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8/1/14 2:34 P

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I made it though my tests yesterday. I ate immediately after the barium enema test was done. Jim went and go food for me from the hospital cafeteria that was actually pretty good. My GI doc is now thinking I may not have Crohn's. The diseased portions of my intestine may be just from years of chronic inflammation. I'm supposed to do steroid enemas every night and see how that helps. I did that many years ago when I had ulcerative colitis (before my colon was surgically removed). They actually felt great back then. It will be nice if they help now as well. She did a ton of blood tests and the results came "out of normal range" in about 10 different areas, but I suspect most of that is due to dehydration and diarrhea. I was really wiped out by the day of the test and could barely walk. I'm trying to eat and drink a lot more and already feel better. Walgreens just called and said the enema medication is in, so I'll start tonight with that.

Yesterday afternoon, they did a biopsy on the lump in my breast. This biospy went so much better than the one I had a year ago for my cancer. There was no bruising at all this time! I really think it's fat necrosis, but they can't tell for sure without a biopsy. I should have the results Monday or Tuesday. I'm amazed that I'm not worried about it. I might get more anxious on Monday as I start waiting for "the call." They also did a 3-d mammo on both breasts since I have dense breasts and it had been a year since I'd had a mammo on the right side. These 3-d mammos are supposed to be much more accurate in picking up cancer in dense breasts.

All in all, I was really happy with how smoothly things went yesterday. I had four different appointments and they were all pretty much exactly on time. A first in the medical field!
emoticon

I hope everyone is doing well and has a wonderful weekend.

Hugs,
Kay

Kay from Tennessee



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7/31/14 4:30 P

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I felt pretty weak also when I had to do that clear liquid diet for my colonoscopy. I hope that you have someone to drive you tomorrow, and I hope you get a chance to eat after the test before you have to do all of your other appointments. emoticon


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/30/14 4:06 P

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Shari, I'm glad you got a good sleep. I know I felt a lot more relaxed after I got the call confirming my diagnosis of bc even though the news wasn't what I wanted to hear. I think all the tension of waiting and not knowing just drained out of my body. I think I slept like a rock that night too.

Becky, hooray for a productive day. Those days feel good.

Today, is a "do nothing" day for me. I'm vegging out in front of the TV (watching cooking shows) as I sip clear liquids for my barium enema tomorrow. I feel pretty weak. It will be a long day with the lower GI test in the morning, meeting with the GI doc, getting 3-D mammos and getting my lump biopsy in the afternoon. I'm already thinking about where I want to stop for dinner on hour two hour drive home.

Kay from Tennessee



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7/30/14 3:37 P

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Wishing you all the best Kay!
I know with my bone scans, arthritis and inflammation will show up as well as mets, so it's a good chance that it isn't cancer in your mom's hip. I don't blame her for not wanting the biopsy. I hope something can be done though if it causes her pain later.

Jen, the worst part about MRIs for me is that I am claustrophobic, but a little Xanax helps, as well as asking the tech for a cloth to cover my eyes before I go into the machine. I'm a little anxious about the results, but my anxiety level isn't anywhere near what it was waiting for the scan results. With the spine, we already know there is a problem, and the MRI is just to tell us to what degree.

I slept in later than I intended to this morning, but I think I needed it. I think my body just finally let go and relaxed after being tensed up about the scan results for a week. I'm actually feeling pretty good today.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/30/14 7:59 A

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Jen-it is amazing how much we can accumulate. We've been trying to find the time when everyone can start going thru all of the crap I have here and possibly ave a dreaded garage sale. If we didn't have so much, I'd just donate, but it would be nice to try and sell some of this stuff. The boys could use the extra money right now.

I really got alot accomplished yesterday. I surprised myself considering I didn't sleep well the night before. I didn't sleep well last night either. Not sure why. I work all day today and then again tomorrow night. Having these days off again makes it tough to want to go to work.

Shari-Glad to see you finally got to see your MO. I hope you're feeling better about the results.

Kay-Good Luck with all of your tests!

Edited by: BECKYANNE1 at: 7/30/2014 (08:00)
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SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL SparkPoints: (52,739)
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7/29/14 5:19 P

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Hi All,
Jen, that is amazing what a big fill you had in one shot! It amazes me even more that you aren't complaining of muscle pain right now from the expansion. I totally understand what you are saying about how much "stuff" there is to move and sort through. I moved last year. It's a MAJOR job! Let those strong guys do the lifting!

Shari, I already wrote you a note on your blog, but I'm thinking you are probably feeling some relief after having talked to your MO and that you are going through a period of adjusting to all the information.

I took my mom to the doctor today. She had some tests recently because one of her legs has become swollen. It turns out she has an enlarged lymph node in her groin and a growth on a muscle in her hip. It's not clear if it's cancer. It could be, but the ct and ultrasound weren't definitive. My mom is almost 90 and doesn't want to do any treatment so she decided against getting a biopsy. I don't blame her. My big concern for her would be pain management if it does turn out to be some sort of cancer. At this point, she is not experiencing any pain so they are going to take a "wait and watch" approach.

Tomorrow, I'll be on a clear liquid diet all day and then have to do a bowel prep tomorrow night. On Thursday, I'll be getting a barium enema (to get a better idea of the extent of my Crohn's disease) and meeting with the GI doc to create a plan of care for me. THEN, in the afternoon, I'll be getting my first 3d mammo (I have dense breasts) and a biopsy on a lump under my LX scar. They think it's fat necrosis, but I decided to go ahead with a biopsy to confirm. It's going to be a looooong day, considering we have to drive 2 hours each way.

Edited by: SIMPLELIFE4REAL at: 7/29/2014 (17:19)
Kay from Tennessee



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JEN040219's Photo JEN040219 Posts: 396
7/29/14 4:08 P

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teehee.... I exaggerated about how long I can stay away (or how tired I'd get from packing and need to take a break... haha.)

Shari--great SUPER news from the MO. I'm happy to hear they're not needing to change anything up dramatically--I'm sure it's a traumatic and wonky thing every time they have to. So this is pretty nice. Glad the liver mets aren't a huge concern--I know he'll keep a close eye on them and if they get out of hand, maybe resection? (I think I read about that somewhere once) or some other treatment may help.

WHAT A DRAG on the spine met.... Sigh. I do like the idea of a surgery, though--attack the cause, not the symptoms--and if it's looking like it would like to smash a nerve....? oh, yikes. I have so many friends suffering with back issues and sciatica and.... I sure don't want that for you--you have enough on your plate. Hoping the MRI isn't too uncomfortable and that the results give the doc a real good idea of where to go from here.

Best again to all!

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7/29/14 3:45 P

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Jen, packing up a house is a big job; I'm glad you have strong guys to help you out! I'll be thinking of you, and looking forward to hearing how things are going next time you stop back in.

I had my oncologist appointment this morning to go over my CT and bone scan results.
The CT scan showed some lesions in my liver, but they are very small, and appear to be slow growing. He is not overly concerned with them at this time. I know from some of the support groups for metastatic breast cancer that I belong to on Facebook that liver mets can be managed and lived with. The lab tests show my liver function is normal, so that is a good sign too.

The bone scan was mostly stable, just a few new tiny mets in my left shoulder and ribs, and some of my older bone mets have actually improved a little. There is an area of concern though in my T spine. I have a new met there that appears that it might be in danger of collapsing and pinching a nerve, so I might need some surgery to stabilize that. Before sending me off to see a surgeon though, he is having me get an MRI done of that area to take a closer look at it. I'll be having that done on Friday.

No change in treatment needed at this time, I will be staying on the Aromasin and Afinitor.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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JEN040219's Photo JEN040219 Posts: 396
7/29/14 12:49 P

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Hi all!!!

Super super busy packing up the house week. Holy cow, I refuse to feel overwhelmed, but golly.... I have managed to acquire a WHOLE lot of STUFF in the 8 years I've lived here. We move Saturday--my man has four Marine brothers helping us out. Whew. I am doing laundry, filling out property management agreements, taking down all of my artwork, trying to sort through clothing, will have a good old fashioned bra burning party with some lady friends this evening, and.... you know what? It'll all get done. No need to stress about it.

On a lighter note, I'm feeling kind of like a porn star this morning. My expanders went from an A cup to a C cup yesterday (we're rushing to get them 'set' before radiation starts on the 11th). Hahaha. Crazy stuff, science is. My girlfriend got to watch--I have ZERO shame or modesty anymore--and you should have seen her eyes get GIGANTIC as she watched the doc fill them. HA! Worth the trip just for the look on her face. Priceless stuff right there...

So--all this busy stuff.... I may drop out for a few days, but none of you are ever far from my thoughts or my heart. Be well friends--catch you all again real soon!!

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7/29/14 7:45 A

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It was a very cool night and it's 55 degrees this morning. The weather was nice yesterday. It feels good to not have the A/C on all of the time. Should be another nice one today!

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7/28/14 4:04 P

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It's nice and cool here in Michigan also!

Becky, hope the chiropractor can help with the pain; I know from my own experience that sometimes pinched nerves in the back can cause leg pain.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/28/14 7:47 A

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Good Morning!

It's a cool 59 degrees right now. It was perfect sleeping weather. It's only suppose to be in the 70's today!

We tried canning pickles yesterday. The last time we tried them, they didn't do so well so we'll see this time. We also tried pickling green beens. Those we won't know if they turned out for a couple of weeks. We had so many and I figured since we were canning, we might as well do some beans. We just need to make room for all of the jars.

Today I'm going to get out for a run. I've been really struggling. I haven't been able to figure out why. My legs hurt pretty bad especially at night. I want to make an appt. with a chiropracter and see if they can help me. I have an appt. with my Oncologist in Aug. so if it's not any better, I can talk to him about it and see what he thinks.

Have a nice day!

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JEN040219's Photo JEN040219 Posts: 396
7/27/14 11:23 P

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Thank you, Shari.... :-) It's the nature of things... no one gets out of here alive. What a bummer thing to say, but true. And adds a little perspective for me--we all get to go home sometime.....

I'm impatient, too, but wow... the internet scares all heck out of me, too!! :-) Naw, I've gotten better and less frightened the more I know. Knowledge is power....

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7/27/14 2:55 P

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Thank you Jen; I don't think of myself as brave though, more like being impatient! And I've learned over the years, about 99% of the time, things are a lot worse in my imagination than they usually turn out to be in real life. I'm thankful to have internet too when I am reading my scan reports, there are always a few terms I end up having to look up; for example, I didn't know that "hepatic" meant having to do with the liver.

I'm sorry your grandfather did not get better news. I will pray that he will be able to see 100, and have a good quality of life too! I had an aunt that lived to be almost 94; even living to a "ripe old age" doesn't make the loss any easier. emoticon

Edited by: MOM2ACAT at: 7/27/2014 (14:57)

My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/26/14 8:20 A

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Good morning! Not a very good day yesterday when it came to food! Over indulged at the pizza buffet and really paid the price the rest of the day and overnight. I'm better today. I just have to keep reminding myself that I can't tolerate all of that bread anymore. I thought my stomach was going to explode. Not to mention the 2 lbs that was added when I stepped on the scale this morning.

Today is the Farmers Market. A great reminder of what my body really loves and can handle. Humid and warm here today. Storms and rain tonight and possibly tomorrow.

Have a nice day!

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JEN040219's Photo JEN040219 Posts: 396
7/25/14 3:21 P

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Oh, somber.... absolutely. Shari--I didn't like to hear about the wonky scan results, but MAN you are a brave woman (I can never bring myself to preview mine--even now--I wait and have a doc read them to me. Maybe I will get stronger as time goes on.)

My initial PET showed a lot of crazy uptake in my liver, and I'm hoping (as we are all hoping) the MO has some optimistic news for you. If not, guess we just go to work on a plan to get rid of it there, too, I WAS happy to hear your hip mets have responded well, though. :-) Trying to find silver linings is hard but important, isn't it?

Kay--my very deepest condolences on the loss of your friend. There isn't a damned thing to say to make it any easier, and it makes me angry, and I just try to find some peace in the belief there's a plan--and everyone's journey is what it's supposed to be. I've figured out how to embrace my cancer.... I have an awfully difficult time embracing anyone else's though. Breaks my heart.

My grandfather has 3-6 months.... he had a very slow-moving lung spot they've been watching for years. He's 92, so even biopsy was risky. But it started growing last check, he opted for the biopsy, and it's turned into something much more aggressive. He is not up for chemo--I don't blame him a bit. I don't think there is a gentle, slow-it-down treatment available for someone his age. He's ready--but I sure do feel sorry for my father, my family, and myself. The world is a neater place with him in it. He said, you know, docs look at someone his age with something like this and unfortunately have little else to say but, "you're 92... what more did you want?" Well, he wouldn't have minded 100.... :-) but that wasn't in the cards. It'll all be okay, and he is LIVING IT UP with every minute he's up for it with every second he has left.

Been a drag of a week. BUT I finally met my RO, love her (she spent an HOUR with us explaining things and hooked me up with some PT for my lymph--so odd the surgeons or MO didn't, but... hey, at least someone did :-) I start my rads on the 11th and don't need the full 6 weeks because of my complete response to chemo (the boost to the mastectomy scar, she feels, isn't horribly beneficial for me). My plastic surgeon will just have to suck it up--he'll have to wait until post radiation to swap for implants. (I tell him over and over again... my priority isn't "good cosmetic result," so we're going to defer to my oncology team on EVERYTHING. So there. :-)

And to keep things interesting, we close on the new place and start moving next weekend. :-) will be the easiest move I've ever been through since my fiancé won't let me touch or lift a thing. (He is such a blessing to me.) He's a Marine who has a gang of 'brothers' around here who want to help--he's helped just about every one of them. We are very supported and lucky. The excitement is keeping the stress at bay. Except....

I had to let my girls know the 2 accidental kittens (which bring our cat count to an outrageous FOUR) are not coming to the new house. They are hurt and furious, but I cannot care for them in anything approaching what is best for them.. and I only have my girls around to help every other week.... I'm putting 30K into getting current house rentable--a lot of it animal damage, you know? We're not willing to do that to our new house. We just can't--and with us working long days and kids in school, keeping them locked up is just not fair to them. Sigh. I wish so badly I could make everyone happy, but in this case, I just can't. It is awfully hard to hurt your children. I don't like this part of the "mom" job one bit.

Be well, all. I hope moods lift and things start looking brighter across the board soon....
Jen

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7/25/14 12:09 P

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((((Kay)))) I can understand feeling down. I always feel bittersweet about my cancerversaries, and on top of that, you lost an online friend. I've lost a couple of friends here on Spark to cancer, and quite a few more from the metastatic breast cancer support groups I belong to on Facebook, many of them quite a bit younger than me.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/25/14 8:08 A

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Kay-I hope today is better. You view Cancer differently when you've had it yourself and when people you know in one way or another lose their battle it tends to hit you harder. There have been a few people on Spark that have died from some form of Cancer and even though we've never met and only chatted on here, it still feels like you've lost a friend.

It's raining this morning. It's nice! Plus it's a good excuse to not go out and exercise. I've got to go and get some groceries this morning and finish up my laundry.

Have a great Friday!

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SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL SparkPoints: (52,739)
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7/24/14 5:15 P

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Becky, I've worked in places before where the survey results came back horrible too. I can't remember that anything in particular changed as a result of the survey! It makes you wonder why they bother to ask.

Shari, I am also hoping that the spots are not cancer. It seems it's a pretty common occurence to find spots that are not cancer. I know you will feel a lot more settled once you get to talk with your MO about it.

I was very saddened this morning to learn that a woman on the triple negative thread I belong to on bc.org had died yesterday. It really shook me up because she went so quickly. She was just diagnosed with mets (brain) four months ago and was very active on the threads there up until about 8 days ago. She was very friendly and helpful to me and to many others. I'm feeling better this afternoon, but it's been a somber day for me.

I guess yesterday counts as my one year cancerversary. That was the day I went in for my diagnostic mammogram and ultrasound. They told me then it was cancer even though the biopsy wasn't done for another week. That might also have something to do with me feeling down. That was the day it felt like my world got turned upside down.

Sorry to be a little down today...

Hugs,
Kay

Edited by: SIMPLELIFE4REAL at: 7/24/2014 (17:19)
Kay from Tennessee



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7/24/14 12:12 P

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Thank you Becky.
From what I read online, it sounds like (hopefully) my spots are something benign, judging from the terms used to describe them in the report. It just kind of stunned me when I first read the report, because in all my years of having scans, nothing has been mentioned about my liver before.

Today had been going pretty well so far. I'm taking advantage of the fact that I have nowhere I have to go today and trying to get a few things done around the house.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/24/14 8:21 A

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Good Morning!

The humidity has left us! Nicer weather for today.

Shorter shift tonight. The store wants all of their employees to take a survey. So far, everyone that has taken the survey has been brutal. I've never seen so many unhappy people working in one place before.

MOM2ACAT-I hope everything turns out all right. My mom has had spots on her liver for years. They aren't cancer though. In fact, when she went into the emergency room awhile back, they did a CT scan and found more of them. I'm not sure though what they are.



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7/23/14 4:42 P

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Jen, I am glad you got the extra time off, and I hope the Percocet works for you.

Becky, I'm so sorry; I worked retail for 20+ years and it's not an easy job, especially when management is so hard to deal with.

Kay, I hope you can get your Kindle working again. I remember one time when mine froze up on me, I can't remember how I got it working again, but I went right to the Amazon website and found the steps there to unfreeze it.

I picked up my test results today, but I don't see the doctor about them til next week. The scans were not "clean", but I'm not sure how "bad" the bad stuff is, if that makes sense. It sounds like I only have one new small bone met in my spine, but the bone mets in left hip and left shoulder are better. The CT scans says something about 3 small lesions in the liver; that doesn't sound very good to me. I'm not in panic mode or anything, just anxious to find out what the next steps will be, and whether or not I have to change my treatment. Even though it wasn't the news I was hoping for, it's better than not knowing anything.

I'm going wait til I've talked to my oncologist before I post anything in my blog about it, and I haven't said anything to my mom yet; why worry her until I have to?


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/23/14 4:27 P

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Jen, I agree about how rotten ALND's are. I had one too. It's causing me to be really careful about what I do with my arm as I try to build my strength back up again. To me, it's worth the time to go slow if it means I can avoid life-long lymphedema. For me, it was the nerve damage that seemed to cause so much pain...not necesarily the incisions etc. My surgery was 5.5 months ago and I still feel like I'm recovering from it. I'm glad the percocet is working better for you. I also think chemo really takes the wind out of our sails for at least a year afterward. It's aggravating to not be able to do things or have the energy that we once had, but I believe that with time, we will both eventually get there.

Becky, that job sounds like it's really wearing on you.

Shari, do you know when you will get your test results back?

It's a wonderful rainy summer afternoon here. I've been reading, but somehow my Kindle has gotten "stuck". I have to figure out what is going on with it.

Edited by: SIMPLELIFE4REAL at: 7/23/2014 (17:25)
Kay from Tennessee



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7/23/14 7:40 A

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Enjoy the extra time off and make sure to get the rest you need Jen!

I'm working retail now and as long as your conscious, they expect you to work. It's a crappy store. Pretty much aside from one of the managers, the rest stink. I have to get serious really soon about looking for a new job. The summer is flying by and it will be Fall before you know it.

Have a nice day!

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7/22/14 5:12 P

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Thanks all.... Becky and Shari..... it appears I've stumped my plastic surgeon. Evidently I'm healing AMAZINGLY and they're upset I'm having such pain issues. And you hit the nail on the head, Shari.... they switched me to Percocet--hoping it helps with the pain management. Furthermore, they're keeping me off the job until 8 weeks post-op (what I'd hoped). The PA laughed when I said the breast surgeon told them I'm ready to go back on Monday..... "I'll take care of that for you. NO WAY are you ready yet.)

So--pain and normal swelling aside, I'm feeling better. And hopefully the Percocet does a little more good for me. I got to the point I was double vicodining WITH 600mg ibuprofen for the swelling and getting no relief. I'm not at all comfortable with that level of drug use.

This is all related to the dumb ALND. I mean, it was a lovely ALND with no cancer in the nodes, so I am thrilled. But man... they still took 13 of them, and I guess that's just not supposed to be a stroll through the park. ;-) It'll get better--and I will WILL sleep more. I did get kindly reminded to knock it off with the wonder woman stuff... a walk around the block can knock you on your butt, and when it does--I'm supposed to let it. I took in the advice loud and clear and am going to try to do that patience thing I'm so horrible at.

You all have NO idea how badly I'd like to push mow my lawn right about now. :-) HAHAHA!

Becky--one thing I learned when I started with my walking.... and moved into my running to try to speed it all up--was that a step equals a step--whether it's a walking step or a running one or a jogging on. Honey, you were MOVING. All that matters.... :-)

And Shari.... hope the tea stays down and that you get some nice rest in this evening.... you earned it. Scans are rotten tedious horrible nerve-racking nasty things.... Spoil yourself for the next few days.

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7/22/14 9:36 A

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Thank you Jen! I've been back home about an hour now but so far, not feeling sleepy yet. I am sure I will this afternoon though.

Jen, sleep can be healing so I am sure your body needed it. I have an easier time with Percocet than Vicodin, maybe that would be something to ask about? You should be able to get the additional time off from work if you still need to be on the pain pills; where I use to work, (I worked in retail) they did not want people working while on narcotic drugs.

I'm glad to have the CT scan and over with. I got nauseated when they injected the dye, and I actually threw up a little while on the table; that was kind of embarrassing, but I was told I was not the first patient to do so. I was feeling ok, if a bit shaky, by the time I left there. I think now I will see if my stomach will handle a little bit of tea.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/22/14 9:31 A

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Good Morning!

It's very humid here! I thought I would be smart and go out for a run before the sun came up. One side of the lake was warm because there's trees, etc. on both sides. Once I hit the open water it was extremely windy. It stopped me in my tracks! I ended up walking for quite awhile before I was able to resume running. Not a good day at all. We missed all of the storms overnight which would've cooled us down. Thankfully it's suppose to be much nicer tomorrow.

Jen-I hope they can do something for that seroma. After taking pain meds. for awhile prior to my breast issues, I couldn't tolerate them as well either. I found taking ibuprofen and Tylenol seemed to do just as well for me.

Have a great day everyone!

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7/22/14 7:48 A

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Hey, all!! Shari--I hope your nap is WONDERFUL!!! Guess what I did yesterday.... went to bed at 2pm and stayed there. Until about 7 this morning. :-) I think I must have needed a break. This seroma of mine is very tender and really interferes with my mobility exercises on my ALND side.... I get to see my plastic surgeon PA for a fill today and I am praying with all of my might that she'll drain this for me. I want OFF the Vicodin VERY badly... it's doing my intestines and livers no favors--and it's not really touching the pain. I'm supplementing with anti-inflammatories (ibuprofen--also not my liver's favorite thing), but waiting for a seroma to naturally absorb back into the body takes MONTHS, and this one is proving quite painful for me. I'm hoping for good things.

Moon--I love to hear about the babies being with you. Becky--I hope you're getting enough time off work to enjoy the weather and be as active as you love. Val--I hope you're hanging in.... and Kay, I hope you are having a blast with the bike and dancing.

If I missed anyone--sorry--hopefully I will be less drugged in the near future. :-) Oh, I also have to see about extending my disability. The breast surgeon gave me less than a month post op.... ??? Seems aggressive. I know I'm wonderwoman and all that, but.... I'm not feeling ready to go back to work Monday--um, also, I don't think I can even DRIVE on this stuff I'm taking :-) So I'll try to get some resolution there, too.

Love, health, and happy to everyone!
Jenny

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7/21/14 4:09 P

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Enjoy the family time Moon!

I had my bone scan today, and tomorrow is my CT scan. Gotta get up at 6:15am to drink that first bottle of barium. That's earlier than I am use to getting up in the morning, but at least I can take a nap when I get back home if I need too.

It's getting hot and humid here again too, I'll be staying inside with the AC as much as possible the next few days.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/21/14 1:35 P

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Hot and humid here too. I felt sorry for the chimney sweep who went up on the roof right after lunch. He came down overheated. The chimney is now ready for fall and winter.

Two of the grands have gone to camp until Friday. They went to Yellow Springs near where Kay was bicycling earlier this summer. It's an Eco-camp where their mothers went to camp when they were little. It's near Clifton Gorge and Yellow Springs. Full of good history in a pine forest.

I have no appts this week and none scheduled until mid to late August. WooHoo!

I hope everyone has a good day and a good week! With more kids and grands showing up I may not get back online much this week. The little ones like to play on my iPad. So everyone take care.

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Edited by: MOONGLOWSNANA at: 7/21/2014 (13:36)
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7/21/14 7:30 A

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Very humid this morning. Luckily it's cloudy and a little breezy so going out for a run shouldn't be a problem this morning. There's a chance of severe weather tonight.

I'm really enjoying the fresh fruit and veggies again. I love to go to the Farmers Market but I have to be careful so I don't buy more than we'll eat in a week.

Have a nice Monday!

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7/19/14 7:42 A

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Good Morning!

The heat is returning along with the humidity. The cool weather was a nice break, but I'm ready for some more summer again.

Farmer's Market this morning. I didn't go last weekend so I'm anxious to see what they have today.

Have a great day!

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7/18/14 5:55 P

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Jen, I'm glad you are feeling better, and congrats on the house!

Moon, I am enjoying the cooler weather too, and so is my pocketbook, since the AC doesn't have to run as often.

My endoscopy went fine yesterday; most of the ulcers are healed; just a few left, and they are very small ones. I see my GI doctor again in 3 months for an office visit. Now the next hurdle is to get through my scans next week, on Monday and Tuesday. It would be great if my cancer was found to be stable so that I can have a life again not revolving around medical appointments every week.

Wishing everyone a happy, healthy weekend!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/18/14 12:32 P

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Hi all!!! Today started tearful, but I am much better....

I tried to get off the Vicodin yesterday. My unboobs and arm were very unhappy with me this morning. So the love of my life ran the prescriptions in on his way to work and me--undrugged as I was--was able to pick them up.

No more driving again, but my unboobs are not screaming at me anymore. :-)

Moon--I love the sound of your house.... mine are bigger, and as chaotic and difficult as it was having young ones, it sure was kind of magical.... cannot wait for some grands!!! :-)

May everyone enjoy your day!! (I can't wait for you to be done with the Herceptin either, Val.... heck, I can't wait for ME to be done!! LOL! All in good time....)

Much love and happiness,
Jen

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7/18/14 7:51 A

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It's been a great week! The weather has been perfect, I didn't work much so I was able to stick to my plan and I'm not scheduled to work much next week either. It will give me another chance to stick to my plan and start looking for a new job!

Jen, I go back and forth about the boob job. It was nice to not have to worry about wearing a bra. They still aren't perfect and I will have some scarring that will never go away, but oh well. As long as the Cancer doesn't return, I'll be happy.

Have a great Friday!

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7/17/14 3:27 P

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i just finished inquiries with both medicare and my secondary insurance. It wasn't too bad. I guess I have a bill left from January when the Medicare deductible hadn't been met yet. Hello, it's July! I will pay that January bill at tomorrow's appt.

Brought the first of the family home yesterday from the Cincy airport which is really in Kentucky so we had a long drive down and back to our son's to pick up our daughter and two grands. She arrived with a stomach bug and slept all the way home in the car. She had toast for breakfast and is asleep on the couch while the kids play and watch nonsensical TV. It's been busy here this morning with the grass weed and feed guy coming and the refrigerator repairman. My husband brought home some lunch. No one would ever starve living here...

The family room floor is strewn with toys, couch pillow kids and critters! Reminds me of 40 years ago!

No complaints from me. I agree with the cooler weather. In Ohio that could change with the wind in an instant anyway. The sun is shining, and the tomatoes are getting ripe! Everybody take it easy. It't sum, sum, summetime!

Edited by: MOONGLOWSNANA at: 7/17/2014 (15:57)
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7/17/14 11:07 A

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BECKYANNE1 - yes it sure is a beautiful day today, here too. Should be in the 70s today so it's gorgeous, but still a bit cool for July. I'm starting to wonder if it will even hit 90 this summer.

JEN040219 - yep gotta love insurance. I had to go through 3x a week wound care for 5 months because the insurance wouldn't cover 8 weeks of hyperbaric treatments when I had a complication from my mastectomy/diep flap surgery. Not sure it saved them much $$ doing it that way. Just how are tissue expanders experimental???? That's crazy. I am thankful that I haven't had to fight for much. Take it easy or it might take you longer to heal! You'll be out running in no time. It's nice that your dr gave you a break from the Herceptin & Tamoxifen. I still have 6 months of Herceptin left and I can't wait to be done!

First Goal: Loose 27 lbs by December 1, 2009 - GOAL MET NOVEMBER 6, 2009!

Second Goal: Loose 57 lbs by June 1, 2010... GOAL MET APRIL 3, 2010!

Third Goal: Loose 60 lbs... GOAL MET APRIL 24, 2010!

Forth Goal: Loose the 35 lbs I gained due to surgery and chemo!

Fifth Goal: Never have to make another weight loss goal!


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7/17/14 9:56 A

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Happy.... holy cow. just checked my phone.... it's THURSDAY!?!!?!?!? wow.... time flies!!

All drains out--but i'm dealing with a bit of a seroma--never thought i'd say I kind of wish one was still in.... the swelling is a pain and quite tender. We'll drain it Monday if she thinks it's warranted, I guess. Got my first fills, too. I'm up to a whopping 125ccs in each of my unboobs. :-) My daughters are still jealous--they hate bras and think I ought to just leave well enough alone. We'll see.... lol.

Val--GRRR at insurance. You'd think people who do coding for a living might be able to MASTER doing coding, huh? I got the nicest little pamphlet from my insurance guys informing me I have a RIGHT to reconstruction. They promptly denied coverage of my tissue expanders the next day because that's experimental and doesn't cure my disease. HAHA. I had to laugh.

I would like some cooler temps--we are still hanging in the mid 90s with 90% humidity here in southern Maryland. It's a bit steamy.

Shari.... waiting for results is the absolute worst--sending you calm and strength while you wait it out. Yuck My unfavorite thing of all. By far.

Kay.... you are an animal!!! I cant wait to get started back up on some activity. My heart palps seems to have calmed down since I got off the poison in May.... and I'm feeling pretty good except for the chest (yeah, and arm---the ALND is the worst of it for sure). But all-in-all, it's a good day, I over do it, then I have a bad day and rest and feel good and overdo it on the good day. I REALLY need to learn some patience. I have no real complaints though--the fills didn't bother me a bit, and I'd been worried about that. Everything is real good here.

We found another house, close on Aug 1st, and I'm busily preparing to make my place a rental. The designer I worked with put together a beautiful design for a crab shack type décor.... it is going to be ADORABLE. but he must have misheard me.... I very clearly called it a CRAPSHACK, not a crab shack. LOL. Gotta get a roofer out for a leak/patch job, too, and a power washer.... but this place will be great--I am very excited for my renters--I've loved living here and raising my kiddos here--served me very well and is special to me. I hope it can be for the next people living here, too.

Moon.... keep resting and getting better. I agree with you--we all have our priorities in VERY smart places these days. This is an experience I wouldn't skip for the world. It's made me quite a bit wiser than I once was--a better human....

Becky--still cannot wait to start running with you..... any day now. well, maybe a month or so... consult with RO on the 24th, MO says he wants to wait another 3 weeks of surgery recovery before he hits me with Herceptin and tamoxifen (sigh....). But we'll just keep on kicking the heck out of it.... and I WILL RUN again, sooner than I think. :-)

Love and health to you all!!!
Jen

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7/17/14 7:41 A

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Good Morning!

Beautiful weather today!

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7/16/14 7:41 A

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I am enjoying the cooler temps., but have to admit, I don't want them to last and they aren't suppose to. By Sunday the temps should be back in the 80's with a heat index approaching the 90's on Monday.

I've had 2 good running days and today I work. I put a new battery in my pedometer so I can see how many steps I get in at work.



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7/15/14 4:09 P

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This cold weather is crazy. Glad it's just temporary. I wonder if we will even hit 90 this summer. I like the hot so this is no fun for me. Just hope the rain holds off so I can get my walk in tonight. I've been too busy at work today so I couldn't call the insurance co. ah well it can wait for another day seeing as the claim was just processed.

First Goal: Loose 27 lbs by December 1, 2009 - GOAL MET NOVEMBER 6, 2009!

Second Goal: Loose 57 lbs by June 1, 2010... GOAL MET APRIL 3, 2010!

Third Goal: Loose 60 lbs... GOAL MET APRIL 24, 2010!

Forth Goal: Loose the 35 lbs I gained due to surgery and chemo!

Fifth Goal: Never have to make another weight loss goal!


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7/15/14 3:43 P

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Val, I'm sorry you have to fight the insurance company when you aren't feeling good. I would contact the doctor's office too, I'm sure that they can help; I've had to do that a couple of times for things the insurance would not cover and my doctor helped by writing letters.

Becky, it feels like fall here today too; I actually wore a sweater when I went out this morning.

Thank you Kay; the waiting room was actually empty when I got there today, things were pretty much on time today.

My oncologist has some concerns about my tumor markers rising, so he decided it's time for scans again; next week I am having a bone scan and a CT scan. The worst part of both tests is the waiting for the results!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/15/14 2:50 P

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Happy Tuesday!

Shari, I hope your oncology appointment went smoothly today and you didn't have to wait long.

Val, that's something that your insurance company chose those tests, of all things, not to pay. I agree, it probably just needs to be re-coded, but it's a pain to deal with.

Becky, hooray for the cool weather!

I went to two and a half aerobics classes this morning and now I'm beat! Just resting this afternoon. I'm going to try to make some kombucha tea for the probiotics. I like buying the tea, but it's so expensive. It will be a couple weeks before I know if I'm successful. We'll see....

Kay from Tennessee



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7/15/14 7:53 A

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Good Morning!

Had a great day yesterday. It really felt like a fall day though. I had the windows and door open. I got so much accomplished. Today after my run, I'm going to go and see whats available for local fresh fruit and do some baking. It's the perfect weather for it.

Have a nice day!

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7/14/14 11:08 P

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Thank you for the warm welcome everyone. Today was a Herceptin day. I'm always so tired afterwards and I don't know why. I don't think it's from the Herceptin itself but rather the whole process. I was going to go back to work afterwards, but instead I went home and took a nap. I don't get to do that often and it felt good. I do think that it is causing my joint pain tho. My hips were fine last week but tonight on my walk they were just screaming. I pushed through. I'm not going to let the pain control me anymore. It's not THAT bad, just an annoyance. I got some new shoes on Saturday so hopefully that will help with my knee & ankle pain.

Not looking forward to calling the insurance co tomorrow. For some stupid reason they are saying my cholesterol & thyroid tests aren't covered by my insurance. Of all the claims, those are the ones they aren't going to pay?!? how dumb is that. I'm sure it will be covered in the end and the DR will just have to submit it under a different code, but what a pain. At least I haven't had to fight over any of my cancer treatments. Or maybe they are just tired of paying for things LOL.

I'm off to bed now. Good night all and have a good Tuesday.


First Goal: Loose 27 lbs by December 1, 2009 - GOAL MET NOVEMBER 6, 2009!

Second Goal: Loose 57 lbs by June 1, 2010... GOAL MET APRIL 3, 2010!

Third Goal: Loose 60 lbs... GOAL MET APRIL 24, 2010!

Forth Goal: Loose the 35 lbs I gained due to surgery and chemo!

Fifth Goal: Never have to make another weight loss goal!


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7/14/14 5:22 P

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Thank you Kay!
As I said on your blog, with all you have been doing, I think you earned a Sunday of rest!

I got my weekly grocery shopping done today; so glad to have that chore out of the way for the week. It's another week with 2 medical appointments again; tomorrow is my monthly oncologist appointment and Xgeva injection, and Thursday I have the endoscopy to check on my ulcers.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/14/14 11:10 A

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Happy Monday Morning.

It's about 78 degrees here. I did a day 2 of my c25k training and then went to aerobics class this morning. After all my activity on Saturday, I was a basic zombie on Sunday and just vegged out in front of the TV. I even watched the World finals soccer match. I think that's the first soccer game that I've ever actually watched. I looked up the rules on the computer while I watched it so I could understand it.

Jen, hooray for getting the drains out! I hope they are all gone by the time you read this. My best friend had a motorcycle accident about 2 months ago. She is recovering from it, but it will take a while. Fortunately, she was going very slow when it happened. She had just started up from a red light and accidentally hit a curb making a turn. Even that slow speed accident caused a lot of injuries. Had she not had a helmet on, she would be gone. She lives in Illinois where helments aren't required. I call motorcycle riders that ride without helments "organ donors". I can't believe they aren't required to wear them in Illinios. It totalled her bike. She's not sure if she will ride again after this. She hasn't decided yet. I hope you are having good luck rebooking your vacation.

Moon, I'm glad you are feeling a little better and could get some cleaning and exercise done. It sounds like you did quite a workout...getting all sweaty.

Becky, sounds like you are getting some of the polar air from the change in the jet stream. I hope it's drying things out for you there as well.

Shari, I'm thinking of you and hoping you have a good day today.

Hugs,
Kay

Kay from Tennessee



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7/14/14 7:46 A

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Good Morning!

It's a cool 55 degrees right now. It feels really good after the humidity we had. Having the door and windows open give me more energy to get things done around the house. I'm going to go out for a nice run this morning and then dig into some major cleaning. I've been so off with my routine lately and I need to get back on track.



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7/13/14 3:13 P

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Moon, I am glad you are feeling better, and glad you got a good night of sleep; that can make all the difference sometimes.

Moon, I am amazed by everyone here too. It's great to be here in a group that understands that even the little victories are important too.

Not as tired today, but my hip is really giving me problems. I guess I overdid it with being on my feet too much yesterday. I know how to pace myself, but I don't always do it.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/13/14 2:29 P

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I'm still coughing, but I got a good night's sleep and woke up feeling better. Sleep feels so good when you're weary, and sweet sleep can heal like a medicine. I woke up to see the cat busy giving the dog a bath. I'm not feeling a hundred percent, but I Worked some outside with my DH sweeping and raking up grass, weeds, and moss. Then I worked awhile in the garage. It 's going to storm here and the wind is the only thing keeping one from feeling the humidity. But in the back of the garage there was no breeze and the sweat burned my eyes when I was sweeping. I came in and did 15 minutes on the recumbent bike since I was wringing wet anyway. Sometimes it feels good to get grubby and feel like something has been accomplished, however right now a shower will feel so good!

I am amazed by everyone here, I don't think any of us take life for granted. All of us have put some thought into using our time wisely, enjoying normal things as much as the extrordinary happenings and exquisite moments that might occur. I think about how open, calm, and quiet my oncologist can be so that he can help me with whatever I might share or need. I think about how full of life my plastic surgeon is, and how upbeat he and his staff are in their bright and cheerful office. My internist is personable, encourages questions, encourages me, has little children of her own and her finger on the pulse of life. She suggests books, like Strong Women, Strong Bones. She's going to share Spark People with her patients. She's good at what she does. I have other doctors, a therapist, a DH and kids who listen to me and buoy me up when I'm feeling low. I'm grateful for all of the people in my life, and for you, my Spark Friends, who share willingly, answer questions openly, and encourge with positive comments that are honest and helpful. I think I'm having the kind of Sunday that is soul searching, and it's okay. It will be okay.



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7/13/14 1:53 P

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Just a quick post today..... it is quite hot--and I feel a nice, long, day of holding down the couch coming on.... my poor fiancé has been through the wringer with all of this crazy year, too. I can't think of how to help him--except to help him unwind and slow down and do what he likes. he got a nice motorcycle ride in yesterday but very unfortunately one of the riders he was with wiped out--badly---and the ride ended abruptly in the hospital. he will make it--his ankle and shoulder are in bad shape and the knee required 27 stitches, but.... yesterday was NOT his time to go, and he will heal, thank God. Just quite a bummer. We hung out with some friends for beautiful shrimp and steaks on the grill last night--good relaxing company (and no fleas at their house, but maybe the ones we brought them. lol!!)

Val--I'm sure this is a really difficult time. I am in the process of trying to rebook a vacation that was stolen from me last January when I was diagnosed. It will be an odd thing to look back on the hell that this year has been--but I will do my best to celebrate that I get a year AFTER this one. January will likely be a melancholy time of reflection for me for all my days to come--and that's not necessarily a bad thing, but it will be a difficult thing for sure. I hope your spirits lift as you move further and further past the pain and the fear..... we will none of us ever recover from some residual effects of that--it's a life changer to be sure. But I'm sending you strength and good juju..... you made it, hon. :-)

To everyone else..... Moon, I sure hope you get past your bug and DEFINITELY don't bother with what you can let go.... rest up and enjoy the visit--don't let the illness detract from it. :-) Shari, Kay.... wow. just wow. I am on cloud 9 to get my tubes out tomorrow, but I know with that comes a delightful TE fill. haha. I am anticipating only rreally great things. I mean, heck, I've been through chemo..... YOU CAN'T SCARE ME!!! :-) :-) :-)

Becky.... I'm glad you've got some time off and a break in the tropical weather.... VERY happy to hear your brother isn't dealing with the C-word (what a lot of c#$6 that would be. haha. never realized the C in the Cword stood for c#$%. hahhaha. fitting though.)

LOVE TO YOU ALL and a blessed Sunday and week ahead to everyone....
Jen

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7/13/14 8:18 A

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Shari, you amaze me in what you continue to do. Getting the laundry and your workout done even when you are tired is a big deal. Hope you got a good sleep last night and feel a little more refreshed today.

Becky, those glow run prices are steep the closer to the race. I would have never paid as much as I did except for the fact that I wanted to do it with my "chemo buddies."

We went out to eat last night with friends from our ballroom dance class that we took over the winter and then went to a ballroom dance complete with a 20-peice band at the local senior center. I went to bed last night tired, but very grateful to have had such a wonderful day. Going through cancer really makes me appreciate being able to do things like running and dancing....and just feeling well enough to get out of bed! As my strength increases, I have really been savoring this summer. The weather here has been wonderful on the Cumberland Plateau in Tennessee and I've loved every minute that I have been able to spend outdoors.

Wishing everyone a peaceful Sunday.

Kay

Kay from Tennessee



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7/13/14 7:59 A

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Kay-that is so great! We had a glow run coming up also. I thought about doing it until I saw the price. Will keep it in mind next year and get in on early prices.

Moon-I hope you're feeling better today. It never seems to fail, that when I've got company coming and have a lot of things to do, I get sick. Just pick out the important things and leave everything else.

Yesterday was a gloomy, rainy day. Needless to say, I didn't really accomplish anything except some laundry. Today I work all day. It's going to be a nice week and I only work Wed. after today. I'm hoping to get some heavy duty cleaning done.

Have a great day!

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7/12/14 3:24 P

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Welcome to the team COMEUNDONE87; I just read your blog and commented there. emoticon

Moon, I hope you feel better soon.

Kay, you amaze me with all you are able to do! I think doing the run together with the other ladies from the BC.org group is a great idea.

I'm feeling sleepy this afternoon, but I got the 2 most important things on my "to do" list done; the laundry and my workout.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/12/14 12:43 P

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Moon, I'm so sorry you aren't feeling good. That's particularly hard with guests coming and wanting to get a lot done. I hope you rest....it will make the visit more fun and the kids won't care (or know) what got done and what didn't.

Becky, glad to hear your brother didn't have cancer. I hope they were able to figure out what the problem was and were able to do something about it.

A group of us from breastcancer.org that all started chemo last September are getting together in Las Vegas this October. We decided to do the 5k Glow Run together as a team while we are there. I just signed up and started training for it this morning. It's the first time I have attempted running since treatment ended two months ago. It went surprisingly good. It helps a lot that I have been doing an aerobics class at the gym 4 times a week pretty much ever since treatment ended. It was so nice to be outdoors this morning. I would run for 60 seconds and then walk for 90 seconds and repeated that for twenty minutes (also did a 5 minute warm up and 5 minute cool down).

We are going out to dinner tonight with friends and then going to a big band ballroom dance at the local senior center. The place is kind of small and there will be a 20 piece band....I have no idea how they plan on putting it all in the room they use for group activities. The weather is supposed to be nice tonight. I think they should do it out on the parking lot. It would be much cooler! Should be interesting. I think our biggest problem will be that we have totally forgotten how to do the various dance steps since our ballroom dance class ended in April. We should probably practice a little this afternoon before we go.
emoticon

Edited by: SIMPLELIFE4REAL at: 7/12/2014 (12:43)
Kay from Tennessee



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7/12/14 12:26 P

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I have so much to do before the kids start arriving, and I am not feeling good today. I am so sleepy, but I did my exercises. I have a yucky cough that is annoying, and a busy week coming. Time to decide what to do since I can't get it all done. I do have a load of stuff in the truck to donate so that is out of the house. Gotta go get busy. I'll grab my water and get to work for at least 15 to 30 minutes and then see how I feel...

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7/12/14 7:58 A

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Good Morning!

Although it rained yesterday, it was a nice day. Had lunch with my DH (of course I ate too much), visited my brother who will be coming home soon. (no cancer)

The humidity is back this morning and storms will be coming. Then there is a big cool down coming. I hate to say it, but I'm looking forward to that this week. I've got so many things to get done around the house and having the cooler temps will help.

Have a nice Sat.

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7/11/14 10:01 P

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All lurkers are welcome here! Jump in anytime! Someone is bound to be here to listen, and we share lots of opinions, facts, and wishes. I'm wishing that you put the past memories to sleep and look forward to making new memories, all of them good ones! emoticon

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7/11/14 5:37 P

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Welcome Val!

Kay from Tennessee



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7/11/14 5:03 P

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Hi everyone. I've been lurking for a few days and thought I'd jump in.

Today is the 1 year anniversary of my diagnosis and I'm really struggling with it. I don't know why. I've had my ups and downs through everything but I've been more up and than down (especially lately) and didn't really think it would affect me. But it has.

Every year our zoo has a special "kids night" and we always go on the Thursday of the even because I have off on Thursdays. Last night when we were there we were trying to remember last years event. And for the longest time I couldn't remember it and then it hit me. Last year we couldn't go on the Thursday because I had my biopsy that day and I was just too sore. So thankfully kids night was also offered on Friday so I rushed home after work to pick up the kids and go. It was while we were driving into the zoo that I got the call that I had cancer. Once that all came back to me I didn't have as much fun as I should have last night.

I just want this journey to be over and get on with the next part of my life. Today that's just weighing heavily on me.

First Goal: Loose 27 lbs by December 1, 2009 - GOAL MET NOVEMBER 6, 2009!

Second Goal: Loose 57 lbs by June 1, 2010... GOAL MET APRIL 3, 2010!

Third Goal: Loose 60 lbs... GOAL MET APRIL 24, 2010!

Forth Goal: Loose the 35 lbs I gained due to surgery and chemo!

Fifth Goal: Never have to make another weight loss goal!


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7/11/14 4:27 P

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Thank you Kay and Moon!

Moon, if I can help others stay encouraged, that helps me too. I have to "practice what I preach"!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/11/14 12:48 P

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Thank you everyone for your good thoughts on my biopsy decision. I'm still not sure what I'm going to do, but I'm not worrying about it (too much).

Jen, you amaze me with your post surgical energy! Not having feeling is strange. I know that some of it will be lifelong for us. I'm just wondering if I'll every really get used to it. I agree, every little bit that comes back is a good thing.

Becky, those mosquitoes can make summer miserable, particularly in the evening. Hope things dry out for you some.

Moon, Shari and Cyndi....wishing all of you a good day!

There is not an exercise class at my gym that I like very much on Fridays, but I just managed to do 30 minutes at home on the treadmill. I feel good about that. I often blow off exercise on Fridays, but I'm trying to be really consistent. I can feel my strength and stamina coming back a little more each week. It's a wonderful feeling.

Hugs to you all,
Kay

Kay from Tennessee



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7/11/14 11:26 A

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Kay - I'm relieved, still concerned like you, but relieved. If you keep thinking and wondering and if that lump is always pushing its way to the front of your mind then maybe a biopsy would relieve the worry and the what ifs. It's your comfort level that you live with and you need to be able to move on without doubts. i know that biopsies aren't fun. Tough decision...

Jen - I'm glad to hear how well you are feeling! Don't rush your recovery though. You might be riding a high right now. Take your time in letting your body heal, and come back to whatever normal is going to be for you slowly. It takes months not weeks to recover from surgery. Give yourself the gift of time. Your stress levels will be affected by the upcoming move as well as readying the rental. Remember to get plenty of rest and some time to relax.
We fought the flea battle here last year when we had three feral cats and 15 kittens! It was awful!!! We used bombs and ultimately called the exterminator who came and sprayed inside our garage and outside all around the house. We finally managed to catch the cats and kittens with those friendly traps and were able to give them to a farmer. They became farm cats and we only kept one of the mama cats after all the babies were weaned. She's still a little stand offish, but she has been spayed and is a good mouser. We now have one dog and one cat and a regular flea prevention schedule!

Cyndi - Hang in there with your treatment's highs and lows. We know it's not easy. Ask your doctor for advice or meds to take care of yourself.

Beckyanne - Between your busy workdays and your concerns about your brother and helping your mom, I hope the pressure is less and less. I bet you feel so good when you can go for a run! Exercise frees your mind as you work your muscles. Keep moving because it helps...

Shari - Thank you for being the calm we all need when weathering our storms even when you might be feeling under the weather yourself. I hope today is a good day for you and all of us. I put some potted flowers outside my back door so whenever I look out the door or open it to let Milo in or out, which is often, I see the beauty of fresh new blooms in living color. Ahh, I love summer! Have a good one...

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7/11/14 9:42 A

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HOORAY, KAY! kick around the biopsy decision for awhile for sure.... and you are right--they do breast cancer every day, multiple times a day--we do it once. It's good to be able to trust them to know their business...

Gnats--yup, here, too. what little buggers. we are still fighting with our fleas. dog needs another treatment sunday, and we'll bomb the house again. lol. boy, infestations are FUN! :-)

I'm shopping for new floors and paint for what will be my rental--taking my little minions with me--i'm hoping their taste isn't as expensive as mine. I would like durable, but I don't want to go nuts, you know? it's just a rental.

walked through the new house yesterday with the girls for the home inspection--well built place, but it seems the storm that blew through the other night knocked off a ridge vent and we've got a 2' X 6' hole in the roof--the owner is working on fixing that immediately--he had no idea. it is pretty neat we got to meet him and his wife--I like them both. :-) and the home is just beautiful.

gonna be hot and sticky here again today--as per usual. I am anxious to start working out but know to give this some time. i'm happy to have more feeling in my upper right arm than I did yesterday--whew. I know honestly that feeling is totally optional and not the most important thing, but I like to see it returning nonetheless. :-)

Such happy news for everyone today.... Cyndi, do get some help if the lows get too low. atavan is a great thing--so is lorazapam. :-) there's no reason to suffer when there's help available....

Health happiness and love,
Jen

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7/11/14 7:54 A

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Good Morning!

Kay-I'm glad they don't think it's Cancer. Way to Go on all of the exercise!

Cyndi-Stay positive!

Rain today and a bit more humid. Yesterday was a really nice day except for all of the bugs! We have a major gnat problem and now the mosquitos are starting the hatch. Way too much rain this year. We really could use a dry spell for a change.

Have a wonderful day!

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7/10/14 4:41 P

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Cyndi, you are in my prayers also.
I also did Taxotere 11 years ago, which is a Taxol drug. I had a hard time with the steroids I had to take with it. But just the cancer alone can be stressful and make you feel like you are on an emotional roller coaster. emoticon

Kay, I'm glad it's sounding like good news so far. Sending up prayers for you as you make your decision about the biopsy.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/10/14 1:43 P

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Jen, congratulations on your pCR (complete response to chemo)! That is absolutely the best news possible! Whoo Hoo! I'm sorry to hear about your drain pain, but it sounds like you got it resolved. Awesome.

Cyndi, I had terrible emotional lows each week on taxol as I came off the steroids. I finally asked for help and they gave me ativan. I took it each time the lows came. It did help.

I went to Vanderbilt yesterday for a mammo and ultrasound. They are 98% sure the lump is fat necrosis. They said they would do a biopsy if I wanted on to put my mind at rest. I have to go back to Vanderbilt in three weeks for some more GI tests and meet with my GI doc, so I'm thinking if I decide I want a biopsy, I'll do it then. I tend to believe it is fat necrosis....they see patients like me every day, all day long so they know what they are talking about. On the other hand, a biopsy would rule out cancer completely. I'm going to give myself a few days to think about it. They weren't recommending a biospy, only saying they were willing to do it if I wanted. My next scheduled mammo is in early September and since I have dense breasts, they will be doing 3d mammos in the future every time.

I got to exercise class 5 times this week even with my trip to Nashville yesterday. It feels great to be building up some consistency!

Wishing everyone a great day.

Hugs,
Kay

Kay from Tennessee



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7/10/14 12:19 P

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Cyndi.... sending you strength, but you've got plenty of it already.... :-) You WILL get through this--the finish line is in sight.... I think the steroids that came with the taxotere got me worse than anything...very unpleasant coming off them. but you know what? chemo is unpleasant and cancer is stressful and it's a wonder anyone ever has ANY good days going through this battle.... who knows what the culprit is--there's plenty of them to go around!!! this too shall pass. I'm glad you're close to the end of it. :-) hang in---I am thinking of you....

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7/10/14 11:05 A

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I'm hoping everyone has a good day! emoticon emoticon

Sending good thoughts, prayers, and hugs! emoticon emoticon emoticon emoticon

Edited by: MOONGLOWSNANA at: 7/10/2014 (11:06)
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7/10/14 9:44 A

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Hi Everyone! I've been offline for a few days. I'm keeping you all in my thoughts and prayers. You have so many things going on. As for me, I'm getting through this ok. I recall someone on this site saying that Taxol caused them to be emotional. Oh my goodness, I have been so out of sorts! I don't feel like me. I'm trying very hard to stay positive. I wake up everyday and tell myself that I will have a good day. Only 2 more treatments! I will get through this!

Cyndi

Cyndi


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7/10/14 7:43 A

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Have wonderful day!

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7/9/14 10:08 P

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emoticon Jen! That's awesome news!!

We're having cooler temps. this week so far. It feels good! No rain!



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7/9/14 5:01 P

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Thank you Jen!

That is amazing that the chemo killed the cancer! That gives all of us hope that chemo DOES work. Sorry about all the trouble with the drain. When I had my mastectomy, those drains were the worst part of the surgery for me, they sure were uncomfortable.

I'm glad we have this place too. emoticon


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/9/14 9:20 A

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OOOPS! Shari, I forgot to congratulate you on your anniversary!!! I joined in Feb 2007.... and wow, it's kind of amazing how time flies, isn't it?? This is the greatest place in the world, and when I got into trouble with my cancer this year, I wasn't a bit surprised to see the wealth of support that was here all the time--that I'd had no idea about.

This is a blessed place--it's helped me through more than one rough spot--here's to another 8 happy years of friendship and motivation and plain-old good people and caring friends!

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7/9/14 8:58 A

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Sending the best vibes and most heartfelt prayers to Kay and to the follks at Vanderbilt this morning..... go put your mind at ease, hon.... Cannot wait to hear good news--and if it's not so good, can't wait to put the get-well plan into action. Much love and calmness....


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7/8/14 8:12 P

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Hi, all! What a busy week so far!

KAY--oh, I am in such a mood for wonderful news tomorrow--praying for the absolute best. Scar tissue sounds reasonable--and checking to make sure sounds even MORE reasonable. Your level headedness is just going to keep on serving you well for years to come. Do let us know how it goes....

Shari--I missed the fireworks entirely, but how wonderful it must be to NOT leave the house and fight traffic and parking--I hope it was a neat show.

Becky--caregiving is hard... I have no idea how my fiancé manages me--I'm downright intolerable sometimes depending on the pain. I feel awful... I think it's fair to share the wealth, though, and I sure hope your sister is able to step up and help out some more....

I had 2 post ops this week--one with plastic and one with breast surgeon. Plastic was unpleasant--I had a problematic drain--pulled sutures and just super-pain-fire kind of deal.... immediate relief to have it out, though. so I'm much pleased. Today I met with my breast surgeon who has never in her life seen a pathology report like mine.... she removed no cancer.... the chemo killed it all pre-op. My lymph even looks fine. There is no tumor (amazing as the initial group of tumors took up 9 cms of my right breast). I am floored. And thankful that I must have important things to attend to here on earth before I have to go.... Just an amazing day. I'm feeling super-blessed. I will see her twice a year for the next five and annually for the rest of my life which is great--because I ADORE her!!

Every doctor's office is getting chocolate covered strawberries. And hugs.

So.. still have pain but am staying ahead of it--some nerve deadness in that right arm, but I expected as much, My skin looks good, and I'll start filling the expanders next Monday. (And working on an accelerated reconstruction plan--I am NOT putting off radiation for the cosmetic doc's desires for 'good results.' Good result for me = LIFE.)

It is hot and sticky. We made it to 100 today with gusty martian-like wind.... I LOVED IT!! :-) Hope you're al well.... Much love to every one of you,
Jen

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7/8/14 4:31 P

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Good afternoon all!

Kay, that line dancing sounds like fun!

Had to go to the clinic today for my monthly blood work for my oncologist. (I get it done there, rather than at the hospital lab, because they won't draw the blood through my port at the lab.) While I was in the waiting room, I had a therapy dog visit, that always makes my day!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/8/14 4:18 P

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Happy Tuesday! I went to an aerobics class this morning and a beginner line dancing class at lunch time. I'm just trying to keep busy and my mind occupied today so I don't think too much about going to Vanderbilt tomorrow for my test. I really think there is about a 98% chance that the lump is just scar tissue, I just couldn't afford to ignore it until Sept. I'll let you know how things go.

Becky, your mom sounds a lot like mine. As the only daughter in my family (with 3 brothers), she seems to think that it's fine to ask me to do things, but wouldn't dream of asking any of my brothers. When I got cancer, I really had to put my foot down and say NO. She is much, much better at asking the others for help. Now that I'm done with treatment, I'm afraid it's going to go back to me being the designated grunt. Unfortunately, I also live closer to her than anyone else so I just have to suck it up sometimes and do it. I do think I got my point across when I got cancer and had to go through so much treatment so I'm hoping things will be better in the long run.....we'll see.

Wishing everyone else here a good day.

Hugs,
Kay

Kay from Tennessee



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7/8/14 1:06 P

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Parents! Even when we are parents ouselves our original set can still push our buttons! Organize what you can Becky, and make an ally of your sister. She can insist that she take your mom so you can at least take turns. I know you will handle it to your satisfaction. Time can be a precious commodity. Take what YOU need for yourself without putting yourself last. When someone is in the hospital though everthing can be like walking on egg shells.

Fingers crossed for tomorrow's good report Kay.

I hoping you're feeling better each day Jen.

I have my last appt with my plastic surgeon today so I made them Bibingka, a sweet rice cake, Filipino dessert. I'm sharing some with the physical therapists too. My husband will find only edges and crumbs left at home, but I think the edges are the best with their golden brown crustiness!

Have a good day Shari and anyone else reading the post! The sun is out now after a full morning of rain. I bet we got a couple of inches! There's a breeze now too, but everything is wet. I think the farmers' corn needed rain, but I wonder if all of them got the straw baled from last week when they cut wheat? It can be touch and go to be a farmer...

Have a good afternoon! If it had kept raining it would have been a good day to nap, but not to be for me!

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7/8/14 7:39 A

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Kay-let us know how things go on Wed.

We had storms last night, but the severe weather stayed away. Sunshine this morning.

Long day at work yesterday. Found out I wasn't the only one that didn't get a day off this week. Today I take my mom to see my brother. My sister offered, but my mom told her no. I will be talking to her about that today. I can't keep going all the time when there is someone else offering to take her. I've got so many things I want to get done and by the time I get home, it's already after lunch. It wouldn't be so bad if my mom didn't always have to go in the morning.

I hope everyone has a nice day!

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7/7/14 6:01 P

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Kay, I'm anxiously awaiting a "good news" post from you after Wednesday! emoticon

I had a good day today but I am sleepy; we had storms move through last night that lasted til almost 2am. I had my monthly lunch out with some of the ladies I use to work, and ended up taking a long nap after I got home.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/7/14 4:32 P

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Moon, it's nice you are back.

Becky, sorry you had to work on a day you needed to be someplace else. Bummer.

Shari and Jen, I hope you are having good days today.

Jen, those first two weeks after surgery were the hardest for me at least. The nerve endings that get cut and stretched create a lot of pain. I'm not sure which was worse, the nerve damage pain or the incisional pain. The incisional pain heals pretty quickly (a few weeks)....the nerve damage pain took a little more time for me ( a couple months). I still feel the effects of my surgery whenever I move my arm 5 months later, but it's more a minor irritation than true pain. Don't be afraid to use those pain killers the first couple weeks....they actually help aid healing.

I heard back from Vanderbilt first this this morning about the message I sent them over the weekend about my lump. They called me to see if I could come in tomorrow, but we couldn't because I we have a dishwasher repair guy coming ....and we have been waiting about three weeks for him to come. Didn't want to cancel that, so I'm going on Wednesday to get it checked out. I do think it is most likely scar tissue, but I will feel like I've done my duty and been responsible by going in and having them evaluate it. Now that I have the appointment, I am just trying to keep busy and not think about it too much. I know I'll be a bundle of nerves when they do the ultrasound. I haven't had a "clear" ultrasound yet on my left breast.....so this will be a welcome first if that happens on Wednesday. I'll keep you posted.

Kay from Tennessee



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7/7/14 10:02 A

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Wow! If I miss a few days you all do all sorts of things! Shari- Thanks for being here and for holding down the fort while Jen was off having surgery, visiting the ER, and NEEDING PAIN MEDICATION! I remember using my pain meds faithfully. My knees were giving me fits then and I needed to use my arms to get up which was traumatic to my chest muscles. Pain meds are your friend when you need them, and being a martyr is not worth the increased stress and discomfort. It's not discomfort, it's PAIN!
Kay- Hindsight makes all kinds of sense with your DX of Crohn's Disease, right! Hopefully they can treat it and get and keep it in remission. I'm hoping your lump is scar tissue too. Enough already! Feel better soon!
Becky - Hope your workday was tolerable and that you can catch up with your things to do and people to see needs after work. It's so hard to be at the mercy of someone else setting your schedule, and leaving you to deal with it!
Hang in there everybody. Remember, this too shall pass!

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7/7/14 7:07 A

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emoticon I was suppose to be off today and she scheduled me anyway. I really need to be other places today.

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7/6/14 5:41 P

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Jen and Kay, hope you both feel better soon. Kay, that sounds like scar tissue to me too, but for your peace of mind, it's worth getting it checked out.

I just realized yesterday that my 8 year Spark anniversary was the 3rd of this month, somehow that day just slipped by me. With all that's been going on though, it's good to have something to celebrate a little bit. Back then when I joined, it was was after my diagnosis of stage II, and I was just on the maintenance drugs; it was almost a year after that that my cancer returned and became stage IV. My Spark friends were a big part of getting me through the stages of learning to deal with that.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/6/14 2:33 P

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Hot and humid today! The humidity snuck in overnight and it's awful. i did manage to get out for a run before work and before the sun came out. We're suppose to see storms later on, but I don't think they're suppose to cool it down.

Jen-I've been stupid trying to get by without pain meds. in the past, but not anymore. If I need them, I will go for them or call my Dr. Hope it gets better soon.

Kay-Better safe tha sorry plus it eases the mind to know.

Have a nice Sunday!

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7/6/14 11:41 A

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Jen, I'm glad you went to the ER for more pain medication.....that is rough when you need more and are so far away from your surgeon since they can't phone in narcotics. Isn't it great how fast they treat cancer people in ER? I was amazed by that when I went in with my small bowel obstruction. I have never gotten through check in, triage and into a room any faster (at least that I recall).

Becky, I hope they have figured out things with your brother and it's not too serious.

We went to a big party at our next-door- neighbor's yesterday. It was nice to meet some of the other people that live near us. I appreciated that they had invited us since I didn't host my own family this year over the 4th.

I seem to be coming down with a cold this morning. It's the first one I've had in ages. I'm so glad this didn't happen while I was getting chemo. I suspect my resistance is still low, and, therefore, the cold.

I have developed a lump under my LX scar. I seriously doubt it is cancer, but I feel like I can't afford to wait until my mammo in September to have it checked so I'm going to email my BS and tell her about it. I'm guessing I'll need an US on it, but I'll let her figure out what is best for me to do. I found it about two weeks ago, but I wanted to see if it was getting smaller. My gut feeling is that it is most likely scar tissue and it has formed a lump as a result of the changes that are happening due to radiation and things (like scar tissue) getting tighter and harder. Like I say....I feel I can't afford to ignore it. Boo!

Kay from Tennessee



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7/6/14 7:31 A

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Happy belated 4th!! I hope everyone's day was wonderful.... I'll tell you what--the weather in these parts simply cannot be beat! Warm, sunny, low-ish humidity.... just a joy....

We had to hit the ER yesterday. Bad timing on my surgery with the holiday.... and the fact that refilling narcotics is no easy thing to do. I'm 2 hours from my surgeons--who are both entirely unavailable. They prescribed 30 each of Valium and Vicodin, and I felt a little like a junky going into the ER begging for more. but I did the math, and taking them as directed honestly didn't get me through 5 days.... and the pain was getting right crummy, so I bit the bullet and went into the hospital for help. I didn't even bother with head covering. haha. (I will miss the ER fast track when I'm through all this nonsense--it's pretty neat they want to keep the VERY Sick lady away from the sick people in the waiting room). Everything looks like it's healing fine--just awful sore sometimes. Thanks for the note on waiting to exercise that arm of mine.... I was tryin to pull off a sun salutation this morning--probably not the best idea huh? hahaha. I need to work on my patience.

On top of all the boob fun, we are infested with fleas. So we bombed the house when we went out to the hospital and treated all the animals. Hopefully we'll get some relief. Or we'll bomb it again. :-) everything got washed--good productive day.

Love you all--keep on enjoying the holiday.... Becky, I'm praying for your brother and hoping we're dealing with something treatable and curable....

Jen

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7/5/14 4:15 P

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I watched the fireworks through my kitchen window; I don't live far from where they shoot them off. I missed a few because of the trees, but I saw about 80-85% of the display, and it was a very nice one, about 45 minutes long.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/5/14 7:41 A

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Most of yesterday was quiet. The boys all had things to do so it was just my DH and me. Got in a short nap. Went to the movies last night.

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7/4/14 5:16 P

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I'm glad your brother is doing better!

I'm just hanging out at home today.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/4/14 7:58 A

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emoticon emoticon Happy 4th of July!

Everyone's schedule is making it hard to plan anything for today so I'm not sure what we're going to be doing. My brother is doing better. No TB and I don't think it's Lung Cancer. Still not quite sure what's going on.

I'm planning a run this morning, followed by a trip to the grocery store to pick up something for today.

Have a great day!

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7/3/14 4:42 P

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Kay, I commented in the other group, but again, I'm so sorry about the Chron's.

Jen, I'm glad you did well with the surgery, and I hope your recovery is as pain-free as possible.

Becky, I'll send up some prayers for your brother.

Edited by: MOM2ACAT at: 7/3/2014 (16:43)

My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/3/14 7:41 A

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It's a jacket kind of morning! Hard to believe it's July. nother busy day ahead!

Have a nice day!

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7/2/14 7:59 A

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Jen-I'm glad everything went well for you. The expanders aren't too bad. I think mine hurt for the first few weeks. Mostly when I moved wrong. I remember trying to move them cuz they felt like they were digging in at times. That was painful. Then I would have pain after each filling for a few days.

Busy day yesterday. Unplanned trip to the hospital with my mom. By brother is there. They're testing him for a number of things. One being lung cancer and another TB. My mom is a wreck. Good thing I'm off of work right now so I can take her to see him. I am getting my exercise i before I go though. I told her I had to. It's my antidepressant. Without it, I would have anxiety attacks especially now.

Kay-sorry about the Crohn's. At least now you know what it is and can treat it.

Have a nice Wed.!

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7/1/14 9:30 P

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Cyndi, did they tell you about taking Claratin for the bone pain from the Neulasta shot? It really works. I took Claratin twice a day for 5 days beginning with the day of the infusion and never had any pain.

Jen, congratulations on getting done with your surgery! That is a huge step. I hope you are feeling okay today now that the wonder drugs are wearing off. I'm keeping my fingers crossed for a good path report for you. They say it's okay to delay radiation for up to 8 weeks if necessary so if you need time for the TE fills, it can be done. I was surprised how much my surgery hurt for the first two weeks afterward in particular. I didn't have a BMX, I had a LX and ALND, but I also had old subpectoral implants removed. The LX didn't hurt, but the ALND and explantation hurt like crazy. Take care of yourself and let others help you out. If you had an ALND it's actually important to allow that area to heal for a couple weeks before beginning to stretch or exercise. It helps reduce the risk of LE. There is a good website that explains this. www.stepup-speakout.org/riskreductio
n_
for_lymphedema.htm
I didn't realize why they didn't give me stretching exercises to do when I left the hospital until I read this. Wishing you the best in your recovery.

Becky, maybe they are giving you the days you want since they realize that you will leave if the hours aren't right for you.

I just found out yesterday that I apparently have Crohn's disease. I had a test done last week and the pathology results show that my intestines are diseased. I'm bummed. I will go back in a few weeks for another test to help clarify the extent of the disease and some other issues and then meet with the GI doc to discuss treatment. Whatever I have, I have been dealing with it for years without medication. It will be interesting to see what the doctor has to say in terms of treatment. I know this will mean more followups. The risk of intestinal cancer is 100 times greater in people with Crohn's than in the normal population. Booo!

Edited by: SIMPLELIFE4REAL at: 7/1/2014 (21:41)
Kay from Tennessee



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7/1/14 6:16 P

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Happy Tuesday Evening!!

I am home from the hospital, and though I didn't get to talk with my surgeons last night after they were done with me, they tell my fiancé that I did really well. (I'm not sure what that mean--I stayed unconscious good and long? lol) Anyhow.... we'll discuss path next Tuesday at my post-op.

Kind of disappointing to wake up with expanders instead of implants--they just needed to take too much skin and weren't able to pull a one-stage off on me. Not big deal, as long as it doesn't interfere with my radiation starting RIGHT QUICK.

I'm kinda of surprised--it isn't all that bad. I am expecting it to be pretty painful once the wonder drugs are out of my system in a day or two. BUT another part of treatment bites the dust..... onto the next!!!



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7/1/14 5:25 P

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Cyndi, I hope your WBC comes back up soon. When I was on the IV chemo, there were a few times when my treatment had to be delayed because of that too.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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