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7/12/14 3:24 P

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Welcome to the team COMEUNDONE87; I just read your blog and commented there. emoticon

Moon, I hope you feel better soon.

Kay, you amaze me with all you are able to do! I think doing the run together with the other ladies from the BC.org group is a great idea.

I'm feeling sleepy this afternoon, but I got the 2 most important things on my "to do" list done; the laundry and my workout.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL SparkPoints: (52,263)
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7/12/14 12:43 P

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Moon, I'm so sorry you aren't feeling good. That's particularly hard with guests coming and wanting to get a lot done. I hope you rest....it will make the visit more fun and the kids won't care (or know) what got done and what didn't.

Becky, glad to hear your brother didn't have cancer. I hope they were able to figure out what the problem was and were able to do something about it.

A group of us from breastcancer.org that all started chemo last September are getting together in Las Vegas this October. We decided to do the 5k Glow Run together as a team while we are there. I just signed up and started training for it this morning. It's the first time I have attempted running since treatment ended two months ago. It went surprisingly good. It helps a lot that I have been doing an aerobics class at the gym 4 times a week pretty much ever since treatment ended. It was so nice to be outdoors this morning. I would run for 60 seconds and then walk for 90 seconds and repeated that for twenty minutes (also did a 5 minute warm up and 5 minute cool down).

We are going out to dinner tonight with friends and then going to a big band ballroom dance at the local senior center. The place is kind of small and there will be a 20 piece band....I have no idea how they plan on putting it all in the room they use for group activities. The weather is supposed to be nice tonight. I think they should do it out on the parking lot. It would be much cooler! Should be interesting. I think our biggest problem will be that we have totally forgotten how to do the various dance steps since our ballroom dance class ended in April. We should probably practice a little this afternoon before we go.
emoticon

Edited by: SIMPLELIFE4REAL at: 7/12/2014 (12:43)
Kay from Tennessee



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7/12/14 12:26 P

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I have so much to do before the kids start arriving, and I am not feeling good today. I am so sleepy, but I did my exercises. I have a yucky cough that is annoying, and a busy week coming. Time to decide what to do since I can't get it all done. I do have a load of stuff in the truck to donate so that is out of the house. Gotta go get busy. I'll grab my water and get to work for at least 15 to 30 minutes and then see how I feel...

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7/12/14 7:58 A

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Good Morning!

Although it rained yesterday, it was a nice day. Had lunch with my DH (of course I ate too much), visited my brother who will be coming home soon. (no cancer)

The humidity is back this morning and storms will be coming. Then there is a big cool down coming. I hate to say it, but I'm looking forward to that this week. I've got so many things to get done around the house and having the cooler temps will help.

Have a nice Sat.

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7/11/14 10:01 P

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All lurkers are welcome here! Jump in anytime! Someone is bound to be here to listen, and we share lots of opinions, facts, and wishes. I'm wishing that you put the past memories to sleep and look forward to making new memories, all of them good ones! emoticon

SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL SparkPoints: (52,263)
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7/11/14 5:37 P

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Welcome Val!

Kay from Tennessee



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7/11/14 5:03 P

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Hi everyone. I've been lurking for a few days and thought I'd jump in.

Today is the 1 year anniversary of my diagnosis and I'm really struggling with it. I don't know why. I've had my ups and downs through everything but I've been more up and than down (especially lately) and didn't really think it would affect me. But it has.

Every year our zoo has a special "kids night" and we always go on the Thursday of the even because I have off on Thursdays. Last night when we were there we were trying to remember last years event. And for the longest time I couldn't remember it and then it hit me. Last year we couldn't go on the Thursday because I had my biopsy that day and I was just too sore. So thankfully kids night was also offered on Friday so I rushed home after work to pick up the kids and go. It was while we were driving into the zoo that I got the call that I had cancer. Once that all came back to me I didn't have as much fun as I should have last night.

I just want this journey to be over and get on with the next part of my life. Today that's just weighing heavily on me.

First Goal: Loose 27 lbs by December 1, 2009 - GOAL MET NOVEMBER 6, 2009!

Second Goal: Loose 57 lbs by June 1, 2010... GOAL MET APRIL 3, 2010!

Third Goal: Loose 60 lbs... GOAL MET APRIL 24, 2010!

Forth Goal: Loose the 35 lbs I gained due to surgery and chemo!

Fifth Goal: Never have to make another weight loss goal!


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7/11/14 4:27 P

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Thank you Kay and Moon!

Moon, if I can help others stay encouraged, that helps me too. I have to "practice what I preach"!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/11/14 12:48 P

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Thank you everyone for your good thoughts on my biopsy decision. I'm still not sure what I'm going to do, but I'm not worrying about it (too much).

Jen, you amaze me with your post surgical energy! Not having feeling is strange. I know that some of it will be lifelong for us. I'm just wondering if I'll every really get used to it. I agree, every little bit that comes back is a good thing.

Becky, those mosquitoes can make summer miserable, particularly in the evening. Hope things dry out for you some.

Moon, Shari and Cyndi....wishing all of you a good day!

There is not an exercise class at my gym that I like very much on Fridays, but I just managed to do 30 minutes at home on the treadmill. I feel good about that. I often blow off exercise on Fridays, but I'm trying to be really consistent. I can feel my strength and stamina coming back a little more each week. It's a wonderful feeling.

Hugs to you all,
Kay

Kay from Tennessee



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7/11/14 11:26 A

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Kay - I'm relieved, still concerned like you, but relieved. If you keep thinking and wondering and if that lump is always pushing its way to the front of your mind then maybe a biopsy would relieve the worry and the what ifs. It's your comfort level that you live with and you need to be able to move on without doubts. i know that biopsies aren't fun. Tough decision...

Jen - I'm glad to hear how well you are feeling! Don't rush your recovery though. You might be riding a high right now. Take your time in letting your body heal, and come back to whatever normal is going to be for you slowly. It takes months not weeks to recover from surgery. Give yourself the gift of time. Your stress levels will be affected by the upcoming move as well as readying the rental. Remember to get plenty of rest and some time to relax.
We fought the flea battle here last year when we had three feral cats and 15 kittens! It was awful!!! We used bombs and ultimately called the exterminator who came and sprayed inside our garage and outside all around the house. We finally managed to catch the cats and kittens with those friendly traps and were able to give them to a farmer. They became farm cats and we only kept one of the mama cats after all the babies were weaned. She's still a little stand offish, but she has been spayed and is a good mouser. We now have one dog and one cat and a regular flea prevention schedule!

Cyndi - Hang in there with your treatment's highs and lows. We know it's not easy. Ask your doctor for advice or meds to take care of yourself.

Beckyanne - Between your busy workdays and your concerns about your brother and helping your mom, I hope the pressure is less and less. I bet you feel so good when you can go for a run! Exercise frees your mind as you work your muscles. Keep moving because it helps...

Shari - Thank you for being the calm we all need when weathering our storms even when you might be feeling under the weather yourself. I hope today is a good day for you and all of us. I put some potted flowers outside my back door so whenever I look out the door or open it to let Milo in or out, which is often, I see the beauty of fresh new blooms in living color. Ahh, I love summer! Have a good one...

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7/11/14 9:42 A

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HOORAY, KAY! kick around the biopsy decision for awhile for sure.... and you are right--they do breast cancer every day, multiple times a day--we do it once. It's good to be able to trust them to know their business...

Gnats--yup, here, too. what little buggers. we are still fighting with our fleas. dog needs another treatment sunday, and we'll bomb the house again. lol. boy, infestations are FUN! :-)

I'm shopping for new floors and paint for what will be my rental--taking my little minions with me--i'm hoping their taste isn't as expensive as mine. I would like durable, but I don't want to go nuts, you know? it's just a rental.

walked through the new house yesterday with the girls for the home inspection--well built place, but it seems the storm that blew through the other night knocked off a ridge vent and we've got a 2' X 6' hole in the roof--the owner is working on fixing that immediately--he had no idea. it is pretty neat we got to meet him and his wife--I like them both. :-) and the home is just beautiful.

gonna be hot and sticky here again today--as per usual. I am anxious to start working out but know to give this some time. i'm happy to have more feeling in my upper right arm than I did yesterday--whew. I know honestly that feeling is totally optional and not the most important thing, but I like to see it returning nonetheless. :-)

Such happy news for everyone today.... Cyndi, do get some help if the lows get too low. atavan is a great thing--so is lorazapam. :-) there's no reason to suffer when there's help available....

Health happiness and love,
Jen

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7/11/14 7:54 A

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Good Morning!

Kay-I'm glad they don't think it's Cancer. Way to Go on all of the exercise!

Cyndi-Stay positive!

Rain today and a bit more humid. Yesterday was a really nice day except for all of the bugs! We have a major gnat problem and now the mosquitos are starting the hatch. Way too much rain this year. We really could use a dry spell for a change.

Have a wonderful day!

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7/10/14 4:41 P

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Cyndi, you are in my prayers also.
I also did Taxotere 11 years ago, which is a Taxol drug. I had a hard time with the steroids I had to take with it. But just the cancer alone can be stressful and make you feel like you are on an emotional roller coaster. emoticon

Kay, I'm glad it's sounding like good news so far. Sending up prayers for you as you make your decision about the biopsy.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/10/14 1:43 P

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Jen, congratulations on your pCR (complete response to chemo)! That is absolutely the best news possible! Whoo Hoo! I'm sorry to hear about your drain pain, but it sounds like you got it resolved. Awesome.

Cyndi, I had terrible emotional lows each week on taxol as I came off the steroids. I finally asked for help and they gave me ativan. I took it each time the lows came. It did help.

I went to Vanderbilt yesterday for a mammo and ultrasound. They are 98% sure the lump is fat necrosis. They said they would do a biopsy if I wanted on to put my mind at rest. I have to go back to Vanderbilt in three weeks for some more GI tests and meet with my GI doc, so I'm thinking if I decide I want a biopsy, I'll do it then. I tend to believe it is fat necrosis....they see patients like me every day, all day long so they know what they are talking about. On the other hand, a biopsy would rule out cancer completely. I'm going to give myself a few days to think about it. They weren't recommending a biospy, only saying they were willing to do it if I wanted. My next scheduled mammo is in early September and since I have dense breasts, they will be doing 3d mammos in the future every time.

I got to exercise class 5 times this week even with my trip to Nashville yesterday. It feels great to be building up some consistency!

Wishing everyone a great day.

Hugs,
Kay

Kay from Tennessee



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7/10/14 12:19 P

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Cyndi.... sending you strength, but you've got plenty of it already.... :-) You WILL get through this--the finish line is in sight.... I think the steroids that came with the taxotere got me worse than anything...very unpleasant coming off them. but you know what? chemo is unpleasant and cancer is stressful and it's a wonder anyone ever has ANY good days going through this battle.... who knows what the culprit is--there's plenty of them to go around!!! this too shall pass. I'm glad you're close to the end of it. :-) hang in---I am thinking of you....

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7/10/14 11:05 A

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I'm hoping everyone has a good day! emoticon emoticon

Sending good thoughts, prayers, and hugs! emoticon emoticon emoticon emoticon

Edited by: MOONGLOWSNANA at: 7/10/2014 (11:06)
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7/10/14 9:44 A

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Hi Everyone! I've been offline for a few days. I'm keeping you all in my thoughts and prayers. You have so many things going on. As for me, I'm getting through this ok. I recall someone on this site saying that Taxol caused them to be emotional. Oh my goodness, I have been so out of sorts! I don't feel like me. I'm trying very hard to stay positive. I wake up everyday and tell myself that I will have a good day. Only 2 more treatments! I will get through this!

Cyndi

Cyndi


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7/10/14 7:43 A

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Have wonderful day!

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7/9/14 10:08 P

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emoticon Jen! That's awesome news!!

We're having cooler temps. this week so far. It feels good! No rain!



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7/9/14 5:01 P

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Thank you Jen!

That is amazing that the chemo killed the cancer! That gives all of us hope that chemo DOES work. Sorry about all the trouble with the drain. When I had my mastectomy, those drains were the worst part of the surgery for me, they sure were uncomfortable.

I'm glad we have this place too. emoticon


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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JEN040219's Photo JEN040219 Posts: 386
7/9/14 9:20 A

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OOOPS! Shari, I forgot to congratulate you on your anniversary!!! I joined in Feb 2007.... and wow, it's kind of amazing how time flies, isn't it?? This is the greatest place in the world, and when I got into trouble with my cancer this year, I wasn't a bit surprised to see the wealth of support that was here all the time--that I'd had no idea about.

This is a blessed place--it's helped me through more than one rough spot--here's to another 8 happy years of friendship and motivation and plain-old good people and caring friends!

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7/9/14 8:58 A

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Sending the best vibes and most heartfelt prayers to Kay and to the follks at Vanderbilt this morning..... go put your mind at ease, hon.... Cannot wait to hear good news--and if it's not so good, can't wait to put the get-well plan into action. Much love and calmness....


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7/8/14 8:12 P

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Hi, all! What a busy week so far!

KAY--oh, I am in such a mood for wonderful news tomorrow--praying for the absolute best. Scar tissue sounds reasonable--and checking to make sure sounds even MORE reasonable. Your level headedness is just going to keep on serving you well for years to come. Do let us know how it goes....

Shari--I missed the fireworks entirely, but how wonderful it must be to NOT leave the house and fight traffic and parking--I hope it was a neat show.

Becky--caregiving is hard... I have no idea how my fiancÚ manages me--I'm downright intolerable sometimes depending on the pain. I feel awful... I think it's fair to share the wealth, though, and I sure hope your sister is able to step up and help out some more....

I had 2 post ops this week--one with plastic and one with breast surgeon. Plastic was unpleasant--I had a problematic drain--pulled sutures and just super-pain-fire kind of deal.... immediate relief to have it out, though. so I'm much pleased. Today I met with my breast surgeon who has never in her life seen a pathology report like mine.... she removed no cancer.... the chemo killed it all pre-op. My lymph even looks fine. There is no tumor (amazing as the initial group of tumors took up 9 cms of my right breast). I am floored. And thankful that I must have important things to attend to here on earth before I have to go.... Just an amazing day. I'm feeling super-blessed. I will see her twice a year for the next five and annually for the rest of my life which is great--because I ADORE her!!

Every doctor's office is getting chocolate covered strawberries. And hugs.

So.. still have pain but am staying ahead of it--some nerve deadness in that right arm, but I expected as much, My skin looks good, and I'll start filling the expanders next Monday. (And working on an accelerated reconstruction plan--I am NOT putting off radiation for the cosmetic doc's desires for 'good results.' Good result for me = LIFE.)

It is hot and sticky. We made it to 100 today with gusty martian-like wind.... I LOVED IT!! :-) Hope you're al well.... Much love to every one of you,
Jen

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7/8/14 4:31 P

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Good afternoon all!

Kay, that line dancing sounds like fun!

Had to go to the clinic today for my monthly blood work for my oncologist. (I get it done there, rather than at the hospital lab, because they won't draw the blood through my port at the lab.) While I was in the waiting room, I had a therapy dog visit, that always makes my day!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/8/14 4:18 P

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Happy Tuesday! I went to an aerobics class this morning and a beginner line dancing class at lunch time. I'm just trying to keep busy and my mind occupied today so I don't think too much about going to Vanderbilt tomorrow for my test. I really think there is about a 98% chance that the lump is just scar tissue, I just couldn't afford to ignore it until Sept. I'll let you know how things go.

Becky, your mom sounds a lot like mine. As the only daughter in my family (with 3 brothers), she seems to think that it's fine to ask me to do things, but wouldn't dream of asking any of my brothers. When I got cancer, I really had to put my foot down and say NO. She is much, much better at asking the others for help. Now that I'm done with treatment, I'm afraid it's going to go back to me being the designated grunt. Unfortunately, I also live closer to her than anyone else so I just have to suck it up sometimes and do it. I do think I got my point across when I got cancer and had to go through so much treatment so I'm hoping things will be better in the long run.....we'll see.

Wishing everyone else here a good day.

Hugs,
Kay

Kay from Tennessee



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7/8/14 1:06 P

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Parents! Even when we are parents ouselves our original set can still push our buttons! Organize what you can Becky, and make an ally of your sister. She can insist that she take your mom so you can at least take turns. I know you will handle it to your satisfaction. Time can be a precious commodity. Take what YOU need for yourself without putting yourself last. When someone is in the hospital though everthing can be like walking on egg shells.

Fingers crossed for tomorrow's good report Kay.

I hoping you're feeling better each day Jen.

I have my last appt with my plastic surgeon today so I made them Bibingka, a sweet rice cake, Filipino dessert. I'm sharing some with the physical therapists too. My husband will find only edges and crumbs left at home, but I think the edges are the best with their golden brown crustiness!

Have a good day Shari and anyone else reading the post! The sun is out now after a full morning of rain. I bet we got a couple of inches! There's a breeze now too, but everything is wet. I think the farmers' corn needed rain, but I wonder if all of them got the straw baled from last week when they cut wheat? It can be touch and go to be a farmer...

Have a good afternoon! If it had kept raining it would have been a good day to nap, but not to be for me!

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7/8/14 7:39 A

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Kay-let us know how things go on Wed.

We had storms last night, but the severe weather stayed away. Sunshine this morning.

Long day at work yesterday. Found out I wasn't the only one that didn't get a day off this week. Today I take my mom to see my brother. My sister offered, but my mom told her no. I will be talking to her about that today. I can't keep going all the time when there is someone else offering to take her. I've got so many things I want to get done and by the time I get home, it's already after lunch. It wouldn't be so bad if my mom didn't always have to go in the morning.

I hope everyone has a nice day!

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7/7/14 6:01 P

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Kay, I'm anxiously awaiting a "good news" post from you after Wednesday! emoticon

I had a good day today but I am sleepy; we had storms move through last night that lasted til almost 2am. I had my monthly lunch out with some of the ladies I use to work, and ended up taking a long nap after I got home.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/7/14 4:32 P

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Moon, it's nice you are back.

Becky, sorry you had to work on a day you needed to be someplace else. Bummer.

Shari and Jen, I hope you are having good days today.

Jen, those first two weeks after surgery were the hardest for me at least. The nerve endings that get cut and stretched create a lot of pain. I'm not sure which was worse, the nerve damage pain or the incisional pain. The incisional pain heals pretty quickly (a few weeks)....the nerve damage pain took a little more time for me ( a couple months). I still feel the effects of my surgery whenever I move my arm 5 months later, but it's more a minor irritation than true pain. Don't be afraid to use those pain killers the first couple weeks....they actually help aid healing.

I heard back from Vanderbilt first this this morning about the message I sent them over the weekend about my lump. They called me to see if I could come in tomorrow, but we couldn't because I we have a dishwasher repair guy coming ....and we have been waiting about three weeks for him to come. Didn't want to cancel that, so I'm going on Wednesday to get it checked out. I do think it is most likely scar tissue, but I will feel like I've done my duty and been responsible by going in and having them evaluate it. Now that I have the appointment, I am just trying to keep busy and not think about it too much. I know I'll be a bundle of nerves when they do the ultrasound. I haven't had a "clear" ultrasound yet on my left breast.....so this will be a welcome first if that happens on Wednesday. I'll keep you posted.

Kay from Tennessee



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7/7/14 10:02 A

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Wow! If I miss a few days you all do all sorts of things! Shari- Thanks for being here and for holding down the fort while Jen was off having surgery, visiting the ER, and NEEDING PAIN MEDICATION! I remember using my pain meds faithfully. My knees were giving me fits then and I needed to use my arms to get up which was traumatic to my chest muscles. Pain meds are your friend when you need them, and being a martyr is not worth the increased stress and discomfort. It's not discomfort, it's PAIN!
Kay- Hindsight makes all kinds of sense with your DX of Crohn's Disease, right! Hopefully they can treat it and get and keep it in remission. I'm hoping your lump is scar tissue too. Enough already! Feel better soon!
Becky - Hope your workday was tolerable and that you can catch up with your things to do and people to see needs after work. It's so hard to be at the mercy of someone else setting your schedule, and leaving you to deal with it!
Hang in there everybody. Remember, this too shall pass!

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7/7/14 7:07 A

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emoticon I was suppose to be off today and she scheduled me anyway. I really need to be other places today.

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7/6/14 5:41 P

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Jen and Kay, hope you both feel better soon. Kay, that sounds like scar tissue to me too, but for your peace of mind, it's worth getting it checked out.

I just realized yesterday that my 8 year Spark anniversary was the 3rd of this month, somehow that day just slipped by me. With all that's been going on though, it's good to have something to celebrate a little bit. Back then when I joined, it was was after my diagnosis of stage II, and I was just on the maintenance drugs; it was almost a year after that that my cancer returned and became stage IV. My Spark friends were a big part of getting me through the stages of learning to deal with that.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/6/14 2:33 P

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Hot and humid today! The humidity snuck in overnight and it's awful. i did manage to get out for a run before work and before the sun came out. We're suppose to see storms later on, but I don't think they're suppose to cool it down.

Jen-I've been stupid trying to get by without pain meds. in the past, but not anymore. If I need them, I will go for them or call my Dr. Hope it gets better soon.

Kay-Better safe tha sorry plus it eases the mind to know.

Have a nice Sunday!

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7/6/14 11:41 A

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Jen, I'm glad you went to the ER for more pain medication.....that is rough when you need more and are so far away from your surgeon since they can't phone in narcotics. Isn't it great how fast they treat cancer people in ER? I was amazed by that when I went in with my small bowel obstruction. I have never gotten through check in, triage and into a room any faster (at least that I recall).

Becky, I hope they have figured out things with your brother and it's not too serious.

We went to a big party at our next-door- neighbor's yesterday. It was nice to meet some of the other people that live near us. I appreciated that they had invited us since I didn't host my own family this year over the 4th.

I seem to be coming down with a cold this morning. It's the first one I've had in ages. I'm so glad this didn't happen while I was getting chemo. I suspect my resistance is still low, and, therefore, the cold.

I have developed a lump under my LX scar. I seriously doubt it is cancer, but I feel like I can't afford to wait until my mammo in September to have it checked so I'm going to email my BS and tell her about it. I'm guessing I'll need an US on it, but I'll let her figure out what is best for me to do. I found it about two weeks ago, but I wanted to see if it was getting smaller. My gut feeling is that it is most likely scar tissue and it has formed a lump as a result of the changes that are happening due to radiation and things (like scar tissue) getting tighter and harder. Like I say....I feel I can't afford to ignore it. Boo!

Kay from Tennessee



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7/6/14 7:31 A

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Happy belated 4th!! I hope everyone's day was wonderful.... I'll tell you what--the weather in these parts simply cannot be beat! Warm, sunny, low-ish humidity.... just a joy....

We had to hit the ER yesterday. Bad timing on my surgery with the holiday.... and the fact that refilling narcotics is no easy thing to do. I'm 2 hours from my surgeons--who are both entirely unavailable. They prescribed 30 each of Valium and Vicodin, and I felt a little like a junky going into the ER begging for more. but I did the math, and taking them as directed honestly didn't get me through 5 days.... and the pain was getting right crummy, so I bit the bullet and went into the hospital for help. I didn't even bother with head covering. haha. (I will miss the ER fast track when I'm through all this nonsense--it's pretty neat they want to keep the VERY Sick lady away from the sick people in the waiting room). Everything looks like it's healing fine--just awful sore sometimes. Thanks for the note on waiting to exercise that arm of mine.... I was tryin to pull off a sun salutation this morning--probably not the best idea huh? hahaha. I need to work on my patience.

On top of all the boob fun, we are infested with fleas. So we bombed the house when we went out to the hospital and treated all the animals. Hopefully we'll get some relief. Or we'll bomb it again. :-) everything got washed--good productive day.

Love you all--keep on enjoying the holiday.... Becky, I'm praying for your brother and hoping we're dealing with something treatable and curable....

Jen

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7/5/14 4:15 P

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I watched the fireworks through my kitchen window; I don't live far from where they shoot them off. I missed a few because of the trees, but I saw about 80-85% of the display, and it was a very nice one, about 45 minutes long.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/5/14 7:41 A

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Most of yesterday was quiet. The boys all had things to do so it was just my DH and me. Got in a short nap. Went to the movies last night.

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7/4/14 5:16 P

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I'm glad your brother is doing better!

I'm just hanging out at home today.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/4/14 7:58 A

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emoticon emoticon Happy 4th of July!

Everyone's schedule is making it hard to plan anything for today so I'm not sure what we're going to be doing. My brother is doing better. No TB and I don't think it's Lung Cancer. Still not quite sure what's going on.

I'm planning a run this morning, followed by a trip to the grocery store to pick up something for today.

Have a great day!

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7/3/14 4:42 P

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Kay, I commented in the other group, but again, I'm so sorry about the Chron's.

Jen, I'm glad you did well with the surgery, and I hope your recovery is as pain-free as possible.

Becky, I'll send up some prayers for your brother.

Edited by: MOM2ACAT at: 7/3/2014 (16:43)

My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/3/14 7:41 A

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It's a jacket kind of morning! Hard to believe it's July. nother busy day ahead!

Have a nice day!

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7/2/14 7:59 A

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Jen-I'm glad everything went well for you. The expanders aren't too bad. I think mine hurt for the first few weeks. Mostly when I moved wrong. I remember trying to move them cuz they felt like they were digging in at times. That was painful. Then I would have pain after each filling for a few days.

Busy day yesterday. Unplanned trip to the hospital with my mom. By brother is there. They're testing him for a number of things. One being lung cancer and another TB. My mom is a wreck. Good thing I'm off of work right now so I can take her to see him. I am getting my exercise i before I go though. I told her I had to. It's my antidepressant. Without it, I would have anxiety attacks especially now.

Kay-sorry about the Crohn's. At least now you know what it is and can treat it.

Have a nice Wed.!

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7/1/14 9:30 P

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Cyndi, did they tell you about taking Claratin for the bone pain from the Neulasta shot? It really works. I took Claratin twice a day for 5 days beginning with the day of the infusion and never had any pain.

Jen, congratulations on getting done with your surgery! That is a huge step. I hope you are feeling okay today now that the wonder drugs are wearing off. I'm keeping my fingers crossed for a good path report for you. They say it's okay to delay radiation for up to 8 weeks if necessary so if you need time for the TE fills, it can be done. I was surprised how much my surgery hurt for the first two weeks afterward in particular. I didn't have a BMX, I had a LX and ALND, but I also had old subpectoral implants removed. The LX didn't hurt, but the ALND and explantation hurt like crazy. Take care of yourself and let others help you out. If you had an ALND it's actually important to allow that area to heal for a couple weeks before beginning to stretch or exercise. It helps reduce the risk of LE. There is a good website that explains this. www.stepup-speakout.org/riskreductio
n_
for_lymphedema.htm
I didn't realize why they didn't give me stretching exercises to do when I left the hospital until I read this. Wishing you the best in your recovery.

Becky, maybe they are giving you the days you want since they realize that you will leave if the hours aren't right for you.

I just found out yesterday that I apparently have Crohn's disease. I had a test done last week and the pathology results show that my intestines are diseased. I'm bummed. I will go back in a few weeks for another test to help clarify the extent of the disease and some other issues and then meet with the GI doc to discuss treatment. Whatever I have, I have been dealing with it for years without medication. It will be interesting to see what the doctor has to say in terms of treatment. I know this will mean more followups. The risk of intestinal cancer is 100 times greater in people with Crohn's than in the normal population. Booo!

Edited by: SIMPLELIFE4REAL at: 7/1/2014 (21:41)
Kay from Tennessee



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7/1/14 6:16 P

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Happy Tuesday Evening!!

I am home from the hospital, and though I didn't get to talk with my surgeons last night after they were done with me, they tell my fiancÚ that I did really well. (I'm not sure what that mean--I stayed unconscious good and long? lol) Anyhow.... we'll discuss path next Tuesday at my post-op.

Kind of disappointing to wake up with expanders instead of implants--they just needed to take too much skin and weren't able to pull a one-stage off on me. Not big deal, as long as it doesn't interfere with my radiation starting RIGHT QUICK.

I'm kinda of surprised--it isn't all that bad. I am expecting it to be pretty painful once the wonder drugs are out of my system in a day or two. BUT another part of treatment bites the dust..... onto the next!!!



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7/1/14 5:25 P

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Cyndi, I hope your WBC comes back up soon. When I was on the IV chemo, there were a few times when my treatment had to be delayed because of that too.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/1/14 7:29 A

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emoticon Awake at 3 a.m. this morning. It looks like I'm going to need a nap later!

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6/30/14 8:05 P

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Good Evening!

It was a long day at work today. I'm looking forward to my days off. I'm still working, but so far, she's been giving me the hrs. I wanted. We'll see how everything goes. We've been having so much rain around here lately. We need about a week of dry weather. Hopefully July will be a bit dryer.

Have a nice evening!

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6/30/14 6:22 P

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Thanks Shari!

I had my second round of Taxol today. I spent the day resting. I almost didn't get my treatment today because my white blood count was so low. I'll go tomorrow to get my neulasta shot. I hope that helps boost my white blood count. I don't want any delays on this treatment !

I hope you are all doing well today!

- Cyndi

Cyndi


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6/30/14 4:53 P

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Cyndi, I'm glad you had a nice visit with your sister. I agree, the best therapy sometimes is just getting together with others and forgetting the cancer for a little while.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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6/29/14 9:41 P

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Hi Everyone! I had a great time with my sister. Her visit was so therapeutic. It was nice forgetting about cancer for a week. Tomorrow, I have another treatment. I'm ready to get this over with!

Jen - Is your surgery tomorrow? I'm sending you positive thoughts!

I'm glad the rest of you are doing well!

Cyndi


Cyndi


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6/29/14 3:41 P

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It felt pretty warm and sticky when I went out this morning to take some trash out to the garbage can. We had a couple of heavy rain showers move through this morning. It's now sunny and windy, but I haven't been outside yet since this morning so I don't know if the humidity has gone down yet or not.

I recolored my hair this morning; it really needed it. It's amazing how having my hair look better is making me feel better too!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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6/29/14 7:53 A

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Good Morning!

Picked up a few things at the Farmer's Market yesterday. Not alot is ready yet. It was very warm and humid yesterday followed by rain and storms last night. More on the way later today. I have a full day of work today. emoticon

Have a great day!

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6/29/14 12:57 A

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I went to my sewing class this afternoon and started making a purse or a bag for sewing tools. It is lined and has machine embroidery on the side. it will have a zipper all around its half moon shape. The zipper is what I have to finish, and I plan to eork on it on Thursday afternoon.

It rained here too this afternoon, and it got hot and humid. It's summer in Ohio!

One more day of the weekend left to enjoy. Have a SSuper Sunday!!!

My little scar revision is healing nicely. Good Luck On Monday Jen!!!


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6/28/14 4:31 P

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I haven't been to the farmer's market yet this year either; since I have to depend on others for rides, I don't get to go everywhere I want to go. I know they would take me anywhere I ask, but I try to keep the trips for just the things I really need, like groceries or medical appointments.

We seem to be getting just the right amount of rain lately; it sure is making the grass grow. My niece mowed my lawn last weekend and it already looks like it needs another "haircut".


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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6/28/14 9:18 A

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Happy Saturday!
It's a little rainy here this morning, but that's fine. It means I don't need to water my potted plants.

Jen, that is so great that you are helping out a friend. I'm sure she appreciates it. It sounds like you have your surgery all thought out. You are in such great physical shape for having just finished chemo...that will help a lot with your recovery.

Becky, 4" of rain....that is A LOT!!! We just keep getting scattered thunderstorms, but that is very typical in the mountains in Tennessee in the warmer weather. They tend to come and go pretty quickly.

I got half my front flowerbeds weeded yesterday, I plan on working on it some more today. With the ground being a little wet, it will make it easier to pull up the weeds.
emoticon

Kay from Tennessee



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6/28/14 7:37 A

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Extremely humid this morning. I'm going out for a short run and then to the Farmer's Market. I haven't been there yet this year. More rain is in the forecast this weekend. I guess we had about 4 inches yesterday. A little too much. It was a crappy Winter and now Summer is starting to stink too.

Have a nice day!

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6/28/14 6:36 A

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HAPPY GOOD SATURDAY MORNING, FRIENDS!!!

It looks like it will be lovely today.... I will finish my mowing and do some laundry... Unfortunately, it won't be my laundry :-) I have a friend who had a "simple" knee surgery get really complicated once the surgeon got in there and saw a piece of cartilage had broken off and had been floating around in there wreaking all kinds of havoc--tearing up meniscus and healthy cartilage and all kinds of stuff. She woke up to the news she'd be on crutches--NO WEIGHT--for 6 weeks (as opposed to the plan in which she'd be able to put weight on it the same day). Her daughter hasn't been able to get over to do her laundry for the past 2 weeks, and my friend is out of work clothes--wore a floor-length summer dress the other day.... It was adorable but not something she'd wear to work or in crutches except that she was down to that and slacks--and she can't get slacks on! :-) So I'll go help her out. She enjoys her shower seat (I picked her up one of those the day after her surgery.... It seems life is VERY complicate without a leg--and without your arms if you're using them for crutches--she was explaining how she can't eat sitting down because she can't carry her plate to a table!! The things you just don't consider unless it's happening to you, huh? Amazing....

I just get more and more excited for my big day--thank you all for well wishes and prayers. I tell people--when they tell me I'm so strong and so brave and that I'm their hero and all that over-the-top nonsense--that because of them, I'm not having to kick cancer's butt alone...

(To be honest, I'm even more excited for July 30--month post-op--when I'm feeling good and all the drains are long gone... ;-) ) Patience is a virtue I have, just not in huge quantities.

I have lost a handful of pounds since chemo, and that makes me happy. Apparently being off the steroids is a bigger help than being in menopause is a hindrance :-) I'll keep at it. Cutting WAY back on processed stuff and pasta has been hard for me--my mouth started watering when you said spaghetti, Kay. And OOOOOH, that strudel sounds so good, Moon.... back when I was running and in super shape and really toning up, I refused to "diet" and managed my cravings by controlling portions. Figured that I SHOULD be able to have treats if I wanted them--just not the whole treat.... maybe a bite of the treat, or a quarter or half.... Very good plan to stretch it out over a couple days!!

Becky--I'm doing reconstruction, too. We're doing one-stage so I can start my radiation RIGHT away at 30 days post-op (the plastic won't put implants in post-radiation, and I'm not waiting through 3 months of expanders to start the next part of my treatment). I'm anticipating issues with the results--putting them in all at once typically means placement can turn out a little silly--but I'll deal with all that later on, I suppose. I'm going smaller--again--have already had them reduced. By the time I'm done with this, I will have been every cup-size from a B to a DDD. :-) And I do think more and more that I'd just as soon lose them all together if they give me any trouble--as you can see, I never really liked them anyhow (they must have caught wind of that and finally said, "we've had enough griping about us.... let's KILL HER!!! ;-) ) Cracks me up how things happen. It really does.

Anyhow, this is over-long again as usual. Love to you all--Shari, I'm glad you're doing well enough.... hoping for continued relief!! And just hoping in general for everyone for a really super weekend!!

Jen

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6/27/14 5:17 P

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I found my Genie bras on Ebay; I don't remember the name of the seller, but I got 2 bras, one white and one nude color, for a little over $13 and the shipping was free.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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6/27/14 10:15 A

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I think I will check out the Genie bras too. They look comfortable and if I can add a little padding to my small side I think my clothes would look better too. Thank Shari and Kay!

Jen - I have you in my thoughts and prayers. Keep us informed on your progress when you are feeling up to it. Good idea about seeing your therapist. Downward spirals are no fun. Been there, done that, and don't want to go there again!

Have a great day everyone!

PS The apple strudel didn't adversely affect my calorie intake yesterday! It tasted wonderful, like forbidden fruit, and I finished it this morning for breakfast. YUM! i will plan this into my nutrition intake again in the future!

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6/27/14 8:17 A

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Shari, those Genie bras sound nice! Since they have a pocket for padding, I'm going to look into them. After my surgery, one breast is really oddly shaped and I have a little prosthesis for it, but I'm afraid to use it with a regular bra for fear it will fall out! The Genie might work. Did you buy yours in a store or on-line?

We have nothing planned for today so I hope to get a lot of weeding done. I didn't realize how bad the flower bed had gotten until yesterday. All the rain and heat has really made things grow....including the weeds!

Kay from Tennessee



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6/27/14 8:03 A

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A nice thunderstorm this morning! I just hope it doesn't last all day!

There are days I wish I wouldn't have had reconstructive surgery. I only had it done so my clothes would fit right. I would try some tops on and they just wouldn't look right and then I worried about a swimming suit. If I ever have issues with them, I'll probably just remove them and not replace them.

Busy weekend ahead.

Have a great Friday!

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6/26/14 9:03 P

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Speaking of diets I had supper out tonight and brought home apple strudel for later. it looked so good, and I passed up all the beautiful chocolate delicacies for the one with fruit. I'm planning to have half tonight as my snack and half tomorrow with my oats and yogurt. Like Kay said, we have to live.

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6/26/14 6:00 P

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Jen, I've checked into anti-inflammatory diets, but with my food restrictions because of the gastorparesis, there are too many foods on that kind of diet I cannot eat. My joint pain isn't as severe as it was, and while my ferratin is still too high, it's down a little bit lower than it was over a month ago. But still, I was hoping he would have an "easy fix" for me. I'm also wondering if my oncologist thinks it's from the Afinitor, (the increase in inflammation) if he will change my treatment.

Speaking of bras, for those that wear prothesises, I recently bought a couple of those Genie bras; they actually have pockets in them with a padded liner; I found if take the liner out, my prothesesis will fit in there, and they are so much more comfortable than a regular mastectomy bra! I wear a small size, an A cup, so I don't know if this would work for prothesesis of larger sizes. I heard about that idea in the "Flat and Fabulous" online support group I am part of on Facebook, for those who opted not to have reconstruction surgery following mastectomy.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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6/26/14 12:23 P

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Hi All,
Jen, I'm wishing you the best with your surgery. I also blew my diet after completing my test on Tuesday...for me it was spagetti. I don't normally eat pasta so the spagetti was a treat! We do have to live. :) You are doing great with exercise. Getting in all those steps is fantastic. You will be much stronger for your surgery than I was.

Moon, good luck with your scar revision. That's nice to be doing that.

I went bra shopping for the first time since my surgery. I've gone from a 36c to a 36a since they took out my 30 year old implants during my lumpectomy surgery. It was a little sad shopping, but at least I now have a bra that actually fits. I only got one. I want to make sure I like the style and it holds up in the wash nicely. The sales lady was very helpful and made the process a lot less traumatic for me. I keep hanging onto my old bras....it's not like I'm going to grow into them, but I'm just not really to let them go. Oh well....

Kay from Tennessee



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6/26/14 8:20 A

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Happy good morning!

Today is my last day of work (for probably the next 8 weeks). Tomorrow I have pre-op at Georgetown (4 hours round trip), lunch with a gf, then I meet with my therapist--we generally have happy talks, but I keep her in my back pocket as a safety net... keeping one's head on straight is VERY hard in our situation, and I'm trying to stay ahead of the curve. No downward spirals for me!!

Becky... I have got to start running again. I did ONE sorta-run-walk thing last week and never did get back out there (stuck with walking since then, and am getting in about 12K steps, but.... boy, those 12K steps go faster when you run more than half of them, don't they?) My heart is worrying me a little--the Herceptin and Perjetta I've been on (and will continue for another 8 months) tears that particular muscle up and I've lost 10% of function... more weird for me is the irregular beat that seems to have come on-it throws a gallop in there every once in awhile, and it bothers me (I messed up the MUGA scan machine 3 times the last time I was in for a heart function scan.) HOWEVER, I do like getting rid of cancer. It's just a shame the medicine can be just as bad as the disease....

Shari... I hate to hear "watch and wait" news from my doctors. That's got to be maddening. Have you researched anti-inflammatory diets? I'm not sure where I'd go from there, but without medical help, I might try to help myself out that way. (Also not sure how much help that might be, but.... I think I might be a little of a control freak and want to DO something.) I hope you're not in any particularly awful discomfort from this....

And thank you both for forgiving my peanut butter hot fudge sundae splurge the other night. ;-) I swear I would MARRY that sundae if it would have me.... :-) SOOOOOO GOOD!!

Love and health,
Jen

Edited by: JEN040219 at: 6/26/2014 (08:21)
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6/26/14 7:42 A

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Good Morning!

We all need to blow the diet once in awhile. I sort of did yesterday. It was planned though. When I work a long day, I usually treat myself to a peanut butter, crispy bar from the store. They are so good and really rich and they are pretty big pcs. I don't even want to know the calories that are in them. It's a good thing I don't have those long work days often. I'd be a blimp! I can not believe we're coming to the end of June already. Time is flying by.

I've got a run to do today, followed by some cleaning and maybe some groceries.

Have a great day!

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6/25/14 4:38 P

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That's ok Jen; I have my own moments with chemo brain, lol!
I'm glad to hear that lymph node is benign!

I saw the hematologist today; the "full story" is in my blog, but the short version is that I do not have an iron overload; the high ferritan levels are from inflammation going on in my body; not getting treatment for it at this time, but he's going to have my oncologist keep an eye on the iron levels and my liver; if things change, he'll have me come back and see him then.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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6/25/14 6:39 A

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Shari (and Kay), I sure did plaster the wrong name on the GOOD LUCK on the procedure note.... I'm going to blame chemo brain :-) :-) And Shari, I hope the hematologist gets your iron sorted out starting today!!

And Kay, I hope you're feeling better after the ordeal yesterday :-)

And Moon.... boy, I just love scar revisions... (I'm looking forward to one for my mediport already--that scar sort of 'spread' out--it's pretty wide. I hope you're pleased with the results.

And... as we suspected... there's nothing wrong with my left lymph node. I LOVE BENIGN findings (they happen relatively rarely for me, so they make me VERY excited!) We celebrated by spending WAY too much money for dinner on the water last night at a fancy restaurant with really decent seafood and so-so service. :-) The kids enjoyed a run down the boardwalk to the closed ice cream stand (BOO!), so we ran up the road to Brewsters where I blew my diet. :-) We gotta live a little, huh?

I hope everyone's well today and enjoying decent weather!
Jen

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6/24/14 8:06 P

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emoticon emoticon emoticon I saw my plastic surgeon today for a small scar revision on my suture line. Easy stuff in light of what all this group endures. I 'm hoping everyone had a good day!

Tomorrow is my bone density test, and I found out via blood work that I have no immunity to chicken pox and have to get the adult vaccine at a Travel Clinic. Who knew? I took care of all five of our kids when they had chicken pox... emoticon

Edited by: MOONGLOWSNANA at: 6/24/2014 (20:08)
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6/24/14 5:00 P

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Jen, I think you probably confused me with Kay; I'm not having anything done today, but she was having a procedure done today. I will be having an endoscopy to check on my ulcers that were found in May, but that's not until next month, and I don't have to do a special diet for that one; I just have to fast 6 hours prior to it.

Tomorrow I will have my first appointment with a hemetologist. I'm always a little anxious when I have to meet a new doctor, but I have been told that he is nice. I was referred to him because my ferratin levels are too high.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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6/24/14 8:49 A

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Jen-you have a very busy schedule ahead! I hope everything goes well.

Yesterday was a good day and today I work, but only 4 hrs. Shouldn't be too bad. Tomorrow on the other hand will be a different story. Long day! I got my run/walk in early this morning so I'm feeling pretty good.

Have a great day!

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6/23/14 6:08 P

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Hey, all.... plastic preop this morning.... biopsy tomorrow.... presurgery thing Friday.... then Monday will finally get here!! I'm excited to wake up sore. :-) (and cut down on doc appts some.... good heavens, there are so many!) have 3 post ops sched already. hoping to get started on the other 7.5 months of Herceptin QUICK. get that clock started. plastic thinks he can do 1 stage reconstruction, and i'm hoping SO hard for that--I have no time for expanders or to put off radiation for permanent implants unless they are happening on the table on Monday. :-) Here's the part where I start worrying about how many nodes come back positive, though.... grrr. My brain--wish I could wash it with happy sauce sometimes :-)

Shari--I hope your diet today wasn't too trying, and hoping everything goes real well tomorrow for you.... yes, probably about time for a scope, I guess!! And very odd how things go sometimes. I did the CTHP cocktail (carboplatin,taxol,herceptin,perjetta) and will continue with the Herceptin/perjetta well into next year). I have had fuzzies growing on my noggin since second half of chemo--am looking forward to my 5 o'clock shadow coming in after the 4th, though. My fuzzies are delightfully WHITE. Pretty cool at 42.... I tell my kids that I'll look like Elsa from Frozen.... but I have a feeling the normal color typically comes back with time.

Cyndi--I hope you had (or are continuing to have) a blast with your sister!!!

Shari and Becky--the rain is nice (if it weren't for having to water plants or contend with weeds, I would probably plant a bunch of them!!) I do real poorly with plants--my daughter (13, obsessed with growing things) seems to have no better colored thumb than I do. :-)

So... off to fax disability forms and fill prescriptions and buy some B6 (my fingers are tingly--but we don't want to start Neurontin or anything crazy the week of surgery... so I'll try some vitamins).

May everyone have a delightfully wonderful Monday evening!!
Jen

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6/23/14 4:53 P

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Julie, I hope it all goes well for you Tuesday.

I forgot to add, with the "peach fuzz" on my face, it was not a permanent condition. After I was done with the chemo for a few months, it stopped growing on it's own.

I didn't plant anything new this year, I just got a couple of hanging baskets for my porch awning, but with all the rain we've had, I've only had to water them myself a handful of times.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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6/23/14 8:15 A

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Good Morning!

It was a very active weekend which made for good sleeping. I felt like my old self this weekend.
It's overcast this morning, but it's not suppose to rain. (at least until I get out for my run. Then we'll get unexpected rain!)

Because of the weather we've been having, my garden is doing really well. So are the weeds! I had to go and pick up some Round Up yesterday. All the hard work we put into my flowers and these darn flower or whatever they are (very invasive) keep popping up everywhere.

I hope everyone had a nice weekend and I hope you're Monday is a great one!




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6/22/14 3:38 P

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Happy Sunday,

Jen, I also got a ton of peach fuzz on my face like Shari described. I used one of those little vibating hair trimmers to cut it off (several times). I noticed this morning that I still seem to have that peach fuzz hair on my back too! I didn't realize it until I was putting on some sunblock on my radiated shoulder and could see the fuzz in the mirror. Oh well..... the fuzz on my face seems to be going away. It is fascinating to watch the hair come back in again after chemo....it's all very strange. As strange as it was to lose it in the first place, but much more fun watching it come back.

Shari, Moon and Jen (and anyone else reading this), I hope you all are having a wonderful Sunday.

This morning, I took short walk (just a little over a mile) and then went swimming in the lake for the first time this summer. I just swam a few laps in an area that wasn't over my head just in case something happened since I was out there alone without a life jacket on. (I'm very safety conscience about swimming in the lake. It felt good to be out in the water. I wasn't sure how my arm would react to swimming, but it seemed to be fine. I plan to do more of it. I wanted to wait until I knew for sure that my skin had recovered from rads before I went in the lake. It was all good.

On Tuesday, I'm going to Vanderbilt for the equivalent of a colonoscopy on my "j-pouch". I've never had one done before and I had my j-pouch surgery 32 years ago! At the time of the surgery, there were no specific recommendations for follow-up because it was a new surgery. I think now they recommend having it scoped annually.....I think I'm about due!

Anyway, tomorrow, I'll be on clear liquids. Then around dinner time, I'm supposed to drink a bottle of calcium citrate. I don't have to do anything else because I don't have a colon and it's easier to get the pouch emptied out. In fact, it will probably be empty before I even drink the calcuim citrate. They will sedate me just the same as for a colonoscopy, so Monday and Tuesday will be low energy days for me.

It's funny, if you had told me a year ago that I would get diagnosed with cancer, I would have guessed it would be cancer in the pouch or in my rectum.....I would have never guessed I would end up with breast cancer even though it's such a common form of cancer for women. It just goes to show that the things we worry about most tend to never happen and the things we don't worry about are the ones that can come up and bite us when we least expect it. It clearly teaches me to be grateful for all the good stuff going on in my life.

Hugs,
Kay

Kay from Tennessee



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6/22/14 1:42 P

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Kay, we haven't had any storms in our area except for a brief one early Tuesday morning; mostly, it's been just plain old rain. Most of the bad weather has been in the southern part of the state.

Jen, I remember getting peach fuzz on my face during the chemo I had 11 years ago. I tried using some of the Nair stuff that was made for using on the face. Even though I left it on for the shortest amount of time, it not only burned the hair off, but it felt like it took off a layer of skin too! I learned my lesson never to try that stuff again. My face was irritated for a long time after that. (When they tell you in the instructions you should do a "patch test" first, they really mean it!)

Cyndi, I hope you can get something to prevent the pain from the Taxol before it starts.

Becky, congrats on the 5k!

Kay, that was a lot of biking, so I'm not surprised you were tired. A lot of times too, with physical activity, the tiredness doesn't hit me til the next day.

I'm not doing much of anything today; lately, except for doing a workout, Sunday's have been "rest days" for me.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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6/21/14 8:03 P

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Cyndi, it seems like the people that get the dose dense taxol every other week have a lot more issues with bone pain than the ones (like me) that get it weekly for twelve weeks. The good news is that you are done so much faster. It cuts a month off of the treatment time.

Jen, I started getting peach fuzz on my head at six weeks post chemo. I ended with AC. People that finish with other chemos tend to get hair sooner. I'm not sure what you finished with. It sounds like you made a wise decision to let the house go. I'm sure something else better will come along when the time is right. Good luck on your surgery. You are in far better shape physically than I was going into surgery. That will help you a lot in terms of recovery.

Becky, way to go on running the 5k. That is great!

Shari, I hope you are having a good day today. Did you have any storms in your area? There seem to have been a lot of them lately.

I didn't do much today. I had one of those "tired" days today. They are coming less often, so that is good. I think I'm still trying to recover some from all the biking I did earlier this week. I expect to be fine tomorrow. We were supposed to go out to dinner tonight with a group of friends but I decided I was too tired to go. I'm so glad we didn't go. I poured down rain right when we would have been driving down a mountain to meet with the group in the town 30 minutes from here. Driving down that mountain in a thunderstorm is no fun....I'm glad we missed that!


Kay from Tennessee



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Good afternoon! It's been a usy couple of days! Much accomplished despite the heat. Ran a 5k race this morning and then went to my mom's to take care of her lawn. Now it's time for lunch and a bit of relaxing. Afterwards I have laundry to finish.

Have a nice day!

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6/21/14 8:31 A

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Man, I love you guys.... thanks for all the news and being so much better at keeping up here than I am!!! Nice way to pass the morning....

Cyndi--YAY on the Komen walk/run. I did the Avon walk right before my 5th neoadjuvant chemo transfusion. It was AMAZING. (t-minus 10 days to my big surgery!!)

Going to get my non-cancer lymph node aspirated on Tuesday--will know Thursday whether I'm having bilateral ALND or lateral. :-) I CANNOT WAIT TO GET THESE OFF MY CHEST!! Very excited.... Meet with plastic for preop on Monday (Sharpie cartooning on my chest day!! Hooray!)

Have been busy with work over the past two weeks--and the house--but we decided to let the house go yesterday morning.... the renovation costs were skyrocketing to the point it's no longer a good investment financially--not to mention the part where we'd be living in a construction zone for the next 3-5 years. Not what we want to do at our age. It's disappointing, but we'll find the house that's meant for us.

In related news, my left eye stopped twitching for the first time in months the minute we decided to let it fall out of escrow. :-)

I love to hear how everything's growing and thriving in this weather!! I'm dumbfounded by the amount of activity everyone's getting it (Kay, Becky, Cyndi, Moon--good heavens!!) Gives me hope I can start getting more consistent as I get farther and farther from the chemo nonsense.) I did a 4-mile walk last Monday and threw in 3 jogging intervals for a total of 1 mile running (a couple quarter mile intervals and one half-miler). I loved it. (but haven't gone again since. sigh. c'mon ENERGY!!) have been working on push ups and sit ups every day and I am logging my food for the first time in YEARS.... (because it WORKS--it has worked for me in the past). I'm having trouble taking off the weight I've put on in the past year.... between cancer stress and steroids, I'm up 10-15 pounds since last June. It's coming off VERY slowly. I think I may have killed 2 pounds last week, though :-) And I can do more crunches and push ups than I could last week, so that's good, too.

Shari--unhappy to hear about the ulcers, but happy to hear the other end's in relatively good shape. :-) Feel better!

Waiting on the hair to sprout.... shouldn't be too long now.... will be 4 weeks post last infusion next Tuesday. (I haven't missed the chin whiskers much, but.... I have to admit I would be excited to see them again!! LOL!)

Love and health and happy summer to you all!!
Jen


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6/21/14 7:11 A

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Shari - I hope you are feeling well soon!

I had my first Taxol treatment on Monday. I was very tired from the Benadryl and thought that was going to be my only reaction. During my previous treatments, my reactions hit the same day as treatment. Not this time! On Wednesday, I started having horrible bone and muscle pain. On Thursday, I felt like I had a bad flu bug. Yesterday, I started to feel "normal" again. It's all good though because my sister is coming to visit from Philly today. She'll spend 5 days with us. I can't think of a better medicine.

I'll see my oncologist on Monday. I'll ask about something to take to combat the pain from Taxol for my upcoming treatments. Only 3 to go!

Enjoy the day!

Cyndi


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6/20/14 5:40 P

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Good afternoon;

This week has been kind of a setback with me with the health issues. Been dealing with weather and allergy triggering sinus headaches, and as a result, haven't felt much like getting on the computer.

I saw my GI doctor too, and found out that the ulcers I have are a little more serious than I thought. Even though they are very small, I have several of them, and they were bleeding at one point. He's going to do another endoscopy next month to check on them.

On the other hand, my colonoscopy and small bowel x-rays were normal; it looks like my problems with "that end" was just a bad flare up of my IBS.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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6/20/14 10:50 A

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Healthylady, nice to see you here.

Becky, I call the day that you had "lost days" when I don't get anything done. I really don't like those days. I hope yesterday was better for you.

Moon, that is interesting about the history near Xenia. I really don't know anything about it and will have to check into it. The area is truly wonderful for out-of-shape cyclists (like me). We are trying to get some friends from Wisconsin to join us there next year. I hope your check up goes well.

I don't have much going on today. I just want to get in at least 30 minutes of exercise and get the house more cleaned up. After not really doing much during the 9 months of treatment with winter, I feel like there is a LOT to be done!

Shari and Jen, I hope you are doing okay.

Hugs,
Kay



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HEALTHYLADY12's Photo HEALTHYLADY12 Posts: 536
6/20/14 10:23 A

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Good and blessed

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BECKYANNE1's Photo BECKYANNE1 SparkPoints: (150,473)
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6/20/14 7:48 A

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Yesterday was not a good day! It rained all day. It is so wet around here. I pretty much did nothing. I was going to clean but it was so dark in the house, it felt more like a nap day. Yes, I tried to take a nap, but wasn't successful. Too many distractions. Today is starting out foggy, but the sun should come out and it should be a warm day.

Have a great Friday!

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MOONGLOWSNANA SparkPoints: (65,366)
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6/19/14 8:15 P

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Thunder boomed and lightning cracked all night!!! Milo was scared and nervous. He wandered around scratching on closed doors and begging to be in bed with us,but he was still restless and unsettled until after 1 AM. Needless to say I didn't rest well either. The upside is that we got buckets of needed rain with the sound and light show, and the grass was green this morning.

Kay- Our kids and now are our grands are going to camp at Glen Helen which is outside of Yellow Springs not far from Xenia. That is an interesting part of Ohio because of its history. Clifton Gorge and John Bryan State Park are both neat places to see. I'm glad you got to ride through there. The bikers want to connect all those bike trails to others in various parts of the state which would be really great for sightseeing on two wheels.

I had physical therapy this morning and will probably finish up my therapy in another week. Then I will be on my own at home with what I have learned. I am doing much better with my balance and with walking with fluidity. I still have trouble with steps, but with the shots in my knees and the therapy I feel much better. I have my yearly check up with my internist tomorrow so I'll have a two hour drive to and from. I'll be spending the night at my daughter's. So tomorrow and Saturday will be light days on my iPad. I'm also taking my desktop to the Apple Store to see if it can be fixed and doing some other shopping before I come back home on Saturday night.

Have a good weekend everyone and dry out from all the rain!


SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL SparkPoints: (52,263)
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6/19/14 4:51 P

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Happy Thursday,
Moon, Xenia Ohio is a hub for about 5 bicyle paths created on old rail road tracks. We stayed in Cedarville, which is close by and biked through Xenia to Yellow Springs and Corwin. It's all in what I would consider central Ohio. The paths are miles long, flat and paved. A paradise for people just getting into bicycling (or back into it like me).

Becky, we got rain today so no watering of the plants for me either. Hooray!!

I'm still feeling tired from the bike riding, but I did go to aerobics class this morning. I'm spending most of the day just trying to get things organized after being gone for a week.


Kay from Tennessee



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BECKYANNE1's Photo BECKYANNE1 SparkPoints: (150,473)
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6/19/14 7:49 A

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Good Morning!

It's been a very wet few days here and it doesn't look like we're going to dry out any time soon. It's not all rain. We do get sunshine during the day, but the ground is so full of water. There has been so much flooding around us. I'm tired today. I have to go and visit my mom this morning and then come home and tackle some cleaning.

Have a wonderful day!

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6/18/14 9:30 P

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I should have had that rule about 40 years ago! lol I'm working on it now, but I'm way behind in the discarding part. I 'll get there eventually!

Where did you bike in Ohio? I know the western part of Ohio fairly well. I was born in Dayton, and we live in west central Ohio now. i have family in southwestern and central Ohio too.

We just had some heat and humidity breaking rain tonight, thank goodness. At least my husband won't have to water the plants tomorrow. I'm glad you enjoyed you vacation and that the plants did okay while you were traveling. It has been really hot here for the past couple of days. It feels more like late July instead of June! We all were anxious for summer, and it's here!



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6/18/14 8:20 P

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Moon, that is great you are getting some decluttering done. I just added a few blouses to my donation bin. I have a "rule" that every time I buy something new to wear, I donate (or toss) the same number of things to keep my closet from getting crowded. It works pretty well for me.

Today, we drove from Ohio back to our home in Tennessee. We had been gone 8 days. My chard grew like crazy while we were gone. I haven't had a chance to check the rest of the outdoor plants, but from a distance things look okay. We got some rain here while we were gone.....thank goodness!

Kay from Tennessee



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BC3HAS's Photo BC3HAS SparkPoints: (14,530)
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6/18/14 8:21 A

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I hope everyone is doing well today. Enjoy the day!

Cyndi


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6/17/14 11:50 P

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Just reading about all the running and biking and doctor's sppointments is making me tired! I am running in circles here at home trying to eliminate clutter befor the kids come home for a week in late July. I am also driving in circles back and forth to get aqua therapy and physical therapy for my foot and knees. I 'm getting stronger, but I still can't walk the big stores so I ride the cart and although i'm walking further I'm keeping my cane handy. It sounds like summer is agreeing with all of us in spite of the storms Mother Nature keeps doling out. Survive and thrive should be our motto!!! Tomorrow is Wednesday, mid-week already! Have a great rest of the week!

Edited by: MOONGLOWSNANA at: 6/17/2014 (23:52)
SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL SparkPoints: (52,263)
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6/17/14 7:13 P

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Becky, there were biting flies along parts of the bike trail yesterday. They couldn't get through my shirt, but they could get through my husband's. He was going nuts.

Shari, I am so happy that your health seems to be getting better after the last couple months of problems. Hopefully, this summer will be a good one for you.

We did another long ride today on a different bike path. This ride was 30 miles. I was completely worn out by the end. I was so tired that Jim went out and picked up so food for dinner for tonight. As wonderful as some of the restaurants are around here, I just wasn't up for going out tonight. Tomorrow, we go back to home to Tennessee. I will miss the wonderful bike trails here in Ohio.

Kay from Tennessee



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MOM2ACAT's Photo MOM2ACAT SparkPoints: (154,453)
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6/17/14 5:09 P

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Cyndi, that is awesome that you could participate in the race!

Kay, 38 miles is awesome!

We had some severe weather also; around 4:30am, a thunderstorm woke me up; the lightning was pretty scary with this one, but thankfully, it moved on pretty quickly. It was after 5am before I fell back asleep though. We had a severe thunderstorm warning around 8:30am, but nothing much happened with that one, just some brief heavy rain. I think we were probably on the edge of that storm.

I had my monthly oncologist appointment this morning. He's increasing my Afinitor from every other day, to taking it 2 days in a row, then a day off. If I continue to tolerate it well, in another month, he'll have me start taking it daily again. My hemoglobin also came up a little; from 9.3 to 10.4.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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BECKYANNE1's Photo BECKYANNE1 SparkPoints: (150,473)
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6/17/14 7:48 A

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Kay-Way to Go on the 38 miles!

The bugs have been awful around here lately. It's a real pain to run in the morning and then my DS had to deal with them when he cut the grass. I had to deal with biting flies when I was weeding.

Severe storms rolled thru late yesterday afternoon into the night. They missed our area, but we were dumped with rain. More are in the forecast later today and most of the week. Very warm and humid also. Heat index of 95 today.

Have a great day!

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SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL SparkPoints: (52,263)
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6/16/14 10:27 P

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Hi All,
I've been off SparkPeople for almost a week due to lack of internet connection while we are on vacation.

Shari, Jen and Cyndi, you all have a lot on your plates right now. Wow!

Cyndi, I also thought Taxol was much easier than AC.

Jen... I can't believe how much you have gotten done during chemo. By the end of it, I was completely wiped out. When is your surgery date? Be prepared for some down time afterward. Chemo first makes surgery recovery a bit slower. The good news is that you will be 2/3's of the way done afterward and you will be done with the hard stuff. Looking back, rads are so easy in comparison.

I am delighted to report that I've gotten to go bicycling on some wonderful flat paved trails in Ohio the past two days. Today, we did 38 miles! That is huge for me considering yesterday was the first time I had been on a bike since completing treatment. I felt like I was in heaven riding today.

I have to go now...hubby just turned out the light in his side of the bed in the hotel room. I guess that means it's bedtime! I should be sleeping like a rock tonight.


Kay from Tennessee



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