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TRANSFORM-ABBY's Photo TRANSFORM-ABBY SparkPoints: (24,124)
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5/20/14 4:57 P

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I hear you. My struggle is the same. This dead-head feel just will not clear. It is quite the hindrance.

Be STRONG. Stand firm. Stay the course!

Darlene
Texas

Darlene's Ponderings: darlenesponderings.com/


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VINTAGE-DOLL's Photo VINTAGE-DOLL Posts: 71
5/19/14 9:44 P

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My Obstacle today is feeling tired and cloudy..

I just can't concentrate, and that's not a good thing with so much study at the mo..

emoticon emoticon emoticon emoticon emoticon

Ticker Re-starting at 202.4 lbs..
.."As you focus upon the POSITIVE, you bring about a Positive resolution"..


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TRANSFORM-ABBY's Photo TRANSFORM-ABBY SparkPoints: (24,124)
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5/12/14 1:37 P

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emoticon

Be STRONG. Stand firm. Stay the course!

Darlene
Texas

Darlene's Ponderings: darlenesponderings.com/


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1BOSSMOMMY's Photo 1BOSSMOMMY SparkPoints: (8,998)
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5/12/14 2:30 A

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Balancing the nutrition within the recommended guideline was going great until just this last week. This week my challenge has been eating enough protein in my diet. The longer I am watching my nutrients and checking the kinds of food I am eating the less meat I feel like I want. Before I was satisfied with just meat and potatoes and pastas like my husband. Since changing my eating I only feel like eating egg, chicken or turkey and only a couple of days a week. I've been working on eating more legumes with couscous or rice and vegetables and my desire for meats have gone off. I also used to eat a lot of pasta but this week I made a turkey with broad egg noodles in a gravy with vegetables in it and the pasta and gravy felt so heavy I never really enjoyed the dish. So I'm learning how to get more protein from foods other than meats now and staying away from heavier meals.

To me HEALTH means Energy. Stamina. Flexibilty. A relatively pain free body. Enjoying healthy food. You are your body, and your weight loss efforts will succeed exactly to the extent that you mange to do the work on behalf of your embodied self. You’ll do much better when you focus on making positive changes to improve your health and well-being, rather than on fighting your bad habits.


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TRANSFORM-ABBY's Photo TRANSFORM-ABBY SparkPoints: (24,124)
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5/11/14 11:56 A

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I hear you. DH got frustrated with me one day during our trip to see DD graduate because "You seem to be unable to focus." He is still learning too. I did not realize I was not focusing until he said that. So I trained him a little and worked harder to focus. It was a challenge, but we made it.

Be STRONG. Stand firm. Stay the course!

Darlene
Texas

Darlene's Ponderings: darlenesponderings.com/


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1BOSSMOMMY's Photo 1BOSSMOMMY SparkPoints: (8,998)
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5/10/14 11:02 A

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One of the most important lessons I learned from having fibromyalgia is to be flexible. I never make firm plans that can't be broken because I have learned from experience that when I go into a fibro flare-up and have fibro fog I am not able to participate in anything. Even watching TV, going on the computer. reading a book or doing some crocheting can be too difficult. This week I lost three days because of them blending into one another. I remember trying to do normal activities and preparing food and trying to do crocheting or reading but I also wasn't clearly focused and became confused easily because of the pain and mental fogginess. It helps me to know that I am doing the best that I can under the circumstances and not to be hard on myself when I am unable to live the lifestyle that I have set up for myself. FM means having off days and not being able to stick with the program always but when I am feeling better and get right back on track again I feel like I am making positive progress because I am not quitting and am still trying.

To me HEALTH means Energy. Stamina. Flexibilty. A relatively pain free body. Enjoying healthy food. You are your body, and your weight loss efforts will succeed exactly to the extent that you mange to do the work on behalf of your embodied self. You’ll do much better when you focus on making positive changes to improve your health and well-being, rather than on fighting your bad habits.


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4/9/14 11:08 A

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I love that you ask not only what our obstacle is, but what action-plan we are working to overcome. I think that is what drew me in to check this team out.

My greatest obstacle right now is my husband's schedule. His job is 11 AM to usually around 10: PM, four days per wee, so we are up late most nights. The past couple of months he has been doing a lot of weld testing of potential employs for local companies, meaning he has to go in early. So we do not get to bed until midnight or later, and the wake-up call sounds at 6 AM.

I have tried to live the schedule I need, but then I miss DH so much that I prefer to hurt, so I rise and go to bed most days with him. In dealing with it, I rest when I am able, taking naps many days. I keep my schedule fluid, so when I am tired, I do not feel guilty about resting. I am here, working to eat for life and learning the foods that help and those that add to the problem. And I make sure I get up and move frequently through the day, even if only 500 steps at a time. And yes, I am back on Nopalea, which is the one thing that seems to help without causing other issues.

Be STRONG. Stand firm. Stay the course!

Darlene
Texas

Darlene's Ponderings: darlenesponderings.com/


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1BOSSMOMMY's Photo 1BOSSMOMMY SparkPoints: (8,998)
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4/2/14 9:20 A

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My excuses not to exercise is my fibromyalgia chronic pain and flare-ups. Last night because of pain level 7 I couldn't get to sleep until after 3 am. then I woke up at 6 am. still level 7 with aching all over so badly that I couldn't find a comfortable position to go back to sleep in. I got myself some breakfast and then began my trigger massage therapy and I followed that up by doing gentle stretches in bed until I felt I was relaxed enough to try going back to sleep again. Husband is away all day so i'm going to try to get my 8 hrs of sleep now and hopefully after a good rest I will feel more like going and trying my treadmill routine around 1 pm. On mornings like this I have to plan a strategy that will still allow me to continue some normal activities that include my exercising so by noon If I still don't feel I will be able to do treadmill program I will put on one of Coach Nichols 10 min programs and do that instead, Some days all I can manage is the massaging and gentle stretching. I've lived with this long enough to know and understand my limitations and so have also learned to only do as much as my body will accept because it if try to push too much I end up becoming more chronic discomfort and can trigger a flare-up, if i judge inaccurately. With good sleep, healthy diet, trigger point massage therapy, and gentle exercises I can control how often or how uncomfortable the discomfort becomes. For right now I am spending on average over half my day just working on doing the things that need to be done for me to have control of my bodies pain levels. I had to stop taking any of the Fr. recommended medicines because I was unable to accurately pinpoint what was triggering a flare-up, and many times the medicines were creating collateral problems that interfered with me reading the nervous systems signals from the start.. Right now all the skin on my body feels as though it has been scrubber hard with steel wool or been immersed in a ice bath, tingly and stinging pin pricking numbness. My ray of sunshine is I know I can get this under control and bring the discomfort down to tolerable levels with a little work today. Hopefully by two pm. today I will feeling close to a normal physical body.

To me HEALTH means Energy. Stamina. Flexibilty. A relatively pain free body. Enjoying healthy food. You are your body, and your weight loss efforts will succeed exactly to the extent that you mange to do the work on behalf of your embodied self. You’ll do much better when you focus on making positive changes to improve your health and well-being, rather than on fighting your bad habits.


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PCOSGROVE2's Photo PCOSGROVE2 SparkPoints: (6,143)
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2/16/14 10:47 A

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Hello Everyone

I just found this group and am glad to have done so. I have had Fibro for over 15 years now and have progressed to taking prescription pain meds and lidocaine infusions. I just had a bad spell of about 2 weeks in which I wasn't sleeping at all and my pain was through the roof. the scale did not budge!!! Feeling better now and the scale is slowly going down again, but it is frustrating to not be able to get out and do more because my body won't allow it.. emoticon

All journeys start with a single step


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SARAHTAIT's Photo SARAHTAIT Posts: 25,996
1/29/14 4:10 P

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Sorry to hear you are a new fibromyalgia patient. It is NOT easy to live with and what helps one person will not necessarily help another. Listen to YOUR own body and what feels best for you. The issue with fibro is also that what works for awhile will stop working and you have to start all over finding things to help...this has happened to me about 4 times in the past 20 years I have dealt with fibro.....
Wishing you wellness!

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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BRAINYBLONDE5's Photo BRAINYBLONDE5 Posts: 704
1/29/14 10:59 A

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newly diagnosed, and have been dealing with these symptoms for a long time. hoping it gets better. I am so tired and sore today and have a horrible headache.

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SARAHTAIT's Photo SARAHTAIT Posts: 25,996
12/19/13 6:46 P

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Dealing with high pain levels and fatigue that has me tied to the sofa.....
due to go out of town tomorrow to sons house.

Sorry you slipped....I know how bad it feels!

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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DIETER27 Posts: 6,326
12/19/13 10:08 A

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slipped on black ice and achy and sore today.

SARAHTAIT's Photo SARAHTAIT Posts: 25,996
12/16/13 9:51 P

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Fatigue hit big time today...pain level is up so I was on the sofa most of today:(

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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DIETER27 Posts: 6,326
12/16/13 11:22 A

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Sore and achy today after shoveling out after weekend snow storm total of 8 inches snow here.
Resting up today.

SARAHTAIT's Photo SARAHTAIT Posts: 25,996
12/7/13 6:27 P

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Well I now have the flu and a sinus infection! Started antibiotics...so I am praying I feel better soon.
Yes..I am a name forgetter too..big time!

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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LKG9999's Photo LKG9999 Posts: 1,375
12/5/13 11:33 A

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Elledine, I forget people's names a lot too. I always thought that was due to having a more "mathematical" memory. I can remember numbers with ease, and I'm also very good with directions (drive there once and I can usually remember the route, even years later). I also find it embarrassing to forget people's names. As I've gotten older I've tried to work on my "name memory" by repeating people's names several times once I meet them, which seems to help.

Lisa

"Be more stubborn than the scale." - Vivian Bedoya (BEMORESTUBBORN)

"There are many ways of going forward, but only one way of standing still."
-Franklin D. Roosevelt


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DIETER27 Posts: 6,326
12/5/13 10:36 A

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i have been experiencing bad flare ups at times and headaches. Everyday is a new day and i will get through this with the power of pray.

SARAHTAIT's Photo SARAHTAIT Posts: 25,996
12/4/13 9:17 P

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Well my obstacle right now is this stupid sore thread/stuffy nose/headache/fatigue that is going on...plus I fell and hurt my left wrist badly (not broken) but a torn ligament!

Can't lie down and rest since I can't breathe then.

You are so right...hope is priceless!

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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BFILLMAN's Photo BFILLMAN SparkPoints: (103)
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12/2/13 12:08 A

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Well I'm getting better at accepting that people cannot understand my "invisible disease" & when they say "you look fine" - I get it now. I do wish I could keep a schedule but it's been so difficult with sleeping problems and fatigue during the day. At least I live alone & am retired so my responsibilities to others are few and far between. I've been having increased seizure activity which is preceded with a headache & ends up with me losing consciousness & waking up confused. Seeing a neurologist & having tests. My regular doc is doing testing and going through some process to try and find out if I have lupus. I don't think I want to know either way today. But tomorrow might be a great day. I still have hope thanks to prayer and a loving family. Hope...priceless!

KITTYCAT64's Photo KITTYCAT64 Posts: 599
11/29/13 10:37 P

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Stiffness when standing and well Nguyen, who h causes falling. The other would be my memory loss.

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ELLEDINE's Photo ELLEDINE SparkPoints: (15,526)
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11/29/13 8:26 P

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A big obstacle for me is when I forget things, like people's names. It is embarrassing to forget names of people I know and see everyday. When I am struggling to get through a day and I forget a close coworkers name it really makes me feel down.

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DIETER27 Posts: 6,326
11/25/13 11:12 A

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cold weather causes my body to flare up more

SARAHTAIT's Photo SARAHTAIT Posts: 25,996
11/14/13 8:42 P

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I get the tired thing. I have thyroid issues too on top of fibro...so fatigue is terrible. But I make myself get out and walk each day. I really feel the fatigue can be as debilitating as the pain...and both together are terrible.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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CHERIJ16's Photo CHERIJ16 SparkPoints: (61,453)
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9/12/13 6:58 P

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Lately one of my biggest obstacles is being bone weary tired. I have been trying to get more sleep but even with 8 hours I have been really tired this week. Maybe it's the remnants of the virus I had but it could also be the fibro acting up.

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TALLJOEY56's Photo TALLJOEY56 SparkPoints: (1,990)
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9/11/13 5:07 P

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I will be cold when everyone around me is hot, or hot when everybody else is shivering. Right now I am sweating, with the air conditioning on, but that might just be a hot flash!

There is life in the old gal yet.


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DUSTYPRAIRIE's Photo DUSTYPRAIRIE Posts: 8,726
9/4/13 8:26 A

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emoticon Is being cold in one part of your body and warm/hot in other parts common?

I literally get goosebumps on my arms and it's over 90 out.

emoticon

Bri from Colorado, MDT
DIETER27 Posts: 6,326
8/23/13 2:04 P

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A lot of people do not understand the chronic pain associated with this disease. Some feel it is all in our heads. i have my good and bad days but find that if i keep moving i can gradually work my way through the pain levels. God bless you all and may you have a pain-free day!

DUSTYPRAIRIE's Photo DUSTYPRAIRIE Posts: 8,726
7/17/13 5:52 P

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This week: burning skin and pain all over.

Bri from Colorado, MDT
DYNAMICDEBSY Posts: 14
6/10/13 5:14 P

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Motivation is hard for me to keep up. I do well for a few days, then either exhaustion or stiffness keep me from getting consistent with exercise. I walk my dog about a mile a day, but when I have pain like shin splints it makes walking difficult. I find gardening and exercising in the water are my two best bets.

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CHERIJ16's Photo CHERIJ16 SparkPoints: (61,453)
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6/8/13 6:57 P

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Right now my biggest obstacle is the pain in my left hip. I had PT years ago for it and at the time they did a lot of massage to keep my pyriformis muscle from getting too tight. Now I try to massage it myself and it helps a lot but I am still quite stiff if I sit too long.

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AMYTHECRAFTER's Photo AMYTHECRAFTER SparkPoints: (13,845)
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6/6/13 11:37 A

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It's so hard to not fall into a depressive funk when having family members with a mental disorder emoticon .But I do know that the depression will pass.

I started out top weight 245 but that was when I actually got on a scale. I was diagnosed with fibromyalgia almost 20 years ago. Over the years I've learned that I do so much better when I eat organic foods and I haven't eaten red meat in years I have been gradually working more raw foods, vegetables and fruit into my diet. I avoid drive through resturants like the plague.


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AMYTHECRAFTER's Photo AMYTHECRAFTER SparkPoints: (13,845)
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5/30/13 7:33 P

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PAIN is an obstacle! Sometimes I just can't exercise and need a day or two off but my friends have trouble understanding. I hear oh, come on work through it, the pain will go away in time. My exercise is just walking! emoticon

Edited by: AMYTHECRAFTER at: 5/30/2013 (19:36)
I started out top weight 245 but that was when I actually got on a scale. I was diagnosed with fibromyalgia almost 20 years ago. Over the years I've learned that I do so much better when I eat organic foods and I haven't eaten red meat in years I have been gradually working more raw foods, vegetables and fruit into my diet. I avoid drive through resturants like the plague.


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JEANINNEWCASTLE Posts: 2,063
4/27/13 10:19 P

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I've run into those same obstacles, Jude0924. You are not lazy and it is not all in your head. (I know you know that but it is nice to hear sometimes.)

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4/27/13 6:38 P

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My biggest obsticle, after pain, is lack of energy. It's the main reason I decided to retire 2 years ago at 65. After I had my lunch, I felt like sleeping and could barely keep my eyes open! At least now, if I wish, I can catch a nap in my recliner! Housework is very poor due to pain and exhaustion. I also would add that another obsticle is the fact that so many people do not believe that this is a real disease. They believe your lazy and it's all in your head.

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4CONNIESHEALTH's Photo 4CONNIESHEALTH Posts: 3,371
4/10/13 3:37 P

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I have 3 obstacles, one being time and another being pain. I don't hurt when I workout but I do when I'm done. Like a couple of hours later and sometimes the next day. For my workouts I walk/run 3.5 miles a day; usually 5 days a week. This takes me 45 minutes. The third obstacle is weather. The weather effects me like today. I have muscle/joint pain again.

Edited by: 4CONNIESHEALTH at: 4/10/2013 (15:39)
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WAIT4ME1's Photo WAIT4ME1 SparkPoints: (786)
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3/25/13 10:38 P

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My biggest obstacle is trying to exercise when I have so much pain. emoticon

ADGIRL618's Photo ADGIRL618 SparkPoints: (13,361)
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3/25/13 11:33 A

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My biggest obstacle right now is exhaustion - both mental and physical - due to work stresses. I have a lot of projects coming up and I've been getting so stressed out trying to make my goals. Normally I work Monday-Friday and try to relax some on the weekends but this coming weekend I know I'll be working extra shifts at our annual Home Show. I'm in sales and several of my clients are participating. In the meantime, I am fortunate enough to be in outside sales and close enough to home that I go home for lunch most days and try to take a power nap. I've also forced myself that by 5:30 in the evening I turn my work computer off and don't open it again until the next morning.

The other main obstacle is that people don't understand the bad days and that I have fibro or what it entails. So I always feel that people are looking at me and thinking I should be doing more because I look like a healthy 36 year old woman - they don't see what goes on behind the exterior.

Sarah

There is a difference between interest and commitment. When you're interested in doing something, you do it only when it's convenient. When you're committed to something, you accept no excuses, only results. -Unknown-


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FOZZIE12's Photo FOZZIE12 SparkPoints: (2,079)
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1/20/13 1:03 P

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I also had unsupported family problems with wrecking my schedule and my health. First you have to tell family that you have a chronic illness and you have to control your environment.
My wonderful nurse chewed me out for not taking care of myself. She says you have to structure your routine so it is as close as possible each day.
The bedroom is your sanctuary for sleep and rest, even if it is separate from everyone else.
Mealtime and exercise time and relaxation/meditation time is at the same time everyday.
Wishing you peace in your body, joy in your heart and strength when you need to put your foot down. emoticon

-----------------------------------------


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ANGIMARI03's Photo ANGIMARI03 SparkPoints: (1,482)
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1/10/13 11:55 P

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My biggest obstacle changes daily. Between the fatigue and the pain and all the things those two things make me miss out on or not be able to do. Like work... I have to work but I can't oh well something will work out. Right now I am focusing on being as healthy as possible.

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MICHLBEAR's Photo MICHLBEAR SparkPoints: (1,551)
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1/8/13 9:25 P

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Getting to bed early! I feel so much better on nights where I can go to bed with 9 hrs before I have to wake up. The problem is I'm not sleepy at 9 at night, which is when I really need to try to go to sleep on work nights. Also, my husband isn't ready for bed until 10 or 11 so he keeps me up even if I try to lay down early.

I don't know how to adjust myself - and my husband - to an earlier bedtime. I have just about got him to quit watching TV in the bedroom after I lay down...sometimes I hide the remote emoticon

Any other tricks/suggestions?

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MITZEN21's Photo MITZEN21 SparkPoints: (2,779)
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12/26/12 3:50 P

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Where should I begin? There's 2 that are the worst. They both affect my daily life. I have short term memory loss...AND, I have short term memory loss! emoticon No, seriously, I don't know if it's the Fibro, or all the meds I take for the myriad of symptoms. I take7 RX'S, & 5 OTC'S. Am I alone? I've tried to cut down or out on some of them, & The pain is so bad that I call the Dr. crying & beckoning him to fax me my old RX. The 2nd symptom is the stairs I have to climb several times a day, to get to my garage apt. I literally have to crawl up them! (you know. like a toddler does) I fell & twisted my right hip over a month ago, & it still hurts to walk. Now that I think about it, I have another obstacle. Constipation. Ugh! And again, I don't know if it's IBS compliments of Fibro, or if it due to my meds...but, it doesn't matter what is causing the obstacle! I still have to function daily! emoticon Happy Holidays

"If it is to be, it's up to me!

13 Week-13 lb. challenge 12/31 - 210lbs.


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MEG-NATALIA07's Photo MEG-NATALIA07 Posts: 679
12/15/12 7:27 P

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Fatigue... it feels like an obstacle that I need to seriously rest my body and brain every day and especially on the weekends. That means being disciplined and hitting the hey on time and not staying up or out with friends beyond that time.

Even when I am doing everything I should to rest and restore, with the treatments I'm undergoing, it just never seems like enough. Sigh, one day at a time.

GRACE. BEAUTY. LAUGHTER. REST. COMPASSION. GOOD FOOD.


I love to cook and bake. I have compiled hundreds of recipes on Pinterest: Crowd pleasers: Traditional & Lightened versions of timeless favorites, as well as: gluten free, vegan, Paleo & Grain-Free... and a ton of Scones and desserts.
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NEWVINE's Photo NEWVINE Posts: 4,851
12/2/12 5:26 P

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I get muscle cramps in my arms that make my hands turn in toward my body. Haven't found any thing to help, so I just wait for them to get over by them self.

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KMBJBB's Photo KMBJBB Posts: 1,140
12/1/12 6:49 P

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Well - I have a new obstacle - the tile floors in my new house. They are really killing my knees, legs and back. I have put those foam squares for preschool kids down in my kitchen at the stove and sink and that helps quite a bit. Too bad my cat uses them for scratching. He misses the carpet and I've had these squares since my kids (17 & 18) were babies.

Kristina

"Kindness is a language which the deaf can hear and the blind can read." - Mark Twain


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DUSTYPRAIRIE's Photo DUSTYPRAIRIE Posts: 8,726
12/1/12 2:57 P

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Mood swings are obstacles. One minute I feel on top of the world and can accomplish things. Seems like 5 minutes goes by and I'm frustrated by dropping things or not finishing a task. Then it's back to fighting depression.

I apologize if I'm repeating myself.

Bri from Colorado, MDT
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My biggest obstacle right now is actually my knee which has been replaced, so walking is a challenge. The tissue around it is so sore, and I keep whacking in on things!!! That doesn't help. My other one is my hands--they hurt constantly and spasm. They are cold all the time, and I have to wear gloves even in the house. Believe it or not, typing helps. I have gloves with the fingers out for that. The cold makes me miserable, too. I try not to whine and keep a positive attitude, though. If I have to have these conditions, I might as well do the best I can to live with them joyously! (My faith in Jesus is what really gets me through!) emoticon

Edited by: PINKFLYLADY at: 11/1/2012 (19:08)
God bless you!


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KMBJBB's Photo KMBJBB Posts: 1,140
10/20/12 8:41 P

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Last week MIL and I had to go downtown to the government office to the Property Appraiser's office. I took my rollator and she had her cane. We also had my son just in case one of us fell. MIL has had 2 knee replacements and needs to have both redone, but can't lose the weight needed before doing it. We ended up parking about a block away from the building and that just about killed MIL. I was surprised that I had no problem walking it, but then I realized why - with MIL's sssllllloooooowwwww walking I didn't get a chance to get my muscles moving much or my heart rate up. Take a traditional bridal march and make it 3-4 times slower and you got the pace we had to go. And, she had to stop every 10 steps to rest and take a breather. Next day, she was worn out and in bed all day. I walked the neighborhood and walked through my new house that's almost done and ready for us to move in.

Kristina

"Kindness is a language which the deaf can hear and the blind can read." - Mark Twain


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EAGLES_WINGS's Photo EAGLES_WINGS Posts: 1,860
10/20/12 12:16 P

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I am going to make myself go outside and walk from a quarter mile to a half a mile. I am trying to get in a daily habit of at least doing one loop or two and then later try to do more. On a good day I will do .75 mile. I know if I stick with it that I may be stronger. Just earlier I was trying to tell myself that I CAN be STRONGER. Yes, I CAN. It is possible. I have been so focused on I CAN'T but now it must change now that I am becoming more ABLE. So, I am going to try very hard to keep going!
Yay! I can do it! I hope your doctor doesn't drive you too hard though. I hate flare ups! Yuck! But, I am getting through them so much better since I am learning ways to help myself and minimize the pain.
emoticon emoticon emoticon emoticon emoticon emoticon

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JEANINNEWCASTLE Posts: 2,063
10/20/12 11:08 A

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Yes, Karen, unfortunately I can relate all too well. As you know (from my blog) I am focusing a lot on trying to get my muscles the nutrients and electrolytes they need. My doctor told me that even if it hurts that I need to exercise.

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EAGLES_WINGS's Photo EAGLES_WINGS Posts: 1,860
10/20/12 7:01 A

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I really don't like the fact that exercise is so hard. If I do too much I end up with a flare up! Even from physical therapy in the pool. I don't know. What is up with this fibro? What a nutty disease! I am beginning to read two books on controlling fibro symptoms. I am hoping to get further along in those books. I don't know what I am going to do if I can not improve this situation. I guess it is my lot to live with it but anything I can do to make it better is going to be good for me. I am going to try to make a commitment to exercise a little every day even if it is hard. I have to try. I know that I can not do a half an hour yet. I do at PT in the pool, but I pay! I am trying a ten minute walk, maybe fifteen. We'll see. I am just going to try to do a little stretching and a little walking every day. Anyone else struggling with this problem?

Where two or more are gathered there is love.


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DUSTYPRAIRIE's Photo DUSTYPRAIRIE Posts: 8,726
10/8/12 3:53 P

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i relate to the pain of a trip - during and after. we're supposed to have Thanksgiving with hubby's family every other year. He says it has been 2 years, but I so remember the pain and trying to go through the motions last year. I left my meds home and ended up trying to ease the pain with alcohol. not a wise choice.

i am just not going anywhere this year. his family has medical issues so it's important for him to go. i'll stay home and maybe do things with the church people.

just thinking about it nearly set me into another flare.



Bri from Colorado, MDT
JEANINNEWCASTLE Posts: 2,063
10/6/12 5:44 P

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I'm glad that you made it there and back. I hope that you can get some good rest.

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KMBJBB's Photo KMBJBB Posts: 1,140
10/6/12 5:24 P

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Made it back. We left at 8 this morning, took a stretch/potty break at 9:30, then got to the church for the funeral at 10:45 for an 11am service. Then we went and had lunch and by 1pm we were back on the road and had a break at 3, then took a detour to see if one of hubby's cousins was home, she wasn't, so we got back on the interstate and got home at 4pm. Had a lot of rain coming home. At least going up I could use the cruise control and gave my legs a break there, but coming home, with all the wet road, no cruise control and so I am exhausted, sore and in agony. Family is picking up KFC for dinner. I'm going to bed early, if possible and almost wish I could take a double dose of my amitriptyline.

Kristina

"Kindness is a language which the deaf can hear and the blind can read." - Mark Twain


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GEEKSMEGGLY's Photo GEEKSMEGGLY Posts: 5,549
10/6/12 8:41 A

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Take care Kristina .
I understand the discomfort of having to do anything for a length of time like sitting.
Having emotional stress on top of it just compounds the problem. emoticon



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KMBJBB's Photo KMBJBB Posts: 1,140
10/5/12 3:59 P

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Making sure I rest up as much as possible today. I have a 2-3 hour drive ahead of me in the morning, then a funeral to sit through, and afterwards the same 2-3 hour drive home. Day of driving is usually not too bad, but it's the recovery days afterwards.

Kristina

"Kindness is a language which the deaf can hear and the blind can read." - Mark Twain


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JEANINNEWCASTLE Posts: 2,063
10/5/12 12:44 A

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My pain has been more than usual lately. My feet are swollen and every step hurts so much. I am forcing myself to get up and do my usual routine. I'm also forcing myself to exercise because when I was in this much pain before I became a semi-invalid. Being sedentary actually caused more problems than it solved as far as avoiding pain, so I'm determined not to go back there. I am going to a new doctor next week. Every new doctor gives me new hope - until reality hits. . . . (Sorry that I'm a bit of a downer). I'm off to sit in my epsom salt bath.

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DIETER27 Posts: 6,326
9/28/12 11:49 A

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emoticon having alot of pain all over today and just rtying my best to get chores done today......

KMBJBB's Photo KMBJBB Posts: 1,140
9/12/12 9:17 P

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I also am on disability for another reason and my fibro has been something else that I am glad I am already getting the disability. I have another two issues with the fibro that make walking almost impossible. One of them is neuropathy, so I don't have any feeling down the outside of my right leg and that's the one other people tend to hit with shopping carts. Also, my right knee cap slips out of place. Really freaks out hubby when I sit up (while still asleep) and pop the knee cap back in place in the middle of the night. He said that once I patted my leg afterwards and told it to be good before I laid back down.

Does anyone here have issues with elevators? When I go to the library that is 4 floors, the elevator in both the parking garage and the library produce so much pain in my legs that I have to resort to sitting on my rollator for a good 10 minutes before I can do much. At home, I use no assistive device for walking, but may be moving to it soon. I use a rollator while out, but keep 2 canes available, one in the car and one at home.

Kristina

"Kindness is a language which the deaf can hear and the blind can read." - Mark Twain


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EAGLES_WINGS's Photo EAGLES_WINGS Posts: 1,860
8/8/12 4:40 P

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I am on disability for another reason. Though, at this point I am grateful because I feel overwhelmed with the fibromyalgia though I do have good treatment for it. I feel better than I used to but I have had the time to put the effort into seeing the docs and having physical therapy like aqua therapy. I wish you a lot of luck with it all. Perhaps you will be able to work with a lawyer and information from all your doctors is very worth the while. They can be very tough.



Where two or more are gathered there is love.


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CATHYLIELAUSIS's Photo CATHYLIELAUSIS SparkPoints: (13,986)
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8/8/12 12:31 P

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Don't give up. Make sure all your doctors sent in your records. One of mine hadn't sent it in and another said they did but social security didn't get it. Overwhelm them with information. Ask your doctors to write a letter saying you can't work. If they still deny you, then take it to a lawyer.

Cathy

Fall 5% Challenge - Maine, EST



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NEWFIEGAL50's Photo NEWFIEGAL50 SparkPoints: (4,503)
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7/20/12 7:29 P

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I'm in a lot of pain every day....pain from the fibromyalgia and the arthritis in my hip. Some days I can barely walk. I applied for disability, but was turned down. Guess I have to start looking for work, although I really don't know how I'm going to manage working 8 hours a day. emoticon

It's not the years in your life that count.......it's the life in your years.


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EAGLES_WINGS's Photo EAGLES_WINGS Posts: 1,860
7/20/12 5:44 A

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I have been off and on since last Saturday. I binged once. And I have made a lot of mistakes. I have not been eating enough vegetables. I need to turn it around.

No more tremors. The sleep apnea was causing it. Now that I am using the CPAP it has worked out just fine. I have had these for two years. Sleep deprivation is just no fun.

Hope that the next days bring renewed commitment.

I need to put down the junk food for a while.

I want to have some but then I have too much. Not good.



Where two or more are gathered there is love.


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GEEKSMEGGLY's Photo GEEKSMEGGLY Posts: 5,549
7/7/12 9:01 P

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emoticon
I have allowed myself to indulge in junk food all week. emoticon
My fatigue has been through the roof and I know I will not feel better until I get back to my healthy choices.



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EAGLES_WINGS's Photo EAGLES_WINGS Posts: 1,860
6/25/12 12:24 P

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Had tremors this morning! Oh, my! emoticon
What are you going to do??? emoticon
emoticon

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CAROLIAN's Photo CAROLIAN SparkPoints: (107,000)
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6/22/12 2:41 P

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Pain and stiffness in my lower body caused by being in centrally heated enviroment hotel/hospital visits this last week

My name is Carol I live in UK Leader of DISABLED/FIBROMYALGIA & MORE
Northern English Lassess
Northwest England
Co Leader Fibro Friends
Fighting Fibromyalgia
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EAGLES_WINGS's Photo EAGLES_WINGS Posts: 1,860
6/21/12 10:41 P

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Pain tonight in good measure. Time to go to bed. Hope you feel better Geeksmegly. Wishing you well.

Where two or more are gathered there is love.


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GEEKSMEGGLY's Photo GEEKSMEGGLY Posts: 5,549
6/19/12 8:37 P

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Caught another bug. emoticon
And having overall pain this week. Struggling to stay on top of it. emoticon



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EAGLES_WINGS's Photo EAGLES_WINGS Posts: 1,860
6/18/12 5:25 P

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I have never had Baker's Cyst though I have had severe knee pain and it is no fun. I must also add that for the magnesium takers that I am on board with that for a few years now. My old chiropractor suggested it. It was very helpful and the cramps and the cold spells stopped almost immediately. My doctor suggested that the cold spells were a result of the hypothyroidism, yet it was amazing when they ended because they're awful. I would have to bundle up with pajamas, hat, and gloves under several blankets and it would still take a while to go away. I, by the way, also turned the heat up. It was remarkably bad.

Where two or more are gathered there is love.


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SPRINTER10's Photo SPRINTER10 SparkPoints: (219)
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6/18/12 4:56 P

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Nice to see so many people i can relate to.I have Fibro and OA.Now they say I have a Bakers cyst which is water behind the knee and hurts like hell.I have had restless legs syndrome and the doc gave me Mirapex,its a Parkinson med but completely stops the Restlessness.
Does anyone else have a Bakers Cyst??

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MOMMAJENI's Photo MOMMAJENI Posts: 18
6/14/12 10:44 A

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So excited that I just weighed myself yesterday and I've finally lost again. I'm on track. I have lost an avg. 1lb/week. over the past 4 weeks. I was beginning to wonder if my body would ever respond, after the first week loosing 2 lbs. and then nothing for the 2 weeks that followed (even looked like I'd gained a little), but now we're back on schedule. I may start only weighing myself once a month, as hard as it is to wait, to avoid seeing those small fluctuations that drive you crazy.

Jeni

"I do not fear death. I had been dead for billions and billions of years before I was born, and had not suffered the slightest inconvenience from it."

www.jenireadabook.blogspot.com/


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MOMMAJENI's Photo MOMMAJENI Posts: 18
6/12/12 12:48 P

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I'm 29 now, but I have had the fibro symtoms undiagnosed for years before my doctor figured out what was wrong with me. I first remember flare ups when I was about 16. I also worry about it getting worse over time, because I used to have time between flare ups but now I'm in pain daily and in enough pain daily to take pain medications and muscle relaxers to combat it, just to feel a little better. The pain never really goes away, but the medications make it tolerable. I hope that you will fare better than I have. Exercise helps, but it's hard sometimes to pace myself. I have found the best exercise to be the water classes offered at my gym. I go to the fibro taylored class they have 2x a week. On the other days I go to a low impact aerobics class for seniors, which works out for me. I am always the youngest in the class, but the other ladies are very nice to me so I don't really feel awkward anymore. On the weekends I do pilates at home, which causes more pain and soreness than the water aerobics, but it's not as bad as it used to be when I didn't do the water aerobics at all. I definately recommend taking water classes. If they only offer standard water aerobics you can always tone it down for yourself. Walk when you get to tired instead of jogging,etc.

Jeni

"I do not fear death. I had been dead for billions and billions of years before I was born, and had not suffered the slightest inconvenience from it."

www.jenireadabook.blogspot.com/


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HAPINANA's Photo HAPINANA SparkPoints: (15,475)
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5/28/12 6:23 P

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mamajo... not sure if this will help, but just read in my new Fibromyalgia Network magazine about home spa remedies.... Salt Water Spa Bath instead of the shower... soak 20-30 min per day. www.saltworks.us and click on Salt Info. 1/3-1/2 cup of salt (Sea Salt, Dead Sea Salt and Epsom) Sounds really really good to me... Gonna try it for sure. emoticon www.saltworks.us

Edited by: HAPINANA at: 5/28/2012 (18:24)
CAROL
I "BELIEVE" IN ME!


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MAMAJO1958's Photo MAMAJO1958 Posts: 4,387
5/28/12 3:05 P

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Just took a shower and it damn near killed me...crying because this just isn't right!
emoticon

~~~Jo~~~






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5/25/12 10:26 P

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well thanks for posting... just thought it was me?? (oh it is LOL) Gotta laugh about it I guess. So far haven't broken anything. Like you say, just frustrating at times. emoticon

CAROL
I "BELIEVE" IN ME!


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GEEKSMEGGLY's Photo GEEKSMEGGLY Posts: 5,549
5/19/12 9:04 A

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HAPINANA,
I also drop things constantly, Just trying to manuever the key in the door has become exasperating. emoticon
My fine motor skills are not what they once were, that is for sure. emoticon



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ASHAIXIM's Photo ASHAIXIM Posts: 2,611
5/18/12 3:45 P

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I use a Nature Made (I think - it's one of the two big brands that Walmart sells) and I THINK it has magnesium in it. I know it also has something like glucomane or something in it too. If you look at the front label on the bottom it says it's for "Nerve Health". I started taking those and while my rhumotologist says it's all in my head I think it REALLLY helps reduce cramps.

I drop things too but it's because I have a nerve pinched between two herniated discs and I'm having surgery 6/6. The pain and lack of being able to move freely right now are my biggest obstacles. Previously it was that my back (lumbar) kept going out mixed with chronic clinical depression / suicidal state that I was in last spring :P

Edited by: ASHAIXIM at: 5/18/2012 (15:46)
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HAPINANA's Photo HAPINANA SparkPoints: (15,475)
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5/17/12 10:43 P

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emoticon Lately I have been dropping everything. I think I have it in my hand, but... oops there it goes. It's driving me crazy. What is that?? Anyone else?? emoticon

CAROL
I "BELIEVE" IN ME!


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DUSTYPRAIRIE's Photo DUSTYPRAIRIE Posts: 8,726
5/1/12 7:46 A

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I talked to my PA about potassium, another thing that may help with spasms and restless leg. She thought a multi would cover it. I got the feeling she wanted to help, but didn't have enough knowlege on the subject. My next step - seeing if insurance will cover a dietician.

I also graze throughout the day. One other thing I do I didn't see mentioned is drinking a protein drink in the am. The one I use is Andrew Lessman"s Secure. It's full of vitamins and minerals, low glycemic and less than 80 calories to boot. I stock up when HSN has him on the air because his products are cheaper and there's no postage. I'm telling you this because it helped me to be able to get the nutrition w/o the nausea.



Edited by: DUSTYPRAIRIE at: 5/1/2012 (07:59)
Bri from Colorado, MDT
MICHELLE311106's Photo MICHELLE311106 SparkPoints: (22,699)
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4/24/12 3:04 P

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when I am hospitalized with migraines and they use magnesium there, I get no relief from either pain in the butt problem. I wish that I could get relief from one or the other

Shell

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GEEKSMEGGLY's Photo GEEKSMEGGLY Posts: 5,549
4/20/12 3:00 P

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I have used Corvalen M for years with great results. It is a magnesium ribose malate supplement.

I found out my muscle cramps in the arm are coming from a pinched nerve. So now I am getting treatments and feel better already.
It is so discouraging that as soon a you feel like you are on top of symptoms some other pain pops up. emoticon
It is exhausting to always be looking for workarounds for the ever changing (or not changing) complaints.



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LKG9999's Photo LKG9999 Posts: 1,375
4/19/12 10:50 A

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Michelle, interesting that you mention magnesium. There also seems to be some indications that magnesium may help fibro; try googling and and you'll see numerous articles on it. Anyone had any experience with improved symptoms with magnesium?

Lisa

"Be more stubborn than the scale." - Vivian Bedoya (BEMORESTUBBORN)

"There are many ways of going forward, but only one way of standing still."
-Franklin D. Roosevelt


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MICHELLE311106's Photo MICHELLE311106 SparkPoints: (22,699)
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4/17/12 9:31 P

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Geeksmeggly if your potassium level is ok then you might want to get your magnesium levels checked. Magnesium also plays a role in cramps.

Shell

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GEEKSMEGGLY's Photo GEEKSMEGGLY Posts: 5,549
4/15/12 11:45 A

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Thanks Lisa,
I will look into increasing my potassium.



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LKG9999's Photo LKG9999 Posts: 1,375
4/15/12 10:49 A

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Geeksmeddley - Just a thought, have you tried increasing potassium? It's supposed to help with nighttime leg cramps.

SMidgon - I think for us with Fibro/CFS it can be a vivious cycle. Increased stress makes us more tired, and the more tired we are the more stressed we feel. Do you have any family or friends who can help, even just visiting with you and your husband? Hang in there!
emoticon

Lisa

"Be more stubborn than the scale." - Vivian Bedoya (BEMORESTUBBORN)

"There are many ways of going forward, but only one way of standing still."
-Franklin D. Roosevelt


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SMIDGON's Photo SMIDGON Posts: 4,233
4/15/12 5:38 A

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I have been exceptionly exhausted. Don't know if just from the Fibro. and CFS or from hubby having had surgery. Probably both!

"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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4/14/12 10:16 P

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Muscle spasms in the upper arm and shoulder are increasing lately. I can get through the day with distractions and massage or heat. But waking up at night with severe cramps is taking a toll on any good rest I was getting. emoticon



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LKG9999's Photo LKG9999 Posts: 1,375
4/13/12 10:32 A

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"Tired and achy" - story of my life. I find it can be challenging to balance the need for extra rest and exercise. I have found that sometimes when I am feeling poorly some gentle, light exercise does help. It's best if I can do both - some exercise and extra rest. Unfortunately, time constraints don't always allow for this.

Lisa

"Be more stubborn than the scale." - Vivian Bedoya (BEMORESTUBBORN)

"There are many ways of going forward, but only one way of standing still."
-Franklin D. Roosevelt


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DUSTYPRAIRIE's Photo DUSTYPRAIRIE Posts: 8,726
4/12/12 12:39 P

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I'm just spacey today. Not exactly dizzy, but in a sort of fog. I ate a balanced breakfast and exercised. What else can I do?

Bri from Colorado, MDT
DIETER27 Posts: 6,326
4/12/12 11:45 A

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My obstacle today is that I am so tired and achy. I am trying to get myself motivated to exercise and I just bwant to sleep. The weather is not helping. Everyone have a nice day! emoticon

SMIDGON's Photo SMIDGON Posts: 4,233
4/4/12 6:24 A

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You are so young. But, I do have good news for you!
Being such a young age, there is a possibility that within your life time there just might be a cure for Fibro..
Those of us who are older or much older than you, don't have much of that possibility. I am old enough to be your GM. I have GC from 7yrs.-26 years. I will soon be 72 yrs..

"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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