OK, I'm juvenile, I admit it. I'm snickering at all the pee stories. I'm glad I don't have to do the test now - I can't imagine trying to deal with it with a toddler in the house. (We talk about the potty a LOT right now.)
Words, yes, it's easier if you do the test on a day when you don't have to leave the house for very long.
Kinsha, that's a great reminder about dealing with doctors and medical providers. It's hard to do, but it is important to take control of your health.
It's important to remember the medical field is a service industry, in that if you went to a resteraunt and the food was awful, and the waitresses were rude you probably wouldn't go there. I always take my dh with me when I go to any doctor. And in reality most doctors will not know ALL your symptoms. I know if I see the doctor for more than 5 minutes I'm doing great.
I was diagnosed with a blood test (my hormones were off, I think I had a higher testosterone than I should have and my good cholesterol was low, another PCOS sign) and a sonagram was done to make sure there wasn't anything else wrong, as we told the doctor we wanted to have a baby.
The first doctor, well really a nurse who acted like a doctor and shouldn't have, was only interested in making me loose weight. She belittled me, and treated me like a two year old. I switched to a second OB/GYN who understood that I hadn't had a period in over two years, and that diet was not going to magically make that happen. (He also listened to my concerns as my aunt hadn't had one for years and was then being treated for cancer as a result of this, the first dr didnt' listen.) Because of that he put me on a hormone to force me to have a period, but not a bc pill.
Always remember you are the expert when it comes to your body. If something doesn't sound right, or you don't think a treatment is working tell your doctor. If they don't listen switch. There is a wealth of knowledge on the internet, use it and go to the doctor prepared. AND yes, you may know better than a doctor. They can't be an expert on you!
OK, don't tell my DH I told you this... But he was doing the 24 hour pee collection for either liver or kidney function and on his way home from work (yes he took the jug to work with him and kept it in the fridge at work in a paper bag- i'm sure his office mates would be thrilled to know this.. LOL) he had to stop and get another jug. He had almost filled it up and had a good 12 hours to go until the next morning.. When he asked for another one they couldn't believe he needed another one! LOL
So I'm thinking I should do this on a day when I don't have to work and therefore carry a jug of pee into the office? lol. I'd like to walk around with a big smile when I bring it into the doctor, and when people give me funny looks, I'll say "YES! It's PEE" and just watch them react.
Definitely ask your doctor about it. They don't make you keep cups of your urine around - the lab will probably give you a jug to take home. It's not bad until you have to take it back to the lab and you feel like everyone is watching you carry around a jug of pee.
My doctor never really did any tests other than the insuline resistance test. I never got ultrasounds, and she never looked for cysts. My period actually evened itself out really well too, until about a year ago. Now I am missing months every so often. I'm just not convinced it's PCOS and with Cushings' link to Heart disease which already runs in my family I want to know for sure... even if I have to keep cups of my urine. I'm surprised my amazing doctor didn't already test for it. I have nearly every main symptom. Anyway, thank you all for your responses. I love this board and I love this site. It really helps to get me through the dark days of worrying about PCOS, weight, and.. well.. kids one day.
My cushings tests were done on 24 urine collections. ... But I have no idea how they could tell, as I was on metformin at the time. The endo knew but seemed unconcerned, even though the metformin directly affected one of the things they were testing.
I don't think there's really a way of finding out for sure. I think it's mostly assessing symptoms and ruling out other syndromes/diseases. Sometimes a second opinion is useful.
My first endocrinologist basically just talked to me, asked a few questions and was 'Yup, it's PCOS'. The doctor I'm with now (I moved x-country) ran some additional bloodwork and did ultrasounds. So I think there's variety within the medical community as to how they approach it.
Most endocrinologists will screen for other diseases, like Cushing's and Addison's. These are screened by blood and urine tests. If I recall correctly, the test they run for Cushing's is usually a 24 hour urine collection. Not painful, but messy and embarrassing.
Perhaps by now they can tell by simple bloodwork, though.
How did you know you had PCOS? I was diagnosed by an OB/Gyn. She did some tests and discovered I had "syndrome X" and whatnot. The thing is all the symptoms are the same as Cushings disease. Missed periods, facial hair, weight gain, syndrome X, etc. Plus I have a few more that aren't caused by PCOS like excess cortisol. I'm going to the doctor Monday to see if my PCOS isn't PCOS after all.. but I'm wondering how you found out for sure??
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