Advertisement -- Learn more about ads on this site.
 

team1347forum


  Team Forum
Chronic Pain Warriors: We Will Win the Weight War

A Guide to Posting in Your SparkTeam Forum

  FORUM:   General Team Discussion Forum
TOPIC:   Medications 


Search
Reply Create A New Topic Subscribe to this Discussion
Advertisement -- Learn more about ads on this site.
Author: Message: Sorting Last Post on Top


JITZUROE
JITZUROE's Photo SparkPoints: (84,909)
Fitness Minutes: (65,581)
Posts: 2,955
4/11/12 6:54 P

JITZUROE's SparkPage
Send Private Message
Reply
Hi guys,
I'm having a crisis too. Has anyone ever used sodium channel blockers for nerve pain? Apparently there are more than a few. My neurologist, rheumatologist and pain management doc's all say I need to start a regimine ASAP, but don't know a lot about them.
Being that this is MY body and all, I would love some feedback.

Thanks!
Bren


 April Minutes: 599
 
0
33.75
67.5
101.25
135


IMMAMACLARE
SparkPoints: (1,465)
Fitness Minutes: (1,275)
Posts: 25
3/16/12 10:36 A

Send Private Message
Reply
In response to paulavac and dedicated to him: You were subjected to a miscarriage of medical treatment performed by ignorant and biased practitioners who violated acceptable standards of care. Not only should you not pay for such treatment, you should enter a formal complaint with hospital administration, the state medical board, and the American Medical Association. The only patients other than those with chronic pain more subject to prejudicial intolerance by both the public and medical practitioners are patients with obesity. In my opinion, it's a travesty of pharmaceutical research and development that it is acceptable to be treated with prescription drugs for excessive facial hair or "insufficient eyelashes", but not for chronic pain. Inhumane or substandard treatment colored with prejudicial values should never be tolerated.

What you are is God's gift to you; what you become is your gift to God.


 current weight: 209.0 
 
221
206.5
192
177.5
163


IMMAMACLARE
SparkPoints: (1,465)
Fitness Minutes: (1,275)
Posts: 25
3/15/12 4:54 P

Send Private Message
Reply
I'm not going to comment on specific medications, because we each react differently to meds, and sometimes it takes a while t find the ones that are successful for you. However, I have some general comments that may be of help.
1) Re anti-depressants. Anti-depressants are not only useful for enhancing sense of well-being (After all if one doesn't find chronic pain depressing, I'd worry about them.), but they have a more specific role in chronic pain. Most importantly, they specifically aid in raising your pain threshold. This makes them an invaluable cornerstone to pain control.
Also, some anti-depressants have appetite-suppressive properties, and others increase energy level. If you feel that your current anti-depressant is contributing to weight gain, discuss this frankly with your doctor. With time, I'm sure you'll find an anti-depressant that supports, rather than interferes with your weight-loss goals.
2) Regarding dosage schedules of narcotic pain meds: Many studies show that taking pain meds based on fixed time intervals, as opposed to "when needed for pain", works better for chronic pain. (Acute pain is a completely different animal!). Taking pain meds contingent on the experience of pain can actually subconsciously reinforce pain response. By separating the intake of the med from the experience of the pain, the effectiveness of the drug may be enhanced. Another side-benefit is a less pain-focused life and mood enhancement. Do a google search on fixed vs. prn medication schedules for chronic pain for specific studies to discuss with your prescribing physician. Most of this reasearch stems from the study of behaviorism.
3) Re anti-epileptic drugs: These drugs are more likely to be problematic if you have a serontonin defecit. If you've had poor tolerance for these drugs in the past, ask your doctor if you may have better success if it's reintroduced after you've spent time on an appropriate anti-depressant.
Remember, that while we may not be doctors, we ARE the custodians of our bodies and have a vested interest in achieving the highest functional level possible. Never give in to the stigma fo needing medication management, and always work in partnership with your physician. Never be afraid to seek a second opinion from a specialist in pain management if you aren't successful with pain intervention alone. (Pain intervention specialists rely more on physical measures of pain relief such as epidurals, trigger point injections, spinal stimulators, etc., whereas pain management physicians also use medications, most notably, anti-inflammatories, anti-depressants, safe muscle relaxors, and if necessary, narcotic pain meds.
Control your pain to live; don't live just to control your pain. And best of luck to you all.emoticon

What you are is God's gift to you; what you become is your gift to God.


 current weight: 209.0 
 
221
206.5
192
177.5
163


WERMFUD
WERMFUD's Photo SparkPoints: (780)
Fitness Minutes: (1,131)
Posts: 26
3/29/11 1:15 P

WERMFUD's SparkPage
Send Private Message
Reply
I once decided to try life off my pain meds, I continued on Elavil which takes the edge off. Well, it didn't work out well for me and when I tried to get back on the Oxycontin 10mg 3x/day my doc said no! Mostly because I wasn't exercising, but I couldn't, I was in too much pain. After months and pleading with her superior at the pain clinic, they got me back on the Oxy and the Vicodin as needed. Now I can work and exercise.

I also use topical Ketamine (vaginally) and it works really well, it's not numbing but takes away the pain. Messy though.

What hasn't worked was Neurontin and both Methadone and Oramorph gave me 25 pounds in edema, I couldn't wear shoes my feet sere so swollen. I get a lot of crap for being on Oxycontin, but it's a life saver and I don't feel "high" from it at all.

I also take Vicodin, Flexeril, Klonipin, Trilifon (anti-psychotic), phentermine, Byetta, and more. I stopped taking Elavil because I thought it was contributing to weight gain. I have a few weight loss medications to try and fight the weight gain that the others cause, but the phentermine and Byetta doesn't really seem to counteract that as I had hoped.

Luckily no one has tried to give me Narcane.

Reality is merely an illusion, albeit a very persistent one -Einstein


 current weight: 182.0 
 
215
196.25
177.5
158.75
140


PAULAVAC
PAULAVAC's Photo SparkPoints: (0)
Fitness Minutes: (53)
Posts: 70
11/10/10 8:54 A

PAULAVAC's SparkPage
Send Private Message
Reply
All I can say to that is "Amen!" Cynthia. I wholeheartedly agree. I've had two experiences with Narcane myself and they were horrific - it's not anything that I will ever allow them to do to me again. One time I had such a bad reaction to it, that they paralyzed me so that I "wouldn't upset the other patients."

Paula


 current weight: 239.0 
 
240
211.25
182.5
153.75
125


DEDICATED2HIM
DEDICATED2HIM's Photo Posts: 3,366
11/10/10 12:43 A

DEDICATED2HIM's SparkPage
Send Private Message
Reply
hi again,
just wanted to share this. Twice now, for various reasons, I've become unconsious and responsive while out and about and have had ambulances called. Both times, the paramedics jumped to a faulty conclusion based on some scars on my arms which, unfortunatley, look like "tracks" yet are not. I recall, during one of those events, being able to HEAR them as they discussed me, but not being able to open my eyes or to speak with them.

If they had looked at the medication sheet I carry with me at all times, or at my medical info page; they would have seen that I had been under a pain management doc's care and was on prescription pain killers at one of the times and for the other, I had an implanted Morphine pump.
But no, they saw my "tracks",called me a user and a junkie, and then decided to fill me with a drug designed for barbituate overdoses, called, Narcane. The way this drug works is to make you so sick and violently ill, that you are shocked awake. Well, both times, because of the medicine (legal medicine, at legal levels) the Narcan almost killed me.

I'm so SICK of being the brunt of misconception and misperception and prejudice! I'm not physically dependent on any drug, even thought the pain doc fully expects me to become so. Paula, it is because of the experiences that you have described when you were pushed into withdrawel by people who like to exert authority they should NOT have over your medical treatmen, that I have been opting to endure horrific pain all the time rather than allowing these people control over my body and my comfort.

I don't need that aggravation! I don't need to be shot full of Narcan everytime I head for the ER just because I happen to own some prescriptions for narcotics. It' s my body and I will NOT allow anyone else to have control over it nor be dependent on anyone else to keep me comfortable. No, if it means I will suffer every minute, so be it. It' s MY suffering and no one can own that like they can my comfort. Maybe this is a childish idea. But it's one that I'm having great trouble letting go of. I do not want to rely on ANYONE else to keep me comfortable, because that also means that they have the power to make me miserable. And I will not give them that power!



 current weight: 224.0 
 
226
214
202
190
178


LAURAADS
LAURAADS's Photo Posts: 561
11/9/10 9:15 P

LAURAADS's SparkPage
Send Private Message
Reply
I don't blame you for not paying. I think modern medicine is partly a crock. Doctors don't listen, rarely take the time to care. to come across an exception I had to fly from FL to Seattle for a specialist. In my battle against my bladder disease I've seen and discarded (usually in tears) 8 different 'specialists' in a 3-hour radius. I remember a trip to the ER where I was having hallucinations from a medication and all the doctor could ask me was what illegal drugs I had taken. I couldn't believe it. I was an overweight, middle-aged housewife (looking) person with a terrified equally overweight husband. We sure didn't look like druggies. I was so angry and frustrated.

Please hang in there and feel free to let it out here!

Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


PAULAVAC
PAULAVAC's Photo SparkPoints: (0)
Fitness Minutes: (53)
Posts: 70
11/9/10 3:04 P

PAULAVAC's SparkPage
Send Private Message
Reply
You know, the funny thing is that methadone doesn't give you the "high" that most other opiates or narcotics do. That's why they use it to wean people off heroin. I do have a history of having "experimented with drugs" when I was much younger, so the doctor who put me on the methadone thought that would be the best alternative. As a result, my teeth have basically disintegrated; I've already had four of them pulled and countless root canals. I've also got gastroparesis and a neurogenic bladder, partly because of the neuropathies and partly because of the methadone.

Even with that knowledge that you would think doctors would have, they still label me as an addict whenever I need to go to the ER for whatever reason. The second to last time I was admitted (I had severe cellulitis on my legs), I made the mistake of telling the admitting doctor that I was trying to wean myself off the methadone. He proceeded to cut my dose in half overnight. Any idiot knows you don't do that with methadone. So, on top of the pain from the cellulitis, I was also going through severe withdrawal from the methadone. That was the one and only time I left AMA. I get bills from that doctor still and as far as I'm concerned, he can wait until eternity and he won't get a penny from me.


 current weight: 239.0 
 
240
211.25
182.5
153.75
125


DEDICATED2HIM
DEDICATED2HIM's Photo Posts: 3,366
11/9/10 2:45 P

DEDICATED2HIM's SparkPage
Send Private Message
Reply
Paula, I know what you mean about the attitude you get from hospital staff and pharmacists re: pain meds. That's one of the reasons, some years ago I opted to have an intrathecal (Internal in your abdomen) morphine pump implanted. It was like a miracle for about three or four years. The homecare nurse (specially trained one) would come to the house and refill the pump once a month via an injection through the stomach into the pump...It was great. NO more nasty pharmacists etc. And you have to go through all kinds of psychological testing to make sure you are not an addictive personality who will crave more and more or use it to get "high" even though the doses are much lower than oral doses, because they go straight to the spine via a catheter.
Why don't I still have it?? Good question...I was an idiot. For the last year of the five, it diminished in effectiveness. They kept going up on the dose and trying different med combos. Finally I got disgusted and told them to wean me off and take it out. Which they did. Which I promptly paid for by getting spinal meningitis from a leak in my spine after the surgery from where they'd pulled out the catheter. And now? I'd give my arm to have that kind of relief again. What I should have done was take a "drug holiday" and gone off the meds for a while, but kept the pump in and then later, gone back to them when they would have been more effective.

I dread my next hospital stay. my pain has escalated, and I cannot lie still for any length of time without excruciating pain. I know they will refuse to give me the doses I'm supposed to be getting. :(





 current weight: 224.0 
 
226
214
202
190
178


PAULAVAC
PAULAVAC's Photo SparkPoints: (0)
Fitness Minutes: (53)
Posts: 70
11/9/10 2:27 P

PAULAVAC's SparkPage
Send Private Message
Reply
Wow, you all are talking about the exact thing I'm dealing with right now. I'm new here; my name is Paula. I've been diagnosed with a herniated disk with radiculopathy in my legs and feet, fibromyalgia, chronic fatigue syndrome, diabetes with diabetic neuritis, I've had a cardiac arrest, four blood clots and a pulmonary embolism, among a host of other diagnoses. The latest one is sarcoidosis, which has affected my lungs, skin, spleen and liver (and probably my nerves, lymphatic system and heart). I'm in so much pain now that I can barely move (and sitting at the computer is becoming increasingly more difficult every day. I can't go out to grocery shop or take a walk or anything that has a semblance of normalcy to it. The last time I went to the ER was because I had given my prescription for methadone (which I've been on for eight years for the pain) to a pharmacy tech at Walgreens, who proceeded to lose the prescription. It was a weekend and I go to the community health center here in Colorado Springs, which SUCKS big time!! They would not call me back and within four days I was going through severe withdrawal. The doctor at the ER reported that he "doubted that Walgreens lost my prescription and thatI was just drug-seeking," among many other negative comments. I decided then and there that I was weaning myself off the methadone. I've gone from 80 mg a day, down to 15 mg and within another three weeks, I'll be off it altogether. I do take Neurontin and Klonopin, but they don't even touch the pain. I won't go back on it because I'm tired of doctors looking at me as an object "drug addict," rather than a person who is suffering unimaginable pain. I often wish that these people could experience what I feel every day of my life for just one day; maybe then they may be more understanding.

Even when I had my cardiac arrest, without going into a lot of detail, other than saying that I have a background of working in the medical field, specifically working in a diagnostic facility for heart disease, the hospitalist wrote in his report that I was being "melodramatic" because I told him the results of my holter monitor, which was off the charts. He refused to put me on a heart monitor even though I basically had no potassium or magnesium in my system when I was admitted. I wound up screaming at them that they needed to put me on one, and finally, after the second day, a nurse called the cardiologist on call and asked him to order one. Fifteen minutes after they put it on me, I went into cardiac arrest. When I came to, there were 15 or 20 doctors or nurses standing around my bed, telling me that I had just "died." One of them was the admitting hospitalist and he was crying. Does it take something like that (or an actual death) for these idiots to pay attention to people like us?

I'm on an unbelievable amount of meds, but for the most part, if I went off any of them, I would be putting my life at risk again. And because of the meds (especially the insulin), I can't lose weight. I've doubled my weight in five years and now have panic attacks whenever I have to go out in public.

Okay, I think I've rambled enough for one day. You all just opened up an old (and new) wound - sorry.

I'll be around. Thanks for being here.

Paula


 current weight: 239.0 
 
240
211.25
182.5
153.75
125


DEDICATED2HIM
DEDICATED2HIM's Photo Posts: 3,366
11/4/10 2:27 A

DEDICATED2HIM's SparkPage
Send Private Message
Reply
Thanks so much for your encouragement. Things have changed a bit since I last wrote. I began to stop sleeping - which is a common, although unusal, response that I have to certain opiates....That and one other symptom, have made me to decide to go off of them....Because I have not been able to reach my doctor, I've been going without anything once more. Problem is that pain is so intense that I rarely get more than 2 hours' worth anyway...so somehow I need to weigh my two options..and decide whether I go with Horrible pain and little sleep or no sleep and better pain... It really is not proving to be an easy decision....But in light of a really horrible prognosis revealed last week by a new MRI...things won't get better but only much much worse...I know that part of my struggle is my own hatred of needing these meds. And while I know that this should NOT be influencing my decision currrently to be off of them.,..it really is. I know I need to get a hold of the doc and talk to him about all of this. Will try to do that today.



 current weight: 224.0 
 
226
214
202
190
178


LAURAADS
LAURAADS's Photo Posts: 561
11/3/10 11:15 P

LAURAADS's SparkPage
Send Private Message
Reply
Honestly, I think it is a lot like antidepressants and the 'stigma' of their use. It's not that the drugs are bad but old messages of what they mean - so many stories of people who didn't need pain meds who abused them; people considered crazy who just needed chemical assistance...Ridiculous. Unless someone has walked a mile in our shoes, they should not judge. But, judge they can do. I have a bladder disease, quite different, but everyone thinks they know what to tell me to do as if I have a bladder infection. They judge me because I am overweight because they cannot see the weight that chronic pain and bladder problems have put on my body!

The reality is YOU KNOW YOUR TRUTH - the pills have given you freedom you did not have to get out of a wheelchair, have better quality of life. If they were just licking at the pain but wiping you out, it would not be a solution. But, if you need it, embrace it, and try not to care what others think!

Hugs to you and congratulations on getting to do more with activities and some less pain! emoticon

Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


DEDICATED2HIM
DEDICATED2HIM's Photo Posts: 3,366
10/24/10 11:55 P

DEDICATED2HIM's SparkPage
Send Private Message
Reply
I too, am on MANY meds...for Psoriatic ARthritis, Intractable Spinal Pain, Psychiatric Issues, Hypothyroidism etc. Although, many of these meds, I will have to take for the rest of my life and I've pretty much accepted that, I had GREAT difficulty bowing to the need to be on 24 hours of pain meds daily. I don't know why, since IP (INtractable Pain) is a medical condition like any of the others, and if left untreated can alone, cause dementia and an early death....I wanted to be "tough" and to not need the meds. As a result my life was unendurable and my blood pressure was often through the ceiling, due to the severity of the pain.

Finally, I broke down and upon the insistance of my pain management doctor, have been taking Kadian (a form of time released morphine) for around the clock covereage and hydrocodone for breakthrough pain. The differnce this has made in my life is remarkable...I went from being largely bound to my recliner to doing light housework and going shopping without a wheelchair! I still have pain...but it is several points lower than it was on the "1-10" scale, and to me, that's heaven...I've had this pain, with increasing severity for over twenty years....so it's not like it was going to go away on its own.

I still struggle with the urge to skip pills and take them only as a PRN, even though I know that Kadian does not work well that way. So far, after over a month on it; I am not dependent on them physically,but the doctor tells me that I WILL become dependent and that this is a medical necessity and nothing to be ashamed of. People are so IGNORANT about pain and pain management however. I feel really really hesitant to let people know what meds I'm on. Even medical professionals are very biased against them. Why is it any different than insulin is to the diabetic??



 current weight: 224.0 
 
226
214
202
190
178


LAURAADS
LAURAADS's Photo Posts: 561
9/21/10 12:07 A

LAURAADS's SparkPage
Send Private Message
Reply
I was taking about 250-290 mg every morning, if I remember correctly. ridiculously high dose.

Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


SHERRY722010
Posts: 9
9/18/10 12:59 P

Send Private Message
Reply
my dr. has increased my effexor 75 mgs. which puts it at 3 times a day. sherry



LAURAADS
LAURAADS's Photo Posts: 561
9/16/10 9:16 P

LAURAADS's SparkPage
Send Private Message
Reply
That's pretty much my philosophy -- if it works, why change it? I wish I had not had to get off of it myself; it was hell. But, I had no choice as the dose had made me toxic and I was having those symptoms and worse without missing any. A lesson learned that more is not always better!



Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


SHERRY722010
Posts: 9
9/12/10 4:52 P

Send Private Message
Reply
effexor is wicked if I am even late with the dose. And dont ever miss a dose. It makes me have awful flu like symtoms for 2 or 3 days. Low fever, chills really bad headaches. Even conjestion. As long as I take it exactly as I am supposed to. Its the first combination that as come close to working for me. So I guess I will just keep on keeping on. sherry



LAURAADS
LAURAADS's Photo Posts: 561
9/9/10 11:05 P

LAURAADS's SparkPage
Send Private Message
Reply
Hi again, Sherry! It takes whatever it takes, right? I have a bipolar family member and she takes a variety of meds too. I used to take Effexor XR but had a pretty bad reaction. Of course, I was taking a massive dose which is why!

We're glad to have you here and hope to see you on the list participating. It's always easier when we have support!

emoticon

Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


SHERRY722010
Posts: 9
9/5/10 7:02 P

Send Private Message
Reply
New to this board. I am bipolar. My meds are effexor 75 mg. x 2 a day. seroquel 300 x 2 aday. xanaxx as needed. lortab 7.5 x 2 a day. neurontin 600 x 3 a day
. Clonadine 1 a day. Also have debilatating back issues. Also have anxiety problems. Sounds like alot of medication. But at this time it seems to be working. Also take topamax 100x2 a day. My name is sherry,



LAURAADS
LAURAADS's Photo Posts: 561
5/17/10 12:27 P

LAURAADS's SparkPage
Send Private Message
Reply
My doctor actually tried to prescribe Topamax several years ago for weight gain from a med I was taking. Supposedly, it helps (with losing weight). I did not take it as I didn't think it was necessary. Let us know if it works better than the gabapentin which I tried years ago, without success. Good luck!

Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


KARAMIA14
KARAMIA14's Photo Posts: 16
5/16/10 9:04 A

KARAMIA14's SparkPage
Send Private Message
Reply
I AM currently on gabapentin for nerve pain(sciatica)..i am going to b switching to Topamax this week as gabapentin is not really effective and has possibly contributed to my weight gain over the last year. Does anyone have experiences with taking Topamax? Thanks...Mia

Kara Mia


 current weight: 160.0 
 
163
156
149
142
135


LAURAADS
LAURAADS's Photo Posts: 561
5/9/10 11:16 P

LAURAADS's SparkPage
Send Private Message
Reply
I was like that before sleeping pills or so groggy from them I couldn't get up. Have you tried Lunesta? I take 2 mg a night and love it (into my 3rd year -- please don't tell me anything bad about it, I do not want to know!). No side effects for me at all. I did try a few other prescription ones but had bad side effects (which could have had to do with the switch). I hope you find something that works.

I haven't had crystal light in years because I can't tolerate the artificial sweeteners (only stevia and xylitol). I do seem to remember staining. I drink a lot of expensive Evian water and think it is really strange that it leaves a chalky residue...

My favorite beverage is Metromint Chocolatemint Water. I can't do fruits (Except pear) or the artificial sweetneres, so this is just amazing to me. SO good.

Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


WILD22
WILD22's Photo SparkPoints: (12,830)
Fitness Minutes: (24,196)
Posts: 156
5/9/10 10:33 P

WILD22's SparkPage
Send Private Message
Reply
I use to drink crystal light all day everyday. I have now just switched to water because of the awful stains from residue I has getting on all my glasses and jugs. has anyone else had these issues?
As for sleep i take imovaine but I am finding that I am having some not so fun side effects!! I am very bummed because I can't go back to 4 hours of sleep a night or none on some nights.


 Pounds lost: 99.0 
 
0
27.5
55
82.5
110


LAURAADS
LAURAADS's Photo Posts: 561
5/4/10 5:32 P

LAURAADS's SparkPage
Send Private Message
Reply
Thanks for sharing. The one thing about water -- you will get used to it and stop going the bathroom so much from it. I have a bladder disease and I got the bathroom a lot. However, when I start drinking water, my frequency and urgency skyrockets for about 2 weeks. Then, it normalizes. Just keep it up.

Also, as I mentioned on the other list, mix your water up if you can. I love www.metromint.com and Hint Water. If you can do artificial sweeteners, then there is crystal light, etc. And tea is lovely. I drink chamomile (since it's about the only kind my bladder tolerates). Very soothing! But plain water is so boring, I agree!

Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


GAILWINDS1
GAILWINDS1's Photo Posts: 234
5/4/10 1:23 P

GAILWINDS1's SparkPage
Send Private Message
Reply
Morning all-I have just started taking Lyrica and am happy with the results. I use it for fibro and arthritis-
am weaning myself off Zanaflex which works but the side effects are deadly-feel so tired that the only thing I can do is head to the bed.

On the Bipolar side i am on 2 anti-depressants-effexor 150mg and cipralex 150 mg (basically half dose of each) and Lamotrigine for a stabilizer was on Respiradone which , like effexor cause weight gain.
I can tell slowly and surely I am making changes in the way I eat and what I eat.
I was on Detrol for my bladder but it stops working after a while so I am just used to going to the bathroom all the time-especially I am trying hard to drink 8 glasses of water-not so easy-not my favorite taste.
My weight is coming off slowly slowly and it does not always go down (must remember the 5 pounds daily variation)
I had a great fitness program working for me-and then I took a serious fall from a bike onto the road and wrecked my ribs and affected my lungs-I am just getting back into it by going to aquafit 4 times a week and then adding lengths 2 days a week.

I had a doc give me Metheltrexate and it was awful stuff-he kept giving me this stuff that was too much-so I finally quit seeing him. One thing he gave me works really well and it's quinine-yup the same stuff you use against malaria-works like a charm on morning sickness-have to see an eye specialist twice a year in case it affects the retina.
OK I believe I have found the group I feel comfortable with-
Gail



 Pounds lost: 12.0 
 
0
20.25
40.5
60.75
81


LAURAADS
LAURAADS's Photo Posts: 561
5/3/10 11:08 P

LAURAADS's SparkPage
Send Private Message
Reply
Nope. Melatonin gives me freaky dreams when I actually get to sleep. I've tried everything - exercise, good sleep habits, warm baths, drinking lots of water, meditation....It is BAD. Plus, since my bladder pain heats up immensely at night, about the time I would start to fall asleep naturally (around 5 AM), the pain is so bad I can't sleep. So, I've been taking Lunesta for a while. I am still on lowest dosage but sometimes pop an Alleve. I've at least managed to get my sleep times normalized. I used to not fall asleep on sleeping pills until around 5 AM but by forcing myself to get up no matter how few hours I slept, I now can fall asleep typically around midnight. Depends on the pain, though. Last night was 'normal' and I got up 11 times to go to the bathroom from 10:30 PM until 9 AM. Ugh. I have very interuppted sleep as a result.

I'm very grateful for Lunesta; no side effects like others I tried. Of course I wish I could sleep without it! What can you do? At one point I even tried a pressure point medicine thing - taped a red kidney bean to my wrist. It worked for 2 nights but that was when my disease was in remission and I wasn't fighting with the night pain, urgency, and frequency of the bladder.

Thanks! Ideas are welcome!

Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


WILD22
WILD22's Photo SparkPoints: (12,830)
Fitness Minutes: (24,196)
Posts: 156
5/1/10 12:27 A

WILD22's SparkPage
Send Private Message
Reply
I will have to do some research on this. I can't say as if I can remember having to treat anyone with this disease.

have you ever tried melatonin? it is a natural chemical in everyone brain that helps regulate our sleep patterns. You can now get these in the pharmacy. you need to take it at a consistent time every night. I have trouble going to bed at the same time.


 Pounds lost: 99.0 
 
0
27.5
55
82.5
110


LAURAADS
LAURAADS's Photo Posts: 561
4/30/10 6:55 A

LAURAADS's SparkPage
Send Private Message
Reply
My main is a chronic, progressive, incurable bladder disease called interstitial cystitis (IC). I have tried other anti-deppressants but they all now give me the reaction, even different classes. Just can't tolerate anymore. Too bad; really helped my bladder. Back to bed; hate insomnia (on sleeping pills).

Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


WILD22
WILD22's Photo SparkPoints: (12,830)
Fitness Minutes: (24,196)
Posts: 156
4/29/10 11:05 P

WILD22's SparkPage
Send Private Message
Reply
I have been on Effexor as well but I could not cope with the dizzy, with-drawl like symptoms I got even if I was only late by an hour or so for the meds. it was terrible. Welbutrin is what works well for me. others work well with amitriptaline.
What is your main disease, if you don't mind me asking?


 Pounds lost: 99.0 
 
0
27.5
55
82.5
110


LAURAADS
LAURAADS's Photo Posts: 561
4/28/10 12:00 P

LAURAADS's SparkPage
Send Private Message
Reply
NO, I'm not. I've been prescribed them but wouldn't take them when I read about them. I became extremely ill for over nine months from Effexor XR, which I used for nerve pain. Now, when I try to take drugs that are even similar, they really cause the same problems. I also worried about the swelling/bloating from Lyrica because I already really struggle with that. Instead, I concentrate on a lot of herbs and supplements (there are not really any good meds for my main disease anyway). One day at a time.... I like that, "A pill day".

Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


WILD22
WILD22's Photo SparkPoints: (12,830)
Fitness Minutes: (24,196)
Posts: 156
4/28/10 12:36 A

WILD22's SparkPage
Send Private Message
Reply
I do have a few side effects but the good far out ways the bad. My hands and feet swell and I get dizzy. I was on Gabapentin before. I didn't know that I was irrational and had many less than normal thinking until I came off this drug. I feel much more "with it" and not as drowsy as I was.
Are you on any of these meds? I too have a pill day not just am or pm.


 Pounds lost: 99.0 
 
0
27.5
55
82.5
110


LAURAADS
LAURAADS's Photo Posts: 561
4/20/10 12:10 P

LAURAADS's SparkPage
Send Private Message
Reply
I know what you mean. I had to buy individual day organizers for my pills (one per day due to the number and size of them). Otherwise, I just couldn't keep it straight since some are with meals and some are nowhere near meals and some are morning and some are bed-time.

What do you think of Lyrica? Any side effects for you?

Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


WILD22
WILD22's Photo SparkPoints: (12,830)
Fitness Minutes: (24,196)
Posts: 156
4/20/10 12:05 A

WILD22's SparkPage
Send Private Message
Reply
I too am on many medications. -Hydromorphone, Lyrica, and Welbutrin just to name a few. Some days I feel like all I have focused on all day is when my next dose was. I want to live again. At least knowing that I am accountable for everything I do and eat is motivating to me.


 Pounds lost: 99.0 
 
0
27.5
55
82.5
110


WARRIOR_MOMMY
WARRIOR_MOMMY's Photo SparkPoints: (0)
Fitness Minutes: (4,509)
Posts: 314
3/16/10 2:42 A

WARRIOR_MOMMY's SparkPage
Send Private Message
Reply
I am currently taking 14 medications a day.

One is a blood thinner, and I also on the Lovanox 180 mg injection which goes into my stomach three times a day. Some days are better than others. Today was not a good day. Inderal helps my tremors. Lyrica helps my nerupathy. Cymbalta helps me with my pain. Midrin helps with my mygraines. Those are just a few of medications.

"its nice to be IMPORTANT...but..its more important to be..NICE.."


 current weight: 195.0 
 
294
256.75
219.5
182.25
145


LAURAADS
LAURAADS's Photo Posts: 561
2/24/10 12:24 A

LAURAADS's SparkPage
Send Private Message
Reply
Absolutely -- whatever works for you is good! I was reading this workbook caled the Food& Feelings Workbook by Koenig. I had really great breakthroughs with my panic attacks when it taught me that bad feelings are OK to feel - they are like a barometer to make a change, etc. I always felt bad feelings were something that had to be fixed but I have sort of learned to learn from them and realize that to feel extreme joy sometimes you have to have the opposite.

I wouldn't have been on such a high dose if I knew that then! I just always thought (and I guess the doc did too) that there was this place with no bad feelings and no depression. That must be candyland though! emoticon

Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


LEELOOZABAT
LEELOOZABAT's Photo Posts: 202
2/23/10 3:50 A

LEELOOZABAT's SparkPage
Send Private Message
Reply
LAURAADS-Thanks for the thoughtful tips. I know a few people who are (were) on Effexor and had to come off super slow. I will too, cause I get so ill if I even miss one day. 290 seems crazy high-wow! I guess all these meds work a little different on everyone. I'm still finding that I get depressed, but not as out of control as before so I guess that's good.

Thanks again!

Leeloo :)

"It is never too late to become what you might have been."
-George Eliot


 current weight: 265.0 
 
265
231.25
197.5
163.75
130


LAURAADS
LAURAADS's Photo Posts: 561
2/21/10 1:00 A

LAURAADS's SparkPage
Send Private Message
Reply
Hi Leeloo, would you below I took like 290 mg of Effexor XR for years? (I think that was it but it could have been 190; I've been off for many years so it's a little bit of a blur what ridiculous dose I was at). High or not, I LOVED IT! Great with depression, anxiety, putting my nerve disease (of the bladder) in remission, curing my insomnia...

Since you hope to stop taking it, just remember with a drug like that you will want to titrate down a few miligrams a day to get off of it and have lots of Xanax handy just in case (some people have no SSRI discontinuation syndrome so you could be just fine). Granted, I was on a massive dose but it took 9 additional months after stopping the drugs to get rid of the discontinuation symptoms. And yes, I know you can't get capsules with 5 mg less in them. I was opening them up and poring a little more out every 7 days to keep lowering the dosage.

Honestly, I would not have gotten off of them at all, because they really are wonderful at a normal dose like what you are at, but my high dose made me toxic and sick, and I had no choice but to stop!

I am not trying to be scary; but I know I never gave a second thought to what the docs all say about 'don't stop taking this med unless your doctor tells you to'; I always thought it was because, duh, it would stop working, not because your system would flip out without it.

And, if it works for you, why stop taking it? I would still be taking it now if I could. So many people I know say, "I have to stop taking this (antidepressant)", like it is something to feel guilty or bad about. I don't think there is a stigma about it anymore -- if it makes you feel better, why not? Of course, please don't think I am saying you feel guitly or bad; I don't know you and you could just want to not have to put added drugs in your system! I've been taking so many prescription meds and herbs since all my health challenges started at 22 (yeesh, I'm 40) that those days of a clean system are long gone! emoticon

I hope I didn't sound like a lecturer or scare you. I just wish someone would have given me a heads up on SSRIs and stopping them!

Love your Sparkpeople image!

Edited by: LAURAADS at: 2/21/2010 (01:00)
Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


LEELOOZABAT
LEELOOZABAT's Photo Posts: 202
2/12/10 4:38 P

LEELOOZABAT's SparkPage
Send Private Message
Reply
I'm on Efexor for Depression and Anxiety, it wasn't working at all at 37.5, and was making me have slight pychotic episodes at 120 but at 80 it seems fine. My anxiety is better. Depression is a bit better, although I crash a week before my (.) and get really low.

Hoping to get off meds all together this Spring.

Leeloo :)

"It is never too late to become what you might have been."
-George Eliot


 current weight: 265.0 
 
265
231.25
197.5
163.75
130


LAURAADS
LAURAADS's Photo Posts: 561
1/20/10 12:31 A

LAURAADS's SparkPage
Send Private Message
Reply
Dancingbear, did you find something that worked for your migraines without such side effects? I hope so as that is miserable. Hugs to you!

Laura DeCarlo



Founder - www.art4ic.com - healing through poetry and art


 current weight: 268.0 
 
268
261.5
255
248.5
242


DANCINGBEAR27
DANCINGBEAR27's Photo SparkPoints: (8,860)
Fitness Minutes: (7,603)
Posts: 620
1/6/10 8:21 P

DANCINGBEAR27's SparkPage
Send Private Message
Reply
When I was trying lots of different daily medications for my migraines I went through lots of nasty side effects and no relief in the migraines. Some of them included hair loss (had bald patches), severe weight gain (Yippee), and a palsy (shaking) in my hands that I couldn't control.

It was so bad that one day at work, I was trying to hold a medication vial steady for the doctor to draw out of with a syringe (he was in a sterile field) and I couldn't keep the bottle steady enough with even 2 hands. He said "Val, I think it's time to lay off the coffee!" then I told him that it was side effects and he apologized profusely.

"The journey of a thousand miles begins with a single step." Lao-tzu


 current weight: 179.8 
 
185
173.75
162.5
151.25
140


BORTEI
BORTEI's Photo Posts: 9,233
12/12/08 2:59 P

Send Private Message
Reply
Hi,

I am so sorry to hear that med did not work for you. Did your doctor give you other med that you are able to take that does not interfere with your blood sugar?.

Sometimes, I feel we are in a no win situation as we take med for one thing and then we develop problems in another area.

I do not even remember a time as an adult when I have not taken med. Oh well we all have to do what we have to do to get through a day.

I know the one med my doctor gave me I could not believe how quickly I ballooned but having said that when I came off that med it took me ages to get my weight back to where it was prior. Never did understand that!

Have you seen Jerry Lewis recently, I just did not recognise him as his face was all puffy and he had gained so much weight and had a yellow tinge to his complexion apparently he has a liver condition. I saw him on tv then I read an article about him.

How are you coming along with reaching your weight goal?




A ship in the harbor is safe. But thatís not what ships are built for. ~Anonymous

Your body is precious. It is our vehicle for awakening. Treat it with care. ~Buddha


CHER0304
Posts: 308
12/12/08 2:30 P

CHER0304's SparkPage
Send Private Message
Reply
Hi! I am bipolar and need to be on something to help my mood swings. The doc put me on Seroquel, sp?, and it made my blood sugar go high so I had to stop taking it.



BORTEI
BORTEI's Photo Posts: 9,233
12/12/08 9:39 A

Send Private Message
Reply
I thought that perhaps members would like to discuss with other members their thoughts about the various medications and whether they have in fact worked or made them feel worse.

I have been in situations where I have been
prescribed medication by my doctor which instead of helping me has made me feel worse due to the various side effects.

Sometimes the side effects are actually worse than dealing with a medical condition.

Has other members discovered this also?. Please let us know your experiences.


A ship in the harbor is safe. But thatís not what ships are built for. ~Anonymous

Your body is precious. It is our vehicle for awakening. Treat it with care. ~Buddha


 
Page: 1 of (1)  
   
Report Innappropriate Post

Other Chronic Pain Warriors: We Will Win the Weight War General Team Discussion Forum Posts


Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x1347x20892920

Review our Community Guidelines