervix, more endo was found. My last surgery was in August of 10. Now, I'm still struggling. Either with endo or adhesions or both. It's day 18 on my first 1 month Lupron shot and I'm having many side effects that others have posted. I'm not sure what is the worst side effect, however I think the bad news is the pain has not gone away. to those that have taken lupron, how long before it worked? Have any of you taken lupron after a hysterectomy? What do you do to help with the exhaustion? It's so nice to connect. Oh and I'm still trying to work off my baby weight. I can't honestly say if it's from the meds I'm taking or what I put in my mouth, however I did find it interesting that one person posted about craving sweets...that's huge for me. Oh and yes, being sick to my stomach....except I can always eat carbs...

This is getting way too long. Sorry about that.
My real name is Anna.

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BECCAMC18 Posts: 3
12/4/10 10:04 P

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Hi All,

I was diagnosed with endo about a month after I graduated high school. They found it while removing a cyst the size of a grapefruit on my ovary with a dermoid inside it.

I've now had two laproscopies, the one in July 08 and another one in Feb 09. I went on Lupron after that which was awful and didn't do much for the long term. Three months after my last shot I started having really bad pain again.

I don't believe in narcotics and naproxen will eventually eat out your stomach.

I have been on a high dose of Norethindrone since September 09 with very little pain. I am on it year round, so I don't have any pain from changes in hormone level or having a period.

I know I want kids in the future, so an ooectomy is not happening.

This might be one of the most annoying diseases out there because it influences so much. It affects your ability to have kids, socialize, and work.

LAURA_N_TEXAS's Photo LAURA_N_TEXAS Posts: 60
9/10/10 3:46 P

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Hello ladies! I say ladies because I know we don't have any men in here dealing with Endomitriosis :) But if there is a man in here for whatever reason...hello to you too sir! :)

I was diagnosed with endo 6 years ago....when my only child was a year old. I had never had problems before, but I ended up developing the condition and it has been a HUGE struggle ever since. I had a laparoscopy (sp?) and DNC done shortly after being diagnosed. The doc I was going to at the time did not do anything to help slow the growth down after the surgery. I started developing pain again within a year after the surgery. I finally started seeing a specialist and FINALLY had the surgery done again this past November (I couldn't afford it for a few years). He gave me the Lupron Depo shot before I left the hospital from the surgery, which sucked to be honest. I really don't want to go through real menopause. Fake menopause was enough for me for one lifetime. He also had me taking Aygestin 2 times a day. My body didn't respond to any of the medications, and now, less than a year later, the endo is growin back rapidly, I am having pain again, more cysts, and my options are either A. Watch it and see what happens and eventually have the surgery AGAIN! B. TTC - which we are not quite ready for yet (we have only been dating for a short period of time) or C. Have a hysterectomy. YUP! I am 27 years old, only have one child and this crap is bad enough that my doc is willing to do a hysterectomy when I am ready. But, I still want one more child if possible.

So, that's my story and I look forward to being in the group!!

~ Laura ~


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SMOOCHY189 Posts: 2
8/4/10 8:10 P

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Hi everyone! I'm 31 and have been dealing with ovarian cysts and other problems all my life. On June 4th I had my 1st lap for diagnosing Endo. My Dr. said Endo has gotten into the muscles and he couldn't get all of it therefore I will never quit hurting. :( I am currently on Depo shots, pain pills, and several meds that are classified as anti-depressants so weight gain was inevitable. I am at my witts end on everything hoping to lose weight, get healthy and eating foods to regulate hormones that may lessen symptoms. Any tips are greatly appreciated!

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VICKY1965 Posts: 9
4/25/10 2:07 P

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Hi

My name is Vicky and I am from UK have lived with endo since I was a teenager.

Edited by: VICKY1965 at: 4/25/2010 (14:08)
NOTANOTHERYEAR Posts: 4
11/30/09 2:46 A

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Hi,

My name is Jen and I am 27, I am in the process of being diagnosed with Endo now. My Doctor has all but told me its Endo but I will be having my lap early next year. I am surprised by how little information is out there about this disease. I am in pain pretty much every day from what seems to be scar tissue pulling on my ovaries. I am happy to see that there is a group on here for people to find support. I am here to lose weight to give my husband and I a better chance at having a child, and to try and relieve some of my pain through diet

MELLYBEANS0919's Photo MELLYBEANS0919 SparkPoints: (23,887)
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11/21/09 4:14 P

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Hi everyone,
New to this forum. emoticon Always had painful periods and was diagnosed with endo in 2007. Had a lap surgery which did beans. And now am on birth control which I use to skip it and have a period only once every 3 months. I hate it still though.

"Don't let perfection be the enemy of good enough!"


MSILVAREI's Photo MSILVAREI Posts: 3,567
4/8/09 9:01 P

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Hi all
I'm back... starting all over again.. going for another ultra sound and might be starting another round of Lupron....

Can't wait... emoticon

Zinha!

**************HELP*********
I need motivation!!!!!


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MOMMYRE's Photo MOMMYRE Posts: 267
12/30/08 12:43 A

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Hi! I am 30 years old and have had endo since probably 16 years old. I went on birth control for painful frequent periods at 16, but no official diagnosis until 24 when trying to get pg. I am now on Lupron. No major issues with side effects, the pain is manageable lately, so maybe I just don't notice side effects as much. I am having insatiable cravings for sweets. I tried the depot provera shot many years ago rather than birth control and bled quite a bit and gained 65 pounds in 2 months, so Dr. wrote prescription for appetite suppressant for me to try for now.

I am hoping to get well enough for excersise soon, but for now, I am just going to try to control my eating!

"In a completely rational society, the best of us would be teachers and the rest of us would have to settle for something less."

--Lee Iacocca





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MTRITS Posts: 20
12/30/08 12:13 A

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Hi everyone!! My name is Mahi. I was diagnosed with endometriosis at about 17, after having painful periods at about 10 years old. I'm 21 now and I shouldve listened better when my gyno told me it would only get worse with the years. It's now growing on my bladder and pelvic bones, but because of lovely insurance reasons, I can't get any of it removed. So i just deal. Which i'm sure most of us endometriosis survivors do.

I just love hearing that exercise is the best way to beat it, because most days, even if I'm not on my period, the pain is unbearable. I've learned to grin and bear it, but not on a treadmill haha

anyway, I was just wondering if anyone knew of a good exercise regimen if you have endometriosis and don't want to make the pain worse.

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12/11/08 10:03 P

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There is not any cure if you get endo you will always have it. I had a full hysterectomy and 1 ovary removed and 2 laps a few yr. ago and I still once a month get pain. It is no where near what it was but it is still there. I have heard many reasons why you can get this, one was if you had sex while on your period, family history and surgery. I even heard if you used tampons. I am sorry to hear of you pain and wish you luck.

renee.personallifemedia.com/
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GETFITNOWDD's Photo GETFITNOWDD Posts: 233
11/20/08 4:11 P

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I've been battling endometriosis for 2 years now, I was informed (by having a laparoscopy) that I had a lot of scar tissue due to several different procedures done to help my heavy bleeding and I had endometrial cysts on my left ovary and tube so big that they had to be removed as well as my right tube, the Lap. helped for about 1 year I've had to quit work cause of the pain in my back from the endometrial implants and have been off for about 1 1/2 yrs. Several months ago my pain got worse and had an ultrasound done and showed an abnormal mass again on the remaining right ovary, so my surgeon has scheduled me for a hysterectomy and I'm hoping it will help.
I hope my post has helped you, if you need to ask me anything else just send me a message.



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PIPITA-BLU's Photo PIPITA-BLU Posts: 27
10/19/08 10:35 P

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Hello ladies - On October 10th I had outpatient surgery to remove an IUD which had moved out of position. It travelled down, out of my uterus, into my cervix and punctured through the lower wall of my cervix. I'd had some sporadic painful and unusual cramps on and off for a few months and my periods were getting irregular. Because I'd had the IUD for over 4 years and because I'm 41, I wasn't sure if it was the IUD or "the change". My doctor could see the strings during my annual exams and was convinced that this meant everything was okay. I suggested an ultrasound, which showed the IUD in the cervix instead of the uterus.

The surgeon took pictures so that she could see what she was working with. The bottom of my Paragard "T" was poking out through the wall of my cervix. The portion that was still inside my cervix had attached itself to the cervix wall and had tissue growing over it. It must have been there for some time.

If I had gotten pregnant... I shudder even more to think what could have happened.

My post-op visit with the surgeon is later this month. I've been advised to ask about the possibility of scar tissue build-up, which could develop into endometriosis. I'm not familiar with this condition and hope that there is a way to prevent it or treat it.

Any advice? emoticon

All things in moderation... even ice cream and m&m's.


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LGALLAHAIR's Photo LGALLAHAIR Posts: 24
9/15/08 1:21 A

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Hello ladies! My name is Lindsey, I'm 24 years old and have always had painful, heavy periods. I have lost several jobs and almost failed school because of them. When I was 20, I had just moved out on my own 120 miles away from anyone. I had no friends or family, just my coworkers. I had been having severely heavy and abnormally painful *abnormal to me is not being able to function after taking 2 lortabs* periods. One night the bleeding became so heavy that I passed out in my bath tub and when I woke up, my bath water was bright red. I didn't have anyone. I called my neighbor that I worked with and asked him to take me to the hospital. He took me to the ER and they gave me a shot to help me sleep and sent me on my way. After struggling with my doctor for 2 years, I finally switched. When I switched doctors, he immediately wanted to perform a diagnostic laparascopy to see what was going on. Sure enough, I had known forever what it was, he told me it was endometriosis. He had cauterized what he could find off and started me on the Lupron/Depro shot. THAT was the worst mistake of my life. It helped with the pain for a few months, but the other side affects were not worth it. I gained 40 pounds in three months, the condition of my hair completely changed, and I felt like I was in a state of menopause at the age of 22.
Since then I have been off and on different birth controls have gained 15 more pounds and am literally too tired and too exhausted to do anything. I have finally found a bc that is working, sort of. I have to take it straight through with no stop to allow my period to come. I still have horrible cramps at different times of the month and the worst bloating I've ever seen. My pants size goes up 2 sizes when I allow myself to have a period. I get so bloated I look like i'm 9 months pregnant with at least 6 babies. I literally can't function. I have explained to my boss my situation and luckily she understands. She has it too. I'm having so much trouble losing the weight. If I try and exercise my pains are worse. If I have lost weight, my pains are worse. It's so hard to lose weight when you can't even get out of bed some days.
I have been doing some pilates and using my stability ball. Some times it hurts tooo much and others it feels so good. It's so nice to know that there are women out there that know what I'm going through, and unfortunately, feel my pain. I can't wait to get to know you ladies. =-)

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WOLFMOMMA4 Posts: 11
9/1/08 3:11 P

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I hate to say this but i am new and it is so good to know that there are ladies out there that knows what i am going through. My name is Sara i have been diagnosed with Endo for about 9 months now and we are talking about a hysto. I have 4 kids and have been married for 8 years. I cannot wait to get to know you all.

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8/26/08 7:09 A

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I just do what I can without being in way too much pain. I think it's more of a gauge of how much pain you can take.

I have found that if I'm having a "bad" day, I can still walk for around 15-20 minutes (on a treadmill -- much easier to walk away from it and sit down if it gets too bad!), and keep pain as minimal as possible. On a "good" day, 30-45 minutes before the pain will last all day long.

To find this out, I just pushed myself a couple of times. Everyone probably has their own balance.

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BLKROSES55 Posts: 183
8/25/08 11:21 P

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Hello Ladies..

I'm so glad I found this group. It's good to know there are woman who have the same condition trying to do the same thing.. lose weight.

So, just a lil about me: 32, married (newlywed), 2 step kids (no children of my own), and approaching my 4th lapro. surgery- Sept 24. I would like to lose 40+ pounds to be healthy, gain more energy and I'm preparing for trying to get pregnant.

I just started gaining weight the last two years and now I want to get back to where I used to be. I'm watching what I eat and how much I eat but my biggest issue is excercise. I don't do it regularly. Lazyness, pain, fatigue from endo and time are my excuses.

So, now that I'm finally fed up with my size, I'm passionate about getting rid of the weight. My question to everyone is how do you work out if you are constantly in pain?


Success is the sum of small efforts, repeated day in and day out.
Robert Collier


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8/24/08 9:35 A

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I feel your pain Helene! My doc put me on Yaz too...originally due to irregular cycle. The Yaz didn't help my pain -- I'm glad it is helping yours! The pill's horomones and pain will cause a lot of ups & downs -- just lean on someone you love. I know my husband was my best support during the worst of everything...he's a great shoulder, and a wonderful listener!

My rule of thumb is to do as much as I can, then stop. If I can't finish it, then I just can't. I let it take over my whole life for a few months, but up and decided one day that I just wasn't going to let that happen anymore!

Hang in there! Remember that you are not alone!

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8/24/08 9:28 A

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Hi! I am so glad I found this board! I'm hoping to get some advice on overcoming the pain associated with endo.

I was diagnosed with endo almost 2 years ago at the age of 26. I am married, but we were not trying to have children yet at that stage of our lives. We DO want children though, so when the doctor tells me that this may not be possible naturally (I'm personally against artificial reproduction), it's like a death toll to me.

Luckily, at work I have a very understanding (male) boss, so after explaining everything to him, he made sure that I was feeling well before taking on a big job. I'm at IT Tech, so my job does ential heaving lifting, etc. BAD BAD BAD if I was having a lot of pain one day!

I went through the laparascopy, where he did find a nickel-sized piece of endometriosis and removed it. When I woke up from anesthesia, the nurse asked me how I was feeling. I had to tell her that I actually had less pain waking up after surgery than I did before they knocked me out! That was a real eye-opener for me...I really didn't realize just how much pain I was in until it was gone! That's amazing to me that your brain can hand you the strength to carry on without noticing the excrutiating pain. I was great for a few months! No pain -- even during "that time of the month", when it was always at its worst! Surgery was in May 2007...

Then comes August 2007...pain started coming back full force, and then some. It didn't matter what time of the month it was, I was in excrutiating pain at odd intervals through days sometimes, and other times only hours. I had a prescription left for some major painkillers, but was always getting sick on them. Aleve was about the only thing I could take.

So my OB/GYN sent me to a specialist. He gave me an internal ultrasound -- that's really cool! He showed me all of my "womanly" parts, including the endo that houses itself inside the lining of my uterus. So I'm pretty much stuck with the stuff now. He gave me my drug options, and due to budget constraints, etc I chose to skip my sugar pills each month for 6 months to see how it went...

That did not take the pain away completely, but blocking those hormones seemed to help a little!

Then came October 2007...I had a major problem where I started beeding profusely -- like your heaviest day that just shows up out of the blue. I called my specialist immediately and he fit me in. He was unable to see anything when attempting to do another ultrasound except a whole lot of unshed tissue, so he told me to let it run its course and call him when it completed. I did so, and scheduled another ultrasound. His thought was polyps or something of the sort, which would cause a large tissue buildup. He did not find anything abnormal. HOWEVER, during that week that I was letting everything run its course, I felt wonderful -- no registerable pain DURING that time of month! So I went off of the pill.

I still have pain when stressed, or if my body is under stress (when I'm ill, really tired, or feel hunger). I gained about 30 pounds during the whole ordeal from start to finish (pre-diagnosis through last October). I'm trying to get that off, but it is hard when you can't work out due to the pain. Of course, I'm not eating then either, which compounds the problem. I also know when I'm losing weight -- I think the disease is vidictive or something, because if I'm losing any particular week, I will have bad pains again. If I have no pain, then I've gained!

Good luck to everyone in this group!

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MELBA321's Photo MELBA321 Posts: 66
8/11/08 5:09 P

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Hi Everyone,

I am new here to spark and just joined this group. I was so very happy to see there are others here trying to lose weight, and have endo.

I have had endo since I was a teen (going by all the intense pain, signs and need for scrips), but wasn't medically diagnosed until after my 3rd surgery (1998)where I had endo removed from outside of my uterus near my hip and then second removal of endo (and lining, lesions, scar tissue and cysts) was last year. I don't think I'll ever have the endometrial lining removed again...I am still suffering discomfort from that one!

I have tried different forms of BC and none have helped...they've just seemed to bring on worse symptoms. I have also tried the antidepressants for a less narcotic type scrip and those also gave me worse symptoms. So, I'm stuck with trying to work on diet, exercise, herbal supplements (when I remember) and of course, the scripts which I only take when I need them...I try to hack what I can without meds, but 2-7 days out of each month, I have to take the meds in order to do everyday things or just to do the "lay still" and try to focus out the pain while the edge is taken off. My goal is to try to eliminate the need for any meds if possible. Most days it just seems way easier said than done. Hopefully, getting into being more fit and eating healthier will help get me closer to that goal.

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8/10/08 9:35 P

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Hello.. my name is Rachel and I have enjoyed reading all of the advice on this page. I have endo and adenomyosis and polycystic ovaries. Basically I'm a mess, I have constant abdominal pain. My OB/GYN refered me to two different surgeons and still neither thinks surgery is needed yet!!! The only course of treatment they ever try is birth control which never seems to work. Any suggestions on specific birth control that may have helped best?

My Dr did offer Lupron as a next step but I was afraid of it. It sounds from this page there are many women with positive effects from Lupron. I am a RN and am trying to be a compliant patient but I am frustrated. I don't think people realize how this disease changes your life.

I want to lose 40 lbs by Christmas by working out everyday. I always start and then end up in too much pain to continue. I am going to try taking a pain pill in the early morning so I can exercise before work. Anyone interested in joining me for this challenge? I need all the support I can get.

Live the life you have IMAGINED

Fake it until you feel it!!


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SEEKTTYCAT Posts: 4
8/9/08 11:55 P

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Amy~

Thanks for writing back! I haven't completely settled for the surgery! But I'm guessing I'll have this pain for the rest of my life! I have IBS too. I noticed any time I'm stressed or incredibly nervous about something it kicks the IBS and Endo into high gear!! Its so frustrating!!

Thanks again for the info,

Rachel

SEEKTTYCAT Posts: 4
8/9/08 11:52 P

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Amy~

Thanks for writing back! I haven't completely settled for the surgery! But I'm guessing I'll have this pain for the rest of my life! I have IBS too. I noticed any time I'm stressed or incredibly nervous about something it kicks the IBS and Endo into high gear!! Its so frustrating!!

Thanks again for the info,

Rachel

BLESSEDDOCB Posts: 12
8/6/08 6:47 P

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Hi Seekttycat..

Yep.. IBS here too.. from what I understand it is somewhat common in endo patients according to my doc.

Please think twice about the hysterectomy if you have ever had endo in the cul de sac region.. if you have, taking the ovaries, tubes and uterus will not make the endo go away. If you can find a doc who specializes exclusively in treating endo, that is your best bet. Most OBGYNs do not treat endo with permanent removal success.

emoticon Amy

~Amy

Obstacles are those frightful things you see when you take your eyes off the goal.


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SEEKTTYCAT Posts: 4
8/4/08 9:58 P

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Hi, I am also new to this site. I've had endo for 6 years. 3 laparoscopies, one pelvic venogram. I not only have endo, but Varicose veins on the uterus, and IBS. Does anyone else out there have IBS with endo?!?! Its so hard to live every day in pain! My new husband tries to understand, but how can he, when he cant go through the pain!!! I'm thinking hard about going to see my old OB to have a Hysterectomy. Not sure on the spelling?!?! But I'm only 29 years old, and not many dr.s want to do a procedure like this!! Any advice??? Please let me know!!!

BLESSEDDOCB Posts: 12
8/3/08 6:10 P

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Hello ladies,

I just joined SP last week, and I'm so glad I found the endo board. Been dealing with severe stage 4 endo since 1994.. had a laparatomy, 2 myomectomies for uterine fibroids, and 5 laproscopic surgeries, and two 9-month cycles of Depo Lupron shots over the years. I was blessed with my son Aedan who we conceived through IVF. The endo is back worse than ever, and we're saving up for excision surgery with a doc specializing in endometriosis to completely get rid of it. As luck would have it, the good docs don't take health insurance.

I'm glad I have found a place where other women can understand the pain of endometriosis.

Looking forward to learning from all of you.
~Amy



~Amy

Obstacles are those frightful things you see when you take your eyes off the goal.


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NANCITA10's Photo NANCITA10 Posts: 142
6/25/08 8:38 P

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Hello, everyone!! I am new to this team and wanted to introduce myself. I have been dealing with endo for 10 years now. I had laproscopic surgery due to an ovarian cyst on my right ovary and severe internal bleeding. I have lost track of all the birth control I have tried. I went through Lupron 2X's and both times I had headaches/migraines, hot flashes, night sweats, etc... I just had to ride it out. I am glad it was only a few months each time.
The end of December of 07 I started having my period every 2 weeks for about 2 1/2 months. I started on Seasonique in March 08 and am feeling much better. I still have all the lovely cramps, pains, migraines that go with endo, but I am having fewer cycles. It is much better. I am hoping to lose some weight which in turn I know from past experiences will help decrease the pain and other symptoms. It is good to be a part of this group. I hope to learn from others and be able to share with you guys.

Nancita10 emoticon

Happiness is a butterfly, which when pursued is always beyond your grasp, but which, if you will sit down quietly, may alight upon you. Nathaniel Hawthorne

If we did all the things we are capable of, we would literally astound ourselves.
Thomas Edison

Until you make peace with who you are, you'll never be content with what you have.
Doris Mortman

To love oneself is the beginning of a lifelong romance.
Oscar Wilde

Nancy :P


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ORANGEBETHANYME's Photo ORANGEBETHANYME Posts: 183
6/5/08 8:27 A

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Welcome Sunshine!

I hope that you are able to make your goals happen!

~Bethany

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SUNSHINE1215 Posts: 1
6/4/08 2:09 P

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Hey everyone
I created a spark profile around 6 months ago and never really took it seriously, but it's bikini season and once again I'm not ready for it. I was diagnosed with endo last year and i am 18 now. Got of birth control around a year ago and have gained 15 lbs. not proud of it and want to make a change :)

MAROGIRL's Photo MAROGIRL Posts: 424
5/24/08 12:56 P

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hi! im new to this site. i had endo and ended up having a hysterectomy almost 5 years ago [im 34]. i wanted to join this group to support my endo sisters.

1 corinthians 13:13

"never doubt what no one is sure about!!"~willy wonka


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HTHRCARR24's Photo HTHRCARR24 Posts: 805
5/23/08 5:59 P

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Hi I am Heather 25. Was diagnosed with endometrosis 3 years ago after I had my first son. I was told I would never get pregnant again but I proved them wrong. After I had my youngest and then miscarried after him I decided to tie my tubes. I have no insurance right now and it is so bad I can not have intercourse without feeling excruciating pain. I want a hysterectomy.

Besides that I am married to a wonderful man(he was Active Navy now he is reserve and come next month will be active Navy again) we have 2 boys Aden (4 in AUG) and Jaycob 2 1/2

Small baby step goals to begin with so I don't get discouraged again

Sometimes you get knocked down, but you somehow have to get back up again..

small steps at a time

Nothing taste as good as thin feels

goals:

5lbs by Jan 8- Done
10lbs by Feb 8
10lbs by March 8
10lbs by April 8
10lbs by May 8
10 lbs by June 8

If I can do that- that will be 55lbs gone by my sisters wedding in June weight would be 141

10lbs July 8 <


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ORANGEBETHANYME's Photo ORANGEBETHANYME Posts: 183
4/24/08 11:18 P

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HI everyone, I'm Bethany. I have had abdominal pain for about 6 years (when I went off the pill and got married). I had my first lap in October of 2006 and my second in 2007. I just received my third of four scheduled Lupron injections and am STILL having pain when the shots begin to wear off which isn't a good sign for when this course of therapy is over, but I am taking each day as they come. What I have been dealing with lately are terrible migraines as a result of the Lupron. My doctor just changed my meds in hopes of getting the headaches under control, so that's where I am at. I am just so shocked at how many people have endometreosis. When I had abdominal pain as a teen, I was told that it was irritable bowel, constipation and sometimes that it was basically "in my head". Does anyone know when endometreosis became an actual diagnosis?

Well, other than endo, I am married and live in the Chattanooga area. I have two daughters (11 and 4). I was told I would never be able to have children, and although my 11 year old is adopted, God gave me my "miracle baby" in November of 2003. I look forward to getting to know some of you better as we go through this journey together...

~Bethany

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NESSA315's Photo NESSA315 Posts: 70
4/17/08 6:26 P

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Hello all, My name is Nessa I was diagnosed last year in october at the age of 20 I will be 21 in a couple months so I am still reading and trying to find more things about this disease...It does kinda scare me because I have been tryin for a couple years now to concieve and it hasn't happened yet..and I haven't really done any treatments so not really sure what I am in for or how bad my endo is since i don't get my period on a regular basis.

"You have to leave the city of your comfort and go into the wilderness of your intuition. What you'll discover will be wonderful. What you'll discover is yourself."-Alan Alda aka( Hawkeye M*A*S*H 4077th)


"Originality is unexplored territory. You get there by carrying a canoe - you can't take a taxi."-Alan Alda aka( Hawkeye M*A*S*H 4077th)


*Put on your dancin shoes its time for DDR baby*
Shimmy till you can't shimmy no more!


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FIBROBABY82's Photo FIBROBABY82 Posts: 2
4/10/08 2:55 P

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Hey everyone, I want to introduce myself to the group I was 21 when I was diagnosed in 2002 and 6 surgerys later! One of the surgerys was a hysterectomy, I have no ovaries... I have had this diease in my life now for 7 years that I have know about, but I know that I had for way longer then that, cause I had problems for years before I found out what it was. emoticon emoticon

Edited by: FIBROBABY82 at: 4/10/2008 (14:58)
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CHICKYBOO24 Posts: 2
3/19/08 5:53 P

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Hello, just wanted to introduce myself to the group. My name is Candida and I'm 25 years old. I was diagnosed with endo when I was 13 and had 7 surgeries for it, including a total hysterectomy with removal of both ovaries when I was 19.

Because of recurrence many times, I am unable to take HRT (seems like microscopic endo is always lurking) and it seems like the weight just keeps piling on. Hoping to get to know you all during our weight loss.


MRSFIKSHUN's Photo MRSFIKSHUN Posts: 20
3/2/08 2:05 A

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I wish the best for you. I hope your surgery went well. I hope this group has been helpful for you. Ive been out of loop basically since I started my Lupron injections in June? I think it was June. Anyway, good luck and I am praying for you!

--Amy

 
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PAMTIGGER's Photo PAMTIGGER Posts: 23
2/13/08 9:03 A

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Hello my name is Pamela - I'm going to have a hysterectomy in the up coming week with a 6 week recovery afterward - I'm scared but hoping for the best.

Pamela


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MDK.360's Photo MDK.360 Posts: 1,283
2/11/08 3:57 P

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hi :)

Don't Give Up!

Team Leader for Pomeranian Pals
http://teams.sparkpeople.com/pomerania npals.com

Co Leader for Multiple Chemical Sensitivity
http://teams.sparkpeople.com/MultipleC hemicalSensitivity.com


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ANYABELLA's Photo ANYABELLA Posts: 44
2/11/08 3:10 P

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hello there! I just wanted to introduce myself. I'm 25 years old and have been married for almost 3 years. Last Thursday after a second ultrasound my Dr. found several Endometriomas on my ovaries and told me that she strongly suspected I had Endometriosis. She is planning on monitoring my cysts before doing a laparoscopy, but is about 90% sure. At this point I'm still in a state of shock. I've been doing a lot of research on line and realized that I've actually had the symptoms for years. I guess I'm just here for support and insight into my road ahead. Thanks for reading!

Edited by: ANYABELLA at: 2/15/2008 (14:07)
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MCNESBITT's Photo MCNESBITT Posts: 138
2/4/08 11:18 P

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Just wanted say welcome to all the recent new members. Hang in there... endo can be an up and down thing!

Monique

Co-Leader~ Dropping the Weight with Endo
W8Watchers Friends April challenge

It does not matter how slowly you go so long as you do not stop.
Confucius

There are no classes in life for beginners: right away you are always asked to deal with what is most difficult.
Rainer Maria Rilke

Ticker reflects WW meeting weight.


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MDK.360's Photo MDK.360 Posts: 1,283
1/24/08 10:57 A

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Hi,

I am new to the diagnosis of endometryosis though I have had the symptoms for quite some time. I have other ailments I am much more comfortable with having. Does that make sense? Sometimes its hard to tell the two chronic pain disorders apart as the symptoms melt into each other (Fibro and Endo). Fibro is just a lot of pain and memory loss. I am used to that. Endo has scary affects on a womans body you know.

The doctors always told me I was normal for so long and I became so used to the disrupting periods and the pain with intercourse. It never really occurred to me that I needed to figure out what the problem really was.

So Anyways, I am turning over a new leaf and am trying to take as much as a homeopathic route as I can. I am a bit freaked out by all of it because one of my closest friends has to go into surgeries all the time. Pain I can handle. Its the remolding of my female parts (lol funny but not funny) medicines and surgeries that are really freaking me out. Reading the information on a website then seeing your close friend sick and being sick your self are three very different things I have learned this past month.

I look forward to reading the message boards and blogs of some strong women so I can pick up a clue on how to handle this. :)

Mel

Edited by: MDK.360 at: 1/24/2008 (16:47)
Don't Give Up!

Team Leader for Pomeranian Pals
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WITCHEN's Photo WITCHEN Posts: 366
1/22/08 2:35 P

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Welcome to all the new ones.

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MYLUVWYATT's Photo MYLUVWYATT Posts: 1,461
1/18/08 8:56 P

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Hello,
I'm new to this site but most definitely not new to Endo.
My name is Tina, 32 with a 2 yr old son, with hubby for 10 y married for 5.
I've had severe pain since I can remember, found Endo. at 21, had another lap in 2004 & had my son in 05'.
We're hoping to have another child but looks like I'll have to have another lap. done first.
I've been pulled through the ringer, it feels like: multiple bcp pills, 2 doses of lupron, pain meds, muscle relaxers, then finally lap surgeries.
After my son of course I was told oh, endo. should go away, yeah I thought but what was ahead was way different.
Endo. came back with a vengeance & was & is here to stay.
The pain has just gotten worse & worse & with my being overweight, that can't help matters any.
I have a lot to lose & even more so if I don't get healthy & soon.
I need all the help I can get & just despise the thought/s of dieting & exercising.
My friend introduced me to this site & she's on track while I'm having a difficult time beginning.
You all here know how difficult it is having endo. but how does it affect your weight issues?
Have you found anything that helps or what have you found to be successful so far???

TOADYGIRL1's Photo TOADYGIRL1 Posts: 11
1/16/08 1:25 A

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I was diagnosed with endo in college via lap. I had already undergone tests for almost 10 years for my mystery pain that started when I was in 5th grade. I have been told that it was all in my head, that I would never be able to have children, that I should just have a hysterectomy, that I should see a shrink, etc. I have had so many procedures to rule out various things I had almost given up ever being pain free.
When I was in college the pain got so bad I had a specialist that finally listened to me and decided to do a lap and confirm her hunch. She was right, it was endo and she did the laser thing and I did feel better for a short time. She changed my meds and put me on Depo and told me that was my only option other than Lupron. The depo did some horrible things to me but it took another two years before I found a doc that would listen to me and change my meds again. The shot was making my hair fall out, I was gaining weight like there was no tomorrow, it didn’t help keep the pain away, and worst of all I was having totally debilitating migraines several times a week. The doc that finally listened to me was a neurologist I was referred to because my migraine symptoms mimic those of a stroke. He had just happened to be at a symposium the week before where they were discussing the fact that progesterone, while not “supposed to” be able to cause migraines, is in fact causing them with more and more frequency. He put me on a very low dose progesterone only pill and I stayed on it until I got married.
My husband had also been told he would never be able to have children, so when I went off the pill I didn’t expect anything. I cut all sugar and grains from my diet and my pain rapidly diminished. I began losing weight, I felt great, and…I got pregnant. After being told for years that I would never have children it was so miraculous that I thoroughly enjoyed every day of being pregnant, morning sickness and all. The only time I felt pain when pregnant was when my uterus would grow to the point it had to tear through an adhesion. Those days were not pleasant, but they were soon over.
I stayed pain free for about 6 months after she was born and then started having my endo symptoms again, so I went back to eating no grains and no sugar…and I got pregnant again. We now have four children who are all about 18 months apart, I got pregnant each time when I went back on the diet, and stayed pain free for six months after.
My last baby was born two weeks ago, so I am hoping I will stay pain free for at least 6 months again, but this is our last baby. I can’t use pregnancy to stop the pain any more. I am trying to cut out the sugar and grains now to get a running start at this but I am having a hard time getting going.


 
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MCNESBITT's Photo MCNESBITT Posts: 138
1/11/08 1:45 P

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Hi Helene,

I'm going through a time like that myself right now! Everyday after work I've laid in bed with the covers over my head. I can't stay that way too long unfortunately cause everyone seems to need something. The most important thing to remember is to do what you can and to take care of yourself first! Ask any questions you need to here, someone almost always has an answer. Welcome to the team!

~Monique

Co-Leader~ Dropping the Weight with Endo
W8Watchers Friends April challenge

It does not matter how slowly you go so long as you do not stop.
Confucius

There are no classes in life for beginners: right away you are always asked to deal with what is most difficult.
Rainer Maria Rilke

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HELENE43's Photo HELENE43 Posts: 14
1/10/08 11:59 P

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Hi. Don't know how long I will be a subscriber of this forum because I haven't been diagnosed with endo yet, but my ultra-sound shows a thick uterine wall. My gyno prescribed Yaz for me to take for six months because of irregular periods.
I have pain usually everyday which is tolerable to me, with light spotting. Intercourse can become painful at times. But during menustration the pain is horrible. I get sharp pains in my rectum that almost knock me off my feet.
Today wasn't such a good day for me. I didn't do cardio exercise but managed to do moderate housework for about 1 hour. I just didn't feel well. I cried off and on all day.


 
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MCNESBITT's Photo MCNESBITT Posts: 138
1/7/08 10:13 A

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Welcome UphillDreams, Mommmy2TYLER928, and LittleStella!

Edited by: MCNESBITT at: 1/7/2008 (10:23)
Co-Leader~ Dropping the Weight with Endo
W8Watchers Friends April challenge

It does not matter how slowly you go so long as you do not stop.
Confucius

There are no classes in life for beginners: right away you are always asked to deal with what is most difficult.
Rainer Maria Rilke

Ticker reflects WW meeting weight.


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MCNESBITT's Photo MCNESBITT Posts: 138
1/4/08 12:44 P

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Welcome LISAC1026! emoticon

Co-Leader~ Dropping the Weight with Endo
W8Watchers Friends April challenge

It does not matter how slowly you go so long as you do not stop.
Confucius

There are no classes in life for beginners: right away you are always asked to deal with what is most difficult.
Rainer Maria Rilke

Ticker reflects WW meeting weight.


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MCNESBITT's Photo MCNESBITT Posts: 138
1/3/08 12:58 P

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Welcome TNT7895! Welcome to all the other new members that may have been missed!

Co-Leader~ Dropping the Weight with Endo
W8Watchers Friends April challenge

It does not matter how slowly you go so long as you do not stop.
Confucius

There are no classes in life for beginners: right away you are always asked to deal with what is most difficult.
Rainer Maria Rilke

Ticker reflects WW meeting weight.


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CATHYSCHWENNING's Photo CATHYSCHWENNING Posts: 28
11/1/07 2:21 P

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Kelly,

Thank you! The beginning of your story is exactly like me! I have been told over and over by my family doctor, my issues and pains are in my head.
Ummm.. why would a healthy 26 year old make up abdominal pain? Am I that bored?!?!
NO!
So, I am now waiting and waiting for a referal for a gynecologist.
I am in Alberta, wait time is 6-8 weeks!
I am getting married in January. I just want the pain and issues to be gone! Thats all.
I have been suffereing now for over 3 years and have been given higer dosage of estrogen... it shoulda been lowered!

I had a cyst burst at the beginning of October and since then I have had a kidney infection and complete loss of appetite.. I am not losing weight, I am tired and I am constantly vomiting and getting severe migraines. I am very dehydrated and I do drink water more then ever before.
Have I missed something at all? Should I be seeking opinions from doctors in a different city?
You would think a female doctor would listen! Not mine.

Sorry... I needed to vent that out...
That actually felt good!

Cathy

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BRAVEANDCRAZY1's Photo BRAVEANDCRAZY1 SparkPoints: (0)
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11/1/07 2:07 P

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Hi,

I was always a very healthy girl. I was active, I took ballet, I did karate and was very athletic in school. When I was 17 I started on oral contraceptives, I had a lot of problems with them ranging from nausea, vomiting, weight gain, hot flashes to numbing in my left arm. The doctors saw no reasons for these problems and just kept changing the type of medicine I was on.

Over the course of the next year my health got worse. I went from a healthy 110 lbs to 165. I was tired, lethargic, moody. Despite my healthy eating habits and exercise I could not drop the weight. I was bleeding upwards of 17 days a month. I was overcome with incapacitating pain from the cramps. I was in college and missing school. I couldn't function properly. I took myself off the contraceptives.

Doctors had no real solution and I was told to go to Weight Watchers, or get back on the pill.

I was diagnosed with Stage 3 endometriosis by laparoscopy in 2002. After the surgery I kept working out and eating well. I dropped 40 lbs in 4 months, my periods were normal and I felt healthy again. I was married in 2002, and began trying to get pregnant. Six months after the surgery all symptoms returned, I was sick, miserable and heavy. I was again given the option of weight loss, contraception or hormones to help the endo.

I started eating organic and working out even harder I felt better through the month but when I was menstruating I felt horrible. I was missing 7 days or more of work a month. I was told I might not be able to have children naturally and was directed towards a fertility clinic in Ottawa.

In April 2005 I had another surgery to try and get rid of the endo, there was a mistake made and I was told it to hold off on trying to get pregnant for at least 6 months. I began taking a customized amino acid supplements formulated and designed by ISM in Ottawa, Ontario Canada (Immune System Management, [URL=http://www.aminomics.com]www.aminomic
s.com[/URL]), I started to feel better, my energy was up, I was losing fat and gaining muscle, I was able to work all month long, I felt like myself again. In November 2005 I found out I was pregnant!

I kept taking my supplements and working out throughout the pregnancy. I was healthy and happy, the pregnancy was so easy! I had not felt better in years. My son was born by c-section on July 20, 2006 a very healthy 9 lbs 4 oz. He is now 15 + months old, over 28 lbs and an absolute picture of health. I still feel great. I have tons of energy, I lift weights everyday and am still taking my supplements.

I wanted to share this story with other women so that they too might find health like I did. If you have any questions I would be happy to answer them.

I wish all of you health and happiness. This is a disease we can beat!

Kelly


It takes a lot of courage to release the familiar and seemingly secure, to embrace the new. But there is no real security in what is no longer meaningful. There is more security in the adventurous and exciting, for in movement there is life, and in change there is power.


 
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CATHYSCHWENNING's Photo CATHYSCHWENNING Posts: 28
10/17/07 12:55 P

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Hi All!
I am new and just found out last week my chronic pain is endometriosis.

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K3LLYANNE's Photo K3LLYANNE Posts: 480
9/11/07 9:16 P

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~Kelly ~


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K3LLYANNE's Photo K3LLYANNE Posts: 480
9/11/07 9:16 P

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K3LLYANNE's Photo K3LLYANNE Posts: 480
9/11/07 9:15 P

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FITNESS16's Photo FITNESS16 Posts: 360
9/10/07 7:59 P

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My friend is home from her outpatient surgery. She had her freezing done a few days ago and says it was extremely painful! It is the "newest" form of what was mentioned earlier reguarding the burning. My friend is feeling better now and is getting ready for a period. She said that she will have a monthly period for up to six months and each with decrease until there is none. That is all of the info that I have to share and I'm not sold on it myself. If anyone hears or finds out any more info please share.

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K3LLYANNE's Photo K3LLYANNE Posts: 480
9/10/07 3:27 P

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WITCHEN's Photo WITCHEN Posts: 366
9/9/07 4:23 P

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Welcome

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K3LLYANNE's Photo K3LLYANNE Posts: 480
9/3/07 10:58 A

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Keep us in the loop.

~Kelly ~


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FITNESS16's Photo FITNESS16 Posts: 360
9/2/07 9:28 P

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It sounds like the same concept but instead of burning the lining, they freeze it. I don't know much about it other then I have a coworker who is having it done this week. She has never had any diagnosis however she has terrible cramps and heavy bleeding. She is having the freezing done this week. I'll let you know how things go.

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K3LLYANNE's Photo K3LLYANNE Posts: 480
9/2/07 8:56 P

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the burning of tissue...with the procedure I'm thinking they burn the lining of the uterus so that you don't bleed anymore.

~Kelly ~


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FITNESS16's Photo FITNESS16 Posts: 360
9/2/07 8:49 P

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what exactly is cauterized?

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K3LLYANNE's Photo K3LLYANNE Posts: 480
9/2/07 4:07 P

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~Kelly ~


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K3LLYANNE's Photo K3LLYANNE Posts: 480
9/2/07 12:54 A

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I haven't heard of a "freezing" method, but I have heard of "ablation" where the inside of the uterus is cauterized? I don't know if that's the same idea or not?

~Kelly ~


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