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6/22/15 5:48 P

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Hi Tricia,
Well I have exercised two days in a row ! Yay! I swam an hour yesterday 100 lengths of the pool and today so far I did 4 videos , on cable, even did push ups!!! 3 10 minute videos and one 30 minute Jillian Michaels video, I am going to go for a swim in a little bit. So far so good. I will see an allergist finally on Wednesday morning. I see you post on Facebook. Big hugs.
pj

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5/15/15 4:54 P

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Hi Tricia,,
well I haven't been back to the gym yet, allegies got me , my sinuses got very swollen and I was very dizzy this past month, had an MRI that my neurologist ordered, he thought maybe I had a stroke, I didn't the sinuses showed up on the MRI as being thickened, so I have an appointment in June sometime with an ENT , couldn't get in before then. My neurologist is closing his practice and going to Gainesville to take a job at the University of Florida and will be at the Research hospital there, I am thinking about moving up there in March when my lease is up, we will see, I made an appointment to see a neurologist across the street here until then. Weight is up to 208. Rolling my eyes. Had labs drawn when I was going through all of that and everything was ok except my triglicerides were 450 and cholesterol was 215, and HDL was only 30 so you can tell I have been eating like crap and not exercising , besides my weight being higher than it has in 5 years. I still haven't started doing anything about it. Big hugs.
pj

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4/9/15 3:29 P

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Hi Tricia , Finally I am back ! I went to the gym Tuesday and today. Today I filed the paperwork for my scholarship and got an 80% scholarship again so 9.20 a month for a year. I did a spin class Tuesday and left today I did 35 minutes on the elliptical and 30 minutes on the recumbant bike and left. I have to be careful not injure myself. My weight is up to 203, I saw my internist yesterday he wanted to get A1C and cholesterol levels and other blood work i told him I had been eating like crap for awhile and hadn't been exercising he said ok lets check it in a month or so, lets not let this get away from us. So I am knuckling down . I do not want him to look at those numbers what ever they are now and say I want to put you on drugs . So here I go I know what to do .
Hope you are well.
The girls are getting so tall and I know you are so proud of them. Big hugs.
I have been seeing your posts on FB.
pj

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2/17/15 2:29 P

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Hi Tricia , My computer is still not good but I am posting through it anyway.
Good news I have temporary help with my seizure meds from the drug assistance program, 30 days, so I should get my seizure meds this week, they are sending me a certification letter and once that is signed and mailed back they will give me assistance until the end of the year.
I am going up to Tallahassee tomorrow on the bus ( chartered ) for a Clean WAter Rally and will go to a Senate meeting , we are leaving at 2:45 am and wont be back til about midnight. I am packing and putting together snacks since we will be in the bus about 16 hours both ways.
My weight is to the highest it has been in over 5 years 204, I have been doing water aerobics here at the condo 3 x a week and walking a little to the library and back several times a week to volunteer but have been staying pretty calm and quiet and non stressed since I haven't been on seizure drugs .
Hopefully soon I can get back to being me and to the gym once I am theraputic on my meds.
WTG on your food and exercise.
Big hugs.
pj

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2/9/15 6:28 P

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Hi PJ! Hope you are doing okay! Haven't heard from you in a while. I am doing well. Trying to get things on track. This is week three of regular exercise. I am doing better with food too. Scale was moving down until TOM arrived this weekend. So hoping it comes back down as the week goes by.

Busy week at school this week. Lots of stuff going on...

Hope you are well.

Tricia

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2/1/15 8:24 A

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Hi PJ!

From the pictures you have posted on Facebook it looks like you had a pretty fun birthday! And those cheesecakes looked yummy! Happy Belated Birthday wishes from me! emoticon

I did manage to get in three days of exercise this week. Food has been hit or miss on the healthy side of things. Hard to limit those things that we don't really need but we think we do. People keep on bringing in snacks to work that does not help me stay on track! I do have plenty of fruit now, so hopefully I can take my own snacks and make healthier choices. Trying to cut back on my chai tea lattes again. Do good for a while, but it is easy to get back to two a day.

Sleeping has been off. I have a good night every other night. Friday night I was so wiped I didn't hear my son come home from work.

Can't seem to get motivated to get much done around the house. DH and one of the boys will be gone next weekend - so maybe I will get more stuff done then. Hard to do things when dh is back sleeping all Saturday...I ended up taking a nap. I am having some congestion that is making my ear hurt. It got bad yesterday afternoon as the front was moving through. Took three rounds of decongestants and it is doing much better this morning.

I know you are having computer issues, so not sure if you will see this til later, but hope you are having a good weekend.

ttyl - Tricia

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1/26/15 8:43 P

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Hi Trcia! Today is my 58th birthday :) I had a quiet day. Andy did take me downtown for my free tacos at the taco shack, I got 2 different vegetarian tacos, one with cauliflower and avocado , black beans and cilantro , with lime juice squeezed on top! So good, and the other a avocado, black bean and tomato with lots of shredded cabbage and a bit of cheese. My friend Julie owns the Taco Shack and her tacos are so good! She is going to open a juice bar in the shopping plaza right in front of my condo village soon! That is exciting. :) small towns are fun.
I went for a brisk walk with Andy about 2 miles in our neighborhood this afternoon and this evening during the evening news I did lunges, squats, and other things with two pound weights in my hands did all kinds of things with my arms and I didn't stop for the 1/2 hour got breathless. I will see how my body feels tomorrow and if ok will do it again . I have to do something . I ordered the book The Hormone diet today , I need to tune up my diet and I think I have cortizol issue .
Cold front here tonight , stay warm.
pj

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1/25/15 2:00 P

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Hi Tricia!
Have fun at the Botanical Gardens! Sounds like fun. We are about 65 high today too that is colder than we have been, it was in the 40s last night much colder. :) The sun is shining I should get dressed and go for a walk. Hope your shoulder is better soon! Big hugs.

I don't drink at all either haven't drank in 29 years and I don't like being around people that think that is how to socialize.
Enjoy your day!
pj

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1/25/15 11:22 A

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Hi PJ!

Last night was okay. It is really stressful for me in that kind of situation. I also grew up in a very conservative home so I am not used to being around people who are drinking. I don't drink at all. Was stressed out by the time we left. I did enter into conversations, but it was just different than what I am used to.

My shoulder is balled up. I am not sure what triggered it, but it is painful. Hate it when that happens. It has been quite a while since it has tightened up like this. Started Friday night. Have been putting my heated rice sock on it and it is helping some for a while and then it starts again. Need to start exercising again.

I think we are going to go out to the Botanical Gardens this afternoon. It is supposed to be around 65 this afternoon and I need to be out in the sunshine.

Hope you have a good day.

ttyl - Tricia

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1/24/15 8:04 P

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Hi Tricia, Hope you have fun tonight. I can relate to not dealing with a bunch of people you don't know even if I know them I am not comfortable in a crowd of people . Monday is my 58th birthday, yes this month is going by quickly. No plans , everyone I usually celebrate with are gone in one form or another. :(
I did two hours of tagging at the library today, I didn't want to get up this morning I overslept and was 20 minutes late to the library but since I was the only one doing the tagging today it wasn't any big deal just stayed til 11:30. A cold front passed through while I was at the library. I have been home watching movies this afternoon it is a free weekend to view Starz channel on cable so I am taking advantage of that . Big hugs.
pj

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1/24/15 4:28 P

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Hi PJ!

I haven't figured out how to get the books from the library. Guess I will have to ask the next time I go in or see if it tells me on-line.

For a short week, it seemed like a really long week. Amazing how it works out that way! A four day week ends up seeming like an extra long week. Having a headache most of the time does not help I am sure. I hate waking up with the pressure in my head. Still taking stuff at night and doing my nose spray, but it isn't controlling it completely. Don't feel congested, just have a dull ache most of the time.

Got a few things done around the house today. Was just working on figuring out the plan for our Valentine's Party for school. Our 100th day of school falls on the week of Valentine's so that week is a bit crazy!

This evening we are going to DH's work party. Went and found a new outfit to wear for the evening. Looking forward to a night out with my sweet husband, but not looking forward to being around a bunch of people that I do not know. Very hard on this introvert.

Hope you have had a good rest of your week. Take care of yourself. Glad you are getting out and keeping busy.

ttyl - Tricia

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1/21/15 1:57 P

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Hi Tricia, I will have to look for that author. Glad you are enjoying your kindle my niece loves her Nook which is like a Kindle. There is a way to get free and discounted books for the kindle and Nook and electronic ones and you can check them out from the library too electronically free, just download them onto your kindle and you have them for the 2 weeks that way, they do that here.
I started the volunteer job at the library yesterday tagging books with the new tags for the new reader they will be getting to check them out , I did two hours yesterday and 3 today and will 2 hours every day this week at least, if I have more energy at the end of my shift and they need another person I can stay for part or all of the next two hour stint. That is what I did today. It is very warm here I walked to and from the Library in my shorts and t shirt and plan on getting in the pool in another hour or so for a swim. I have my meditation class tonight. I feel pretty good today not dizzy and am on only 50 of that drug that made me feel crazy weaning off of it. I got my first denial for the EXTRA HELP for my medicare D yesterday, 60$ to much income a year! Same thing as last year I called them last night and please send me the appeal I had to do that last year and ended up getting the EXTRA Help because I had been hospitalized the year before and I was hospitalized this past year for surgery and a week of rehab the woman said really? Told me to document it. I said to her, you know if would be so much easier if your computers spoke with the medicare computers because they know I was hospitalized and they know how much they pain in homecare and medication as well as surgery and rehab , that it is very hard on me every year to be taken off my seizure medication while they figure out this and since I am only 60$ over the cut off which was less than our Cost of Living raise this year it seems very silly to me. I told her I can not be the only person you all put in a life threatening position every year when you cut off my Extra help for my medication and I can't afford my medication . There has to be a better way.
Ridiculous , I still haven't heard anything from the drug assistance program. My doctor fills out papers but if the different agencies don't talk to one another it does no good.
Hope you have a good day.
pj

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1/21/15 8:26 A

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Oh PJ! Big Hugs woman! That sounds so scary. Sorry you are having adverse reactions to your medication. I wish they would just let you stay on the medication that you know works for you. All of this hassle...You would think there would be something your doctor could do to let someone know this is what you need. The lack of communication is incredible.

I was reading a series about a detective, Angel Delaney series. The author is Patricia Rushmore. I really enjoyed to books. Finished reading the last one yesterday afternoon. She has other series. The first one she is involved in an officer involved shooting so it is really pertintent to current events. Found it interesting looking at it from the officer's point of view. If people would stop and think about how it affects them. They don't want to use deadly force, but will if they feel it necessary.

I got a Kindle for Christmas so I have been downloading the books. It is quick and easy and I need to be careful. Going through the books so quickly, even $5 a book will add up fast if I am completing a book every 3 or 4 days. I do have two books that I downloaded right after I got my Kindle so I will read those before I get any more books.

I hope you are doing better.

Another busy day at school. It is bear week so it is fun week at school. Lots of fabulous books to read! Too many to choose from.

Hope you have a good day. Will check back in with you later.

Tricia

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1/19/15 9:05 P

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Hi Tricia,
Glad you had a good weekend. Sounds like it was relaxing. :) what series of books are you reading?
I started having a adverse reaction to the new seizure drug Thursday night and am weaning myself off, I started crying and couldn't stop and was having images of chopping myself up into little pieces. I called my neurologist first thing Friday morning, I slept ok but as soon as i woke up i started crying again , He said ' I don't know what to do !' I said I know that is part of this helpless hopeless feeling that there is no choice . Told him i was backing off of the med back to 100 mg , had just increased to 150 mg on Wednesday and after a week there would back down to 50 mg a day for a week asked him if that sounded ok he said yes. I wasn't able to go to the protest at the locks on Friday the army corps of engineers starting dumping water from Lake Okeechobee on Friday morning back into our river and I didn't feel safe to go to the River Warriors awards banquet on Saturday evening since I am not on a theraputic dose and I was feeling very fragile. We all were honored by the River Keeper , He presented me with an award and said some kind things about me and the hard work I have done in the past year + on behalf of our county and river. I was texted this from the dinner. I was surprised but pleased he honored all of us we are not a large group and i was wondering how he would single people out since we are all out there working hard to save the river in what ever capacity we can. I got an Outstanding Boots on the Ground warrior award as did most of us. There were ones that got a few awards depending on what all they have done beyond that, businesses , starting the facebook page, the one who got the warrior of the year started the River Kidz program up in SL county as well as tons of other planning things and boots on the ground. It was well deserved.
Yesterday I watched the football games and every day but today in the last 8 days I swam at least an hour . Today Barb came and got me to go visit her mom in the nursing home and decorated it for Valentines day. She smiles at me everytime and then says ' What Happened to you? ' She thinks I am Barb's daughter Vanessa, I say I am Pam Barb's friend. She just shakes her head and decides I am Vanessa and can't figure out why I look different . Vanessa is 35 and 5 inches taller and not as heavy as I am and use to take care of her grandmother. so She tells me to sit down and she is comfortable because she thinks I am family. So Barb decorated her room gave her the fig newtons and potato chips she brought for her and took the things her mom wanted her to take home , and as we are leaving she says " I have been walking a little ' my hip hurts but I am getting better' When we get in the truck to leave Barb says "why does she make up stories about walking' Her mom broke her hip months ago when she was sick and in the hospital , she fell, and that is when she had to go live at the nursing home. She has dementia , she is 79 . I said Barb she remembers she is there because she can't walk and Vanessa can't take care of her anymore and she wants to go home so she is like a kid saying " I have been good I am trying' Her mother is unable to wak at all. Barb thinks because her mom seems with it with her that she is and is playing games with her. but the fact that she always thinks I am Vanessa and is confused when she sees me shows she is confused.
I was dizzy earlier and my stomach bothering me drank some detox tea , stomach still hurting a bit less dizzy.
Hope you have a good night.
pj

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1/19/15 4:16 P

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Hi PJ!

Last week was crazy busy, but I survived. I was pretty wiped out by the end of the week. I was pleased to have a day off today. Haven't done much this weekend. I did manage to get my Christmas tree down. Need to get the boxes put back up in the attic but at least it is down. I did get grocery shopping today. I have been reading a series of books. I finished one last night and I am over half way done with the next one. It has been nice to slow down and relax for a bit.

Hope you have had a good week and weekend.

ttyl - Tricia

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1/14/15 4:27 P

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Hi Tricia,
Hope your week is going well, know you were anticipating a stressful one. Hope the girls are doing what they need to do. Big hugs.
Well on Monday the same woman from the insurance company called that called on Saturday to tell me I could change policies, so I checked out the prices of the medications between the Plus policy and the choice policy ( the one I have now ) it will not save me any money to take the Plus policy because they have raised that premium to 80$ a month and the co pays are either more than the choice plan or enough lower to save me $$. If I took it i would save 60$ a month but it costs me 60$ more a month so that is a wash and it doesn't cover the seizure drug I was on. So far I am ok on the new seizure drug. no seizures and no allergies yet increased dose to 150mg a day today so a week of that before I go up to 200mg a day.
I swam for an hour today 100 lengths of our pool ( not as long as the gym pool but I think it is close to a mile ) , also did 2 sets of 15 flights of steps here at the apartment in 16 minutes I was out of breath, I got my water in . I have swam the last three days for at least an hour .
I did an orientation at the Library yesterday to help do the tagging of the books over the next 3 months a couple of hours a day a few days a week , that will get me up and out of the apartment and make my day more productive. My literacy student is still ill, I called her yesterday and she was back in the hospital with her lungs, they keep filling up with fluid , they put her on steroids and she gets better but when she comes off the steroids they fill up again she can't go out around people while she is on steroids. we haven't met since October.
I have my meditation class tonight so even though I want to exercise more I will not I have been having a lot of dystonia symptoms at night when I am asleep that wake me up even with the new higher dose of Levadopa with my increased activity , so since I increased the steps today I will just leave it at what I have done , my muscles are burning and I have been out of the pool for 2 1/2 hours , hopefully I did not create tendonitis today with my swim.
Big hugs.
pj

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1/12/15 8:16 P

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Hi PJ!

I finally had a chance to read the rest of your post. Your day Friday sounds like a blast. Sounds like someone my boys and my dh would love to visit. We have a good friend whose son is a Navy Seal...I actually used to babysit for him many years ago.

I cannot believe they called and apologized and then did nothing about it. What good does it do to tell you they are sorry and that they can't do anything to fix it! That is nuts! I hope you are able to get something worked out soon.

I saw Jen's post asking about gluten free, I did not see the part about hashimoto's. That in itself is not scary...it is all the other stuff that can happen because of it.

Had a pretty good day at work. My co-teacher is going to be evaluated next week for her child development certification. She took a course last year. I have been pushing her to do calendar time and more of the teaching the last two weeks so that she will feel more comfortable when they come next week. She did all of the teaching today and did a good job. She is still real nervous and it shows in her voice at times. It is hard to sit on the sidelines when I am used to being the one in charge.

Hope you have had a good day.

Will check in with you later.

Tricia



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1/12/15 7:26 A

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Morning PJ!

Didn't have a chance to read all the way through your message yet...but sounds like you had a fabulous time on Friday. Just checking in real quick...

Frustrated with my girls this week. They are not completing and turning in assignments at school. My one dd told me she had completed her assignments and talked to her teachers...figured out last night that she did not. I could strangle her. This is the last week of the six weeks and the semester! What are they thinking. Both are grounded from the computer this week! UGH!

Well...now that I got that off my chest. Need to go see what I can do to help them get ready for school. Hope you have a good day. Will check in with you later.

Tricia

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1/11/15 12:35 P

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Hi Tricia,
Friday went well, it was the best day in a long time, so much fun with Darby and her son. Her son Wyatt and I hit it off, when he found out I am dyslexic too he was so happy! He is 8. Darby had said to let him roam the museum and grounds but he liked taking me on a tour , and at times reading and discussing things. This was the Navy SEAL museum , they had a blackhawk helicopter, all kinds of jeeps , the life boat that was from the ship that captain Phillips was on and the Navy Seals rescued him from the Samali kidnappers, They have a huge Navy SWCC ( Special Warfare Combat Crewman ) boat that we were able to climb on and into and watch a recruitment film that made us both laugh at the end, where they showed scenes of people boating for fun as opposed to what the Navy Seals do and said this isn't a picnic. Then we walked towards the obstacle course and as i put down my pack and started to get on something I thought I could do Wyatt got nervous and said ' what are you doing, isn't this closed? I just laughed and said come on lets try this. So I started walking across a metal tightrope with ropes on the side ( just inches above the ground and he paused but he took off his shoes and got on the one next to me and made it across before me and then he headed to the next obstacle big logs you walk up and then across another one and down another, so he started up one and I started up one. He got to the top and I was near the top and started to wobble and decided I better jump down instead of fall backward , so I braced myself , thinking of my left knee being bone on bone and how I was 5 ft up in the air at least , when I landed I hit my butt on the ground. Someone came and helped me up and asked if I was ok. I was. But that was the end of me being daring . :) had to wait for several hours but by evening my entire spine was hurting but It was a great day and Wyatt pushed his boundaries of comfort and that was good to see . His mom came and found us there and she was thrilled to see him doing the challenges. After the field trip was over Darby took us to the Baccus Art Gallery , and that was a treat, I hadn't been there before , he is Florida's painter of landscapes and portraits like the man who did the American Gothic was to the midwest for farms. His paintings were so beautiful and every time I see one I know that I have adopted Florida as my home , I love what I see and embrace it as HOME! When I got home at 3:30 I was exhausted and I was in bed at 4pm and slept til 7pm when my friend Keri West called , I was so deep in sleep I couldn't figure out how to answer the phone. :) I am itching and I don't know if these are things that I got on Friday or if I am starting to react to the drug. The heaviness I had in my chest is gone that lasted 2 or 3 days and would happen after I took the drug. A representative from the insurance company called yesterday about the grievance I filed and apologized she had listened to all of the recorded calls starting with the one in NOvember when I was told I had qualified for extra help and I would have 20 dollar premiums and no co pays to the one where I was hung up on , on January 2nd when I called to ask about why the co pay was 400$ on my seizure med , where was the extra help, to the 3rd call where I was told I had extra help on my premium but not on the co pay. I said ok you are apologizing so what other recourse is there? NOTHING! I said well that doesn't seem right. She said well you could call medicare and file a grievance against the insurance company with them. She had the nerve to say ' HAVE A GOOD DAY' I wasn't rude once in any of these phone calls.
She asked if I filed for extra help , said yes, she said oH good, I said it will be months before that is of any use to me . I had to start a new drug for my seizures and I have 29 drug allergies 2 of them to seizure drugs so it is dangerous for me to have to start a new medication especially when We know the medicine I was on and hadn't had seizures on is the one I need to be on and all of this stress puts me at greater risk of having seizures. Also if I had known in November I did not have extra help I would have chosen a different policy one with my co pays lower , can I do that now? NO she says you do not quailify for that , I said I beg your pardon, I was given incorrect information that I based my choices on by your agent I should be able to make a different choice. The co pays on the generics are too high on this policy and had I known this was happening I would have chosen the Plus plan where the premium is higher but the co pay is lower or 0 depending on whether it is a brand name drug or generic. She said NO I am sorry. I said well that apology doesn't help and what does this grievance do? hmm. You just said I was right and your company was wrong and you apologize. The apology doesn't do anything.
She said her nice thing and I said ' right'
So I will have to medicare and see if I can file a grievance against them and if I can get another policy with lower co pays since I got the wrong information while I wait for the extra help . I have to call the pharmacy tomorrow and order the parkinson drug I use two different doses that were just increased in December and see what the co pay is, the lower dose years ago was quite expensive . We will see.
IT is pretty here today, I need to clean, I can tell I am down besides looking at myself in the mirror or how my clothes fit by the way the apartment looks , I also would like to get a swim in or walk but can't really push myself since i am not theraputic on my meds.
Big hugs , Hope this week goes smoothly for you.
Hope your Dad gets the chemo and he is feeling better soon.
Did you see Jen's post about being diagnosed with possible Hashimotos ? and the doc putting her on a gluten free diet. I thought of you.
Big hugs.
pj

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1/11/15 11:30 A

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Hi PJ!

Hope things went well on Friday and that your body is adjusting to the change in medication. I know that has got to be so hard and scary at the same time. I have been lethargic but can't blame it on medication...or maybe I am just being lazy. I am cramping bad this weekend. Has not been fun. Hopefully I am past the worst of it. Will kind of be a crazier week for me. DH has picked up extra shifts at work on Monday and Tuesday so he will be working all week long. The extra pay will be nice but it makes things stressful when he is not around and helping and I have to have dinner ready every night at 5. I am sure it will all work out...it is just the anticipation. He is also slated to travel to Austin for an install on a system the month of March! So I will basically be doing the single parent thing the month of March...which of course covers our spring break...

My daddy has done well this week. Hopefully he will get the go ahead to have chemo this week. He is anxious at this point to get the last two treatments done and over with and hopefully start feeling better.

Hope you are having a good weekend. Will check in with you later.

Tricia

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1/8/15 5:51 P

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Hi Tricia,
I was lethargic today, my sleep was disturbed I think because of the new medicine I went to bed at 11 and was awake at 4 not restful sleep, up for 4 hours and then slept a few more hours and just sort of stared all day. I meant to have cleaned today but I just got the dishes put away and garbage taken out and clothes sorted. I got a message from a woman I have met through the river warriors she asked me to go up to Ft Pierce with her tomorrow to the Marine Seal Museum , she is an educator with a homeschooling group, and she homeschools her special needs son, she is meeting 50 school age kids from across the state up there and their parents she wants me to keep an eye on her son and supervise him for the day. She will pay me and feed me etc. So I said yes. Hopefully I will be less lethargic and won't have any seizures.
We had a cold front come down here not bad just gray and dropped us into the 60s today from the 80s , northern florida is cold was 32 today and in the 20s tonight.
Big hugs.
pj

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1/8/15 5:41 P

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I hope that new medicine works for you. All of this is quite a hassle for you. I cannot even imagine. Totally frustrating and understandably exhausting.

Is it Friday afternoon yet???? I am tired. It has been a long week. We have only gotten to go outside one day to play because it is so cold here. Makes for long days for all of us. The kids keep asking if we are going to get to watch a movie. I think they did that a lot last year when it was cold. I try to limit that as much as possible. They need movement not sitting for 30 minutes or more watching a movie.

Well, I need to run pick up my dd from band. Will check back in with you later.

Tricia

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1/7/15 12:02 A

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Hi Tricia,
Big hugs to you ! wow your parents certainly have been through a lot. Big hugs again.

Well another stressful day here. This morning I called Andy and asked him if he would take me to PSL so I could fill out my portion of the drug assistance papers at my neurologists office , I took the documents I needed to and they faxed everything from there. My neurologist thinks that the brand name drug Topamax is not being made any longer though when I called the drug assistance program Johnson and Johnson foundation yesterday they said it was and my pharmacist says the drug is available to them though my doctor says it isn't in his formulary anymore. Anyway when my doctor came out of an exam room while I was there I asked him if on Thursday when I am out of my medication and I go cold turkey off of it would I have my usual partial seizures or could have have grand mal seizures and he looked at me and said come in here and took me into an exam room and fired up his computer and started going over the drugs I have taken which ones I am allerigic too which ones he had on hand , etc. So he pulled out some samples of vimpat and told me how to take that and gave me 2 months supply of that and said that should get me through until I was on the drug assistance program for the topamax . So I go home and read about the new drug but not before I took one . Then I read that anyone with an electrical issue with their heart , a 2nd degree heart block , av block , syncope , should not take this drug. I HAVE THAT! I called my doctor's office spoke with his secretary and told her, said this is one of the first things that it says in the warnings and I had taken a capsule and I can't take these , she said hold on, and came back and said ok Dr Maraist said he is calling in a prescription for the other drug you spoke about zonigran the generic you will be able to afford that until you can get the other drug on drug assistance. So I waited until the pharmacy called to tell me my prescription was ready and rode my bike the 3 miles to get it and 3 miles back, it cost 24$ co pay for it and took the first 50 mg cap, I am to take 50 mg 2 times a day for a week then 150 mg a day for a week then 200 mg and stay there , so it will be a couple of weeks before I am on the theraputic dose. Hopefully I am not allergic to this drug.
I am tired.
Big hugs.
Good night.
pj

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1/6/15 8:24 A

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I cannot even imagine how frustrating that has got to be with you. Scary, too.

Thought I was getting another sinus infection. Head was bothering me some last night...then woke up with a migraine this morning. I guess it still could have been sinus too last night...who knows?

Talked to my parents yesterday...Dad has to do two more rounds of chemo, but his fluid levels are down and staying down this time. If this trend continues two more rounds of chemo should make a big difference. My mom had an endoscopy last week. I guess she has something called Barrett cells that can become cancerous so she does this scope every year. She got the results yesterday and the biopsy they did was inconclusive...she questioned the nurse as to what that meant and if she would have to do another scope and was told the doctor would go over that with her at her next appointment that is in a month from now! Really frustrating! I guess if he thought it was something to be concerned about he would have her come in even sooner but with all my parents are going through with my dad it is scary and stress that Mom does not need.

Hope you have a good day today.

Check in with you later.

Tricia

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1/5/15 10:14 A

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I called my neurologists office, they do not have samples of my med, they had expired and they were thrown out. My med doesn't have a patient assistance program, my epilepsy foundation case worker isn't in the local office had to call down to West Palm Beach waiting for a call from them , but I haven't talked with my neurologist, my only thought is to get a perscription for the drug I use to take they do have a patient assitance program and get the paper work for that going but that will take a few weeks , I can't take the generic drug I seize with in 30 minutes of taking it. I am just about in tears , I filled out the application for EXTRA HELP for MEDICARE D Medicationsonline, what I should have done weeks ago had I not been given the wrong information from the insurance company. I filed a grievance with them Friday. if it goes like last year I will be turned down then have to appeal be turned down again then some how because I was hospitalized for my surgery on my shoulder medicaide and medicare in Florida comes in and I get EXTRA HELP but why the heck no one speaks to each other and nothing is triggered automatically without me filling out paperwork every year I do not know they have the bills and the paperwork ( medicare ) that this has happened and the insurance company and the extra help company how much has been paid out the last year, why no one pays attention , why I am the one that is left flapping in the wind makes no sense. A simple computer program would fix this problem an interface between the systems and better trained individulals.
I know I am not the only one that goes through this ever year and people must be dying because of this mess.
I know how hopeless I feel now and I know how hopeless I feel every year when this happens. IT IS CRAZY MAKING! 400$ for a co payment for my medicine , paying it isn't even possible.
when you think about my rent being 575$ just crazy making. When I tell you I have one dress, 1 pair of pants and 3 pairs of shorts and a bunch of men's shirts .
will be back.
pj

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1/5/15 7:27 A

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Oh PJ! Sorry you are having to deal with all the red tape again in regards to your medication. Why would you have to redo this every year! It makes no sense.

Got a phone call yesterday from my mom...My parents went out for lunch yesterday and when my dad got up to leave, his foot caught on the chair and he fell and hit his mouth on the chair next to him. He knocked out a tooth and ended up with six stitches in his lip! They spent all afternoon in the ER. Not fun! My thumb hurt just thinking about stitches! He goes to see his oncologist today to find out about the plan of action now. They had said at least four rounds of chemo which he has completed, but they may want to do two more...Praying for wisdom for the doctor in the decisions that need to be made.

Back to school today...so gotta run. Will try and check back in with you later.

Tricia

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1/4/15 10:46 P

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I did get an hour swim in today for the first time in awhile. We have been having record highs, it has been in the 80s and walked to the store and back.
Lots of things going on I know what you mean about busy stuff. I am overwhelmed thinking about it. Stressful stuff , too , my meds are not covered as I thought , my seizure meds again I got the wrong info from the insurance company weeks ago and found that out on Friday. So like last year at the first of the year I am in a limbo situation don't know what I am going to do but trusting it will work out some how will call my neurologist to see if he has some samples until we figure it out. Hopefully will start feeling energetic and get plugged into the things I need to do because I have lots of commitments .
pj

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1/4/15 2:54 P

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I have tears in my eyes and my heart aches just reading what you wrote. I cannot even imagine what that young man is feeling. I am glad he is going to get to finish out the school year. It will be difficult enough without having another major transition but it will be a very different and difficult year for him.

Glad you were able to get some sleep last night. I did not sleep very well. When I went shopping yesterday, when we were checking out I was trying to pick some things off the bottom of the cart so that the cashier could ring them up...the canned dog food slipped from my hands. I caught it as it slammed into my thigh. I have a huge bruise that was causing me some discomfort when I sleep. It is in just the right spot that the way I sleep I kept putting pressure on it. My teacher brain also kicked in this morning...I woke up with thoughts going through my head about school and what I could do...

Filled out our calendar for the next six months...Boy are things going to be busy between now and the end of the school year.

Hope you are having a restful day.

Tricia

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1/4/15 11:54 A

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Hi Tricia,
it has been a difficult week. I slept well last night. Yesterday I cried for 2 hours at the funeral, I kept looking for Brian at the front row where he stood 10 months ago and kept listening for his voice but kept seeing his face on the screen of the pictures that flashed by in the rememberances tributes that went by and my tears streamed down my face. His cousin stood up and went to the front and spoke in a strong steady voice and that calmed me, he is one of Nicky's god parents , and in Lynn and Brian's Wisdom 11 years ago they named 4 of them, 2 women and 2 men and he said at the time he thought it was odd and strange and also just symbolic but now 11 years later he saw the wisdom in it and knows it isn't symbolic at all. He addressed Nicky and said ' YOUNG MAN' and I say that with sorrow in my heart but it is what you are and you are that now because you have to step into those shoes way to early and see things long before you should and experience things before most of us , and know you will get through this and grow and mature into the man you are to be. He said look around this room Nick, and know that here today all of these people that surround you in love and grief, at any time you need any THING ,they will be there you just have to ask they will be there for you. "
You could feel the love and support all around Nicky and when he said YOUNG MAN to NICKY , Nicky bent his head down and cried, his aunt Debbie ( Lynn's sister ) just rubbed his back. His grandmother on his other side weeping and her daughter in law holding her up. Her other son on the other end of the row holding Brian's dad up and someone else in the family I think his daughter ( Brian's niece holding her father's hand . ) and another line of family members behind them as a second row to reinforce them . The minister had been crying. I had been to so many events in this church with Lynn and then Brian ( Lynn's service ) and surprised how many people I knew there from so many places. This service was so full of grief, a double grief or triple grief, LYNN, Brian and for Nicky and for all of us it just felt so huge. At the end I went and hugged Geri Brian's mom and she just melted into my arms and said ' PAM THIS IS A NIGHT MARE' and I know baby I know , she had become the child and I the mother. She let me hold her like that for awhile while she just melted. I am so concerned for her. I was relieved to find out that the plan is that Nicky will stay in the condo with her, and Brian's niece will move down from NY ,she just graduated college and help her grandmother with Nicky and let Nicky finish out the school year , and then they will figure out what to do from there. Nicky is in the 6th grade. He has been through so much in the last 3 years and so much this past year. He will be 12 in May. I found Nicky then and he had a line of friends waiting for him and I asked if I could hug him first and got the ok , and I hugged him and told him I just gave his grandmother a card with my phone number in it, since his parents had my phone numbers in their phones but I wanted to make sure he and his grandmother had my number. He said OK told him I loved him , he hugged me back and then let his friends have him they hugged him and later as I was leaving saw him playing like an 11 year old should. :)
Big hugs.
Thank you for the support
pj

Brian died of a heart attack in his sleep by the way Saturday night.

Edited by: PJOY17 at: 1/4/2015 (11:59)
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1/4/15 11:22 A

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Oh PJ! My heart goes out to Nicky! I just saw your post on Facebook about coming back from a funeral but had no idea that it was Lynn's husband. Will be praying for Nicky and all the adjustments that little guy will have to make. Things like that make a kid have to grow up fast. Breaks my heart.

How are you doing? I know that the funeral had to be hard for you.

I have been unplugged for a couple of days. Really have been hibernating at the house for the most part. Have not really been checking e-mail, facebook or anything...I was reading, working on a puzzle with the girls, cooking, watching movies with the girls, and just chilling. Much needed with all the things I put on my calendar this morning. We will hit the ground running and won't stop until June.

Will check in with you later.

Tricia



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12/31/14 1:32 A

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hi Tricia, I got a call from Kari Pebely on Sunday , Brian, Lynn's husband was found dead Sunday morning by his mother in the condo , I don't know how or what he died of, Nicky was in Maryland, Brian had taken him up there for Christmas and had left him there with Lynn's family to finish up Christmas break and Brian and Brian's mother had just gotten home I guess Friday evening . I was heart broken to say the least as was everyone else, Nicky got back today with Lynn's sister Debbie today , the memorial service in Saturday at 11am. I called Lynn's friend Lisa up in Orlando on Sunday after I calmed down she was on facebook and I could contact her that way and her friend Sylvia through facebook and let them know one of them most difficult things I have ever done , Sylvia just let me know her flight is booked and she will fly in Friday night for the service, Lisa just contacted me on facebook and asked if I would like her to pick me up on Saturday told her sure since I haven't heard anything more from Kari. Lisa was the one that told me when the service was. Darcey posted finally something and I reposted and then I saw Lisa was posting as well. I swear when Kari told me that Brian had died I just started screaming and wailing she called me on my cell phone I was on my land line with my friend Keri West and I dropped that and poor thing just held on listing to my gut wrenching screams she didnt know who had died but she knew it was something horrible , I just kept saying over and over ' my poor baby' referring to Nicky, in 10 months he has lost both his parents. I have no idea who he is going to live with. Darcey voiced tonight that she wished she could take him he is the same age as one of her sons . Lynn has several sisters and a brother and my logic says one of them should raise him. Brian has a brother whom I have never met who has come down to help his mother sort things out. Lynn's siblings live in Maryland they all live close together. I don't know what they had in their wills . Everyone is praying for Nicky and he is who we are thinking about now. poor baby. he is only 11.
Big hugs honey.
pj

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12/27/14 2:23 P

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Hi Tricia ,
I was mostly well on Christmas. I was alone. Glad you had a good holiday. I am sorry to hear about Brent's grandmother.
Big hugs honey.
I am quiet here .
pj

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12/27/14 12:08 P

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Hi PJ!

How are you feeling? Did you get to feeling better on Christmas? It has been nice to be home and with my family. We had a wonderful Christmas Eve and Christmas Day. My sweet husband got the night off on Christmas Eve. I was so excited especially since I had been gone. I had done a lot of baking that day. Cookies, banana bread, and more. I ended up making a pork tenderloin for dinner that evening and it was delicious, melt in your mouth, delicious. Christmas was nice and relaxing for the most part. We did not have to go to Brent's mom's house until 5 in the afternoon. The kids had all bought gifts for one another so we took the time for each one of them to pass out their gifts and open them. It was nice to be able to see everyone's reactions to their gifts. They all did a great job with the gifts. The boys and I went together and got a Marine Corps jacket for my husband. BEST GIFT EVER! It will be hard to top that one next year. He was soooo excited! I loved it! I got a Kindle Fire. It has been fun to play with it and figure out all it can do. I have downloaded a book, but I have a book from the library right now that I am reading - so I haven't started reading it yet.

Yesterday morning we got the phone call about Brent's grandmother. It was expected but still hard. It has been several years since we had been up to Ohio to see the family there. Reminds us to cherish each moment.

Need to go grocery shopping and normal stuff today. Taking one of the girls to get their haircut here in a bit.

Hope you are feeling better.

Will check in with you later.

Tricia

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12/19/14 7:32 P

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Hi Tricia,
You are at your parents now Hope you had a good trip! have a great time. I have a wedding tomorrow. I got a new dress it is beautiful !
Have fun!
pj

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12/18/14 10:02 P

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Hi PJ!

Sorry I didn't not check in much this week. It has been a crazy busy week for me, but now it is all done. I am mostly packed and will be heading to my parents house in the morning. I probably should head to bed but I have been going nonstop most of today so finally sitting down to watch TV for a bit and chill.

Hope you have a good weekend. I won't be home until late the night before Christmas Eve.

ttyl - Tricia

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12/14/14 7:43 P

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Hi PJ!

Thanks for the hugs...No I am not off yet. We have another week of school. On Friday I am taking the day off so I can go see my parents. We will have our party on Wednesday. It will be a busy week, but it should be a lot of fun.

Sounds like you had a blast at your party. Our work party is tomorrow evening. We always have a lot of fun. We do a gift exchange as well.

Going to run for now. My sweet husband needs to use my computer.

ttyl - Tricia

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12/14/14 11:11 A

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Hi Tricia,
Big hugs, Hope you have a great Christmas! Are you off yet ?
The running club party was so much fun, I ended up dancing for a few hours with my friends we had appetizers ,they were great and we were out on the patio of the restaurant it was in the 50s so keeping moving was a good idea. The next day , evening I went up to Ft Pierce to hear David Cobb speak on the Move to Amend movement, to get money out of government ( to get it on the constitution , Corporations are not people, and Money is not speech , the 1% of the population the mega corporations are running our government with their money and that is not what our founders meant when they wrote ' WE THE PEOPLE' , was a very good presentation. David Cobb ran for president in 2004 with the Green Party, he is from Texas originally. He was presenting to a group of progressives but he says he presents to tea party people , republicans, libertarians etc and has gotten resolutions across the country so far passed including in Montana, Idaho, ( now my mind has gone blank ) I am remembering the two very conservative places he named . Yesterday ( last night ) was our River warrior Christmas party, oh we had so much fun, if you see the pictures on Facebook you will see a bit of the strangeness. We had tons of food, and then did a White Elephant gift exchange, there are pictures of me with a big bow on my head,that came off the gift I chose. My friend Katy put it on my head , in one of the pictures that my friend Keri took I sort of look like a basset hound. lol I really liked that gift , it was a big cedar plank cooking tray to cook fish on , I usually don't get attached to things but I did that I wanted it and what do you know this woman LINDA stole it from me and then the next gift I got , a computer mouse pad and coasters I didn't want , it had dolphins on and no one stole it from me. I gave it to my friend Irene when she came late after the party was over and we were cleaning up. She loves dolphins and uses the computer for her work, she owns a motel. I don't know when I have laughed so much as last night. Screaming laughing at times.
I did ride my bike 8 miles the other day.
I am so frustrated with the way I look. so FAT. 197 but so FAT my face hasn't been this fat looking in so many years I have few clothes that fit well, still in my 16s , my muscles have been sore since dancing the other night and I was up many times the last two nights from being active . Tomorrow I go see my neurologist , I am going to have to ride my bike either all of the way or partially so that will be a 1st in 2 years .
Hope you are having a good weekend. I have a lot of cleaning to do. I made some awesome mini cheese balls yesterday for the party and still need to clean up my mess.
pj

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12/13/14 2:05 P

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Hi PJ!

Sounds like it was a good idea to go to the podiatrist. Glad you are getting some good information and some good help.

Almost done Christmas shopping. I have a couple things to pick up hopefully today. Then I have to start wrapping. Finally got boxed put back up in the attic last night. That has helped a lot. Got the kids bathroom cleaned this morning. I need to work in the kitchen, but I am waiting for my one dd to get home from a birthday party because I need to take her to a carwash when she gets home. The girls are going to spend the night with a friend tonight so I will be on my own.

Will check in with you later.

Tricia

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12/11/14 1:41 P

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Hi Tricia! sorry I didn't answer right away I was sick for a couple of days I got exposed to some poison Friday at the parade ( it had to have been on the grass at the middle school where I was on my knees for a moment to pose for a picture ) Saturday I started feeling irritable and sunday more so and my knees broke out and all I could do Monday and Tuesday was sleep. Yesterday was a great day , I saw my new Podiatrist and he is great! I met him at the 1/2 marathon in October he is a runner and a member of the running club I belong to, he is so nice and a great doc, he throughly examined my feet, told me why my left foot the one that blisters on the bottom of the ball of the big toe says I don't have any fat pad left there and all that is left under the skin is bone and it is due to the disease Charcot Marie Tooth ( the genetic disease ) the inherited neuropathy I have , you will see me posting things about it on facebook . The left one I have had a black toe nail on the second toe nail since october he says that is dried blood and I may or may not lose the toe nail, he had me walk so he could see what is happening , bare footed, and says the toe is dropping at the first knuckle that toe and the next one to it , he gave me new thicker insoles for my running shoes and had me walk around in them outside for awhile to make sure they were comfortable before I paid for them and I got a discount on them since I belong to his running club. he cut my nails , told me to put lotion my feet everyday to make them soft so I don't build callous on them I said I thought that made them blister easier he said no I didn't want to make callouses that would make it easier to make wounds , and with all the issues I am likely to get those since I have decreased sensation told me to take off my shoes every hour and move my toes around . I am not to go barefoot . If I had diabetes medicare would pay for my shoes but since my neuropathy is inherited it will not. isn't that crazy.
I have my running club Christmas party tonight at 6pm and shortly I get my hair cut. One of the river warriors picked me up and brought me home from the podiatrist and she is a hair cutter and she volunteered to cut my hair today and is going to pick me up and bring me home from her salon! so nice, she gives fellow river warriors a discounted price so only 15 $ for a hair cut! yay. Our River Warrior Christmas Party is Saturday. I see my neurologist for a check up on Monday.
I am so glad you get to go see your parents!
I am also going to check with a new doc on the 23, an internist who specializes in bio identical hormones and thyroid etc. My friend Keri West has been seeing him for 5 years, she lost 50 pounds since seeing him so I thought since I haven't had a uterus or ovaries since 2008 and I gained all this weight after the births of my sons 34 years ago I should check him out. I don't have hot flashes or anything but it is worth a check. My metabolism is nil. He specializes in people who are complex so it will not be wasted.
Hope you had a good day.
pj

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12/10/14 5:02 P

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Hi PJ!

I saw that you got to go to the podiatrist today. Hope all went well with that.

Things have been busy at school. Lots to do and to get down with the kids before Christmas. Trying to get all their gifts done before next Wednesday because we will not get anything done from Wednesday on! Wednesday is our party day. I think Thursday will be a movie and survival day...I will have to leave some easy and fun things for my co-teacher for Friday since I am abandoning her the last day of school before Christmas.

Almost done with my own Christmas shopping. Taking one of the girls tonight to do some of her shopping. I have $40 in Kohls cash I am going to let her use.

Hope all is well with you.

ttyl - Tricia

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12/8/14 11:44 P

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Hi PJ!

Sorry about the confusion. Texts can get confusing. I think I was doing something else when I got your text too. Like I said, things have been busy.

This week is busy, but it is good. Found out I got a raise today! Then this afternoon talked to my parents and they are going to pay for me to fly out for a few days before Christmas. I am going out to NC on the 19th and coming back on the 23rd. That means I have a lot to do in the next two weeks! More than I had before! But it is all good. It will be so good to see Daddy for myself. I think my Mom needs it as much as I do.

This evening was the Christmas Tea at church. Our speaker is a member of our church who went through the concentration camps during WW2. It was amazing to hear about the things that she went through and had to face. She has done a lot of work with orphans and has brought many to the states for medical care and has found homes for them. She is an amazing woman. Was a wonderful evening.

Hope you have had a good day!

ttyl - Tricia

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12/7/14 2:40 P

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Hi Tricia!
So good to see you sign on , I thought you were telling me goodbye the other day in the text , i really hate texts I can't hear context or tone. Big hugs I have missed you. Hope you are 100% better. I saw the pictures of your girls and the Christmas cookies this weekend. They are cute and so big I didn't expect them so big ( tall ) . Our christmas parade was Friday and we ( River Warriors and our River Keeper and the Solidarity Fish ( they even made it to Washington Dc this year in ornament form for the National Tree ) , I had a great time in the Parade and walked about 2 miles I am still swimming an hour at a time. My second toe nail on the right foot has been black for over 2 months now and it is sore and seems to roll under when I walk I need to make an appointment to the foot doctor. I did make an appointment with an internist who specializes in bio identical hormones and the indocrine system , my friend Keri West she is the pretty blond next to me in my cover photo from the parade picture from Friday ,not the Kari that was Lynn's friend she has disappeared from my life. Keri West has been doing the bioidentical hormones for several years she used to weigh about 170 and she lost over 50 pounds just with balancing the hormones and eating for her blood type. She weighs 114 now , The doc , knows how to work with complex patients and he accepts medicare so it is worth a try. I have been attempting to go it alone for such a long time. Having gained 24 pounds in the last 2 years in very frustrating and I can't workout like the maniac I was with my tendons and joints the way they are I can't risk injurying myself. So my appointment with the New doc is the 23 of this month. co payment is 35 dollars , not bad. I am tired , my sleep is off I am staying up late and sleeping late so I am tired a lot. Have been eating a lot of sugar the last few weeks and lots of organic veggies strange combo I know . :) Bob hasn't made it down he has had mega financial issues, Andy sent him 1000$ in hopes that will help him get down here, Andy can not imagine anyone he cares about suffering through those freezing temperatures of Buffalo . Bob hopes to get down here by the end of December but his expenses and issues are great so we will see. I have 2 parties this week the running club Christmas party Thursday evening and the River Warrior Christmas party on Saturday evening. The Democrat Christmas party is this evening , but I think I am not going I am tired and not in a mood to being around people , I am supposed to be at a 9am meeting tomorrow , a political thing to ask our legislative reps to purchase land with Amendment 1 money ( we voted it in , in November ) to purchase land for the flow way south for Lake Okeechobee to drain to the Everglades the way it use to be and to stop the discharges into our St Lucie river and Indian River . I also have my meditation class tomorrow evening so between those two things it is a full day. I had hoped to start at the gym but will have to start on Tuesday set the alarm and get myself there. and start making it a habit that will be the only way to stop this body blow up.
and remember to go slow and easy. Elmer and Linda have moved to North Florida already, I miss them horribly. Lots of changes.
Big hugs.
Much love.
pj

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12/7/14 10:16 A

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Hi PJ!

Sorry that I went MIA. The girls have been commandeering my computer to play their games and such so I am not getting on the computer much these days. I can check Facebook on the computer and my e-mails.

Things have been busy and this week will be even busier. I am finally feeling better. Two rounds of antibiotics and I finally found something to control my allergies and sinus pressure. I am taking Alka Seltzer Plus Allergy and Sinus. I am taking it mainly at night so I don't wake up with pressure in my head. Hopefully can stop here in a few days. Glad to finally have some of my energy back and to feel like doing something.

I did exercise a couple of mornings this week. Hope I can do more this week. I did good with not gaining anything unitl Thanksgiving week.

Our Christmas tree is up. We have some other decorations up and I need to get some boxed put back up in the attic. The clutter is getting to me.

Gotta run for now to get cleaned up for church.

Will try to check in more often.

Hope you are doing well!

Tricia

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11/24/14 8:14 P

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Ok I guess I will quit checking in since there is no one to check in with.
Tricia, just said she is busy and can't get to the computer.
wonder if I should shut the team down.
pj

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11/20/14 2:56 P

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Hello Tricia!
hope you are well,
warm here today, my student is still ill, I just got back from going to the store with Barb, thinking about getting in the pool. Will see if I make it . :) Have been doing pretty well with food, 5 weeks of getting organic shares so not going to the store so much and eating junk.
now moving is the trick.
pj

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11/17/14 9:24 P

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Hi Tricia
I see you on Facebook, so I know you are live :) I have been very internal the last few days I did swim yesterday and today we had record highs tomorrow a cool front will come through so probably will not have a swim . Quiet day today. Hope to see you soon.
pj

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11/12/14 8:43 A

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HI Tricia,
Love the new picture of you and your husband I saw on facebook, very sweet.
I am finally rested. I went on my first hike since surgery yesterday with my friend Keri West yesterday afternoon, first she took me to her house over in PSL and on a tour, I love all of her plants and her animals , a sweet old dog ( greyhound and a funny cat it belongs to the dog since Keri is allergic ) Keri is an artist so there are paintings and photo's all over the house that she made and pretty sparse of clutter except for wonderful baskets of shells and rocks that I love. We had a wonderful hike , she took me to a place where she showed me full of history and beautiful insects and wildflowers and trees , a beautiful afternoon.
It is a sunny morning , hope to get out for a walk and perhaps a swim today and will get my organic vegetable and fruit share today.
Hope you are well,
Big hugs.
pj

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11/6/14 6:52 P

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Hi Tricia,
Hope you are well, I have been resting now for the last 2 days, tutored todaybut other than that had quiet day, it was beautiful this afternoon here, Hopefully will get to the gym next week!
Big hugs.
pj

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11/2/14 8:38 P

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hi Tricia,
hope you feel much better soon.
I have a bit of a runnynose / bloody nose from temp change , but I am good , busy for a few more days.
Then can rest!
Big hugs.
pj

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11/2/14 8:21 A

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Hi PJ!

Sorry that I have not been checking in. I have not had much time on the computer. Most of the time the girls have it for one reason or the other...not to mention I really haven't had that much down time. I was feeling better, but one of my dd's brought home a virus with a sore throat and cold symptoms. Throat was scratchy and sore Thursday. Throat feels better, but still coughing some, sneezing, and feel like my nose is Niagara falls at times. Going through Kleenex's like no one's business. Not fun! Feel better than I did Friday and Saturday. So hopefully on the mend.

Sounds like you have been out and about and quite busy. Hope you are doing well.

ttyl - Tricia

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10/31/14 1:28 P

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Hi Tricia , Happy Halloween!
Hope you are well. Crazy week here, busy with the election!
Will be happy on Wednesday when I can rest and happier if all of my selections win.
Big hugs.
pj

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10/26/14 7:42 P

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Hi Tricia,
Hope you are better and that you had a good weekend.
I am tired, have been busy, today I was up at 3am and was at Indian Riverside Park at 4:30am to volunteer at the Halloween 1/2 marathon , I did day of race registration, set up the food, gave out medals at the end of the race and then helped clean up after the race. I was home by 11 took a nap and had a lazy afternoon watching movies, I am exhausted , had a lot of dystonia symptoms and my feet are burning, I am to do more stuff for the electiom tomorrow and meditation class tomorrow night , lots of stuff for the election this week.
Big hugs.
pj

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10/18/14 3:07 P

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Hi Tricia,
glad you are feeling better. Hope your eye is better. I volunteered today at the environmental studies center fun day from 9-2, they opened a turtle tank, I saw a loggerhead turtle up close for the first time. Was fun educating people about our lagoon and rivers and one teacher from the county north of here asked me to come to her class room to educate her students about our rivers that was cool. I am going to the 1/2 marathon kick off party tonight 6-9 at Oceanside physical therapy , the 1/2 marathon is a week from tomorrow , I am volunteering. I will walk there it is about 1/2 mile away. Went to a concert last night downtown with Barb my friend Michelles son Garretts band had a CD release party , and 2 other bands played , it was a lot of fun. Beautiful night not hot .
Hoped you have a fun evening and you are feeling better.
pj

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10/18/14 8:11 A

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Finally feeling better. Glad that I took yesterday to rest. I did manage to do laundry. Not much effort there and can fold clothes sitting on the couch! LOL...

I did get a nap in but that was cut short when the dr office called me back. My one eye was feeling funny like it was getting an infection. Put warm compresses on it last evening. They wanted me to come in to the after hours clinic last night, but had to drop the girls off for their Middle School Retreat...so decided I would wait and see how it was this morning. Eye is still a little itchy, but not like yesterday. Think it is going to be fine. Will keep watching it and if it gets worse I will go in and have it checked.

The plan is to go watch our boy and the band today at their marching competition. The girls are gone. The boys are both fairly independent so we may be spending the night at a hotel this evening and then spending the day together tomorrow. Not for sure. Will discuss plans when dh gets home from work in a bit. We were waiting to see how I was feeling before we finalized any plans.

Hope you are having a good weekend.

ttyl - Tricia

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10/16/14 9:27 P

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HI Tricia hope you feel better soon!
I am good. Got my shares of organics yesterday. Making fresh rolls tonight and kolarabi slaw in the morning. Tutored today.
Big hugs.
pj

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10/16/14 8:29 A

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Hey PJ!

Sorry I have not been checking in. Have not been feeling well. Fighting a sinus infection. Going to call the dr again today and see if she will call in a stronger antibiotic because this one doesn't seem to be working. Have not really exercised in two weeks but am somehow down another pound. Probably because I do not have much of an appetite.

Will try to check in later today...need to finish getting ready for work and call the dr.

ttyl - Tricia

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10/9/14 4:05 P

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Hi Tricia,
3 days now I have gotten up and walked, today I woke up at 715 and put on my clothes and was out the door by 7:30 and walked over the first bridge and then walked to Indian River Park well almost, just across the street to Palmer and Indian River Drive and turned around and then walked back through the neighborhoods made the walk longer and walked about 8 miles in 2 hours and 45 minutes. Took pictures and posted them on Facebook. Came home and swam an hour of breast stroke and back stroke. had my green smoothie. Saw my doctor yesterday he was pleased with my health since having surgery told me not to hurt myself and it isn't a race, drew some blood to check my thyroid, d level and my cbc. I go back in January. My student canceled today.
Hope you have a good day.
pj

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10/8/14 8:27 A

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Hi Tricia , how is it going? I am having a good week thus far. Started walking with Barb yesterday we did 3 miles , she is having a lot of pain in her feet now with the RA, I woke up at 6am today on my own without the alarm put my shoes on and walked the two bridges did 5 miles going to go get in the pool my feet are burning , dont know if I got blisters or not. We got in the pool yesterday after our walk , I did water aerobics , I will see if my shoulder will let me swim. I see my internist today. I tutored yesterday and then went to the Democratic Fall Classic so it was a full day . Hope you are having a good week! Big hugs.
pj

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10/5/14 11:13 P

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Hi Tricia!
My shoulder is great tonight after I logged on I went for a swim and had the best swim I have had since all of this business with my shoulders began swam an hour back and breast stroke and got to going fast with the breast stroke and this time was getting my head and upper body under water and for the first time and got breathless and you know what , for the first time in what 22 months? NO PAIN IN MY SHOULDERS NONE with movement none , now there is a bit but none at all it was amazing. it was so good to get breathless in the pool while swimming.
I had been great with all the activity no pain. I have to get to exercising my face is the roundest it has been in forever! Glad you had a good weekend .
Good night.
pj

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10/5/14 8:29 P

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Actually PJ, both posts are there...not sure what happened. I know at times I can't see the posts that I know are there.

We have had a pretty good weekend. It has been pretty quiet. Didn't do too much today. It was nice to relax for a bit. Did take dd to the store again and got her new pants for band and a couple other things.

Should be a fairly busy week. DH has jury duty on Thursday so he will only be working Friday and Saturday. Haven't decided whether that is a good or bad thing...we kind of get set in our routine and schedule. It will be nice to have a little more time with him. His birthday is tomorrow...so is my Daddy's.

Hope you have had a good day today. I know you are glad to be active again. How is your shoulder doing with all of this activity? Still feeling good? Hope it continues to improve.

Will check in with you when I can.

ttyl - Tricia

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10/5/14 11:15 A

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WTG Tricia! Gig hugs! I had a big long post and it disappeared!!!
I have been super busy all week. Yesterday was gone all day at a parade and Bahamian Festival in the area as a River Warrior and campaigning for my friend Mary Higgins , then Friday was at Sandsprit Park as a River Warrior with Mary Higgins , the River Keeper , the Democrats welcoming Charlie Crist when he came and toured our Lagoon and talked for a bit then that evening I went with Linda and Elmer to the YMCA for the Family Dinner night but it Stormed big time so we were sent inside and it was so crowded that we decided to go eat at Carson's near my condo and had a nice dinner, it was pouring still but we were covered ( though we were outside ) . Last night was the first TV I had watched all week.
Have a great day!
pj

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10/5/14 10:50 A

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Big hugs Tricia!
Wtg on getting so much done.
Busy Busy Busy the past few days. I was gone all day yesterday was at the Bahamian Festival yesterday in Port Salerno and the little parade there all day as a River Warrior and campaigning with my friend Mary Higgins was a lot of fun. I am tired, was busy all week. Friday was at Sandsprit park with the River Warriors and Mary Higgins and our River Keeper and the Democrats to Welcome Charlie Christ to our River so he could tour our Lagoon and see the damage to our area , he did and spoke to us for a short period of time then I was to go to the YMCA to dinner to Linda and Elmer but when we got there a huge storm came up and we got rained out and we had to go inside and it was so crowded and crazy we decided to go eat at Carson's a little ' Sports Tavern ' by my condo and we had a nice dinner my favorite salad , apple , pecan and grilled chicken over mixed greens. They loved what they chose , was a long day! I hadn't watched any TV all week until last night. I have been up since 5am our temperature is a bit and my legs were twisting. I was running a bit in the parade yesterday, I would bend down to hand kids bracelettes , candy and sunglassses and then look up and my group would be 1/2 a block ahead of me and I would go running to catch up with them. I know someone I don't know has pictures of a crazy woman running in birkenstocks . :)
Hope you have a great day!

pu

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10/4/14 2:56 P

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Hi PJ!

Getting more accomplished around the house today. Grocery shopping done. Family room is straightened more and some of the dust removed...Still more to do, but taking little sections at a time. The girls helped me get some of the fall decorations out. Always fun to have new "old" things around that bring back memories and good feelings.

Need to take dd jean shopping and run a couple more errands.

I did get out and walked this morning. Only did a mile, but low on motivation and inspiration today. Today is the memorial service for my family friend that passed a couple weeks back. Sad that I am so far away and can't be there, but that is probably one of the reasons I am feeling a bit off today.

Hope you are having a good day.

ttyl - Tricia

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10/1/14 9:28 P

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Hi Tricia,
sounds like you had a good day , busy.
Me too, slept well 9 hours, then up and volunteered at the Democrat office for 4 hours helping with my friend Mary's campaign , then came home for a couple of hours then up to Fort Pierce was up there by 5pm with Barb at the Florida Dept of Environmental Protection with a bunch of other River Warriors for a Press Release from the Sierra Club to Demand that the FDEP purchase the land we need for the Flow Way South from Lake Okeechobee to the Everglades so the discharges will stop and the Everglades can be restored , this was promised in 2008 and only 2 pieces have been purchased back in 2008 and none since and Big Sugar is going to develop the land into houses and then we will never have the flow way south and our rivers will be dead and so will the Everglades . Horrible we have till next week for the state to take up the option , and then one year longer for the state to purchase it.
A bunch of us then went to the Original Tiki and had a bite to eat and talked it was fun I got home and thought I had a conference call with the marathon group but that isn't til next week. lol now I am going to go rest.
hope you have a good night. I am volunteering at the Dems tomorrow again and supposed to tutor .
pj

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10/1/14 6:37 P

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Hi PJ!

I know it will start moving again, but I was just starting to see progress on the scale. Trying to stay focused and to keep pressing on and make healthy choices.

Went to the Botanical Gardens this morning with my sweet husband and then we went out to lunch. We were home shortly after noon so he could head off to bed since he is working tonight. I have done dishes, laundry, took out the trash and cooked dinner...Also got a chance to sit down and catch up on some of the TV shows I had missed this week for one reason or another.

Will be a quiet evening at home with my one dd. My son took my van for the evening...looks like a pretty good excuse to stay put! lol!

Hope you have had a good day. Glad that you heard from Kari. It is kind of weird how she drops out and then comes back in like nothing happened. I have had a couple of friends like that.

Have a good evening.

Tricia

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9/30/14 11:23 P

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HI Tricia!
Big hugs, I had a good day, volunteered at the Local Democrat office , for my friend Mary Higgins who is running for State Represenative , was addressing envelopes will do that again tomorrow for a few hours and perhaps stuffing them with a letter that was picked up this afternoon. I swam an hour yesterday and today as well. It poured rain yesterday , , and then I had my meditation class last night with my friend Cyndi leading it and my friends Barb and Irene attending it with me , it was our 3rd week, it always makes me happy.
Kari Pebely texted me out of the blue today , hadn't heard from her since May before my surgery , says she is moving to Stuart this weekend and will commute to Jupiter for work and for Mikel's school , will be living in Mark's condo til Dec 15th temporarily , that he is out of town til then , putting her stuff in storage , can't afford her apartment , said she has been in a dark place and hasn't had time or room for a friend until now . ( part of me is resentful and part of me isn't ) funny how some people act like life is on hold while they are gone from your life, she was typing all of these plans down to do with me when she moves here as if I don't have a life . It was interesting to watch my reaction. We will see . hmm
I have to get to bed, I am getting picked up about 9:45 in the morning for the volunteer stuff.
Your scale will move down you are staying consistant!
pj

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9/29/14 4:30 P

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Hi PJ!

Sorry I have not checked in a few days. Life is busy! I actually have Wednesday off this week and I am so excited! Ready for a peaceful and quiet day. My weekends are so packed full between all the things that did not get done during the week and the kids activities. It wears me out. I did have a very productive weekend though. Got the kitchen cleaned and some things reorganized and also reorganized the kids bathroom...now if they will just stay that way.

A bit frustrated with the scale...it is not moving down right now and I haven't really changed anything. Trying not to let that deter me but keep pushing on. Decided to amp it up a bit this week. I did strength training this morning with my DVD and then did a 20 min Firm Cardio DVD. Not sure if I will do that all week, but trying to get the scale moving again.

We got a new student today. She is a very sweet young lady. She did great today and I think will be a wonderful addition to our class.

Hope you have had a good day!

Tricia

Oh, feel for your friend Barb. Alzeheimer's is not an easy thing to deal with. My grandfather had that and parkinsons . Tough! Glad she has a friend like you to support her.



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9/25/14 7:10 P

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Hi Tricia,
I didn't get in the pool today it has been stormy since I got out from tutoring , I did ride my bike the mile and that is it, I got a big tub of fruit this afternoon, the 20 dollar meal deal , quinua pasta ( package of it ) a jar of organic pasta sauce, pound of white turkey meat, a loaf of sour dough bread ( got it sliced ) will put in the freezer so I can get a piece at a time, romaine lettuce mix , ( the tub of fruit is 2 lbs of cut up fruit, blueberries, strawberries, pineapple, cantalope, honeydew ) . I think it was a good deal. This morning I ran errands with Barb , then went with her to visit her mom in PSL in the nursing home her mother has alzheimers and it is very nerve wracking for Barb to visit , her mom drives her crazy between her mother's history of lying and now the dementia Barb loses her temper , at first Barb was believing the stories her mother was telling and then she yelled at the nurses now she knows she can't trust a thing her mother tells her. Like today her mother said she had no clothes ,she was in the TV room and Barb had picked up a hamburger at a good shop and a rootbeer and chips on the way for her , we got there before lunch and her mom was happy about it, so when we went to leave we checked her room , her closet was full of clean clothes , her mother had simply refused to dress. Barb said , see why I get angry. I didn't say a word, I would just chalk it up to the dementia and her natural personality of lying being more out there but I don't have a history of 59 years of this behavior that Barb does so I just keep my mouth shut. Barb asked me to go so her mom wouldn't act out so much in front of a new person and when she started in with complaining we left.
Hope you have a good night rest!
Big hugs.
pj

FULLY and in the MOMENT!


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9/25/14 6:56 P

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Hi PJ!

Sounds like you had a good day and are in a good mood. Great job looking for ways to eat healthier. And good job with getting in the pool!

Today is my rest day. Yesterday I exercised in the morning and then walked 2.5 miles in the afternoon. The scale seems to be stuck this week which is frustrating after seeing steady progress the last two weeks. Hope it starts moving again. Still have another 15 that I would like to loose by Christmas and then we will go from there.

Tomorrow night we will be going to the football game. It is 8th grade band night so my dh has taken off and we are all going. Will get to see our son as drum major and hear dd play at a game for the first time. Should be a fun evening.

Hope you have a good evening and get some good rest.

ttyl - Tricia

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