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10/24/14 10:17 P

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Sweet dreams Shari! emoticon

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10/24/14 3:46 P

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So far, the chemo side effects are mild and very tolerable, but the steroids they gave me kept me awake all night. Next time, I am going to ask for something to help me sleep. If it weren't for the lack of sleep, I think I would have been feeling pretty good today.

I'm sure I will be able to sleep tonight though, and I expect to have a much better weekend!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/23/14 6:25 P

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So far so good, Shari!!! emoticon

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10/23/14 5:48 P

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Glad your appointment went well Becky!

Moon, I love Fleetwood Mac too! I've done the same thing with exercise myself when I am close to the next trophy.

I had my blood transfusion yesterday. They give Benadryl as a pre-med and that made me so tired; I didn't have the energy to get online after I got back home, but I sure felt a difference when I got up this morning. I slept so much better with the rapid heart rate calmed down too. When my blood was checked today, my hemoglobin was up to 10.8! That is quite an improvement from 7.0.

I had the chemo today; I've been home about 3 hours now; just have a little bit of stomach pain which I think is from the steroids they also gave me, and feeling a little sleepy from the nausea meds. So far, I haven't had to take any my nausea meds since I've been back home.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/23/14 10:34 A

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Good to hear that your appt went well. What about the chest x-ray? It's been two years since my mastectomy in Feb, and my oncologist scheduled a chest x-ray before my next visit.

Shari had a transfusion on Tuesday and is supposed to start chemo today...

I am aggravating and aggravated by my knees with too much chair marching, but I'm trying to win a trophy and only have three more days to get in my steps... I'm motivated to win at my own expense. Something's not right about that. The knees will hurt either way though. So I'm still working on winning. emoticon There should be an emoticon here for foolish or crazy!!!

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10/23/14 3:09 A

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Dr. appt. went well. Everything is good. I will have an endoscopy sometime before the end of the year to see if I still have my ulcers.

I've been able to get out and exercise daily this week. May have to hold off today because we're suppose to have rain this morning. Work didn't go quite as well yesterday. Still so many things I don't know how to do and it gets frustrating at times.

Have a wonderful Thursday!

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10/22/14 1:48 A

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Shari-I hope all went well.

My first day alone at work yesterday went pretty well. Plus the afternoon went pretty fast.

Today I have a dr. Appt. nothing special. Just my 1 yr. with my surgeon. I don't really get what the point is with these appt. anyway. Unless I get a chest X-ray. They were going to schedule any of these things prior to my appt. so that my dr. Could go over them before my appt. I guess that isn't happening for me. I even had to call and question if I had an appt.

Time to go back to sleep!

Good night!

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10/21/14 6:49 P

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Sounds like a good plan Shari. I hope the side effects are minimal and preferably nonexistent. Love those kitties and pamper yourself.

I am struggling with my knees today. My husband and I enjoyed seeing Fleetwood Mac in concert Sunday night where I did two hours of chair dancing. I could hardly bend my knees yesterday and today they are still painful. I should have know, but the music and the company was so good, I over did the exercise. Moderation in all things!!!

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10/21/14 10:30 A

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Well, today is the day; this afternoon I will start my first Halaven chemo. I'm a little anxious to get the first treatment done and over with. Once I know which side effects I will have and to what degree, it will be easier to deal with. The unknown is always a little scary. Once I get back home, I plan to get into my pjs, and just relax in my favorite chair with a cozy blanket and do some reading and watch TV, and cuddle with the kitties.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/19/14 5:09 P

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I love warm cider too! We have a Biggby's here ( sort of like a Starbucks) that makes a yummy hot caramel apple cider.

I saw that recipe too Moon, if you make it, let me know how you like it!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/19/14 1:28 P

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emoticon It's a warm cider kind of day here too, but the sun is shining. We have granddaughters here so we're going to roast some hot dogs over and open fire, and I have baked beans cooking in the microwave. The old and the new in cooking styles! I saw a recipe on SP for pumpkin apple butter and I think I'll make some next week when I get a pumpkin to steam. Autumn foods!

emoticon emoticon emoticon emoticon emoticon



Edited by: MOONGLOWSNANA at: 10/19/2014 (13:37)
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10/19/14 8:26 A

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Happy Sunday!
It's a beautiful fall morning. I love the changing leaves and cool air. We went to pick pumpkins and apples yesterday. It was so much fun. Today, I'm baking an apple pie and making applesauce.

Enjoy the day!

Cyndi


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10/19/14 8:14 A

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Good morning!

Yesterday was a bit on the cool side. Today and most of the week should be warmer. Plus not much for rain in the forecast. We need to clean up our yard. There just isn't enough time in a day lately to get everything done.

I hope you have a great Sunday!

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10/17/14 3:58 P

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Thank you Moon; it went well, and thankfully, he didn't order any tests or procedures this time.

Our nice stretch of weather is coming to an end; it's very windy today, and it's going to be turning colder, it will be time to get my winter jacket out soon!


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/17/14 3:52 P

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Glad you got in a run Beckyanne. I knew you would because runners are like that!
Do you like the bank job better than the one you had in retail or are you working both jobs?

I hope your gastro appt went well Shari.

I got my papers to fill out for my cataracts even though my appt isn't until November 25th, but I guess we are past halfway with October all ready. I ordered a couple of pretty loaf pans for my daughter-in-law for Christmas online the other night with 15% off and free shipping. One has pumpkins and vines and the other has citrus slices on the top. My son love all things lemon, and his wife makes breads at least a couple of times a month. The next thing we know Thanksgiving will be over and Christmas will be upon us! Have a good weekend everyone!

Edited by: MOONGLOWSNANA at: 10/17/2014 (15:53)
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10/17/14 6:50 A

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Good Friday Morning!

So glad the weekend is around the corner. The weather has been great the last couple of days. today it's suppose to be cloudy and windy and a bit cooler.

Today the bank is providing pizza because we met our United Way goal. Ugh! If it's not lunch, it's goodies. I'm not liking that part of the job. I hope to grab a slice of pizza and hit the road for some exercise. I'd like to go and visit my brother so I don't have to do it tomorrow. I've got so many things to do and I'm not sure if I will be working on Sunday.

I hope everyone has a nice Friday!

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10/16/14 12:46 P

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Uh, I'd like a new sleek sporty model in bright red please! lol I'd be able to get my 10 minutes plus exercise in style, and look great when I hit the road. I might even catch up with Beckyanne and speed by when she is out running! Look out! It's a brand new me!

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10/16/14 11:40 A

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Moon, I've said to friends before that if my body were a car, I'd trade it in for a new model, lol!

My headache didn't completely go away, but it didn't get any worse either. I made it through the day. My pain clinic appointment went well. Going to have to get some x-rays of my hip, and hopefully the pain will be able to be treated with injections.

Today I have a followup appointment with my gastro doctor; hoping that that one won't lead to any more tests or procedures; I have enough on my plate with the chemo right now.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/16/14 7:35 A

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Good Morning!
I'm glad to know everyone had a great day yesterday. Shari, I hope your headache cleared up fast and your appointment went smoothly.

All is well here. Getting ready to start the day.

Take care!

Cyndi


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10/16/14 6:48 A

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Good Morning!

It was a beautiful day yesterday and I was finally able to get out after work and go for a run. Today should be another nice one so I should be able to get out and walk during my lunch hr. I'm so looking forward to the weekend. I know I don't work Sat., not sure about Sunday at this point though. I hope I have most of that day off anyway.

Have a great day!

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10/15/14 3:45 P

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I have an appointment with an eye surgeon at the end of November to see about my cataracts. My knees are still ouchy, but I'm trying to put off that appointment until after Christmas or until I get my eyes taken care of first. I feel like a car going into and out of a body shop for repairs! I'm so grateful though that things can be fixed, maybe not as good as new, but better.

My husband is outside burning burning old files that the government won't ask about at this point. He's been dodging raindrops, but has a good fire going. He likes to do anything if he can do it outside!

I did 45 minutes of water exercises this morning and am making butternut squash soup with squash and a couple of sweet potatoes thrown in to sweeten it up a bit. Busy day,

What a surprise welcome back you had Cyndi! It's nice to have such thoughtful friends who show their support. I hope the burn medicine heals you up fast.

Beckyanne I know you'll make some time to exercise when your schedule gels. Your are a runner and you'll be running again soon.

I hope your headache improves Shari. Those things can try your patience, and you need to be pain free and good to go next week! I keep thinking about everyone. I hope Kay is having fun on her trip. I'm going to go check to see if she'e added anything to her blog. Have a good rest of the week!

Edited by: MOONGLOWSNANA at: 10/15/2014 (15:53)
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10/15/14 12:06 P

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Cyndi, I hope your burns heal soon! I'm glad to hear you are done with the radiation though!

I will be getting Halaven for my chemo. I don't know how many rounds I will have. My cancer is stage IV breast cancer, so I will be on this chemo until it quits working, just as with the ones I have been on in the past.

Trying to fight off a sinus headache right now; I have an appointment at the pain clinic this afternoon. Just routine, not an appointment that I have any concerns about. It's just a day that I will be glad when I'm finally back home for the day.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/15/14 9:43 A

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Moon - It's great that you were able to get that aqua exercise in. It sounds fun. Happy Birthday to your husband.

Becky Anne - I hope your day is going well. It's been very rainy here also.

Shari - I'm glad to know that you had your teaching appointment. I'll be thinking of you as you start your chemo. How many rounds will you have? What type of chemo?

My update - I completed radiation on Wed, Oct 8th. When I went to work on Oct 9th, the students and staff painted the school pink! They were all dressed in pink. The students made posters and decorated my classroom. The staff gave me a nice potluck lunch. It was a wonderful day!

On Sunday, my radiation burns were horrible. They were seeping and painful. I went to the doctor and he prescribed silver sulfide. It's getting better. I see my plastic surgeon tomorrow to discuss the 2nd part of my surgery. I see my oncologist in early November. I'm praying that I hear the words "no evidence of cancer." I'm thinking positive! Finally, I'm on Tamoxifen.

Enjoy the day!

Cyndi


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10/15/14 7:02 A

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Good Morning!

It's been a busy week so far. I haven't had time to exercise, but I'm hoping to get out after work tonight. It's been raining the last couple of days so I haven't been able to go for a walk on my lunch hr. I'm really feeling it too. Plus they've been bringing in goodies at work. That and sitting all day is not a good combination. Looking forward to the weekend.

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10/13/14 5:40 P

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emoticon to your husband Moon!
I'm glad you are able to do the aqua exercise.

I had my teaching appointment at the cancer center today, it went pretty well. I will be starting the new chemo next Tuesday.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/12/14 6:21 P

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Up early this morning and did an hour of aqua aerobics. The water makes the exercise so much easier. Today is my husband's birthday so the kids have been calling. He has an ouchy knee too, but he keeps on working at work and at home. We went to see the Four Freshmen in concert today and it was fun to hear old and new tunes in their harmonizing style. We visited with a lot of people in the sets surrounding ours. We hadn't seen the couple in front of us for years and years. It was a nice afternoon out. Started my change in meds today, and decided to make an appt with my eye doctor and internist tomorrow. I haven't see the eye doctor in two years, and The Four Freshmen had blurry faces from my side of the lens. We had a nice fall day.

I want to make three more reversible bags for our three 8 year-old granddaughters for Christmas or their birthdays. I'll look for summer material on clearance this week and make them beach bags, just big enough for a wet swim suit, flip flops, sunglasses and sun protection. I'll put that on my list of things to do.... My sewing machine is still in the car. I was too stiff from sewing all day to drag it back in the house.

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10/12/14 1:57 P

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Moon, I hope you feel better soon!

That bag sounds cute! I love to sew but I haven't done it for a long time. Just don't have the energy to get my sewing machine set up right now and working.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/12/14 7:21 A

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We had a pretty good frost yesterday but not that hard freeze that kills everything. So many things to get done today.

Have a great day!

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10/11/14 7:14 P

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Still shaky and trembly, but new medicine will start on Tuesday so I'm hoping to get back to feeling more normal soon. I'm tired after 8 hours of sleep too. I have muscle aches and pains, ouchy knees, and various other symptoms and complaints so we're investigating chronic fatigue syndrome... But enough about that. I did go to my sewing club today and made a cute reversible bag with handles out of wintry fabric, one side has white snow flakes on royal blue and the other has white polka dots on red. It's cheerful and finished and would make a nice gift holder for one of my granddaughters for Christmas.

No rain here today so I could haul my sewing machine without dodging raindrops. Some leaves are down, but a lot of the trees still have gorgeous colors. It was a pretty fall day.

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10/11/14 3:41 P

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Good afternoon!

We are having some nice weather too, and we finally had a freeze here to kill off the pollen, so I am hoping to get some more time outdoors too before the days start getting too cold.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/11/14 8:26 A

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I'm so glad it's the weekend! Although I work tonight, I don't have the stress of my new job for a couple of days. The weather is also suppose to be beautiful. So looking forward to spending some time outside.


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10/9/14 11:24 A

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Thank you for the prayers!

Moon, congrats on the 300 Spark points! I hope your appointments go well and that you can start feeling better.

The social worker from the cancer center called yesterday and I had a very nice talk with her. I found out that I will have my first chemo on the 21st, and the day after each treatment, I will have to go back for a Neulasta shot to keep my WBCs from getting too low. Now that I know that the "ball is rolling" so to speak, I can relax and not worry about things so much.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/9/14 9:55 A

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My knees hurt. I've gained weight despite the over 3000 minutes of exercise I did in September. A lot of it was chair marching to help keep the wight off my knees, but I think the shots I got have worn off, and I think some of the weight is from some of the meds I am taking. I got up early this morning and did 40 minutes of aqua aerobics and walking in the water again keeping weight off my knees. Now I'm finished with a load of laundry and my breakfast and I'm ready for my two hour drive to the city for my appts today and tomorrow. I'll stay with my daughter tonight and come back home tomorrow. Maybe my doctor can help figure out the weight gain. I also have a trembly feeling which is why I think it might be med related. Maybe I'm like the bears and putting on my layer of fat for the winter!

It looks like some rain for the next couple of days which will probably knock some of the leaves off the trees, and make for a less interesting drive with fall color, but time marches on and we go along for the ride. Have a good day everyone. Watch what and where you eat!Keep moving and remember to smile a little or a lot. People will wonder what you've been up to. emoticon emoticon emoticon

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10/9/14 7:17 A

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Good Morning!

It's been a busy week.

I received confirmation this week that I did have Norovirus. The restaurant finally closed due to the number of people that have gotten sick. I have herd from many that this isn't the first time for this restaurant. I will definetly think twice about eating there again.

The weather has been nice here except for the wind. No rain or snow though.

Have a great day! The weekend is almost here!

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10/7/14 11:01 P

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Shari I'm glad you got somewhere when your internist took the time to call! People on chemo don't need to feel like a red headed stepchild! I hope you get stated so that it can vein working for you. I'll keep you in my thoughts and prayers too.

I'm exhausted tonight, but in spite of myself I managed to have a good productive day. I also sparked a lot accumulating over 300 points. 100 points were added for reading the new Mini book my Spark Guy. It was good. The rest were lucky spins and lots of message board games, all the articles for the day, and most anything else I could do. It was fun watching the number go higher and higher.

So I hope everyone had a good day too. I'm going to go read and fall asleep. I doubt I get up to watch the lunar eclipse although my husband might. It's too early in the morning for me!
Good Night all!

Edited by: MOONGLOWSNANA at: 10/7/2014 (23:08)
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10/7/14 10:52 P

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My prayers are with you Shari!

Cyndi


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10/7/14 5:19 P

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Moon, I hope you feel better soon!

Becky, I hope the feeling of being overwhelmed goes away soon as you get use to the new job.

I had a routine appointment with my internist today; I told him about the problems I was having trying to get started on the new chemo, and he wasn't happy he heard about all the hassles I've been having. He called the cancer center himself to find out what was going on. Well, to make a long story short, I have an appointment with the cancer center Monday, a "teaching" appointment, and once I'm there, I'll find out what day I will start the chemo. Most likely, it will be on Tuesday.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/7/14 7:43 A

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Good Morning!

I started my new job yesterday and I'm totally overwhelmed. So much info. Today is only a half day so I plan on coming home and eating something and then going out for a run to clear my head. I did get a 25 min. walk on my lunch yesterday. I'm thinking 2 jobs isn't going to work right now so I'm going to have to tell my retail job to not schedule me for awhile.

The weather should be nice this week. No rain!

Have a great day!

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10/6/14 11:04 P

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I have been exercising way more than ever. I think I have a hiatal hernia. The shots for my knees have worn off. I am not a happy camper. Since I have a colonscopy scheduled for the end of the monthI can check with the GI doctor I will meet then. I guess it would be a good idea to cut back on the amount of gum I chew and maybe to eat smaller meals. Growing old is not for the weak... What next? emoticon

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10/6/14 10:39 P

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Glad you had a nice lunch, Shari.

Moon, thanks for sharing the article.

I got a 30 min workout in tonight. It definitely helped me calm down.

Cyndi


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10/6/14 5:22 P

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You are welcome Cyndi!

Moon, sorry you didn't get anywhere after an hour on the phone. I've done that with insurance companies before.

Had lunch out today with a few of the friends I used to work with, there is a group of us that meet once per month. Only 4 of us today, but I still enjoyed it.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/6/14 3:59 P

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http://www.oprah.com/health/New-Breast-Can
cer-Research?FB=fb_omag_big_breakthrou
ghs_cancer

This article is worth reading. It caught my eye on Facebook today. XXX cancer is mentioned.

I hope everyone is having a good day! I spent an hour on the phone with Medicare this morning and didn't make much headway. emoticon

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10/5/14 10:58 P

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Shari ~ thank you for your words of encouragement. It's such a hard cross to bear. It's nice to know that I have a support system of other women on this same journey. Thank you for being there for me! emoticon

Cyndi


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10/5/14 4:04 P

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Cyndi; I had a bilateral mastectomy also, back in 2003. I wish I had some words of reassurance for you, but I don't know what to say since my cancer returned in 2007, (in my bones). But I remember that period in between time, I always had the feeling that the "other shoe" was going to drop. I'm praying for you that it won't! emoticon But if it's any comfort at all, a recurrence of cancer is still treatable; mine returned a little over 7 years ago, but I am still here, and my oncologist hasn't given me an "expiration" date either.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/5/14 9:04 A

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Jen - I'm sorry to hear about your experience. Glad to know you're on your way to recovery. Congrats on wrapping up your radiation. I'm scheduled to finish radiation on Wed.

Becky and Moon - glad to know you're doing well.

Kay - I hope you hear something tomorrow.

I'm feeling a bit anguished today. Looked up recurrence of breast cancer after a bilateral mastectomy. Ugh. It can happen. Why did I look that up?!?! And, I'm wondering if all this treatment is working? Drs haven't given me any reason to think it's not. But, I'm just having one of those days. Thanks for listening to my ranting and raving.

Cyndi


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10/5/14 7:44 A

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I love how they always seem to assume that what ever time they give you, it'll be fine with you. Don't they think we have lives to lead? Hopefully you'll hear something on Monday.

There's frost on everything this morning. When I walked out of work last night, it felt like winter. Early Winter that is. It was cold!

I accomplished so much yesterday and I've got alot of things to get done today also. Plus I want to go and get some apples. Picking is probably not going to happen though. I don't have the time. Plus I really need to cook dinner tonight. We haven't been eating well at all.

Have a great Sunday!

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10/4/14 1:03 P

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Kay, I've enjoyed reading about your trip in your blog.

Glad to have you back Jen, and Moon, I hope the massage helps!

The chemo center called yesterday with my first appointment, but when I told the woman I couldn't make it at that time because of another doctor appointment scheduled for close to the same time, she said she'd have to go talk to someone and call me back. She never did call back so now I have to wait til Monday. You'd think they would be prepared when they call in case someone has to reschedule, it's like they don't think we have lives to have to work around.

At least today I am getting a break from the fatigue and pain issues, not feeling 100%, but better than I have felt all week! At least I can do something productive today.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/4/14 12:05 P

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I wore them to one of my last appts with my plastic surgeon and he laughed out loud. The nurses all loved them and even brought in the receptionist to take a look. It's a good thing I'm not shy. They made me smile the whole 45 minutes it took to get to the appt anticipating everyone's reaction and enjoying my own idea of beauty. And then when I told my husband I got nipples he was more than curious and laughed too. It was fun. I always like to break the ice with people and see them smile.

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10/4/14 11:30 A

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TEEEEHEEE... rhinestone stick-ons!!! LOVE IT! My girlfriend and I were kicking around opening up a business making stick-on nipple prosthetics. Mostly NOT ones that look like nipples.... my favorite idea was Mr. Yuck. :-) But you know, you can go really crazy--there are a MILLION things to paste on those puppies!! We laughed for hours coming up with everything under the sun, donuts included. Made me laugh, Moon... Have a great weekend--I hope the massage helps!!

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10/4/14 11:17 A

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I would have to wear my rhinestone stick-on-tattoos to a nude beach, the nipple ones, if I wore nothing else! Uh, I don't see that happening in my future, but I might walk around in the house like that when we crank up the Buck stove. It's getting chilly in Ohio. It was raining some ice a few minutes ago, and yesterday it was in the 70s. Welcome to fall, in temperatures anyway. The wind blowing makes it worse. I wouldn't run in this even if I could. It will be all I can do to get up the post office steps this morning. Too many aches and pains.

Shari I hope the next phase gets started soon. It's hard to be patient when you've been a patient for so long. It's also hard to put up with the gears of progress when they are turned so slowly by some people.

Beckyanne I hope your brother keeps eating and stays on his meds. I hope your new job is better than the last, and that you feel better each day. Someone told me that days go by so live your life... Keep on , keeping on!

I wish I was on that trip with Kay! I am getting a massage this afternoon to see if I can get moving better.


XOX emoticon

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10/4/14 8:59 A

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Ah, boy, I've missed you all....

Becky--I sure hope you and yours are feeling better. Kay--sigh... it sounds like you're having a magnificent time! I cannot wait to retire down that way; you're description is sealing the deal for me. :-) Moon--I managed to run 3 of 5.6 miles and am appropriately SORE the past couple days for it. :-) It's a good sore, though. Shari--grrrr on vacationing receptionist, but glad it's back on track and hoping for minimal side effects....

He managed to get a smaller expander in before he reclosed me, Kay, and I was very surprised to see it (I had luckily NOT gotten any infection in those days it was exposed. Whew!!) A bit lopsided at the moment and looking like Frankenstein, but that's all okay. (Honestly, if it were to come down to doing a flap procedure, chances are I'll skip it. I'm so over these beasts!!! But I have a solid year to make my decisions about that--I don't reckon we'll be touching these in any way for another 6-8 months).

My fiancÚ and I will be hitting Costa Rica in January and he's mentioned hitting a nude beach to freak everyone out. :-) :-) I think it's a charming idea!!! (And funny!)

Love to you all!
Jen

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10/3/14 6:34 A

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Kay-sounds wonderful!

Shari-it's always hard to wonder why they aren't more thoughtful about patients feelings. I hope you hear from them soon.

Rain and cold and windy today. Got soaked yesterday when I got groceries. A chance of snow showers mixed in overnight tonight.😢

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10/2/14 10:44 P

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Hi Jen, That was quite a hiccup! Were they able to keep the TE in or replace it? Don't worry about being a "fair weather friend". You have had a lot on your plate. Congrats on finishing rads. That ended up being quite an accomplishment!

I'm sorry I've been MIA. We started our month-long road trip on Sunday and camped the first three nights with no internet. So far, we have been to Memphis, TN (saw the Memphis Zoo), Hot Springs, AK (got traditional hot springs baths and massages), Fort Smith, AK (stayed at a beatiful park there on the lake), Amarillo, TX (stayed in first hotel) and Taos, NM (we planned on camping tonight but it's getting down to 27 degrees here so checked into hotel). I've never driven through this part of the country. It is breathtakingly beautiful. I love the plains, the mesas and the mountains. The aspens are turning right now and it is awesome. I am so grateful to be on this trip that I literally cried (sobbed is more like it) tears of pure gratitude and joy when we entered New Mexico and I saw how beatiful it is here.

I feel almost unspeakably grateful because I'm so aware that there are women that were diagnosed the same month I was last year that have already lost their battle. I just want to absorb and embrace every moment of this trip.

I'm hoping things go well for all of you, particularly Shari as you start your new chemo.

Hugs to you all.
Kay

Kay from Tennessee



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10/2/14 4:25 P

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Jen, so glad to hear from you! I'm sorry to hear about the complications from the radiation.
Take it easy too while you are anemic; rest when your body needs it! I am anemic most of the time myself, and I really pay for it the next day if I overdo it. I know it feels great to have some time without doctor appointments too! My entire summer felt like it was all medical appointments this year, with having 1-3 appointments almost every week.

Becky, glad you are feeling better!

I called my oncologist's office yesterday to see what was going on and why I haven't been scheduled to start the chemo yet. I was told that the cancer center is waiting on a letter from my doctor, but it didn't get sent out because the person that is in charge of that stuff was on vacation. I don't understand why it wasn't taken care of before she left, or why someone else didn't cover for her and do it, but anyway, I was told she would be back today and then the letter would be sent out. I expect it will be 2-3 more days yet before I hear anything.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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10/2/14 7:18 A

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Jen-Sorry to hear you had to go thru that. I'm used to complications so I totally understand.

I'm feeling alot better today. My kit arrived yesterday so I can send a BM sample to the health dept. to hopefully identify what made us sick. My DH and niece were the last ones in our group to get sick.

I work this morning and then I have to come home and start cleaning and moving stuff. I'm having carpets shampooed tomorrow morning. It's suppose to rain too. In fact, it started raining yesterday and is suppose to continue till Sat. Plus it's much cooler.

Have a nice Thurs. This week has flown by!

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10/1/14 1:04 P

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Wow Jen! No wonder you haven't been online with us. I'm glad to hear the worst is over, not counting getting those stitches out! I'm also glad to hear that you heal well! Seriously no more of that is needed on your road to wellness. Enjoy your walk and watch your step. You don't need any more bumps in the road. Really good to hear from you!

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10/1/14 12:49 P

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Beautiful ladies!!! I have been away far, far too long!!
(Got cranky--guess you could call me a fair weather friend. ;-) ;-)

Quick update: made it through my radiation but not unscathed--everyone was too aggressive (PS and RO). I started 6 weeks post BMX, 1 week post last fill (PS hit me with about 400 ccs in the course of 4 weeks right before radiation started). I was stretched a bit thin and broke wide open--exposed expander and all (scary 4 days--because of course it happens on Saturday of a holiday weekend, right? LOL!) It's called an extrusion from what I gather from the folks who have never, ever seen it happen before. I suppose I'm special. So.... took me quite a bit longer than most to finish rads what with the impromptu surgery thrown in there and replanning 4 times, but I got all 28 treatments in and finished yesterday. My skin looks pretty good, I'm really anemic, and I'm very glad it's over with. YIPPEE! I can look at getting sutures out next week--they've been in 25 days and the skin's grown over them. This will probably be great fun.... teehee. (What an obnoxious bunch of silliness treatment gets to be, doesn't it???)

I was very bummed out--not accustomed to hiccups in my treatment (I guess I was spoiled). It threw me for a real emotional loop. But I'm much better these days....

I think I'll go for a bit of a walk-jog (we'll see how that goes). Today is the first day of no doc appts in over two months!! I'm enjoying it.

I miss you all--hope you're well. Caught up a little bit but have much reading to do yet!!

Much love,
Jen



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