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TOPIC:   Gluten Intolerant not Celiac 


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NANCYLEE46
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8/14/11 12:15 P

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Jo - I agree that if you feel better not eating gluten - go for it. Sounds like you have a good GI doctor. I do also, it was my family doctor that lacked knowledge and misdiagnosed me with labels such as an eating disorder. It wasn't until I dragged myself to the er and was admitted and assigned a GI dr. that they found celiac by doing an endoscopy.

Keep us posted on how you are doing, ok?

Nancy

“Friendship is born at that moment when one person says to another: ‘What! You, too? Thought I was the only one.’” (C.S. Lewis)

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BREWZOO5
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8/13/11 8:17 P

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Hi there. I have decided that gluten has been the culprit for my issues as well. I have been battling major issues with diagnosed microscopic colitis for about 2 years now. I am treated by my GI doctor with medications. They seem to help somewhat, but by no means are they eliminating the issues. I really hate being on steroids, which seem to be the only thing that keeps the colitis at bay for the most part.
Each time I went to the GI with tearful pleas that he would tell me what foods to eat and what to avoid, he would always say... .with microscopic colitis the foods you eat have nothing to do with if your colon will react positively or negatively. It's just a gamble with everything your eat, be it good or bad foods.
In my most recent visit with him I asked if I could be celiac or gluten intolerant. He replied that the test for celiac came back negative (shweeew) but that many people with digestive issues are sensitive to gluten. So he said that maybe experimenting with the gluten free lifestyle was worth a try.
I have been practically gluten free for 2 weeks now. Wow, what a difference. I have had only one "episode" and that was while I was out to eat at a restaurant. I will count that as possible gluten in my meal. I have more energy, less cramping, very few bathroom emergencies, and I kinda just feel good in general.
I plan to stay on this plan and see where it takes me. It's been a challenge to learn about gluten and how to prepare food without it, but it's something I am up for.

Jo



If you don't reach for anything, you will never get it.


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NANCYLEE46
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8/10/11 1:00 P

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Glad you have found the culprit Lauriejo to many of your digestive issues. I so hear you - I went years with knowing something was wrong and my family doctor never mentioned ciliac - I am sure he learned now about it through my medical problems. Mine was diagnosed when I went to the ER and was admitted as I was down to 92 pounds. After a test they finally diagnosed me.

We are here for you. Just so you know there is also a christian with celiac with an awesome team of ladies sharing daily. Check us out. I visited your spark page and was lifted up by the scripture on your page.
emoticonemoticonemoticonemoticon
Nancy

Edited by: NANCYLEE46 at: 8/10/2011 (13:03)
“Friendship is born at that moment when one person says to another: ‘What! You, too? Thought I was the only one.’” (C.S. Lewis)

Leader - SparkPeople's Official Virtual Walk/Run Challenge www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=33492

Leader SP CLASS of November 8-14 www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=34800

Co-moderator, Dealing With Depression
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LAURIEJO74
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8/10/11 12:18 P

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I am almost sure that gluten has been my problem for years and no one realized it. I have been diagnosed with several digestion issues, including IBS. I even had my gall bladder out last summer to see if that was my problem (it wasn't working right anyway). When I still had the "urgent run to the bathroom" syndrome and stomach pain, my doctor prescribed Nexium. It helped but didn't take all the symptoms away. Then, about 3 weeks ago on vacation, I over did it with the gluten filled foods. When I found myself sick and tired, again, I started researching what else could cause these symptoms. Surprise, gluten! I went over in my head the times when I had issues and what I might have eaten, especially the vacation week. It was too much of a coincidence.

I have been gluten free, with a couple cheats, for 3 weeks now. The difference is night and day! I have more energy, no headaches, and the best part, no more digestion issues! Now, I am wondering about my daughter since this can be genetic. She has those little bumps on her arms and legs, think it's called keratosis pilaris. I had this on the backs of my arms after I had her and that has cleared up too. I read that this can be caused by a gluten sensitivity. I will definitely ask her doctor next month!

Hoping to learn more about all of this!

A baby will make love stronger, days shorter, nights longer, bankroll smaller, home happier, clothes shabbier, the past forgotten, and the future worth living for. -- Anonymous


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YVONNE2001
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7/14/11 5:28 P

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emoticon Hi Nam007 and TrishP1961 - so glad to hear that the gluten free diet has helped you both. Keep up the good work ... to be healthy is wonderful and even trumps being thin! (Although I still keep plugging away at that.)

Yvonne
British Columbia

At times our own light goes out and is rekindled by a spark from another person. Each of us has cause to think with deep gratitude of those who have lighted the flame within us. A. Schwietzer.

BLC 17, 18, 19, 20, 21
Sapphire Corporal





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TRISHP1961
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7/14/11 2:39 A

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So nice to see this thread! I went through the 2 weeks of eating wheat so i could be tested for Celiac and don't have it. My chronic sinus infections and asthma I have had since childhood are GONE! I am now taking NO inhalers or medicine for my asthma. I haven't been on prednisone or antibiotics for the 2 years I have been wheat free. The doctor slowly but surely reduced my asthma medicine over the last 2 years. He has been amazed at how quickly my symptoms have gone away by avoiding wheat.
I haven't lost any weight, but have decided since I turned 50 that I should be happy with what I weigh and work on not gaining instead of trying to get back to what I weighed when I was 20.


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MONA_MONA
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7/13/11 12:27 P

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I also have gluten intolerance, but it took a long time to get formally diagnosed since I kept getting the IBS diagnosis, which was just the symptom and not the problem. Anyways, I suffered from joint inflammation for several years along with severe digestive upset. I was instructed to go on an elimination diet to find out my trigger foods which turned out to be gluten and nightshades. Occasionally, I'll eat something with gluten in it and suffer for a few days afterwards with systemic inflammation. Not good times.

Currently, I'm loosely following the Primal Blueprint by Mark Sisson and it's helped make all the difference. Like Yvonne, I have found that since going gluten free, my weight has gone up a bit in spite of staying within my calories so I am currently tweaking my macronutrients to see if that will help the issue. I've also been told that once the gut is healed that my weight will stabilize.



Edited by: MONA_MONA at: 7/13/2011 (12:27)


YVONNE2001
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7/6/11 11:34 P

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emoticon Hi Everyone. Yes, I have been diagnosed as gluten intolerant although I never went on to do the biopsy. The doctor and I agreed that since the solution and treatment was the same - a gluten free diet - unless I wanted a definative diagnosis, at my age it was probably more sensible just to follow the diet and spare the medical system the added expense of another test.

I was diagnosed with RA and suffered from lots of joint pain. I was in medical remission for many years although I still experienced low grade chronic pain. When I went on a gluten free diet, I was able to reduce my medication by half! And there were times when I was completely pain free. I was amazed. I also had major digestive problems with bloating and abdominal pain. However, I found that by eliminating any gluten containing grain product and limiting gluten free grains to no more than once a day this problem resolved.

Currently, I am following the Specific Carbohydrate and/or the Paleo Diets primarily. (Takes a bit more time as everything is made from scratch but I soon got into the swing and am managing to improve my health.) However, on special occasions, such as birthdays I add the extra gluten-free treats/desserts/breads.

One thing I did notice when I followed the gluten free diet using the Canadian Food Guide as the guide for my eating - my weight increased significantly.! Did anyone else notice this?

Yvonne
British Columbia

At times our own light goes out and is rekindled by a spark from another person. Each of us has cause to think with deep gratitude of those who have lighted the flame within us. A. Schwietzer.

BLC 17, 18, 19, 20, 21
Sapphire Corporal





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PURPLERULES
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6/28/11 11:14 A

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Thank you for your responses.
I guess it manifests different for each of us.
I did have the headaches with mine but always thought they were sinus headaches.
But once I went gluten free headaches went away.
I was just wondering if there was anyone else that had the joint issues connected with eating gluten.


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LORITOT
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6/21/11 9:09 P

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I, too, am gluten (and dairy) intolerant without Celiac. I have major abdominal/digestive issues with the most miniscule amounts of gluten. I also have had ridiculously itchy skin without any type of rash, which has gone away since eating gluten free. I think intolerance can present with many manifestations just as many people with Celiac have no symptoms at all.

Best of luck on your journey. I have really embraced the change and enjoy experimenting with new foods (although disappointingly with weight gain, rather than loss even though I eat so much more fruit and veggies and so much less/no bread, baked goods, cheese etc.)


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DRAMAANDYOGA
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6/21/11 11:10 A

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I have an intolerance (I never got the Celiac's test because I didn't want to eat gluten again for it, so I guess I could technically have Celiac's). For me it manifested itself mostly in migraines with a few stomach issues. I had migraines constantly from about 7am until I went to bed. I never had any joint pain issues though.


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NANCYLEE46
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6/20/11 3:31 P

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sorry, I have celiac. I hope someone posts with just gluten intolerance.

Nancy

“Friendship is born at that moment when one person says to another: ‘What! You, too? Thought I was the only one.’” (C.S. Lewis)

Leader - SparkPeople's Official Virtual Walk/Run Challenge www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=33492

Leader SP CLASS of November 8-14 www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=34800

Co-moderator, Dealing With Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


PURPLERULES
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6/20/11 11:49 A

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I am looking for others that are only gluten intolerant. I have never had the stomach issues that celiac's have. My intolerance manifested itself in severe joint pain which for the past 10 years was diagnoised as rheumatoid arthritis and osteoarthritis. Last year I was tested for Celiac and it came back with 2 markers for gluten intolerance only. I went gluten free Nov. 2010 and the joint pain has all but gone away. Only exception is when I get gluten I do not know about, mainly eating out.
I am just interested if there is anyone else that has a similar problem.
I am also lucky that I did not have any allergic reaction to dairy.


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