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Living with an Ostomy

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  FORUM:   General Team Discussion Forum
TOPIC:   Do you have Ostomy Nutrition Questions? 


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NELLIEC
NELLIEC's Photo Posts: 35,373
10/27/12 10:25 P

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I'm thinking there must be a strength exercise in the core section that would be very similar that could be tracked.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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BRAVELUTE
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10/27/12 10:08 P

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Well, I understand a lot more now. Thanks for sharing. How exciting that you might be a great candidate for reversal. No chance for me. But that's just fine. Like I said, i forget I even have it.

Abdominal muscles?? My physical therapist (at chiropractor) had me suck mine in for 30 seconds on, 30 seconds relax while lying on my back. 5 reps. The first time she had me do that, I was so startled that I could even do it. I thought all my belly muscles had gone south. I now do that before i get out of bed every morning. I guess I should track that. (; ] Do you think that's something you could do?



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SAGELADY2
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10/21/12 11:16 A

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Just my experience - I discovered when I started Atkins and cut out bread my joint swelling from RA went away. I went back and forth testing it out and each time I went for more than a day eating gluten, my ankles, knees, hands and ribs swelled uncontrollably. I moved on from Atkins to a more Paleo type diet and have had no issues as long as I avoid gluten.

That said, I LOVE bread. :-(

To the OP, I have a colostomy and there is a kink right at the end below the stoma where food can get lodged. To complicate matters I have a good sized peristomal hernia that sweels enough to cut off the stoma completely. OUCH!!!! I have to eat rather like an ileo than a proper colostomate. Stool softeners every day and make sure I chew, chew, chew. I usually cut up veggies if they are raw into tiny pieces and then chew them to death. There are some I just cannot tolerate though and no matter how much I chew, they come out the same.

I've gotten spinach down pat and that is my salad mainstay. Lettuce for some reason blocks me badly. Just the cellulose structure remains but it balls up and won't go through. Had that happen a few times. Cauliflower is great raw and cooked. Haven't tried broccoli raw though. I'm eating pretty simply now and limiting calories.

I take a preg. multi-vitamin and tons of Vitamin C and D. Extra B complex. I'm on prednisone for the RA and have been for almost 15 years. I am going to start tapering it soon (my original plan was to start last month but life got too crazy).

I keep the protein pretty high and make sure I have a balanced diet as much as I can. I check the bag for undigested stuff and then learn what is and isn't working. My transit time has slowed finally to a bit over 24 hours. The surgeon took the sigmoid and a good part of my descending colon.

I'm working at getting my body in as good of a shape as I can before my takedown. I work closely with our colorectal population cases at the hospital and know the issues I face if the anastomosis fails. I don't want to be the subject of my docs next M&M. :-) (oh, Mortality and Morbidity meeting where they discuss cases that went south) So, I know that getting off the pred, losing weight, building muscle in my abdomen, getting good nutrition and supplementing with vitamins will get me there.


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NELLIEC
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10/21/12 12:07 A

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I don't have any websites, but it would make sense that some of the swelling might diminish with a different type diet. Also perhaps the altitude might affect your body.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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BRAVELUTE
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10/20/12 11:00 P

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I'm just catching up. I know there was not a "swelling" problem, but it still interested me.
My chiropractor noticed one calf was larger than the other, 3 inches. My primary sent me for ultra sound and the normal things like blood clots, etc. were ruled out. He decided it was due to varicose veins. I got the compression stockings and noticed no difference as long as I was in Florida.

During the last 3 weeks in the mountains of NC, I could see a huge difference, and the stockings which used to be very difficult to put on in the morning, are easy to put on, and fall down during the day.

I thought I was perhaps just losing weight, but I'm back home and lost nothing.

So my question is about the possibility that what I'm eating is causing the swelling. I DID eat differently in NC, LOTS of fresh fruit and veggies, and less and less animal and bread as time went by.

Do you have a web site where I could read about this? I'm not even sure what to look for.

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NELLIEC
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10/9/12 3:44 P

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For the most part I cope, but there are times it feels like I am choking. I do try to be careful about what I put in my mouth and the consistency.

I remember that as a child, I was absolutely unable to swallow pills what ever size. I finally learned when I was 18, but it has always been difficult.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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LORNE67
LORNE67's Photo Posts: 576
10/8/12 5:21 P

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That has to be dreadful. Sorry for the misunderstanding. Does it get old having this difficulty? That sounds like a pretty tough issue. emoticon

Edited by: LORNE67 at: 10/8/2012 (17:23)
God bless you and hold you in the palm of his hand!


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NELLIEC
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10/5/12 4:21 P

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Swallowing, not swelling. I have difficulty swallowing my food and liquids. This has been true since I was very little.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


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LORNE67
LORNE67's Photo Posts: 576
10/5/12 1:16 P

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Are you in a flare up that you have so much swelling? Everytime I have swelling I am in a flareup and am miserable. Prayers to you. I know the swelling is very uncomfortable. I get abnormal swelling everytime right before a flareup and during. I know each person's tolerable food is different from another person's. Mine has changed over time also since I have allergies that developed that I didn't have 15 years ago.

God bless you and hold you in the palm of his hand!


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NELLIEC
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9/20/12 4:50 P

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I have an ileostomy. I also have abnormal swallowing and find that if the food is too fine, it is harder for me to swallow. (As you can probably guess, I don't go near smoothies, since even the name puts me off.)

Edited by: NELLIEC at: 9/20/2012 (16:51)
Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


 current weight: -1.0  under
 
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LORNE67
LORNE67's Photo Posts: 576
9/20/12 12:49 P

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Thank you. I also take probotics and other supplements to help. Since my mom has really bad osteoprosis, I had one bone desity scan several years ago. My doctor and I decided I should get one about every 6 years due to having taken steroids. That way we can regularly decide the best course to take. Right now I am taking calcium, Vitamin D supplements and drinking milk and other calcium rich foods in my diet. emoticon

God bless you and hold you in the palm of his hand!


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BRAVELUTE
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9/20/12 10:17 A

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I think that's a wonderful prayer request!!

Paying it forward at
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LORNE67
LORNE67's Photo Posts: 576
9/20/12 12:10 A

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I like your idea for the song. I have an ileostomy since 1997. In that time, I have only had 2 or 3 blockages. I pray I don't ever get any again.

Lorna emoticon

God bless you and hold you in the palm of his hand!


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BRAVELUTE
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9/19/12 9:24 P

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I have the same questions. Ileostomates have more concern with nutrition and sometimes must do special things to get the nutrition they need.

I have been writing nutrition articles and I keep repeating that the best nutrient we can give our selves is called CHEW. Chew, chew, chew, chew, chew. I even gave them a chewing song to hum in their heads, based on the Meow Mix commercial. Where the cats sing meow meow . . . we sing chew chew . . . That helps with things passing through looking like they were still on our plate.

By the way, that happens to others without ostomies.

Do you have an ileostomy or one of its newer cousins?

Paying it forward at
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NELLIEC
NELLIEC's Photo Posts: 35,373
9/19/12 7:00 P

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I am wondering if the fact that our food has less transit time inside affects how much we should eat or not.

Also I wonder if somehow we are losing out on nutrients since it seems that sometimes the food goes through unprocessed.

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
Christ, my all

Co-leader of Christian Women Putting God First (Matthew 6:33)

Leader of DNA -Diabetes, Nutrition & ACTION team

Co-leader of Christian Women Over 65

Co-leader of Shelton Christian Church team


 current weight: -1.0  under
 
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BRAVELUTE
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9/19/12 4:58 P

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I'm giving a presentation at our osotmy support meeting tomorrow. I'm sharing "Eat to Defeat" based on Dr. William Li's video.

It would be helpful if I knew what questions you have about nutrition, as someone living with an ostomy. I've been living with this presentation so long, I'm afraid I'm not thinking clearly. So your questions could be a reality check, to be sure I'm really prepared.

You may send me a private SparkMail if you'd rather not reply here on the discussion board.
Thanks for your help.

Paying it forward at
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ndividual.asp?gid=58578


Living with
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teams.sparkpeople.com/HEALTHY
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Download the Full Plate Diet E-Book at
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 current weight: 171.0 
 
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