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PROVERBS3128's Photo PROVERBS3128 SparkPoints: (16,347)
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9/19/16 11:08 A

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I am going to have to go and work on lunch....stay in touch. I look forward to hearing from you.



"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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9/19/16 11:00 A

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And healthy! And the berries are anti-inflammatory.

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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9/19/16 10:59 A

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Wow, that sounds so good!

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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9/19/16 10:58 A

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Yes, I take Ambien, the highest dosage, 10 mg. of melatonin, time released, 1,000 mg. of
magnesium, 500 mg. or more of calcium, and I still wake up in about 2 hours or so and start
turning and going on at night.

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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DANNATWEEDY's Photo DANNATWEEDY SparkPoints: (8,581)
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9/19/16 10:58 A

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It's almost 10 am here and I'm a late starter and my husband doesn't get off work until 10 pm or later so my mealtime schedule is a mess lol I'm getting ready to eat a breakfast of blueberries, strawberries and vanilla yogurt

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9/19/16 10:54 A

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Sorry, I am working on lunch and have a hungry husband. :-)

We are having salmon, lima beans, and I am frying cabbage, but I decided to change it up some and I have added sliced onions and I put in a few fresh green beans. We'll see how
that tastes.

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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9/19/16 10:47 A

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be back in 5 minutes

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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9/19/16 10:38 A

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I think the two of us together could really help each other out. For some reason I feel drawn to you. It could be because I finally found someone who understands how it is to be in so much pain all the time. I also have a hard time sleeping due to the pain. The doctor has me on a sleeping pill to help which is does some, but I wake up a lot throughout the night due to pain.

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9/19/16 10:32 A

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Ohh, trust me, I hurt for you! :-( Bad terminology!

I have been known to sit in the van ( alot of times I can't get out to go in to where we have gone.) and my husband comes out and I will have tears......here I am sitting there like an idiot watching someone go in a doctor's office or something and they are having so much pain and so I sit there and cry for them. That accomplishes a lot!

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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9/19/16 10:30 A

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Ha! Isn't that a joke! I wish age did matter in these things. You can talk to me any time.
I have had chronic pain for over 25 years now, maybe 30? Not sure. I am 59.
I am so sorry about the nursing, we truly need good nurses. But it would take its toll on a healthy person let alone someone who is already in pain.

If you can afford to, give yourself some time, let your body recuperate. Oh, that is another thing. I did not know for a long time that the body heals during sleep. I never slept much, mostly due to pain but my body just would not let down. My daughter was reading and found this article about sleep, and I can tell a difference. I take medicine to sleep and I function better.



"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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9/19/16 10:28 A

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I had labs done last month but I'm pretty sure that wasn't checked. I go back to my doctor on the 30th so I'll mention that. Thanks for the advice

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9/19/16 10:26 A

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It's really nice talking with you. I feel we each know in a way what the other is going through.

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PROVERBS3128's Photo PROVERBS3128 SparkPoints: (16,347)
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9/19/16 10:25 A

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I am NOT a doctor, so I know nothing!!! :-) But, have you had your vitamin d levels checked
lately? If not could you check into that with your doctor, and see about where they are. There has been some new research out there about Vitamin D being good for so many things. Plus
the cut off level is 30, and if you are say 35 whatever they say that is good. But this new research is saying they would like to change the levels to 50, if you are below 50 on your testing results that you should supplement. No one is getting enough Vitamin D because the sunblockers are blocking the D along with the sun's harmful stuff.

Then, depending on your medicines, check with your doctor, you could supplement Vitamin D3 and Omega 3's taken together, and this will help pain and inflammation many times.
Again, each person is different so you can ask you doctor, and it might depend on other
meds., too.

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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9/19/16 10:23 A

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I do the stationary bike mainly due to the doctor who diagnosed me with rheumatoid arthritis in my knees when I was 14 (now 34) that it would not put as much stress on my knees. I was in nursing for 16 years and I just recently gave that up due to it causing excruciating pain. I was hands on taking care of patients. I'm not working at the moment because of the pain. I know I'm going to have to stay out of healthcare in the hands on that I love now, but I'll have to go back to school for any other job in the field I would want. Sorry, I'm babbling on here lol just don't have anyone to talk to about all this. Everyone thinks just because of my age I don't have the issues I do.

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9/19/16 10:19 A

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If you can comfortably do the bike, stay with it, and count your blessings with each turn of the wheel. How long can you sit on the bike at a time? Wow! I am so proud of you, I would be
thrilled.

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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9/19/16 10:18 A

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I have either L-4 or L-5 is broken the whole way through vertically, and the other is cracked,
they are both leaning forward on the spine and just found out l-2 is falling backwards off the spine. Rheumatoid arthritis in the back and the knees, osteoarthritis, spurs on each vertebrae and crushed discs, fibromyalgia, autonomic nervous system disorder, and a whole bunch of other things.

So I know a little of your pain.

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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9/19/16 10:15 A

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Yikes, we must have been separated at birth. :-)

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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9/19/16 10:14 A

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It would be important to know what is wrong, and what you capabilities are. It might be that you need to mildly experiment. My back is so bad I am thrilled if I can walk a few extra steps.
Right now my exercise goal is to walk a total of 2400 steps a day, and some days I can't do that.
I have always heard yoga is good but in the past week talked to someone who was having tremendous pain due to the yoga, so for her back the moves, the stretches were not the way to go at this time.
Stationary bicycling has to be a blessing. You aren't jarring your back, oops, again, I do not know where your chronic pain is coming from, but I am glad you have something you feel comfortable doing.

Anybody else have thoughts?

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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DANNATWEEDY's Photo DANNATWEEDY SparkPoints: (8,581)
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9/19/16 10:06 A

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I have rheumatoid arthritis in both knees and hip, scoliosis and L4 and L5 are crushed in my back

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9/19/16 10:04 A

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What do you have wrong with you?

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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9/19/16 9:54 A

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I have found at this time my stationary bike is best for me. I'm willing to try new exercises but I'm scared of the pain. Any suggestions would be greatly appreciated

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9/18/16 8:57 A

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How are things going for you? Making progress?

Mine is very slow, but then that is me.

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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VONNIE17 Posts: 384
9/18/16 8:50 A

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yesI really recommend as easier on your body.

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PROVERBS3128's Photo PROVERBS3128 SparkPoints: (16,347)
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9/18/16 8:30 A

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Did going to the pool help your back? I hope so!

"Rejoice in the Lord alway: and again I say, Rejoice." Phil. 4:4


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VONNIE17 Posts: 384
9/11/16 10:50 A

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I am going to go for pool therapy see if will help with my back.

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ADALOUISE's Photo ADALOUISE SparkPoints: (13,392)
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8/13/16 8:04 P

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I can't stand or sit in one place for very long. Most comfortable I can get is reclining in my chair or lying on my sides in bed. I found a very good, certified Taichi instructor who when she heard of my pain and limitations agreed to work with me one on one. We actually started each class with very light yoga moves and breathing. The Taichi was very slow and deliberate motions combined with correct breathing. We would work for 10 minutes then take a break and get some water. Work 10-15 minutes longer and then cool down with a few stretches. She never forced me to go past what I could do. The movements helped me to get back my balance and improved my range of motion. I always left in less pain than what I stated with. The movements are slow and purposeful. Very low impact. Be sure to find a certified teacher who will work with you, our hospital offers a class every winter for six weeks, onice a week. It is o ly $20 for the course. You could also check with the YMCA in your area, they might even give you the names of certified teachers in the area.

Karen R, Eastern Time
Scarlet Dragons Team Co-Leader, Romanian Ridgebacks Squad

*** People With Disabilities Team Co-Leader***

Jeremiah 29:11-12

A journey of a thousand miles begins with one small step.


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MS_SWEETHEART's Photo MS_SWEETHEART SparkPoints: (60,525)
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8/1/16 11:45 A

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Rodney Yee's gaiam yoga is the best. So called "beginner yoga"was too hard for me due to my weight and mobility issues. But then I found Rodney Yee. His workouts are truly for the absolute beginner. His workouts are a series of gentle stretches and breathing techniques that help relax you and alleviate pain. I would suggest starting with Rodney Yee's Complete Yoga for Beginners (4 workouts) and Yoga for Energy and Stress Relief (5 workouts). Some of his videos are available on YouTube for free if you would like to try them out. emoticon emoticon emoticon

Confidence comes not from always being right, but from not fearing being wrong. ~Peter T. Mcintyre

Try and fail, but never fail to try. ~unknown

Nothing reduces the odds against you like ignoring them. ~Robert Brault
CHIQUITAR's Photo CHIQUITAR Posts: 112
7/29/15 4:49 A

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I had a yoga therapist who taught me some really low-energy yoga poses. Just some twists and stretches that are supported by a bolster. You might look into Restorative Yoga. It is certainly not aerobic but it gets you moving a little and keeps you from losing the fitness you have. Honestly, for me, my problem is getting myself out of poor-me-mode and doing something when I have a high pain day. I am a pretty positive person and it doesn't really get me down, but I just have a really hard time getting myself to move when I hurt more than usual. If anyone has any hints or things they say to themselves to get themselves moving I would love to hear them.

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CHIQUITAR's Photo CHIQUITAR Posts: 112
7/29/15 4:40 A

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I have tried both insoles and orthodics. I think it really depends on what type of feet you have--my partner has really flat feet and his hard orthodics work very well for his knee pain. I have high arches that collapse when I step, and I got some custom insoles (padded) from a chiropractor which were nice but no nicer than Superfeet brand insoles. Superfeet can be found at REI and other places, haven't checked Amazon.

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KAMARIA600's Photo KAMARIA600 Posts: 40
2/22/15 10:49 P

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I have chronic pain due to a DVT and a PE (blood clots) that I had almost 5 years ago. Since then, my veins have been damaged. The vein damage (venous insufficiency) is causing the most pain for me.

I go to the gym 3-4 times a week. I enjoy the elliptical, treadmill, and watching gorgeous men do the harder stuff! I feel exercise helps pain levels. I also manage pain with medication. I've lost 8 pounds since January.

This morning I had very sharp pains so I only lasted at the gym about 30 minutes. I know this may sound gross (sorry), but a bowel movement when I got home also helped release the pain. I believe my digestive tract presses down on the veins thereby increasing the pain if I don't release it.

Nutrition wise, I tried apple slices, black berries, mangoes, and strawberries. For a treat, I also enjoy bacon. You cannot get me away from bacon, even on my Subway sandwiches.

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MRLDCTYGRL's Photo MRLDCTYGRL SparkPoints: (11,196)
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1/21/15 4:41 P

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Has anyone here tried T-Tapp for exercise? There's supposed to be a version for people with chronic pain or adrenal fatigue, but I can't figure out which is which, and before I make an investment, I need to figure out if it's something I can do at all if I can't stand very long, much less on one foot!

Nickie

Note to self: Please be patient with me, God isn't finished with me yet.


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SUGARFREEBIE Posts: 518
10/22/14 2:03 P

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Walking for exercise is torture--I used to LOVE to hike but just can't do it any more. Bike is much better; I have a good magnetic resistance pedaler that I should use more often. Just my everyday walking causes enough problems; once my feet start to hurt that pain is relentless despite meds and rest.
I watched and started to do the SP (supposedly) no-impact cardio video only to realize that it has enough impact for a major OUCH w/ only one seated step down on the ball of each foot. I will look at it again to see if I can modify that step so I can do all of them going down on my heels, which are far less problematic.
My very large husband has a big fancy recumbent trike that he really enjoys in the warm weather. I am strongly considering converting my ordinary touring bike into a trike--he and I have tried cycling together but I have to go so much faster on the bike to maintain my balance that so far this activity hasn't done much for togetherness.
We'll figure something out.

Peace out,
Mary S.


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NOMORESHMOO's Photo NOMORESHMOO Posts: 2,166
9/27/14 8:25 P

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Some days I have to push myself, but I have found I regret it when I do. On bad days I do the exercises from my prior physical therapies. Most are Pilates, some have the stability ball. There are videos on here for shorter Pilates workouts. I do walk everyday, but the bad days are laps around the inside of my house.
My doctor recommends water aerobics and there are places that specialize in those with disabilities, Fibromyalgia, and Chronic Pain. I just have issues with public pools (any pool that I can't control the cleaning and chemicals).

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AZ_CAT_PERSON's Photo AZ_CAT_PERSON Posts: 416
2/18/14 9:53 A

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I found out I can do resistance band exercise while sitting so now I have another way to exercise if I am unable to much of the chair exercising. Since my pain has been lower the last week I started walking longer distances, but alas, the pain is back. Back to resistance bands and chair exercise.

Sindia (Phoenix, AZ)
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At the end of the day, if you're able to say that you lived well, loved much and laughed often then you, my friend, are the wealthiest person on Earth.
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You can't lose what you never had, you can't keep what's not yours, and you can't hold onto something that doesn't want to stay.


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KEEPERFREE's Photo KEEPERFREE SparkPoints: (10,235)
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2/11/14 9:28 A

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emoticon I am so sad today,I am so afraid I will never be able to walk for more than 5 minuts without pain,I can barely move my legs,but I keep trying,should I give up and do my recumbant,I want to go places without a wheelchair and sometime it is just not wheelchair accessible,I know I am being a big baby,but I want to get this wt off and I want to have a normal life,as go to the flea emoticon market..to a yard sale,a darn dollar store..I want to dance again....

''By God's design,there lies in wait for you,Important work for you to do.Just as the planets find their paths through space,You too must grow to fill your proper place''Unknown


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KEEPERFREE's Photo KEEPERFREE SparkPoints: (10,235)
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2/8/14 9:29 P

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You are so lucky to have a pool you can work out in,I have a recumbent and it is my main workout,I have bad knees,very bad spine and copd,I love it,it works well for me,I cannot walk very far at this time so it really helps.

''By God's design,there lies in wait for you,Important work for you to do.Just as the planets find their paths through space,You too must grow to fill your proper place''Unknown


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2014FORME's Photo 2014FORME Posts: 43
2/2/14 5:25 A

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I walk as much as I can and stay active in the home. When the weather is better I try to get out on my bike,I have a normal ladies bike ,but am considering a recumbant ,would like to know views on riding one of those compared to a normal. I have osteo and lumbar/cervical stenosis .
Oh and I am just starting tai chi and go to the pool to walk/run/stretch in the water emoticon

'just because I slip up, it doesnít mean that Iíve failed. Iíve only failed if I give up, and I refuse to do that. So, I take it one day at a time and realize that one day isnít going to make or break me, and I just keep going and doing what I know I need to do. www.sparkpeople.com/blog/blog.asp?po
st=i_wanted_to_live_life_with_my_family
AZ_CAT_PERSON's Photo AZ_CAT_PERSON Posts: 416
1/8/14 8:26 A

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how do you exercise when your chronic pain prohibits you from exercising; even if its chair exercises. Although my spasms in my legs are so bad I feel like I have run a marathon. Spent last night in the emergency room and they sent me home cuz they dont know whats wrong.

Sindia (Phoenix, AZ)
________________

At the end of the day, if you're able to say that you lived well, loved much and laughed often then you, my friend, are the wealthiest person on Earth.
*******************
You can't lose what you never had, you can't keep what's not yours, and you can't hold onto something that doesn't want to stay.


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RITZIBROWN's Photo RITZIBROWN SparkPoints: (81,517)
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12/23/13 2:47 P

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I walk whenever I can.

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11/30/13 1:56 A

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Hi Everyone:
I'm new to the team. I have mixed connective tissue disease and have chronic pain. I do take pain medication but what really makes a difference in managing my pain is regular bike rides on my recumbent trike. I have to ride 6 days a week. I use my bike to run errands, go shopping, go to the post office, go for coffee, go to church, etc. My husband and I own one car.

If i don't get out and ride 6 days a week I can feel the difference in the level of pain and I have trouble sleeping.

Do not look where you fell, but where you slipped.
African proverb


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AQUAGIRL08's Photo AQUAGIRL08 Posts: 11,176
11/7/13 7:16 A

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I have problems with migraines caused by my cervical spine. Up until now I've been able to do lots of water exercise. Now I am getting huge amounts of pain even though I rest afterwards. My neurosurgeon says that it isn't severe enough yet to do any surgery. Let him switch places with me for just one day and then see what he says!

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KAREN2LOSE55's Photo KAREN2LOSE55 Posts: 7,648
10/26/13 6:51 P

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I love my recumbent bike. I have chronic pain with having Rheumatoid Arthritis and it's so tough for walking long distances and I can get on the bike for as long as I can take it. The burned calories count up alot better than walking, so that makes me happy.

I'm afraid I can't help you at all with any insole experience. Hopefully someone soon can!

Karen from Minnesota

"Little by little whittling my middle!"


Right TKR 12/15/14




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BEARSFANNDENVER's Photo BEARSFANNDENVER Posts: 146
9/22/13 10:21 A

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I do love the elliptical machine, but I don't have one at home. It's a challenge to find time to get to the gym with my crazy schedule.

Has anyone tried insoles or orthotics? The orthopedic Dr. prescribed prescription orthotics for me, but I have not filled that prescription yet. I saw a sample of them, and they are hard and have no cushioning at all. They look so uncomfortable. And, once I pay for them, whether or not they help, I am out the $400.00.

I am wondering about insoles that are available on Amazon.com. Anyone tried some of these?

What has your experience been with them?

What about sizing? The first pair I ordered (Spencos) were ginormous. They come in 7-8 or 9-10. I am wearing 8-1/2 to 9-1/2, depending on the shoe. So, I got the 9-10 and they don't fit in any of my shoes.

I am a firm believer in "One size does NOT fit all." So, I wonder why a product that is supposed to help people with foot problems doesn't come in at least as many sizes as our shoes do?

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I understand this subject a little too well. The last Dr. I saw was my Orthopedic. Very good man, gave me a list of things to do to minimize the pain so I can do exercise as well . Being that it is of extreme importance to strengthen the muscles. Whenever possible use ice on your knees or wherever the pain is worse. Take Glucosamine, always use sneakers for walking . Recommended exercises are ride regular Bicycle or stationary , another good exercise is the use of elliptical machine . if possible three times a week one of there exercises. I am trying to do as much as I can . After exercising you really feel so much better. emoticon emoticon emoticon

I started a month ago , but I didn't go nowhere.
Why? I am finding everything I do tiresome and very difficult. I am trying to continue and get somewhere with my fight for a better life. My health has been going down in the last 5 years. I am 73 and recently I am experiencing quite a bit of pain with this injury of a sciatic nerve. Of course that has nothing to do with my continued to eat things are not beneficial for me. I believe depression is the cause of wanting more sweets, is my weakne


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8/17/13 11:15 A

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Thanks for the encouragement, Macloviaita!

Yes, it's good to find something that works, to be able to maintain a level of fitness in spite of the pain.

Saw an orthopedic specialist last week. He prescribed orthotics, which I will try before considering more costly options.

I have a couple of fractures and floating bone chips in one foot and a bone spur in the other. He did mention surgery as a possibility to scrape off the spurs and calcification around one of the fractures. He also indicated the tendons were hanging up on one of the spurs, so the arch supporting orthotics may help alleviate some of that pain.

emoticon

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I am very sorry you are suffering with so much pain . I wish I knew that to tell you about your feet. The best thing would be to see a podiatrist .... they should know , I have been to them for others problem. For my part I try to use thicker socks . even two pairs at the time. My knees are also bad, but for some reason I can get on the stationary bicycle and after a few minutes the knees get better and lose the pain and stiffness, That, and swimming seem to help and give some strength. I hope you try . emoticon emoticon

I started a month ago , but I didn't go nowhere.
Why? I am finding everything I do tiresome and very difficult. I am trying to continue and get somewhere with my fight for a better life. My health has been going down in the last 5 years. I am 73 and recently I am experiencing quite a bit of pain with this injury of a sciatic nerve. Of course that has nothing to do with my continued to eat things are not beneficial for me. I believe depression is the cause of wanting more sweets, is my weakne


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8/6/13 12:51 A

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I'm struggling with knee, leg and foot pain and a crazy schedule. The two combine to make it a huge challenge for me to exercise as I need to.

I work as a cashier and found out I have a calcified fracture in one foot and a bone spur on the other. This helps me understand part of why I hurt so badly, but it doesn't explain all the pain.

The exercises the Dr. gave me to help my feet are actually making my formerly good knee hurt.

I'm so frustrated. I can't squeeze a trip to the gym in, so need to get my workout at home right now.

Have any of you found effective lower body exercises that work with leg pain?

Oh, I almost forgot - I'm also wondering about food. I know there are some foods reported to have anti-inflammatory properties, and others that tend to increase inflammation. Have any of you experimented adding the good ones and eliminating the ones said to cause inflammation? Just wondering if you have found this works or not.

Edited by: BEARSFANNDENVER at: 8/6/2013 (00:53)
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8/2/13 7:46 A

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I am in the middle of Georgia below Macon in a town called Warner Robins. Where are you?
The doctor sent home a sheet of paper that said dogs are ok to be around me with the treatment but another paper from a lab said no...so I am putting my dogs in a kennel for 3 days and postponing the surgery on my 2 pound girl for a week. Just better safe than sorry. I can't stand to see anything happen to my babies.
Yes..i am so exhausted all the time...but I never had the losing weight issue..gee I can imagine when I become hypothyroid I will weight 500 pounds. Goodie.
Today is a busy day for me. I did not sleep well last night knowing I had to get up early to go to the dentist plus take care of all the arrangements with the dogs plus drive to Macon for my hair appointment. I have a headache too which makes things much worse.
I am so happy to hear your labs are good. I am with you on taking care of ourselves. I am doing my best to eat healthy. It is hard but so far so good. Gotta fun get ready for my day...wish me luck!
Hugs,
Sarah

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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8/1/13 9:39 P

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I'm not very well versed in the symptoms of fibro other than the specific pain but the fatigue you are describing sounds exactly like I went thru prior to diagnosis with thyroid issues. I would drag myself out of bed, eat something, and fall asleep while still eating. I was sleeping about 20 hours a day. I have Hashimotos not Graves but my girlfriend had Graves and she laid in bed and slept for something close to 3 months and lost 50 lbs! Her husband would bring her food and she did eat, but she just couldn't stay awake. You would think with her metabolism burning at such a high rate she would have a ton of energy but it's just the opposite. She was so wired she was exhausted. I think the thyroid supplement will make a huge difference in your fatigue.
Have you asked a vet about the affects of the iodine on such tiny dogs? Is there a chance that they may have to be out of the home for a period of time and if so do you have a back up plan? Your endocrinologist may even be able to tell you about the dogs safety. I'm sure they've been asked that question before.
How far north are you in Georgia? I am only an hour south of the Georgia border. As to how I am feeling today....I got a call from my doctor about 6 tonight. My labs came back totally awesome! My kidney function is back to normal, meaning I was just very dehydrated and probably had a bunch of meat the day before the test. I am so relieved! I was terrified of having to go thru what my Mom died from. I've worked so hard to take care of my health it just didn't seem possible that my kidneys could be failing. My potassium level is back up where it should be also. I'm going to have to look for ways to incorporate potassium in my diet without turning to fruits and starchy vegies. Those carbs just kill my weight loss. I can keep taking my supplement also. It's nice to get good news from a doctor once in a while!!! Take good care of yourself. I'm here if you need me.


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8/1/13 11:04 A

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Thanks Sandy for you generous response. I have a good doctor list from a fibro support group that I contacted but never went to meeting mainly cuz they are so far away. But one is here where I live so I can contact him after i research him.
My issue with the radioactive iodine is my dogs. I have two tiny yorkies and I fear that they will be harmed by this. One is to be spade the Monday before I have the treatment.
Another issue I have is that many doctors will not take my insurance..that is what the doctor told me yesterday. I have crappy medicare/humana. Doctors hate it.
I am very hopeful for the first time in a long long time that I may get to feeling better. I am at the bottom of a huge put from being so fatigued and in pain all the time...that any improvement would be wonderful at this point. It is almost beyond hope. So I pray that it does help.
I won't have an issue with taking the pill...I am up and down to pee all night (he he)
Thanks for all the info..it was very helpful.
How are you doing today? So far pain level is controlled but I have on a pain patch. Fatigue is bad tho. It is another grey, cloudy UGLY day here in Georgia. That has a lot to do with my mood. So tired of ugly grey days.
I hope this finds you feeling well and having a great day!
Hugs,
Sarah

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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8/1/13 10:44 A

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I have several friends who have gone thru the radioactive treatment. It is more a pain in the **** than anything else. You have too keep your dishes and silverware separate and other weird stuff but I know it works. The levothyroxine medicine (or Synthroid) is easy to take, just take it with a sip of water when you get up to pee in the middle of the night. They try to make it all complicated saying you have to take it first thing in the morning on an empty stomach and then wait an hour before you have anything to eat or drink. I can't wait a whole hour for coffee. I sometimes steal a cup before it's finished brewing!! I have 2 sisters who are doctors. They both said take it at least 4 hours after your last food at night when you get up to pee. You will feel a TON better when the meds are at the right level which may take a few months of titrating the dosages. Any dosage will make you feel somewhat better in about 10 days though.
What town do you live in? One sister is in private practice in primary care in Dallas. That probably doesn't work. Can you still reach your old doc or any of his staff? I would ask them for references for other docs in the area and interview them. Do you use one pharmacy for all your med needs? Do you have a good relationship with the people who work in the pharmacy? A lot of times they know more about the local docs than the local docs know. Do you see a specialist for your fibro? Maybe a rheumatologist? Reach out to all the local medical community and ask for suggestions. Make sure they know you asking from a patients perspective and not an employees perspective. Some docs can be a pain to work for because they are exacting and detail oriented. But that's exactly what I want in a doc, just not necessarily in a boss. Do you belong to a local support group for fibro or chronic pain? They would have some possibilities, might be slanted, but again you could interview the docs for a good fit. If all else fails ask your network of friends who they use. Tell them what qualities you are looking for in a doc and see if more than one person comes up with the same doc. The very last resort is going thru your insurance companies customer service phone line. These are minimum (or close to) wage jobs who follow check lists rather than common sense. They can offer a list of docs who participate in your insurance and their phone numbers. Ask if any seem to be more popular, if any seem to have bad reports. If you don't get a helpful person, hang up and call back in 3 or 4 minutes and you'll get a different person. Try again, get the docs names, addresses and phone numbers. And any sense of good or bad if you can. Then google the specific docs and see if anything pops up. This is basically a shot in the dark and the last resort but it could save you some leg work. If doc A has 6 malpractice cases pending and doc B only has 1, try doc B first for an interview. All docs, no matter how good, get sued eventually. It's a matter of numbers: lawyers outnumber doctors. Insurance companies force the docs to settle so they can keep their malpractice insurance. Without malpractice insurance you would have to be self insurable or in other words, Donald Trump.
When I say interview, I understand that your insurance is not going to pay for you to interview 10 docs. But you can do a drop in visit at a busy time to check out how the office is run, how the staff interacts, talk to the patients in the waiting room (a gold mine!), just pretend that you are there to pick someone up or you would like to pick up new patient paper work or whatever. But get a sense of the place, the way it's run, the cleanliness, the vibe, the demeanor of the employees, sometimes they have photos and c.v. for the docs posted on the wall or fliers. When you whittle it down to a few then make new patient appts, with 2 or 3 and see how it goes. Sorry I have written a book but it is a scary time to be doctor less with health problems that won't retire. If I can help at all, just ask. And have a good day. Sometimes just getting a name for a problem (Graves disease) can put your mind to rest somewhat.


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7/31/13 4:59 P

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Sandy. I totally agree with you. I am sorry you had to leave Cali for Florida. I had to leave Arizona and move to Georgia which is bad too. But my parents need me here.
I went to a thyroid specialist today..he is so awesome..he spent an hour talking and assessing me. I have advanced Graves disease and need to do the radioactive iodine thing next Thursday which will kill off my thyroid...then I will be on medication for hypothyroidism the rest of my life.He says the meds are cheap and safe. He told me all my aches and fatigue could be from this disease so now I have it in my mind that I am going to feel so much better after getting through all this process.
You are so right that we MUST take god care of ourselves. I have not done that. I am now. I am putting my needs first.
I have an issue now tho...my primary care doctor retired and I really need to find someone good. Lots of doctors won't take my insurance since it stinks. Any ideas on how to go about finding a new doctor?

"In all these things we are more than conquerors through him who loved us"
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7/30/13 11:02 P

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To Sarah: When I first got sick we lived in CA with our 16 year old girl and 7 year old boy and the husband of my youth. He was the majority breadwinner but I had gone back to school to become a chef and had been working as a chef, kitchen manager, and chef instructor for about 6 years when I got RSD/.CRPS. Within a few months I was unable to drive due to the spread of the disease from my upper R limb to my lower R limb, This was Jan. 1995, In May 1995 my husband job was transferred out of the Bay Area when they closed all the military bases. We moved to the Jacksonville, FL area. I was leaving the area where my family had lived for 5 generations, uprooting my high school junior girl at the end of the school year, moving to a town that thought of sushi as "bait", had no doctor who understood my extremely rare disease, had to find a place to live, had to sell our home in CA. Yes, a thousand times yes, I had my husband and he's always had my back. He took care of renting an apartment over the phone from CA and even rented us furniture so I would be comfortable once I got there. He took care of enrolling the kids into their respective schools and made sure that they got to class with the help of my older daughter who had pretty much taken over my car and unfortunately a lot of my jobs. It was probably the worst single period in my life, I was adrift, I was not in control of anything and nothing was certain, You have to get to a point in your head where you can admit and own that your welfare comes first! If you aren't taking care of yourself properly, you are only taking care of your loved ones in a half-assed way, They aren't getting the best of you if you aren't putting the best into you. A wise woman once told me "If you don't pay yourself first...you won't get paid" It applies to chronic pain also, May I friend you? I like your spunk!

Edited by: SANDYPUDOFF at: 7/30/2013 (23:05)

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7/30/13 9:11 P

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Your reply interested me! I actually haven;t been able to pace myself. I know what to do..but when I have a good day I have lots to do. I live alone and have all the care of my house and yard. Plus I have two yorkies that need care and walking. Plus I help my 86 year old parents when they need anything. Plus I travel and visit my grandkids.
It is push push push and I can go up to a week of being busy. But I pay a price. And these days I am not feeling like doing anything except sit on the sofa.
I found your way of exercising fascinating...starting so slow and working up. That is kinda what I am doing. i walk the block daily with the dogs..it is about 1/2 mile. When it cools of I am going to increase the length of time I walk. I can usually walk if my pain is controlled some.
Anyway, the issue is I know what to do but can't seem to figure out how to do it.n
Thanks for taking the time to help me.
Hugs,
Sarah

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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7/30/13 8:59 P

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I hear several people wondering if they are doing enough exercise to please their docs or their diets but too much exercise for their chronic pain conditions. It took me a couple of years to realize that I was living in a never ending cycle of 1 day of feeling okay followed by 3 days of out of control pain It took my support system (looking in from the outside) to point out that pattern which I was putting myself through. In my case, it was a lack of patience on my part. I was tired of being disabled, I wanted my muscles back, I was bored silly, so I would do too much on day 1 and then pay for it the following 3 days. I realized I had to come up with a more systematic approach that evened out the ups and downs that were sabotaging my efforts. So I settled on buying a recumbent exercise bike. I picked that particular piece of equipment because I didn't need anyone to give me a ride to get to it. It wouldn't aggravate my chronic bad back. It had the capability to keep track of my progress and I could afford a cheaper model. The 1st day with my bike I lifted my feet up onto the pedals, spoke a few words of encouragement to myself and pedaled for 1 entire minute! And then I made myself stop. That was the key! I could certainly have done more, but that wasn't the bargain I had made with myself. I was going to do this the right way and that meant not overdoing it on day 1. Everyday that week I rode 1 minute. The next week, I doubled my time to 2 minutes. I continued riding and doubling my time for months until I had gotten to an hour and a half per day. By then I had earned alot of my leg muscles back and was starting to walk better and participate in more outside activities. I found that 1 1/2 hours was more than I needed to ride for maintenance so I cut back to 30 or 60 minutes per day depending on other exercises that I'm doing that day. I highly recommend coming up with some kind of system to even out your pain if you're overdoing it and then paying for it later.

Edited by: SANDYPUDOFF at: 7/30/2013 (21:00)

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7/29/13 1:47 P

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I walk every evening after it cools off for the night. I have two yorkies and they are so excited to go for their walk that they start getting all excited a bit early. So I groom them and get them ready and off we go. They will not let me get by without their walk. At this point I am just walking around the block but I hope to increase the amount when it gets cooler.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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7/27/13 11:32 P

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To Aylamay: My motivation is very simple. If I don't continue to exercise my arms and legs, I will once again lose the use of my arms and legs and end up in an electric wheelchair. I can skip 2, or 3 days at most, before the burning pain of RSD/CRPS kicks into high gear with a vengeance! The burning pain will once again cause my muscles to atrophy to the point where I can't walk and I can't close my hands. I've fought a lot of years to get these muscles working again. That's about all the motivation I need to get my butt out of bed, get to the Y and do my water aerobics and my chair yoga! You can do it also, get down to the pool and meet someone you can swim with 2 days a week. Where ever you typically walk, strike up a conversation with someone who looks amenable and offer to be their "walk buddy" 2 days a week. Before long you will have people who are counting on you to exercise with them and you'll be doing them a favor at the same time you're getting your much needed motivation. Give it a try! What have you got to lose???? Pounds!

Edited by: SANDYPUDOFF at: 7/27/2013 (23:34)

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7/27/13 9:50 P

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I really admire what all of you have to say. I feel like such a neophyte here. As far as exercise goes, I am not even sure where to begin. I love to swim, walk and hike, walk with the cat in the stroller, and dance and do yoga. I have the DVDs I need, and I have plenty of time. The problem is that I lack motivation, I am all by myself and could really use a buddy, I posted for a buddy, but so far, nothing has happened. Maybe it's not time for me to have a buddy yet. I can make any adjustments that I need to so I can exercise, that won't be a problem. Lack of motivation is a big problem, as well as finding someone to exercise with.

Maybe, I don't need somebody to exercise with. I never needed someone to go with me before when I went swimming, biking, hiking, etc. I CAN DO THIS BY MYSELF!

"Look for the positive in each day, even if some days you have to look a little harder"

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7/25/13 10:11 P

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You are a smart woman. We all have to become our own healers in a way. No doctor in the world knows you and your body as well as you do. And certainly none are as invested in your well being as you are. I believe that we have to be our own health advocates and if the doctor says something that you know instinctively is wrong, walk out the door and ask for an appointment with a real doctor! Remember grading is on a curve and half the students scored below average. They are still addressed as Doctor today. But not my doctor! I need a competent doctor with a prescription pad and empathy. I need my mind over body techniques. I need my exercise bike (actually I'm on #4 since I got out of the wheelchair). I need my hobbies that keep my fingers moving and my hands strong. And most of all I need my family who continue to help me through every day even if their own days were worse than mine.

Edited by: SANDYPUDOFF at: 7/27/2013 (23:11)

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6/13/13 9:38 P

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IT GETS TO YOU AFTER AWHILE- I HAVE BEEN DOING THE 11 MIN CHAIR CARDIO EXERCISE FOR 4 MONTHS NOW IT TOOK ME A MONTH OR SO TO BE ABLE TO ACTUALLY DO IT RIGHT NOW I AM TRYING THE 8 MIN CARDIO VIDEO AND ITS VERY HARD LIKE THE SEATED ONE WAS AT FIRST BUT I AM NOT GOING TO GIVE UP, THANK GOD MY DOCTOR GIVES ME PAIN PILLS OR I WOULD NEVER SURVIVE. SINCE I STARTED SOMETHING NEW I HURT SO BAD-I HATE IT I CAN NOW DO 3 MINS AT A TIME ON MY ELIPTICAL TRAINER. I JUST NEEDED TO VENT-SORRY EVERYONE YOU ALL HURT JUST AS BAD.

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5/27/13 9:45 A

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CAELALI:

I am experiencing the very same frustrations. It is hard balance. I have a neighbor who is pushing me to walk and she doesn't understand yet the consequences of even mild exercise for me. I would like to go back to aquatherapy soon. I do go to a pain management clinic now for three years. They are very helpful. I do have fibromyalgia, osteoarthritis, chronic back pain etc. In fact right now I am going to do something for neck pain but my hip hurts, too. With fibro you can have a pain come up anywhere. I take magnesium which helps with the spasms. But, I also take a muscle relaxer. It is not fun and there are many people who don't understand. I also have some trouble with depression caused by childhood trauma and a former rebellion against my family and just about anything. I did not understand the world. But, I get help from many sources and I try to work for balance and pacing myself. I take neurontin and cymbalta as well and fish oil. A diet high in fish is supposed to help. Hope that you can find ways to help get through it. I do also have a pain management meditation and other meditations. My faith helps me as well and some close friends who form my support system. Wishing you all the best. I know it isn't easy. Hang in there!

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5/25/13 11:00 P

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CAELALI,

You are definately not out of line. This is a great place to talk about these issues! There are few things that are more frustrating than dealing with chronic pain and trying to get through each day. No one (who hasn't been through it themselves) really can comprehend what it's like to struggle through this. For me, it has led to depression. I wish there were some kind of helpful advice I could give. On the days that the pain got to be too much, I would rest, on the days that the pain was somewhat more bearable, I would take a short walk, moving slowly along the way.
Have you tried a pain management clinic? That really did help me. The pain doesn't always completely go away, but it's not so intense and it's much easier for me to deal with.
I wish you the very best, and sincerely hope things get better for you.



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5/25/13 10:36 P

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I've been dealing with chronic pain most of my life, on and off. For the past 4 months it's been difficult to walk, without feeling severe pain. Still struggling through my job, which is both physically and emotionally difficult, although I do love my job. One of the worse things about this is that the doctors cannot find the actual cause of this pain. Finally I went to a pain management clinic, where the doctor concluded that it could be nerve pain, caused by several surgeries for kidney and bladder problems. The last surgery (over 5 years ago) was for bladder cancer. Thankfully, I am now cancer free.
Until about two weeks ago, I would come home from work, take a hot shower, then spend most of the evening on the sofa with my heating pad.
Finally, with the help of new meds., which have no side effects, I can go on with my life, get back on track and start losing weight again. I am so motivated!
Starting over again, this time I expect to succeed, no matter what!!!

Edited by: LPPTOGO at: 5/25/2013 (22:39)
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5/5/13 7:06 P

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Generally, I am a positive upbeat person. I don't talk about the pain or medical issues. When I am able to ignore it, I seem to be able to "limp along" a little bit longer. (maybe pushing too hard or maybe not hard enough)

My doctor wants me exercising regularly to help control diabetes. I, like many of you, have a long list of issues that you live with (arthritis, depression/anxiety, shoulder, etc). I think my issues are much less than a lot of what at least some of you folks are living through. One of my challenges is that I cannot take pain relievers (and a lot of other rx), except Tylenol, which doesn't touch most type of pain for me.

I don't want to exercise! ... I take that back, I love exercising in a pool. ... A pool is available to me June through September/October. I will be researching pool exercises so that I can make them more effective this year during my 3 months of exercise. - LOL - Another challenge, I do not feel comfortable going to the pool by myself "in case something happens" and I have no one that can go with me regularly. (The pool I go to does not have "staff". You bring someone with you or you are alone.)

I have tried to walk for exercise and it takes more than 1 day for every 5-10 minutes I walk to recuperate. Last time I walked, I went 1 mile with my grand kids (they went 2 miles). It has been more than 10 days and I still haven't recovered. It is very frustrating.

I danced to James Taylor music one night sitting in my chair just for fun (not intending to exercise). My blood sugar got way too low. I was unable to talk coherently. Luckily my son came in and understood the word juice. He wanted to call an ambulance and I was able to say NO! JUICE! ... that was scary.

I am not diagnosed with fibromyalgia but I have had three or four different physical therapists ask me if I had been diagnosed with it when I was working with them on other things. I have no idea about that one but I expect that since I am nearly never without pain, it may fit.

Exercise scares me! It scares me to not exercise! I am frustrated with the entire thing!!!

I don't usually express this stuff but it looks like this might be an okay place to do so (please let me know if I am out of line here). . . . Anyone have any thoughts, success stories, or anything else that might be helpful?


On my way . . .


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3/26/13 5:51 P

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My knee is most always hurting...but I still try to walk & use my cane for balance.
Getting out & shopping with my sister is a challenge, but so worth it. We went to a garden nursery on Sunday & I put in almost 90 minutes of walking emoticon But then my allergies kicked in & I was worn out.
Exercising is something I am limited with these days- I do chair exercises, foot/leg cycle, & small weights workouts.
I have to exercise & do something everyday, or I will get back in a rut of doing nothing.
Depression takes over & I feel bad...I have so many health issues I need to overcome...I adapt, but some days I feel down & I "flat-line"-that's my term for the blahs- I don't want to bother or be bothered to do anything.
One day at a time... emoticon
I keep telling myself that "This too shall pass"...after all, I've been clean & sober for 16 years, I quit smoking 12 years ago & I will overcome this mindset!
Chronic pain is debilitating & I know I can manage this... I also love that I have SP support from all of you-Thank You!!!
Debbie



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SPECIAL6's Photo SPECIAL6 Posts: 4,455
2/22/13 11:54 A

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So true NRAVELED we have to get through each day any movement we can do when doing it we winning the battle as it comes.

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2/22/13 8:56 A

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I can identify with your "one day at a time". I want to be healthy but I am still trying to wrap my head around that "future truth". Here is to our movement through each day and winning each battle as it comes!

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1/31/13 7:50 P

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I understand CAPTAIN33 how you feel I wish I can give some suggestions for me sometimes I have just move my body and the pain sometimes go away and sometimes I just can't do it at all well that is my body can you check with your Doctor and see what you can do when it come to your pain are any physical activity you can do like water exercise?

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CAPTAIN33's Photo CAPTAIN33 Posts: 41
1/31/13 7:36 P

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My chronic pain is REALLY discouraging me from exercising. That's what brought me to this group. I already feel a bit better just knowing I am not alone. I'll have to read through the past posts and see if there are any tips or suggestions on good exercises to do.

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1/30/13 9:25 P

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emoticon Hi!! Team I did 70 minutes of cardio exercises and 30 minutes of strength training while sitting on an chair emoticon emoticon emoticon emoticon

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1/29/13 9:00 P

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emoticon Hi!! Team I did 70 minutes of cardio exercises and 30 minutes of strength training while sitting on an chair emoticon emoticon emoticon emoticon

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1/28/13 9:12 P

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emoticon Hi!! Team I did 70 minutes of cardio exercises and 30 minutes of strength training while sitting on an chair emoticon emoticon emoticon emoticon emoticon

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1/26/13 7:46 P

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emoticon Hi!! Team I did 70 minutes of cardio exercises and 30 minutes of strength training while sitting on an chair emoticon emoticon emoticon emoticon

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1/25/13 9:24 P

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emoticon Hi!! Team I did 70 minutes of cardio exercises and 30 minutes of strength training while sitting on an chair today!!! emoticon emoticon emoticon emoticon emoticon

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1/24/13 8:17 P

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Thank you WILMA102 I did 70 minutes of cardio exercises and 30 minutes of strength training while sitting on an chair emoticon emoticon emoticon emoticon

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1/24/13 5:20 A

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good for you

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1/23/13 8:51 P

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emoticon Hi!! Team I did 70 minutes of cardio exercises and 30 minutes of strength training while sitting on an chair emoticon emoticon emoticon emoticon

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1/22/13 5:49 P

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emoticon Hi!! Team I did 70 minutes of cardio exercises and 30 minutes of strength training while sitting on an chair emoticon emoticon emoticon emoticon

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1/17/13 9:22 P

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emoticon Hi!! Team I did 70 minutes of cardio and 30 minutes of strength training while sitting on an chair emoticon emoticon emoticon emoticon

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1/16/13 7:44 P

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emoticon Hi!! Team I did 70 minutes of cardio exercises and 30 minutes of strength training while sitting on an chair emoticon emoticon emoticon emoticon

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1/15/13 9:08 P

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Thank you WILMA102 I did again today 70 minutes of cardio exercises and 30 minutes of strength training while sitting on an chair emoticon emoticon emoticon emoticon

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1/14/13 11:05 P

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Great job

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1/14/13 8:07 P

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I did 70 minutes of cardio exercises and 30 minutes of strength training while sitting on an chair emoticon emoticon emoticon emoticon

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1/12/13 6:03 P

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I did exercising while sitting on an chair while dealing with chronic pain.

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1/10/13 10:23 P

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My doctor told me I know when enough is enough and not to push it but I don't think he wants me to baby myself either I have RA and very limited movement but I just started using weight machines to strengthen my muscles to take the strain off my joints Monday I go in for my infusion and I will ask again about how much to push myself

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12/11/12 1:19 P

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Hi, I have severe Osteoarthritis. I gave Cymbalta a good try. I can tell you that the use of this antidepressant is very effective in many cases. I send you luck. I just am allergic to antidepressants, but the reputation of this drug for pain without addiction is worth a try.

beckydailey@rogers.com


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12/8/12 4:54 P

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Do you know how to find the calories burned in Yoga. Because of severe arthritis pain I do low impact yoga.

beckydailey@rogers.com


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12/8/12 6:44 A

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11/10/12 1:23 P

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Hello everyone... I'm not working out right now, and haven't been for about a month because my body hurts from my fibromyalgia too too much! Anyway I just got an OK from my dr to take Cymbalta instead of Lyrica (I've been taking that about 2 years now). I will still continue with my Vicodin 3-4 pills per day, depending on pain level.
Can I get any responses from users of cymbalta for fibro pain??
thanks for your help everyone and may all your pain go away just for a few hours, huh??
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11/5/12 9:01 P

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I'm learning how to exercise right and better and it's hurt to want to exercise and when you in pain but I learning what exercise is right for me and the beginner level is for me and I can still have calories and fat burning workout at this level. emoticon


I got want to do it and do this for me. My mind is in battle and my body is at war. I'm in battle with myself and if I can over come myself than I can over come it all and do it one day at a time, let it go and get one step closer to my goal.


















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