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Thyroid Cancer

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  FORUM:   General Team Discussion Forum
TOPIC:   Survivors Corner 


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BEVY75
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3/3/14 1:39 P

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Had my thyroid out (cancer) 3 years ago at Massachusetts General in Boston Mass. I continue to go their for blood work and ultra sounds on my neck area. So far I come clean etch visit. I'm on 88 mcg of synthroid and 44mcg on weekends. I've gained 50 lbs over those 3 years and can't seem to loose any of it. I've done it all to diets to eating 6 little meals a day nothing seems to work. I do work out 2X's a week at a BARRE CLASS ( torture ballet ) lol I work full time and I have no success of weight loss. I'm female 57yrs old and weigh 183 and am 5'6". Would love to hear from others and their thoughts. Thanks emoticon

Edited by: BEVY75 at: 3/3/2014 (13:41)

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NELSONJ09
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10/8/13 10:52 A

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YAY!! Glad it came back clean!! It's such a relief to hear that the first year.

And thank you for your well wishes for mine. I'm confident all will be fine.

And let's cheer those Cardinals into the NLCS!! That game yesterday was a nail biter!


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MOGAL64
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10/8/13 10:16 A

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The scan came back CLEAN. Nothing suspious, no cancer. They want me to have another neck ultrasound in March 2014.

Thanks for asking Neslon_09. Hope all goes well with your ultrasound.


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NELSONJ09
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10/7/13 8:09 P

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How did your check up go?

I just did my blood work and I have my neck ultrasound scheduled for Wednesday.


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MOGAL64
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8/4/13 7:29 P

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Hello to a fellow Cards fan,. NelsonJ09,
Started the LID two weeks ago and start the Thyrogen injections tomorrow. Can't wait until Thursday to eat regular food again. I've lost 8 lbs, though its probably water weight. I miss having milk in the morning.


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NELSONJ09
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5/18/13 7:28 P

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Mogal64,

First let me say I'm also a Cardinal fan!! And a thyroid cancer survivor. I'm just over 2 years out from my original diagnosis (the day after my 30th birthday). This November I had my one year check up and had to do another scan as well. The worst news that doctor said was 'low iodine diet'. UGH! It was horrible the first time I went through it and I thought it would be just as bad the second time. This time was so much better. I ended up getting thyrogen injections so I didn't have to go off my levothyroxin. That helped tremendously with my energy level and my hunger control. My scan showed nothing, but my ultrasound showed something in the thyroid bed (I had two surgeries that resulted in a complete thyroidectomy in 2011). So I did have to have a biopsy done. But there was nothing concerning there. I got a clean bill of health and told to come back November of this year and that my TSH didn't need to be checked again until then (unless my husband and I decide to start a family and I get pregnant).

If you do have to go on the LID again, I highly recommend both butternut squash soup recipes in the ThyCa cookbook (PDF of it available online). I really liked when we made the Rich Butternut Squash soup but included the roasted garlic from the other recipe. That and homemade rolls made the experience so much better. I had that for dinner most nights. We even had it over the winter after I was done with the LID.

I hope everything goes well for you.


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MOGAL64
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5/5/13 11:53 A

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A year after my surgery, my TSH is in the normal range, 1.75, but he wants it to be .5 since I had Thyroid Cancer. My Tumor Marker went down from 3 to below 2. The Ultrasound showed no suspicious lumps, though one was enlarged. Now he wants be do a full body scan to make sure nothing "lights up". Hopefully nothing does because I don't want to do the biopsy again. Only bad thing about the full body scan is I have to do the Iodine diet for 2 weeks. emoticon

Wish me luck!


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THYROIDLADY
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2/10/13 5:40 P

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The Thyrca conferences are great! The 2013 Conference is in Philadelphia, PA this year in September = can't wait.

I have been fighting this crappy cancer since 2001. Diagnosed with papillary tall cell variant, what a fight it has been. 5 Surgeries, and external beam radiation. I have been clean in my neck since the radiation in 2010 emoticon , but there is concern of some tiny tiny nodes in my upper chest quadrant. THey have been stable for years as well so I thank the Lord every day! What a journey this has been for my husband too. Enjoy every day and pray that the researchers find a cure.

Fight fight fight!


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BEVY75
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8/20/12 11:47 A

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2 yrs ago a lump was found on my thyroid. I was sent to have a biopsy done. The lump came back with no cancer. I was told because of the size of the lump it should be removed and that would include removal of 1/2 my thyroid. I went to the local hospital in town had it removed and 10 days later was told I had papillary thyroid cancer. The lump was fine but the actual thyroid had cancer. Living so close to Boston I made an appt with a thyroid surgeon on what to do. He suggested to remove the rest of it and lymphnoids around it. Results after that surgery. The other remaining half had cancer too, lymphnoids came back fine. I went on a roller coaster of trying out MCG of Synthroid, starting out at 125mcg. Today I am on 88mcg and 44mcg once a week. My endocrinologist is located in Boston and I see him once a year, blood work and an ultra sound is done in the office with results as I sit there. Oh and I was told I had Hashimoto disease. Im not really up on that, but would love feed back from others. Im 55yrs old. and have gained 30 lbs since being on this med. YIKES!!!!


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ALASKAN
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7/31/12 9:40 P

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My mammogram turned good too, so I am good for another year.

How was your mammogram or did you get 1 taken? Do get your mammogram

emoticonemoticonemoticonemoticon

Live 1 day at a time and live it to the fullest. Wish you all the best that life has to offer.... Stay focused, positive and it will get you where you want to be or done in life itself.
My name is ERNA



I'm leader of a new team : "A Safe and Happy Home For Grievers"

www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=22259


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ALASKAN
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6/30/12 7:49 P

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I am cancer free for over 9 years. My ENT doctor said that there was no cancer in my throat and got a letter today that said my mammogram showed no cancer in my breasts. I'm double happy for this great news emoticonemoticonemoticon

Live 1 day at a time and live it to the fullest. Wish you all the best that life has to offer.... Stay focused, positive and it will get you where you want to be or done in life itself.
My name is ERNA



I'm leader of a new team : "A Safe and Happy Home For Grievers"

www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=22259


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ELISHA321
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5/24/12 4:59 P

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I just wanted to say hi and introduce myself, too. It's so cool to me to read so many stories and to know that I'm not in quite so unique a situation as I thought.

Two years ago, during a routine physical, my PCP felt a lump in my neck. After several different doctors, I had an endocrynologist test my thyroid levels, which came back low. When I asked him what he was going to do about it, he said, "Nothing. You're low, but you're still within 'normal ranges.' " I told him I wanted him to do something about it, because I had been fighting with weight loss, hair loss, dry skin, all of it. He still refused, so I asked for a second opinion and I found an endocrynologist who is my dream come true! She listens to me, and did another biopsy on the lump in my throat, which the first doc failed on, and she pulled atypical cells out of two lumps that they found in my neck. They sent me in for surgery, and the surgeon had originally planned to take out one side of it, but when I woke up, he told me he'd taken the whole thing because there was cancer.

Then, about nine months later they found another lump, exactly like the first one, and they went in again and found that it had spread into two of my lymph nodes, which they took out. I'm tired of this now, lol. So far my levels are showing all clear. Fingers crossed.

Elisha, 33
DD - Reagan, 5 yrs
DD - Ryan, 3 yrs


"Insanity is hereditary; you inherit if from your children."
Ronald Reagan


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RUBYYR
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12/8/11 1:48 A

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Hi everyone,
I did attend the Thyca conference, it was great! It is in different cities each year. There is a list serve with many daily emails and this came to me today. There is a Thyroid Cancer Basics that just became available. It's free!

Here's the email I received today:

Introducing

Thyroid Cancer Basics

50 pages, packed with information about thyroid cancer diagnosis,
staging, treatments, and followup.

Plus tips for appointments, communicating with your doctors, free
support services, and more.

Free for reading online and for downloading and printing out. You can
put it into your own looseleaf folder, convenient for reference and
note-taking.

Download here, free- (clickable link at end of this post)

www.thyca.org/TCBasics.pdf

In a few weeks, the printed edition will be available. It is also
free. You may request a single copy. Or get a few and give some to
your doctors.

We mail it anywhere in the world.

Thank you very much to the wonderful thyroid cancer survivors,
caregivers, and thyroid cancer expert physicians who contributed to
this important new resource.

Wishing you well,

ThyCa: Thyroid Cancer Survivors' Association, Inc. www.thyca.org

- Free education, support services, and awareness materials
- Free booklet, Thyroid Cancer Basics www.thyca.org/TCBasics.pdf
- September is Thyroid Cancer Awareness Month, sponsored by ThyCa
- Chicago, Illinois, October 19 - 21, 2012-The 15th International
Thyroid Cancer Survivors' Conference
- Details at www.thyca.org
www.thyca.org/TCBasics.pdf

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss


RUBYYR
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10/10/11 4:52 P

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The program looks really interesting!

I am pasting the link to the program schedule - as it stands now. The date is coming up quick! I hear that over 300 people have registered and they expect many more at the door. Also looking for volunteers, The link to the program schedule is here: www.thyca.org/ProgSched2011.pdf

The link to the Thyca web site with volunteer info and lots more is here:
www.thyca.org/conferences.htm#2011conf



“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss


MADHILDE
Posts: 299
10/7/11 3:05 P

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This sounds like an excellent conference and a wonderful resource. I hope some of us can attend. For those of us who can't, I sincerely wish that attendees bring back comments and information and share it with us!

Mad


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RUBYYR
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9/19/11 5:15 P

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Upcoming Thyroid Cancer Survivor conference in Los Angeles in October

More Than 60 Speakers Confirmed for the Conference October 14 – 16, 2011

www.thyca.org/conferences.htm

Join us in Los Angeles, California on October 14-16, 2011 for a unique weekend of learning from experts and sharing experiences in person with others coping with thyroid cancer.

We’re honored to announce that we’ve confirmed more than 30 distinguished medical experts, plus attorneys specializing in employment, disability, insurance, and other key issues for cancer survivors, plus specialists in coping skills and complementary approaches.

The weekend offers more than 60 speakers and more than 100 session choices. In addition to speaker sessions and workshops, you’ll have the opportunity to take part in roundtables for every type (papillary, follicular, medullary, anaplastic, and variants) and situation with thyroid cancer, from newcomers to coping with side effects of new targeted therapies, children and teens care issues, young adults life issues, adults of all ages including seniors.

www.thyca.org/conferences.htm

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss


AJANDREWS1999
AJANDREWS1999's Photo Posts: 168
8/30/11 11:02 A

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the thyroid cancer website has a free downloadable cookbook that I printed out. Everything is either low iodine or no iodine. We tried several when I was on the iodine diet...it actually helped cut the cravings. There are a few recipes we even have made a regular at our house. My kids love the banana nut pancake and the blueberry muffins. We make them in mass...freeze then to rewarm on school mornings!





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GOWIEGIRL1
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4/5/11 4:13 A

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congrats.


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WITCHIN
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3/31/11 2:14 P

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WOOHOO...YIPPEE ....YAHOO.... sorry it took so long to get back.. Clean scan.. No tissue, No cancer,,, Blood levels great.... Thanks Goodness... good for another 2 years



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JOYFUL711
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3/22/11 9:52 P

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I just got my results today, no cancer, no thyroid cells...wooo hooo!!!!!


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JOYFUL711
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3/3/11 10:29 P

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I am staring the low iodine diet Monday...good times!!! LOL

I wil do fresh veggies on the list, and chicken, most likely. I have done pasta (WalMart has whole wheat pasta that has no salt in it) dishes, oatmeal with apples in it etc some of the times I did the diet before, this time I am going to keep it very simple. I have finally lost some weight, so I am not going to screw it up. What I miss the most is my lover, greek yogurt!


I have to juggle work with all the labs and shots, got it down to three days missing work this time. I am lucky all these medical facilities are fairly close together, 30 minutes drive to any of them. I have had cells remaining in my neck also,even last year, my oncologist says it is OK.


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RUBYYR
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2/12/11 11:12 P

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Hi Witchen,

Do you have the Low Iodine cookbook from thyca.com? There are lots of recipes there.

I ate a lot of fruit, turkey burgers made with plain salt at home, easy to bake bread with no dough conditioners, (french from the king arthur website). And cereals - malt-o-meal was a favorite for some reason.

Bon appetite! Share with us what you find to be particularly appealing.

Ruby

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss


WITCHIN
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2/7/11 11:34 P

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Hi all. I have been reading some of the posts and I se that I am not alone in the world with this issue. I have had 5 years clean from cancer but am terrified it will be back. I had this twice already. First when I was 13 and had my thyroid removed completely but it grew back. took 25 years, but it grew back. and grew back with hurthle cells in one tumor and encapsulated papillary cancer.

I have a huge issue that I have to overcome with this.. I have synthroid resistance disorder. I am taking 400 mcg of synthroid and am still hypo thyroid. cannot seem to lose the weight no matter what I do. and excersize is very hard when you are so tired all the time.

I am in the beginning of my 2 weeks iodine free diet for my full body scan. and am trying to figure out how to diet when I cannot eat so many things. Hope that I am still cancer free.

I could use some food replacement ideas .. please

thanks in advance



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FIERCESTCALM
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8/12/10 10:02 P

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thought I would update here. Doc is repeating ultrasound next month and depending on what it shows, I will most likely be undergoing another round of RAI. My FNA was negative but my doc is very worried about a false positive especially since we had 2 tests that were suspicious for spread. I'm currently on 275 mcg of synthroid and will go next month to have my levels rechecked. in the meantime, I am avoiding soy like the plague which is tough because I follow a vegetarian diet and used lots of soy. I'm hanging in there though.

you're just an empty cage girl, if you kill the bird....Tori Amos.


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RUBYYR
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8/8/10 11:06 P

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I hope your results were good GLABARBARA! It's such a stressful time waiting for those results.

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss


GLABARBERA
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8/1/10 10:24 P

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Hello everyone. I start thyrogen injections this week and have some tests next week to see if I have any active cells. This is my one year anniversary and I am hoping for good news, but trying to remain realistic. My last scan showed active cells in the neck, however the doctor thought it was too soon after RAI, and to give that treatment more time to work. Here's to a great week for everyone.


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RUBYYR
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5/30/10 12:11 A

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Thanks for you post Anita.

It is truly horrifying to be confronted with a recurrence - just the thought of it scares me half to death and I, like you try to not think about it much.

But if it recurs, I know I'll take the necessary steps and deal with it and then crawl back into regular mode.


Although I recommend the thyca.org website to everyone because it has some excellent material, especially for people who are newly diagnosed, I never post on their boards. I was grateful for them when I was learning about this condition but I don't really identify myself with thyroid cancer. It's a blip in the road (OK, a Big Blip) but nevertheless, a blip. I was uncomfortable calling myself my my type of cancer & when/how I was treated. It all seemed a bit odd to me.

I too prefer to live in denial :-) and I deal with it when/if I need to.

I like this board because it keeps me coming back to SP - my posts here keep me motivated as I continue on a healthy path of weight loss.

Ruby

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss


AHGREENW
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5/29/10 9:51 P

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In 2004, I was diagnosed with Thyroid Cancer - after a year and a half of having ultrasounds for 3 nodes they found that they thought were benign. I got sick of having ultrasounds and finally asked the radiologist what he would do if I were his wife. He said a needle biopsy. Did it, and was shocked to find out I had cancer. I had radioactive iodine afterwards and honestly thought I was done.
I did have some vocal chord issues, but they healed, as did the scar (I think of it as a badge of honor too -- but, after this surgery you could barely see it).

A year ago, during a regular 6 month check up, the endo thought that one of my lymph nodes on the left side of my neck was inflamed. Needle biopsy right then and there...and it was cancer. I had a radical neck dissection and they removed 22 lymph nodes - 2 had cancer. I think I'm back to being clean and can go on with life cancer free.

2 Weeks ago I went for another 6 month check. Right there on the left side where they went last time there is a lump I can feel. By the way, the scar this time is really a badge of honor. This one is noticeable, but, not in a bad way.
Still pink in the area and because so much "matter" was removed, I'm a little sunken there and also have no feeling on the left side - shoulder to ear.
They aren't sure if the lump is another bout, or a neuroma - a blossom that forms when a nerve is damaged (why I have no feeeling). They can't do a needle biopsy, because if it's a neuroma - sticking a needle in a nerve would be like the movie "Marathon Man" (as per my dr.). I'm having an mri on Tuesday, but it's not definitive. It would just rule out any other spreading.
So, since there's nothing I can do, I'm going with the assumption that I'm clean now and living life. If and when I have to deal with it, I will. Although the thought of someone going back into my damaged left side is the real horror to me.

That's my thyroid deal.....
I'm so glad that there's this team. I try not to think about it too often, but it certainly has a hand in defining me. I don't like to think of myself as a cancer survivor - I like denial too much.
Warmly, Anita


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ALASKAN
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5/24/10 2:24 P

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Thank you Ruby and please call me ERNA. I hope I am some help for anyone. But it does get easier as time goes by. I am here almost all the time.

Live 1 day at a time and live it to the fullest. Wish you all the best that life has to offer.... Stay focused, positive and it will get you where you want to be or done in life itself.
My name is ERNA



I'm leader of a new team : "A Safe and Happy Home For Grievers"

www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=22259


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RUBYYR
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5/24/10 10:17 A

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Welcome FIERCESTCALM

Alaskan (Erna emoticon ) has some great points and we're glad you found us. Please read through the posts here and let us know how you're doing. I know it's so hard waiting for results...

Ruby

Edited by: RUBYYR at: 5/26/2010 (00:42)
“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss


ALASKAN
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5/23/10 10:02 P

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welcome & hello

My name is ERNA

It's good to see and meet you here on Thyroid Cancer team .... Good luck on your goal(s) and I'm here if you need help on this site. Take care and talk to you soon. Stay focused and have a positive attitude will help. I'm here to keep you encouraged and to be supportive.

To STAY MOTIVATED I DO THIS ALL THE TIME:::
1) come in, read the posts, and do your postings
2) read, join any teams that you think you like, go to My Spark Points (click there) and spin the wheel, (that is where you go everyday to start with those points)
3) get it know the people and make new friendships
4) read some article.... (you make points reading these too)
5) make yourself to exercise like walking, jogging, or whatever you would like to do
6) most of all :: have fun and enjoy yourself

If there is anything that I can do to help, give me a holler. If I do not know the answer, I will find it. Our leaders are really great and help when you need it too. So don't hesitate to ask. That is why we are here ...I'm a single Mom of 3 grown sons......
Anytime I'm online, I will try to help you as much I can. If I am not online, just send me a spark and when I come on, I will answer it. Good Luck and enjoy....If I can do it; emoticon...
***I've had cancer 3 times and still a survivor. The last time was in 2005 and it was in the early stages***.

Live 1 day at a time and live it to the fullest. Wish you all the best that life has to offer.... Stay focused, positive and it will get you where you want to be or done in life itself.
My name is ERNA



I'm leader of a new team : "A Safe and Happy Home For Grievers"

www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=22259


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FIERCESTCALM
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5/23/10 9:31 P

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Hi Ladies,

I hesitate to post under this topic, because as of right now I am not cancer free. I had my thyroid and 3 lymph nodes removed October 09, and RAI in November 09. A follow up ultrasound in March 10 revealed 2 points of uptake in my neck even after the RAI. Next step is an ultrasound guided biopsy and if they can pinpoint the cancer in the lymph nodes then I will have surgery again.

I think I'm the odd man out because I LOVE LOVE LOVE my scar!! I actually don't do anything to try and help it heal better because I view my scar as a badge of honor. Which is really ironic because before my surgery I was so upset about having to have a scar across my neck, and after my feelings about the scar changed completely. I work with kids and whenever one of them asks about the scar I say "I got in a fight with a pirate! You should see what I did to him!" Considering I'm only about 7.5 months post surgery my scar looks amazing! A lot of people miss it and don't notice it until I point it out. My surgeon was phenomenal and my endo told me that if she had to have this procedure that this is who she would go see. Anyway, I'm hoping that I will have the same surgeon this time and I know that he'll do a good job. eventually I will be a true survivor and be completely free of this.

you're just an empty cage girl, if you kill the bird....Tori Amos.


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ALASKAN
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4/7/10 10:58 P

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Hello Ladies,
Sorry I did not come in and to wish you all a "Happy
Easter". Trying to get some stuff done before my youngest son comes in for the summer. He will be here 30 days from tonight. He comes on the 9:30pm flight from Pennsylvania. It will be so good to see and have him home for a little while. Send some of his stuff home, so I have to keep a outlook for them.
Hope you all are doing well. Had my mammogram done on April 2 and got the results yesterday. Another year and no cancer. I'm so happy about that. I hope when you have yours, that you will have a good report too. Talk to you all soon again and be careful.

Live 1 day at a time and live it to the fullest. Wish you all the best that life has to offer.... Stay focused, positive and it will get you where you want to be or done in life itself.
My name is ERNA



I'm leader of a new team : "A Safe and Happy Home For Grievers"

www.sparkpeople.com/myspark/groups_i
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RUBYYR
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4/5/10 10:43 A

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Scar tape is a piece of thin silicone that you can put over the scar. I left it in place most of the time. There are different brands. I think if you google scar tape, you will find different types.

I also kept my scar covered 24 hours a day - no sun exposure for a year. I wore high necks or scarves to keep the sun away. Tiny, barely visible white line.

You won't know what your scar will look like for at least one to two years. So please don't think that what you see 4 months post-op is what you're going to end up with. Mine was thick and red and bumpy for the longest time.

Edited by: RUBYYR at: 4/5/2010 (10:44)
“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss


CBARZEE
CBARZEE's Photo Posts: 7
4/1/10 11:55 A

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Mine is still lower (but only I notice) than before and that is 9 years later but my surgery was extreme. My vocal cords were scrapped because the cancer was wrapped around them and my voicebox bad enough that at one point they wanted to remove them both. It does get better with time though the first two weeks I refused to speak to anyone because my voice sounded like a 4 pack a day man. It will get better a little every day.

Good Luck!


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CBARZEE
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4/1/10 11:49 A

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I did not have scar tape so I am not sure what it was but I was a fanatic about the no exposure to sun for the first year and sunblock sunblock everyday. It has been 9 years now and even when I point it out no one can find my scar.


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CLANDIS2
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3/31/10 5:52 P

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Hi Ruby, I am brand new to this site and am wondering what Scar tape is. I had my TT with bilateral neck dissection 12/09 and had an allergic reaction to the stitches so that my scar is still quite red. I have never heard of scar tape and am wondering where you got it. Thank you so much, Cheryl


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CAREBETH14
CAREBETH14's Photo Posts: 54
3/23/10 7:17 A

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Thank you so so much!!! I appreciate it.


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RUBYYR
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3/22/10 10:19 P

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Give your voice at least a year before you decide if it has undergone permanent changes. You'll see it get progressively better but it may or may not return to it's exact old old self. I think most people's do go back to normal - but give it some time.



“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss


CAREBETH14
CAREBETH14's Photo Posts: 54
3/22/10 7:25 A

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Good to hear that the voice problem is normal... I've been a little concerned about it when my TSH came back normal..


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RUBYYR
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3/21/10 9:53 P

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Welcome to the new members. I've been MIA for a while and I've been reading and trying to catch up.

I had to laugh out loud when I read KIWI...'s story. I can so relate to the part about worrying about looking like someone had tried to saw my head off. After my surgery, I was so afraid of taking any narcotics for pain because I thought I might get nauseated and throw up. I though that if I threw up, my head would surely fall off.

That said, I used scar tape and kept my neck covered for 12 months. No sun whatsoever. I now have a very faint white line for a scar that no one notices unless I point it out.

My surgical recovery was pretty uneventful although my voice has never completely gotten back to normal. My singing voice especially. But I sing anyway :-)

Nice to be back with everyone!

Ruby

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss


CAREBETH14
CAREBETH14's Photo Posts: 54
3/9/10 4:55 P

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I am officially cancer free as of Jan 29th. I had 2 surgeries to remove my thyroid then RAI in January. I'm still getting all my medicines and stuff right but I'm so happy that the worst is behind me. Sadly my voice still isn't the same, but I'm hoping that will come soon! Nice to meet you all :)


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CBARZEE
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2/27/10 1:00 P

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Your story is so similar to mine. I was diagnosed with Thyroid cancer in June of 2000 and I was 25 years old! I like you had the worlds best Dr. I think God was watching over me because I had just moved across the country from Washington to Boston. My allergies where bugging me so I pick a Dr out of the phone book. She ordered my previous records and I had my first appointment. During my exam she found the lump in my throat I never noticed and she sent me in for a biopsy. To give you an idea how awesome my Dr was when my results came in and she was on vacation in Greece she called me with the results.

I was devastated i was sure it was a death sentence i had already lost several members of my immediate family to various cancers and i broke down. I was hysterical and did I mention I was at work when I got the call and everyone thought I got fired. (I can laugh about that now)

Here is where I swear God comes in my new fabulous Dr I picked at random had had thyroid cancer the year before so she made sure I saw her surgeon and Oncologist the best in the US. My thyroid removal did not go as smoothly as hoped ended up being a 9 hour surgery. Apparently I had 2 types of cancer and it was all complicated by Thyroidistis which means the cancer was sticky and inflamed and wrapped all around my vocal cords and voice box. So the surgeon spent 9 hours scrapping cancer cells trying to save my voice.

When I woke up the told me the bad news they could not get it all but the good news was it had not spread to to my nodes yet. So we went aggressive and I did 2 rounds of radioactive iodine 3 months apart.

I love to tell that story as much as my oncologist... I am not sure how your Iodine uptake went but her is my story. I am sitting in a room with what i would describe as an adult size highchair. I walks the nurse pushing this big cement safe on wheels. Next comes the Dr in this weird rubber suit and huge rubber gloves. He very slowly and carefully opens the safe takes out this little metal canister a little bigger than a soda can and gentle sets it on the table. Then i notice there is a little fridge in the corner and he pulls out a box of juice juice. He then proceed to stab the juice box with a syringe and draw out the juice and then he pokes the top of the weird soda can and injects the juice. He proceed by shaking this weird canister. He puts on a plastic face mask now and puts a straw in the canister sets it down on the adult high chair and says drink please. I took one look at him and started laughing so hard i about fell of the chair. No one will get near this can but he wants me to drink it?

The good news is I have been cancer free for 5 years but like you in that time I have gained 90 pounds I need to lose but this is day 3 and I am on my way.




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ALASKAN
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1/31/10 7:51 P

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Hello Ladies
I'm a cancer survivor and very proud of saying it. I had cancer 3 times and beat it all of it. My last cancer was in May 2005. It was in the early stages and my doctor found it. It was on my thyroid and happy to have it gone. I hope that you all won't ever get it. It's very hard to talk when you get it and hope you will not have to go through it. Talk to you soon, take care and have a great upcoming week.

Live 1 day at a time and live it to the fullest. Wish you all the best that life has to offer.... Stay focused, positive and it will get you where you want to be or done in life itself.
My name is ERNA



I'm leader of a new team : "A Safe and Happy Home For Grievers"

www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=22259


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KIWISHINESALOT
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1/29/10 2:23 P

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I was diagnosed with Thyroid Cancer in April of 1998. I was terrified and unsure what the diagnosis really meant. I was 27 years old and married for less than a year. It seemed like I was just starting my life as an adult and then to get such life or death news was devastating. I believe it was far harder on me emotionally than physically. The surgery to remove my thyroid was two weeks after the biopsy and went smoothly. The surgeon was great and my scar is hardly visible, in fact nobody sees it until I point it out. I healed quickly but was so scared that I walked around on egg shells for a month afraid my insides would suddenly burst out of the incision. I remember the surgeon removing the bandage weeks afterwards and I refused to look. My husband gasped which I took as bad and they both were staring in amazement. They reassured me I had healed great and forced me to look in the mirror. I was so scared of what I would see, would I look like someone had tried to saw my head off? Instead there was a slim crease still a bit red but really very innocuous. The bloody surgical bandage had looked a million times worse than the actual wound. I think it was then that I fully exhaled for the first time in a month. There was hope, I wouldn't be walking around with a nasty scar for the rest of my life. The news from the surgical biopsy was also positive, the cancer had not spread outside the one lobe and my nodes were clear. I then had to complete an hospital overnight Radioactive Iodine Treatment. In preparation I could not have any thyroid hormone medication so it was a sleepy sluggish time for me. Hard to discern which was from the lack of hormone and left over surgery recovery. The hospital treatment was surreal. I was quarantined and hazardous waste signs posted on my door. I felt like a test lab patient in a very gone wrong experiment. It was a rough 24 hours but I survived and actually left feeling very grateful to be alive and that I had only to endure one treatment. I knew others on the same floor were not so lucky and honestly it was then that I began to feel really blessed. I have remained cancer free and still receive regular treatment from an Endocrinologist. I am fortunate to live in a big city have a choice of great doctors. I am thrilled with my current one who always errors on the side of caution and takes her time to explain everything to me. She is still fine tuning my medication, I currently take Levoxyl .175 every day except once a week a talk an extra half a pill. It is amazing how such a small increase could matter but I guess it does, and I appreciate that my doctor takes the time to get it right for my body.

I do have emotional scars and have gone to therapy for some help. I still get anxious before doctor appointments. As the years pass I think it will go away but it never completely fades, kind of like the physical scar. In many ways my annual check-ups are a good reminder of how blessed I am and the importance to live in the moment and enjoy my family to the utmost.

I would love to meet others and learn your stories as well. Many advancements in the past 12 years have made treatments and scans so much easier and the survival rate is increasing so there is much to be thankful for.

Now I am ready to tackle my weight. I have always struggled but after the cancer I put on the most weight ever. I have gradually gained weight over the years and now have 90 pounds to lose. I am tired and achy and my Endo says it is my weight not my hormone levels. It is time to get living.

Edited by: KIWISHINESALOT at: 1/29/2010 (14:29)

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BELLE52877
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1/17/10 5:18 P

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Survivors share your stories!

Shelly (Belle)

A dream is a wish your heart makes, when your fast asleep....


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