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JUSTJEN0929's Photo JUSTJEN0929 Posts: 50
9/10/08 10:03 A

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I've been diagnosed for about 5 years now. I've been on Metformin for the entire time. My "doctor" that I see is actually a Nurse Practitioner and she has been more helpful and supportive than any MD I've been to. She and I read medical journals and studies and then compare notes. Of the 80 PCOS patients she has, I'm the one that has everything "in check" the best. She uses me as a sounding board for the other patients since she herself doesn't have PCOS and this is a syndrome of "seeing what works."

Okay, having said that. I read in a medical journal (can't remember for the life of me now which one) that taking cholesterol lowering medication will make insulin resistance worse. So, it is not recommended for PCOS patients to be on that type of medication.

As far as the cholesterol, make sure you switch all oils you use to "healthier" oils like Canola, Olive, etc... Then, another that has worked well for me is taking the Promise Activ Super Shots that are supposed to help lower cholesterol. They don't reduce the numbers tremendously, but they do lower them. You might want to try them. I take 1-2 a day with my meals. Just to make you feel better, here are my numbers (and this was after I had trained for a year and ran a half-marathon):
Total cholesterol: 246
LDL: 138 HDL: 54 Triglycerides: 271

Don't despair. I would consult your OB/GYN or look on the PCOS websites to find a PCOS sympathetic doctor in your area.
Jen in GA

There will be days that I know I could never finish a half-marathon, but I have the rest of my life to remember the day I did.


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ANGELLYBELLY's Photo ANGELLYBELLY Posts: 1,212
8/22/08 3:13 A

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I really keep thinking met is the direction I shoudl be going in..
I"m hoping I get my referral soon.

Anti-Blah Sunny Hollywood, CA division, Earthquake and celeb-sighting correspondent, Kink expert.

My Motto: The goal is FIT, not Skinny!

Enjoy the power and beauty of your youth..20 years you'll look back ... and recall in a way you can't grasp now.. how fabulous you really looked.
You are NOT as fat as you imagine.
~Baz Lurman "Everybody's Free (to wear sunscreen)"


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JWOURMS's Photo JWOURMS Posts: 750
8/20/08 8:35 A

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The Endo put me on Metformin on the second appointment, after he had the blood work back confirming Insulin Resistance (and high cholesterol). I'm very impressed with the drug. I've been exercising like a crazy person, eating a fair amount over 2000 calories a day, and am losing weight - nearly 2KG in the last 2 weeks. Before the drug eating about 1400 calories, very little exercise and was lucky to lose 1/2lb per week. I'm only in week three with the drug though so haven't noticed other changes quite yet.

..you may not be able to really feel compassion toward others until you are able to feel compassionate toward yourself. Margaret Paul


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IVORY1825's Photo IVORY1825 Posts: 7,706
8/19/08 10:41 P

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As far my research says, metformin is getting to be the best treatment for PCOS, my doc essentially suggested it since my blood sugar seems jumpy and I had facial hair that wasn't budging (although that still hasn't).

No day but today ...
-Jonathan Larson - Rent

"You have to laught at yourself, because you'd cry your eyes out if you didn't"
Emily Saliers - Indigo Girls

~Melissa/Ivory

Co-Leader of Project Mayhem
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Co-Leader of Living Healthy with Insulin Resistance/Low GI Diet
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GCRITEL's Photo GCRITEL Posts: 10
8/19/08 6:29 P

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My doctor put me on metformin at the same appt. where I was diagnosed. She had me do bloodwork, including the 2-hour glucose test which indicated insulin resistance. Have you been checked for insulin resistance? As far as I know, that's the reason to go on it.

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ANGELLYBELLY's Photo ANGELLYBELLY Posts: 1,212
8/19/08 6:19 P

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UPDATE:
These are my results:
LDL 163
HDL 73
Total cholesterol 250
He recommended going on Simvastatin (which is generic lipitor I believe).

I don't like that he is looking at one symptom and throwing a pill at it.
It looks like I'm going to get a referral to an endocrinoligist. *prays*
And I asked also for a nutritionist.
I'd rather first see what I can get my cholesterol to without drugs and then discuss that possibility later.

I keep wondering.. how do I know when it's time to try Metformin?
If you are on it, when did your doc decide it was time for that?

Anti-Blah Sunny Hollywood, CA division, Earthquake and celeb-sighting correspondent, Kink expert.

My Motto: The goal is FIT, not Skinny!

Enjoy the power and beauty of your youth..20 years you'll look back ... and recall in a way you can't grasp now.. how fabulous you really looked.
You are NOT as fat as you imagine.
~Baz Lurman "Everybody's Free (to wear sunscreen)"


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IVORY1825's Photo IVORY1825 Posts: 7,706
8/19/08 4:17 P

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Based on my recent research and reading ... you definitely need a new doctor. There is no doubt that high insulin levels in the blood (totally typical with PCOS) lead to high cholesterol (I actually met someone doing that research a few weeks ago), and without managing your carbs, a low-fat diet would have no effect. Speaking of fats, which fats is always an important question. I have had lots of trouble with my cholesterol in the past, and I have learned that to keep it low, I have to replace my cooking fats with either olive oil or a cholesterol-friendly butter substitute (like SmartBalance, or recently I've been using Earth Balance to avoid trans fat). I also have to watch red meat and egg yolks, they both contain a particular kind of fat that some people (like me) are sensitive to. I usually limit my egg yolks to 1/2 - 1 a day, but I eat all the egg whites I want. I eat mostly lean chicken and turkey, and I only use low-fat/fat-free dairy. All of these on top of my low-GI, no white carbs diet and being on metformin keeps my cholesterol (and sugar and triglycerides) happy.

I also got a book out of the library recently called Protein Power (I think) that was great for explaining how insulin causes things like high cholesterol.

No day but today ...
-Jonathan Larson - Rent

"You have to laught at yourself, because you'd cry your eyes out if you didn't"
Emily Saliers - Indigo Girls

~Melissa/Ivory

Co-Leader of Project Mayhem
www.sparkpeople.com/myspark/g
roups_individual.asp?gid=19990


Co-Leader of Living Healthy with Insulin Resistance/Low GI Diet
www.sparkpeople.com/myspark/g
roups_individual.asp?gid=2074


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GCRITEL's Photo GCRITEL Posts: 10
8/19/08 4:16 P

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Is it possible to find another doctor? I know that can be a difficult process, but I've had really some really bad doctors in the past--I shared all my pcos-related symptoms with a doctor for three years, not knowing what was wrong with me. She just wanted me to lose weight and was absolutely dismissive when I struggled for months and lost only a pound or two (or worse, gained some). Changing doctors has literally changed my life since I've now been diagnosed and treated and that is actually facilitating me losing weight.
In short, a good doctor will be your partner just as you'd hope and there's one out there--I hope you can find him/her!

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ANNAKOUKLA's Photo ANNAKOUKLA SparkPoints: (76,336)
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8/19/08 4:04 P

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It sounds as if you are doing everything right. Perhaps you should go see a Hormone Specialist that specializes only in women. I did and ever since then I feel much better and am very happy. He was the one who diagnosed me with Fibromyalgia after I complained to many previous doctors that I did not know why my whole body ached and why I felt like a 60 year-old in my 30s. I am so glad I found him! I wish you the best & let me know what happens!

"Forgiveness is the fragrance a violet sheds, after a heel has crushed it." ~Mark Twain.



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ANGELLYBELLY's Photo ANGELLYBELLY Posts: 1,212
8/19/08 3:47 P

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I got my bloodwork back.
The doctor who refused to test my insulin or glucose.
I got a message on my phone that I have high cholesterol and that I should go on a low fat, low cholesterol diet, and that he wants me to start taking some meds (I couldn't hear what it was over the phone and I"m waiting for their lunch hour to be over to call them..)

This doctor has pretty much ignored the fact that I told him I have PCOS.
I know that high cholesterol often is part and parcel with PCOS.

I don't like that he is looking at only a partial picture and not looking at the big scale of what is going on with my body.

What do I do now?

I've been cardio-ing and strength training.
And I've been on a low carb diet..which unfortunately often means that my fats tend to be high..

i feel like everything is now on the crossed off list and I should just eat sand all day.

I'm really down and really don' feel that my doctor is my partner in this.

Anti-Blah Sunny Hollywood, CA division, Earthquake and celeb-sighting correspondent, Kink expert.

My Motto: The goal is FIT, not Skinny!

Enjoy the power and beauty of your youth..20 years you'll look back ... and recall in a way you can't grasp now.. how fabulous you really looked.
You are NOT as fat as you imagine.
~Baz Lurman "Everybody's Free (to wear sunscreen)"


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