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BEBARB149's Photo BEBARB149 SparkPoints: (45,182)
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3/20/14 11:15 A

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Glad to hear he's home. Hopefully he will grow quickly and get strong.

Achieve success in any area of life by identifying the optimum strategies and repeating them until they become habit - Charles Givens


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NELLIEC's Photo NELLIEC Posts: 37,181
3/19/14 8:05 P

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Since baby birds eat a lot and grow quickly! emoticon

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

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BRAVELUTE's Photo BRAVELUTE SparkPoints: (80,637)
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3/19/14 6:16 P

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Here's hoping he eats like a bird and is soon ready to fledge.

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NELLIEC's Photo NELLIEC Posts: 37,181
3/18/14 12:40 A

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Thank you. Today he finally got to come home. He is still very tiny. I am glad Catherine is an RN so hopefully that will help her to be calmer. He had to have some kind of supplement added to the breast milk she was pumping in the hospital and that finally gave him enough energy to do better.

I suspect she will be watching him like a hawk until his growth takes off.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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BRAVELUTE's Photo BRAVELUTE SparkPoints: (80,637)
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3/18/14 12:19 A

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I popped in to report I had scored 50 points for the team, and noticed the discussion about little Eric. Nellie, my prayers are with your family.

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NELLIEC's Photo NELLIEC Posts: 37,181
3/9/14 9:32 P

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Wow, 1 lb.! That is so encouraging. Catherine is concerned since little Eric isn't eating much and is very weak at this point. I am praying that he gets more energy and eats better.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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BEBARB149's Photo BEBARB149 SparkPoints: (45,182)
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3/9/14 11:29 A

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They are so well with small/premature babies now. I have a grand niece who was only 1 lb. at birth and now she's a happy energetic kid who can't wait to start school next year. Hope things go well for your daughter and her son.

Achieve success in any area of life by identifying the optimum strategies and repeating them until they become habit - Charles Givens


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SAGELADY2's Photo SAGELADY2 Posts: 406
3/8/14 2:39 P

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Prayers for everyone's safety though this.

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NELLIEC's Photo NELLIEC Posts: 37,181
3/8/14 2:22 P

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My family is all excited since my daughter Catherine is in the hospital having her labor induced to have her baby boy. We know that he will be small, and the doctors decided that since her blood pressure was going up, it would be best to deliver him and make sure he gets sufficient nourishment. His placenta somehow ended up right over a fibroid tumor, so that has messed up how well the placenta delivers nourishment. They are figuring he is somewhat over 4 lbs.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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BEBARB149's Photo BEBARB149 SparkPoints: (45,182)
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12/15/13 10:57 A

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Welcome back. It sounds like you've been through the ringer. Nice that you lost the weight, but there are easier ways to accomplish that. ;-D Hopefully it's all good now and you won't have any more hernias or surgeries of any kind.

Achieve success in any area of life by identifying the optimum strategies and repeating them until they become habit - Charles Givens


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SAGELADY2's Photo SAGELADY2 Posts: 406
12/15/13 10:40 A

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OK, I'm officially back. I had to take the time off to just concentrate on healing. Long story short, had the surgery, was in the ICU for a few days, had to go back for a second surgery due to infection, got pneumonia and finally got out 2 weeks later. Had 3 huge open wounds on my abdomen and a wound vac for 2 months and some change. I finally got down to one wound and the vac was d/c a week or so ago. I'm doing wet to dry dressing changes now on the wound line from the last two wounds.

I went back to work about a month ago and have been working from home the whole time. I stop by the office to do major printing and letters. Just started walking with Dixie this week - I'm up to two blocks. My last weight was down almost 20 pounds from pre-surgery which was great. Got my fitbit back on today and am ready to get back to getting my body re-conditioned.

Welcome to the new members and glad to see you here! Gotta tell you, this surgery was a bear. Do everything in your power to prevent hernias. I've got mesh now from my pubic bone to just below my rib cage extending to each side by the pelvic bones. The entire abdomen had to be re-built. Which is why the infection happened. The ostomy site side was the best healed, it was the other side that got the fat necrosis and had to be re-operated on. Thankfully, I was still in the hospital when it happened. My lungs are still recovering from the pneumonia and I just got over the flu so I'm still pretty weak.

So, not much else to report on this end. Happy it's basically over and I'm getting back to life.

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BEBARB149's Photo BEBARB149 SparkPoints: (45,182)
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11/19/13 10:18 A

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I have an ileostomy, so no more colonoscopies for me! That's one on the plus side. Now I just have the chore of emptying and changing my "appliance." All-in-all, better than constant ulcerative colitis flair-ups, the related arthritis, the tiredness, the pain, the accidents, the purpura (although watching my body paint tattoos on itself was kind of fun),taking all those pills all day long, the dreaded PREDNISONE, and (almost hardest of all) trying to reason with a GI doc with a quick temper.

Sometimes when the bother of having an ileostomy gets me down I have to remind myself how much better life is now. Sorry about the vent.

Achieve success in any area of life by identifying the optimum strategies and repeating them until they become habit - Charles Givens


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NELLIEC's Photo NELLIEC Posts: 37,181
11/18/13 6:38 P

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Between the "cleaning out" and the instrument up there, there might be some unsettled feelings until your innards settle back down. I will pray that you feel better soon!

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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BEBARB149's Photo BEBARB149 SparkPoints: (45,182)
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11/18/13 5:51 P

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Hope all went well. Don't know which prep you used, but any of them can be disruptive to your systems and leave you a bit dehydrated. Some Pediasure might help. Take it easy for a day or two until you're back in balance.

Achieve success in any area of life by identifying the optimum strategies and repeating them until they become habit - Charles Givens


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11/18/13 2:29 P

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Went for a colonoscopy today. Funny. I don't feel as healthy today as I did 2 days ago!! I'm sure I'll come back, though. . .

Hope you all have a healthy week.



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BEBARB149's Photo BEBARB149 SparkPoints: (45,182)
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10/31/13 11:23 A

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Happy Halloween, all! emoticon

Usually I buy candy that I don't like to hand out to the kids, but this year I picked up a bag of mini Kit Kats and another that has Laffy Taffy in it, without thinking. I've had my cousin hiding them from me, but he has to work tonight so this is going to have to be a free day for me. I'm going to eat fruits and veggies all day to try to fill myself up so much I don't want the candy, but somewhere deep inside I know that although being full of good stuff might help a little it won't keep me from the candy! Oh well!

Achieve success in any area of life by identifying the optimum strategies and repeating them until they become habit - Charles Givens


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NELLIEC's Photo NELLIEC Posts: 37,181
9/25/13 12:50 A

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OK, I put a picture of Catherine and her husband at their wedding in the photo section of my SparkPage now. emoticon

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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NELLIEC's Photo NELLIEC Posts: 37,181
9/23/13 7:45 P

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Hmmm, I'll have to go to FaceBook and get at least one.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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BRAVELUTE's Photo BRAVELUTE SparkPoints: (80,637)
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9/23/13 6:39 P

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Awww! You'll have to post a pic.

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NELLIEC's Photo NELLIEC Posts: 37,181
9/21/13 10:03 P

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This evening my daughter Catherine and her fiance got married. He is a nice young man in the Army. They were so sweet since they were crying during saying their vows and were dabbing each other's faces with Kleenex.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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9/21/13 9:19 A

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I know the last thought on your mind will be your SP friends on this team, but, keep us posted next week if possible. You will be in our thoughts and prayers.

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9/21/13 9:17 A

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https://sites.google.com/site/hernan
do
ostomyassociation/home/2013-newsletters


I post my support group newsletters at this site. I thought the newsletters, or other links on the website, might benefit someone.

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9/21/13 9:11 A

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Praying for a super surgery!!

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NELLIEC's Photo NELLIEC Posts: 37,181
9/18/13 5:50 P

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I'm glad to hear you are excited and ready to get on with it. By any chance is there some relative to check on your hubby and the things that need to get done in the house?

I am praying for your surgery!

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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SAGELADY2's Photo SAGELADY2 Posts: 406
9/18/13 2:52 P

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It's next week. The secretary will call me back by Monday at the latest. Neither doc batted an eye at my weight. wow. They also both said it was too serious to let go any longer too. The guy who is doing the hernia repair(s) said he wasn't bothered if the colorectal guy had to do a temp loop ileo. It would be no big deal with the repair - which was comforting.

So, I'm excited and ready to get on with this. Getting meals and supplies ready - working from home and taking it easy. I'll use my fitbit to track my walking in the hospital. :-) Going to just calm down today, sit in the backyard with Dixie and enjoy the flowers and breezes. I should be good with supplies and will be happy to donate to our local ostomy group here in St. Louis.

Hubby on the other hand is still a basket case. He asked the doc all the same things I had told him over the weekend. I asked him if he was satisfied that he got the same answers from the doc that I gave him, he said yes...but he's still scared to be alone for a week. Funny. I know he'll eat out even though I make meals for him. I know he'll sleep in his clothes and not do laundry. Or change the catbox or take the garbage to the curb. I know this. He's lost without me around. Oh well.

So, good news, and soon to be reconnected in some way, shape or form. :-)

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NELLIEC's Photo NELLIEC Posts: 37,181
9/15/13 5:57 P

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I am praying! Wow!

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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SAGELADY2's Photo SAGELADY2 Posts: 406
9/15/13 11:38 A

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I know I've been MIA for a few months. Lots has gone on. We finally are moved in and settled. Life is getting there. I grew 2 more hernias during the move and last week they got incarcerated and I couldn't get them to reduce. Went to the ED after trying to stay at work that morning. Got admitted and the doc manually pushed it all back in. OUCH!!!! It was a horrific visit to the ED - I lucked into a 4th year resident who was a total jerk. Total. He lectured me and basically said no one would operate on me since I smoke and I'll wind up dying - so there. This crap went on for 15 minutes. I was in tears, told my husband to go to the nurses station and tell them I'm leaving. The NP came in and talked me out of it.

I decided to change surgeons - I really didn't want to, but mine had diddled around until I'm in super bad shape. I met with a new one last week. He was good, caring and had a plan. I meet with his partner next week who will do the abdominal wall reconstruction (yes, it is that bad now). I am going to start the patch tomorrow. Prayers for my success will be appreciated. This is hard right now since smoking is the only thing I use for stress relief. I know he'll say I need to be off the patch since it has nicotine in it, but for the first week I want a crutch while I get my work stuff in order so I can leave with a clear mind that nothing is hanging out.

The next few weeks are going to be touch and go as far as making it. I am doing everything in my power to prevent it from incarcerating again. Wearing a binder 24/7, living on laxatives, no solid food - just protein powder and blended veggies. I've got a huge prescription of pain pills. Man, I'm spooked.

The surgeon said he hoped my stump was in good enough shape to reconnect, if not, he'll connect and do a temp loop ileo and I'll come back for the reconnect after a bit. The major part of the surgery will be fixing the hernias. And if he has to do the ileo, the reconnect will be much harder to do around the hernia repair. The top part of my abdomen is now herniated. 3 different holes. The stoma area is one, one above it and one on the incision.

Can't wait to see what the hernia guy says. :-( So, that's what's up with me. My walking time has been cut out. Poor Dixie is stir crazy now. Hubby and I are trying to figure out how to fit it into his schedule to walk her. I'm trying to hold off on an order for ostomy supplies since I have a few weeks till surgery. I'm almost out. Well, I guess that covers it. I'm still here, just pre-occupied as all get out. Trying to get the fall clothes washed and out now. Getting all the things set up for after surgery while I can. And no lifting, bending or moving so I have to do it when he's home. On the weekend. Crazy.

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NELLIEC's Photo NELLIEC Posts: 37,181
8/18/13 6:41 P

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I understand somewhat more.

It does sound painful!

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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8/18/13 6:26 P

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Well, I'm probably not enlightened enough myself, but this is what i think I know.
I developed granulations or red bumps around my stoma, up close. I thought they were actually part of my stoma. They never bothered me, but did bleed slightly when changing pouches.

So the WOCN at the stoma clinic said I had granulations, should cover them--my precut opening had become too big. She applied an eakin ring and a new pouch and sent me on my way. That set up leaked after 2 hours. I returned and we put the eakin ring right up next to the granulations with a convex pouch and that held until I saw the surgeon.

I guess granulations need to be cauterized, and they do that with colloidal silver.

He used what appeared to be a wooden skewer tipped with the yellow colloidal silver on the end. He touched it to the two major granulations, on on each side of my stoma. It felt like a burn. And it was. Because I was in his office and didn't do a good job of removing the adhesive from the eakin ring and the convex pouch, I had to change the pouch again later that day and got a look at it. The treated granulations had turned black.

Have you ever had a dermatologist use liquid nitrogen to freeze a sun cancerous spot on your skin? I've had my bottom lip frozen twice. This was much like that. And it remained painful from Wednesday to Friday. Now it only is ornery if I touch it.

I probably wouldn't have noticed it as much if I still had my first ostomy site, but this one is right at my waistline where the bands on shorts run right over it.

The granulations were soft red bumps that looked like smooth warts about 1/8 to 1/4 in on the largest.

That's all I know. If you are suspecting something like this, see your WOCN or surgeon. i went looking for pics or more info on the web. I notice that gastro feeding stomas and tracheotomy stomas also develop granulations. i believe any wound develops granulations, even a scab might be considered a granuation an one time in the healing process.

It's just that the ones i had weren't healing because of constant contact with output.

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NELLIEC's Photo NELLIEC Posts: 37,181
8/18/13 5:41 P

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I haven't heard of using colloidal silver for stomas. Can you enlighten me?

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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8/18/13 8:59 A

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I went to the stoma clinic at the convention to make sure it wasn't closing up on me since it was noticeably smaller. 1.25 inches for 4 years and now 7/8. Just losing weight? don't know.

The nurse didn't think it was closing but I had granulations arount the edge that she thought my srgeon would need to fi with colloidal silver. So I make an appointment for last Wednesday. He thought everything looked great but used the colloidal silver on two spots. I wasn't prepared for that and I've been rather like a wimp for a few days.

Comparatively speaking it was a piece of cake compared to the original surgeries. I guess I was just in need of some down time. But it's time to quit feeling sorry for myself and get going again.

I walked this morning as the sun came up. And today is Mom's birthday. 88. Longevity does run through a strain of family members on her side. Despite the fact that she eats a McDonald's fish sandwich with extra tartar sauce every day for lunch, And very few fruits and veggies. She is still going strong and has requested that we take to out to dinner at Golden Corral.

Thankfully, it has gotten easier to stay on plan with all the fresh fruit and veggies on the salad bar. If I can just stay away from the chocolate cake!!

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8/5/13 12:18 A

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emoticon

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They are talking about a civil ceremony in September and then a more formal celebration about a year from then.

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2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
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8/4/13 11:38 P

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When will we hear the wedding bells?

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He is supposed to arrive a week from today to this area. I will be looking forward to seeing him and so will his dog Caspian that I have been caring for.

Yesterday I got some exciting news. My daughter Catherine is engaged to a nice young man in the Army!

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2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
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I can't imagine finishing school today and trying to get a secure job for a long term career. Do those kind of jobs even exist anymore? Let's pray that a different, even better door will soon open. In the mean time, those temp summer jobs add to the resume, and broaden his "web" of contacts, of people who know his work ethic and would be able to refer him if a position ever opens up unexpectedly. Maybe he'd be the next "shoe-in" while they had to advertise anyway.

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The last couple of days I am focusing on the fact that my oldest son will be coming to stay a while in my area. I will be glad to see him, but I am feeling sad that he feels very defeated since he has been sending out job applications and has had no bites. He was really hopeful about one of them that he is super qualified for, but didn't get. His friends on FaceBook were comforting him by saying it was probably one of those that was required to be publicly listed, but that probably someone was already lined up to get it. Not only that but there seem to be no openings nowadays in his field (biology) that are not just summer temporary jobs. That doesn't support someone all year long!

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2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
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Is anyone going to the UOAA convention in Jacksonville in August? I'll be there Tuesday - Saturday. Can't wait to get to hear Brenda Elsagher again.


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5/19/13 4:38 P

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I'm thinking my local hospital is doing OK since they just finished some major renovations.

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2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
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Quick update on life over here. Major layoffs beginning at my hospital system over the next few weeks. Everyone is on pins and needles. All but one hospital are losing money, big uptick in "no pay" admissions. Sigh.

Weight I gained from the med switch is coming off now. Still working around both hernias and the RA flare that won't quit. Getting some house cleaning out done w/ hubby. Moving to more veggies and fruits. That's going very well.

Everything is green and beautiful outside, but all the pain in the butt stuff is coming up too. Poison ivy, honeysuckle - things like that. Which means today is run the shredder and cut down all this nastiness. Hubby will have to weed eat the poison ivy since I break out looking at it.

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4/24/13 3:54 P

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I agree on that. I sure hope nobody's hospitals get closed. I got a call from mom yesterday. She went back to the nursing home. She has a nerve pinched in her back and pain meds not working. I hope she doesn't need her back fused together again. That is always possible when her osteoporsis is that bad. I am glad she went back due to the fact she can't take care of herself. I live 600 miles away. She shouldn't stay at home alone when she is unable to wipe her butt when she does to the bathroom. She can't wash herself. I get weary from her wanting me to come down and help or being told how good her friends are when most of them can't stand her. They are just using her for her money. She is getting greedier than she has ever been. I try to focus on positive and not so much negative.
Ma thinks of what danger lie ahead. I think of living life and enjoy and not think of all the bad things in life.

Edited by: LORNE67 at: 4/24/2013 (15:57)
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4/23/13 11:28 P

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We are getting 3 days this week of warmer weather. The first 2 are almost gone and I managed to get some lawn mowing done. Tomorrow is the last one predicted, so hopefully I can get some more done.

Today I got spooked a little. My chore worker had left, and my daughter had called to say she would be home late. All of a sudden I heard the water turn on hard. It sounded at first like it was upstairs, and I hadn't heard any steps going up the stairs, so I went up and checked. Nothing was turned on there, but I still heard the water sound. So I went outside and around the back of the house and sure enough a hose had burst, since someone had not turned off the hose at the spigot, but had just turned off the water at the nozzle. Not that I blame them, since the spigot is under a deck and one has to bend way down to get to it. I walked all bent over and managed to get it turned off.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
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4/23/13 12:01 P

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I am looking forward to warmer weather also. April can give us a mix bag of weather but this year is really been something. Our dairy cows even have spring fever, they run and jump and play when supposed to out eating. emoticon

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4/19/13 5:04 P

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Lorne - It's good you are getting mileage out of the Humira. I hated the sting when I injected it. Ouch. No matter what I tried, it still hurt like crazy.

Just got word our hospital system is downsizing (laying off) shortly due to Obamacare and low census's across the board. Looks pretty bad. I hope it's not closing down any hospitals (mine especially), but you never know. The people who know are already spooked.

Going to have an enjoyable weekend, as much as I can. Despite shorts/t-shirt and 80+ on Wed. and snow this morning after 4-5" of rain yesterday. Looking forward to settled warm weather.

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4/18/13 6:26 P

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More energy sounds great!

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

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Leader of DNA -Diabetes, Nutrition & ACTION team

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4/18/13 1:37 P

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Thanks for the website info Sagelady. I will have to check it out. emoticon I have noticed the longer I am on Humira,I am getting more energy. I don't feel wiped out all the time. Remicade was still working for me but would always wear off week or so before next treatment. Now with medicine schedule. I don't feel wiped out at the time I get my next treatment. emoticon

God bless you and hold you in the palm of his hand!


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4/16/13 5:13 P

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Did you ever see this website? Amazing information on food.
nutritiondata.self.com/facts/vegetab
le
s-and-vegetable-products/2631/2

I can't do a screen shot, but this has a TON of into on every food. Like glycemic load, inflammation factor, all the minerals..easy to read and pretty cool. I picked spinach for an example. Take a look.

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4/15/13 11:13 P

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Thanks for the info. I wound up going back to my old meds. I began a flare last week that's still going strong. Hard to walk, stairs are impossible, jaw is locking up. I called my doc and begged him to change it back and we'd figure it out later.

So....I've been blending my veggies as well (thinking alike here???) I didn't get the bullet, just my very old Oster that is a workhorse. Pushing more and more veggies and just a bit of meat. I gained almost 10 pounds from the med switch and flare (all water). My body was screaming for veggies and fruit so I've been blending up a ton of stuff. Protein shakes w/ spinach and black cherries, tonight made a fake cherry ice - well blended frozen cherries w/ almond milk and some frz. blueberries for a treat.

Cabbage, spinach, tomatoes and carrots for lunches. Peppers tonight with cauliflower, carrots and onions. Yummy.

Just motoring on...not much energy or spunk till the flare leaves and I am NOT taking extra prednisone although it surely is tempting. Hate the stuff and even though I have to take it daily, when I bump it up for a flare I tend to eat the house and neighborhood. Hoping it clears soon as the days are getting warmer. I miss my walks.

Oh, I do track my food and potassium. I almost never get up to 3000. I try... will keep working on it.

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4/15/13 9:20 P

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Sage lady, do you track your food and specifically sodium and potassium on the nutrition tracker here? I am ALWAYS above potassium requirements at the end of the day with all the fruit and veggies, and if I happen to add in a little meat, watch out!!

Potassium, K: 2,500 - 3,500 3,156 1,498 3,358 4,130 4,176 3,853
3,602
Sodium, Na: 500 - 1,900 794 1,735 1,301 1,157 641 801 709

You are welcome to look at my food log, but it doesn't show all the little nutrients that I track, so I copied this weeks potassium and Sodium from the chart and pasted it above. So you can see if that would help you.

Edited by: BRAVELUTE at: 4/15/2013 (21:29)
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4/15/13 9:17 P

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You might have noticed on the friend feed that I bought a NutriBullet and have used it for 2 days. It seems to be my answer to my difficulties eating raw fruit and veggies. And I love what I'm drinking and eating. I bet the nutrients that are finding their way out to all my cells are going to bring wonderful things to my health that I never thought would be possible!! We'll see.

But I know this, right now. I haven't felt this good in YEARS!!!

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3/31/13 4:29 P

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It probably depends on how much salt is naturally in the foods you eat. I know ham is very salty! The only thing I add salt to is my breakfast eggs and then I use Lite Salt which I have used for over 40 years now since it has a balance of sodium salt and potassium salt.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
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3/31/13 8:07 A

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It's been a crazy few weeks. Still not given the official "go" at my work. It turns out that their is a person who has to say we're ready before we start, even though we've passed the certifications, training and such. We're sitting on our hands so to speak while we wait.

Just busy doing as much as I can so I'm not hopelessly behind. Getting the yard in order, helping hubby scour the job market (that's UGLY) and taking my outdoor life back.

My doc changed my bp meds and took out the diuretic since I was low in potassium. Now, I'm fighting swelling and the side effects of the new meds. Spent a week with a constant migraine. It's generic cozaar, same class, different med. He added potassium to it. It was pretty nice to have energy and muscle stamina again. Downside, the headache and insomnia. I had a 60 hour workweek and no sleep - not good.

I woke up this morning after getting into the Easter ham yesterday for breakfast and lunch with a nasty case of face puffies. I HAD been supplementing my diet with salt (adding to foods) before to help regulate things but I can see that won't work now. :-(

Spending a lot of time getting the diet back in order as well. Got tons of fresh veggies yesterday at the store. Except for the ham and a pound of hamburger, it was all fruits and veggies. Oh, I did get some turkey bacon to try that is low sodium.

Tomorrow is rain and snow then back up to warmth. We had over a foot of snow last Sunday. It's almost all gone now. Today is more outside work. Sunny and nice.

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3/11/13 12:31 P

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Remicade doesn't work for everyone! They never gave me a port.

God bless you and hold you in the palm of his hand!


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3/9/13 9:04 P

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What a relief that your skin ulcer is gone! And getting 3 days wear is really nice!

When I had Remicade treatments, I had a port. But they didn't do a thing for me. (I wonder if my doubt had anything to do with that. I just had a feeling they didn't really address the problem.)

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
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3/9/13 12:53 P

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I am glad I am able to use the TNF blockers. I got over 9 years out of Remicade before it was starting to wear out. I am still feeling better with the Humira so far. My body was getting worn out with all those ivs and I was too. It would have been different if my veins were easy to find but not such thing exists for me. I am third generation of women with bad veins. I am glad for shots for a change. Good news I haven't had any leaks since Wednesday. I am glad I seldom get them anymore but it is still agrivating.

Congratulations SageLady2 on getting degree!! Glad to hear your skin ulcer is gone. I know and understand the not eating right. I was doing good yesterday until hubby wanted cinnamon rolls for morning. I made and ate four. I was so craving sweets.

God bless you and hold you in the palm of his hand!


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3/9/13 8:32 A

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Good news on the Humira. I took it for a while too. My body was too smart for all the biologics, after a month or two they stopped working. But, I'm an odd ball. :-)

I'm FINISHED!!!!! Well, one more session that got cancelled because Boston was shut down. But the tests and classes are finished. I passed with flying colors.

Now, to get back to eating right. I need a hair on fire icon. Let's just say I've eaten anything that wasn't glued down. Until last night, it was just after dinner. Yesterday, I started out at Burger King for breakfast and wound up cozying up with candy bars and chips late last night. I figured it was a combo of relief and hormones (although I surely don't have that many left).

Skin ulcer is now gone! I also got 3 days wear this week. Putting the house and myself back together this weekend.

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3/8/13 11:49 A

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Thank you Bravelute. emoticon

God bless you and hold you in the palm of his hand!


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3/7/13 6:24 P

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That's great that you found relief, and that insurance is taking care of it!!

I know just being without pain enables you to do so many things you couldn't before.

I'm very happy for you!!

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3/7/13 6:03 P

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It is wonderful to have pain relief!

Hate leaks, but I am glad the rest of your day was better!

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
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3/7/13 3:53 P

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Things got off to a really bad start for me getting on Humira but that matter got fixed. My doctor's office provided free samples for my starter dose. emoticon I didn't have to charge over $4300 to my credit card. I still have to pay up front for the maintenance dose but will get discounts. I am in the part of the year where my insurance company will reimburse me 100%. The pay out of pocket first would have been really tough. I had the Humira yesterday for the first time. My doctor determined I could skip the 4 dose starter and use the 2nd week 2 dose for a starter then 1 dose every other week. So far, no reactions. It feels great to have the pain relief in my joints. Yesterday started off with a leak but my day got better!!

God bless you and hold you in the palm of his hand!


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3/2/13 6:05 P

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Sounds like things are looking up. For the both of you. I hope the job is something your husband will be happy doing. Not sure I'd like 2nd shift, if I'm understanding that right, but right now, any shift is better than none.

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3/2/13 5:48 P

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Wow, it is wonderful that your pain is gone!

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
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Leader of DNA -Diabetes, Nutrition & ACTION team

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SAGELADY2's Photo SAGELADY2 Posts: 406
3/2/13 10:17 A

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Hi everyone. I almost completed my CPT coding class. I have 2 more chapters to take and test - then I'm done. That said, I begin my "official" training on Monday. Twice a day on the internet and phone. That lasts for two weeks all week, then a day or two a week for the next 4 weeks. I'm so worn out from studying and all.

Hubby has an interview (phone) with a new company this morning. I had no idea they'd call on a Saturday, but he sent an email saying he would. Oh, he just called.

I bought a new pedometer at Walgreens yesterday since I couldn't get the back off of my old one (weird tiny screws). I am getting used to it. I'm also getting back to the walking routine. Feeling very good, just tired from trying to cram in 20 hour days into 12 hours.

I visited my stoma nurse this week to deal with my wear time and breakdown issues. She put on a smaller baseplate and used the skin tac (glue type stuff) on my skin and re-did how I was using my Eakin. The one thing I noticed right off the bat, was that the pain from the skin breakdown and around the stoma is GONE!!! Now I'm seeing how long it lasts, my usual has been 2 days and a leak beginning on day one. I have high hopes this is working well.

He's still talking to the recruiter - apparently he's asking about the job layoffs in the past. Now he's asking about what his long term goals are. Weird (he's almost 60). Talking about times for the interview now. 8pm, (it's for their second shift). Anyway...at least he's made it past the initial phone interview.

Lots to do today, recycling, dog toenails clipped, shopping, walking, laundry, cleaning. Everyone have a wonderful weekend!!! I'll be out of my hunker down mode in 2 more weeks. emoticon

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LORNE67's Photo LORNE67 Posts: 607
2/26/13 2:24 P

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Thank you. I will ask my doctor about it. I will subscribe to spark coach after my free one week trial.

God bless you and hold you in the palm of his hand!


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BRAVELUTE's Photo BRAVELUTE SparkPoints: (80,637)
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2/26/13 8:23 A

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Lorne Can you afford Spark Coach. The part of the program I'm in has all kinds of activities for motivation.

For me, my best motivation is tracking the goals I set for myself, checking them off in the Other Goals tracker. It makes me see that even when the scale is static, that I'd still doing all the things which matter.

Now don't get me wrong, I like to see the scale go down, too, but I still have those stretches when nothing seems to happen.

And we have the added benefit of a medical system that can't seem to fix our temperamental bowels. Drink fluids no matter what!!

I've talked about this, but I don't know if I actually got up and got a packet of the stuff:
"Cholestyramine for Oral Suspension"

It says to mix with water, beverages, or highly fuid foods. May be mixed 3 days in advanced, as long as you re stir. May be mixed in blender or by spoon (but I find lots is left in blender)

It is a lot like drinking a fiber medication.

When I googled it, it said something about being used a while back after gall bladder surgery. Do your own research, and ask your doctor.

It comes in packets of powder which you mix

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NELLIEC's Photo NELLIEC Posts: 37,181
2/25/13 7:33 P

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When I get blood test results, there is always a note at the side which gives the normal range, so I know if the results are good, low or high. Plus my doctor's office always sends me a boring letter saying that I am stable.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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LORNE67's Photo LORNE67 Posts: 607
2/25/13 2:10 P

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I know I haven't been on here for awhile. I finally got over a 3 month off and on diarrhea spell. I think it was stress related. I was feeling good about weight loss but it was caused by the diarrhea. Last week I had gained back 8 lbs. That is sort of depressing. I don't have normal amounts of energy lately. I got my thyroid test results back. I asked a friend to explain them and said it meant I was in the good range. I haven't heard about my B12 test results yet to know if I am low. I am feeling the need for some extra motivation. I have lots of trouble staying motivated. emoticon

God bless you and hold you in the palm of his hand!


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NELLIEC's Photo NELLIEC Posts: 37,181
2/17/13 6:20 P

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Evidently Betty is back in the hospital. They did some kind of test and found that there is a semi-blockage which is only about 1/2 inch or less across. The doctors are seriously talking surgery again probably giving her another ostomy.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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SAGELADY2's Photo SAGELADY2 Posts: 406
2/16/13 3:05 P

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I've heard that adhesions cause most of the blockages rather than a bolus of food (although I did have that one happen to me). Maybe some gentle stretching - like yoga type moves or Pilates would help to break them up. As long as she's out a ways from the surgery, she should be ok.

I think the baby doc who examined me before my doc came in was funny. When I said I'd prefer to wait, possibly until Dec. to do the takedown he said every one of his patients are chomping at the bit to get it reversed. I told him actually, other than the expense of the equipment - this is so much better than the nightmare I was having with my colon before the surgery, I couldn't care less about reversing it.

I'm moved in and will have all my "kitchen stuff" set up at my office this week. Hubby is going to move the apt. sized fridge in that I bought to keep my Humira and Enbrel at the right temps. Since I've gotten off the biologics, it's just sitting there. I packed my bag with cream of rice, crystal lights, tea mixes, pre-portioned cereal, paper plates/bowls and silverware. I will set up some oatmeal in a bit in baggies too. Add lots of cinammon and some splenda. I cleaned out a basket I had to use for a trash can (pretty). Excited to make it my own spot.

Hubby was up this morning and we did a bunch of stuff till he just crashed and burned about an hour ago. I made him a huge omlette and soon I'm going to fix my lunch salad. I ate like nobodies business the last few days so back on the routine now. Slowly adding back in the right carbs again. Well, dryer just went off....gotta go fold and switch loads. Love weekends, I work harder than I do at work.

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NELLIEC's Photo NELLIEC Posts: 37,181
2/12/13 8:01 P

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I just called Betty and she just got home from the hospital. They felt that she had an infected spot though she said they didn't give her an antibiotic. She got something that got her "flowing" and is now home with a low fiber diet. I'm not sure that she won't be going back again, since I don't trust low fiber diets.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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SAGELADY2's Photo SAGELADY2 Posts: 406
2/12/13 6:09 P

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Will pray for Betty. That's too scary. Hopefully it's low enough in the colon that the stricture can be manually widened. Otherwise... yiccchhh. That's one of my biggest fears with a takedown, well right behind a leak.

I saw my doc today and he had his baby doc with him...very nice baby doc (and cute to boot). He even asked about my finger from last year that got operated on. I was impressed. So, I weighed 236. Can't complain since I resisted the birthday suit option. Doc was happy and said he'd be glad to do it at 10 more pounds off. I said I'd like to try for this December, so I straddle two reporting years. I think if I work hard and keep ahead with my abstracting, I can do it. It might require some weekends but it'll be worth it.

Told him about my new job and what I'm doing. He said when does it start and I said, next week when I get there. Good day all in all. Pooped, got up at 4am so I'd finish my 'business' and have time for a shower. The baby doc asked me the flange was freshly changed, and I said yes, kinda like wearing clean underwear. I'd prefer not to have output in the way when he has to look at it, if I can. I mentioned my superman underwear for the hernia and they thought it was a good idea.

Let us know how your friend Betty is doing.

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NELLIEC's Photo NELLIEC Posts: 37,181
2/10/13 9:03 P

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Today when I went to church, I saw a guy whose wife has had an ostomy but had a take-down operation. I was looking around for her but didn't see her. At the end of the service he came over to me and said she wants me to pray for her since she is in horrible pain and can't have a bowel movement. He said as soon as he got home, he would be taking her to the ER. Wow, I am hoping she doesn't have a blockage, but it sounds possible. If any of y'all are praying people, please pray for Betty!

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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BRAVELUTE's Photo BRAVELUTE SparkPoints: (80,637)
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2/9/13 9:43 P

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Besides the clothes, you've had breakfast and at least 2 glasses of water, to say nothing of the coffee, tea, and lunch. All of that adds up.

Plus, every doctor adds 5 pounds to the scale just to make sure we get the point that we need to lose weight.

As if we didn't already know.

Paying it forward at
Eat to Defeat Fat Cells, Cancer Cells and more
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=58578


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