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CHILDLIKEMPRS SparkPoints: (293)
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1/30/12 4:04 P

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@NTREASE1
Well glad they tested you for that. They did the fasting glucose?

I moved away from my PCOS Dr. and cannot find a new one. I have had to tell the doctor what to prescribe me and what to test me for and she still got it wrong and admits to having no experience, but refuses to refer me to an Endo. SO frustrating. And I've switched doctors 3 times in the last year.

I think PCOS could still be causing the weight issues for you. Everything seems to operate differently w/ PCOS and there are tons of cysters without IR that still struggle with the weight issue. I assume that your docs have ruled out thyroid issues as well since they seem competent.

And even with all the tests, "normal" may not be your normal and often times they measure things that indirectly indicate this or that- like the insulin test. They measure your insulin levels, which are usually high in people with IR, but there is no actual test for your body's resistance to insulin. You might have to experiment and try things that worked for others and hopefully find something that your body responds to. Don't give up!






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NTREASE1's Photo NTREASE1 SparkPoints: (5,197)
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1/30/12 3:02 P

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@ CHILDLIKEMRPS My doctorís did check my insulin levels, sugar levels, all kind of hormones etc. With my family history and then wanting to confirm her diagnoses my doctor had 8 vials of blood drawn for numerous tests that spanned 3 pages in length. I went over them and remember insulin and sugar along with multiple other tests that I canít even remember all of now.

My doctor told me that my weight gain may be from PCOS and sounds like it but that the blood work did not confirm that it was affecting my metabolism. So wasnít really sure if anyone else had been in the same situation where it was PCOS playing a part in their weight issues without being insulin resistant.


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CHILDLIKEMPRS SparkPoints: (293)
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1/30/12 2:18 P

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RE: Insulin Resistance

@ NTREASE1 I am wondering how your doctors were certain you were not insulin resistant? The glucose tests alone do not tell you this, they would have to test for your insulin levels as well. Some people consider insulin resistance and prediabetes to be the same thing, but they are definitely not. I am not pre-diabetic, but I have IR. I was never a small person, but I was within healthy ranges until about age 17. My periods were never regular though.

@MR2011 I think insulin resistance/PCOS does play a large part of weight gain and the carbohydrates have the biggest effect. I have read pretty much everything there is to read about IR, PCOS, and how carbohydrates are processed. The short of it is that carbs/sugars/glucose in our blood remain in our blood and get stored as fat instead of being converted into energy like it should be. This makes us feel tired and lack energy, which makes our body tell us we need to eat more carbs/sugars/glucose, which continues the cycle. And the lack of energy is not exactly great for an exercise regimen either so as others have mentioned... the vicious cycle at every level. The other annoying part, our brain is missing out on that immediately available energy too.

Low carb diet is the best way to reverse this. This will lower insulin levels, which will help with all the PCOS garbage we are dealing with, including weight. This weight loss will help increase insulin sensitivity, (exercise will help too, but diet is most important). With more insulin sensitivity, everything gets better.

This lifestyle really worked for me. (I didn't exercise enough to credit that). Then this past year life happened and I stopped paying attention. I gained 40 lbs over 6 months! But now I am back on it and seeing changes already. The first week is the hardest, but now I have energy all day and don't really crave things. It feels like my brain is working better too. I don't count calories and all my carbs and sugars come from veggies and legumes.

I would try it out for a month. If you don't see any changes, then you don't have IR and you have your answer.

And yes, it is SO irritating and depressing when someone eats garbage and gains nothing, but if I eat a banana, it is pretty much stored in my body like a twinkie.


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LIBELULITA's Photo LIBELULITA Posts: 2,099
1/28/12 3:47 A

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The real experts in the field are the first to admit that they don't know all lot about PCOS yet or even to what extent it affects us.I personally DO believe that it DOES affect weight even if you're not insulin resistent...yet.I wasn't at first either but it can come with more weight gain. My endocrin who was one of the pioneers who investigated the uses of Metformin over 20 years ago (and used me as a guinea pig) explained to me all those years ago that PCOS is a viscious circle: it causes weight gain and then that worsens the symptoms .The more weight you gain the worse it gets,and the worse it gets the more weight you gain.

I used this as my excuse for years conveniently forgetting the other part he said which was that this viscious circle works in reverse too: the more weight you lose the less servere the symptoms which aids weight loss which alieviates the symptoms. This is as true as his first statement.

To start losing weight with PCOS is depressingly difficult because the body resists and works against you,but when it starts going and the hormones have time to react it gradually starts to get faster.

There is a fab site called PCOS Diva where she says that she believes that refined carbs and sugars are the main culprits in exasperating PCOS and after having tried so many other diets I decided to test out her theory of "clean eating" .That was almost 5 months ago and 74 pounds ago so I do believe that she is right in her theory. I have also noticed improvement with hirustism and after only 2 periosd in 4 years I've just had 3 periods in a row!! Whatsmore in the analysis from the endocrin my testosterone levels (although still high) are markedly lower. May I add that I've been taking daily supplements of Choline Inositol which when I ran out of them for 3 weeks is the only time I "plateaued".When I started again I started losing again. Coiincidence? Maybe...but I don't want to run out again to see if it was or not ;)

I hope this can be of some help because I traded off the excuse (although TRUE) of my PCOS for over 20 yrs now until I realised that a miracle was never going to appear and that it was time to find my own solutions.

I wish you every success on your journey.

If you want be a butterfly then you you have to want to fly so badly that you are prepared to give up being a caterpillar.


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NTREASE1's Photo NTREASE1 SparkPoints: (5,197)
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1/27/12 5:58 P

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My doctor said I wasn't insulin resistant and because I'm not insulin resistant then PCOS isn't affecting my matabolism. So essentially they were saying it's not playing a part in me fat. However, I ate the same way from when I was active to when I wasn't. Yes I gained some weight after I stopped being active but it was 10lbs and I could live with that. Then after a year into marriage (after I gained another 20lb's with Depo Vera) I gained 37lbs out of nowhere. No activity level change or eating different foods. At one point I spent 1-2 months eating 1300 calories and spending 1-2 hours 5 days a week at the gym. I lost 3lbs. Very dissapointed and frustrated. I am now on metformin and hoping that will get the symptoms and things under control so that losing weight is easier. But am I wrong for thinking even though I am not insulin resistant that PCOS may be part of my weight gain issues?

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CAMIE11 SparkPoints: (64)
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1/24/12 4:54 P

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Excess weight gain is one of the symptoms of pcos. Most of the people with pcos have weight problems. I started having symptoms when I was 14. My first surgery was then. I was told at that time that I would never have children. I was not diagnosed until 1995. I started metformin at that time and have felt a lot better while taking it. I had lazor hair removal for my face which was expensive, but I would do it again. It doesn't completely remove the hair, but most of what is left is much lighter. I have taken the metformin now for 16 years and would like to get off of it. I'm just tired of taking pills. I am close to menapause age. Can you stop the metformin at menapause? I tried a couple months ago and had migraines for 9 days straight. I have been cutting down on the pills. I usually only take 1-2 day now instead of 3. It is much harder to keep the weight off without it though.

BALDWINJ_03's Photo BALDWINJ_03 Posts: 1,218
11/19/11 12:33 P

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No Robin, I have never heard that but I may ask my Dr about it. I can't keep going this way...

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ROBINC821's Photo ROBINC821 SparkPoints: (2,537)
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11/18/11 9:59 P

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I'm amazed that the experiences here are so similar. My weight explosion happened this past summer. 25 pounds packed on from June - Mid August. Even after starting Metformin I've gained 10 more. I used to be pear shaped as well and this is all belly fat. Ugh. You know, I've heard that the brand name Glucophage works better than the generic Metformin. Metformin has done nothing for me. Maybe I'll switch to brand name. Anyone else hear this?

Robin


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BALDWINJ_03's Photo BALDWINJ_03 Posts: 1,218
11/17/11 8:48 A

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I was put on Metformin 6 months ago and have no lost any weight b/c of that. All the Dr's and others that I have discussed this with said that once I was on that medicine that I should be seeing results b/c it should be controlling my insulin. I'm frustrated. Any one else have this problem?

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MR2011's Photo MR2011 SparkPoints: (345)
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11/15/11 6:39 P

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It sounds like most you all are having similar experiences that I have had. One of the main reasons I am convinced that most of my current weight gain is PCOS related is that it is mostly around my midsection. I have always, always been pear shaped, wearing a smaller size on top than on bottom. Now it seems like all my weight is going to the middle. Ugh. It's so discouraging. I have been taking Vitex/chasteberry and evening primrose oil for a couple of weeks now, and I think it may be helping. I haven't weighed in a couple of weeks, though. I don't think my doctor will put me on metformin because she said my blood work didn't indicate insulin resistance, although I have lots of the symptoms of it. I keep hoping that if I can just endure breaking through the intial plateau and begin losing weight that my symptoms will improve, and as symptoms improve the weight loss will get easier. Maybe?

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JULMUT's Photo JULMUT SparkPoints: (20,964)
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11/14/11 3:46 P

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CHRIMSONFYRE - its the same for me. couldn't lose weight for anything until i was put on metformin

Dream as if you'll live forever. Live as if you'll die today.
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11/14/11 6:25 A

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I don't know how much weight comes from PCOS, but I do know that now that they have put me on metphormin I find I can actually lose some with the efforts I've been trying for months. I was going to the gym and eating very little calories yet would not lose a pound...now they pounds are coming off (only 10 so far) but that is amazing to me! I definitely think PCOS makes weight loss more difficult, but I can't be sure as to how much of my weight is from that and how much is I used to eat too much.

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LIBELULITA's Photo LIBELULITA Posts: 2,099
11/14/11 1:10 A

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I would say that PCOS could easily account for a least 28 pounds of excess weight,and maybe a much 35. Why do I think this? Because whe my weight "explosion" happened I was 22 and working as a professional dancer.I had always been more or less the same weight but suddenly within 6 months I had gained 30 pounds with NO reason why...I was the same dancer in the same jog,same hours of rehearsals and performances (ie/exercise!!) and same food.It was devestating to someone who's body image is vital to their work,but even with severe dieting could only get 10 of those pounds off.The rest of my weight piled on after I'd had to give up being a dancer (too fat) and even though I was teaching the exertion is nowhere near the same...and I started eating...and eating...more and more as things got worse. BUT-the initial weight gain was pure PCOS.

If you want be a butterfly then you you have to want to fly so badly that you are prepared to give up being a caterpillar.


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MR2011's Photo MR2011 SparkPoints: (345)
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11/14/11 12:34 A

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So how much do you think PCOS really affects your weight? I have fought the scale ever since I was 12, so I know part of my problem is that I am lazy and I like to eat lol. However, I have never had weight "explosions" like i have had in the last two years. Literally, I bought a pair of jeans one week, and two weeks later they wouldnt zip. Talk about a self-esteem crusher! My calorie intake is not super high, but the weight refuses to budge. My sister and I eat virtually the exact same meals on a daily basis ( except she downs about 60 oz of mt dew per day) and she weighs about half what i do. I uswd to gain up to a certain point from
Poor lifestyle choices, but then I would start to lose it. Now the scale keeps climbing and it is hell to make it go back down. What do you ladies think? How big a role does pcos play in your weight? ( excuse typos please, i am typing from my phone lol)

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