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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
12/10/17 10:26 P

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Here's what has been happening with me:
Well, I guess the verdict is in. I have had another stroke that is causing the double vision. I had thought it was just a relapse to symptoms from the first stroke but apparently this time it has affected a different nerve. I do not have many stroke factors - never smoked, never drank, never been very heavy; I do have hypertension but it is apparently well controlled on a low dose of medication, no diabetes, moderate cholesterol LDL......who knows what is causing this? This is my second stroke with only visual symptoms. The other two were the more normal, one-sided weakness events.

Well we may know after this week. On Tuesday morning I am having a Temporal artery biopsy, which means they will shave about a 3" square on my head and remove about 2 cm of my artery, then splice the artery together again. In several days we will have the results and the diagnosis they suspect is Giant Cell Arteritis also known as Temporal Arteritis. They have put me on steroids now (OH JOY!). If the test is negative they will take me off them in a short time; if it is positive I will need to take them for at least a year.

Another (OH JOY!) I've always wanted a shaved head for Christmas....NOT!
Went to the hairdresser Friday and got a really short cut so that it will be able to grow in quicker. Apparently it needs to be left uncovered and I'll have some gooey stuff to keep on the incision so I didn't want to be getting hair in it.

Right now one of my biggest concerns is getting myself together for Christmas and to be ready to check in at Fort Walton Beach on January 15th for a long break from winter!

There is good news though! The doctor had a fresnel lens (prism) fitted to one lens of my glasses and I am seeing perfectly well now....have you ever thought to be grateful for single vision? I won't forget that soon.

How are you and Rodney doing Bev? I hope you are actually IN the new house by now. I haven't been on the computer as much as usual to I need to catch up.

Have you heard from Sunny? She should be having our beautiful summer weather now instead of the hot, hot days.




Wanda

Believe in Miracles.
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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
11/23/17 12:25 P

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I think you are right in not wanting to drive the day after the pump comes off. Might be nice to take a couple of days and know that he is stable. I can't imagine much more frightening than trying to get to an exit and find a hospital in a strange town. EEK! Much better for you to feel comfortable too than to be driving under stress.

Sounds like you will have a nice long break. We lived in New Hampshire for 10 years and Mal was born in Vermont and had lots of family there. We remember mud season well! Run, Run...as fast as you can! LOL



Wanda

Believe in Miracles.
Forgive Everyone.
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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
11/23/17 12:03 P

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We have decided to postpone the dinner until tomorrow and hopefully he will feel a little better then. I once made a crustless pumpkin pie but it just wasn't the same. I figure I don't eat it often so when I do I will have the real thing.

It dawned on me that I never answered your question about Florida. We are hoping to leave in early January and stay until after mud season- likely some time in April, but that is not definite. He has an appointment with his pulmonary doctor on the 4th so unless he tries to get them to move it up a week we won't be leaving until after that. He has been having chemo on Mondays but I see his next two are scheduled for Wednesdays and if they keep to that schedule he would be due for one on Jan 3rd and the pump would be disconnected on the 5th. I think we would be wise to leave after that chemo rather than leave before it since there would be less of a gap before he can start having it in Florida if we do it that way. The only thing I am not sure about is traveling the day after the pump comes off so we might wait an extra day or two- although he could nap in the car while I drive so it might be okay. We are hoping to get him set up to continue treatment down there. There is a cancer center that is only a couple of miles from our house and his uncle goes there for treatment in the winter and likes the doctor he has. Another option we have considered would be Moffitt Cancer Center in Tampa, which is a very well respected center and is supposed to be among the best for this type of cancer- but it is over 100 miles from our house down there. If he ends up needing to look for a clinical trial the cancer center near our house likely wouldn't be an option- but the place he goes now probably wouldn't be either. We will worry about that if and when the time comes that we need to I guess.

Bev

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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
11/23/17 10:16 A

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I used to take a WW suggestion and make a crustless pumpkin pie - just a custard really...baked the pie filling in a pan or small dishes. Surprisingly with a dollop of cool whip - it was delicious!

You dinner sounds perfect... Enjoy, hope Rodney will feel better as the day goes on.

Wanda

Believe in Miracles.
Forgive Everyone.
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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
11/23/17 10:01 A

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I hope you enjoy your quiet day as I am sure we will. Rodney isn't feeling all that great today )he usually doesn't the day after the chemo pump comes off) so it is just as well that we are alone today. I bought a roasting chicken and we will do a simple dinner of chicken, mashed potatoes and gravy, biscuits and a veggie. I did pick up a small can of cranberry sauce. With so much sugar in it neither of us should eat it, but we will have a small amount with our chicken. I made him a low sugar cherry pie but I don't like that so I also made a pumpkin pie. I did lighten it up a bit with fat free evaporated milk and with Splenda.

One would think the company would be anxious to finish the house so they can get paid but so far it hasn't made much difference. I got an e-mail from the bank right after they put the two halves together saying she had heard it was all done and ready for them to inspect. I'm not sure if the place was trying to get paid early (but if the bank sent an inspector they would have seen that it wasn't done so that wouldn't have worked) or if they simply hadn't talked to the installer (who is a subcontractor) and didn't know it wasn't done, but I can't believe they really thought he could get it all done in one day. I'm not even sure they can finish what is left in one day. Our loan officer told me to let her know when it was all done and they would inspect it but the company gets no more money until all of their work is finished.

Bev

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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
11/23/17 8:55 A

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Quiet day for us too, Bev! Instead of the usual activity, I'm just roasting a couple of Turkey thighs and making dressing an green beans. Since Mal has been diagnosed pre-diabetic, we are passing on potatoes and many of the usual sides I make. It just would be wasteful to do all that cooking with no one to eat that much food. They wouldn't even be here to help with the leftovers. We'll have a family dinner on December 2 and that will be my big cooking day.

I'm happy for you that the house has been put together. Hope they get there to finish up the work soon....guess they will step up if they want their monty, right? I also hope that they do good, quality work for you.

Even though you won't be eating Thanksgiving there it sounds like you have made a great leap forward.

Praying for you and Rodney that the doctors will continue to be able to help and maybe completely turn that cancer around. That man of yours is a fighter and so are you.

When do you leave for Florida and how long will you be able to stay this time? Will Rodney be able to continue his chemo down there? We will leave for Fort Walton mid-January and plan to stay down there through February. Spring comes earlier in Ohio than in Vermont so we will only have a couple of weeks of winter once we get back home.

Mal is having some health issues, nothing serious at the moment but he has had multiple TIAs and lost so much weight - I can't believe he weighs the same as me - 155 lbs and he is 6 ft. tall while I am only 5 ft. We can't find a reason for the weight loss but his whole family kind of leans out as they age. Both his father and mother did the same.

Anyway...Happy Thanksgiving!! Enjoy the day with Rodney...sometimes family chaos is highly overrated and a quiet day together can be nice.

Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
11/23/17 12:09 A

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I hope you find an answer to the double vision soon Wanda. My husband's stepmother has had some issues with double vision and she was diagnosed with Myasthenia Gravis. I had never heard of it before but one thing it can cause is double vision. There are other symptoms too but I think the main ones she has besides the double vision is drooping eyelids and muscle weakness in the face.

We will not be spending Thanksgiving in the new house. They put the two halves together last Wednesday, but they have a lot of work left to do. They told us to go ahead and get the electrical, plumbing, and heating hooked up and then they would be back to finish up their work. Rodney hooked up the electrical the day after they put the two pieces together. Our son hooked up the propane for the furnace, stove, and dryer (which will need to be connected once we move it up there) last weekend, the plumber and the phone company came yesterday so we have done all of our part except for a second set of steps (we bought one set from someone who had them on Craigslist but we need to either build or buy another one). They need to do the skirting, some siding, and a bunch of interior work before they can get paid and we can move in. I expect they are taking a long weekend but I certainly hope they will come back next week. At the rate things are going we won't even be settled in before it is time to go to Florida!

Rodney had a scan last week and we met with the doctor on Monday to get the results as well as have bloodwork done. The news was kind of a mixed bag. It looks like the junk in his lungs that they thought might be from the prior chemo has improved some, which is good news. On the other hand the radiologist feels that some of the nodules look like they have increased in size a bit, but we were told it was a very small increase so the oncologist isn't ready to give up on this chemo regimen yet. If his labs had shown another increase in the tumor marker he might not have continues it, but the tumor marker dropped some, so that might be a sign that things are working. If the nodules have grown it seems like it might not be a total response to the chemo but maybe it is at least slowing down the progression. We are still waiting for the results of the genetic test of the tumor. That will help determine if there is another treatment they can try if they decide this one is not working adequately.

I hope everyone has a very Happy Thanksgiving! It will be a quiet day here. Our daughter and her family are going to her mom's and our son and DIL went to her parents' house. They will be back tomorrow evening because he has to work on Friday and then Friday evening they will head to NY state to pick up his youngest son for the weekend.

Bev


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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
11/22/17 12:16 P

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Well, the double vision is still with me! Maddening at times when I want to drive and have to depend on Mal. Oh well there are worse things. I had an MRI on Friday and it came back good so now we are waiting on labs. I see the doctor again on the 30th.

How is the house coming, Bev. Thinking about you often and hoping you can put up a Christmas Tree in the new place! How great to hear that you would be able to have Thanksgiving there too! It is going to be so nice.

Speaking of Christmas, I'm doing most of my shopping online this year. I really like getting out into the stores...Mal....not so much. I imagine we will get to the mall once or twice but I'm not into power shopping anymore.

Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
11/9/17 10:04 P

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I think you are wise to go through all the tests just to make sure it is nothing more than being overtired causing the occasional double vision. Better safe than sorry! Rodney is doing reasonably well. He has been gradually decreasing the amount of prednisone he takes and until recently it seemed to be working fine. In the last week or two he has started to cough more and I think he gets short of breath easier but it hasn't been as bad as he was before he started the steroids. He talked with his pulmonary doctor on Monday and they decided he would stay on the current dose for now unless he gets worse. If he does he is supposed to up it a bit and let the doctor know. Hopefully it is just that he caught a slight cold and not that his lungs are getting worse again. We should know soon because he is scheduled for a scan next Wednesday and then we will see the doctor for the results on the following Monday. We were hoping to get the results of his genetic testing this week but they still didn't have them back from Foundation One yet. His oncologist was supposed to call to see if he could find out where things are at. Rodney is afraid they are going to come back and say he needs another biopsy because the sample they got before was not adequate, but I would hope they wouldn't wait almost 2 months to tell you that!

Yes, our son and daughter-in-law both work full-time. She is a teacher so she also has papers to grade some evenings and she also helps out at some of the sports events so she is late coming home on those days. I think she is an assistant coach for a couple of teams and helps with the scoreboard occasionally for other events. I think they both like to watch movies or be on their phones more than they like picking up after themselves, but hopefully they will figure out they need to do it even if it isn't fun. My house is certainly not spotless but I try not to let it get too bad before I make myself spend some time cleaning it. Hopefully the new house will be easier to keep clean and since I won't be working much longer I will have more time to do what needs to be done. We have a huge dust problem here and Rodney thinks it is partly because the stuff that is in our driveway has a lot of sand in it. The material that was put on our new driveway is much nicer so he thinks we shouldn't have as much dust. I hope he is right!

Bev

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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
11/9/17 8:20 P

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You and Rodney have faced huge challenges, Bev. I think you will get through whatever comes because you just don't give up.

I do hope the kids make their payments to you. How they take care of the house, I guess will be their business. Sometimes it takes awhile to realize that Mom and Dad are not going to be doing it for them. I assume they both work full time so that is probably a factor. It takes time to see how to fit everything together. Sometimes they have to watch things fall apart before they realize it is up to them to keep it together. Not all young people have the opportunity you have given them.

How is Rodney feeling? I'm sure all the waiting is hard on both of you. Winter is coming or has already come to Vermont I'm sure. It was 30 degrees here this morning our first real frost. I had to get out to the ophthalmologists early this morning and it was cold. I've been having some trouble with double vision for a few weeks. Now THAT is a weird sensation! Actually it goes back to a stroke I had in 2002 that left me with double vision for several months. Then my brain adjusted and I've had no issues for the last 15 years; then it was back....UGH. Well now I have to go for an MRI and blood tests even though the double vision actually went away while I was waiting to see the doctor! I've been through them all before but we will follow instructions and do it again.

I have had a few short periods of double vision during those years - usually when I've read late into the night and I'm exhausted. It never lasts more than a few minutes; probably because I close the book and go to sleep. I think I just let myself get run down with the bronchitis, then the long trip was tiring too. He said today that it isn't surprising that when my body is stressed, the double vision can click in.

Oh well, I'm feeling just fine now; vision has been perfect for 5 days but...more tests.



Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
11/9/17 7:54 P

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I am hoping that when we are out and it is their own place they will be a little better about picking things up or the place will look horrible! The yard has a lot of junk around it now that showed up after they moved in and there is stuff everywhere in my basement that belongs to them. I have been trying to give them the benefit of doubt and say it is because they have so little space they have no place to put everything- but sometimes when I see a pile of mail that is mostly junk that no one bothered to go through and throw away it makes me wonder what the place will look like a few months from now. As long as they make their payments it is none of my business but from what I have seen I think they both might tend to be slobs. I am hoping that knowing it is their own place will make them take a little pride in the appearance of it.

We will definitely not be moving in this weekend- in fact we won't even be able to move any of our belongings because the house is sitting exactly the way it was left last Friday. We are now being told they will be coming early next week to do the setup but I won't believe it until they pull in! The best we can hope for is to move in next weekend but I suspect it might be the following week (it had better be).

I didn't plan on having a mortgage payment when we retired but a lot of things have not gone the way we had planned so we will have one at least for a few years.

Bev



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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
11/9/17 7:40 P

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Sounds like a good plan for the kids, Bev. If interest rates stay as low as they are now, they should be able to do really well. I remember buying our first house in 1974; 9.5% interest!! In 1978 when we moved to New Hampshire we bought at 8.5% and when we moved to ohio in 1988, we bought this house at 8.5 %. I don't think young people today realize how much these low interest rates mean over the course of a mortgage. We sure paid a lot of money in interest, but even so we loved being homeowners instead of renters and it paid off as the homes appreciated. Now it is SO wonderful not to have a mortgage. I know that when we were the age of your kids we thought we would never have a home without any mortgage.

You will have fun watching them make your old house their own. I always thought it was fun to watch my kids develop their own tastes in decorating, colors, etc. Three kids and three very different homes!


Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
11/6/17 9:22 P

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We are definitely anxious to move in, but I sort of doubt it will happen this weekend. If they got the setup done in the next couple of days and we could get the plumber here this week we might be able to, but we have to get the town to come out and check things out to give us our certificate of occupancy so I think it is more apt to be next week. If things go well we might be able to move a few things in this weekend though. Our son and DIL say they are comfortable with the payment arrangement we set up for them. We kept it low enough that they should be fine- and by the time they have to go to a bank and get financing the balance will be lower so they should be able to have a payment that isn't a lot more then even though they will be paying interest at that point. We have already signed papers selling it to them. They had gotten an insurance quote that was much lower than what we have been paying but it was only valid through the end of October so we told them we could close the deal by then as long as we could stay here until our house is ready.

Bev

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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
11/5/17 10:42 A

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I sometimes get sideways pictures on Spark too!

Gosh, your home is going to be so pretty. Love the beige with the green shutters.

Thanks for posting the pics; I can just imagine how you are looking forward to move-in day. Is everything going according to plan with your current home? Will your son be able to manage the payments? I hope they are doing well.

Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
11/5/17 12:14 A

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Here is what it looks like before being set up.




I have no idea why it shows some of the pictures sideways. They were not that way on my computer!


Edited by: SOVTWALKER at: 11/5/2017 (00:23)
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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
11/4/17 11:48 P

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I'm excited for you, Bev. The new home will be in place very soon and step by step you will be moving in soon. Hope it works out that you can go to Florida.

Glad Rodney is still fighting. One thing I have learned about two...from health issues to house issues....you do NOT give up.

I think the DNA testing for cancer patients is kind of amazing. Doctor's were able to tell from the DNA of my sister's breast cancer cells that her cancer would not react well to chemo but was very likely to achieve remission with radiation. It was a blessing that she started the radiation right away and never had to have the chemo. Often patients are so debilitated from chemo that they aren't strong enough to be able to get through all the radiation. Now doctors will be able to know whether and which chemo will work best for a particular patient.
Awesome step forward. My sister is now 2 years in, working full time, feeling great, and no recurrences thus far with just a lumpectomy and radiation.

Glad to know you are retiring! You will love it!

Wanda

Believe in Miracles.
Forgive Everyone.
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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
11/4/17 11:24 P

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Wow, that is scary Wanda! You definitely did the right thing by going to the ER but thankfully it appears it was nothing too serious. Maybe a little worn out from the trip? My sister-in-law recently went to Savannah and she enjoyed it. My daughter was supposed to go to St Augustine to celebrate her anniversary but they had to cancel/postpone the trip because that was when Hurricane Irma decided to pay a visit to Florida. I don't remember when she said they are going.

Both halves of the house arrived this week finally (one on Thursday and one on Friday) but they are not put together yet. Hopefully that will happen this coming week. They ran into a bit of a snag because the truck and trailer couldn't make one of the corners on our road when they brought the first half. We had to scramble to find someone with a piece of equipment who could come immediately. The guy who did our sitework was out of town so we couldn't get him but our son managed to locate another guy. We asked him in advance if he could come the next day to help with the second half. Of course that was an unexpected expense, but we felt he used us good and charged us less than we thought he might. He started to go off the edge of the road in one spot so a piece of siding did end up getting damaged, but nothing major. The truck driver said he would let them know to bring a couple of extra pieces of siding when they come to do the setup and they will fix that for us. I don't know if they will fix it free or bill us, but it shouldn't be too much for just that. I doubt if we will be able to move in as soon as next weekend but soon after that we should. It depends on what day they finish the setup. We still need to get the water and sewer hookups done and a propane tank installed and connected so we have heat before we could think about moving in.

Rodney is holding his own. He will have treatment #4 on Monday and then they will do a CT scan before the next one and decide how to proceed based on how the scan looks. His tumor marker took a big jump last time, which is rather concerning. We are still waiting for the results of the genetic testing. He might get that on Monday but I am not able to go with him that day. Our daughter will meet him at the hospital so she will be with him for his appointments. I will be with him for the next one after he has the scan. Soon I will be able to go to all of them with him. I officially gave my notice at work and I will be done at the end of the year. Hopefully it will work out that we can go to Florida for the rest of the winter but either way I won't be working. If we end up staying here and having to heat a house all winter plus paying higher utility bills up here it will be harder financially but we will make it work no matter what.

Bev

Edited by: SOVTWALKER at: 11/5/2017 (00:11)
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11/3/17 11:11 P

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Just checking in, we enjoyed our trip; it was fun but we decided we prefer heading west rather than east of Ohio. We have commented before that it is more relaxing to drive when you get west of the Mississippi....so much less traffic!

On the east coast it seems like one big town almost runs into the next. I loved visiting Mount Vernon and Colonial Williamsburg. Charleston was fun but I think I liked Savannah better. From there we went to St. Augustine, Florida and then headed home. We had good weather and made a stop in Chattanooga to visit an old friend (and boss) of Mal's.

The night we arrived home, we started to get things unpacked and put away - then had to head to the ER because Mal's left hand and arm were not working - I noticed him struggling with the zipper on his suitcase and he admitted something was wrong and he couldn't walk quite right either so off to the ER, they got him in quickly, did CT, X-rays, checked everything but his symptoms started wearing off as soon as we got there and they sent us home after about 4 hours observation. ,All the tests were okay. It kind of makes him feel like we shouldn't have gone to the ER but I know that was the right thing to do. Since both of us have had strokes, I just don't think that we should wait to get checked out.

I was so glad it happened after we got back here because I would have hated to be in a strange town trying to find a hospital. We are rested and doing fine now.

Well, Bev, we are in a new month. I'm hoping to hear that your home has arrived. I'm sure there will still be snags as always with a huge project like this but at least you are moving forward. How is Rodney doing?



Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
10/16/17 7:08 P

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emoticon And such a pretty setting too! I'm sure you are excited about it. I would be.
emoticon

Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
10/16/17 6:55 P

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It sounds like an enjoyable trip Wanda! I am glad you are able to do things like that. Don't feel bad about not checking in here because you are busy enjoying life. That is certainly much more important!

We are sort of at a standstill with the house at the moment and we won't be moving in quite as soon as we had hoped, but we are getting closer all the time. The well is done (although the pump won't be until the house is here), the septic system is done, the slab is ready for a house, and we got the power hooked up today. We were hoping the house might be delivered this week but the last thing we heard is maybe the last week of the month. I'm not sure if that means next week or the last couple of days of the month. Either way it should be here within the next couple of weeks. Of course then there are a few days worth of setup stuff to be done and we will need to get the plumber in to connect the water and sewer and we will need to build some steps, so I'm guessing it might be a couple of weeks from the time it is delivered until we are ready to get the occupancy permit and move in.

It is hard to believe we went from it looking like this


to this

That took just about a month to get done once we closed on our loan.

Bev




Edited by: SOVTWALKER at: 10/16/2017 (18:57)
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10/16/17 4:44 P

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Sorry it has been so long since I've posted!! Hello Sunny and Bev....What good news, Bev, that you are able to move forward on your new home. I think that is awesome. You have had a long, long wait.

I'm sorry to read that Rodney must continue with chemo, hopefully his breathing is improving and he will get some good news soon.

Sunny, I'm so glad you are having fun! It is so nice to have special friends in our lives and someone who enjoys the same things we do. Good for you!

I've been busy too. I love taking care of my little great-grandson. Theo is a complete joy and I am happy to care for him a couple of days a week. Right now I'm missing him because we are traveling. We started out a week ago - our first stop was in Virginia to visit Mount Vernon. I have to tell you, girls, it is awe inspiring to walk through the same rooms as George and Martha did, and to sit on his back porch overlooking the Potomac.
After that we stayed two nights in Williamsburg, VA visiting colonial Williamsburg, then three nights in Charleston where we enjoyed walking through the historical area and visited Palm Island and Sullivan Island, now we have just checked in to our motel in Savannah and will enjoy seeing some of the sights here tomorrow. Wednesday we leave for St. Augustine for a couple of days and then head home. Lots of fun, tiring, too much good food....but we are having a great time and are so blessed to be able to do this together.

Sorry if all that sounds like a travelogue but that's what we are up to. I'll try to check in more often but I also foolishly signed up for two challenge teams again and I'm finding it very difficult to keep up. One will be over in a few weeks and then maybe I'll just take a break from challenges.

Again, Bev I am so glad that things are working out with the house. That is great news and glad your house in Florida was spared too.

Take care, friends,
Prayers all around
Wanda



Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
10/1/17 12:00 P

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I guess everyone has been busy since there has been no activity on here for a while. I hope all is well for you Sunny and Wanda. Things are going okay here. Work is progressing on the new house. The well has been drilled, the area where the pad will go is all prepped and ready for concrete. Our contractor told my son in the beginning of last week that he didn't think he could do it for a couple of weeks, which would mean next week, but the excavation contractor seems to think he will do it sooner. He says he has worked with the concrete guy on a number of projects and he was going to talk to him last week and tell him it would be ready for him by the weekend and he is confident they will come this week to do the slab. Either way it should happen soon. The excavation crew has started work on the septic system. The power company won't come back and put in power to that lot until after we get all the brush cleaned up under where the line is going. A bunch of trees were cut down by Rodney's cousin, but all the limbs are still laying there. I think the excavation guy is going to pick them up with his equipment and haul them away for us to his gravel pit where he can burn it all. At first I thought maybe I could move a bunch of it, but when I looked at what is there I knew it was too much for me to drag out of the way by hand (some of the limbs are the size of small trees).

Rodney is holding his own. He started a new chemo last Monday and so far he has not had any side effects. He will have treatment every two weeks- he will spend about 3 hours getting an infusion (with labs and a visit with the doctor first he will be there most of the day) and then come home hooked up to a pump for two days before he goes back to get the pump disconnected. He will likely see more side effects as he is on it longer, but hopefully he will tolerate it fairly well and it will work. He saw a pulmonary specialist on Tuesday about his breathing problems and they prescribed oxygen to use when he is doing stuff because that is when he experiences shortness of breath. The only issue is that he was supposed to get a portable unit, but the provider brought a home unit as well as tanks that he can cart around when he leaves the house. He told them at the hospital that he wouldn't use it if he had to cart a tank around and they had told him the portable unit could be carried in a backpack. He has to travel to the oxygen provider's office on Wednesday and hopefully they will set him up with the portable unit. If not, he will probably tell them to come pick up their stuff and he will look for another provider or go without it. The steroids they have him on seem to be helping as his breathing seems a little better than it was. They are hoping his issues were caused only by the previous chemo and not the cancer itself, and if so he should have a full recovery with the help of the steroids, but it sounds like it might take some time since they prescribed enough medicine to last for four months. They will try to gradually reduce the dose of the steroids as long as he continues to improve. When he has his next chemo treatment (next week) he will also have a chest x-ray done so they can see if there is any improvement seen in the lungs. We plan to make sure someone goes with him for his treatments this time since he will be there much longer than he was before, but I will not go to all of them (due to having used up all my paid time off already). Our daughter will meet him there for some of them and if she can't our daughter-in-law said she can take a day off, or his brother would go with him if he isn't busy taking their dad to an appointment. He will still need to drive himself up and back but his doctor said he should be fine to do that. I will go to some appointments if we feel there might be important discussions with his doctor (like when we get the results of his genetic testing and discuss future treatment options). I recently took three unpaid days off to go to appointments with him. I think I might have two paid days left but I saved those in the event that I need a day for something not related to his illness that wouldn't fall under FMLA. I have been battling a cough for about three weeks now so I may end up having to make an appointment for myself. Since I have been feeling fine and Rodney hasn't caught it from me I really don't think it is a cold or some other sort of respiratory infection, but I don't know what it is. I was wondering if it could be more of an allergy-type thing but it might not be. I have occasionally had a runny nose, but not all the time. I get a lot of sinus headaches, but that is not unusual for me. I have had days that I was so hoarse I could barely talk and other days my voice is fine, but I have not been feeling sick throughout any of this, which is why I am hesitant to go to the doctor, but I can't ignore the cough forever either.

Well, I guess I have rambled long enough and I need to get busy doing some things around here- like sorting out some stuff that I want to get rid of before we move into the new house.

Bev

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9/14/17 10:03 P

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Hi Sunny!

I have seen some of the pictures on Facebook of your adventures with your new friend. It looks like the two of you are enjoying life, which is wonderful! The foliage really hasn't arrived here yet, but we are starting to see some of the leaves change here and there. We had some kind of chilly days but this week it is warmer again. We haven't had a frost yet, but it dipped into the upper 30s a couple of times and has been in the 40s at night a lot of times.

Yes, we closed on the loan for the house a week ago today and work is already starting. Last weekend our excavating contractor came and started doing some of the prep work. He built up and widened out the driveway and got the spot ready for the well drillers to come in. On Tuesday we got two new power poles set, but we don't know yet when the power company will actually come and extend the power to the lot. They won't do anything before they get the money and we are waiting for the bank to send their check. I was expecting it before now, but haven't seen it. The woman at the bank told me it mailed on Tuesday but I suspect maybe it didn't actually go out that day. Today our well was drilled. The excavation guy is working on stockpiling sand for a contract he has for this winter and he rented a big machine so has to concentrate on that while he is paying for the machine but he has spent a few hours here on the weekend and an hour or two one evening. I think he told our son he planned to work a few hours again this weekend too.

It will be a while before we know if Rodney will get into a clinical trial. He had the lung biopsy yesterday. We meet with the oncologist again next Monday and hopefully he will have the results of the biopsy by then so we know whether or not the cancer has definitely progressed. I think it will just confirm what we pretty much know already. The testing that will determine eligibility for a trial take about 4 weeks to get results back from.

We were very lucky that our house in Florida received very little damage from the hurricane. From what we understand the only damage was to some lattice panels on the side of the carport. We were very worried about it all weekend when they started saying the west coast was going to be hard hit. Our place is not right on the coast but not too far away. It is close enough that we were in the mandatory evacuation zone and in the storm surge warning zone- but it shifted slightly to the right so our area didn't get hit as bad as they had at first expected. We were not sure how we would even find out if there was damage but one of Rodney's brothers got hold of a guy we had used previously to mow the lawns and he drove by and checked them all out for us. Of course he doesn't have keys so he couldn't check inside the house but if there was damage it should have been visible from the outside. None of the three houses had anything more than minor damage, which we are all thankful for.

I hope all is well with you Wanda. Have you recovered from the bronchitis and Shingles yet?

Bev

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9/14/17 10:54 A

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Hi Bev & Wanda,

Well, it has been a few weeks since I've posted, so I'm thinking you have probably closed now on the loan for your new house, Bev. That is nice that your excavator lives so close so you will be able to have good communications with him. I bet you are getting into the really beautiful time of the year back there in Vermont. I can just close my eyes and visualize the beauty of the surroundings! Sure would like to make a trip back that way sometime in the fall. It would really be a treat!!

Sure hope Rodney was able to get into one of the clinical trials. I think they are finding break through treatments all the time and sure would be wonderful if he could get into the right trial and get a 100% remission. I know you both must be getting so tired of the stresses of dealing with the Dr.'s constantly and all the appointments, etc. It can really be exhausting.

Well, on my end I am doing fine. My new friend Ben has been such a joy in my life. He is so energetic and just interested in everything, so he inspires me to keep positive and welcome every day as a new gift and opportunity. We have taken several little day trips and even took my big labrador, Izzy with us last Sunday as we drove up to Prescott and enjoyed a lovely thunderstorm and lots of rain. It ended quickly however and so we walked around the courthouse and had a lovely time. He is a lovely Christian man and we both enjoy attending church services, so we have been doing a lot of that........ plus he has been teaching me how to play domino's and I'm teaching him to play chess! Just proves that you can still have fun even when we are getting up there in years! :)

Well, better sign off for now. Today is supposed to be our first day UNDER the 100 degree mark! Whoopee!! I am so ready for this heat to be over with. Oh, on another positive note, I have lost nearly 5 pounds in the last month, so that is pretty encouraging. I think it is just because I've been doing a lot more things and getting out of the house more!!

Best wishes to you and take care!!
Hugs,

Sunny

The Lord is my strength and my song.

-Exodus 15:2


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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
8/30/17 8:34 P

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I am glad you were able to find a way to post a message Sunny! Sometimes these darn computers have a mind of their own I think!

We are supposed to close on the loan for the new house next Thursday. We are working on getting in touch with some of the contractors so they get us on their schedule. The guy who will be doing all the excavation work unfortunately is tied up until the end of September, but he has assured us he will make sure we can get all the sitework done by mid-October, which is a requirement of one of our permits. He is going to try to do a little bit on a weekend before then (he lives just a mile or so down the road from us) so that we can hopefully get the well company in to drill the well even before he can do the septic system. If all goes well we might be ready to move in by the end of October.

Rodney's appointments today did not go as well, but it could have been worse. He has been having a lot of shortness of breath lately and the CT scan did point to the reason for it, although we don't have a definite answer yet as to exactly what is causing it. The scan shows some new areas of concern in his lungs but they can't say for sure if it is progression of the cancer or a side effect of the chemo, or possibly a combination of the two. His doctor feels that most likely at least some of it is from the chemo, but there are also some other indications that the cancer might have progressed somewhat- although it is still confined to the lungs as far as they can tell. Chemo has been stopped for now, as it either is no longer working or else it is causing harm. They will be scheduling him for a biopsy of the lungs. That will tell them if what is new in the lungs is cancer or damage from chemo. At the same time they will send a tumor sample for genetic testing in order to look for a targeted therapy or a clinical trial. That process will likely take 6 - 8 weeks. They did give him a prescription for prednisone for a week to see if that helps his breathing and he also has an inhaler. The news was not what we would have liked to hear, but at least it hasn't spread to other areas yet, which is good.

Bev

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8/30/17 10:28 A

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Well, here goes to try this another way! Iíll paste from e-mail and see if that works! Bev, sounds like you were having a
similar problem with your messages not going through. It is very aggravating for sure!

Thanks to you both for the updates. Wanda, I sure hope that Malís blood test came back showing that he is nowhere
near going into diabetes. Best wishes and Iíll be waiting to hear. Also very glad you got to spend time with your little
Great Grandson. He couldnít be in better hands. I had a good time with mine also. Last Sunday afternoon they had a
party for the one who was turning 12, but the other one did not want to go into the laser game room so they asked if I
would keep an eye on him. He was fascinated by the pin ball machines and was putting quarters in to get out the little
toys. He especially liked the little round balls and spent most of his quarters on those. They are all so precious.

Bev, sounds like you may be spending your Christmas this year in your new home. I hope it all gets put in place without
a hitch and that soon you and Rodney will be enjoying yourselves in your new surroundings. It will be good that your
son and his family will be right there next to you to help you when you need it. It just gives peace of mind knowing there
is family close.

Well, Iím determined to get a message to you, so now Iíll copy this and see if I can paste it into Spark. I really think I
have an internet connection problem that sort of comes and goes! Ugh.

Hugs,
Sunny

The Lord is my strength and my song.

-Exodus 15:2


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8/29/17 9:07 A

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Dear Wanda & Bev,

Tried twice to respond to your messages and my computer keeps freezing up! I'm making this really quick to see if it will go through!! Hugs,
Sunny

The Lord is my strength and my song.

-Exodus 15:2


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8/25/17 8:08 P

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Sunny and Bev
Thanks for replying to my post; thanks for the support and for updating me on your lives too.
Bev, reading about Rodney has made me realize how small my problems are. I know that I will recover in fact each of the past three days has seen improvement.

Congratulations on the new house. I think that is great and I also think you will be able to manage the finances as long as your son and daughter-in-law can manage their expenses. This may be a stabilizing thing for all of you and while I still pray that Rodney will be with you, I know it will be a load off his mind to have the house issues settled.

Mal had his follow-up A1c today. I'm really hoping we have done enough to back him away from a diabetes diagnosis.

There will be one really special day this week. My granddaughter called to ask if I could care for Theo on Thursday. She has to work unexpectedly and didn't have a sitter. Well, of course I can take care of that little boy! He is nearly 4 months old now and so, so sweet. It will only be the second time for me to babysit. She is a very hands-on mother and is just now going back to work part time. I'm really proud that she has taken so naturally to being a mother.

Well, I'm off to bed early again tonight....still not quite up to par.
More later,
Wanda

Edited by: LIVINTODAY at: 8/25/2017 (20:09)
Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
8/25/17 6:46 P

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Geez, I guess there were Gremlins in my computer the other night because I did post on here but now it is gone, so maybe it never went through. The same thing happened on another group that same night!

We are still plugging away. It does look like the loan for the double wide is finally going to be a done deal soon. We were told yesterday it had been approved for closing and now we are just waiting to hear back with an actual date and time. Hopefully by mid-to-late October we will be moving into the new house. I am excited in one way but nervous in another- it's a bit scary to take on a mortgage at our ages, especially when I know it will end up being just me paying for it at some point. Still, I have to live somewhere and the payments will be no more than rent would be, so I will make it work no matter what I have to do. Rodney just finished his sixth cycle of chemo. This is his week off and then he will have another CT scan next Wednesday. I will be going with him for his appointment next week. I am a little concerned about how things will go, but hopefully I am worrying for nothing. When they checked his tumor marker at the beginning of this month it had gone up- hopefully that is not a sign of something bad and it will be back down next time, but I am concerned about it. Also, he has lost weight at every appointment for a little over a month- and he is not trying to and I don't think he has been eating any different, so that worries me too. Last week his liver enzymes were elevated, but they have gone up before for no apparent reason and come back down, so I am trying not to worry too much. He has been having a lot of issues with shortness of breath for a while and we assumed it was either from the cancer or a side effect of chemo. His doctors told him they didn't think so and encouraged him to make an appointment to see his primary care doctor to rule out other causes. He goes for that appointment next Monday. Last week the oncologist did say it might possibly be from prolonged chemo that is causing inflammation of the lungs. They talked about doing a chest x-ray then but there was not enough time before his infusion was scheduled so they decided to wait for the CT scan next week instead.

Wanda, I hope you are feeling better and will soon be back to 100%. I have heard that Shingles can be very painful- and bronchitis is no fun either. I have never had either one, but Rodney did have bronchitis a couple of times. I made sure I got my Shingles vaccine as soon as I was able to (as soon as my insurance would cover it). Rodney had his as soon as he was eligible also, but I think we had to pay for his and then request reimbursement from our insurance company. I think we ended up not getting back $15 or so of it, but it would have cost $20 for an office visit to have it at a doctor's office- and our doctor didn't even have it because it is kept frozen and she didn't have a temperature controlled freezer to keep it in. When I got mine I didn't have to pay for it up front, as the pharmacy was able to bill the insurance company directly and I paid nothing for it. I think they say you can sometimes still get Shingles even if you have the shot but you will likely get a less severe case.

Wanda, my A1C was 6.5 when it was checked in January so I got put on Metformin. When it was checked in April it had gone down to 6.0 (thanks to the Metformin). I had it checked again in July and it was down to 5.9. I have no doubt that if I didn't take the Metformin it wouldn't be that low and might even climb back up into the diabetic range instead of pre-diabetic so I will be good and keep taking it.

Bev

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8/25/17 1:18 P

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Wanda, I just read your post and so good to hear from you!! I think we have all been slackers this summer about posting! When it is so darn hot you don't feel like doing anything!!

I was so sorry to hear the news about your severe bronchitis and on top of that, getting shingles! Ugh! This is not what we like to have going on in our lives for sure!! You will be in my prayers for a swift and complete recovery from both issues my friend. Please take it easy and get plenty of rest while you are recovering. Sometimes it seems when we go to different places we get exposed to germs we are not immune to and then they try to attack!! I know for sure that bronchitis can really get you down. I used to suffer bouts nearly every winter, but not for a long time now. It really makes you feel worn out from all the coughing.

It sure seems like 3 times for the shingles is way too much! Did you ever have that shingles vaccination? My neighbor keeps telling me I should get it. I have never had them, but remember when my dad got them and it was very painful for him. I am just wondering if you can still get them even if you have been vaccinated?

The Trump rally went along ok at the beginning, but trouble makers lingered after it was over and that is when the trouble started. Protesters yelling the police started it, but of course it was some in the crowd that got unruly and started throwing things at the cops. My daughter suggested we go down for it............. of course I nixed that idea, and hopefully she was just kidding!!

My new friend, Ben took me to the Golden Corral the other day. I had never been there and wow, no place for anyone trying to watch their calories. It was really nice though. After that we took a little ride out to Wickenberg and just walked into a few of the little stores. It is a cute little town. Lots of fun.

Well, better sign off for now! Bev, hope you and Rodney are doing ok. How is everything going for you guys? Wishing both of you well with lots of happiness and good health!

Hugs,
Sunny

The Lord is my strength and my song.

-Exodus 15:2


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8/22/17 11:18 P

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Hi...it has been awhile since I posted here - like nearly a month! We were at our family camp week in New Hampshire the first week of August and I came home with a bad case of bronchitis; I'm still struggling to breathe any time I exert myself and have spent most of the past two weeks in bed. The doctors say it will just run its course but I wish it would run faster. I have been up and dressed two days in a row though so I guess that is progress.

On top of that?? Shingles! They are in my scalp and torso but it is a milder case than the first time around; this is my third recurrence though and I just wish it would stop. I started the medication immediately when the burning started and I think that has kept the sores from opening for the most part. So...Shingles are getting better.

You know we get so used to being healthy that getting sick is almost an insult....like our body is letting us down....well now I'm working to get back to healthy so I'm starting to exercise again tomorrow morning and I will try to get back to tracking my meals too.

Hope you are having a good summer Sunny. I know it has been hot there and tonight I've been watching some of the coverage of the protesters at the Trump rally. I've been praying that there won't be any more trouble. Both sides are so angry now it seems.

Bev, how are you and Rodney doing? Are his treatments over? I'm wondering about your diabetes too. You mentioned that the medicine is helping with your A1c. Mal is pre-diabetic as of his last A1c several months ago and he will be having a new one tomorrow. We have been trying to eat more wisely but he is a constant snacker; he has also been a lot more active because it is summer and he has his garden plus he was having major health issues when the last one was done so I am hopeful that maybe he has backed away from the edge and will come up with a lower number now. His last A1c was 6.2.

Prayers for each of us that we can get through the last 1/2 of 2017 healthier and stronger......and maybe even with lower weights than we see on the scale now.

Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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7/27/17 10:22 A

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Bev, I had to chuckle at your description of how your hubby's stepmom also became his aunt!! I guess you never know what can happen. I did have a nice time yesterday and "Ben" is very easy to talk to and has lots of interesting stories of things that have happened in his lifetime. I think we will be good friends and that will be nice. Like you say, just someone to talk to and go do things every so often is nice. Thankfully I have quite a few of my lady friends that I'm able to do that with as well and it really does help!! :)

I remember when you and Rodney had just gotten your camper, Bev. You guys had a good run in it for sure!! Did I tell you guys that I did finally sell the 5th wheel? I had it taken over to the same dealership where we had bought it and had them sell it on consignment. I still had to come up with nearly $5,000 in order to completely pay of the rest of the loan, but now I don't have the monthly payments and don't have to worry about the upkeep, etc., etc. I think I'm better off without it, but sure will have the wonderful memories of the times we spent.

Well, guess I'd better sign off of here as well. I need to run a few errands today, so guess I'd better get to it!!

Hugs,
Sunny

The Lord is my strength and my song.

-Exodus 15:2


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7/26/17 10:40 P

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I hadn't heard of the heel drop thing, but maybe I will have to try that. What the podiatrist had me do before was what I called a wall push-up where I stood back from the wall a bit, with my palms against the wall and one leg in front of the other and I leaned toward the wall, bending the front leg but keeping the back one (the one that the heel was bothering on) straight. You can feel a stretch in the calf and in the bottom of the foot. I think it took a couple of weeks but it did help. I think the problem is that I am not doing it often enough this time.

Sunny, enjoy the lunch "date". A friend of ours lost her husband a few years ago and a year or so ago she was asked to go out to dinner with an older gentleman who had lost his wife several years ago. She told us she has no intention of it being anything other than someone to go out to dinner with or out dancing once in a while, but I think she has spent quite a lot of time with him. He is quite a few years older than her, but I think it is nice that she has someone to spend time with rather than staying home alone all the time. My mother-in-law died from cancer when she was only in her late 40s. Her sister lost her husband to a massive heart attack just a few months later. My father-in-law and my husband's aunt started spending time together just for company and a year or so later they ended up getting married- so my husband's stepmother is also his aunt.

Wanda, enjoy the camping. I do miss going camping, but I don't see us doing much of it any more. We no longer own a camper. We do still have a tent , air mattress, sleeping bags, a camp stove and cooking stuff, but I don't know that we will ever use them again. If we were to go camping it would probably be in a cabin, not a tent. In some states you can find reasonably priced cabins, but around here a lot of them cost almost as much as a motel room. We stayed in a couple of different ones in Pennsylvania that were decent- nothing fancy but we had electricity for Rodney's CPAP machine and a bed to sleep in. One of them even had a microwave and a small refrigerator and we paid $40 or less a night. Around here you pay that for a tent site at some private campgrounds. State parks are cheaper but they don't offer electricity (in PA some sites do but not in VT) and we need it for his CPAP.

I guess I have rambled on long enough, so I better shut up, load my dishwasher, and get to bed.

Bev

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7/26/17 11:29 A

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Wanda, I'm excited for you getting all ready to go camping. It sounds like it will be wonderful and I know you will sure be enjoying your family!! Have lots of fun resting and relaxing. You will probably find lots to keep you busy too!! Will you be camping in Ohio? I sure miss my home state, especially during the summer and fall!!

Well, sounds like you had the same experience I did with the crazy foot problems. Thank the Lord that it finally goes away, but while you are going through it you think it will never end!!

Take care. If we don't here from you for awhile I will just picture you guys camping and having a blast!!

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7/26/17 11:02 A

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Enjoy lunch, Sunny! Friendship is one of life's good things. Hope you have a nice time.

Bev, I echo Sunny's thoughts on Plantar fasciitis, it is so painful and takes SO long to heal. I did the same heel dropping exercise and kept it up for a long while. I could feel the stretch in the arch. That exercise is the only thing that helped me. I tried several in-shoe orthotics, but never tried the boot at night. I learned that I tend to sleep with my toes pointed; I guess that is because I tend to sleep on my stomach or side. I had to try not to sleep on my stomach and when I was on my side I tried to remember not to let my toes point. My goodness! It is hard to stop a sleeping habit.......because you fall asleep! LOL

Live is pretty quiet around here this week. We are getting ready to go to camp on August 5, my husband brought the bins in from the tool shed and I've packed the paper goods, plastics, beach towels, pots and pans, etc. I'll be adding things right up until we leave. What a good time we have. Two of my grandchildren and little Theo will not be with us but we will still have a good sized group. The cottage we rent is pretty rustic and Theo's mommy feels he is a bit too young for camping this year.



Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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7/26/17 10:29 A

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Bev, it is great to hear from you also!! I think of you both often and wonder how you are doing! I was sorry to hear about your plantar fasciitis! You probably remember I was struggling with that a number of years ago, but that was very debilitating!! It takes so long to get over it even while doing all the things the podiatrist wants you to do. I wore a boot to bed every night, rolled my foot over a frozen water bottle, etc., etc. I even got a series of injections and it still had to just sort of get better on it's own. I do sympathize with you on that for sure. I think the one exercise that helped me most was when I started standing on a step with my heel over the step and then going down as far as I could with the heel and then bringing it up and standing on my tip toes. That was the thing that really started making a difference for me and I still try to remember to do those exercises every so often to try and keep the arch limbered up! At any rate, sure hope you can get over that quickly and also the ankel problem. When your feet hurt it seems you just hurt all over!!

I can only imagine the fatigue Rodney is dealing with after his chemo. It sounds like his Dr.'s are good and working with you guys to determine the best dosage for him. I know it is really a balancing act and the side effects can be bad. Praying that he will be done with these chemo rounds before too long and that he will be feeling much better, including the shortness of breath!!

Well, I had a surprise last week. A nice gentleman that had started coming to our church asked me to go out to lunch with him. He is a widower of about 2 1/2 years, so I imagine he is just lonely and wants someone to talk to. I am going to meet him for lunch today at Denny's! He is quite a bit my senior, but seems very active and getting along great for his age. Guess we can't have too many friends! emoticon

Well, take care. I better sign off of here for now. Have a wonderful day and think skinny thoughts! I'm trying to follow the Tops exchange diet. I seem to have pretty good luck on that one and it is balanced so you know what you are getting.

Lots of Hugs,
Sunny

The Lord is my strength and my song.

-Exodus 15:2


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7/25/17 8:42 P

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Congrats on the loss Sunny! I need to get back on track and start losing again. I have gained back the few pounds that I had lost- which my doctor made sure to mention when I had a checkup about 10 days ago. The medication is keeping my A1C at a good level even with the few extra pounds, but I would likely have more energy if I lost some of this excess weight. I am not back to walking as much as usual yet because I am continuing to have some issues with my feet. I thought the ankle was all healed after the surgery but it has started to weep a bit and feels kind of sore again so I'm not sure what is going on with it. My doctor looked at it when I saw him and he didn't feel there was a problem. He just thinks I take longer to heal than most. My bigger issue has been heel pain, which I am assuming is plantar fascitis. Some days it seems like it is getting better and other days it doesn't.

Rodney is still doing quite well. He is tolerating the chemo without any major problems. He gets pretty tired and he doesn't feel great for a couple of days after his infusion, but then he usually bounces back. Last week they had to reduce the dose of his chemo because it was affecting his white blood count too much, but hopefully by having this week off he will be able to have the full dose again next week. His oncologist says they will decide each week based on his labs how much he will get. He will have one more cycle (3 weeks of infusions and a week off) before they do another scan to see if things have changed since the last one. They will check his tumor marker again next week. It has been dropping a little each month, but this month it only went down two points, so it essentially stayed the same- and it is still almost three times the upper end of normal. His doctor says he isn't overly concerned as long as it didn't increase and even if it does climb slightly he won't be too worried about a single increase, but if he saw a couple of them in a row he would be concerned. He has been experiencing a lot of shortness of breath, but we think it might be a side effect of the chemo because they say they don't see any other reason for it. He is going to meet with a palliative care person in two weeks to see if they can offer any suggestions to help with the fatigue and shortness of breath.

Sunny, I hope your weather improves. We have had more rain than usual this year and there has been some flooding but not quite like what your state had. So far, we have not had much really hot weather (which for us is not as hot as it is for you). Yesterday was quite chilly (barely above 60 if it even did get above that). Today was better, with temps in the upper 60s but that is still below normal. Tomorrow it is supposed to be sunny again and in the 70s so it should be kind of nice. The weekend is looking good, which is nice because we are supposed to be going up Mount Washington on the Cog Railway again with our daughter and her family. Last year it was pretty overcast so we were not able to see a lot so we are hoping this year the weather will be better. Plans for the double wide are moving along slowly. I think it will be another couple of months before it is delivered and set up, assuming everything goes through. We just put in our application with the bank this week so we have to wait for an appraisal to make sure the loan will actually go through. If it doesn't work this time we are giving up.

Wanda, it sounds like your hubby is quite the gardener! We gave up on the garden idea and sold our rototiller this spring. We hadn't used it in two years and don't plan to again so there was no point in keeping it. We will buy what we want in the grocery store or at a local vegetable stand that usually has decent stuff.

I've rambled on long enough so I best get off her and go do a load of laundry. It was nice to hear from both of you!

Bev

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7/25/17 11:09 A

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Wanda, you are making me seriously hungry talking about all those delicious, home grown veggies! Wow, sounds like Mal is really putting some serious work into your garden and now the harvest!! It must be wonderful to have all that deliciousness just ready for the picking!! My dad always had a big garden every summer when we lived in Ohio and you just can't beat the taste of the home grown veggies. What they sell in the stores isn't even close!!

Thanks for the kind words regarding our weather trauma here in Arizona. I felt so sorry for the family that got swept away while they were swimming when a flash flood came upon them so quickly. I can't imagine the pain and heartbreak they must be going through. I am not in a flood plain, thankfully, but we can get some very strong winds and the possibility of those micro-bursts which can cause a lot of damage, but I am fine and only had a few small branches blow off, so all is good. You are sure right about the air conditioning. When I go outside it does not take long and I'm feeling like I had a shower!! You are sure right about having so much to be thankful for. I don't know how the pioneers managed when they first came out here!!

Bev, I hope too that you and Rodney are ok. We have not seen you post for awhile, so hope that just means you are staying busy with good things!!

I had my daughter and her hubby over last Friday and cooked a big dinner for them. I almost hate to turn on the oven during the summer, but I fired it up anyway. They have Birthdays within 2 days of each other, so of course the rest of the family out here came over as well. It is always fun when everyone can get together!!

Take care and you are both in my prayers as well!! I don't know how we could get through without the Lord's help!!

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Sunny

P.S. I was down almost 2 pounds this last week, so I must have done something right or else just sweating away a little water! (Hope it's the former) Tee Hee

The Lord is my strength and my song.

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7/25/17 10:48 A

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Hi everyone! We have sure had a busy summer and it isn't slowing down yet. Mal's garden has been amazing and he is harvesting every day now. Each morning he makes a run to deliver veggies to the House of Bread, then heads out to the garden for 5 or 6 hours. I can tell that he is tiring but he is also sleeping better than he did this winter and he looks strong. Yesterday he picked carrots, cucumbers, zucchini, summer squash (over 60 of them), and he is beginning to pick tomatoes. With 38 tomato plants he should have a huge harvest.

Bev, I have to tell you that I echo Sunny's opinion that you and Rodney have put up an awesome fight against a terrible disease. Whatever the outcome, and I pray everyday that you will have a good outcome, the two of you are heroes in my book!

Hope that double-wide will be pulling in soon!

Sunny, we have been reading and hearing about the terrible fires and floods in Arizona. I hope you and your family have been safe and I'm so sorry that your state has had such a hard summer. I can't believe the temperatures there and then the monsoons...my goodness it makes me wonder how settlers ever survived....just imagine the women in long heavy dresses and the clothes the men wore....we are thoroughly spoiled by air conditioning, fans, and unlimited amounts of water to drink. We probably should be more grateful than we know.

Take care everyone, prayers all around.

Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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7/9/17 5:26 P

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That's what we are hoping for! He has two uncles who are currently dealing with stage four cancer and both of them have outlasted their doctor's predictions. Neither of them have bile duct or pancreatic cancer, but they give us hope that the doctors could be wrong.

Bev

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7/9/17 9:51 A

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emoticon Very wise words of wisdom, Bev! Besides, those Dr.'s don't know everything and Rodney might just give all of them a surprise!!



The Lord is my strength and my song.

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7/7/17 7:08 P

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We are very close to NH but an hour away from the area that experienced all the flooding. The store that we used to own didn't get washed away, but the water was flowing right through where it used to sit. The building was torn down years ago. We left there in 1990 so it has been a long time since we lived in that town.

I think you give us too much credit! We don't really have a choice but to deal with the disease. We are trying to stay optimistic that he will do better than his oncologist predicted, but at the same time trying to prepare somewhat for the possibility that he won't. Hoping for the best but trying to prepare for the worst I call it.

Bev

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7/7/17 6:04 P

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Hi Bev,
Sounds like you are getting really close to getting that new double wide put into place and that is great! I am sure you are getting excited and I do hope everything goes smoothly when they bring it in!! I was sorry to hear about all the flooding and sure hope that it won't come close to where you guys are. Are you pretty close to NH? That sure was bad news about your previous store getting washed away. Yikes!! I guess no matter where you go there are these weather related problems and people somehow learn how to cope, but dealing with a loss of a home has to be terrible.

I sure am glad to hear Rodney is still holding his own and fighting the good fight! I have said it before, but I admire you and Rodney so much for your fortitude in the face of that terrible disease and your courage. You are both an inspiration!! I wish with all my heart that I had Ray back to fight with him, but it was not meant to be, but at least his struggles are over in this life and just looking forward to meeting him again one of these days in a much better place!!

Well, better sign off for now! Best wishes to you and all your upcoming endeavors!!

Hugs,
Sunny

The Lord is my strength and my song.

-Exodus 15:2


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7/6/17 7:51 P

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Sunny, I am glad to hear you made it home safely and that your cousin is doing better. It is great that you were able to spend some time helping him with his recovery.

I have seen in the news that it has been pretty hot where you are. It hasn't been bad here. We have had quite a lot of rain so far this spring/early summer. In fact, this past Saturday there were a lot of places that experienced flooding. It wasn't too bad where we live, but an hour or so north of us there were a lot of roads damaged as well as a few houses. I saw a video someone had posted online and it showed water running right through where the store we once owned (in Orford, NH) used to be. The building is no longer there but it would have been flooded if it was. I saw tonight that the state says they are hoping to have the road reopened tomorrow. Entire sections of it were washed away on Saturday. The rest of the long weekend we had nice weather though.

We are still working on getting a double-wide but I think we are getting closer. We will end up spending more than we originally had hoped but it should be do-able. We had put a deposit on another one three weeks ago but we have been waiting for them to come look at our road to make sure they can deliver it here. A guy finally came tonight and he says it won't be easy but he is confident it can be done, so now I need to finish the loan application and get it to the bank.

Rodney is still holding his own. His tumors appear stable so the chemo is doing what it is supposed to so far. The first couple of days after each treatment he doesn't feel all that great but after that he is fine until the next one.

Wanda, I hope all is well with you and Mal.

Bev


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7/6/17 12:32 P

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Good Morning My Friends,

Just wanted to let you know I'm back home again safe and sound. I came back one day early to try and beat some of the holiday traffic when tons of people were heading to the north country. Course going the opposite direction it was much easier!

Wanda, I sure hope your hubby is adjusting better now to the new medications! Also hoping the Afib is under control by now as that is such a worry. My cousin's heart procedure was installing a new and upgraded pace maker into his heart. It turned out to be a 4 1/2 hour operation as the Dr. had some trouble getting the lead wire attached. His old pace maker was not doing the trick anymore and his congestive heart condition had really gotten serious. He was so swollen and puffy when I first got there, but after surgery and having a catheter that he had to wear home he lost just over 20 pounds of fluids. He looked much better by the time I left, thankfully. He is also diabetic and has to give himself insulin injections 3 times per day depending on his blood levels and sees the Dr. at the wound treatment center at the hospital for his feet which were in bad shape as well.

Show Low is way on the east side of the state way up on the Moggion rim in the white mountains. It is very pretty up there and Ray and I had enjoyed two lovely summers up there staying at a little RV park in our 5th wheel. It brought back all sorts of memories for me being there and remembering all the good times we had enjoyed together. I only wish he could still be here to enjoy things with me again. I am thankful for the memories anyway.

There was a very bad heat wave all over the state that really started on the day I left and it extended into northern Arizona. The bad thing....... hardly anyone up there has A/C!! So although the temperatures were way cooler than Phoenix, when it climbed to nearly 100 degrees and no A/C I felt like I was dying! Whew, it got pretty bad, but of course in the evening it cooled down to a comfortable temperature and then it was ok.

Well, sure hoping everyone is doing fine here. One positive thing was that I lost 3.50 pounds while I was away, so had a pretty good weigh-in with my gals when I got back!! Guess I need to get more involved in other people's lives and then I don't have time to think about food so much!

Best wishes to everyone,
Sunny

The Lord is my strength and my song.

-Exodus 15:2


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7/1/17 5:03 P

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Hi Sunny, hope your week went well and that your cousin is improving. It is so good of you to go up and help! I've been watching the Arizona weather and it looks like the heat has really settled in. I don't know where Show Low is but I know it is in the mountains; I hope you are a long way from the fires we are hearing about.
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Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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6/23/17 12:41 P

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Hi Gals,

Just a quick note to let you know I am in Show Low helping my cousin who just had a surgery performed on his heart. I will be here until July 3rd, so will catch up to you when I get back home. There is a big heat wave going on even in the high country and no AC, so it has really been toasty.

Catch up soon!

Hugs,
Sunny

The Lord is my strength and my song.

-Exodus 15:2


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6/18/17 12:13 P

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Ouch, Bev! That ankle does sound painful! Glad they could do the surgery quickly and it sounds like you are going to be out of pain.

Hope this new company will okay the trip up your road for the house. You guys are persistent and I'm sure something will work. Maybe you will even find that this house is a much better choice for you. I'm sure all 4 of you are looking to getting into your own places.

Hope Rodney and his Dad have a good visit. We have lost all of our parents and we sure feel that on Mother's Day and Father's Day.

Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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6/18/17 11:51 A

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I think we are going to head up to visit Rodney's dad shortly. He tries to go see him at least every couple of weeks. We did go see him just over a week ago but with it being Father's Day we decided to head up again today.

Nothing is really resolved about the house yet, Wanda, but we did put a deposit on another one yesterday. It is a little bigger than the one we initially tried to buy and several thousand dollars more money, but we have not been able to find much in the same price range as that one was. We looked at one that was close to the same price but it was pretty cheaply made and I just couldn't convince myself that buying it would be a wise decision. After a lot of thought we have decided to bite the bullet and spend more than we wanted to. The payments will probably be about $100 a month more, so things will be a little tighter but we will manage. We still need to have someone from the company come out and look at our road to be sure they can deliver it here, especially since it will be wider than the first one we had looked at. If not, we will get our deposit back and the plan B will be to buy one exactly like the first one but we will need to order it and it will be a 2018 model instead of a 2015 leftover like the first one (which is why it would cost over $10,000 more).

Rodney is doing well for the most part. His recent scan showed the cancer is stable so he is going to remain on the same chemo for another three cycles and then be scanned again, unless something new develops sooner than that.

I finally went to the orthopedic specialist about my ankle the Friday before last (the 9th) and ended up having surgery on it last Monday. What happened was that one of the screws put in back in 2002 after I broke it was working its way out and was just barely under the skin, so it was pressing on my skin from the inside and that was why it was so painful. I didn't need to have everything taken out, just the one screw so it was a pretty minor surgery. It was kind of sore the first day but by the next day it was already feeling better than before the surgery. I am supposed to be cautious and not do a lot of walking until after I go back on the 29th, but so far all is well.

I hope everything is going well for all of you. Happy Fathers day to the men in your lives!

Bev

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6/18/17 8:24 A

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Good Morning!
Can't believe it is already Father's Day! I hope that you and the Dads in your family are able to get together and enjoy family time.

We had to have our celebration on Friday night due to work schedules. Our Steve gets up at 4a.m. every morning so Sunday evening can't run very late. On top of that the grands have crazy work schedules and more than one home to visit. Kelsey especially, now that she has the little guy! Everyone wants to see him.

I may have written of this before but it just seems so amazing to me that I am telling it again. Ha!
Our little Theo has all his grandparents living AND all his great-grandparents And three of his Great-Grandmothers. How awesome is that? He is blessed with 15 grandparents in total and most of them live around here. You can tell his holidays are going to be very busy!

He is so cute and it feels so wonderful to have a baby in my arms again. Of course I know that I couldn't raise another one but I sure love to have a little time with him.

How is Rodney doing, Bev? I hope the treatments have been effective and that he is improving. Has anything been worked out as far as the house?

We are getting ready for company this week. Mal's cousin in Cincinnati is having a celebration of their 60th wedding anniversary; it will start with lunch at their home, then a church service, then back to their home until time to leave for a restaurant for dinner. We are looking forward to seeing lots of family and having some good visits. It is always fun to catch up isn't it? We are only an hour away from Cincinnati so we have invited one of the Vermont cousins and his wife to stay with us for a couple of days before the big day; that will cut down on their hotel time and let them get some rest too instead of driving all the way to Cincinnati and jumping right into the celebrating. We're all getting older you know.

Lately it seems that anything that knocks us out of our routine becomes a big undertaking but we enjoy and need the shake-up from time to time.

One more bit of news, I know that I told you girls that Mal was diagnosed pre-diabetic but we added another diagnosis at the end of May. They have found out that he has Afib and that is what caused his March stroke. It means several medication changes for him and his stomach is not handling them well. He says it is just another bump in the road but I say, "Enough already!!"

I am learning how to cook all over again and we are definitely eating a lower carb diet. I hope we see the numbers go down.

Well, take care everyone!
Randy, I read a couple of posts from you and you are in my prayers along with the rest of this crew. I hope you will keep us updated.

Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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5/30/17 9:03 A

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Well, I will look forward to them when they are ready, Bev!!

I'm thinking of going to Home Depot to find paint for my wrought iron fence. It really needs to be painted and it would be a good project for me! I'll have to try and do it very early in the morning or else wait until the sun drops in the evening!

Hope everyone is feeling good! Enjoy the day!!

Sunny

The Lord is my strength and my song.

-Exodus 15:2


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5/28/17 6:35 P

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It sounds like you had a nice trip Sunny. I am glad you got a chance to spend some time with your son and family.

Randy, I hope the cardiology appointment went well and that the new med will keep you out of the hospital! I know they are not fun places to be. I have spent a lot of time there in the past couple of years, but fortunately as the caregiver, not the patient.

Sunny, I have not posted any pictures from the wedding yet. I didn't take any myself. I need to steal a couple from others who have posted a few and add them to my Facebook page I guess. They don't have the photos yet from their photographer as far as I know- other than a few teasers that she posted to their page.

Bev

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5/28/17 9:36 A

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Good Morning My Friends,

Randy, it was really nice seeing your post on here. I was so sorry to hear of your hospitalizations and heart problems. Sounds like the last few years have been rough going, but it is good news that the current medication seems to be helping you! You are still coming up with some very creative ideas for your tops group with the play money building up to buy donated items. That sounds like lots of fun.

Bev, good luck on the purchase of your next place! Looking around and being sure is definitely the way to go when buying a large ticket item like that! I bet the wedding was beautiful also. Did you put any pictures up on Facebook? I have not been good at checking in to Facebook all the time and I'm pretty pokey on Spark as well, although I do enjoy both of them very much.

Wanda, thanks for sharing your experience at Mesa Verde. I did have a very nice trip as well and it was nice connecting with my son and his family if only for a brief time! I did finally talk them into getting a hotel both Monday and Tuesday night as the temperatures at the park fell into the 30's and they only have a flimsy little tent. Just too cold for sleeping in a tent. Wed. morning they were off for other adventures including Arches National Park in Utah, but I just headed back home again. That museum up there was really nice. The kids went on that 2 mile hiking trail. I only went part way and then turned around and came back to the museum where I entertained myself until they came back. My son told me I had done the right thing in coming back as it was difficult for them and they are seasoned hikers. I walk a lot at home, but it is not mountain walking and I figured it would be too much of a climb for me getting back.

Well, everyone take care and I enjoy reading your posts very much!

Sunny

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5/23/17 8:23 P

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Welcome back Randy! I have not been very active on SparkPeople lately but I do still read any messages that are posted here. I am also not currently going to TOPS. I have not been since January and I didn't even renew my membership when it came up at the end of March. There are a lot of reasons for my decision to leave for a while. Part of it has to do with what is going on in my personal life and that I didn't want to devote time to going to the meetings every week, but a bigger part of it has to do with a lot of negative feelings I have about some things that have happened with TOPS in recent years, especially in our area. I still feel like TOPS can work well, but at least for now it is not for me. I do miss seeing some of the friends I have made in TOPS over the years. I don't rule out the possibility of going back at some point, but it wont be for a while. I was holding my own for a while and had even lost a few pounds but I did gain them back in recent weeks.

Bev

Anyone who has ever reached a goal started by taking that first step.


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5/23/17 11:33 A

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Making my way back.

Feeling very inspired and motivated recently.

I have my TOPS family and we have some facebook groups but there's not a lot of activity between meetings. I've tried to increase this.

We just started a new contest where we have a check of several items to get "play money" . Near the end of the year we'll have an auction for donated items and use our play money to buy things. I think this will be a lot of fun and hopefully inspire others to get connected to others. I'll have to let you all know how it's working.

If anyone's interested in the list of items and "$" amounts for various things let me know.

I've come and gone from the Spark TOPS teams -- but TOPS really is one of the main focuses in my life.

In the last 2 years I've had 7 or 8 hospitalizations for heart failure and atrial fib issues. I see my cardiologist today -- I've really felt an improvement since getting out of the hospital a couple weeks ago. I think the new med really is helping me.

So go to see some familiar faces and some new sparkfriends to be as well.

Randy

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5/22/17 8:29 P

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Yay! I'm so glad the kids had a beautiful day for their wedding!! I'm sure you all enjoyed it.

I know what you mean about walking outdoors; it is so much nicer than the treadmill; I've learned that I can enjoy the treadmill if I'm reading though. I guess I could better say that I enjoy the reading while I endure the treadmill. LOL

Hope you guys have a wonderful summer. Please let us know how Rodney's treatments are going. You are both in my prayers!

Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
5/22/17 8:12 P

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Wanda, I hope your daughter has good luck finding another home. We did go look at more double-wides yesterday but we have not made a decision yet. There is one we looked at yesterday that is a possibility but I am not sure I really want it. I like everything except the kitchen cabinets. They are extremely cheaply made and they told us there is no option with that model to upgrade them to a little better quality. It is a little bigger than the one we thought we were buying and the price starts out a little less, but this place charges for some things that the other place includes in the price of the home, so it would end up costing us a little more for something of lower quality. Rodney looked at some at another place closer to us today but they have nothing in the price range we want to spend. He called another place and they don't have anything in our price range on the lot but the guy told him he thinks he could order something in the range we are looking for so we are going to go see him on Saturday.

Wanda, I don't do much reading these days, but maybe when I retire I will have time to. I used to read while I was pedaling the exercise bike, but I just sold the exercise bike because I wasn't using it anyway. I figured I wouldn't need it in the future since I will be in Florida where I can walk outside in the winter and in the summer I can walk outside here most days (if I can find the ambition).

The wedding went well. The weather was beautiful and they had the ceremony outside. The food was good and I think everyone enjoyed themselves.

Sunny, enjoy your adventure! It sounds like fun.

Bev

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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
5/21/17 10:32 A

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Oh my goodness! You are off on an adventure, Sunny. We visited Mesa Verde last summer and love both the history and the beauty of the area. We stayed in Cortez for two nights only though. Ate wonderful food, met some nice people and were wowed by the ride up the mesa and our visit to the museum.

While we were there I bought a book about Mesa Verde and also a novel by Nevada Barr that was set in the park. If you have never read anything by her, they are mysteries (not too gory but they can be suspenseful) set in National Parks and the main character is a park ranger. The author knows her stuff because she is a former park ranger and she really researches each park too. Her descriptions of Mesa Verde were spot on!

I think you are in for a great time!

Bev, don't know if you ever get a chance to just sit down and read because you are so busy but I think you would really like Barr's books too.

Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SUNNYSIDE's Photo SUNNYSIDE Posts: 2,838
5/21/17 10:17 A

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Hi Gals,

Wow, what a disappointment to have all those roadblocks thrown at you regarding the mobile home, Bev. So sorry things have come to a standstill, but I agree with Wanda. You will find someone who will be able to accommodate you or perhaps look into having a manufactured home built on site? I have looked at those and they are quite nice. Ugh, always something that presents a challenge it seems. Guess that's what makes us strong in the long run.

I'm doing fine. Tomorrow I am driving to Mesa Verde, CO to spend a little time with my son, daughter-in law and granddaughter from Georgia. They are doing some tours of National Parks and when they told me that they would be that close, I just could not help myself. It is only a 6 1/2 hour drive and I booked a hotel in Cortez. I will drive there tomorrow and then back again on Wednesday, so it will be short, but a little bit of an adventure! A good friend of mine is going to take care of my dog, so that sure helps!!

Wanda, thanks for your kind words. If anyone is encouraging I think it is you! I enjoyed reading about your granddaughter. You must really be proud of her and sounds like she is an amazing young woman. It is wonderful to see the paths taken by our kids and then the grandkids. I'm even seeing what's happening in the lives of my great grandkids so I'm really blessed!

Well, I've still got a lot to do, so I'll sign off. Take care my friends and congratulations to you Bev for getting another daughter in your family. It is wonderful!

Hugs,
Sunny

The Lord is my strength and my song.

-Exodus 15:2


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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
5/18/17 12:12 A

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Let's hope the need to switch companies will be just a bump in the road. Sometimes having to make another decision just gets you to a place that is the right one for you! My daughter and her husband are selling their home in New Hampshire and buying another. The deal on the home they hoped to buy has fallen through and they are going to have to get out of their house so they are feeling the pressure. I'm sure they will find their right place too. I realize that it is nerve wracking and disappointing but it will work out in her situation and in yours.

An outdoor wedding sounds wonderful; I have my fingers crossed for a beautiful day for them. In my opinion all weddings are beautiful....haven't been to one yet that hasn't brought a tear to my eyes.

It is neat that Ed's son will be his best man - that is a forever memory for each of them.

Wanda

Believe in Miracles.
Forgive Everyone.
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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
5/17/17 9:04 P

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Yup, it is getting close now! One of Ed's sons will be there (his older one) but the younger one will not be. In fact his son is going to be his best man. They are having a very small wedding with just a best man and maid of honor (Rodney and I did the same thing when we were married). Kim's mom will be her maid of honor. They pulled things together pretty quickly because Kim's dad is not in good health and she wanted to be able to have him at her wedding. I think they only have about 50 - 60 people coming.

Things are not getting as close with the house. In fact right now things are pretty much at a standstill there. I was in the process of completing the loan application and had planned to submit it to the bank this week. Last week we heard from the mobile home company that their guy wanted to come take a look at the site, which he did on Monday. When he was here he told Rodney we would need to cut a few tree limbs (which we already knew) and might need to move part of a stone wall (not an old one) that is on our neighbor's land but that was all he said. I think we would also need to fill in a ditch and then dig it back out afterwards. Yesterday they sent a message to Ed that their guy says they can't get a mobile home up our road. Ed called her back and told her that we knew we would need to do a few things first but that the guy never indicated it couldn't be done when he was here (and another company had looked at the road over a year ago when Ed was considering a single wide and he said he could bring anything up to 66 feet long up this road). They called Rodney back today and said they are definitely not willing to deliver a home here unless we want to put a lot of work into the road, so they are sending our deposit back to us. Now we have to look elsewhere for another home- and we will get the company to look at the site before we even sign a purchase agreement. Unfortunately I don't think the guy that looked at it before and didn't have an issue with the road has any reasonably priced homes.

I hope all is well with you ladies! We are finally getting some sunny days this week. Last weekend the temp barely got to 50 degrees and it was drizzly. Today we just about hit 90 and it was sunny. The forecast for Saturday is for partly sunny and in the 60s. If the weather cooperates I think they are planning an outdoor ceremony but if not it will be inside.

Bev

Anyone who has ever reached a goal started by taking that first step.


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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
5/17/17 5:16 P

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Good to hear from you, Sunny! You are always so supportive and Bev and I can sometimes use that! You have been through a lot yourself and we know that some of it has been hard.

Wow, 2 years in Ghana - I hope your grandson will send group emails to the family to tell you of his adventures! It is sure to be a change in lifestyle. He will grow and mature a lot too. We had a niece who was in the Peace Corp in Morocco. How we enjoyed her emails! She made friends with both native moroccans and other members of the Peace Corps and they have remained lifelong friends. I think it is probably 15 or 16 years ago that she was there. She faced some pretty primitive conditions but made it through with class. That is our Sarah; she always wanted to contribute and that was a big contribution. She taught women how to take care of themselves and their children.

A couple of years later she went back to Africa to climb Mount Kilimanjaro. That was quite an accomplishment. On that trip she also helped to build a school for HIV infected children who were orphaned or rejected.

Now she is a CPA and a mother of three little girls; I'm certain they will all make contributions to help others also.

Bev, WOOHOO! It is almost wedding time! I hope the sun will shine on Ed and Kim and that his children are going to be able to be there. I'm so glad that Rodney and you will be together to see the happy day!

Sounds like Vermont has had a wet spring. We are finally getting hot days this week so hope the sun is shining there also.

I'll be waiting to see you post a wedding pic!

Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SUNNYSIDE's Photo SUNNYSIDE Posts: 2,838
5/7/17 9:41 A

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Hi Bev & Wanda!
Looks like you two have been solving some pretty difficult situations on here and it is good to toss ideas back and forth between friends. It sort of gives us a perspective through someone else's eyes. Some of life's decisions are tough and guess we really don't know we have made the right ones until later, but just doing what feels best after careful consideration is the way to go!!

I'm still chugging along and feeling happy this morning because we are getting a nice break from the heat. The temp went from about 97 yesterday's high and only supposed to be into the 70's today! Yeah!! I'll take all the cool days we can get at this point!!

The A/C in my car went out a couple days ago, so my son-in-law is going to swap cars with me today when I go over for my grandson's birthday celebration. Then tomorrow the son-in-law will take it to his shop and have them check it out for me. I'm hoping it will be something simple and that I won't have to purchase an entire new AC unit. I think those could be pretty pricey!!

I have another grandson who lives in Atlanta and he is getting ready to go to Ghana Africa for his mission service. My daughter-in-law is Mormon and has raised the kids in the Mormon faith. He will be gone for 2 years, but not leaving until July. He sure does have an adventure ahead of him I'm sure.

Well, just wanted to check in with you two lovely ladies. Wanda, I'm like you, a very accomplished maintainer as far as it goes with my weight. I don't seem to fluctuate more than 3 or 4 pounds. I guess that is better than having it climb higher, but truly, I need to get serious one of these fine days.

I was happy to hear your husband's tumor was not malignant, Wanda. What a relief and I can imagine the dilema of having to keep his weight up while you are wanting to keep yours down. Oh, guess we just have to sit back and try to see the humor in every situation if we can. Bev, I do hope Rodney gets through this latest chemo session soon. So sorry he is feeling more fatigued. His body has been through about everything at this point and I just admire how he keeps on keeping on. Sounds like a guy with tremendous fortitude!!

Well, I'll sign off. It was very nice reading both your posts!!
Hugs,
Sunny

The Lord is my strength and my song.

-Exodus 15:2


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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
5/6/17 10:47 P

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It remains to be seen if we are making the right decision, but at the moment we feel it is the right decision for us. If it turns out to be a bad decision we will be the ones that have to live with the consequences. I won't ask her to support me! I can tolerate living with my son and future daughter-in-law but I don't think I could live with my step-daughter and her husband.

You are not missing much with our spring this year! It has been a very rainy spring so far and the forecast for the next several days is for more rain. In fact the entire month looks like it will be mostly cloudy and dreary. We will get some nice days I am sure, or at least some partial days that are nice, but it sure doesn't look like we will see lots of sun. Last night and early this morning we had heavy rain but for a couple of hours this afternoon it cleared off and we saw the sun before it became overcast again. Our son is getting married two weeks from today and it would be nice if the weather co-operated that day. It will be held at an inn where they can do the ceremony either outside or inside, depending on the weather. Today was Rodney's birthday and tomorrow daughter and her family are coming to visit for a while. I decided to get rid of my treadmill a while ago and she wanted it so I told her she could have it but she had to come get it. That was 2 or 3 months ago and she is finally supposed to be picking it up tomorrow. Ed and Kim are heading to see her parents and go to church with them tomorrow. After the service they will be meeting with the minister who is going to marry them. They met him briefly once before but didn't have a chance to sit down and talk with him that day.

Anyone who has ever reached a goal started by taking that first step.


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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
5/6/17 8:48 P

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Well, it looks like you have thought of everything and set things up nicely! As I've become an old lady, I've also become a worrier and protective of my friends...even the virtual ones! LOL

I think you have it well in hand and now if Rodney does well on these treatments....what a blessing that will be.

When I asked if you would be able to evict them, I was thinking of the bad old days with one of my sons. That is when I found out just how tough I could be.
He once referred to me as his Bad ___ Mom. He did it while he was apologizing for a lot of stuff he had put us through and he said that he wouldn't be alive today if wasn't for that tough as nails person. I guess I was lucky that he didn't realize I was shaking in my shoes for years while I was trying to get through his bad years. I would not raise that boy again for all the tea in China but today he is a man, husband, and father that I am proud of.
Some of the stuff he pulled though....it was rough.

Sounds like your son is turning his life around too. Having found the right woman will mean so much to his future. I hope they will be very happy and I am so glad that he is able to spend time with his son again. I know the ex's accusations were false but they certainly caused a lot of pain. He is strong for being able to take a chance on love again!

I'm jealous that you are in Vermont. Spring is so beautiful there and I have fond memories of Vermont and New Hampshire even though I haven't been back in springtime for many years. We go in August, in the full heat of summer, spend the week in an uninsulated cottage on the lake with no air conditioning.....we love every minute of it. Wish we could go in spring too though.

Edited by: LIVINTODAY at: 5/6/2017 (20:50)
Wanda

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Forgive Everyone.
Life is not fair, but it is good.

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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
5/6/17 8:23 P

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Wanda, part of her concern is that her brother may not pay us on time or that he and his fiance could split up and neither one of them would be able to afford it on their own. Of course either of those things could happen, but there will be a mortgage recorded with the town and if the payments are not made we will have to foreclose on it and take the house back- and then sell it to someone else. They are well aware of that and I am reasonably confident they will make sure the payments are made. Worst case scenario we have the resources to make our payments without the income from them, but we might need to dip into our retirement savings to pay the taxes on both places. It may not be an ideal situation but it is our decision to make, not hers, and it has benefits for us too.

Anyone who has ever reached a goal started by taking that first step.


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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
5/6/17 11:09 A

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Bev, Thanks for filling us in on Rodney's situation. I'm praying for you both. It is so hard to face these things day after day. Thanks for the snack tips too! I'll be trying them!

I completely agree with you that you and Rodney have the right to dispose of property as you see fit. I don't know whether your daughter has a stable situation but I'm wondering if she feels her brother will hold up his side of the deal. It certainly is possible that she is making a sibling "fairness" judgment, but she may also be concerned about you and Rodney and what happens if your son does not hold up his part of the deal and you have the double wide to pay for and no money coming in from him. I'm guessing that your house mortgage is paid off and that your son cannot qualify for a mortgage to buy it. That is too bad because then your double-wide could be fully paid off. There is real financial danger if you need the money from your son to cover the loans.

You are in a difficult situation. I certainly understand the need to be in a low-maintenance situation especially with Rodney's illness and the thought that you may someday have to make it alone. Will you be able to handle all the expenses alone if your son defaults on his agreement with you? Will you have a lease/purchase agreement drawn up by a lawyer that guarantees the house is owned by you until it is paid for?
AND the hardest thing of all.........will you be able to evict him if he defaults?

My father-in-law sold his home to one of Mal's brothers on the condition that he have a home for the rest of his life and we, like your daughter, were concerned at the time. Dad lived with them for 10 years, continuing in his home, sleeping in his own bedroom, though and was lovingly cared for by Bob and Karen. He thrived on the family time, having his grown grandchildren and their children dropping in often. Loved "family nights" and get togethers. We ended up very happy with the situation because we live 900 miles away and it was just a good solution for everyone.
Now the difference is that Bob and Karen had been married for nearly 25 years before the deal was made; their children were grown; they had a good income and a smaller home that they sold before moving in with Dad.
So...it was a totally different situation....but hopefully will have the same outcome - greater security for you and Rodney and the opportunity for family support nearby.

I'm probably going to say too much now but longterm............I think you can expect the same level of commitment and support after the deal as you are getting now. If that works for you, then go for it.

Otherwise it might be wise to split the property and move into the doublewide and sell your home to someone who can get a mortgage and pay off your new home. You still may end up with great neighbors and maybe enough money to build a garage that can store Rodney's tools.

I'm sure you have thought of all of this and I know Rodney wants to leave you in a good situation;
Blessings on your and your family...this may be a rough stretch but I hope that in the end you find that whatever decisions you have made will work out for the best. We all just make the best decisions we can.
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Edited by: LIVINTODAY at: 5/6/2017 (11:12)
Wanda

Believe in Miracles.
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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
5/6/17 8:53 A

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Wanda, congrats on the new great grandchild! I bet you are thrilled. I am happy to hear that Mal's tumor was found before it became cancerous, but I am also glad that his doctor will follow up every year just to be sure nothing else shows up.

Rodney is doing well so far. The chemo is making him a little more tired than usual, but so far that is about the only side effect so it is quite tolerable. He has one more cycle this month and then they will do a scan to see if anything has changed, then decide whether he should continue on this drug or switch to a plan B. The scan isn't scheduled yet, but I plan to go with him when he sees the doctor after that scan. I'm not sure if he will see the doctor the same day or a few days later. In the past when he had his scans done at this hospital he would usually see the doctor an hour or two later, but that was not his oncologist. When he had a scan that his former oncologist ordered he usually didn't see her until a few days later, but that is a smaller facility and they may not have someone available to interpret the scans right away.

I hope your hubby is able to get his A1C under control without losing weight. My husband used to like the Glucerna shakes. Since they are designed for diabetics the carbs are much lower than some of the other nutrition drinks and he liked the taste better than he did Boost, which also has a lower carb one. I would sometimes pour one in the blender and add a handful of frozen berries and a spoonful of Splenda and make him a berry smoothie. He really like those, but of course the berries add more carbs. Another snack he likes is protein bars. A lot of the granola bars are quite high in carbs, but if you look at the ones that they call protein bars they are not as bad. We tend to look for ones that are around 15 grams of carbs or so, which is one carb serving. Nuts are also good snacks. My hubby has to be careful now because he has gained back too much of the weight he lost, although I suspect at some point he will start losing again from the chemo. He was down a few pounds when he had his last round but I didn't think too much about it because he had been up a few the week before.

Plans for the house are progressing slowly. We are at the mercy of waiting for contractors to get back to us with estimates for the last bit of work that will need to be done. We have one more price to wait for and then we can total up all the costs and submit the loan application. I don't know how long that will take, but I am guess anywhere from 4 - 6 weeks. Once we close on the loan I think it will take a month or two to get the sitework done and the trailer here. It is nice to have our son here in some ways, but not so nice in other ways. He and his fiance tend to make a mess and don't pick up after themselves very well. Some of it might be because they don't have a lot of space to put their stuff but I think a lot of it is that they tend to be slobs- since the apartment they were living in before was pretty messy. I'm not a neat freak but I am not as messy as they are! We finally told our daughter last weekend that we would be moving into the new double-wide and selling our house to her brother. I almost wish we didn't even tell her. She didn't say too much that day but the next two days we got lengthy e-mails from her telling us all the reasons she doesn't feel we should do that. She thinks we are selling it for way less than the value for one thing, but she is basing that on the old town appraisal, which was ridiculously overpriced. We recently got a revised one which is $42,000 lower and probably much more accurate. If we use that figure and deduct the value of the lot we are keeping it is only slightly more than we are selling it to him for- and we will be storing some of our stuff in the basement (all of Rodney's tools and such) even after we move out. The bottom line is that it is none of her business and I am irritated that she went on the town website and looked up the value of our house. I was tempted to ask her if she was worried about her inheritance, but I didn't even bother to respond to her e-mails. If she brings the subject up in person I will probably tell her it is none of her business. I don't want to create hard feelings, but it is our house and we should be able to do what we want with it. Of course we have not yet had the conversation with either of the kids that his doctors don't feel he will be around for many more years- and the decision to sell the house to our son now rather than later was influenced by that knowledge, but we were planning to do that eventually anyway.

Okay I have rambled on long enough so I need to get off here. Have a great weekend ladies!

Bev

Anyone who has ever reached a goal started by taking that first step.


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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
5/5/17 9:34 A

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Hi guys!
First, I want you to know that Mal is doing well. The tumor is completely gone and while it was "precancerous", it is NOT cancer and that is an answer to prayer. He is all healed and back to normal, if we even remember normal. The tumor was largely an "encapsulated infection" - she described it as having a rind on it. Part of it, though, was an inverted papilloma; that is the precancerous condition. His doctor said, the good news is that it isn't cancer yet - the bad thing is that you are stuck with me now because I'm going to have to see you every year.

Sunny, sounds like selling an RV is not a fun experience even in Arizona where they are so much in demand. I hope the dealer you are working with has sold it for you by now. Have heard a lot about how beautiful the Arizona desert bloomed the year. That would be fun to see.

I know you will miss RV travel and camping but I'm sure you will be pleased to be able to move forward without the responsibility of insuring, registering, and maintaining something that you are unable to use.

Bev, how is Rodney doing? You too? I hope you are doing well. Diabetes is serious; this was just brought home to me strongly when our doctor told Mal that he is definitely pre-diabetic. I worry that this is because he simply ate snacks all day for years. He has had to fight to keep weight on for 25 years and I just kept whatever snacks he wanted in the health. Now I guess we have to make a big change and get his numbers down. This is not going to be easy and I really hope we can do it without causing him to lose weight.

It is always a paradox - me trying to lose weight and him trying NOT to lose weight. He is 6 feet tall and weighs about 165 - I'm 5 foot and weigh only about 10 lbs less than him. I'm trying to learn about snacks that he can have - preferably high calorie ones. Any suggestions? I do know that he can have nuts and thank goodness he likes them but I need to give him a variety of choices.

BIG NEWS!!!! I am a great grandmother. Theodore Michael Patrick Collins was born one week ago today. Mal and I are so thrilled with this beautiful boy!

Later this month we will travel to Long Island to celebrate Elena's 5th birthday! What fun to have two young'uns in the family!!

I have decided that I am a master maintainer although I have gained a couple of pounds this past few weeks. Can't remember when my last real weight loss was though. I need to push a little harder!

Are things moving forward with your plans for the double-wide, Bev? I hope progress is being made. It is surely nice to have your son closely but I'm thinking the basement may be getting too close. How are the wedding plans going?

Well, time to get moving! 9:30 and I'm still in my pajamas and on the computer! I need to get busy and accomplish something today!




Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SUNNYSIDE's Photo SUNNYSIDE Posts: 2,838
4/24/17 9:46 A

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Dear Bev & Wanda,

Well, I sure have missed a lot and was really shocked to hear about everything you have been going through with your husband, Wanda. Boy, that does sound scary and who would think that such a think could happen right in his sinus cavity. Sounds like he has been a real trooper through everything and I'm so glad the surgery seems to have gone very well and that things are getting back on track. If it had to happen, it is sure good that you two were home from your Florida trip and in familiar territory and doctors that you could get to easily. Life is certainly full of surprises and sometimes they are not very good ones. Your positive attitude and your faith have surely made a difference and my thoughts and prayers are with you.

Bev, it really sounds like you are making progress on your plans to get that double wide set up and have your son and his soon to be wife moving into your place. It sounds like a good plan to me. The kids can help you and Rodney when you need it and you guys will have a nice brand new place that will be much easier to care for!! Post us a photo when you get it all set up. I bet it will be lovely. I'm so sorry that Rodney is having to endure more chemo, but he is amazing in all that he has gone through and still doing well. I will be praying that this chemo will not have side effects. If it just stays with the fatigue, he can deal with that. Just praying this will be the final round of chemo for him.

Yes, the decision on the RV has sure been crazy. I've just been going back and forth in my mind what I should do since the couple that had been interested did not pan out. I called Sun City RV last week and have arranged for them to come pick it up and take it to their lot to sell on consignment. This is the same place where we bought the RV in 2007. I had people come and detailed it and also got the repairs taken care of, so except for a small window that needs to be replaced, it is ready to go and it looks pretty darn good if I do say so myself! The guy is supposed to be here at 8:00 this morning. I had some final tears last night just going into it for the last time and remembering the good times that Ray and I had. Oh well, I'm sure that the new owners, whoever they may be will be able to enjoy it as well. It was a very good coach and built very solid. This place has a good record of selling their consignments. I believe they advertise selling 94% of the units they get in 45 days or less.

Yes, our spring has been very nice this year, Wanda. There were flowers blooming everywhere from all the rain we got last winter. It is so nice to take little drives and enjoy the scenery. I'm hoping to do more of that now as it gets warmer. I'll have to drag Izzy along with me, but she likes riding in the car, so no problems.

Best wishes to you both. I'm thinking only good thoughts for both of you and your families!!
emoticon
Sunny

Edited by: SUNNYSIDE at: 4/24/2017 (09:49)
The Lord is my strength and my song.

-Exodus 15:2


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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
4/23/17 9:50 P

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I remember you telling us about the stroke but I don't recall the follow-up scan. Yikes, that sounds very scary. I am glad to hear the surgery went well and that he is back home and feeling good. Now let's hope the tests all come back good too. I hope they don't have to do further surgery to open the duct.

Reading about the issues he had for years sound vaguely familiar as I have one eye that waters a lot. My former primary care doctor told me she suspected it was from a blocked tear duct, but said she didn't know how to check for that. My eye doctor says he sees no problem with the tear duct and he thinks it might be allergy-related. It has always seemed odd to me that if it was allergies that it would only affect one eye. I do have a lot of sinus headaches at times though and Tylenol sinus along with Zyrtec help so I have assumed it is probably allergies. To what I have no idea but I am pretty sure it is not pollen because it is worse in the winter when pollen is not an issue.

A first great-grandchild is exciting news! One of my cousins is expecting her first grandchild soon and she is thrilled. We are hoping not to have any more grandchildren for a while, although I won't be surprised if my son and his fiance at some point do have one. He has two boys from two previous marriages but she has no children of her own. They will be getting married in about a month. If things work as we are hoping we will be putting a new double-wide on a lot we own next to our house and we will sell them our house. We will have to finance it for them for a few years because his credit is shot (due to some poor decisions and a very costly divorce) and she doesn't earn enough to get a mortgage for it on just her income alone. The double-wide will be easier for us to take care of- and if something happens to Rodney I would never be able to keep this house alone anyway.

Rodney is doing quite well under the circumstances. He will have the last chemo of his second cycle this week, then he will have a week off, then one more cycle (3 weeks on, 1 week off) before they do a CT scan to see if it is working and decide if he will stay on this chemo or go to plan B. So far he is tolerating it pretty well. This week he noticed it took more out of him, and I suspect it will get progressively worse, but other than being tired for a day or two he has very few issues so far.

I have been having some issues with my right ankle, which is the one I broke about 14 years ago. My primary care doctor told me he thought the problem is that my sneaker rubs on the ankle bone, but so does the left one and only my right one bothers me. I also had a checkup with a podiatrist (for diabetic foot care) last week so I asked him about it and he feels the problem is the hardware in the ankle, which he thinks need to be taken out. He is sending my to an orthopedic specialist. If he (or she) agrees the hardware is causing the problem I may be having surgery at some point to remove it. Yup, getting older is fun!

Sunny, I hope all is well with you. I saw on FB that it sounds like the couple who wanted to buy your RV had second thoughts. I hope you are able to use it yourself or else find another buyer.

Bev

Anyone who has ever reached a goal started by taking that first step.


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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
4/23/17 7:41 P

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Just checking in, girls! I hope you are having a beautiful spring. We were but it has been really chilly for the past couple of days.

I think I posted about Mal having a stroke on March 11, just 10 days after we got back from Florida, but I don't think that I told you (should have read over the recent posts!) about the followup cat scan we had two weeks after his stroke. It showed a large mass that had nearly filled all the sinuses on the right side of his face. We have had quite a scary time. The doctors even thought the mass may have caused the stroke symptoms and he might not have actually had a stroke.

Well, he had surgery last Wednesday and it was removed but his ENT thinks it actually was something that grew from an old infection; her theory is that it somehow formed a solid skin and just very slowly swelled and grew as far as it could; it actually had "modeled" his sinus walls which I guess means it changed the shape of his sinuses and also caused a deviated septum. Anyway the surgery went well and he is home and feeling fine. YAY! We are waiting to hear the results of cultures and biopsies and have a follow up appointment with his doctor on Tuesday morning.

The doctor was amazed that he has had no pain or external swelling. He has had a teary eye and runny nose since 2007!!! The doctors kept telling us that it was from the stroke he had then and we were too stupid to question it I guess. We kept asking and a couple of times they would say something like, "well, his blood work doesn't show any sign of infection and I can't see anything but we'll try an antibiotic and see if that helps." Well the antibiotic never made any difference so we just went along. Mal has hated that he was always having to mop his eyes.

Hopefully that will be over although it is still tearing now. The doctor said they may have to do further surgery to get the drainage duct working if it doesn't open up on its own. It was completely crushed.

Getting old is such fun, right?

Sunny, I know Arizona is heating up. Hope you have enjoyed watching the desert bloom; I've heard that it was beautiful this year.

Bev, I've been praying about Rodney. How are his treatments going?

Sorry I didn't get on in time to with you both a Happy Easter!

We are just a few weeks away from welcoming our first great-grandchild! So fun! I made him a little quilt.

Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SUNNYSIDE's Photo SUNNYSIDE Posts: 2,838
4/12/17 9:28 A

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I got a photo from a good friend in Ohio showing their place all covered in the spring snow! Sure looks pretty, but I know it's not so welcome at this time of the year!

I'm doing ok. Keeping busy for sure!!

Best wishes to you and Wanda!! emoticon

The Lord is my strength and my song.

-Exodus 15:2


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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
4/5/17 2:08 P

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Rodney is doing fine so far. This is his week off from treatment, but he will start cycle two next week. We ended up with very close to a foot of new snow but it has been melting over the last few days. I sure hope that was the last one of the season! Today I have a follow-up with my primary care doctor so I only worked half a day and will be heading out soon for that. Good luck selling the RV Sunny! Wanda, I hope all is well with you.

Bev

Anyone who has ever reached a goal started by taking that first step.


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SUNNYSIDE's Photo SUNNYSIDE Posts: 2,838
4/5/17 9:21 A

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Well, it would be helpful if the medical team would let you know things that could happen after Rodney's chemo. At any rate I'm hoping that his fever is gone by now and that things are going better! Really sounds like you had a blizzard back in Vermont! Hope it was not as bad as the forcast predicted and also hopefully the last one of the season. Spring should be around the corner!!

I'm doing ok. The "junk" guys are coming this morning to haul away some items too large to put into the trash can. Also hoping the RV repair people will be able to get out today to finish repairs on the 5th wheel as the people who came to look at it really seemed to be interested. Keep your fingers crossed that the timing will all work out!

Wanda, hope you are doing great. How is the weather in Ohio by now? I may be taking a trip back to Chicago when the grandson graduates from navy boot camp. Hoping to see my son and his family as they may drive up for the ceremony as well. They will be coming from Georgia. I also heard from an Ohio cousin and she may be able to make the trip as well, so it should be nice.

Lots of hugs to you! Have a great week!!

Sunny

The Lord is my strength and my song.

-Exodus 15:2


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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
3/30/17 11:13 A

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We have more snow coming tomorrow and Saturday they say. The forecast is for up to a foot. I expect/hope we will get less than a foot but any is too much. Rodney's doctor told him a fever is common soon after this chemo. He told him to take Tylenol for the first couple of days to prevent it. He didn't have a fever when he was on it before so we didn't know it was common.
Weight loss? Hmmm, I haven't seen much of that. I haven't gained though.
Bev

Edited by: SOVTWALKER at: 3/30/2017 (11:14)
Anyone who has ever reached a goal started by taking that first step.


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SUNNYSIDE's Photo SUNNYSIDE Posts: 2,838
3/30/17 9:42 A

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Hi Wanda & Bev,

Just read your latest posts here on Spark People and seems like we have known each other all our lives!

Wanda, I had a good chuckle regarding your comments about the cold northern winters being character building! You have to keep your sense of humor going for sure!! It is hard to imagine getting 196 inches of snow all in one winter! Wow, remind me that I don't want to put northern Michigan on my list of retirement places! Tee Hee!

Bev, so sorry about Rodney's temp going up so you had to make another trip to emergency, but I am glad that it went down again. You just do what you have to do in that situation. It is much better than taking a chance on some infection getting out of control with his weakened immune system.

My daughter got a better report Tuesday after she saw the surgeon. He feels that the infection is gone and that she should continue her course of antibiotic and then he will do more xrays to confirm that it is gone. I was really thankful when she told me because 2 surgeries are enough to undergo.

Well, I've got a couple who is very interested in buying the 5th wheel. The husband was here last Thursday looking it over and then Sunday he brought his wife all the way from Cornville which is about an hour and a half drive from here. I have the mobile repair people coming today because there are a few repairs that must be made before they could safely take it away. I'm hoping the estimate on these repairs won't be too high, but they have to be done. This couple is building their dream home up in Christopher Creek which is a beautiful area in northern, AZ. They plan on living in the 5th wheel while they are building and then after that they would keep it and let their kids/grandkids stay while they are visiting. So anyway, keep your fingers crossed that it all works out. It will be one less thing for me to have to worry about once it is out of here!

Well, better get going. I've got a few chores to get done before the repair people are do to be here.

Take care and best wishes to you both!!

Hugs,
Sunny

P.S. Guess we will have to talk about our weight loss efforts one of these days soon! emoticon

The Lord is my strength and my song.

-Exodus 15:2


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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
3/26/17 1:55 P

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I hope spring arrives here soon! We have been having below normal temps for several days and even had a little more snow both Friday and yesterday. It didn't accumulate much so it was more of an annoyance than anything. Today it is mostly overcast and only 37 degrees right now, which I think is almost 10 degrees less than the average for this time of year. The coming week is supposed to be near normal for temps I guess, but with very little in the way of sunshine. Tonight and tomorrow morning they are calling for some freezing rain, so the drive to work may not be much fun. I do not like the cold or the snow!

I am glad to hear Mal is doing well. Rodney is handling the chemo okay so far. We did end up making a trip to the ER on Friday night because he was running a fever. It wasn't especially high but they say if your temp goes above 100.4 while on chemo you need to contact the oncology team. His temp went up to 101.4 so I called- and of course they said we should go to the ER so he could be checked out. Of course his temp was under 100 when we got to the hospital. They did a chest x-ray and a bunch of blood tests and didn't find anything of concern so they finally released him after about 3 hours. We got home just after 1:30 AM. He was fine yesterday so I guess whatever caused the fever resolved itself. We might wait a little longer before calling the next time, but they assured us we did the right thing in coming in. I had taken his temp three times over a 2 hour period and each time it inched up a bit more, but if we had waited longer it probably would have gone back down. He will have his third round of chemo this week and then a week off to let his body recover before starting cycle 2. They plan to do three cycles before doing another scan to see if it is working or not.

Sunny, I too hope your daughter is fully recovered. I hope you are having a good spring so far.

Bev

Anyone who has ever reached a goal started by taking that first step.


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LIVINTODAY's Photo LIVINTODAY Posts: 7,272
3/26/17 9:44 A

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Good Morning!
Spring has come to Ohio and it is so welcome!
Mal is doing well and thank you both for your good wishes and prayers.

Bev, I hope the same is true for Rodney. 9.5 hours for his initial appointment for treatment. Gosh, I know that every one of the hours seemed as long as two hours away from the hospital! I hope his chemo is going well; it is just such a hard process. I'm praying that he will be one of the ones who comes out a winner against that terrible disease!
I also hope the snowstorms are over for you for this year!

The falling snow and new snow on the ground is beautiful but it isn't nice when you HAVE to be somewhere. I agree with Sunny on that! I also grew up in North Dakota and lived in Northern Michigan for two years and New Hampshire for 10. There is absolutely no doubt that Ohio's winters are much milder.....and Arizona and Florida are great places to be in the winter! My husband used to say that northern winters are "character building". I remember replying once that I thought I had already become a real character and it was probably time to get away before I completely went over the edge.

That was when we lived at K.I. Sawyer AFB on Michigan's Northern Peninsula. We had 196 inches of snow that year - no melting days all winter - and we had fragile two year old who was not supposed to breathe cold air. I didn't drive then and besides there was nowhere to drive to; we were many miles from the nearest town of any size. I had horrible cabin fever and the library were the only things that saved me!

Sunny,, I hope your daughter's oral infection has cleared up. Just thinking about it makes my jaw hurt! I have such a fear of the dentist. I know it is irrational but......it is there just the same. No pep talks, no prayers, even talking about it, nothing helps. I just hope she isn't in pain; I do know that dentists today do a better job with pain management.

I have heard that the Arizona desert is blooming. Someday I want to see that. Someone on TV said that this year is lovelier than usual. I know you have had days in the 90s already.

I'm not sure if I told you that I'll be a great grandmother in May. My granddaughter is going to have a little boy. I am looking forward to holding a newborn in my arms again.

Take care all,



Wanda

Believe in Miracles.
Forgive Everyone.
Life is not fair, but it is good.

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SUNNYSIDE's Photo SUNNYSIDE Posts: 2,838
3/16/17 9:53 A

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Oh dear, I am so sorry about Mal having suffered a stroke, Wanda! My prayers sure will be going up for his full recovery. You must have gotten him to the hospital very quickly for them to have released him so quickly! Hope to hear good news and that he is getting better with every passing day!

Bev, that sounds very traumatic to have had to contend with all the snow, ice and blizzard conditions for Rodney to be able to get to the hospital for his treatments! That stuff looks so pretty and neat when you look at it in the pictures, but I know it is another thing altogether when you are forced to have to get out into it!! So thankful you made it safely. My prayers are still with you and Rodney as well. I'm also sorry that you are still dealing with stress on the job to boot! People who have never had to cope with a severe illness just don't seem to "get it"! I hope you can get out of there as soon as you can so you won't have to deal with it!

Well, my daughter saw the oral surgeon yesterday and he wants to do more surgery on her this coming Tuesday. She still has some swelling and discomfort and he feels that more scraping of her bone and whatever else is necessary to free her from this infection so it does not come back on her full force. I guess the jaw is a very hard place to treat because so few blood vessels around the bone area make it hard for the antibiotics to reach the infection. I will be taking her to his office and taking her home. It will be out patient thankfully so she won't have to go back into the hospital.

Take care my friends. Sure hope everything will go well for both of you!

Hugs,
Sunny

P.S. I sure would send you some of this Sunshine if only I could! emoticon

The Lord is my strength and my song.

-Exodus 15:2


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SOVTWALKER's Photo SOVTWALKER Posts: 14,624
3/15/17 9:00 P

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Wanda, I am so sorry that you ended up spending the weekend in the hospital, but happy to hear you are back home and that Mal seems to be doing reasonably well. I hope he continues to improve and has no lasting issues.

We made it to the hospital earlier than we needed to this morning. We were there more than half an hour before we needed to be. It normally takes an hour but we expected it to be longer this morning so we allowed over an hour and a half. Rodney drove up and he drove a little faster than I would have since the roads were still mostly snow-covered, but he did drive slower than usual. It still only took us an hour because there was very little traffic that early. If you head there later in the morning there is a lot of traffic between the interstate exit and the hospital, so it takes a while. Today there were only a few cars. we spent almost 9 1/2 hours at the hospital between having labs done, getting the port put in, meeting with a nurse and a nurse practitioner who work with his oncologist, and then finally getting the chemo. It all went well. He is pretty tired tonight and the port is causing some discomfort, but that is to be expected.

I think we got about 18" of snow here, but I heard some parts of the state and some places in New York got over 2 feet. Once report said one of the ski areas in Vermont got 45 inches! Hopefully we get some warm weather soon and it melts. Before this storm most of our snow was gone.

My boss is not a very nice person, but since I need a job for a few more months I guess I will have to suck it up and be nice to her even though I hate to. My husband and I have talked about it some and I might try to get things paid off a couple of months early and get done at the end of October instead of the end of December. If we don't have a lot of unexpected expenses come up we might be able to do that. It might mean I would need to find a part-time job in Florida next winter or else withdraw some money from my retirement account to supplement his disability income, but it might be worth it. I don't want to withdraw too much this soon because I will probably need it later on.

Here's to better days ahead for all of us! emoticon

Bev

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