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BUTTERFLYLIZ's Photo BUTTERFLYLIZ Posts: 441
6/11/07 1:11 P

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If you have all those symptoms, I would say that PCOS is highly likely, and I would definiately talk to your doctor.

I have had on-going battles with ovarian cysts since I was 15, including a few particularly nasty ruptures. Nothing like what you have gone through, it sounds like. I have also dealt with unexplained weight gain (they always think it's thyroid, but my thyroid is totally normal). I hold onto weight like no body's business.

In 2003, I was diagnosed with Type 2 Diabetes, due to the PCOS. They put me on Metformin and Avandia, along with Spironolactone (to control the male hormones & hair growth) and birth control pills. I was told that I will have a very difficult time getting pregnant on my own due to anovulation. I dropped 47 lbs in 2003-2004, but have since gained that back, and re-lost almost 40 lbs. It's a struggle, especially when I get off my medication.

I am now back on my meds, losing weight, and hoping to get pregnant within the next year. PCOS sucks but it isn't the end of the world. If I had known this was the real culprit when I was 15, I might have been able to save myself 100 lbs of weight gain, along with a lot of headaches.

Go to your doctor!! If he/she won't listen (I don't know why, as you obviously have the cysts), then I would find a doctor who will.

Good luck!!

Get out of my way! I am racing to 199!


 
TMZ438's Photo TMZ438 Posts: 17
6/11/07 12:50 P

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Let me first say that I'm sorry you had to have the surgery and hope that you are recovering!

I was just recently diagnosed with PCOS and it was extremely emotional for several reasons. First, I was worried about the possibility of not being able to have children. I felt that since I'm single, would this prevent me from finding someone if I might not be able to have kids!? (So silly but it emphasizes how emotional I was.) I also was concerned about my health for the future. It was all very overwhelming at first and a little scary. I didn't even know that I could have it, autoimmune diseases (such as thyroidism, lupus and RA) run in my family, for the past 15 years I thought that is what was wrong with me. If only I had known when I was a teenager that I had PCOS!

Also remember that PCOS is not a death sentence! You haven't been diagnosed with cancer or something else terrible. Yes it sucks but avoiding a diagnosis doesn't change the fact that you have it (if in fact you do) and it only prolongs the symptoms you are having. Being diagnosed, although very difficult and bittersweet was the best thing that happened to me.

I always thought I was just really moody and couldn't figure out why I was always so depressed. Before I went on birth control, I had periods that would last for 14 days sometimes, I would go through two boxes of super tampons and two boxes of regular just for one period! By the time I got to college, my PMS was so bad that I had flu like symptoms for the two weeks of my period making class and working difficult, forget having fun. Reading other women's stories on SoulCysters.com helped so much for me to realize that other women were experiencing the same things. I didn't feel like a freak anymore or that I was weird. 'Symptoms' that I had for the majority of my life suddenly made sense.

I also was always frustrated that I could never lose weight, no matter what I did. Now that I'm on medication, my life is very different. Even though I was recently diagnosed, things have changed dramatically and quickly and life is much better.

Yes it is scary and it sucks having PCOS, but not finding out doesn't do any good for you to get well. You should want to rule out everything to find the cause of these problems, whether it is PCOS or something else.

Good luck and thanks for writing! We are all here to help you through this! emoticon

KEAL48 Posts: 3,434
6/11/07 12:28 P

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I WAS WONDERING IF SOME OF YOU ARE WILLING TO SHARE SOME OF YOUR PERSONAL EXPERIENCES WITH PCOS. SUCH AS DAILY LIFE AND STRUGGLES. I AM AFRIAD THAT I MAY HAVE IT BUT I AM AFRAID TO ASK MY DOCTOR. I HAVE DONE SOME RESEARCH AND AM VERY SCARED. I HAVE MANY OF THE SYMPTOMS: ACNE, OBESITY, HAIR IN MALE PATTERNS, IRREGULAR PERIODS AND DARK SKIN PATCHES. ABOUT 2 MONTHS AGO I WENT IN TO HAVE MY LEFT OVARY REMOVED BECAUSE I HAD A CYST THE SIZE OF A SOFTBALL ON IT. WHEN I SAW MY DOCTOR AFTER THE SERURY SHE SAID THAT I HAVE CYSTS ON MY RIGHT OVARY AND THAT I HAVE TO BE ON BIRTH CONTROL FOR THE REST OF MY LIFE OR I WILL LOSE THAT OVARY. I AM AFRAID TO ASK HER IF I HAVE PCOS BECAUSE I AM AFRAID OF THE ANSWER. IM NOT TRYING TO GET PERSONAL ONLY GET MORE INFORMATION. THANK YOU FOR YOUR STORIES.

~~*KAITLYN*~~


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