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LINDIEMAE's Photo LINDIEMAE Posts: 31,139
8/19/13 7:10 P

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I did find out from my eye Dr that my eye conditions r table and have not worsened - probably due to vitamins n ground flax seed - good going Claire !!"

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Mantra for 2014 - " The only time you can coast in life is when you are going downhill" - A. Roger Merrill


Many of the truths we cling to depends on our point of view ... Obi Wan-Kenobi

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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
8/19/13 6:37 P

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I don't have the results on paper yet, but they called with the results. I haven't changed much - NSV! - so I've got 'porosis in my spine and 'penia in my hip. Neither are very serious yet.

I also tested low for Vitamin D and got permission to from my kidney doc to take 2000 IU twice a day. Hopefully, that takes care of it. How is everyone else doing?

Claire
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LINDIEMAE's Photo LINDIEMAE Posts: 31,139
5/5/13 10:59 P

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We all have to follow the food management that is best for our primary health condition. Hense, for me, my heart which is primary and bone health secondary.

Some people eat live the same and never have a health issue till zero day.

Its good to hear you are doing well with your kidneys. Keep up the maintenance with that !

Vancouver BC Canada -

Mantra for 2014 - " The only time you can coast in life is when you are going downhill" - A. Roger Merrill


Many of the truths we cling to depends on our point of view ... Obi Wan-Kenobi

https://www.fitbit.com/user/26P527


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
5/5/13 10:16 P

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While I don't have any new osteo related news, I met with my nephrologist (kidney doc) the other day and was very pleased to learn that my kidney function is hanging tough and staying stable! They still don't work at full capacity, but I can live very well as they are. The biggest maintenance activity is, yes, say it with me, DIET.

It's a hard diet to follow because all the things normally considered good for us is bad for diseased kidneys. Beans, seeds, whole grains, dried anything (like fruits), bananas, potatoes, tomatoes... all are off Claire's diet. I eat processed wheat flour based grains, white rice, and lots of veggies. The diet is low protein, too.

Sticking to it, though, is keeping off dialysis and that's just fine with me!

Claire
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LINDIEMAE's Photo LINDIEMAE Posts: 31,139
3/6/13 11:41 P

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LIke Clarie says you have to know what you can and can not do, as a simple move can cause a lot of discomfort and pain - just because someone ( info commericials and the like ) says its a good video for osteoporosis does not mean it is, remember this is a billion trillion dollar business now and everyone is trying to get into the $$ - so know what you can and can not do and modify any move you think should be modified. I have to do the same at cardio rehab as sometimes the cool down has moves I know I can not do, twisting and bending forward - course I bend a lot petting the cat, you can not avoid all twisting and bending...

Vancouver BC Canada -

Mantra for 2014 - " The only time you can coast in life is when you are going downhill" - A. Roger Merrill


Many of the truths we cling to depends on our point of view ... Obi Wan-Kenobi

https://www.fitbit.com/user/26P527


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
3/6/13 11:31 P

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There are lots of osteo exercise dvd's. If you google 'osteoporosis exercise DVD' you'll find several listed. I've bought several and they all do pretty much the same things.

If you go to YouTube and search for 'osteoporosis exercise' and several videos pop up. I use those a lot!

Also, I do tapes that are labeled 'low impact' and just modify the moves that involve twisting and forward bending.

Have a blast!


Claire
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EROSE1311's Photo EROSE1311 SparkPoints: (27,508)
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3/6/13 3:16 P

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What dvd are you talking about osteoporois?

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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
3/5/13 5:48 P

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LindieMae,

Prolia is a new osteo drug given by injection every 3/6? months. My family doc had to refer me to an endocrinologist to discuss the med. It is getting the same reviews that other drugs are getting - after about 5 years, the drug is more detrimental than helpful.

I'm sending good vibes your way, ERose1311! Let us know when you get the news.

Claire
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EROSE1311's Photo EROSE1311 SparkPoints: (27,508)
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3/5/13 5:32 P

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I am going to get my first test done in about two weeks.


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LINDIEMAE's Photo LINDIEMAE Posts: 31,139
1/13/13 2:07 P

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Beth, what exactly is this shot you are taking ? Glad that your benefits are covering most of it, and what are the short term/ long term side effects of this medicine, can you tell us more about it as it might be an option for others ...

Good going on the DVD for osteoporosis, I am doing well at my cardio - which makes my osteoporosis secondary - heart being first to be attended to ..

Vancouver BC Canada -

Mantra for 2014 - " The only time you can coast in life is when you are going downhill" - A. Roger Merrill


Many of the truths we cling to depends on our point of view ... Obi Wan-Kenobi

https://www.fitbit.com/user/26P527


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BETHV61's Photo BETHV61 SparkPoints: (36,986)
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1/13/13 8:45 A

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Just wanted to let you know I started the Prolia shot. It seemed like the best out there. Thank goodness my insurance covers all but $25 of it. I'm taking calcium citrate, vit. D and magnesium along with a low dose of a diuretic. Seems I'm losing calcium through my urine. Also got a exercise DVD for osteoporosis that got great reviews. I also have to be extra careful now with my knee because I have a meniscus tear. So I have a hinged knee brace to wear when I work out. So far no side effects from the shot :) I like the shot because I only get it 2x a year. I'll have to see if it offers any improvement when I get my next dexa.

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LINDIEMAE's Photo LINDIEMAE Posts: 31,139
1/7/13 9:35 P

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Dusty, I had to smile when you posted what you have learnt from Dr William Davis, I used to get his blogs all the time and aware of his big rant against wheat - but its the dwarf wheat that is in our processed foods today, I think ancient grains are ok or some forms of grains are ok. But I was so smiling when I read your post - good for you for doing research - going wheatless will be a big big challenge as they put wheat glutten in EVERYTHING from foods to lip balm !! So your really going to have to just go non processed or go ancient grains if you prefer to have breads. I have 2 slices of chia/flax and yes it has wheat in it but no preservatives - since I am illergic to shell fish and I need those omegas, that out weighs the wheat.

But do come back and provide tips on this. Your welcome to post in the bone chat area too emoticon

Vancouver BC Canada -

Mantra for 2014 - " The only time you can coast in life is when you are going downhill" - A. Roger Merrill


Many of the truths we cling to depends on our point of view ... Obi Wan-Kenobi

https://www.fitbit.com/user/26P527


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GOLDDUSTTWIN's Photo GOLDDUSTTWIN SparkPoints: (78,175)
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1/7/13 4:44 P

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A lot of changes coming my way….I was seen at the clinic …I was told the note was just an alert so she read about my osteoporosis. I told her I would not go on medication because I had been on Fosamax for almost a decade and every year I loss bone mass.
I am going on Bone up which has calcium and all the trace minerals as well as Vitamin D.

She has put in a referral for the Nutritionist and for Physical Therapy….as I know what I cannot do …now need to know what I can do…

And…big one here…HUGE ONE ACTUALLY… return to real, unprocessed foods as often as possible which means going off all wheat and wheat products…Dr. William Davis, a preventative cardiologist believes wheat to be a culprit to many of my ailments. He wrote:
Wheat Belly: Lost the Wheat, Lose the Weight & Find your Path back to Health.
He had people remove wheat because 80% of his cardiac patients were diabetic or pre-diabetic both situations that double or triple heart disease risk.
He started recommending a wheat free diet with his patients because wheat products raise the blood sugar more than a snickers bar. In 6 months he found blood sugars and HbA1c much lower to the point that some diabetics were no longer diabetic….and weight loss up to 30 lbs in 6 months…and lost inches. Issues like arthritis, sinus congestion, migraines plus many more were gone.
His conclusion: Wheat was the underlying cause for an incredible array of health problems and weight gain, and that eliminating it was key to astounding health.
Consumption of wheat, due to its unique carbohydrate, amylopectin A, triggers formation of small, dense LDL particles more than any other common food. Small, dense LDL particles are the number one cause for heart disease in the U.S. And get this there is a protein in wheat that triggers increased appetite…making you eat more and gain yet more weight! From the head down to the toes, there is no body system not affected by consumption of wheat.
ALSO he states wheat is a weak opiate…that’s right an opiate and the more you eat it the more you want. The gliadin of wheat is converted to exophins, morphine-like compounds that can be blocked with opiate-blocking drugs.
It all ties in together... leading to the realization that eliminating wheat has shown results of:
1. lower cholesterol Of higher HDL and Lower LDL
2. weight loss of 30 lbs!!!!
3. Lower r a1c’s and blood pressure readings
4. elimination breathing problems
5. reduced inflammation and a reduction in risk for heart disease
Off to learn more



´¨¨)) -:¦:-
¸.•´ .•´¨¨))May you have Butterfly Mornings and Wildflower Afternoons!
((¸¸.•´ .•´ -:¦:-
-:¦:- ((¸¸.•´* Dusty



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LINDIEMAE's Photo LINDIEMAE Posts: 31,139
1/4/13 7:36 P

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Thanks for commenting Claire, when I saw the post I was at work and did not want to respond on my iphone - but I agree with all you said.

ATN: attention needed - sure we all need to pay attention to things, but who is paying the radiologists wages - what encourages them to play doctor or to recommend treatment, what investments do they have in what medicines ... some things we do not necessarily think about, same with doctors...

Do your home work, ask questions, get answers and do not be intimidated with scare tactics ...

Vancouver BC Canada -

Mantra for 2014 - " The only time you can coast in life is when you are going downhill" - A. Roger Merrill


Many of the truths we cling to depends on our point of view ... Obi Wan-Kenobi

https://www.fitbit.com/user/26P527


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LINDIEMAE's Photo LINDIEMAE Posts: 31,139
1/4/13 7:32 P

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Sounds like a good combination, but remember the body can only absorb so much at one time, hence I take my bone builder 3 x a day with extra vitamin d3 - and magnesium - there is actually 18 essential vitamins and minerals that our bones need never mind the rest of the body.

I am surprised that the radiologist said anything, they are not experts, or doctors and unless you use the same machine and radiologist for the tests each time you will get different results.

I question their scale because it was done over 10 years ago and we know the population has changed, not to mention benefits them to have you -3 etc. That scares most people into taking the medication they recommend. ALWAYS read the disclaimer before taking ANY medication, prescription or other wise .. I watched a tv show on that ...

Osteoprime is another good natural source, but I elected to take Bone Builder by Genuine Health.

Keep us informed on how its going, and if you have any information to share, do share emoticon

Vancouver BC Canada -

Mantra for 2014 - " The only time you can coast in life is when you are going downhill" - A. Roger Merrill


Many of the truths we cling to depends on our point of view ... Obi Wan-Kenobi

https://www.fitbit.com/user/26P527


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GOLDDUSTTWIN's Photo GOLDDUSTTWIN SparkPoints: (78,175)
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1/4/13 6:31 P

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thank you for your response...
No .....to answer your questions...the Attn; needed is coming from the radiologist who read the DEXA scan

I am looking at switching from the calcium I have been taking to
Jarrow Formulas BONE-UP

IThe OHC in Jarrow Formulas BONE-UP is combined with vitamin D3 and vitamin K2 as MK-7 (a more bioavailable form of vitamin K) to support the deposition of calcium into the bones as well as to assist in building up the organic bone matrix. Potassium citrate is also added for optimal osteo support.

´¨¨)) -:¦:-
¸.•´ .•´¨¨))May you have Butterfly Mornings and Wildflower Afternoons!
((¸¸.•´ .•´ -:¦:-
-:¦:- ((¸¸.•´* Dusty



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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
1/4/13 5:19 P

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Do you have a sense of what s/he meant by "attn needed"?

There's quite a bit of controversy these days about taking drugs for osteo; many studies are finding that taking them more than 5 years is causing more thigh bone fractures (one of our strongest bones!) So, you'll need to have a serious conversation with them about whether they are worth the risk to you or not. If your doc waves off the 5 year concern thing, I would be very careful evaluating the care recommendations you receive from this person. If you truly talk through it and s/he still recommends drugs, then you have to follow your instincts.

Other than that, our best tools are weight bearing exercises and stable levels of calcium, vitamin D and ... magnesium, I think. Many people take mega doses of calcium and Vitamin D. Since my serum levels are normal, my doc doesn't want me to take extra.

I pay attention to how I move now, whereas before I paid no attention. I make sure I don't bend and twist; I lift things by squatting, not bending; I don't lift things over 15 lbs or so; I lay on the floor about 20 minutes a day to remind my back what straight is!; i try very hard to maintain proper posture. It's very important to build a strong core and really work at balance exercises to reduce the chance of falling. In addition, it's important to strengthen your wrists so they're less likely to break when you try to catch yourself when you do fall. (I wring hand towels alot!)

These are the principle osteo care opportunities. It will be great if your doc has some new suggestions for us!

Claire
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Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
GOLDDUSTTWIN's Photo GOLDDUSTTWIN SparkPoints: (78,175)
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1/2/13 5:23 P

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Just received test results...hadn't had a Dexa scan in 3 yers...bones are worse.
Spine -3.0 T score
Hip 0.2
femoral neck -0.6
Says signifant abnormailyt, attn needed...won't hear from Dr for a week...any insight out there would be helpful

´¨¨)) -:¦:-
¸.•´ .•´¨¨))May you have Butterfly Mornings and Wildflower Afternoons!
((¸¸.•´ .•´ -:¦:-
-:¦:- ((¸¸.•´* Dusty



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LINDIEMAE's Photo LINDIEMAE Posts: 31,139
12/5/12 12:33 P

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Yes they can be that different and you can get different results. I have had 2 by the same tec on the same machine - the results showed no improvement but no loss either ..

Its not an exact science and the ususal is to prescribe - read the disclaimer before you do, be aware of what you are taking and what the results of that medicine can be. Even herbal can be dangerous if not taken correclty.

Take the time to inform yourself, unless you trust your dr implicitly - and last but not least, ask them what they are taking, because even a teenager can have bone issues due to lack of good health and good eating habbits, not getting exercise etc.

Vancouver BC Canada -

Mantra for 2014 - " The only time you can coast in life is when you are going downhill" - A. Roger Merrill


Many of the truths we cling to depends on our point of view ... Obi Wan-Kenobi

https://www.fitbit.com/user/26P527


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BETHV61's Photo BETHV61 SparkPoints: (36,986)
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12/5/12 8:57 A

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No, different machines in different states. But could they be that different in bone scores? My dr doesn't think so and we're now discussing Prolia. He thinks that is the best way for me to go because it builds bone density the most compared to the other drugs. He's also testing for other reasons I'm losing bone density at such a young age.

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LINDIEMAE's Photo LINDIEMAE Posts: 31,139
11/15/12 11:28 A

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Were your tests done on the same machine with the same tec? Sometimes dif tec n machines can give dif results - more tonite when i get home!

Vancouver BC Canada -

Mantra for 2014 - " The only time you can coast in life is when you are going downhill" - A. Roger Merrill


Many of the truths we cling to depends on our point of view ... Obi Wan-Kenobi

https://www.fitbit.com/user/26P527


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BETHV61's Photo BETHV61 SparkPoints: (36,986)
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11/15/12 11:06 A

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I'm new here :) I just got my second DEXA in Oct. Results have worsened from 2 years ago. My scores in 2010 were Spine -2.8, Femoral -2.8, Hip -1.8. Now my results are Spine -3.7, Femoral -3, and Hip -2.3. Looks as if medication may be in order and I'm not big on medications. Going to discuss options with my dr at next apt. I'm 51 and we're going to see also if my bone loss is caused from something other than menopause and age.

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JOHN4FITNESS's Photo JOHN4FITNESS SparkPoints: (11,527)
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3/20/12 5:08 A

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Hi friends,
My bone density test of sept. 2011 was sad: -3.9 hip; -4.0 spine; -4.1 thigh. I take calcium and Actonel. Am glad y'all got better scores than me!!!
John

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LINDIEMAE's Photo LINDIEMAE Posts: 31,139
3/13/12 1:57 A

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I have not had a test done this year. The last time I had the test done, I was told by the Dr not to come back if I was not going to use the meds they recommended, that I could not just use their machine because of the cost involved. Did not matter that my dr recommended this "expert" and did not matter that the cost was covered by provincial health care, but two times I used their services for the measure ment and two times I turned down their program for drugs....

So I was -3.2 in the spin and -2.1 in the hips or something like that...

I have not bothered since then... and I am ok with that ...

Vancouver BC Canada -

Mantra for 2014 - " The only time you can coast in life is when you are going downhill" - A. Roger Merrill


Many of the truths we cling to depends on our point of view ... Obi Wan-Kenobi

https://www.fitbit.com/user/26P527


 current weight: 207.7 
 
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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
2/28/12 11:12 P

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I had my test in September, 2011

-1 or above is ok; -1 thru -2.5 is osteopenia; -2.5 or less is osteoporosis.

My results:
-0.8 Left wrist
-0.8 Left hip
-1.3 Femoral Neck (top of leg)
-2.75 Spine


Claire
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