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9/21/14 5:42 P

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Moon, I can only imagine the heart pounding that was going on without your CPAP turned on! I'm glad you figured out what the problem was.

Shari, I hope today is not to tiring for you. I'm sorry to hear about your friend's daughter. So sad. I hope your mom continues to recover.

Becky, it's frustrating to see people not take care of themselves. I think for a lot of people, it's hard to find the motivation to do it.

Not much happening here today. I did go for a hike yesterday at the local state park, but I don't plan to exercise today. I'm pretty good on my exercise minutes over the last 10 days so I don't feel bad about taking a day "off" today.

Kay from Tennessee



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9/21/14 12:19 P

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Feeling much better this morning! I still had dreams, but nothing heart pounding. I slept 8.8 hours after attending a wiener roast last night and driving home in a thunder storm. I am so stiff in the morning though and the injections in my knees are wearing off. I feel like the tin man needing some oil to get things moving.

Medicare does not want to pay my hospital and physician's bills from my surgery a year and a half ago saying I stayed too long in the hospital. 24 hours is too long for a double mastectomy? So I'm fighting imaginary and real battles day and night.

I hope your loved ones, your brother and mom, in the hospital continue to improve and go home with better health Beckyanne and Shari.

Let's all have a good week!

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9/21/14 11:22 A

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Moon, I hope you sleep better tonight.

When I talked to my mom this morning, she said they were going to send someone from physical therapy to talk to her; I don't know if they are going to do some PT while she is in the hospital, or have her do it as an outpatient, but I think it will be a good thing for her, she needs to get stronger, especially with her legs.

I have a memorial luncheon to go to today for a good friend whose daughter passed away last week, and after that, I plan on going up to the hospital to visit with my mom.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/21/14 8:42 A

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Good Morning!

This morning is starting out wet. They can't forecast the weather for anything. It's not suppose to last long thank goodness. I have so many things to get done.

MOONGLOWSNANA-I hope you have a better nights sleep tonight!

I agree that no more family in the hospital. My brother is getting tired of it also, but at the same time, he's not pushing himself to get better. He needs physical therapy and he doesn't think he needs it because he walks from the chair to the bathroom to his bedroom. He has no muscle at all. He is so stubborn. So I guess this is going to be routine until something happens to him and he ends up in a nursing home permanently. It's a sad thought, but I'm afraid it's the truth.

I hope everyone is enjoying their weekend. Just wish the weekends were a bit longer!

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9/20/14 2:45 P

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I went to sleep wearing my CPAP mask last night, and woke up with my heart pounding in the middle of a nightmare this morning at 5 AM. I used a relaxation technique and got myself settled and went back to sleep only to awaken the next hour and the next. At 7:30 I decided to get up and then found that I hadn't turned on the machine last night. No wonder my heart was pounding! I'm lucky I was able to relax with structured breathing. taking long slow deep breaths, but no wonder I kept waking up. Yes, I really do need the CPAP, and I need to press the right buttons to make it work effectively. A breath of fresh air is a wonderful thing!

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9/20/14 1:39 P

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Becky, I hope your brother recovers soon; I know pneumonia can be tough.

My mom had kind of a rough night; she said she could not get comfortable to really sleep last night, but the good news is that her lab work continues to improve, so the antibiotics are working. I think she was worn out from visitors yesterday too; hopefully, she can get some sleep today instead.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/20/14 8:19 A

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Becky, I'm sorry to hear about your brother.

Shari, I'm sorry to hear about your mom.

We should declare a new rule...no family members going to the hospital!

I hope everyone has a good day today. I need to figure out what kind of exercise I want to do today. It's between a walk, a hike or a bicyle ride. I'll post tomorrow what I ended up doing.

Kay from Tennessee



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9/20/14 7:13 A

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Shari-I hope you're mom gets better soon!

They've taken most of the rain out of the forecast for the weekend. Good news because I have alot of things I want to take care of. I have to give my notice at the store sometime this weekend or Monday at the latest. I'll miss the people I work with though.

My brother was taken to the emergency room last night also. He has a bit of pneumonia in his lungs again. He's got a really tough fight ahead of him to recover after all he's been thru. Hopefully he'll be in there only a couple of days.

I hope everyone has a great weekend!

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9/19/14 5:30 P

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Becky congrats!!! Yay, no more retail!

We took my mom to the ER last night, and they admitted her to the hospital. She has a pretty serious cellulitis infection. They started her on 3 different kinds of antibiotics; she is doing much better today! She'll be in the hospital til Monday or Tuesday, her doctor expects her to make a complete recovery, but I sure was worried about her last night; she was so weak and shaky.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/19/14 8:23 A

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Congratulations Becky! I'm really happy for you.

Shari, I wish I could send you some energy!

I had a really good sleep last night and actually felt refreshed when I woke up this morning. That doesn't happen often. I' m thinking it's going to be a good day!
emoticon

Kay from Tennessee



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9/19/14 7:11 A

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Good Morning!

I was offered the job yesterday! I will finally be done with retail. No more holidays and weekends!

Today I'm working all day, but I know I have tomorrow off for sure. They've decreased the rain chances so I hope it's a nice day!

Shari-I hope you feel better soon.

Edited by: BECKYANNE1 at: 9/19/2014 (07:12)
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9/18/14 11:13 A

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Good morning!

I wish you all the best with the interview!

I usually do all my "Sparking" in the afternoon, but since fatigue has been an issue again, I decided to do it in the mornings instead as much as I can. I think maybe my thyroid meds may need to be adjusted. I'll ask my internist about it when I see him on the 29th.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/18/14 7:17 A

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Good Morning!

2nd interview this morning. Afterwards, I've got alot of things to do and it's suppose to be a nice day.

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9/17/14 7:25 A

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Another beautiful day ahead. It's too bad I'll be inside all day! emoticon We took a walk last night after dinner and that was nice. There were alot of people out walking and biking.


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9/16/14 7:19 A

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I sleep so much better at night when I don't nap. Plus I'm sleeping in bed now which has helped because I'm not disturbed as often.

I had another busy day yesterday. I made stew for dinner. Took my son grocery shopping for his new apartment.

I work this morning and then I want to get out and exercise afterwards.



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9/15/14 4:24 P

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I have a feeling when I start the chemo again, I might have to take naps more often.

Today I haven't needed one though, I slept pretty well last night even after that long nap.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/15/14 7:08 A

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Good Morning!

Shari and Kay-You really needed that sleep! I haven't done that in ages.

It was a busy day yesterday. Went for a run in the morning then went with my son to my moms to cut her grass. Followed by laundry and we canned salsa. I went to work afterwards. The salsa is a bit spicier than what I like. Everyone else likes it though.

Today I've got a house to clean. Plus I really need to cook a meal. Most everyone should be around.



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9/14/14 9:02 P

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Becky, I'm glad your interview went well.

Shari, I ended up with a two hour nap this afternoon too. I wasn't feeling bad, I just fell asleep reading. I guess I needed the additional sleep.

Kay from Tennessee



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9/14/14 6:39 P

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Glad the interview went well!

I don't like having it quite so cool right now either; especially when it's not even officially fall yet.

I've been fighting a sinus headache all day. This afternoon I went to lay down on my bed for a little while with my microwavable sinus pillow over my eyes, and it turned into a 2 hour nap. I'm feeling somewhat better now though.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/14/14 8:45 A

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Good Morning!

The interview seemed to go well. I wasn't as nervous.

We've been having Fall weather. I'm finding it's a bit too cool for me right now. I'm not ready for so many layers. I nearly froze at the football game yesterday. Ended up going out for supper last night. (I had a craving for breakfast) I told my husband to tell me no next time. Too much food for the evening. I didn't sleep well at all. Today I will be dragging and I work tonight.


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9/13/14 10:05 P

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Shari, I'm glad you had the "good kind of tired" today. I did too. It's funny, I was just telling my husband at lunch today what a difference there is between the two. Chemo fatigue is a really different feeling than being tired from movement.

We went for a bicycle ride this morning on a new road near our house. It was a little cool (about 62 degrees), but it felt wonderful to be out. I felt very grateful to be able to be riding.

Kay from Tennessee



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9/13/14 6:40 P

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I'm tired tonight, but it's a "good" kind of tired for a change.
It took me awhile to get moving this morning, but I've had a productive day. I got the laundry done, made a dessert to take to church tomorrow for the potluck after the service, and got a little over half of my grass cut with the push mower. If I'm feeling ok after church, I'll finish it up tomorrow.

Still only in the 50's today, but with the sun it was not too bad being outside today.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/12/14 5:22 P

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Becky, wishing you all the best with the interview!

It feels fall-like here today too; it's been gloomy and kind of drizzly. Usually the kind of day that makes me sleepy, but surprisingly, I haven't really felt tired today, maybe my blood counts are starting to go up instead of down.

It's chilly too; had to turn my heat on yesterday, and I am wearing sweats today.
I have some applesauce cooking in the crock pot, it is smelling good, and it's almost time to go check it and see if it's done.



















My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/12/14 7:44 A

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Becky, I hope your interview goes well!

I'm up early (again). The good thing about waking up so early is that I have wonderfully peaceful, quiet mornings! I enjoy that.

Kay from Tennessee



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9/12/14 7:28 A

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Yesterday as a soup day! It really felt like Fall. Today is no better. It's suppose to rain too which will make it feel even colder. I have to work a few hrs. today and then I have an interview for a job.

Have a great day!

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9/11/14 6:59 P

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It was warm here today but rainy. After going to exercise class and eating breakfast. I ended up taking a long (3 hour) nap. I keep waking up too early, around 4am so I needed the sleep. Tomorrow, we are having some new furniture delivered. This is the first time in my life that I've actually had furniture made to order. I sure hope we like it because we can't return it!

Wishing everyone a good day/evening.

Kay from Tennessee



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9/11/14 5:41 P

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Thank you all!
I'm doing better now that I've had more time to process everything, I'm still waiting to hear when I will start, but I'm in no hurry. I'm about as prepared as I can be for any possible side effects, and I know worrying about them ahead of time won't change anything.

Rae, glad you finally got that cast off!

It feels kind of raw and chilly today; it was only 49 this morning and only got up into the 50's. I'm already starting to get leaves in my yard; they aren't from my trees yet, just blown there from the wind.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/11/14 7:33 A

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Good Morning!

It's a cold 48 degrees right now. A little too early for these temps.

RAESUN54-I'm sure it feels good to have that cast off and to be able to do more on your own.

Kay-I'm so glad you're feeling better.

Shari-I hope things go well with this round of chemo.

I have today off so this morning I will get out for a run and then do a few things around the house before I go to the dentist. It's a soup sort of day so that just might be on the menu tonight.



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9/10/14 8:52 P

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Becky it is sad that the Christmas trees are out already.It really takes away from the true meaning of the holiday. Kay glad you are feeling less tired. I finished all my treatment, chemo and radiation at the end of Sept last year and even now i get hit with fatigue. I read it is normal and it can last for some time.
I had the cast removed from my broken foot last week and have been walking with a boot and walker. It feels good to be a little dependent on my daughter and i am doing as much walking as possible and housework.
Shari my prayers are with and i too hppe you don't get hit with side effects. Please know uou are in my thoughts. You are a remarkable lady and a great inspiration.
emoticon emoticon emoticon

My name is Rae and I live in S Florida. I have been a member with SparkPeople since 2008. I am a Breast Cancer Survivor. I have been cancer free since December 2012.




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9/10/14 6:05 P

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Shari, I hope the Havalen works well for you and the SE's aren't too bad.

Becky, that's just not right that they have the Christmas trees out so soon.

I've been feeling so much better lately. I've been able to exercise at least an hour every day for about a week now. Such an improvement over the last month.

Kay from Tennessee



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9/10/14 7:19 A

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Good Morning!

It's raining this morning so my workout will have to wait till after work. Went I went back to work yesterday, I was surprised to see all of the Halloween stuff was out AND Christmas trees! They are side by side in the store. It made me sad. emoticon Plus, I get to look at Winter coats every time I work now. Hard when it's in the upper 70's. This time of year tends to fly by.

Have a great day!

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9/9/14 5:16 P

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WRWW13, I hope you feel better soon!

I found out today that I will have to go back on IV chemo again, a drug called Halaven. I was expecting that I would have to go back on some kind of IV chemo again, but I'm still trying to wrap my head around it and get use to the idea. It's been nice having almost 9 months off from it.

Now I am waiting for a call from the cancer center to find out when I will be starting. I am ok with waiting, as I am in no hurry to start.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/9/14 10:29 A

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emoticon

With all my Black little heart - Lestat, Queen of the Damned


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9/9/14 7:54 A

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Good Morning!

Storms are in the forecast today and so I got out and got a run/walk in early. Too early for me, but it's done!

I had a very productive day yesterday. Ran in the morning and then I mowed my moms lawn. Came home and showered, had lunch and then continued with laundry, etc. here. Followed by making dinner. I was in bed by 8:30. I would say I slept about 7 hrs. in between the times I woke up. It's the most sleep I've gotten in a long time.

Have a great day!

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9/8/14 7:06 A

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Good Morning!

It was a busy and fun weekend. We went to IL fora wedding. The weather was beautiful. The only downside is that I didn't eat very well and I'm feeling the affects today. IT's back to normal today though.



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9/6/14 2:20 P

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Rae, glad to hear the cast is off. I hope you have a speedy recovery, especially with getting over the pain from it.

I'm having a quiet Saturday as usual; doing my laundry right now.




My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/5/14 7:14 P

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I am feeling hopeful today. The doctor took the cast off today and i am now wearing the boot and walking with a walker. It is painful especially when i put too much weight on my broken foot. He of course told me it would hurt. I am hoping the healing continues and i don't walk on it wrong.

I can't walk far but at least i can walk around the house and able todo some things.

I hope everyone has a great weekend.

Edited by: RAESUN54 at: 9/5/2014 (19:18)
My name is Rae and I live in S Florida. I have been a member with SparkPeople since 2008. I am a Breast Cancer Survivor. I have been cancer free since December 2012.




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9/5/14 6:54 A

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Good Morning!

Cooler this morning finally. I've got alot of things to do today. Tomorrow we're going to Chicago for a wedding.

Have a great Friday!

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9/4/14 4:37 P

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I'm kind of worn out today; not from activity, but from not sleeping well last night. I don't know why I couldn't sleep; I was almost falling asleep watching TV, then I when actually got into bed, I was wide awake again as soon as my head hit the pillow. After tossing and turning for an hour, I turned the light on and read for a couple of hours.

I should be able to fall asleep tonight though, just from exhaustion. I avoided taking a nap today to make sure I'd be tired enough to sleep tonight.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/4/14 7:57 A

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Hi Cyndi, I'm glad to see you back! I found rads more fatiguing than expected and ended up taking a short nap almost every day. I finished on May 15 of this year. I hope rads go well for you. I also get upset when I hear of someone passing away from cancer....particularly when it is from my type of bc, but even when it's from some kind of completely unrelated cancer. I just hate it when it happens.

Shari, I bet you are using all kinds of different muscles with your lawn mower. I hope that goes well. It certainly counts as exercise!

Becky, I think being on your feet all day counts as exercise too.

We have just spent the last couple days visiting friends in eastern Kentucky in the mountains. I had a wonderful time because we got to do some nice short hikes to see caves and beautiful rock formations. I think yesterday was the most fun I have had all summer long. It was just so nice to be outdoors. Today, we will be driving home, but I hope to get some walking in sometime during the day.

Wishing everyone a good day.

Hugs,
Kay

Kay from Tennessee



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9/3/14 7:21 P

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I've been taing it easy with my exercise this week. I haven't had much time and I'm on my feet all day working so I figure that's good enough. I ran this morning and I'll run again Friday. I had to go out shopping after work today for clothes for a wedding this weekend. It's a very informal wedding, but we're having a family photo taken and I wanted to make sure we had clothes that would fit in with everyone else. Not exactly what I wanted to spend my money on though. I got everyone something to wear so now there shouldn't be any complaints from the inlaws! Another really hot day for tomorrow. Then it should cool back down.



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9/3/14 4:32 P

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Welcome back Cyndi!
I belong to a few metastatic breast cancer support groups online; it's always hard when we lose someone. I am glad you are feeling good though! I'll keep you in my prayers that you continue to do well, and that you don't have any problems with the radiation treatments.

I've been getting some extra exercise in; just bought a reel mower; it's perfect for my tiny little yard. It takes me about a half hour to do the entire yard, but with my health issues, it's better for me to split that chore up and do it over a couple of days. I'm pretty sore since I did it yesterday and today, but I am probably using muscles that haven't been used for a long time.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/2/14 11:00 P

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Hi All!
It's been a very long time since I've been online. Emotionally, it's been rough. I've known of 5 people that have died from cancer related illnesses. So that really screwed with my head.

Physically, I feel great. I finished chemo July 28th. I started radiation on August 21st. My treatments should be done October 7th. I haven't heard of any other issues so all should be well. I'm just praying for a speedy recovery.

Cyndi


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9/1/14 3:46 P

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I didn't get up til 9am, which was late for me, but I guess I needed the extra sleep, and I'm actually feeling pretty good today as far as the fatigue issues.

I just spent a quiet day at home today, but it's been nice. When I was working retail, I always had to work on Labor Day, and the last few years that I worked it was in the clothing department, and we would be super busy with all the back to school shoppers, many of them last minute shoppers. I don't miss those days at all!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/1/14 7:32 A

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Kay-that was me on Saturday. We went to the Farmers Market and ran a couple of errands and I was so tired. I came home and didn't do anything the rest of the day. Oh, except eat all of the wrong foods. Woke up yesterday feeling much better. Ran first thing, went to my moms with DS to cut grass and then came home and did laundry and cleaned my house. I find that if I get exercise in first thing my day will be much better and I have more control.

Today I have to work but only till 1:00. The sun should be out by then so I'm going to get a walk in at the least. Maybe a short run.

Have a nice day!

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9/1/14 6:54 A

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Yesterday was one of those days where I "woke up tired" and was fatigued all day. I'm feeling much better today. I need to get better at doing some mild exercise on those days when I just don't feel like moving. I've been through it enough now to know that I feel better if I do mild exercise. Yesterday, I didn't do any exercise. I'm sure it would have helped if I had done some.

This morning, I feel more normal again and I'm determined to get some exercise in. Walking is so good for me on so many levels. I believe the fitness center is closed today since it's Labor Day, so it looks like a good walk is in order.

Happy Labor Day everyone!

Kay from Tennessee



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8/31/14 2:32 P

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This weekend is going pretty well for me so far, a lot better than last weekend anyway, and a lot less stress! This will be an easier week for me too, no appointments scheduled until September 9th, unless my oncologist decides to switch me to the I.V. chemo before that.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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8/31/14 11:22 A

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Thanks Kay! I'm going to have my Dr. refer me to PT when I see him next. My SIL also said to go to PT. When the Chiropractor xrayed my back and neck and did the other tests, it showed things were out of alignment. Just wonder if anyone's back is ever aligned when they do those.

Another warm day today, followed by severe weather tonight and a lot of rain. I had really goofy dreams last night so I didn't sleep all that well. I hope the weather doesn't keep me up.

Enjoy your last day of Aug.!

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8/31/14 8:51 A

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We had a ton of rain here yesterday. Most of it was in the late afternoon and evening so it didn't matter much to me.

Becky, several years ago, I had a bad pinched nerve in my neck. I tried a chiropractor, but it hurt and was expensive. I got a referral to PT and ended up getting a lot of relief from the stretching exercises they gave me. The most important thing with PT is to do the "at home" exercises too. I hope you get some relief from your problem.


Kay from Tennessee



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8/29/14 4:42 P

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We are having rain today too; it almost feels chilly out; not complaining about that though, it's better than dealing with heat and humidity.

Had my yearly checkup with the eye doctor today; everything was good! It's nice to have at least one area of my health that is normal!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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8/28/14 8:52 P

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Another busy day today. Now we've got rain. It's suppose to rain on and off thru Saturday. At least it's not hot and I can still have some windows open. I'm hoping it stops for a while tomorrow morning so I can get a run in. I've been doing pretty good lately. The iron pills are really making a difference. I've decided to not go ahead with the chiropractic care at this time. It's really not what I thought it would be and it's expensive. Insurance will pay quite a bit, but it still would cost me about $70 a week. I can't do that right now. Too many other things I want that money to go towards. DH thinks that I should get a referral to physical therapy instead. We shall see.

I hope everyone is doing well. Have a nice evening!

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8/27/14 9:10 P

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Good evening! I had a busy morning and then I worked all day so now is the first time I've been able to get on here. I went to the chiropractor yesterday and this morning. Not sure if I will go back though. I have 2 more appt. this week, but this treatment is going to cost me $759. I don't have that kind of money right now and there is no guarantee that I will feel any better. Every one I talk to, tells me I'm nuts if I go and pay that amount. I'm going to call them tomorrow morning and tell them I will do some adjustments but everything else is out.

I have another full day of work tomorrow and then I have Friday and Saturday off so far.

Rain is in the forecast. We could see lots of it too.

I hope everyone had a nice day!

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8/27/14 3:42 P

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Inga, it is nice to see you posting here.

I was able to get to exercise class today. That makes three days in a row! I've been feeling a little better each day now for over a week. It's so nice to feel better again.

Wishing everyone a great day.

Kay from Tennessee



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8/27/14 9:36 A

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emoticon emoticon emoticon to everyone! May God send his healing love onto any health problems and His wisdom to Dr.'s to cure our ailments.

Have a good Wednesday all! emoticon emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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8/26/14 10:03 P

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Seems like we all have been having health issues lately. I think it's time we catch a break!

Kay from Tennessee



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8/26/14 5:22 P

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Kay, I knew you were not lazy! But I understand that feeling; I felt that way too before my last blood transfusion. I know it made me feel better to have it confirmed that my fatigue wasn't all in my head.

Inga, great to see you posting again! I'm so sorry you are having pain issues, my prayers are with you.

I had my monthly oncologist appointment this morning, didn't get the best news regarding my lab work. My tumor markers are still steadily rising, which means the Aromasin and Afinitor I am on are not working. I asked if we could try increasing the dose of the Afinitor, since I am on the lowest dose of that drug, but the problem is that a higher dose will not be compatible with the drug I take for my gastroparesis. He's going to look into it further, but most likely, I will probably have to go back on the I.V. chemo.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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8/26/14 10:26 A

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Wishing all of you good health, sometimes we have so many health issues to deal with. Praying all will be good for all of you. emoticon emoticon emoticon

I have issues as well, my spine/back is very messed up dealing with lordosis/kyphosis curvatures. I keep working pretty hard around the house, pain worsens as day goes on, been in therapy, but now am trying to do the exercises at home to help. emoticon emoticon emoticon

summer did zip by, I did not do as many things like beaches, etc. this year. I definitely felt great about getting my son back and forth to MN for his camp, long drive, lifetime chance for him!

Hope the week goes well ladies. How do you like this hew format on Spark People? I am ok with it.

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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8/26/14 3:59 A

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Kay-I'm glad they were able to find what was wrong. I too had gone to the dr. Cuz I just felt like my energy level wasn't where it should be. Turned out my iron was low. I've been taking iron and am starting to get a little more energy again. I've ran the last couple of days and have done pretty good.

Today I go see a chiropractor. I'm hoping it's my lower back that is causing all of the pain in by leg and that she can help that. Plus my neck has been so messed up. Hoping to eliminate some of these headaches I get.

Have a wonderful day!

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8/25/14 6:54 P

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I really don't want this summer to end! I feel like I'm just beginning to enjoy it after all the fatigue I had to deal with right in the middle of the summer. Fortunately, that is lifting. This morning, I went to the new functional doctor that I saw for the first time two weeks ago to go over all the blood tests that she did. I tested very positive for Epstein Barr virus (like momo), mycoplasma pneunoniae (walking pneumonia) and two other viruses. No wonder why I was so fatigued!. This is all in addition to getting diagnosed last month with both crohn's disease and celiac sprue by my GI doc at Vanderbilt. The functional medicine doc says the chemo left my immune system at a lower level so it was harder for me to fight off the viral load. When I saw my test results, I was floored. At least it confirms I wasn't being lazy....there were days when I was feeling like it was all in my head.

Since I'm feeling better, I'm going to try just continuing on with a very healthy diet and take some steps to boost my immune system. If that doesn't work, then I will need to take antivirals. Normally, people with healthy immune systems can recover from these viruses without any intervention.

I have one last test to do. It appears my adrenals may be shot. My blood sodium and carbon dioxide levels have been consistently low for almost a year. That's an indication of adrenal insufficiency. The stress of having cancer and all the associated treatments may have done in my adrenal glands. It will be a while before I get the results of that test back. I feel like my adrenals may be the last piece of this complicated puzzle.

The good news is that I do seem to be on the mend. That's the most important thing in my book. Honestly, I'm getting tired of finding out so many things have gone haywire.
emoticon

Kay from Tennessee



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8/25/14 3:40 P

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We had a thunderstorm move through early this afternoon; nothing severe, just some heavy rain. The forecast said that the high today would be 87, but so far, as of 3:40pm, it's only reached 77.

My summer has gone by fast too; mine was taken up with so many doctor appointments and tests, a colonoscopy and 2 upper endoscopy. I hope that next summer I can spend that time doing something fun instead.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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8/25/14 7:52 A

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It was so steamy yesterday. We've had storms this morning and now the sun should come out and get steamy again. Today should be the last day of this hopefully. I don't like walking outside and having my glasses fog up.

Today I will have the house to myself this morning. The boys have classes. emoticon

It's so hard to believe that summer is coming to an end. So many things I didn't do this year. We started out with good intentions. Just didn't work out that way. There's always next year.

Have a nice Monday!

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8/24/14 7:57 A

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Good Morning!

Hot and humid today! A chance of strong storms tonight. Sure wish it would get rid of this humidity. Woke up with a headache this morning. I didn't sleep well last night either. Too many things on my mind. No nap for me cuz I work later this afternoon.

Have a nice day!

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8/23/14 3:39 P

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After a pretty good week with a little more energy, having a bit of a setback today; just a temporary one though. This time, it's just because I had a really hard time getting to sleep last night. Been fighting the urge to take a nap today because I won't be able to sleep tonight again if I do. But I accomplished my goals today of doing a half hour workout and getting the laundry done.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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8/23/14 8:02 A

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We haven't had many hot/humid days either. It's getting too late in the year for the humidity, but it's the start of the State Fair and it's always hot during it. I won't be able to go this year because I have to work.

Today is the Farmer's Market. I haven't been there in a while so I'm anxious to see what they have.

Have a nice Sat.

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8/22/14 3:48 P

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Becky, I have ulcers too, so I know what you're going through, hope you feel better and that they heal soon!

Kay, maybe you just overdid it a bit this week; hope you were able to finish the weeding before it got too hot.

We haven't had that many hot and humid days this summer, but it's starting to creep in now. Can't really complain though because for the most part, it's been a pretty comfortable summer here.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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8/22/14 3:24 P

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Happy Saturday All!

It's so nice to see so many people posting here over the last 24 hours.

Becky, I hope you can get your ulcer and iron level situation figured out. I think I always wonder if something "all in my head" too.

I've been having a good week, but today I woke up "tired" again. I hope it's just a one day thing and not another month and a half of fatigue. Hubby and I did a little badly needed weeding this morning. It's too hot outside right now to finish it, so we will hopefully finish it in the morning when things are cooler again.

Kay from Tennessee



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8/22/14 8:26 A

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Happy Friday!

It's been warm and humid here! So far, it's cloudy so I'm hoping to get out for a run soon.

I finally got a call from the Dr. office yesterday. All of my blood work was fine except my iron is low. So now I'm back on the iron pills. i've been frustrated because I knew something wasn't right. I was beginning to think it was in my head. I go back in a month and I'm going to have to talk to him about my ulcers. They've been acting up and I think I need to see if the meds. I took got rid of the H pylori or not. I'm thinking it didn't.

My boys start classes at the University on Monday. Schools don't go back until the day after Labor Day. Next week will be a confusing week until I get all of the schedules down. Plus my middle son is moving out for the first time come Sept.

Have a nice day!

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8/21/14 8:14 P

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Hello All, hope everyone had a great day! Hot and humid here in Ohio, had storms this am as well, hoping that it is a sunny, beautiful weekend. Today was a good day, I made it to the gym and got some time in on the elliptical. emoticon

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8/21/14 3:50 P

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Thank you Kay! I went grocery shopping yesterday and noticed a big difference in how I felt because of the transfusion. Last week, after shopping, carrying the bags up my steps and into the house, and putting them away, I was short of breath of afterwards, but this time, I did all of that and did not even feel the need to sit and rest after I got done!

I'm still needing to pace myself, (mainly because of the chronic pain issues) but overall, still feeling pretty good since the transfusion. I hope the good effects of it will last for awhile.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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8/21/14 9:37 A

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It's always good to hear that everyone is feeling better. I think I have gained weight, not a good thing. Too many good things to eat when the kids were home. I have doctors appts today and tomorrow so I'm off the city. I will bring back 3 of the grands for the weekend for one of the last days to play in the pool and go on the boat without needing jackets in the fall. There's a regatta on the lake this weekend which might be fun for them to watch. School started for some of them so the schedules are changing, and so it goes.

Everyone stay on the sunny side for the rest of the week!

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8/21/14 8:02 A

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Good Morning!

The warm humid air has returned! I tried to do a bit of running last night but decided walking was good enough. After 8 hrs on my feet, I didn't want to push it plus it was too warm. I did manage to get a pretty good nights sleep last night so the walk really helped.

Storms this morning. Hopefully I will be able to get some exercise in after work again today. We could have storms off and on today with a heat index in the mid to upper 90's.



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SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL SparkPoints: (54,195)
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8/21/14 7:09 A

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Well, I made it to line dancing class on Tuesday and really enjoyed it. I had forgotten a lot, but it came back pretty quickly. My energy levels are definately on the rise again, thank goodness! I've been actually getting some cleaning done around the house and being a lot more active throughout the day. I have no idea what the problem was for the last month and a half, I'm just glad that it seems to be resolving on it's own. I have been gluten free for a few weeks now and the medicine that my GI doc gave me for my Crohn's is helping so all this fatigue could have been GI related. I also think that I just don't have a lot of reserve after going through treatment so it's a lot easier to get worn down and harder to bounce back. Who knows? LIke I say, I'm just glad these major fatigue issue seems to be resolving.

Shari, I hope you are feeling a lot better since your transfusion and that you are able to enjoy this week.

Wishing everyone a good day!

Hugs,
Kay

Kay from Tennessee



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MOM2ACAT's Photo MOM2ACAT SparkPoints: (160,675)
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8/19/14 3:46 P

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Patricia, I am so sorry; I'm keeping her, and you and your family, in my prayers.

Kay, I'm sure once you start the line dancing, it will all come back to you, enjoy and have fun!

We had some thundershowers this morning, and it's been raining off and on all day. The weather has made my hip pain flare up so I decided to wait til tomorrow to do my grocery shopping.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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8/19/14 8:08 A

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Patrica, I'm sorry your sister is doing so poorly. I hope hospice is able to keep any pain she is having well controlled. I know this is a very difficult time for the entire family. ((hugs))

Becky, don't you wish there was a magic sensor they could just place on the body to figure out what exactly is going on and what to do about it? I hope you are feeling better or can figure out the cause of your issues soon.

Shari, I'm glad you are feeling better and have a week free of appointments. It's like a little vacation!

My stamina and strength seem to be gradually coming back a little every day beginning with last Friday. I have no idea what was going on for the past month and a half, but the fatigue had been horrible. Now, it seems to be gradually lifting. I was fairly active for most of each day over the weekend last weekend and I was able to go to an easy aerobics class yesterday. I think it was the first time in several weeks for me to be able to do that. Today, I plan on going to a beginning line dancing class and just doing light housework. I hope I haven't forgotten all the steps to the line dances. I'm looking forward to be able to go back to that class.

Wishing everyone a good day.



Kay from Tennessee



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8/19/14 7:53 A

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Good morning!

My appt. was so, so. The questions I had ended up being the only thing we discussed. Nothing to do with cancer. I'm a little frustrated cuz a couple of things that we discussed. Anyway, I had blood work done and when I went to check online my results, it looks like everything is normal so now it's up to me to figure out what my problem is. I'm suppose to go back in a month to see him. Hopefully things will be better by then.

We had storms last night. Lots and lots of lightning and rain. It's a little cooler this morning. Today I've got cleaning to do and I'm going to cook a meat and potato meal for my family. It's been a long time since we've had anything like that around here.

Have a great day!

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8/18/14 5:42 P

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I very much appreciate all the advice. Unfortunately she is going downhill fast. I had planned to take my mom down to visit her. My mom is 84. My brother and sister advised not as my sister is doing very poorly. I am instead going to visit with my mom. It is during these times you wish you lived all in the same state. My sister is 10 hours away and my mom is 3. It would be great to be able to just pop by, relieve the family from some of the care.

I wish for this group much peace and good health.

Patricia

Life isn't about waiting for the storm to pass, it's about learning to dance in the rain!!
- Vivian Greene

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