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HEALTHYBARB1's Photo HEALTHYBARB1 SparkPoints: (126,154)
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3/30/12 8:37 A

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ALOERA2
Oh....I so remember those itching days...yuck!! Here is a list of what was true for me and helped....
- I had to stop eating all gluten and dairy before I noticed a change.
-I used over the counter treatments
...aloe vera sunburn gel with lidocaine and lidocaine containing sunburn sprays. Lidocaine numbed and stopped the itch,
...Gold bond anti itch cream.
...olive oil directly on skin areas that were itchy and rashed helped to heal them too.
...tea tree oil and tea tree oil containing shampoo.
...derma E lotion (got this in health food store)
...benedryl at night to stop itch so I could sleep
Remember that it will take a while to get all the gluten and dairy out of your system and to feel better!! Take care! Hugs Barb

Smiles from Barb!!

"If you want something you've never had...you must do something you've never done!"

JUST DO IT!!
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JENCORINNE's Photo JENCORINNE Posts: 1,933
3/29/12 10:32 P

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The good new for me was that after I went GF it mostly cleared up, and hopefully something promising for you too. I couldn't get my fingers to clear up till I found that gluten was in my shampoo and conditioner, once I switched to GF ones they finally cleared up. Possibly looking into switching might help some for you?

Have you looked at Complimentary and Alternative Medicine(CAM)? Or does your insurance/state allow it? I have a Naturopathic DR, and love it, my appointments are an hour long and cover any problem I'm having. Most are knowledgeable on the evils of gluten, especially if they went to the NW College of Naturopath Medicine. It;s local to me and know a few students and they have shared that they have classes on it.

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ALOERA2 SparkPoints: (3,099)
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3/29/12 7:57 A

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JENCORINNE,

thank you so much for your response!! I too, have tried every OTC cream, lotion and potion there is. I was originally going to see a dermatologist, but of the 8 I called in my area, 3 weren't accepting new patients and the earliest I could get in with any of the others was the end of May. I don't have a GP, I only see a Fibro dr. at the neurology ctr I go to and it is a huge practice, so the chances of a message getting to him about a blood draw are probably next to nil (sad, isn't it? I once waited a week to hear back from a nurse about picking up my meds. One more day and I would have been completely out. I called every day with no return phone call. As you can see they are very customer oriented, lol). Also, I have an appt with him next month, and I already know they will say to wait until I come in and he can look at my hands. I will give it a try though, it never hurts to try! It's funny though, at my last 2 appts which have been spread 3 months apart I have spoken to the nurse about my skin issues, which she supposedly has put in my chart for the dr. to look at when he comes in to see me and he hasn't mentioned it one time. I guess I mistakenly thought that he must have seen and and didn't think it was important, which is why I never spoke up. Well, I will be doing A LOT of talking next month, that is for sure.

I am sorry to hear that you are suffering from this condition (and what a crummy Mother's Day present!!!!). I truly wouldn't wish it upon my worst enemy.....I am glad you were dx'd though so you know what it is!

take care and thanks for your advice and kinds words!!

JENCORINNE's Photo JENCORINNE Posts: 1,933
3/28/12 10:24 P

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emoticon ,
I am soo sorry you're going through this. I did almost 4 years ago, Mothers Day - I woke with just a few blisters on my right hand, then it spread. It seemed overnight it was almost to my shoulder then on my knees, where it spread from ankle to upper thigh, then my butt.I totally get the Monty Python reference, my legs itched the worst and looked like bloody stumps. It wasn't till Sept till I found out what it was. I was busy helping friends with their wedding and didn't focus onto going GF till mid-Oct after they got married.
I can honestly say I tried all OTC creams and the best was Lanacane, but it just takes the edge off the intense itchiness. There is a prescription pill but it often causes liver damage called Dapsone. I'm already high risk for liver damage so passed on it.
Can you get into a dermatologist? They can do a biopsy and if positive that can be your diagnosis. They take a sample of skin next to a blister.
Another thought, my ND can't find my veins and sends me to a clinic for blood draws. Can your Dr order the blood draws by the vampires and tests to be run before your appointment next month? That can help speed things along.

Good Luck!

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3/28/12 9:31 P

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Hi everyone, I don't know if anyone here has been diagnosed with DH and could help me out.....I have not yet been diagnosed, however I'm pretty darn sure that's what is going on....hands feel prickly and itchy, blisters form, intense burning and itching and so on.....I do not have an appt with the dr. until the end of April and I think I might scratch my hands off to bloody stumps (sorry, couldn't help the Monty Python ref) in the meantime. On the advice of a nurse who has CD, I was advised to go back to eating gluten (I actually cried) until I can see the doctor in order to get as accurate as possible blood tests, and as much as this stinks, I don't want to have to start all over again. So my question for all of you dx'd with DH and those of you undx'd but certain of your condition, what on earth do you do for the itching? I am going insane....a month seems so incredibly terribly far away. I actually thought about going to an emergency room but I don't know that they would be much help. HELP!!

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