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MSMARIAN SparkPoints: (105)
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6/10/12 4:59 P

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I had a total thyroidectomy due to papillary cancer. For about two year prior to the surgery and RAI I was having symptoms that indicated celiacs. My Dr. tested me and said that it was borderline. I eliminated anything that would upset my stomach. After my sugery, RAI, and on Synthroid for a couple of months the celiac symptoms went away and I can eat anything without a problem. When I talked to my Dr. about it he thought that as long as the dose of Synthroid was just right that it may just be correcting the problem.
I hope that helps you somehow. The endocrine system is so complicated! emoticon

ALASKAN's Photo ALASKAN SparkPoints: (37,730)
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6/7/12 11:53 P

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I had my thyroid taken out too, b/c the doctor said I had cancer on it. He took 1/2 out and stayed in the hospital for a few days and back home. His office and said the doctor wanted to take the rest out. Then back home again and that was back in 2005. He keeps changing the dosage on my Levothyroxine every 6 months and blood work every 6 months too. I go back to see him on the 28th of this month. And get the blood work done on the 21st. Sometimes I have to change it again with my PCP.
All that other stuff you mentioned I do not have. Or not yet anyway. What is celiac and the mouse antibody? They take 5 to 6 tubes of blood from me every time I go for the blood work and they say b/c I have a rare type of blood.

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PSYCHBAMA's Photo PSYCHBAMA Posts: 36
6/7/12 11:09 P

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I had a total thyroidectomy due to papillary thyroid cancer about 3 or 4 years ago and have had follow up scans and blood work yearly since then. I have been taking synthroid since then and the dosage has remained relatively the same, although they decreased it a year or two ago after I started losing weight. I sometimes have random symptoms that I can't decide if they are related to thyroid issues or not, such as extreme itching and skin redness, pain in my legs, stomach issues, depression. I have talked to my endo about these from time to time and she doesn't seem concerned, so I get through them. Fast forward to the most recent blood work. The nurse said my TSH was technically in the normal range, but it seemed high given my history. Luckily there is no thyroid tumor marker. But they are trying to figure out what is going on to try to determine best dosage. So I had to go back to do blood work and did a HAMA panel (something about a mouse antibody?) The nurse called today to say that it came back negative. So my endo is thinking it might be related to celiac antibodies and I need to go back and do more blood work. Has anyone experienced this? I know about celiac disease from the news etc, but that's about it. So was wondering if anybody had any insight or ideas as to why these might be related or if anyone had had to run a celiac antibody panel before. Thanks!

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