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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (106,312)
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11/19/14 7:07 A

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Great job on doing research to find out. I had no clue what it was until I was diagnosed not long after my hubby and I tried to start having a baby. Well that was 4 years ago, and we have been trying for 5. I'm not giving up on the baby thing, I want it bad enough I hope that I get blessed with one. I am doing what I can go get myself healthy, I definitely prefer the natural routes, so any information you can share on that side would be great!

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ODDMENTTWEAK Posts: 1,759
11/18/14 1:21 P

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Hi ladies, I started suspecting that I had PCOS last year after going off BC for the first time in ~7 years in June 2013 and not having a period until October 2013. I spent most of 2014 trying to figure out what was going on and did a LOT of research. I live in a very rural area so haven't seen a specialist to be diagnosed, but started my own regimen of nutrition and exercise changes, as well as fertility supplements like EPO and Omegas and inositol.

Happy to say that AF came today for the first time in over a year! I'm really excited to be able to start tracking from CD1 instead of guessing where I'm at.

"I am only one, but still I am one. I cannot do everything, but still I can do something; and because I cannot do everything, I will not refuse to do something that I can do."
- Helen Keller


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COOKIEMON13's Photo COOKIEMON13 SparkPoints: (5,453)
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10/31/14 10:36 P

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My doctor put me on Aldactone for my facial hair growth. The birth control I was on made it so I had to shave twice a day. I've been on the medication for about 4 months and now I can go at least 2 days without shaving. :)

I know your pain with losing weight. Every time I start an exercise regime I end up gaining 10 pounds so I've decided to go with the flow. PCOS sucks and it's something we don't choose but we can choose to be happy with what we are dealt with.

Smile! It makes you feel better :)


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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (106,312)
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10/30/14 6:49 A

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Every doctor is different and will say something different. I had a doctor that told me I am just fat and I need to work harder at not being.
Then I got another doctor who diagnosed me with PCOS without even having an ultrasound because of the hormone fluctuations in my blood work, etc. Just because they did not see any cysts on the ultrasound at the time does not necessarily mean you do not have PCOS. To me it sound like you definitely have high levels of Testosterone, usually a big sign of PCOS. You will know all your hormone levels once you seen the endo.

Stay positive ladies, I know we will get there, it's just a much slower process for all of us.

Interested in joining a team, I lead the following teams:

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4MEIWILLDOIT Posts: 539
10/29/14 12:37 P

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Hi. Just thought I would add to the discussion here. My periods have been sporadic for years. I have to shave my face every day since I have so much facial hair, I have skin tags and I am really struggling with trying to loose weight. In June they said I had PCOS and they did bloodwork. The blood work showed an elevated DHEAS level. They told me again I had PCOS.....fast forward to today when I got the results from my ultrasound and they saw no cysts so now they say I don't have PCOS. Now they are just telling me I am not doing enough... that I am not trying enough that I need to make changes or I will have major health issue.
I have read that not everyone that has PCOS has cysts so now I am not sure.
I am frustrated. I am trying so hard. I see an encrinologist in March but I am struggling and at my appointment today they said "Calories in and calories out" ...take less in and exercise more so you use more calories. This is what I have been doing and I told her so and I got the feeling that she didn't believe me since the laws of science are if the out is more than the in then I should be loosing. She told me that I am not accurately reporting my intake or exercise. I am sorry for venting but I wondered if anyone had similar experiences.
THanks

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COOKIEMON13's Photo COOKIEMON13 SparkPoints: (5,453)
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9/22/14 5:53 P

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Thank you so much for all of you help!

Smile! It makes you feel better :)


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STEPHBISLOSINIT's Photo STEPHBISLOSINIT SparkPoints: (2,993)
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9/22/14 9:39 A

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I've been there! I actually lost the majority of my weight while a poor graduate student. It is tough. Every person is different, and everyone's body reacts differently but the thing that helps me the most with weight loss is exercise. I know it is so cliche in the health world, but try adding in fitness all day with little things like parking farther away, walking instead of driving etc. I bought the fit bit one for myself and it is SUCH a motivator. Trying to get to 10,000 steps a day (the recommended amount of steps for a healthy heart as recommended by the American Heart Association) has been such a motivator. By adding in little activities during the day and working out at night my weight has gone down and it seems to be the push my body needs to make the scale move.

Does your campus have a gym? Sometimes exercise science majors, personal training programs or physical therapy students will offer free sessions for students so they get the experience.

Drinking lots of water and trying to get in all of the recommended fruits & veggies is great too! Filling up on whole foods makes it so you don't have room for anything else.

I will also say, that with PCOS I've noticed my body hates changes. Whenever I make a exercise or diet change my body seems to hold on to water for a bit and then I will see the scale move. Don't be discouraged by seeing the scale go up, it might just be your body playing tricks on you! The scale is not our friend with PCOS, trying using other guides to see your progress such as measuring yourself or trying on a pair of pants that you are a goal of yours to get into.

Edited by: STEPHBISLOSINIT at: 9/22/2014 (09:47)
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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (106,312)
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9/20/14 1:28 P

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I've been that poor college student. There are actually some great articles here on spark on how to shop on a budget for healthy things. Definitely watch ads for the grocery stores, usually there is some type of fruit or veggie on sale, even frozen veggies are ok, you can find those for 99 cents a bag most places.

Drink lots of water and cut out all soda, etc. This will make a huge difference also. Are you tracking everything you intake? This includes liquids. You can eat things not so good for you in moderation, but you need to measure and track them to keep at your calorie intake.

Interested in joining a team, I lead the following teams:

Wii Exercise - www.sparkpeople.com/myspark/g
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Where my ladies at? - www.sparkpeople.com/myspark/g
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COOKIEMON13's Photo COOKIEMON13 SparkPoints: (5,453)
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9/15/14 6:54 P

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I'm adding more fruits and vegetables and trying to limit my carb intake but I'm a poor college student so cheap food is packed full of unhealthy simple carbs. My doctor said my insulin was normal (thank God) but I still need to watch my diet.

Smile! It makes you feel better :)


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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (106,312)
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9/15/14 3:39 P

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Have you changed your eating habits? One way I've found that works well with PCOS is a low glycemic index diet, cutting out refined carbs and sugars makes a big difference. A lot of us PCOS girls are insulin resistant.

Interested in joining a team, I lead the following teams:

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Where my ladies at? - www.sparkpeople.com/myspark/g
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COOKIEMON13's Photo COOKIEMON13 SparkPoints: (5,453)
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9/15/14 1:14 P

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I need help! I've had PCOS since I was a teenager but never really cared. But now that I'm trying to get a handle on it, I've improved my diet, and exercising regularly But besides my best efforts for a month now, I've gained weight instead of losing it. Am I doing something wrong?

Smile! It makes you feel better :)


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MSHEL7's Photo MSHEL7 SparkPoints: (66,330)
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9/4/14 10:31 P

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I didn't know all of that, but I love it with popcorn. I may try it with all the other stuff too. Thanks for the info. Good luck with the metformin. Glad to see you on the feed.

What does the Lord require of you? To act justly and to love mercy and to walk humbly with your God. Micah 6:8 NIV

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DESTYNEE1311's Photo DESTYNEE1311 SparkPoints: (11,532)
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9/4/14 5:10 P

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Thanks guys. I just started my 1st day of metformin. I started eating low carb. It's a work in progress. Also.. my Dr told me to use virgin coconut oil.. for everything. He said its one of the best super foods that are overlooked and he uses it everyday. I looked into it and it looks amazing actually. So I went to the grocery store and bought some. Gonna give it a whirl. Massaging into your scalp.. anti aging.. hormone balancing.. metabolism boosting.. ya sound good to me! lol

Dez
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KACEYSW's Photo KACEYSW Posts: 2,669
8/30/14 10:39 A

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Welcome Destynee. This is a great group of caring women who "get it!" Glad you are here!

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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MSHEL7's Photo MSHEL7 SparkPoints: (66,330)
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8/30/14 10:31 A

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I liked metformin, it helped me get to a place where I could get off of it. I watch my carbs as well and it really isn't as hard as it seems and you will feel so much better when you get the processed stuff out of your system-you won't want it near as much after that. Good luck.

What does the Lord require of you? To act justly and to love mercy and to walk humbly with your God. Micah 6:8 NIV

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DESTYNEE1311's Photo DESTYNEE1311 SparkPoints: (11,532)
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8/30/14 2:14 A

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Hey all.. I am new to the group. I went to the Dr. today and they now have orders to take my blood work. Although without it, he is certain I am type 1 pcos insulin resistant. He seemed very informative and was really nice thank god. today has been a horrible today. After reading how our bodies store all carbs as fat etc.. I have become very down. I have known I have had it for quite awhile now, but never got diagnosed.
I have changed my lifestyle after gaining SO much weight. Not understanding how someone can gain so much weight so fast. I tend to be one that just "deals" with things instead of finding out what is wrong and correcting it. Well, it had become to much that I HAD to do something about my weight. I eat healthy, and exercise daily and can't seem to get that scale down. Gah!

So, my Dr. said I need to be on a low GI diet. and eat no more than 40carbs a day! 40!!! When I go low carb I have trouble going below 60. It all seems so much to take in but I have to do what I have to do. Any other pointers? I just want to be healthy.. be at a normal weight and hopefully soon have a child. I'm 37. Ya, I need to do this or I have to accept I might never get that chance.

edit: also! Apparently I was also exercising to much! he put me on 30mins a day high intensity. I will also be on metformin 500mg. I hope it works for me.

Edited by: DESTYNEE1311 at: 8/30/2014 (02:15)
Dez
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BROOKEFLINN's Photo BROOKEFLINN SparkPoints: (710)
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8/6/14 9:03 P

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Please remember that it's not TOTAL 100 grams per day but a NET 100 grams per day if you are attempting to do a low carb diet.

This makes a huge difference as if you are doing a total then you end up having to stop eating veggies just to get your carb count low, but many veggies are mostly fiber so the carbs net out. It does limit your fruit intake quite a bit though.

You may also want to try to either cut back on dairy or eliminate that as well.

Good luck!



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AYLADAKORA's Photo AYLADAKORA Posts: 150
8/6/14 10:27 A

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Hello ladies, thought I would just jump into the discussion here. I was dignosed with PCOS two years ago, and I just now decided to start researching on how to help myself. My symptoms include weight gain, hair loss, infertility, and extremely painful periods. I am not trying to get pregnant though, but I am wishing to lose weight and help my hair stop thinning out with that dumb "mail pattern baldness"

I am not big on taking meds, so right now I am changing my diet around to include less refined carbs and sugars. Already feeling less bloated, but it is so hard to get my carbs around 100grams a day. (is it grams? lol)

I had heard of the raspberry tea, and I might try that to help east the monthly pain ease up a bit. I miss a lot of work and I cannot afford to do that anymore. Normal pain meds just aren't working anymore.

I have leared a good deal from reading this thread. Thank you

The Now is all the matters


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MSHEL7's Photo MSHEL7 SparkPoints: (66,330)
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6/26/14 12:17 A

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Heidi, my son was born at well, between 23 and 26 weeks, they were never really sure, he was a pound 13. He is 14 now. What a blessing you had with your daughter they had learned so much more by the time my son was born.
My body holds the weight as well. I'm working at it though. Keep working, you can do it. Wishing you the best.

Edited by: MSHEL7 at: 6/26/2014 (00:18)
What does the Lord require of you? To act justly and to love mercy and to walk humbly with your God. Micah 6:8 NIV

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HEIDI_MILLETT SparkPoints: (433)
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6/25/14 10:51 P

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Hi There,
I've also had a oblation done. I also have one daughter. She was born at 25 weeks and weighed 1 lb. 9 oz She will be 22 this October. I still need to loose a lot of weight. My body seems to hold on to it no matter what I do. I'm really trying though.

CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (106,312)
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6/12/14 4:59 P

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PCOS sucks...that's all

Interested in joining a team, I lead the following teams:

Wii Exercise - www.sparkpeople.com/myspark/g
roups_individual.asp?gid=31930

Where my ladies at? - www.sparkpeople.com/myspark/g
roups_individual.asp?gid=1440


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MSHEL7's Photo MSHEL7 SparkPoints: (66,330)
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3/22/14 11:42 P

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I'm just wondering if anyone out there has heard of any natural ways to get rid of cysts after they are already growing? I know that a healthy diet can keep them from growing, but I've already got one that is getting quite large and wondered if anyone knew anything new and wonderful to help with them? Thanks for any info at all.

What does the Lord require of you? To act justly and to love mercy and to walk humbly with your God. Micah 6:8 NIV

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AMEENA5's Photo AMEENA5 Posts: 1,419
3/22/14 12:01 P

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emoticon JMCALVEY! As much as some of these PCOS symptoms can appear the same for a lot of us....each person's case is different in some way when we take a closer look.

It sounds exhausting from what you've posted but I hope you're feeling better these days.

"There are some people who live in a dream world, and there are some who face reality; and then there are those who turn one into the other." -- Douglas Everett


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1/27/14 9:59 A

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I have PCOS and I have had it for 9 years. However after reading some of the postings mine is very different then some of the ones I have read. I found out I had PCOS because I was bleeding all the time. In order to get pregnant the doctors had to first stop me from bleeding all the time and then help me ovulate to to pregnant. The first one was a miscarriage the second pregnancy is a girl she is now 8. My second was another miscarriage. I was tired of bleeding all the time and having miscarriages that I had a discussion with my OB/Gyn and I decided to have an endometrial ablation. The reason for the ablation was because my doctor did not want me to have a full hysterectomy at my young age. So I gave up on wanting more children. Now I am still very over weight and I joined spark to see about losing weight and trying to get the ambition to do it. Still know ambition but I am sharing my PCOS story with you.

GABBY0913's Photo GABBY0913 Posts: 199
11/6/13 9:27 A

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Hopefully you'll get good news back on the test!!!

Army Wife, Crazy Cat Lady, PCOS Fighter.


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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (106,312)
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11/6/13 6:43 A

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I had my 6 month check up with the endocrinologist yesterday.
We need to wait on the blood work, but basically the next steps depend on if my hormone levels are getting better or not.
If my LSH and FSH levels are showing improvement, the next step is Chlomid. If they are not, they will be upping my metformin again mg wise and refilling my prescription for phentermine.

Guess we have to wait and see.

Interested in joining a team, I lead the following teams:

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TORIA1987's Photo TORIA1987 Posts: 1
9/18/13 11:58 P

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Sorry to hear about your losses. Due to PCOS I am infertile and have been trying to get pregnant for 5 years. I am plus size and really want to lose weight and hopefully have a successful pregnancy one day too. Good luck losing weight and becoming a mom. =) I hope we both get their one day. I need to lose 100+ pounds but with determination I know I will get their. My husband is my greatest Spark accountability partner.

Edited by: TORIA1987 at: 9/18/2013 (23:59)
KACEYSW's Photo KACEYSW Posts: 2,669
9/14/13 2:22 A

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Hi there:

Glad you are here, Balle. We are a very supportive group. One of the things that helps me stay on track is having an accountability buddy to whom I report my food success and exercise to each day. She does the same with me and we really root each other on. It gives me a reason outside myself to keep focused.

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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9/12/13 2:27 A

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Hello I'm New here i have lost 2 baby's so i want to the DR's to see what was wrong with me and i was diagnosed with PCOS and i was put one metformin to help with my cycle and thank god it is helping but I'm still not getting pregnant and now I'm trying to lose the weight so i can get healthy and get pregnant... I need Help with staying on track .......

Edited by: BALLE29 at: 9/12/2013 (02:28)
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8/30/13 7:47 P

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GMeissne1, I was going through the same thing as you 3 weeks ago. My stomach and back were killing me. I haven't had a period without birth control pills in years. After about a week of hurting I got a period. It was my first period without birth control pills since I started taking Metformin. When I was in pain I also didn't know what to look for. I think eating healthier and working out has done a lot of help.

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CLEVER13's Photo CLEVER13 SparkPoints: (4,465)
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8/9/13 11:08 P

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Has anyone here tried Inositol? It comes in pill and powder form. I heard taking that supplement along with folic acid helps tremendously with hirsuitism and regulating your period. Just a thought. I am about to start taking those supplements this week and update anyone if interested!

Just do it. No one else will do it for you.

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7/27/13 11:56 A

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Warning: About to get a little gross.

The last week or so I have been really pissy, and just sort of stressed and angry. I snapped a bunch at Greg and even at the kids. My stomach was killing me last night for like an hour, and I couldn't figure out why. Then I ate a jr cheeseburger from wendys, a medium fries, and a medium coke (my first soda in over 2 months). It was DELICIOUS. I also have had a hard time sleeping. I also weighed myself midweek (which I try not to do, but I was bored and waiting for an elliptical) and I had GAINED BACK 2 lbs!!!!!! I was not happy, but I figured maybe I had retained water or was building muscle and then I ran extra hard. I was sort of wondering why I was so moody, and then...BAM! Mother Nature visits.

I don't usually have a period at ALL, and when I do, I usually just have a little spotting and don't get moody, because the hormones aren't that strong. HAH! The problem with never getting a period is that you aren't used to the symptoms, so I wasn't putting two and two together!

The upside, is that in the last month or so I am learning to deal with my stress/anger/anxiety/etc through exercise, rather than food. This may be the reason I am getting a period now. Some research has shown that just by reducing her weight by 10%, a woman with PCOS can reduce symptoms and begin to have a cycle.

ANYWAYS....just thought I would (over)share.

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7/20/13 3:36 A

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Cassandrajd I have the same no period problem. My period completely stopped when I was 18 years old and I am now 26. The only thing that helped me get my period is provera or birth control pills. But I am on birth control pills right now, have been for the past three months and I haven't had a period by taking them. So I stopped taking them. I want to be a mother so bad. It's very depressing. I was on Metformin 1000 mg twice a day and it did nothing for me. My insulin level never changed and I had bad side effects. I got switched to Metformin ER today. I'm hoping I will have better luck with that and I also made the decision to be put on clomid after I get back from vacation.

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7/19/13 12:06 A

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For me PCOS has definitely ruined my life. It is one of many reasons I am having a difficult life!
One of my biggest problems with this condition is that I lost my period! When I was a teenager and in early adulthood I had 1 or 2 periods a year and now for the past 4 years I haven't had it at all! I am afraid that I won't get to have kids! That is the most important thing to me! I don't want to live if I can't biologically have children! I am afraid because of my struggles to lose weight and my living situation and other problems that I won't ever get better! I want to badly but, I don't have much inspiration right now! Anyone else lose their period for a few years or more?
I feel like I have menopause but, I don't know if I do since I am 25 years old and I was told by the doctor last year that I didn't have it but, now I am worried I might now!

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7/18/13 11:53 P

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To Brooke I think dizziness can be a side effect that goes with nausea maybe! I know some people get dizzy when they experience nausea. You should always try to eat something right before you take the metformin and that should help! I am not sure but, it could be from a different medication if you take others it could be the way the medications interact with each other but, if your dizziness doesn't go away after a week or so then you probably should go to the doctor! Also metformin doesn't cure pcos and it won't take away most of the symptoms.
What it does is it helps lowers the blood sugar! The only side effects that I know of are Nausea and lactic acidosis. I have only experienced nausea a few times because I hadn't eaten for a while and took the pills without food in my system!

I hope I understood what you said! I hope this helped some! If not sorry! Maybe someoneelse can help you also!



Edited by: CASSANDRAJD at: 7/18/2013 (23:59)
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Alright ladies, I have a question about Metformin and our lovely friend PCOS.

I was first diagnosed with PCOS the 2nd week of June due to high testosterone, (and high prolactin!) missed cycles, weight gain, and acne. It was an endocrine system crapstorm of systems and I couldn't control them no matter how much I dieted and I could exercise because I felt exhausted ALL the time. I was put on metformin - 500mg a day for a week then 1000mg a day from there on out. I couldn't move up that fast (the post below made me feel much more normal, so thank you!) so I am just starting to tolerate about 750 mg - a pill and a half.

Except I now have other problems. I am still having breakouts, I've missed ANOTHER cycle, and now I get dizzy, ringing in my ears, and feeling like I'm going to pass out. Its a VERY scary feeling!! Its been mostly happening at night as I try to fall asleep, but today it seems to be a constant feeling. I ate and feel a little better, but I'm sure in an hour or so I will be feeling that same wave of dizziness!

Has anyone ever had an adverse reaction like that to Metformin? My concern is that I'm not actually IR and the Met is hurting rather than helping. Maybe I should just be on BCP? Or maybe I haven't given it long enough to get into my system?

Also, for those of you who had trouble with your weight before your PCOS diagnosis - did you find taking BCP made you gain weight or had no effect in that instance?

ANY advice is so very much appreciated! I am new to this whole PCOS thing and I feel like my body is going crazy AGAIN!

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6/4/13 9:45 A

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Hi, I have PCOS and no thyroid anymore, had it removed due to throat constriction. There is a helpful group on spark teams called thyroid community that I belong to as well. Take the metformin dosage guidelines slowly, I could not tolerate it when I went to 1000 the first few times. This last time, I stayed at 500 for a month before going up to 1000 and it is helping with side effects. I have a hard time with nausea with it, or most pills, like birth control pills. If you have facial hair or other hair that is not wanted, adding spironolactone can help. Welcome to the team!




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Yes, please share!

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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What website were you on?

DDAMPIER09 Posts: 2
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Wow! That's a lot of great information! Thanks!

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5/13/13 11:38 A

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Welcome to the team, BarbieQueen! Getting diagnosed can be very tricky. I had very similar experiences to yours!

We're glad you are here. Know you are appreciated!!!

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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Hey, Girls I was just diagnosed with pcos. I knew for years that i had pcos, but the doctors kept on telling me that my ovaries were fine even though my periods during my teen years would come down for months or not come at all. As I started losing weight and drinking Red Raspberry tea (I read it could regulate me) my periods started coming down every 40-42 days and last seven days. With the summer I ended up gaining weight almost 30 pounds because of an under active thyroid and my period did not come down for three months when it did it wasn't the usual menstrual cycle, but it ended. In February of this year I kept on spotting pink blood for a month and i though i maybe had a kidney infection, so i rushed to the ER and they said it was a cyst on my left ovary and that they are common. In March I had nothing but heavy bleeding and nothing would help, I made an appointment to the gyno and he did tests and told me it was my thyroid and that according to his blood work i do not have pcos, so i was started on lo dose birth control, but when my period came down it was pure hell and I mean hell I had heavy bleeding, bad cramps, and I was vomiting i spoke with the gyno and he told me to stop taking them. At this point my Endo already told me i had pcos and started me on met 500 once a day for the next two weeks and as of next week i can increase the dose to twice a day.

Does anyone have any tips for me on how to deal with pcos?

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I agree, Mrs. Yates! The other thing that really bothers me is that we are all looked at with disdain by some medical professionals.

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I think they also lump all of us into the same boat under one umbrella term of PCOS but I have noticed that PCOS can mean so many different things for so many different women. I personally know food affects how I feel and the only way I have felt any better is by severly reducing my processed carb and sugar intake. While other women with PCOS can eat a little more flexible of a diet and it doesn't seem to affect them as much. Such a frustrating condition!!!

Check out my blog at findingaskinnierme.blogspot.com/ I write a lot about my experience with PCOS and the obstacles of losing weight!


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Most doctors are still so unfamiliar with the effects and symptoms of PCOS it is easy to go undiagnosed or misdiagnosed for decades. That is what happened to me. I was only diagnosed 3 years ago despite years of medical appointments with all manner of "experts."



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I just found this team, and all of our stories are so similar. PCOS is a cruel disease, but I have to remember to be thankful that it can be managed, unlike some other diseases out there. I'm 38 years old, and have had a total of 4 miscarriages. I too had a reproductive endocrinologist flat out tell me I was just too fat to maintain a healthy pregnancy (I was probably around 160 lbs at the time). It's been a frustrating road. I can't take birth control pills because my fertility workup came up positive for clotting problems, so I'm currently back on the metformin route. My weight is a total yo-yo, but I can tell you that the only thing that works for me is counting/tracking calories, and maintaining a good exercise schedule. The insanely frustrating part is that this routine has to be constant, the minute I "slip up," the weight piles right back on. I love some of the tips the rest of you have given, and from my experiences, I totally agree with everyone. Even though this sucks, it's great to have support from others going through it. And also, for those of you who are trying to conceive, don't give up! I stayed persistent and now have an 8 year old son, and 7 year old triplet daughters. There was a point in time that my husband and I just resigned ourselves to the fact that it wasn't in the cards for us to have kids, but I'm so glad we persisted. They're the loves of my life!

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Oh my, that rings a bell. I wasn't diagnosed till I was in my early 20's. I spent most of my teens at doctor appointments trying to figure out why my period wouldn't stop. I even had my ovaries checked out and no cysts. Finally a doctor said to me, "you have PCOS, you need to lose weight." How?? I had been struggling to lose weight since I started gaining it at age 13 and I was an active kid.

Finally years later they have done so much more research, there is so much information out there and there are so many books to read. It is simply amazing. Turns out, food was my enemy. By controlling my diet, I have been controlling a lot of my symptoms, though it doesn't 100% go away and of course I slip up because no one is perfect.

We are all trying to find the balance I think and each have a story. I am so glad there is a community like this to be able to relate with each other!

Check out my blog at findingaskinnierme.blogspot.com/ I write a lot about my experience with PCOS and the obstacles of losing weight!


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I saw a link for this website
Eating a specific PCOS Fertility Diet is one of the best things you can do to improve your chances of becoming pregnant.

A big part of the problem with PCOS is the high insulin resistance. Resistance to insulin increases the body’s insulin levels which effects normal ovulation by preventing the body from ovulating or limiting the maturation process of the released egg.

This directly has an affect on your fertility and ability to conceive.

Women who are insulin resistant are also 4-5 times more likely to have a miscarriage. Imbalanced insulin levels due to PCOS make it difficult for the embryo to attach properly to the uterus.

PCOS is also a huge red flag for the beginning of type 2 diabetes.

I do not say all this to scare you, but I do want you to know that this is a serious matter. But there is a lot you can do to turn this all around, naturally. The biggest step you can take is to change your diet to a PCOS diet.

The benefits of following a PCOS Diet are:

Increases the rate of spontaneous ovulation.
Significantly improves the environment of the uterus, preparing it for a healthy conception.
Decreases the potential for miscarriage
Prevents PCOS from turning to diabetes
PCOS Diet Guidelines
1. Balance your daily protein with equal amount carbohydrates

This will help to eliminate the insulin yo-yo. When you eat equal amounts of proteins and carbohydrates this helps to keep your insulin at a balanced level, thus increasing your fertility.

Low-carbohydrate, high-protein diet helped insulin resistance. High-carbohydrate, low-protein diet made insulin resistance worse.
-Medical Journal Metabolism; no. 12: 1481-1487

A diet containing 25% carbohydrates improved insulin resistance, whereas a diet that included 45% carbohydrates did not
-International Journal of Obesity and Related metabolic Disorders 20 no. 12:1067-1072

The types of carbohydrates you choose are also an important factor. Choose whole grain, or sprouted grain products. They contain more protein and fiber (thus balancing insulin better) than the processed counterparts. Avoid white processed carbohydrates which cause a spike in your insulin levels and provide no fiber, or nutrients.

Some examples of whole grain and sprouted grain products are:



Ezekiel breads
Whole spelt- pastas and breads
Quinoa – pastas, flour, grain
Millet- breads, grains, cereal
Brown Rice- cereals, breads, grain
The best place to find these foods are at your local health foods store or Whole Foods Market.

Make sure the proteins you are eating are complete and organic. Organic meats and dairy contain essential fatty acids and will not contribute to any hormonal imbalances.

2. Eat low glycemic index foods

Low glycemic index foods are carbohydrates that break down slowly in the body, and don’t case such a dramatic spike and drop in insulin levels.

Some examples of low glycemic index foods are:

Any vegetables
Whole grains
Unprocessed foods
Fibrous foods
Carbohydrates that break down quickly are likely to make the insulin levels jump dramatically.

Avoid foods that have a high glycemic index such as sugary and starchy foods: pancakes, syrups, sugar, white potatoes, jams, scones, white bread products, pasta.

3. Eat a diet high in fiber

Fiber helps in two ways with PCOS. The first way they help is by slowing down the digestion of sugars in the body, so there is no spike in insulin. The second way they help is by removing excess estrogens from the body, which may also help to reduce fibroids.

Great sources of fiber are: broccoli, celery, whole grains, Ezekiel bread, apples, and dark leafy greens.

4. Eat 5 meals a day

By eating more often, the body will not go into fasting mode. When you look at the way most Americans eat, it is usually three big meals a day. With such a large gap of time between meals the body goes into fasting mode which causes the metabolism to become imbalanced.

The five meals a day should consist of three regular meals and two healthy snacks or 5 small meals. The first snack should be eaten in the mid-morning before lunch and the second snack to be eaten less than an hour before bed. Between eating 5 meals a day and eating a serving of protein (3-4 ounces), starch (1/4-1/2 cup), vegetables (1/2 cup to 1 cup) each meal, you will also experience weight loss.

Here is what the 5 meals a day could look like:

Breakfast (right away, when you wake up): 2 eggs scrambled with spinach + 1/2 cup oatmeal
Snack: Protein shake with organic milk, banana and spirulina
Lunch: Organic Turkey sandwich on whole grain bread with carrot sticks and hummus on the side
Dinner: Organic chicken with steamed broccoli and half a yam
Snack (less than an hour before bed): organic yogurt with granola and 1/2 teaspoon spirulina
You could have your last snack between lunch and dinner, eating your dinner right before bed. Find out what works best with your lifestyle.

5. Eat essential fatty acids daily

Eating essential fatty acids (EFA’s) helps you to lose weight, produce balanced hormones, and creates a healthy environment for conception.

The best source of EFA’s is Fish Oils, and Evening Primrose oil.

Omega 3 EFA supplement- Take 1-3 capsules daily with your snack. Make sure to use an oil that contains DHA which is essential for the baby’s healthy brain. You can take this daily and during pregnancy.

Evening Primrose Oil- Take 1500mg of this oil from day one of your cycle (menstruation) till ovulation. Evening Primrose Oil helps to increase cervical mucous and metabolic function. Use in addition to the flax or cod liver oils.

6. Exercise 30 min. 5 days a week

Exercise helps PCOS by improving your insulin sensitivity, increasing your metabolism and helping to shed any excess weight. Both aerobic and resistance exercises are good. Researchers found that participants of resistance exercises showed better improvement in insulin sensitivity than with aerobic exercise alone.

You could walk and lift weights or take a Pilates class and run on the treadmill. Discover what you enjoy doing and do this 5 days a week for at least thirty minutes.

7. Eat Organic

You will be eating a high protein diet, so it is essential that any animal proteins (meats and dairy) you are eating are organic. In commercial meats there are large amounts of added hormones (estrogens) that make the animals grow bigger, faster, and produce more milk. With PCOS there is usually a progesterone deficiency and adding more estrogens can make it even worse.

Studies have shown that organic foods contain more vitamins, minerals and healthier proteins.

8. Quit Coffee

Caffeine increases estrogen levels. A study from Fertility and Sterility shows that drinking just two cups of coffee a day boosts levels of estradiol, a natural estrogen. Women who drink 4-5 cups of coffee a day produce 70% more estrogen in the follicular phase of the menstrual cycle (when the body is trying to produce a viable follicle for ovulation, which is already and issue in women with PCOS.)

If you need help getting off the bean, check out Teccino. It is a coffee alternative that tastes great and is alkalizing for the body.on another thread and thought I would share some highlights:

Eating a specific PCOS Fertility Diet is one of the best things you can do to improve your chances of becoming pregnant.

A big part of the problem with PCOS is the high insulin resistance. Resistance to insulin increases the body’s insulin levels which effects normal ovulation by preventing the body from ovulating or limiting the maturation process of the released egg.

This directly has an affect on your fertility and ability to conceive.

Women who are insulin resistant are also 4-5 times more likely to have a miscarriage. Imbalanced insulin levels due to PCOS make it difficult for the embryo to attach properly to the uterus.

PCOS is also a huge red flag for the beginning of type 2 diabetes.

I do not say all this to scare you, but I do want you to know that this is a serious matter. But there is a lot you can do to turn this all around, naturally. The biggest step you can take is to change your diet to a PCOS diet.

The benefits of following a PCOS Diet are:

Increases the rate of spontaneous ovulation.
Significantly improves the environment of the uterus, preparing it for a healthy conception.
Decreases the potential for miscarriage
Prevents PCOS from turning to diabetes
PCOS Diet Guidelines
1. Balance your daily protein with equal amount carbohydrates

This will help to eliminate the insulin yo-yo. When you eat equal amounts of proteins and carbohydrates this helps to keep your insulin at a balanced level, thus increasing your fertility.

Low-carbohydrate, high-protein diet helped insulin resistance. High-carbohydrate, low-protein diet made insulin resistance worse.
-Medical Journal Metabolism; no. 12: 1481-1487

A diet containing 25% carbohydrates improved insulin resistance, whereas a diet that included 45% carbohydrates did not
-International Journal of Obesity and Related metabolic Disorders 20 no. 12:1067-1072

The types of carbohydrates you choose are also an important factor. Choose whole grain, or sprouted grain products. They contain more protein and fiber (thus balancing insulin better) than the processed counterparts. Avoid white processed carbohydrates which cause a spike in your insulin levels and provide no fiber, or nutrients.

Some examples of whole grain and sprouted grain products are:



Ezekiel breads
Whole spelt- pastas and breads
Quinoa – pastas, flour, grain
Millet- breads, grains, cereal
Brown Rice- cereals, breads, grain
The best place to find these foods are at your local health foods store or Whole Foods Market.

Make sure the proteins you are eating are complete and organic. Organic meats and dairy contain essential fatty acids and will not contribute to any hormonal imbalances.

2. Eat low glycemic index foods

Low glycemic index foods are carbohydrates that break down slowly in the body, and don’t case such a dramatic spike and drop in insulin levels.

Some examples of low glycemic index foods are:

Any vegetables
Whole grains
Unprocessed foods
Fibrous foods
Carbohydrates that break down quickly are likely to make the insulin levels jump dramatically.

Avoid foods that have a high glycemic index such as sugary and starchy foods: pancakes, syrups, sugar, white potatoes, jams, scones, white bread products, pasta.

3. Eat a diet high in fiber

Fiber helps in two ways with PCOS. The first way they help is by slowing down the digestion of sugars in the body, so there is no spike in insulin. The second way they help is by removing excess estrogens from the body, which may also help to reduce fibroids.

Great sources of fiber are: broccoli, celery, whole grains, Ezekiel bread, apples, and dark leafy greens.

4. Eat 5 meals a day

By eating more often, the body will not go into fasting mode. When you look at the way most Americans eat, it is usually three big meals a day. With such a large gap of time between meals the body goes into fasting mode which causes the metabolism to become imbalanced.

The five meals a day should consist of three regular meals and two healthy snacks or 5 small meals. The first snack should be eaten in the mid-morning before lunch and the second snack to be eaten less than an hour before bed. Between eating 5 meals a day and eating a serving of protein (3-4 ounces), starch (1/4-1/2 cup), vegetables (1/2 cup to 1 cup) each meal, you will also experience weight loss.

Here is what the 5 meals a day could look like:

Breakfast (right away, when you wake up): 2 eggs scrambled with spinach + 1/2 cup oatmeal
Snack: Protein shake with organic milk, banana and spirulina
Lunch: Organic Turkey sandwich on whole grain bread with carrot sticks and hummus on the side
Dinner: Organic chicken with steamed broccoli and half a yam
Snack (less than an hour before bed): organic yogurt with granola and 1/2 teaspoon spirulina
You could have your last snack between lunch and dinner, eating your dinner right before bed. Find out what works best with your lifestyle.

5. Eat essential fatty acids daily

Eating essential fatty acids (EFA’s) helps you to lose weight, produce balanced hormones, and creates a healthy environment for conception.

The best source of EFA’s is Fish Oils, and Evening Primrose oil.

Omega 3 EFA supplement- Take 1-3 capsules daily with your snack. Make sure to use an oil that contains DHA which is essential for the baby’s healthy brain. You can take this daily and during pregnancy.

Evening Primrose Oil- Take 1500mg of this oil from day one of your cycle (menstruation) till ovulation. Evening Primrose Oil helps to increase cervical mucous and metabolic function. Use in addition to the flax or cod liver oils.

6. Exercise 30 min. 5 days a week

Exercise helps PCOS by improving your insulin sensitivity, increasing your metabolism and helping to shed any excess weight. Both aerobic and resistance exercises are good. Researchers found that participants of resistance exercises showed better improvement in insulin sensitivity than with aerobic exercise alone.

You could walk and lift weights or take a Pilates class and run on the treadmill. Discover what you enjoy doing and do this 5 days a week for at least thirty minutes.

7. Eat Organic

You will be eating a high protein diet, so it is essential that any animal proteins (meats and dairy) you are eating are organic. In commercial meats there are large amounts of added hormones (estrogens) that make the animals grow bigger, faster, and produce more milk. With PCOS there is usually a progesterone deficiency and adding more estrogens can make it even worse.

Studies have shown that organic foods contain more vitamins, minerals and healthier proteins.

8. Quit Coffee

Caffeine increases estrogen levels. A study from Fertility and Sterility shows that drinking just two cups of coffee a day boosts levels of estradiol, a natural estrogen. Women who drink 4-5 cups of coffee a day produce 70% more estrogen in the follicular phase of the menstrual cycle (when the body is trying to produce a viable follicle for ovulation, which is already and issue in women with PCOS.)

If you need help getting off the bean, check out Teccino. It is a coffee alternative that tastes great and is alkalizing for the body."



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RACEFORLIFE's Photo RACEFORLIFE Posts: 62
1/28/13 11:23 A

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Hi :) been reading down the list and i have to agree with Christina... Metformin is fabulous. I however cannt take it due to other medical conditions. Its mainly a diabetes drug so most docs wouldnt ordinarily think of it. Mine did and its supposed to help weight loss as well as with facial hair. Its a shame I had to come off it.

somthing i have been recommended is "green tea tablets" this is supposed to have the same effect as drinking 100 cups of green tea a day, cleansing the system. I havent tried this yet. Ill let you know.

Any tips and advice for me? Im on slimming world and doing ok, but would like to do better.

Danielle xx

My Son is my world, my Angel and my Life Saver.
Good luck and best wishes :D


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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (106,312)
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1/24/13 6:45 A

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I agree, you never know what life will throw your way.

I have had no success of having any children of my own yet, but I refuse to give up either. Been trying for almost 3 years now pretty diligently. All I can do is hope and pray it's in my cards to be a mother...


Interested in joining a team, I lead the following teams:

Wii Exercise - www.sparkpeople.com/myspark/g
roups_individual.asp?gid=31930

Where my ladies at? - www.sparkpeople.com/myspark/g
roups_individual.asp?gid=1440


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KACEYSW's Photo KACEYSW Posts: 2,669
1/24/13 12:40 A

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Christina, I am very happy for you that you were able to have children. You are truly blessed.

I do set small goals for myself and treat myself to a manicure for those. I have larger goals that I work on daily, and have appropriate rewards set for those, as well, when things like auto repairs or the need for a new fridge don't get in the way... Life will always occur on its own schedule that way! Lol.

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (106,312)
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1/23/13 8:02 A

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for small goals that I achieve I treat myself to a pedicure or something nice and relaxing, for bigger goals, maybe a new outfit or piece of workout equipment, etc.

Interested in joining a team, I lead the following teams:

Wii Exercise - www.sparkpeople.com/myspark/g
roups_individual.asp?gid=31930

Where my ladies at? - www.sparkpeople.com/myspark/g
roups_individual.asp?gid=1440


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CHRISTINAMM0580's Photo CHRISTINAMM0580 SparkPoints: (18,589)
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1/23/13 7:43 A

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Ameena5, I notice that when I eat to many carbs, I am fatigued for days. I think the key is balancing fat, protein, and carbs.

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CHRISTINAMM0580's Photo CHRISTINAMM0580 SparkPoints: (18,589)
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1/23/13 7:42 A

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For those of you who say you have conceived once and lost it, have you used metformin at all. I was diagnosed with PCOS at 17 after having no period for 3 months (they were never regular from the time I started having them). The doctor then offered me no hope. She told me I could take birth control to regulate and that I would never be able to have children without medical intervention. I tried several bc pills and had side effects from all of them. Then an article came out in a magazine linking PCOS to insulin resistance and I went to an endocronologist who immediately put me on metformin. I stayed on it for a year and by the time I turned 21, I had lost 70 lbs. I got pregnant and had a miscarriage when I was 24. I maintained a healthy weight after that without metformin. I did not try to get pregnant until July 4, 2006 and much to my surprise I became pregnant within a month and in April 2007, I became a mommy. I had another child in 2009. During these pregnancies I gained a lot of weight, my periods became irregular again and facial hair came back. I am now back on metformin and my periods have become regular again and the weight is coming off. If it weren't for metformin, I probably wouldn't have lost the weight in the first place and been able to have 2 successful pregnancies. It really helps then when you are able to lose the weight, your hormones stabalize. I hope this helps and gives you hope.

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AMEENA5's Photo AMEENA5 Posts: 1,419
1/22/13 5:51 P

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Do you guys reward yourselves when you achieve your goals? What do you do?


"There are some people who live in a dream world, and there are some who face reality; and then there are those who turn one into the other." -- Douglas Everett


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1/22/13 4:24 P

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Yes, I'm almost always fatigued. I just try to eat, exercise and sleep the best that I can. The better choices I make, the better I feel...

Dream as if you'll live forever. Live as if you'll die today.
-James Dean

If you have to tell someone how bad you want it, then you haven't shown them how hard you already work for it.
-John Mayer

Whether you get what you want isn't what defines you. It's how you go about your business.
-Scott Jurek






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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (106,312)
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1/22/13 6:59 A

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I know everyone is different and every has different symptoms, you just need to find a sleep pattern that works for you and what can help you boost your energy. I'm sure you will get there. Have you started seeing and endochronologist yet?

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AMEENA5's Photo AMEENA5 Posts: 1,419
1/21/13 9:45 P

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Thank you for sharing your tips. I'll start focusing and seeing if my sleep is poor.

"There are some people who live in a dream world, and there are some who face reality; and then there are those who turn one into the other." -- Douglas Everett


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CHRIMSONFYRE's Photo CHRIMSONFYRE SparkPoints: (106,312)
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1/20/13 1:09 P

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Yes at times I do have a lot of fatigue. I try to get 8 hours daily of sleep and taking vitamins n do even a ten minute walk first thing in the morning seems to help

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AMEENA5's Photo AMEENA5 Posts: 1,419
1/19/13 9:13 P

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Do you any of you deal with constant fatigue? How do you deal with it?

"There are some people who live in a dream world, and there are some who face reality; and then there are those who turn one into the other." -- Douglas Everett


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1/18/13 6:54 A

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I have also conceived once and lost it. So far no luck again since. But I feel you, when before I was finally diagnosed, they just kept telling me I'm overweight and that is why I can't have children. Now that I know why I'm doing my best to control the weight and be healthy. It's a struggle every day, but at least every day I am getting closer to a healthy me :)

What kind of natural remedies are you using?

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AMEENA5's Photo AMEENA5 Posts: 1,419
1/17/13 5:18 P

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XANGELSTEARZX I am so sorry for your earlier experiences. God I remember the very first specialist I saw. To say I was devastated from what he said is an understatement. Not to mention that the medicine he prescribed (and I took) was a horrifying experience.

I think at times I put too much trust in others instead of trusting my gut.


"There are some people who live in a dream world, and there are some who face reality; and then there are those who turn one into the other." -- Douglas Everett


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XANGELSTEARZX's Photo XANGELSTEARZX SparkPoints: (36,882)
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12/10/12 10:42 A

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I was finally diagnosed in 2006 but before that I was told by an endocrinologist (yes, the "specialist" that was supposed to solve all my problems) that I was just "too fat to be fertile." I blew a gasket it cost so much to go to him and he was "fat" himself.

After my diagnosis I refused to believe for years. Finally after getting over the pain of mean doctors telling me I was just fat I started researching on my own the things that PCOS consists of. I have all the symptoms they just never identified any "cysts" on my ovaries. Which is probably a good thing that's one less hurdle.

I manage mine with diet, exercise and herbs/vitamins. After so much time of trying I finally got pregnant but did lose it because of extremely low progesterone. But, that's a HUGE accomplishment to my husband and myself because I managed my PCOS on my own well enough to even get pregnant.

Thanks for sharing your story I'm glad to know it wasn't just me playing the impossible diagnosis game. I will for sure look up that book. I hate taking prescription meds for PCOS. I'm currently on Metformin and it makes me horrible sick.

Edited by: XANGELSTEARZX at: 7/24/2013 (19:19)
-C. Range


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12/5/12 6:52 A

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I was diagnosed a bit over a year ago, after different diagnoses and something similar about the weight. I am not familiar with the book you speak of but I am definitely interested in helping myself with natural remedies any way I can! I am going to look into the book you mention

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KACEYSW's Photo KACEYSW Posts: 2,669
12/5/12 12:24 A

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There are many things in life that can throw people curves that make life much more challenging than one would hope. PCOS has been that challenge for me. I share this information with you so you can understand my journey before we walk this challenge together.

From the time I was young, I was always on the chubby side.Like I am sure many of you were, I was teased mercilessly as a child and as a teen (as if being a teen wasn't awkward enough). No matter what I did, what fad diet pills I took, or how much I exercised, the weight kept piling on. I fell into the trap of the late 70's and early 80's of using all kinds of harmful things to try to lose weight.

After many trips to the doctors and numerous endocrinologist appointments with dismal results (either a verdict of "stupid/fat/lazy syndrome" [yes, that was actually a doctors statement], or no discernible response at all), I gave up.

Fast forward 30 years and, thankfully, the medical field has so much more information than they did back then. 5 years ago, after a lifetime of wondering what was wrong with me, I finally received a diagnosis that made sense of my inability to lose weight or have any semblance of positive body image...PCOS. That said, the diagnosis was only part of the puzzle...I am still learning the keys to fighting this battle successfully and hope to share what I have learned here.

One of the resources I have learned to appreciate is the book, Prescriptions for Nutritional Healing (Phyllis Balch). It has helped me get some of my body chemistry regulated. Other parts have been assisted by my amazing doctor. There are still other aspects of this disorder that defy logic and reason. Resolution to those are under constant pursuit in my world.

This has been a frustrating (but interesting) journey thus far. I hope what I have learned will be helpful for you as we walk this complex path together. Please feel free to share your stories so I can learn what our combined needs are as a group.

Edited by: KACEYSW at: 12/5/2012 (00:26)
Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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