Wow thanks for the responses!!!
Its been a while since i have been back here. Had a rough few weeks and just havent really done much of anything. Had a depressive episode for a few days, maybe a week and that just really set me back.
The good news is monday i was to see the new GI. And he is confused as to why i was not getting any treatment yet. So he has ordered another MRI and scopes. Then he said we will discuss the biologics.
I am excited, yet scared. The MRI frightens me. I had one and i have a total and complete panic attack and i know i wont be able to get into that machine again. So i have requested sedation. Hoping that does the trick.
I am not sure how far into the machine ihave to go and really, right now i dont want to know. It would just freak me out more.
I do know that i am tired. So very tired......and sick of being sick. I just want a break from it all. Just a day to feel normal again!
I am always looking for ways to help deal with my Crohns If anyone has any suggestions on what works for them, how you accpeted it, how you deal with it, food suggestions, anything i would love to talk to someone who knows what i mean when i say I CANT leave the house today.
I cant remember who replied about the fistula they had but that i want to say that is crzy!! i was on about 6 different rounds of antibiotics before i saw any relief. Now i just deal cause the meds made me feel worse then the fistula actually does. I have had this seton in for over 2 yrs now....its part of my life.
I did see a dietician at one point. She wasnt very smart. I mean seriously, when i came in she said that she didnt know much about Crohns and would try and look up al lthe answers to my questions......and she did actually search on line when she didnt know things, which was about every second question......sigh.......i dont know if there is anyone different in this area or not but i doubt it.
Ok well the sun is finally shining and i have plans tonite as long as my body works with me and not against me! So again, thanks for all the replies!!!!!
baby steps baby steps
Learning as i go
| current weight: 169.8