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DDOORN's Photo DDOORN Posts: 25,933
3/13/13 9:24 A

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Always a terrific win-win to ride for a super cause such as CF and many others!


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3/12/13 9:09 P

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Awesome! I am the advisor for a student organization and we used to do a CFF Great Strides Walk every year. Unfortunately, we just could never get a good turnout and the students eventually lost interest. It is a great cause and the progress that is being made is remarkable.


Science without policy is still science. Policy without science is gambling.

- Marcia McNutt

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HILLSLUG98239's Photo HILLSLUG98239 SparkPoints: (44,802)
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3/12/13 6:43 P

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I will again be riding in my local CFF Cycle for Life this year. If you live near a ride, I encourage you to consider joining the fun. I ride for a colleague's son who has CFF. When I was his age, a CF diagnosis was a death sentence. Now, half of all CFF patients are 18 or older. Our Cycle for Life even has a rider with CF who does the 65-mile route.

Why ride to raise money for this particular charity? There are about 30,000 people in the US with CF. That's a very small number. I'm grateful for that, but it means that CF research is not a priority for federal grants. The CF Foundation funds more CF research than any other organization. When the Foundation started in 1955, most children with CF died before they were old enough to attend elementary school. Now, there is a drug which treats CF (albeit in only 3% of CF patients), and there are trials to expand use of that drug to other CF patients with different mutations.

I encourage you to visit the CF Foundation's web page to learn more about CF, more about why individual fund-raisers are so important in the search for a cure, and more about the Cycle for Life rides. And if you're in the Tri-Cities, WA, area, I'll see you in August!

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