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SHELTER-PETS's Photo SHELTER-PETS Posts: 2,989
4/24/14 2:43 P

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My daughter has leg length discrepancy and it so we spend a lot of our time motivating walking and stretching. Her build up for her shoe is broken, so we get to fix that soon. In the meantime, lots of stretching!

Edited by: SHELTER-PETS at: 6/5/2014 (06:18)
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YUDEL6024KA's Photo YUDEL6024KA Posts: 323
10/21/13 6:47 P

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Hello great massage

Slow but sure


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YUDEL6024KA's Photo YUDEL6024KA Posts: 323
9/29/13 9:57 A

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hi all im new and learning, great community here love the massage board

Slow but sure


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TANYAMWA's Photo TANYAMWA SparkPoints: (4,966)
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9/14/13 7:53 A

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That is beautiful Sharon!



Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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IAM_HIS's Photo IAM_HIS Posts: 45,349
9/8/13 8:03 A

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Dear Mom,

Even without my words, you always know what I need.

When I am hurting or afraid, frustrated or weary, you gather me home into the safety of your arms.

You know what makes me smile and fills my face with light.

You make me happy when you sing my favorite song and sweep the softness of my favorite blanket across the curve of my cheek. And when you take me for walks and I feel the warmth of the sun, the cool breeze brushing by my skin.

You ignore the words of others telling you what I cannot do, and then fill the hours of every day telling me what I can.

Every day, you see other kids doing more, yet you celebrate me. Pushing away sadness, you focus on the hope of my future. You let my simple, small steps lead us forward.

Never standing still, always in motion, you move before me. Your planning, protective and positive, prepares me for success -- meeting new people and new everyday challenges.

... and Mom, in case I ever go before I can whisper my words of thanks, or wrap my arms around you, know what I know: That before you someday soothe me into heaven's sleep, with you, I live the fullest life and I see the world through your understanding eyes. With your gentle touch, you fill my life to overflowing with the greatest kind of love.


Yes, Mom W/ Special needs Children are of great value! God made you very special, like your child. It is very hard work to be a special needs child's mom, but it is so very worth it!!

Edited by: IAM_HIS at: 9/8/2013 (08:07)
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IAM_HIS's Photo IAM_HIS Posts: 45,349
9/7/13 10:42 A

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How blessed we are to be given the awesome gift to encourage our child's spirit and give him/her hope! We are able to do that daily...to me, that is a true blessing.

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IAM_HIS's Photo IAM_HIS Posts: 45,349
9/6/13 6:53 P

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So glad you liked this...I cried for over 10 minutes and it took me a L O N G time to get through it.

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JILL4KELLY's Photo JILL4KELLY Posts: 107
9/6/13 2:55 P

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WOW!! That took me about 6 different tries to get all the way through without crying (I'm at work, so it would just be totally embarrassing). It's so nice to have others who understand. I had a co-worker the other day who started getting it when she said to me, "I just realized that you've been changing diapers for 25 years." Ha! I hadn't even thought of that one, it just never ended LOL!

Thank you for sharing this Sharon, I'm passing the link on to others!

Jill, Mom to Kelly who is 25 years old, has the physical capabilities of an infant, mentally 1-2 year old, controlled seizures, vision problem, and is the absolute happiest person I know. She is a true Blessing!


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9/6/13 10:45 A

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Thoughts of a Mom
(http://community.babycenter.com/post/a2
806005/great_poem)
By Maureen K. Higgins

Many of you I have never even met face to face, but I’ve searched you out every day. I’ve looked for you on the Internet, on playgrounds and in grocery stores. I’ve become an expert at identifying you. You are well worn. You are stronger than you ever wanted to be. Your words ring experience, experience you culled with your very heart and soul. You are compassionate beyond the expectations of this world. You are my “sisters.”

Yes, you and I, my friend, are sisters in a sorority. A very elite sorority. We are special. Just like any other sorority, we were chosen to be members. Some of us were invited to join immediately, some not for months or even years. Some of us even tried to refuse membership, but to no avail.

We were initiated in neurologist’ s offices and NICU units, in obstetrician’ s offices, in emergency rooms, and during ultrasounds. We were initiated with somber telephone calls, consultations, evaluations, blood tests, x-rays, MRI films, and heart surgeries.

All of us have one thing in common. One day things were fine. We were pregnant, or we had just given birth, or we were nursing our newborn, or we were playing with our toddler. Yes, one minute everything was fine. Then, whether it happened in an instant, as it often does, or over the course of a few weeks or months, our entire lives changed. Something wasn’t quite right. Then we found ourselves mothers of children with special needs.

We are united, we sisters, regardless of the diversity of our children’s special needs. Some of our children undergo chemotherapy. Some need respirators and ventilators. Some are unable to talk, some are unable to walk. Some eat through feeding tubes. Some live in a different world.

We do not discriminate against those mothers whose children’s needs are not as “special” as our child’s. We have mutual respect and empathy for all the women who walk in our shoes.

We are knowledgeable. We have educated ourselves with whatever materials we could find. We know “the” specialists in the field. We know “the” neurologists, “the” hospitals, “the” wonder drugs, “the” treatments. We know “the” tests that need to be done, we know “the” degenerative and progressive diseases and we hold our breath while our children are tested for them. Without formal education, we could become board certified in neurology, endocrinology, and psychiatry.

We have taken on our insurance companies and school boards to get what our children need to survive, and to flourish. We have prevailed upon the State to include augmentative communication devices in special education classes and mainstream schools for our children withcerebral palsy. We have labored to prove to insurance companies the medical necessity of gait trainers and other adaptive equipment for our children with spinal cord defects. We have sued municipalities to have our children properly classified so they could receive education and evaluation commensurate with their diagnosis.

We have learned to deal with the rest of the world, even if that means walking away from it.

We have tolerated scorn in supermarkets during “tantrums” and gritted our teeth while discipline was advocated by the person behind us on line.

We have tolerated inane suggestions and home remedies from well-meaning strangers.

We have tolerated mothers of children without special needs complaining about chicken pox and ear infections.

We have learned that many of our closest friends can’t understand what it’s like to be in our sorority, and don’t even want to try.

We have our own personal copies of Emily Perl Kingsley’s “A Trip To Holland” and Erma Bombeck’s “The Special Mother.” We keep them by our bedside and read and reread them during our toughest hours.

We have coped with holidays. We have found ways to get our physically handicapped children to the neighbors’ front doors on Halloween, and we have found ways to help our deaf children form the words, “trick or treat.” We have accepted that our children with sensory dysfunction will never wear velvet or lace on Christmas. We have painted a canvas of lights and a blazing Yule log with our words for our blind children. We have pureed turkey on Thanksgiving. We have bought white chocolate bunnies for Easter. And all the while, we have tried to create a festive atmosphere for the rest of our family.

We’ve gotten up every morning since our journey began wondering how we’d make it through another day, and gone to bed every evening not sure how we did it.

We’ve mourned the fact that we never got to relax and sip red wine in Italy. We’ve mourned the fact that our trip to Holland has required much more baggage than we ever imagined when we first visited the travel agent. And we’ve mourned because we left for the airport without most of the things we needed for the trip.

But we, sisters, we keep the faith always. We never stop believing. Our love for our special children and our belief in all that they will achieve in life knows no bounds. We dream of them scoring touchdowns and extra points and home runs. We visualize them running sprints and marathons. We dream of them planting vegetable seeds, riding horses and chopping down trees. We hear their angelic voices singing Christmas carols. We see their palettes smeared with watercolors, and their fingers flying over ivory keys in a concert hall. We are amazed at the grace of their pirouettes. We never, never stop believing in all they will accomplish as they pass through this world.

But in the meantime, my sisters, the most important thing we do, is hold tight to their little hands as together, we special mothers and our special children, reach for the stars.


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IAM_HIS's Photo IAM_HIS Posts: 45,349
9/3/13 8:46 P

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emoticon emoticon

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TANYAMWA's Photo TANYAMWA SparkPoints: (4,966)
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9/3/13 8:44 P

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Getting the mojo back!

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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IAM_HIS's Photo IAM_HIS Posts: 45,349
9/3/13 10:22 A

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"The heart of a mother is a deep abyss at the bottom of which you will always find forgiveness."- Honore de Balzac

What an honor we have as being mothers!!!

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TANYAMWA's Photo TANYAMWA SparkPoints: (4,966)
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8/10/13 11:25 A

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You are right. It is absolutely worth it! And it sure does beat the alternative!

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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IAM_HIS's Photo IAM_HIS Posts: 45,349
8/8/13 6:30 A

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Wow, it is almost the weekend. Today is a busy day for me. I am going to go school clothes shopping, have a planning meeting to go to and a special Mass at 7 PM and social after Mass.

When you look back on all the appointments, therapy, sleep less nights, tears, triumphs, milestones, equipment, ignorance, struggles and strengths--you will say will certainty...IT WAS ABSOLUTELY WORTH IT!

Edited by: IAM_HIS at: 8/8/2013 (06:35)
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IAM_HIS's Photo IAM_HIS Posts: 45,349
7/29/13 9:57 A

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I am excited that we will be going on holiday.

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IAM_HIS's Photo IAM_HIS Posts: 45,349
7/26/13 8:38 A

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I think my daughter is beautiful and she really is. It is so surprising how much she is changing in her looks now. Also, the pictures really can capture her attitude about her self-esteem. I can learn so much from them.


Your children will not remember you for the material things you provided, but for the feeling that you cherished them. ~ Richard Evans~

Edited by: IAM_HIS at: 7/26/2013 (08:40)
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TANYAMWA's Photo TANYAMWA SparkPoints: (4,966)
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7/26/13 7:09 A

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Oh yes. When I was little my parents didn't have much money so there are very few pictures of me until I am about 4 and then there are a ton of my little sister--I know that it's usually the other way around though. emoticon emoticon

I didn't want to take pictures because I had this diluted thinking that Angie's problems would just resolve and I didn't want to remember the hard times. And that was a mistake.

I love each one of my children just the way that they are and I want to remember everything because it is passing by so quickly.

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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IAM_HIS's Photo IAM_HIS Posts: 45,349
7/25/13 3:36 P

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Thank you for this. As a child my Mum took no pictures of me. I was my father's only child and my Mum's second. It always made me feel badly because there were so many of my sister (she was my mother's first child). I have many of my daughter up until recently. So it's time to get the camera out and start snapping.

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JILL4KELLY's Photo JILL4KELLY Posts: 107
7/25/13 1:28 P

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Tanya, My little sister is the 3rd in the family and often mentions how few pictures of her that my Mom has than the other 2 :) It's just a pattern, you have less time and know what to expect anyway. Even my one child has few pictures starting around age 8 until we got a digital camera and I didn't have to wonder about film cost and printing. Now that my phone has a camera, I do tend to take more photos of her and videos too.

Lesson here is - get out the camera and start snapping! But most of all, enjoy them while they are little!

Jill

Jill, Mom to Kelly who is 25 years old, has the physical capabilities of an infant, mentally 1-2 year old, controlled seizures, vision problem, and is the absolute happiest person I know. She is a true Blessing!


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7/24/13 6:14 A

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“When we do the best we can, we never know what miracle is wrought in our life, or in the life of another.”

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TANYAMWA's Photo TANYAMWA SparkPoints: (4,966)
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7/23/13 9:15 P

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I was just kicking myself the other day for not taking more pictures. I have plenty of pictures of my oldest two as babies, but I have just a handful of my youngest one. I only took two pictures of her on the ventilator when she was so young and I lost those when my phone broke. I really want to see just where we have come from.

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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JILL4KELLY's Photo JILL4KELLY Posts: 107
7/23/13 2:43 P

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Absolutely spot on quote! I couldn't have said it better or more precise. When I was young, I had always wanted a large number of typical children; not that I am older, I realize the growth in my own life from having one severely disabled child.

Jill, Mom to Kelly who is 25 years old, has the physical capabilities of an infant, mentally 1-2 year old, controlled seizures, vision problem, and is the absolute happiest person I know. She is a true Blessing!


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7/23/13 7:58 A

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"Being a mother is not about what you gave up to have a child, but what you've gained from having one."

It is so surprising, when we stop to look back, to see how much we have learned and gained from our special needs child/ren. They are truly a blessing!!

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IAM_HIS's Photo IAM_HIS Posts: 45,349
7/21/13 1:06 P

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Hope I can get some rest my daughter is ill today. She gets clingy when she is ill. So I am by her side.

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IAM_HIS's Photo IAM_HIS Posts: 45,349
7/20/13 9:47 P

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Just want to say hello & I think you are great!

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IAM_HIS's Photo IAM_HIS Posts: 45,349
7/19/13 8:09 A

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Think of you Tanya & Jill...praying for you too.


•"Every child is gifted. They just unwrap their packages at different times."
-- unknown Just think, our love helps our children to unwrap their package & to be able to see & feel a victory.

How blessed we are to be the mother of a special needs child. Also, have you thought that perhaps we were chosen by our Heavenly Father to be His special servant? He chose YOU because you are capable of giving the love and patience that a special needs child requires. Just think how much You are loved by God and how He is always there to help YOU and your child.




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IAM_HIS's Photo IAM_HIS Posts: 45,349
7/18/13 4:12 P

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Thank you.

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JILL4KELLY's Photo JILL4KELLY Posts: 107
7/18/13 3:27 P

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Sharon - Oh my goodness! I was reading your latest post very confused since I had read some posts from you yesterday, then went a little further back and voila! I must reiterate what Tanya says - you are an inspiration and I'm glad to have you back too! Just don't feel like you have to write everyday. God first, family second, we are somewhere after that. I know I can't respond everyday - and this is my favorite Team!

Jill

Jill, Mom to Kelly who is 25 years old, has the physical capabilities of an infant, mentally 1-2 year old, controlled seizures, vision problem, and is the absolute happiest person I know. She is a true Blessing!


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7/18/13 8:38 A

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Guess what, my heart drew me back to this team. I left another one. Most of the night I stayed up asking myself "Why did you leave a team where you feel cared about and accepted?" Well, here I am back.

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TANYAMWA's Photo TANYAMWA SparkPoints: (4,966)
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7/18/13 7:53 A

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You have been a big inspiration to me, and someone who understands things from a perspective that not many people can understand. I hope that you reconsider, but I understand. I like you regardless. emoticon

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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7/18/13 7:45 A

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I am sorry to hear that. My kids have been requiring a lot of time these past few weeks too. Lots of appointments, etc. It is not easy, and I will miss you.

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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7/17/13 4:51 P

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Please know that I am leaving the team because my daughter is requiring more of my time. I will be leaving several of my teams.

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IAM_HIS's Photo IAM_HIS Posts: 45,349
7/17/13 11:49 A

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Being a mother is learning about strengths you didn't know you had, and dealing with fears you didn't know existed. And experiencing miracles you never thought you'd see.

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IAM_HIS's Photo IAM_HIS Posts: 45,349
7/16/13 1:45 P

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I too think you are special--when you think about it, God chose you out of all the woman in this world. To me, that is very special. He trusted you with the job and to do the job. He sure wanted you to be close to Him too.

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JILL4KELLY's Photo JILL4KELLY Posts: 107
7/16/13 10:50 A

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People often say to me that I must be special for God to give me such a special child. I always reply that I was not special, that I would not have thought and for years did not think that I could handle this special child; but that God gave me the grace when I needed it, not before so I was full of myself, but along the way so that my reliance on Him is stronger.

This is much more motivational to me then thinking that I am somehow special, because I now know that I can rely on Someone who is Special to make it through, who can help me even when I am weak.

Jill, Mom to Kelly who is 25 years old, has the physical capabilities of an infant, mentally 1-2 year old, controlled seizures, vision problem, and is the absolute happiest person I know. She is a true Blessing!


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7/13/13 9:52 A

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Remember, you give your child special love everyday!

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IAM_HIS's Photo IAM_HIS Posts: 45,349
7/12/13 12:48 A

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Praying your daughter will get the scholarship!

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TANYAMWA's Photo TANYAMWA SparkPoints: (4,966)
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7/12/13 12:27 A

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This morning I was super motivated. I printed out an application for hippotherapy. I had no idea that they could do speech therapy with horses. My daughter is totally obsessed with horses. They had an application for scholarships too. I started filling all this out and will get it finished tomorrow.

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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7/11/13 5:22 P

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“There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle.” (Albert Einstein)

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IAM_HIS's Photo IAM_HIS Posts: 45,349
7/10/13 5:46 A

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Life as a special needs parent is anything but perfect, but as imperfect as it is there always seems to be many opportunities to see how wonderful our lives are really in & out of the special needs bubble

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IAM_HIS's Photo IAM_HIS Posts: 45,349
7/7/13 12:22 P

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The knowledge of what is possible is the beginning of happiness.

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7/5/13 6:56 A

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Today I am motivated too. It was so nice to see the wonderful fireworks that our community puts on. We were also involved in the parades in the community where I work. Just to think of all of the people that have sacrificed. It makes me very proud.

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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7/3/13 4:33 P

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So today I am motivated because I don't have work the next 4 days, my family is in town from Germany (lucky to see them every year, sometimes it's just every other year), AND Kelly goes to day care on Friday. That gives me Friday to spend some real quality time with my family :) I love Kelly to pieces, but she's a lot of work! I no longer feel guilty about getting away sometimes (have gone on trips for up to 3 weeks) - it's really good for both of us (mostly me, but that's okay too).

Jill, Mom to Kelly who is 25 years old, has the physical capabilities of an infant, mentally 1-2 year old, controlled seizures, vision problem, and is the absolute happiest person I know. She is a true Blessing!


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7/2/13 11:53 A

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Well, I too suffer from depression. And lately, it has been hard for me to get out that door. I am really a people person, However, I have to push me out of the house these days. My medicine is causing me to gain weight and I feel so bloated. Yet, if I did not take the medicine, I'd be in a much worst state.

I work very hard everyday with filling my mind with positive thoughts, as well as trying to make others feel good...it's my way of helping me too. I need to give to others so I can be at peace with me.

Thank you for the comment on needing to learn how to be social. My husband has a very difficult time being social. It took me a very long time to understand him. Now I do and I am just beginning to truly see his struggle.

JILL4KELLY, THANK YOU FOR WRITING WHAT YOU DO..it helps me understand so much about my husband's behavior.

TANYAMWA, you, like me, learned to be a negative thinker. Now both of us have to learn to be positive thinkers...a lot has to do with self-talk. That is the area that I have to work on all the time. If I keep my self-talk positive, it seems everything else falls into place.

Edited by: IAM_HIS at: 7/2/2013 (11:57)
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7/2/13 6:37 A

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Thank you for the encouragement. I so needed it. I have battled with depression on and off a few times (even before becoming a mom). This last time I was surprised. A few months ago, I went to the doctor with stomach problems that would just not go away. She did a very thorough examination and told me that there was nothing physically wrong with my stomach (other than a hernia). She listened to me and said that she thought I was suffering these pains due to stress and depression. I had to agree with her that she might be right, and I started taking medicine which has helped a lot.

However, medicine can only do so much. It is a state of mind and you have to do something to make a positive change (at least that is how it works for me). I have to realize what is going on and then be willing to get out of it.

Thank goodness I have a husband that understands me, and three little girls that are amazing. When I get really bad, I will remember that day I almost lost Angie and think about how far we have come.

You are right. It takes time, and that is all that I have. emoticon

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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7/1/13 3:59 P

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Motivation - this has been a difficult one for me. I, myself, suffer from depression, migraines, and IBS; and have realized that I never learned to be social (yes, some people have to learn). Then God gave me a SEVERELY disabled child - slam!

Some days my motivation is to "just make it through". These days used to be the majority; so please take comfort in the knowledge that they decreased slowly and surely for me. Kelly is almost 25 and I can still have those days, but they are more related to my problems than to Kelly's. Only related to Kelly when the doctor says, well, I think she may need surgery (ugh, not again!).

Biggest motivator: My daughter's smile - and her laugh is awesome.

Second biggest motivator: To 'continue in the race' so that when it is finished, God will say to me 'Well done, good and faithful servant'.

Both of these took time too, and they are not there for me every day. Each one of us is human, so don't beat yourself up when feeling unmotivated - you are not alone!

Jill, Mom to Kelly who is 25 years old, has the physical capabilities of an infant, mentally 1-2 year old, controlled seizures, vision problem, and is the absolute happiest person I know. She is a true Blessing!


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6/30/13 12:28 P

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Is it funny, but I feel we need to mother ourselves...what I mean is, we need to give ourselves those loving messages, nurturing support, and encouragement. I am finding that so many people are so busy trying to survive in today's economy that it is difficult to find someone WHO does encourage and support you.

So, I hope I can give you some support & encouragement today...You are a very special Mom, most moms could not do all that you do. It is not easy and many times you feel drained, but you are truly the life giver to your special needs child(ren)...No one but YOU can do what you do. You are God's special angel.

I want you to know that You are Wonderful and Used By God everyday...never think of yourself as nothing...YOU REALLY ARE SOMETHING!

Edited by: IAM_HIS at: 6/30/2013 (12:29)
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6/29/13 8:17 A

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Oh yes! As mother's we are so busy giving to our children, that many times I feel like I lost myself as a person and wonder, "Who am I really?" What you are feeling is very normal.



Edited by: IAM_HIS at: 6/29/2013 (08:18)
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6/29/13 8:11 A

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Do you ever just for a split second feel like the person you are deep down, is a little lost. And your new identity is just so-and-so's mom?

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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6/27/13 9:09 A

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As mothers with Special needs Children, you keep growing strong and more beautiful as a person with each day. You can do so much more than most. Today, think about all your victories and appreciate the gifts you have to give your children....YOU ARE TRULY A PRECIOUS GEM!

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6/26/13 9:52 P

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You are so right. I keep hearing that "it takes fire to sharpen the steal".

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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6/26/13 10:30 A

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“We could never learn to be brave and patient, if there were only joy in the world.”

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6/25/13 5:57 P

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I think this is a good definition of a Mom w/Special Needs Children: "I thing a hero is an ordinary individual who finds strength to preserve and endure in spite of overwhelming obstacles." (Christopher Reeves)

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6/23/13 8:09 A

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Thank you for the encouragement! Sometimes it is hard to remember that we do a good job! emoticon

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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6/23/13 5:57 A

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Challenges make us grow; you’ll never be the same after receiving a child with special needs. You will become a much better person.

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6/22/13 11:18 A

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Remember Mommies of Special Needs Children--You are Special too. Most Mommies could not do what you do. I think you all are AWESOME!

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6/21/13 8:57 P

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I bet that you were a proud mama and rightfully so.

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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6/21/13 7:19 A

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emoticon emoticon Happy 1st Day of Summer--wishing you a spectacular one!! emoticon emoticon emoticon

Enjoy this week-end and have some summer fun!!

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6/20/13 8:45 A

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My daughter motivated me yesterday. We went to visit the elderly with our kitten Leo, who is the most loving fur ball I know. He did a wonderful job of showing love and acceptance for those residence of the home. Plus my daughter did the very same. She is so compassionate and caring with them. I was one proud Mommy.

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6/17/13 5:28 A

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Oh my! She sounds like she is spoiled, spoiled, spoiled. Um. I bet that you are glad that she has gone back to her parents.

I woke up this morning with the old familiar worry.

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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6/17/13 4:16 A

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My daughter is now out of school until Sept. So I need to put together a schedule for her--study & fun.

Edited by: IAM_HIS at: 6/17/2013 (04:18)
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6/16/13 12:18 P

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Our exchange student is gone!! emoticon She pulled a big fast one just before she got on the plane, in front of many people, our exchange student said that my youngest owed her money for using her Ipod and I had to get $___ NOW because she had no money for food while she was traveling. What a con-artist she is--she used my daughter's Ipod all the time she was here. I have no trust or respect for this student and I grateful she is gone. Also, she was upset because we did not give her a going away gift--we have we the party but she felt that we were suppose to. She wanted a large gift from us. Well, she did NOT get one.

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6/16/13 10:11 A

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I am so sorry. It sounds like you definitely need a break. Give her the party, and think about how she will be gone soon the whole time!


Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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6/12/13 10:20 A

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Today is a hard day for me--my RA is acting up big time and I have to get ready for our exchange student's Farewell Party. I honestly did NOT want to have one for her. But I have to do the right thing. Our exchange student has been very tough. She has broken the bed my grandfather made for me--she did not care or say, 'I am sorry", she has NEVER helped clean up ANY of the messes she made, she NEVER threw away any of her garbage and hs no intention of cleaning our her room. However, she has been very good at complaining, whining and demanding.

Yesterday she spent a long time threwing things, swearing and calling her mother ugly names because her mother did not put the amount of money she wanted into her charge account. After a few hours she quieted down and started on my daughter. She began calling my daughter names and bitting her. I stopped that. This was not an uncommon thing for her to do.

I am NOT taking in another exchange student. This girl has been a bad experience for our family.

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6/11/13 6:11 A

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Yes. It is hard to remember that sometimes. When I look back at where we started, I can see how there has been so much progress. Sometimes it is hard to see the forest for the trees. emoticon

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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6/8/13 4:30 P

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Your child's progress might not be that easy to see on a day-to-day basis, but when you reflect from time to time on how far he or she has come, give yourself some credit: Would that progress have happened if you hadn't been planning, praying, pushing for it? Everything you do for your child -- every appointment, every therapy, every intervention, but also every smile, every hug, every conversation -- makes a difference. But you're also making a difference in the world. Every time you give information about your child's disability to an educator, you make a difference for the next child. Every time you give advice in a support group or online forum, you make a difference for that parent and family. You are a force for good.

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6/6/13 5:54 P

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Yes. It is time to do it to it! Time to keep everything spiffy.

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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6/5/13 12:48 P

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Well, I am hopeful that this month will be filled with lots of good things...like de-cluttering the house, sprucing up the front yard and decorating our front porch.

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6/4/13 7:49 P

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Only good things are ahead!

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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6/1/13 1:19 P

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Yes, you did have a week filled with challenges. However, we are now in a new month and hopefully lots of good experiences!

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6/1/13 8:39 A

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This has been a very rough week. We had a barium swallow study, x-rays, and appointment with the hand surgeon. We also had a trip to the E.R. for a cut that my daughter got when she fell this weekend. Then Angie got in trouble at school for taking off one of her boots and hitting her teacher with it.

I appreciate the prayers. I have been spending a lot of time in prayer myself this week.

Angela's swallow study was the best that it has ever been. That has been such a burden lifted, I can't even explain. She will be able to drink regular drinks within the month! She has been on a special diet for her drinks since she was 2 months old. Three and a half years of buying thickener (insurance doesn't cover it), and mixing every single thing that she drank. No more explaining to people why she can't take a sip at the water fountain! No more back packs full of thickener every time we go some where! This is a major thing--freedom! It's true that prayer works.

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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5/26/13 9:23 A

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Hi Tanyamwa, praying for you and hoping to hear some good news!

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5/20/13 5:57 A

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I used to wear corrective shoes back in the day. i remember they were ugly! Maybe there are some new styles now?????

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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5/16/13 6:48 A

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Thank you!! Today is a new day, a new beginning and I feel so much better being home. My sister is in a negative spot right now and I have to omit, it wasn't easy for me when I was at her house. Now that I am house, things look so much better! emoticon

I am going to find a way to make those "ugly shoes" look kinda okay!

Edited by: IAM_HIS at: 5/16/2013 (06:48)
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5/16/13 6:34 A

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All right hon. It sounds like you are having a difficult time right now. It is OK to be upset about that, just don't let yourself feel bad too long. Your problems are not going to go away. You will always have RA, MS, and a special needs child. And I don't know about you, but I myself start to worry a lot when I think about all that is wrong with my life. It makes me feel a little panicky--what if I am really sick and who will take care of my child, and then I just kind of spiral downward from there.

It sounds kind of corny about not being given more than you can handle. But it is true. We have also been talking a lot in one of my Bible classes about the hard times that we go through. No where is it ever said that life will be easy. As a matter of fact, it says that it will be difficult. Because without trials and tribulations you cannot grow. There is a quote about "fire strengthing the steel". I hope that you don't mind me talking about that.

You can do this!

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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5/15/13 4:49 P

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I went to my sister's yesterday and stayed over night. After staying with her, I am concerned about her. She told me she was locking her front door; what she did was unlock it. So A neighbor walked into her house and scared us half-to-death. Since her husband passed on, she is getting forgetful--I feel it's because she is in depression.

I had to wait two hours for my RA doctor to show up for my appointment!! Yes, I was upset and my doctor did not apologize for being late. It was more like, I am the doctor and if you don't like it, too bad. Get another doctor.

The RA is twisting my feet, causing them to become deformed. So he wants me to have surgery done on them, then I be able to walk. Plus I get to wear those "ugly shoes"!
My hands are twisting very bad which I now have to wear braces on my hands at night and whenever the pain is intolerable.

Another bit of good news (I am saying this sarcastically) my MS is getting worst, so I need to see a neurologist now. I am falling a lot and have terrible balance, on top of that, my speak can sound funny.

I walked to my car after the appointment and felt I someone pulled the rug out from under me. Then I said, "These are all things that are treatable. I can get through this." I am working very hard on being positive!



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5/14/13 12:57 P

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Oh, I am so happy I am going to my sister's tonight...I have a doctor's appointment early tomorrow morning, which is a 2 hour drive one way (near my sister's home). It will be a break for me.

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5/13/13 11:54 A

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Well, for me it's another day of working on being motivated and growing closer to God.

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5/12/13 4:04 P

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Today I spent time in prayer & readin scripture..it sure helped me.
Give me more energy & I do not feel overwhelmed!

Everyone have a special Mother's Day...."Her children stand and bless her. Her husband praises her:"
(Proverbs 31:28)

Edited by: IAM_HIS at: 5/12/2013 (16:09)
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5/11/13 1:03 P

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Thank you so much...you are a beautiful person--your inner beauty is something that grows more beautiful with each day!!

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5/11/13 8:50 A

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Well I hope you don't mind, but I am saying a little prayer for you that you get an emotional break so that you can get some rest and that you can find the help that you need.

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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5/10/13 8:24 A

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You sure hit the nail on the head--HARD TO ASK FOR HELP! Just like you, I do not like to ask for help and it bothered me all the more after one of the ladies in my church told me (face-to-face) "You have no right to think that you can be a mother to that young child at your age. Why are you being so thoughtless and selfish." That really hurt me. Also, I become all the more careful about not asking for help.

My husband has depression and anxiety problems, so he is not someone I can get help from. He is another person that requires my time and help too.

Today it was so hard for me to get up...I just wanted to sleep. I am exhausted both mentally and physically. I would love to have some help, but I do not know of anyone to ask, plus I do not want to hear any negative comments either.

Also, my husband is having a problem at his work. He is not liked by his immediate supervisor, who is going out of his way to make cutting comments about my husband's illness. The supervisor feels empowered when my husband gets anxious, then he calls my husband a "real piece of work" and laughs at him. Yesterday my husband came home emotionally drained as well as unable to do anything.

I am praying hard for my husband's work situation to improve.



Edited by: IAM_HIS at: 5/10/2013 (08:45)
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5/10/13 7:11 A

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I understand about the exhaustion. I am usually in bed as soon as my little one is--8:00. Plus, I don't know about you, but it is hard for me to admit that I need help let alone ask for it. My husband is always at work so he's not really an option. My parents also live 100 plus miles away. Sometimes it is worth the drive on the weekends just so that I can go there and sleep. :) My mom and dad and my inlaws are a blessing. It's taken them a while to realize that I need help because I have always been so independent. I've found that they actually want to, they just didn't want to offend me. They thought that I would think that they thought I couldn't handle things. Now I can just email my mom and say that I need her to come over when it's convenient for her and there are no questions asked.

It also seems like you are involved in your local church. Please correct me if I am wrong. Of coarse I was too embarassed to ask mine for help. Goodness knows I didn't want anyone to look down on me. But it was actually just the opposite. When one of the key women found out just how low I was, she organized it to where I get help in church. My other children get attention to.

It's hard to let people know what you need. It's very embarrasing. I have found though that there are people who want to help. They are just scared to ask.

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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5/9/13 8:57 A

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Yes, it is very, very hard. Something that I struggle with daily. I have no relative near by and the people where I live do NOT get close to people who are transplant to the community. So I am on my own--if I want help from relatives I have to drive 100 plus miles away. Believe me, that is a L O N G drive when you not exhausted; twice as long when you are.


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5/9/13 6:49 A

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It's true that we need to take care of ourselves, but I am not going to lie. It is hard. There are only so many hours in the day.

Matthew 17:20

He replied, "Because you have so little faith. I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you. "


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5/8/13 4:01 A

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Being the mother of a special needs child is a special gift. When you think about it, YOU were chosen by God to care for a special child because YOU are the only one who could do the best job. That gets you to thinking doesn't it. Well, it also means that YOU need to take good care of YOU. And it is so easy to put me last. Is it for YOU?

I think we need to remember, if we do not take good care of our selves, than our child suffers. This doesn't mean just out bodies, it also means our emotional and mental health.

Right now I am working on my self-esteem so I can be a stronger role model for my child. Are you working on something too?

Edited by: IAM_HIS at: 5/8/2013 (04:04)
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3/31/12 8:01 P

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I would seriously like to gfet this group active again. I have been off for quite a while but plan to revive this group if at all possible. I have been very busy with my boys but both have been doing good in school. I have an injury that has been troubling me but I am attempting to deal with it right now.

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12/4/11 11:37 A

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I have been extremely busy but wanted to check in and see how everyone is doing. I have been brainstorming some ideas and would love it if others joined in. One of my ideas was to do a family challenge and post what we did on here. I also thought we could do a mom type activity.

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11/4/11 5:45 P

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I am seriously trying to get this team more active again and any and all input is appreciated. Anything that would help members get motivated more or ideas that have helped anyone. Starting next week I am going to start posting mini-challenges for the moms, child(ren) and for the entire family. I hope that this will make this team more active and get new people to join.

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