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AKONGTHONG Posts: 545
3/24/07 10:19 A

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You know, I say "low-carb", but after reading your post, I may be on more of a low GI diet. I DO eat some carb type foods, but avoid white breads, pastas, tortillas, etc. I almost limit my carbs, but not nearly as much as Atkins or South Beach, etc. recommend. For me... it's low-carb, because in the past I've always just had as much as I want. Now, I track what I'm eating and severely limit the amounts of breads and pastas that I eat.

~Amanda~
Wife & Mom of four

Jaggie - 13 years
Dominic - 6 years
Josie - 6 years
Christian - 6 years


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MINDY_SUE Posts: 2,021
3/24/07 7:04 A

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Hi Cherie - welcome to our team! I am so sorry to hear that you are having such a rough time. Amanda has given you some emoticon advice. Collette Harris has a couple of great books out on PCOS - you might want to check your local library, or half.com. Amanda was also right about soulcysters.com That is where I started out when I first heard of PCOS.The only advice I would change slightly would be the diet. I would do low GI instead of "low carb". Low GI allows you to have whole grains & low GI fruits & vegetables. It feels more like a normal way of eating. I used to be on a low carb atkins sort of thing and my daughter used to call it my "hunk of meat, hunk of cheese diet", and honestly that's how it felt. Now I eat at least 3, sometimes 4 apples or pears a day! It's a lot easier getting in the needed fiber following low GI. Finding the right doctor is also important. I am not a fan of the ones who push bc pills as the only option for controlling cycles.

melinda

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BLUEROSES9 Posts: 73
3/23/07 10:53 A

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Welcome to the board Cherie! I can completely sympathize with the doctor problem. Have you tried www.pcosupport.org? Their discussion boards have a thread for each state, and they may have suggestions for good doctors in the area, who actually understand pcos. That's how I found mine, and she's great. Good luck!

 
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CHERIEDESIREE's Photo CHERIEDESIREE Posts: 24
3/21/07 7:18 P

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thanks emoticon
It's nice to see I am not the only one in the world that goes through this. I'll keep on my doctors.

I'm hoping with losing the rest of the weight the symptoms wont be so bad as well :)


 
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JASMINES97's Photo JASMINES97 SparkPoints: (17,628)
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3/21/07 4:34 P

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Welcome Cherie! I don't have much to offer in the way of advice, as I never had to deal with what you are going through. However, I wanted to let you know that when I weaned my son, I also felt the PCOS symptoms come back in full force. :( It was so nice to have a break from things and then to get them back was such a bummer.

I really hope that you are able to find some answers. I've found that with doctors you really have to be proactive and PUSH them to help you. Sad, but true!

What we think, we become. - Buddha
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CHERIEDESIREE's Photo CHERIEDESIREE Posts: 24
3/21/07 10:35 A

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Thanks for the input :)

I will look into the vitex and give it a try. I am usually on a low carb diet and it seems to work best when I stick to it. I am lucky that I am more of a meat and cheese person but when I'm tired I eat everything! Thank you So much for all your help. All of this has really made me feel much better and not so alone.

The doctors here are limited, the hospital here has less then 30 beds and I am not too confident in any of the medical personal I have found so far. I grew up in CT and it seemed over there was much more better as far as the doctors are but I'll keep looking.

Thanks again :)

 
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AKONGTHONG Posts: 545
3/21/07 10:11 A

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I wish I were closer to you so I could offer a name of a more sympathetic doctor, but I'm all the way down in Texas, so I'd be no help there.

I absolutely don't mind sharing any info with you that may help. First off, let me point out by saying I take far fewer supplements than a lot of women with PCOS who do the herbal thing, too. I just didn't want to do so much that it overwhelmed me. I take a women's multivitamin from GNC (sounds like you're already covered in that area). I also take Vitex (which studies show can help to regulate your hormones and happens to be one of the main supplements a lot of PCO women take), Cinnamon (can help regulate blood sugar), and I just started taking Biotin. Studies have shown it can help with patients who have diabetes... can help with thinning hair and brittle nails. I can't give you any real feedback on the Biotin, because like I said, I just started it.

I found a lot of this info on a website dedicated to PCOS... I think it was http://www.soulcysters.com, but I'm not positive of the url... I'll try to check it in a bit and get back to you.

Are you on a low-carb diet? If not, I would recommend you discuss it with your doctor (if he's ever in the office). It's been shown to help quite a few women on PCOS. My fertility doc put me on it prior to my second IVF procedure and I lost 20 lbs. in two months. I've been on it again for the past month and a half and have lost 25 lbs.

Now, as for the period issue... I'm very very irregular. I can easily go three to four months without one and then it will often last for a couple of weeks or more when I finally get it. This is something the vitex is supposed to help with, although it can take up to 6 months to kick in, from what I've read. I've been on it for about a month and half, and from time to time, I feel like I'm getting ready to start... it just hasn't happened yet. But I've heard of women starting and getting "regular" within anywhere from a couple of months to six months on Vitex.

Let me say that I am NOT a doctor, so please do research before taking anything. I don't necessarily recommend anything outright, rather I'm just giving ideas that you could research and put forth to your doctor.

Back to the issues of a period... prior to my first IVF cycle, my docotr put me on birth control (Desogen, which was what I took after the birth of my oldest son). I bled for about two to three months before starting my cycle. Naturally, I was pretty worried, but when I called the office to let them know, they said it's not uncommon to have a really long period like that if you haven't had one in a long time and that once I started my fertility meds, it should stop within a couple of days... which it did. So I can't help but wonder if you're having a similar, although longer, experience.

If your doctor isn't taking you seriously, I would highly recommend you switch doctors and stick with one who you feel truly cares about your well-being.

If you have any other questions or just want to vent... whatever... feel free to do so. I know there are other ladies on the team who have quite a bit of info as well... and I'll try to be as much help as possible. Just don't give up. I know sometimes that's easier said then done, but you're worth the effort.

Amanda

~Amanda~
Wife & Mom of four

Jaggie - 13 years
Dominic - 6 years
Josie - 6 years
Christian - 6 years


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CHERIEDESIREE's Photo CHERIEDESIREE Posts: 24
3/21/07 9:54 A

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Thanks Amanda,

I am from New Hampshire, White Mountain area. I think your 100% accurate. The doctors up here don't see it as a life or death situation so they just don't take is seriously. . . I am willing to try anything! I do take a multi vitamin, what kind of herbal supplements to you take? if you dont mind me asking. I'll look into them.

I did call my doctor again this morning telling them I am willing to even try the mini pill and monitor the blood pressure and weight gain.. even if its just a monentary relief for a little while I would feel much better.. but the nurse said my doctor was away (again) and since I am not bleeding heavily it's nothing to be concerned about.. I guess bleeding for 5 months straight isn't that big of a deal to them emoticon

 
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AKONGTHONG Posts: 545
3/21/07 9:41 A

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I'm so sorry to hear about your struggles. I've never had symptoms to the extent that you describe, so I can't speak definitively, but I take multivitamins and a couple of herbal supplements. If nothing else, I feel better since starting those. However, I haven't had the same issues (extended period, passing out, etc.). If you feel comfortable posting your general location (maybe at least your state) somebody who lives in that area might have a recommendation for a doctor they use. Some docs just don't know how to help their PCOS patients and/or don't think it's that big of a deal. It may benefit you to find a doctor that has a proven track record with other PCO patients.

I wish I could be more help. I sure the other ladies on here will have something to add.

Good luck...

Amanda

~Amanda~
Wife & Mom of four

Jaggie - 13 years
Dominic - 6 years
Josie - 6 years
Christian - 6 years


 Pounds lost: 9.0 
 
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CHERIEDESIREE's Photo CHERIEDESIREE Posts: 24
3/21/07 9:02 A

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Hi All,

I'm new to this team. I started spark people last summer and did great! I lost 75 pounds! Then in September I started getting a little sick and the PCOS symptoms started to reappear (due to me weaning my son) By December I started a period which I thought was great (since with the PCOS I wasn't getting one for years with out meds) It's the end of March now and I'm still bleeding. I have went through many doctors in my area and many tests. At one point they where even afraid I had Ovarian cancer. Once all the tests came back they and all the results pointed to PCOS they had No solution for me. The Pill causes extreme weight gain and high blood pressure in me and the Glucaphage causes me to bleed very heavily. They told me to keep my feet up and try to relax which that and the PCOD has caused me to gain 20 pounds back. Last week I caught a normal stomach flu but do to my lowered immune system I became so sick I passed out a few times from sugar levels dropping (due I guess to the glucaphage) I am so desperate I even asked the doctors to remove all my female body parts!!

Has anyone had this happen to them? My doctors up here seem to have no clue what to do and just keep sending me off to another doctor who in return shrug their shoulders. I guess since I'm not dyeing they are not taking in seriously. But my quality of life sucks right now. I guess do to all of this I have became so depressed and my anxiety level has sky rocketed, they put me on Paxil (which is the only reason why I am even able to write on here at all) I was about to just give up, I guess I did. With this new meds I am able to feel a little more hopeful but still I have had No treatment that works.

Any advice?

Sorry for such a depressing hello, I am just desperate emoticon

 
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