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BELROSA's Photo BELROSA Posts: 697
5/10/10 5:47 A

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Well those are words I can never hear often enough :D

You're very welcome, it's my absolute pleasure! I'm so glad you found it useful and that you've persevered and gotten the tests you need. It baffles me that it's so hard.

I haven't had any follow up tests done since 2005. I went to the closest thing I have to a GP (I've been 3x in 8 years) and asked for a hormone panel, Vit D levels, Thyroid tests etc. He argued with me for an hour and a half!! before pushing the pathology form over to me and telling me to write whatever I wanted done. Sigh. I'm just so thankful that I have a background that gives me the knowledge (and a painful personality that gives me the tongue) to argue for 1 1/2 hours over what I know is right. It must be SO HARD for all the women who don't have health/science backgrounds to get the information, diagnostic tests and treatment that they need.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
ANBURROWS01's Photo ANBURROWS01 Posts: 17
5/9/10 10:31 A

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Hi Belrosa,

You are exactly right. They never ran the right tests. I did my own research and I it took a lot of manipulation on my part to get a form from the doctor so that I can have the proper test done (so my insurance can pay for the test). I am having the HbA1c test done on Friday along with a list of other tests.

I took a look at your site and plan to spend some time there a little later. Thanks so much for taking the time and providing this much need information.

BELROSA's Photo BELROSA Posts: 697
5/9/10 4:40 A

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The more important question is: did the doctor/s run the right tests in the first place and do they know how to interpret them. More often than not the answer to this is NO.

If you have the classic 'string of pearls' multifollicular ovaries, then it is highly likely that this is a result of elevated insulin levels, in response to cellular insulin resistance. One of the most important tests to have is a Glucose Tolerance Test with Insulin levels that is run over at LEAST 2 hours. Sometimes, it is necessary to extend the test to as much as 5 hours, depending on the results. You will have a fasting blood sugar level and insulin level taken when you arrive, as well as an HbA1c - glycosylated haemoglobin, which is a long term indicator of average blood sugar levels. Then every hour they will take another blood sugar level and insulin level. Typically with insulin resistance, your blood sugar level will remain normal, but the insulin level will spike very high, bringing the blood sugar low. Although this is textbook insulin resistance, the majority of pathologists persist in reporting it as a normal result, because the individual numbers don't break out of the normal reference range. It is the pattern, the trend that they need to look at. If at the 2 hour mark, insulin levels are still elevated or BSL is dropping precipitously, the test should be extended.

Sorry this is so long, but this is so important to have done if you suspect PCOS. PCOS is such a red herring of a name - the underlying problem appears to be insulin resistance and if you focus on this, manage it, the other symptoms should go away.

Interpreting hormone levels can be more difficult than it appears as well, as they change depending upon what part of your cycle you are in. Just because they don't break out of the reference range, doesn't necessarily mean that there is no information to be gleaned from the levels of different hormones in relation to which day of your cycle you had the tests drawn.

Hope this helps, and good luck!


I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
ANBURROWS01's Photo ANBURROWS01 Posts: 17
5/8/10 6:17 A

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Hey Girrrlly Child,

I know that it gets extremely frustrating. Dr. #2 asked me when I started giving her information, Where did I get my medical degree from, I told her that I am an honorary medical doctor from the school of www.

I got the - "lose weight", "take metaformin" speech and I am thinking, "I came here because I am having problems losing weight...duh" emoticon .

I just take everything into my own hands because they have not been able to really help. I go online and I try to find out exactly what I need to know. I tailor my information around getting them to do the procedures that I want done and prescribing the test that need done so that my insurance can pay. Like I said Dr. #2 is a little more thorough and I am not sure if it is because she is female. For the past year, I have actually done a pretty good job of diagnosing myself based on the web.

I am going to give you at story, I have never been regular when it came to my periods. Without birth control (and prior to 2005)I saw my periods once a year basically. In 2005 I just started weight watchers and lost 50 lbs. I was a gym fanatic, doing step aerobics 3x/week, strength training class 2x/week and high impact aerobics on the other days. I faithfully went to the gym followed weight watchers and lost weight. During that time, my period came like clockwork, every month on time. For the first time in my life I had PMS - I am talking mood swings, cramps, tender breast the whole nine yards. I could even tell when I ovulated because I had cravings, believe it or not. I had to go to my doctor (Dr. #1 was out of office that day so his partner saw me) because I had a pain on the side of my hip (pulled muscle) and then explained these new painful periods and the symptoms. HE told me that my body was coming back into balance and that I was becoming more fertile. Only thing was that I had no husband so did not try to get pregnant. But it made sense. You always hear women say that when you start losing weight you get pregnant and I think that is kinda true. I have seen it over and over again.

I injured my knee in 2007 and had to have surgery, I could not get my previous momentum going and it could have been because life became stressful. Weight watchers did not work like it use to and could not get back in the gym like I use to because of the knee, so success did not come as quickly the first time. Right now I am trying to finish off my exams and then I am going to be fully focused on going back at it because I know that I can get back there.

I will gladly share with you all the information that I have from my doctors and my nutritionist, but don't get frustrated, the doctors don't seem to help much, so we have to help ourselves.

I look forward to taking this journey with you.

GIRRRLYCHILD's Photo GIRRRLYCHILD Posts: 605
5/7/10 10:57 P

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none of the drs i've seen have ever seen any reason to do an ultrasound on me, either. even tho i went in cuz i had been trying to get pregnant for like 3 years (and more) with no success.

"lose weight"

"try clomid"

that's it. i'm like, what if the problem isn't even anything clomid would fix? do i look like i have money to throw away???? my insurance would have paid for at least part of an ultrasound, not so much clomid. but thanks anyway. idiot.

(i kinda hate drs....)

~*anna~rae*~

"Be yourself, don't take anyone's sh!t, and never let them take you alive." ~ Gerard Way, My Chemical Romance


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ANBURROWS01's Photo ANBURROWS01 Posts: 17
5/7/10 7:25 P

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Don't feel bad, I have been going to the same OBGYN for the past 10 years who has been telling me that everything is fine. He is so nice, but never told me that I had PCOS, even after I had two cysts that got filled with fluid and became painful. Every year I went to him, I asked if everything was ok and if I would have any trouble getting pregnant when I was ready. Every year he told me that I was fine. Last year I decided to go to another dr. (who was female - never had female before) just based on our inital conversation, she told me that I had PCOS. She then examined me and did my ultra sound and confirmed it. She gave me the metaformin and told me to lose weight. After 2 months on metaformin no changes, so I came off. I keep both doctors and my nutritionist because I research what I need and then ask questions. I don't wait for them because many doctors today do not take the time to really evaluate you. I know that I need more blood tests done so I usually go to doctor number 1 because he is a push over and I tell him what I need done, then my wellness doctor helps me evaluate and I go the doc #1 and 2 to see what they have to say. I am going to see them all next month but I am doing all my test before I go so they can have the results and I will be educated enough to ask the right questions. I figure between the three of them, they can give me what I need. I know it is alot of work but I have come to realize that no cares more about me and what I need more than God and me.

MERCURYLEOPARD Posts: 5
5/7/10 4:17 P

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That happened to me too. Instead of going to an OB/GYN, try finding an endocrinologist that you can go to. PCOS is a type of insulin resistance, so an endocrinologist will be of more help when it comes to treating and diagnosing whether you've got this or not. Also, most OB/GYN doctors give out BC as a solution to PCOS. You obviously don't want that, since you're trying to get pregnant. An endocrinologist is more likely to give you medicine like Metformin, which doesn't affect your ability to conceive.

MUSICALBABE85's Photo MUSICALBABE85 SparkPoints: (22,827)
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5/7/10 11:42 A

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That is kind of weird that they wouldn't try that. I hope you get it all figured out. I found out I had PCOS when we couldn't get pregnant with our second child, so I understand the frustration you're probably going through!

Live everyday as if it's your last!


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ANGELFYRE020's Photo ANGELFYRE020 Posts: 56
5/7/10 11:38 A

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I have been wondering why no one has done an ultrasound on me yet actually. I thought for sure they would do one at my appointment yesterday. I'm in the process of finding a new primary and OBGYN so hopefully someone will help me a little more. Thank you for your insight! It's very helpful.

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MUSICALBABE85's Photo MUSICALBABE85 SparkPoints: (22,827)
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5/7/10 11:34 A

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Ask them about having an ultrasound of your ovaries and uterus done. All of my blood work came out normal, no prediabetes or anything like that. My testosterone levels were slightly elevated, and I do have acne excessive facial hair (hair all over really) mid region weight, etc. About every symptom, I've got it.

Anyways, my OB/GYN did an ultrasound and even I could tell that my ovaries were "full." They looked just like the pictures you find researching Polycystic ovaries. That's how I was "officially" diagnosed I guess. No questions once you actually see them, lol.

Hope this helps!

Live everyday as if it's your last!


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ANGELFYRE020's Photo ANGELFYRE020 Posts: 56
5/7/10 11:12 A

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Oh where to begin! I have been to my Primary care doctor who left a voicemail saying my lab results suggest I may have PCOS and when I called them back to get an appointment to see this doctor they told me there is no reason to see me (I just wanted a better understanding about all of this). I then called my OBGYN (who works in the same office) and they wouldn't see me either (even though I have been trying to get pregnant), I saw my midwife yesterday who is convinced I have PCOS but my lab results came back normal and I also have been to a nutritionist who specializes in PCOS and has put my on a low carb diet (and I have lost 6 pounds). I would like to see an endrocrinologist now. I'm running out of options.

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GIRRRLYCHILD's Photo GIRRRLYCHILD Posts: 605
5/7/10 11:08 A

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my lab results have all been normal, too. i don't know what it means. the dr that "diagnosed" me didn't impress me - his only recommendations for treatment were "lose weight" (but he didn't even ask if i'd like a referral to a nutritionist or anything) and "come back when you're ready for Clomid."

what type of drs have you been to?

~*anna~rae*~

"Be yourself, don't take anyone's sh!t, and never let them take you alive." ~ Gerard Way, My Chemical Romance


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ANGELFYRE020's Photo ANGELFYRE020 Posts: 56
5/7/10 9:24 A

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Hey everyone. I have had extensive blood work done by two doctors who are CONVINCED I have PCOS. I have acne, mild facial hair, excess weight on my midsection and that's about it. I stopped taking BC in September of last year as I want to get pregnant and my periods are pretty regular. VERY short, painful and heavy but I get one just about every month. I'm on 8 months of trying to get pregnant and have had no luck. My second batch of blood tests that I had done yesterday said my fasting glucose, lipids and hormone levels are all normal! The only test I haven't gotten back yet is my fasting insulin. Does this mean I don't have PCOS?? I'm so confused now! emoticon

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