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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
2/23/09 4:10 P

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Just for your own information. To be tested you need to be eating wheat. So if you want a doctors to say you have wheat allergies, intolerance or Celiac Disease then you need to stay on the wheat til you get tested. Even then it is common to get a false negative so if that happens insist on a biopsy.

But if you just want to feel better then stop eating immediately.

Mark
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
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MAGS192 Posts: 88
2/20/09 2:30 P

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I checked out the Gillian McKeith website, I really don't have the money at the moment but it gives you an overview for free, my no1 issue is food intolerance which helps a little, but I'm really more concerned about getting a GP diagnosis to confirm it for myself and my family who will no doubt think I'm just a fussy eater and try and sneak a bit of wholewheat goodness into my food!

Thanks for your opinion Mark, it helps that someone can see it too :-) I just went to donate blood earlier today, they checked my iron levels which are fine at the moment. But I'm think I'm either going to go to the doc and insist on a private appointment with a GI or just bite the bullet and go 100% wheat free. I can't really take the time off work at the moment, I'm in a new job, so I'll sit and think this through for a while. I'm not eating wheat or dairy right now, I think I've come to see these foods as the enemy regardless.

1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
2/19/09 3:15 P

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Mags. It really does sound like you have an intolerance. A GI doctor is the best person to talk to for food intolerance and Celiac Disease. Most primary doctors know little or nothing about it and as you have all ready found they think it is a made up problem. But those who truly have the disease or intolerance it is far form a made up problem. Your symptoms are very much like symptoms of a gluten intolerance. Many people are know being diagnosed primarily because they are anemic. Iron and B vitamin deficiencies are very common with un diagnosed people. The intestines are damaged and they can not absorb the needed nutrients. My doctors attitude was that By going gluten free and you had improvements then that was enough to determine that it was a problem. But being diagnosed really does not make a lot of difference because their are no medicines to take and as long as you stay on the diet you will not get worse and you will get better. There are people who have been diagnosed with RA that say their symptoms go away once they go gluten free (I wish I was one of those)

Mark
Leader: Gluten Free and Healthy
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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ALBERT3333's Photo ALBERT3333 Posts: 255
2/19/09 1:53 P

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If you are in the UK then you know who Gillian McKeith is. Go to her website http://www.gillianmckeithclub.com and join her club and do her health evaluation. I think its $20 a month to join and you will go through an extensive questioning. Her analysis is fantastic!

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MAGS192 Posts: 88
2/18/09 1:27 P

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I'm in the UK and even though we have the NHS, doctors generally don't want to know unless they can write a prescription for you. I've asked several doctors about intolerance's and had the brush off each time. I had problems with my iron levels a while ago, before I went on a trekking holiday I asked that they retest my iron levels (I was going to be miles away from medical treatment) the answer was no.
There seems to be a belief that wheat intolerance/celiac is a hyperchondriac's (sp?) thing, and not just with the doctors. Both me and my Dad have tried to persuade my mum to try changing her diet for a while and basically she says she would prefer to eat something that tastes good and suffer with the pain of Rheumatoid Arthritis, IBS, migranes and fatigue. I don't get it but I can't force her, but it also means that she thinks it's all in my mind when I say how much better I feel without wheat.
What difference does it make if you are diagnosed or not, in the UK you can get gluten free food on prescription so it's free, and other people take you seriously. I'm not sure there are other benefits, maybe for the long term implications of have a little bit of gluten every now and then...?

Edited by: MAGS192 at: 2/18/2009 (13:32)
ILLINITEACHER52 Posts: 7,257
2/17/09 10:21 P

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Wheat can definitely make you feel tired and can cause achey joints! Do you think that if you start feeling better and your Mother sees the difference, she might be willing to try being gluten free for a few weeks too?

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KAZZLE3's Photo KAZZLE3 Posts: 2,737
2/17/09 6:51 P

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You can go to an allergy specialist doctor and ask for blood work to be done to look for allergies. It will see if there are any antibodies there. Although you need to be eating wheat before the blood work for there to be antibodies in your blood.

Anyway that is how I was diagnosed, as my doc didn't listen to me.

Best of luck!

Lieutenant Space Monkey
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ALBERT3333's Photo ALBERT3333 Posts: 255
2/17/09 3:46 P

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Find another doctor! If this one isn't taking you seriously than get someone who will. This is your health and you need to be in charge of it.

And yes, it does sounds like your symptoms are related to an intolerence and yes it can be genetic so your mom might be suffering as well.

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MAGS192 Posts: 88
2/17/09 12:54 P

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Hi, I'm new to this team and I have a few questions. I haven't been diagnosed with celiac or wheat intolerance, in fact my doctor couldn't be more unsupportive if he tried! I'm pretty sure the problems are caused by wheat but it's been a year or two of 'playing' with my food to find out. I started a new job at the beginning of this year, and the only food available was cheese sandwiches (I'm veggie) I had no problems to begin with, but the last few weeks I have been so tired I feel like I'm walking throught treacle all the time, but far less symptons than before. I've cut the wheat out again from today, and even after a day I'm starting to feel a little better. So could this be down to wheat, or something else? and how do I get friends and family to take me seriously without a diagnosis from a doctor, and not think I'm just being picky with my food again (history of disordered eating)

I also believe my mum has a food intolerance, she has rheumatoid arthritis and a host of other symptons. She doesn't believe a food intolerance could be exagerating these things for her and won't try changingher diet. She is the reason I ask how to get people to take me seriously.
Sorry for the long post, and if you've got this far thanks for reading emoticon

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