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REEKU731's Photo REEKU731 SparkPoints: (40,534)
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5/28/10 1:04 P

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Thank you so much! Everyone here has been very helpful and I truly appreciate it! I will definitely stop in here every once in a while to see how everyone is doing! Based on the past week's results - I'm thinking Gluten and Wheat Free is the way to go, so I'll probably be hanging around for a while

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~~~~~NCSF and ACT Certified Personal Trainer~~~~~
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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
5/28/10 12:53 P

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if you ever have any questions feel free to ask. We have some very knowledgeble people in this team and they are wonderful at helping others.

Mark
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REEKU731's Photo REEKU731 SparkPoints: (40,534)
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5/27/10 3:48 P

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I'm glad you got your diagnosis. So many people today have symptoms, but nothing to back it up.

Either way, I know my body functions better on a grain free diet - so I think that's what I'll be sticking with from now on!

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~~~~~NCSF and ACT Certified Personal Trainer~~~~~
-Certified Fitness Nutritionist & Licensed Zumba & Zumbatomic Instructor!!-

Follow My Crazy Fitness Adventures at
www.themadnessofhilly.blogspot.com

Co-Leader of the Official NM & Albuquerque teams, Going INSANE with Insanity! Team, Final Goal Weight in 2012 Team & the Trainers In Training Team!


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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
5/27/10 2:46 P

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It is good that you are feeling better. You might find that you only have a problem with wheat. It is hard to differentiate between a wheat allergy and true Celiac Disease by just symptoms alone. It takes tests from doctors to determine that. But as my doctor told me as I was going through the diagnoses "if you feel better by not eating gluten then by all means stay on the gluten free diet even if you do not have Celiac Disease." That summed it all up for me there. I did get the diagnoses though so that i have medical proof of it.

Mark
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REEKU731's Photo REEKU731 SparkPoints: (40,534)
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5/27/10 9:39 A

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Thank you for sharing your story 1GRNTHMB. I am about a week into my food tracking and have been gluten free for the past 6 days. I feel SO much better already, so I think I'm on the right track. Hopefully the next few weeks I will continue to see an improvement!

~~~~~NCSF and ACT Certified Personal Trainer~~~~~
-Certified Fitness Nutritionist & Licensed Zumba & Zumbatomic Instructor!!-

Follow My Crazy Fitness Adventures at
www.themadnessofhilly.blogspot.com

Co-Leader of the Official NM & Albuquerque teams, Going INSANE with Insanity! Team, Final Goal Weight in 2012 Team & the Trainers In Training Team!


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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
5/26/10 10:32 A

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An elimination or challenge diet is a very good way to find foods that you might be sensitive to. Not having a family history of CD does not immediately make it so you do not have it. With our family there was evidence of stomach issue on my dad's mom's side of the family but it wasn't until my sister was diagnosed in 1994 that Celiac Disease was even considered. Both my sister and I have Celiac Disease while my brother doesn't. My father's doctors told him that he does not have it but has a wheat sensitivity. My Grandmother obviously had it but it was never diagnosed and my dad said that he was pretty sure that his grandmother also had it. Why he only has a sensitivity, and my brother has no problems, while my sister and I have full blown CD makes things confusing.

If you have a good primary doctor they will know what to do for you or who to refer you to. Most GI doctors now are very educated in CD. As Kathy said, Naturopaths seems very intuned to sensitivities.

Mark
Leader: Gluten Free and Healthy
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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REEKU731's Photo REEKU731 SparkPoints: (40,534)
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5/18/10 9:54 A

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Hey! Thanks for all the replies! I appreciate it! I started keeping a food journal yesterday, and plan on maintaining it for at least a month. Not only am I tracking what I eat, but I'm also tracking how it makes me feel. I already have other food issues (I'm allergic to mint as well, and have issues with milk and heavy creams).

I already feel significantly better after eating 100% grain free yesterday. I am going to take it slowly and try to figure out what's wrong. I figure I'm going to go paleo for a full week (at least) before I start incorporating possible "trigger" foods back into my diet.

~~~~~NCSF and ACT Certified Personal Trainer~~~~~
-Certified Fitness Nutritionist & Licensed Zumba & Zumbatomic Instructor!!-

Follow My Crazy Fitness Adventures at
www.themadnessofhilly.blogspot.com

Co-Leader of the Official NM & Albuquerque teams, Going INSANE with Insanity! Team, Final Goal Weight in 2012 Team & the Trainers In Training Team!


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5/17/10 9:11 P

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Boy, I couldn't have endured a couple of years of figuring things out. I went to a naturopath and was tested. I also went by the Eat Right for Your Type book.
I've found that I am, indeed sensitive to seeds, beans and nuts and corn. But, taking wheat and only sometimes having a bit of spelt allows me to have more of the others. Nuts and seeds are still not good, but my tollerance for corn and some beans is higher.
I also keep some enzymes handy for when I get glutenized by mistake. I was at someone's house and was told there was no wheat in the meal. She didn't know about soy sauce having it.
Good luck.

"It is only with the heart that one sees rightly; what is essential is invisible to the eye."
Antoine de Saint Exupery: The Little Prince


"To the world you may be one person, but to one person you may be the world."
Heather Cortez
A10TIVTRTL's Photo A10TIVTRTL Posts: 1,861
5/17/10 7:47 P

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Thanks for the description of how you did this. I know I'm sensitive to wheat but I probably need to test for other things, too.

RUSTY_ANGEL_'s Photo RUSTY_ANGEL_ Posts: 343
5/17/10 2:47 P

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I would recommend a challenge diet to pinpoint what is getting you.
I had to cut back to just brown rice and vegetables for a few months to feel healthy. (If you feel good eating paleo then that should be a fine baseline.) Then I began testing foods. I would test just one food at a time, in small amounts, then wait a week. My first food was bacon, just 1/4 strip, with no nitrates. I ate this with my normal meal. I was ok after 2 days, so I tried 1/2 strip and waited again. Still feeling good after another 2 days, I tried a whole strip. No problems by the end of the week, and I officially allowed it into my diet.
Week 2 was cheese - cleared just fine.
I didn't respond well to wheat. I'm especially sensitive, crumbs can set me off. I had to eat my baseline diet (along with all the foods I had cleared) for several months until I was healthy enough to challenge food again and have it be accurate.
The entire testing process took almost 2 years. I'm allergic to wheat gluten, all mint, soy and possibly carob (could have been wheat contamination, but I got so incredibly sick I'm not willing to rechallenge it.)
I'd say start your wheat test with something very small, like one crouton. That way you know it's not indigestion from eating something your body isn't used to. If one crouton is ok, then try two croutons a couple days later.
Yes, this is a total pain, but I'm here to say it's worth it. I was taking over $15 in medications daily to treat my "disease", and my liver and kidneys were not happy with the 16+ pills daily. Now that know what I shouldn't eat, my "disease" is in remission, and I don't take any medications at all.

I think I can, I think I can, I think I can,

Therefore I can.


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A10TIVTRTL's Photo A10TIVTRTL Posts: 1,861
5/13/10 7:14 P

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I found a corn spaghetti product at Whole Foods Market that we like fine and I don't seem to react to.

ILLINITEACHER52 Posts: 7,257
5/13/10 6:54 P

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Keeping a journal is definitely a very good idea. It will give you a lot of information. (Even rice pasta might feel "heavy" to you if you are not accustomed to it but it shouldn't cause extreme symptoms.)

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REEKU731's Photo REEKU731 SparkPoints: (40,534)
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5/13/10 5:55 P

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OH sorry! haha! Its a very "caveman" approach to eating. Lots of protein, fruits, nuts and veggies (and minimal dairy). Paleo is the non-dairy eating and Primal is the Paleo diet with dairy.

Basically, if you can't hunt it or gather it - you shouldn't eat it. Its done amazing things for my body, and allows for up to 3 cheat meals a week (to still see weight loss). The hubby and I have been on it for a few weeks and he's seen almost a 10lb loss and I've seen about a 3lb loss (I don't have as much weight to lose as he does)

Its my first experience with completely wheat, rice, bean free eating - but I am enjoying it. Its not technically a low-carb way of eating, because you're not limited on fruits and veggies - so it doesn't have the "crashes" like South Beach or others can have. I just find that I tend to stock up on grains during my cheat meals (which is why I'm noticing the drastic differenct in my GI issues).

Its definitely made me much more aware of my body's reaction to gluten and wheat than I was when I was eating it regularly.

~~~~~NCSF and ACT Certified Personal Trainer~~~~~
-Certified Fitness Nutritionist & Licensed Zumba & Zumbatomic Instructor!!-

Follow My Crazy Fitness Adventures at
www.themadnessofhilly.blogspot.com

Co-Leader of the Official NM & Albuquerque teams, Going INSANE with Insanity! Team, Final Goal Weight in 2012 Team & the Trainers In Training Team!


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5/13/10 5:48 P

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Okay, what is palio primal? I've never heard of that. Thanks.
Kathy

"It is only with the heart that one sees rightly; what is essential is invisible to the eye."
Antoine de Saint Exupery: The Little Prince


"To the world you may be one person, but to one person you may be the world."
Heather Cortez
REEKU731's Photo REEKU731 SparkPoints: (40,534)
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5/13/10 5:38 P

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Kathy - thank you so much for sharing your story with me! I appreciate it a lot! I'll definitely have to find that soy sauce - it sounds awesome! I also have a thyroid issue (hypo) which is why I started eating Paleo/Primal in the first place. Its really helped me feel better overall, and I've noticed improvements in my GI issues too. The diet overall is great, I just have a weakness for pasta - which is usually what I'll splurge on (and thus the symptoms return).

I'll give it a shot for a month or so and see how it works. The rice pasta sounds like a good option, so I'll have to try it. Its not really Paleo - but it will help for cheat meals when I really want some noodles :-D

Congratulations on finding something that will help you lose weight! I'm hoping to find a balance with my nurtition that will help me maintain my weight loss for the rest of my life. I don't like feeling awful, and I think after months of feeling yucky I've figured out that wheat might be the culprit!

~~~~~NCSF and ACT Certified Personal Trainer~~~~~
-Certified Fitness Nutritionist & Licensed Zumba & Zumbatomic Instructor!!-

Follow My Crazy Fitness Adventures at
www.themadnessofhilly.blogspot.com

Co-Leader of the Official NM & Albuquerque teams, Going INSANE with Insanity! Team, Final Goal Weight in 2012 Team & the Trainers In Training Team!


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5/13/10 5:11 P

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Hi. I got the flu last June, and figured out the problem from that. I ate nothing for a day and then just saltines, Ramen noodles and dry toast. The abdominal pain continued and I was so tired that I just wanted to curl up and die. I'd been dealing with IBS for a long time. I was eating lots of whole wheat. Every morning I had a whole grain cereal, used whole wheat bread, etc.
I went to a naturopath, who tested me for lots of foods. I was off the charts for wheat. Other things tested okay. I sometimes have some spelt items, but never, never cheat. If I get glutenated, it's because there are surprises lurking. Soy sauce, for example! Tamari comes GF and is tasty, and often not as salty.
More and more products are being labeled. My doctor never even brought up the issue. I found it out, and have few times when I must take a nap anymore. My fibromyalgia symptoms have gone from horrible to mild most of the time.
Yes, Trader Joe's have some super brown rice pastas. Also, their waffles and frozen pancakes are yummy as a treat. I can't say much for the GF tortillas, but I've made lasagna with GF noodles.
I like Gluten Free Pantry, and some Pamela's products. I just bought the Bob's Red Mill cinnamon bread to try.
Going GF, I've begun to lose weight for the first time! My thyroid has normalized as well. Now, I have to be careful because constipation is likelier than the other. Bob's and a couple of other companies make GF oats. Oats are not a gluten, but have problems with contamination.
I've used the Gluten-ease by Enzymetica. Also, if you have a Sunflower market, they have their own brand. If I'm going out where I don't have total contro, I keep them with me.
Good luck! I will never, never go back to eating wheat! I'd go totally GF for a month, not spelt or anything and see how you are. Then, eat a full serving of the wheat. If your symptoms recur, you have your answer. But, don't eat the wheat unless you are going to have a quiet, stress free day the next day.
BTW, I also am having less skin problems, and no mouth ulcers. It's so worth doing this for me!
Kathy

"It is only with the heart that one sees rightly; what is essential is invisible to the eye."
Antoine de Saint Exupery: The Little Prince


"To the world you may be one person, but to one person you may be the world."
Heather Cortez
REEKU731's Photo REEKU731 SparkPoints: (40,534)
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5/13/10 4:47 P

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Thanks so much! I appreciate the insight! I'm just tired of feeling awful all the time. It seems to have come on so fast that I haven't really had time to adapt to it at all. I was feeling really good after dropping about 60 pounds and then I started to feel yucky again (and put on about 15lbs as well! ugh!). It seemed like almost overnight my body went from okay to "I hate you!!!" haha

I'm glad to hear that your Celiac's was properly diagnosed - if you don't know your family history, that can be a tough one. I know that there isn't anything on my mother's side of the family. Dad took off before I was 2, so unfortunately I don't know that side of the family's medical history. So as far as I know, its not an issue - but if I can't help it with changing my diet, then maybe I'll have to dig further

Hopefully I'll figure everything out with the food journal! That seems to be the most solid plan I could come up with

~~~~~NCSF and ACT Certified Personal Trainer~~~~~
-Certified Fitness Nutritionist & Licensed Zumba & Zumbatomic Instructor!!-

Follow My Crazy Fitness Adventures at
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Co-Leader of the Official NM & Albuquerque teams, Going INSANE with Insanity! Team, Final Goal Weight in 2012 Team & the Trainers In Training Team!


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JENCORINNE's Photo JENCORINNE Posts: 1,933
5/13/10 4:39 P

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That sounds like a great plan.

I'll tell you I'm the only person to know that I have CD. I'm 99% sure my maternal grandmother had it and misdiagnosed but she's long gone so no way to check. My mom refuses to accept it and be tested. I'm an only child so can't have siblings tested and no kids.

Good luck trying to figure everything out.

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REEKU731's Photo REEKU731 SparkPoints: (40,534)
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5/13/10 4:29 P

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Thanks for the response! I don't think its Celiac's - No one else in my family has anything like this. Since Celiac's is inherited, I don't think that one applies to me, which is why I was looking more at the Gluten/wheat intolerance

I am mostly gluten free, and I feel fabulous - except when I eat a meal that includes anything wheat based, even in small amounts.

I haven't tried a lot of gluten free stuff, but I'll have to try some out. I tried some GF pasta once and it tasted okay, but felt like a brick in my stomach afterwards. For now, I think I'm going to try to keep a food log for the next 30 days or so - and keep track of how my body feels after each thing I eat, to maybe help pinpoint this a little further.

I'll definitely take your advice about the doctor too - I know that most Primary Care docs can tend to cover up and ignore stuff, so if I notice mine is doing that I'll check out the others.

~~~~~NCSF and ACT Certified Personal Trainer~~~~~
-Certified Fitness Nutritionist & Licensed Zumba & Zumbatomic Instructor!!-

Follow My Crazy Fitness Adventures at
www.themadnessofhilly.blogspot.com

Co-Leader of the Official NM & Albuquerque teams, Going INSANE with Insanity! Team, Final Goal Weight in 2012 Team & the Trainers In Training Team!


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JENCORINNE's Photo JENCORINNE Posts: 1,933
5/13/10 3:48 P

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the symptoms you wrote about can be CD or a gluten intolerance. With your diet you're pretty GF just hidden gluten and cross contamination. Due to that I'm thinking try GF Pasta or pizza and see if you have the same reaction. Good GF bread can be hard to find and rather expensive so don't go there, if you have a Trader Joes they have GF pasta for $2 and it's my favorite.
The problem if you want to be tested is since you're pretty much GF already the results will most likely be negative since your body needs gluten to form the antibodies that the test looks for.

I don't know what kind of Dr you have but generally Naturopaths(and I've heard Chiropractors) are better at figuring out food issues vs Mainstream Dr's that like to cover up the symptoms.

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REEKU731's Photo REEKU731 SparkPoints: (40,534)
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5/13/10 3:30 P

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Hello everyone - I need some advice/insight from all of you fabulous people. I know that sometimes allergies can be difficult to diagnose, so I wanted to seek out your opinions on "if" these symptoms could possibly be a gluten/wheat allergy. I'm going to address this with my doctor as well - but its always better to have some general idea of what it might be before walking in the door - and to possibly alleviate some symptoms in the meantime

I have been eating mainly Primal/Paleo for the past few months and overall feel really good when I'm sticking to the plan. However, I've had digestion issues similar to IBS for the past 8 months or so whenever I eat something like a sandwich or pasta or drink beer. At first, I rode it off to eating poorly (holidays, wedding food, etc) or the fact that I was drinking (I rarely drink anyways), but now I'm not so sure.

I find now that every time I eat something like bread, pasta, pizza or grains I am extremely bloated, tired (regardless of how much I sleep) and uncomfortable for days after. Last night the hubby and I ordered in pizza from a local pizza place. I didn't overeat or binge and this morning, I had abdominal pains so bad it woke me up out of a pretty deep sleep and now I feel very fatigued and uncomfortable.

I've really never had any issues like this in my life before, so I'm a little worried. As said before, I plan on bringing it up with my doctor the next time I go in - but just wanted the opinion of others just to get some advice

~~~~~NCSF and ACT Certified Personal Trainer~~~~~
-Certified Fitness Nutritionist & Licensed Zumba & Zumbatomic Instructor!!-

Follow My Crazy Fitness Adventures at
www.themadnessofhilly.blogspot.com

Co-Leader of the Official NM & Albuquerque teams, Going INSANE with Insanity! Team, Final Goal Weight in 2012 Team & the Trainers In Training Team!


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