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KACEYSW's Photo KACEYSW Posts: 1,980
5/8/13 3:14 P

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My symptoms didn't match everything either, but I am finding I feel better when I follow my PCOS program than when I don't. I hope you find the answers you seek.

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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WANDERLUSTROUS's Photo WANDERLUSTROUS Posts: 482
5/8/13 10:45 A

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I don't think I have PCOS. My doctor said, "she had no doubt" I have it. I have every doubt.

I have low blood pressure. My weight gain has spread evenly throughout my entire body (not just around the abdomen). I don't have male-pattern baldness or thinning hair. I don't have breathing problems when I sleep. I don't have unwanted hair growth. I did have bad acne for about a decade, but it's healed in the past year (without medical intervention).

I've been off birth control for 2 cycles so far. I've been charting using the natural family planning method. I was comparing my chart to a "healthy" woman's chart and a woman with PCOS's chart. Mine have looked like the healthy woman's chart. I'm showing all of the signs of text book ovulation.

Maybe 2 cycles is speaking too soon. I don't know.

I'm waiting to get my blood test results of my testosterone, progesterone, and estrogen. I have a suspicion they're all going to come back normal.

She never checked to see if there are cysts on my ovaries- she said it wouldn't be worth the money or time.

I also don't think I'm insulin resistant. I've never gotten checked for anything beyond my fasting glucose and glucose tolerance. Both came back as spot on normal. She said it wouldn't be worth the money to take an insulin tolerance test because she was so sure I was insulin resistant. I started taken Metformin about a week ago. I just don't think I'm going to see any results from it.

I've been eating low carb for over 12 weeks now. (Original Atkins induction plan, no fake sugar, exercise, whole foods, etc.) I'm not seeing any results. I think this goes much deeper.

I'm no doctor, and I'm going to defer to the experts. I just have a feeling this is the wrong diagnosis.

"The unexamined life is not worth living." -Socrates


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JULMUT's Photo JULMUT SparkPoints: (20,952)
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5/7/13 3:44 P

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I was diagnosed based on the symptoms... overweight, type 2 diabetes, facial hair, thinning hair on my head, irregular periods.

I never had an ultrasound like some people do. I did have blood work which showed that my hormone levels were normal actually. That's kind of strange for someone with all those symptoms, but the diagnosis stood and the explanation for it was that the hormone receptors were not working, therefore the symptoms were manifesting because those hormones were not being processed properly.

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KACEYSW's Photo KACEYSW Posts: 1,980
5/5/13 1:45 P

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I was grateful to be diagnosed after so long. I am glad you are finding some resolution!

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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DOROELLIS's Photo DOROELLIS SparkPoints: (8,550)
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5/3/13 8:27 A

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MRSYATES84 - From what I understand, there are many different problems that can occur physically and hormonally, but it is an endocrine disorder, characterized by high testosterone and low progesterone.
At least that's how I understand it.

As for how I was diagnosed, I went to my gyn for a random period that would NOT end, which had never happened to me. She wanted my period history, so I gave it to her, and along with other symptoms she immediately suspected PCOS. I'd been to several doctors before about my regularly skipping 2-3 months, and they said "normal" and that the cysts that I also wen to the ER for was "normal". Anywho...she ran blood tests and did an u/s. I had many cysts on my ovaries, low estrogen and progesterone, elevated testosterone, and insulin resistance. Between all of that, I think it's a fairly solid diagnosis.
Further, when I eat low carb, I feel better, and the metformin has helped me immensely, my period is now 4-5 weeks rather than months.

Doro - EST Timezone

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REDTHREN's Photo REDTHREN SparkPoints: (10,936)
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5/2/13 8:48 P

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In my teens I had horrible cystic acne, facial hair, weight gain, and irregular and very painful periods from the time they started when I was 10. My regular doctor wrote it all off as puberty. I saw a different doctor than my PCP for a sinus infection, and she checked all my hormone levels and ordered an ultrasound, all or which confirmed PCOS. I received my official diagnosis on my 18th birthday.

Edited by: REDTHREN at: 5/2/2013 (20:49)
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MRSYATES84's Photo MRSYATES84 SparkPoints: (11,629)
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5/2/13 7:45 P

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I first started having crazy symptoms when I was 13 years old, sudden weight gain even though I was super active in sports and a period that would not end. I spent most of my teenage years being dragged through tests and doctor appointments. It wasn't till I was in my mid 20's that I was truly diagnosed with PCOS, very casually my doctor just said, "you have PCOS." It wasn't till another doctor ran hormone tests on me and found that my testosterone was crazy through the roof that I felt that the PCOS diagnoses was solid. I don't have cysts on my ovaries (at least last time they checked) but I do have facial hair, weight gain around my mid section (very hard to lose), crazy long periods that have made me anemic and acne all around my chin.

I think the term PCOS is a really broad diagnosis because it appears to me that each woman who has it has different issues with it.

Edited by: MRSYATES84 at: 5/2/2013 (19:45)
Check out my blog at findingaskinnierme.blogspot.com/ I write a lot about my experience with PCOS and the obstacles of losing weight!


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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (92,786)
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5/2/13 6:53 A

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They diagnosed me after having issues losing weight, facial hair, and blood work and abdominal scan. Visible symptoms were the weight gain and the facial hair. Blood work showed my hormones out of whack, then they confirmed it with the scan, viewing many cysts on my ovaries. I've had some of those cysts rupture before, the first time (before diagnosis) I thought I had appendicitis and went to the ER it hurt so bad. I have my next yearly check up on 9th. I'm hoping the hormone levels are getting better. My hubby and I are trying to get pregnant.

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KACEYSW's Photo KACEYSW Posts: 1,980
5/1/13 6:00 P

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My diagnosis came with multiple hormone tests and symptom tracking for a period of 3 years. It took far too long to get diagnosed.

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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WANDERLUSTROUS's Photo WANDERLUSTROUS Posts: 482
5/1/13 4:31 P

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Hi all,

Just curious- how were you all diagnosed? My doctor has "no doubt" that I have PCOS, but I don't have any obvious symptoms aside from: a) the inability to lose weight; and b) acne that has actually gone away since I started low carb.

I have no unwanted hair. I have no balding. I don't think I have mood swings aside from what I think would be normal for a women during that time of the month. I'm not depressed. My thyroid levels are "within range" but I'm on Armour Thyroid because they're not optimal. Same situation with my vitamin D.

I follow Atkins to a T (the 70's version- no artificial sweetener). I eat very clean. I consume less than 10 net carbs per day. I exercise. I take very good quality probiotics, fish oil, vitamin D, and a multivitamin. (I'm talking spending over $125/mo on these suckers because my doctor told me these are the best quality- she has no financial stake in whether or not I purchase them. Don't worry). BTW- I still don't lose weight. (I lost about 2 pounds 10 weeks).

My cholesterol is perfect (my bad cholesterol was actually "too low" according to my doctor). My cycles appear to be normal. I use a natural family planning technique and my temperature, CM, and dates seem perfectly normal since coming off the pill 2 months ago. I had a glucose tolerance test done (but they did not check my insulin levels at the time) and my numbers were spot on normal.

I just got back from getting blood work. The doctor is checking my estrogen, progesterone, and testosterone levels.

Back on point: how were you diagnosed? Do you feel the diagnosis was solid?

Edited by: WANDERLUSTROUS at: 5/1/2013 (16:32)
"The unexamined life is not worth living." -Socrates


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