I know how you feel, lucky for you you can have those tests done. All my OBGYN did was look at the ultrasound, saw noticeably that I had facial hair and asked me if I had back hair, saw all the medical problems I had in the past and said more then likely I had a mild case of pcos. IS THERE A MILD CASE? lol
But I feel your frustration, getting lost in all this mumbo jumbo medical stuff gets confusing and you want to understand it but you don't know where to begin.
My advice call your doc back and ask him to explain the results in a simpler fashion, also ask him what all this means and how the endo can help you.
I have been in your shoes so many times. I have found a pretty good endo. I didn't think when I first met her that I would like her. But I had to prove to her that I was willing to do the work and the she is know beliving in me. It is sad that sometimes that it takes that for a doc to listion but be in the hospital I see it all the time.
Hang in there and I hope you get what you are looking for.
240 SW 5-07 235 6-08 220 01/09 204 Current Wt. Goals 220 Aug 1st. (met 8-15-08) 215 Feb 14th Met 08/09 210 11/15/19 met on 12/10 205 11/26/09 met on 12/29/10 200 by Dec 1st 190 by march 5th
I totally agree - doctors are too rushed these days, and don't like to listen!
One thing that can also be happening, though, is that because PCOS is really a metabolic issue that happens to have gyno symptoms, actually treating it (as opposed to simply managing symptoms) is really outside the scope of a gyno's (and family doc's) training and practice. If you're lucky, you can get one that has had extra training or experience (perhaps even working with an endo), and will go ahead and treat the metabolic side of things, but really, all a gyno CAN do is check for cancer, try to encourage ovulation (if desired), and manage symptoms.
As for your specialist - it could very well be that your colon IS causing the pain. Typically, PCOS isn't really that painful. Even when you get large, painful cysts, those aren't related to the PCOS - some women are just prone to them, whether they have PCOS or not. The cysts related to PCOS are small, mini-cysts that happen from egg follicles that don't mature or ovulate properly, and they will re-absorb in about 3 months or so (although new ones will form in their place if you're still not ovulating properly). Diabetes, PCOS, and IBS are all inter-related somehow, too, so many of us do have digestive issues of some kind.
I would take things one step at a time, and see what the endo says, too. This is where a qualified Naturopathic Doctor does a good job - instead of only treating one part of what's happening, they treat the whole issue, and they have a good track record with diabetes, IR, and PCOS.
I get more angry every time I hear about people's negative experiences with their doctors. It frustrates me b/c I have wonderful doctors. When I was going through the confusion of what was happening to me, my doctors listened to me, made sure I got the treatments that were best for me. When we started TTC, my RE was honest and open with me about everything.
I've said this a million times in different posts but I REALLY wish doctors would have periodic updates on how to be compassionate and listen to their patients.
"Courage does not always roar. Sometimes it's the quiet voice at the end of the day saying, 'I will try again tomorrow.'" ~Maryanne Radanbacher
When the world says, "Give up," Hope whispers, "Try it one more time." ~Author Unknown
"Perseverance is failing 19 times and succeeding the 2oth." --Julie Andrews
"God, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference" ~ Reinhold Niebuhr
current weight: 208.6
Fitness Minutes: (3,209) Posts: 64 10/23/09 2:48 P
I so totally relate to what you are going through. The hair growth is horrible, and along with the weight it can be so depressing. I truly understand what you are going through. Keep holding on though, and keep coming here for support.
That was the sad thing about this. This was my 2nd ob, but this one was an oncologist/gyn who was supposed to know alot about PCOS. When my husband asked him about the diabetes he is like she doesn't have it. Yet my blood sugar results where 148 not high but still it is diabetes. Then he saw that I was taking Metforim and he is like oh that's why you didn't have any sugar in your urine.
Now that I have had a chance to sit back and think about the day I realized that the nurse said that they were extra busy that day. The doctor did seem as if he was rushed. Even though he did spend time talking to me and actually reading my charts. I also have to admit I lost the will to fight him with all my questions, because no matter what I asked him he was like it is your colon.
I just hope that since the endo deals with the numbers that they can do something. I am tired of being fat, having to shave my legs and chin every two days because I look like a man.
Anyway thank you for all of your encouragement and care. I don't see the endo until Nov. 30th, when I do I will let you all know what she said. Yes, this time it is a female so maybe she can understand more of what I am going through.
Pounds lost: 0.0
Fitness Minutes: (3,209) Posts: 64 10/23/09 12:46 P
I'm sorry to hear that your Dr. isn't really listening to you. My original family MD/DO told me that I didn't have PCOS when my lab results came back, then my endo called and said I did. She flipped out when I told her what my regular Dr. had said. I wasn't surprised, because this Dr. was always rushing me and was very dismissive to any of my questions, concerns, or thoughts. Needless to say, I found a new family Dr. I am lucky in the fact that my current family MD/DO. listens, but will admit he isn't a specialist and he flat out told me that going to the endocrinologist was my best best. I agree that you will probably have much better luck with the endo. I would switch ob/gyns and try to find one that takes the time with you and takes your questions/thoughts seriously.
I had the same problem with my obgyn. She didn't want to hear the word PCOS. She kept telling me the U/S didn't show PCOS and only one of my hormones levels may have something to do with PCOS. She didn't recheck anything just a yea you may have it and sent me on my way. I asked about metformin and she only gives that with clomid when clomid doesn't work alone for TTC. I was treated for a thick lining from not cycling regularly with provera..Even had a biospy done of the lining incase it turned into cancer. She gave me nothing to keep my cycles regular so it wouldn't build up again. So I guess she wants me to wait until my next yearly exam so we can start all over again. Unless I want to TTC with her she will only give me clomid. I do want to TTC but I don't want to take clomid with her if she isn't going to listen to my concerns about treating the PCOS while I'm waiting to TTC. If she doesn't listen to me now why would she listen to me when I'm pregnant and concerned about my baby as well. I'm going to an RE to TTC and finding another obgyn.
I think with your case you will have better luck with your endo doctor. They are better with the hormone issues PCOSers deal with. Good luck and let us know how your appt goes.
Pounds lost: 6.8
Fitness Minutes: (584) Posts: 41 10/22/09 8:16 P
I saw the oncologist/gyn today and I am more confused then I was before. He was very detailed but it seemed once he did the physical part of the job he was stuck on one thing and one thing only.
He thinks that it is my colon that is causing me pain and not my ovaries. So stop the bc and try Levsin if this doesn't work call me, and we will check your ovaries.
When I asked him about the fact that I was now diabetic he said no your not there was no sugar in your urine. Oh but your taking Mortfim well that explains that.
I have not seen anywhere your colon can cause you to get extra hair growth, skin tags, and etc. I have to shave every two days now. Where's as before I could do it every four to five days. My belly looks like a man's hair line going from his belly to his privates. He also said that it was common for a women to have several small black dots on the ultrasound this does not mean that there is a problem.
So now I am wondering what is going to happen when I see the endo doctor. My tsh, LH are normal but my dhea was 59 two doctors have said that this could be PCOS, but again he didn't want to go there.
I just don't know what to do anymore. I am frstrated and I feel completely lost. Sorry I just needed to vent.
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