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LJMORKEN Posts: 21
2/2/14 6:57 A

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Hello! I am so glad to hear from another person on this team. I am sorry that I haven't posted in a long time but I have not gotten a response for about a year. I am the mother of a 6 year old son who was diagnosed when he was 2. I am not looking forward to puberty because of all the changes going on.
I too find spark people to be a very effective sight and have a long way to go. Thank you so much for posting and I hope to hear from you again soon!

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MOMTOKNJ SparkPoints: (1,656)
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1/14/14 1:05 P

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This thread/team is kinda dead. BUT

I'm a mom to a 12 year old girl with diabetes. She was diagnosed a month before she turned 6. We are in the throws of puberty right now and it is not much fun at all. I feel pretty confident in diabetes care except during puberty! It is really hard when you child doesn't always test or bolus.

I've found that losing weight and counting calories for me and counting carbs for her can be confusing and frustrating at time.

You never know how strong you are until being strong is the only choice.

It is what it is, but will become what you make of it.


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LJMORKEN Posts: 21
10/19/13 6:55 P

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Hello everyone! Not sure if anyone is still a part of this team or not but it is the one spark team that I feel the most connected to because of the uniqueness of our situation. If anyone is still interested in being a part of this team and sharing any ideas, thoughts, or experiences I would be so happy to relate! If anyone new joins this team I would also love to hear your story. Please feel free to share. Thanks!

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LJMORKEN Posts: 21
7/9/12 9:33 P

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Hello - I am the mother of a wonderful little boy who was diagnosed as a type 1 diabetic at the age of two and is turning five soon. Like you I would like any advice that anyone can give about starting school and what to expect. I am also a firm believer that my son can do anything that he wants to and diabetes will not hold him back. Thanks for your post!

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SGOODRICHTX3221's Photo SGOODRICHTX3221 SparkPoints: (4,697)
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5/24/12 11:01 P

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Hello everyone. I am a Mommy of two with my oldest daughter a type 1 diabetic that was diagnosed at 17 months. It's been scary, stressful but never something I felt would hold her back from anything she wanted to achieve. She's five this year and starting school in the fall so any advice you have or encouragement about sending her off to the care of others all day that may not be familiar with her needs I would greatly appreciate.


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LINDAREENO's Photo LINDAREENO SparkPoints: (19,757)
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4/30/12 10:21 A

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Is anyone participating in a JDRF walk this May? We cant make it but I'd love to sponsor someone.

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LJMORKEN Posts: 21
4/30/12 6:55 A

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Hello all - am glad to be here! How are all of you?

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LJMORKEN Posts: 21
12/27/11 10:23 A

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Hello Everyone! I am sorry that I have not been on the Spark People webpage lately and have not posted anything with this group in a while. I really enjoy reading your posts and they give me such courage. I have a son who is four and was diagnosed with type 1 when he was two. He is really doing well right now but like many of you I am just waiting for the bad to happen because I know that it will. I try not to be pessimistic about it but cannot help but see the reality. That is why I take it one day at a time and am thankful for each healthy day. I hope to hear more from everyone - not only your children's successes but also your own!

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MSKIZ69's Photo MSKIZ69 SparkPoints: (203,745)
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9/30/11 8:44 P

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Hi! Just joined but mommy to 2 kids, including my son Michael a type 1 diagnosed at the age of 7 in 2007. Glad to be here!!!

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LINDAREENO's Photo LINDAREENO SparkPoints: (19,757)
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7/11/11 10:19 P

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It's been a few months since anyone has posted, but I wanted to introduce myself. My name is Linda. I have two kids, Brea (9 1/2) and Gabe (7) and both are type 1. Brea was diagnosed when she was only 17 months. Gabe was 2 1/2. It was scary when it happened since I was only 20 myself and we had to fly her to the Children's hospital, but now, testing, counting carbs, measuring food and shots are part of life. I think being laid back about it has helped. Yes, it's stressful, yes I worry daily about keeping their blood sugar under control, but letting that stress get to me isn't going to help my kids stay healthy. I take it one day at a time. Some days are good days, some days are not so good days and some are just scary. Gabe has had some major growth spurts lately that have triggered seizures. Frightening doens't discribe the feeling of waking up to the sound of a seizing child, but those were bad days and bad days don't last forever.

They're both on swim team, they both compete in the local kid's triathalon every year and all in all, I feel they are as healthy as they could be. The shots and the testing and the measuring is just how life is. It took me almost two years to accept it when Brea was first diagnosed, but it made Gabe's diagnosis that much easier. The doctor in the ER was actually surprised at how calm we were. I just asked for the insulin perscription so we could go home and then we drove him to Milwaukee the next day. Having two actually made things a bit easier.

I was told as a teenager that I had PCOS and that the likely hood of me having kids was slim. I thank God every day for my children and the miracle of modern medicine that allows me to enjoy them.

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LJMORKEN Posts: 21
1/8/11 10:50 A

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That sounds like a very difficult disability to deal with for everyone involved. Not being able to communicate with words poses many issues that I do not know how you handle. Does she currently have any speaking devices or know any sign language? Is this something that she was born with or is it something that has developed over time?

I understand what you mean about the changing definition of the word normal. In fact I hate that word because everyone's life provides plenty of opportunities to change and redefine. I am very glad to hear from you and hope to continue to hear about your journey to better health.

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PULMNURSE's Photo PULMNURSE Posts: 15
1/8/11 1:02 A

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Thanks for the reply! Verbal apraxia or developmental apraxia of speech is a neurological disorder that affects the oral muscles. Basically, Chloe knows what she wants to say, but she cannot move her mouth, lips, tongue correctly to pronounce words. It's kinda like when a person has a stroke and has to relearn to talk. She is intelligent and understands language. Some children with apraxia are never able to talk. It can take years of intensive speech therapy to teach a child with apraxia to talk. This of course, is frustrating for everyone involved. She is not able to tell us if something hurts or if she wants something and we are just pretty much lost with her. But as parents of diabetic children, we all know that we will do anything for our children to have as normal a life as possible. Of course, I have had to redefine "normal" at this stage in my life. emoticon For us this may mean sign language or computerized speech devices are in our future.

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LJMORKEN Posts: 21
1/6/11 11:01 P

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Hello Amy - You indeed sound like a very busy mom! How are your girls doing? I have one son and I feel like a busy mom I can't imagine having three. My son was diagnosed with type 1 diabetes at the age of two and as you well know it adds all sorts of different chanllenges. I do not know anything about verbal apraxia but if you feel like sharing please do so. I a very glad that you are on our team and I look forward to hearing from you while you are on your journey to better health.
Take care of yourself - Leah

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PULMNURSE's Photo PULMNURSE Posts: 15
1/6/11 10:15 A

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Hi there,
My name is Amy, and I'm 32. I'm a full-time RN on a busy hospital floor, a wife of 10 years, and mother to three busy little girls. Maddie (almost 8 yrs) , Kaylin (5 yrs), and Chloe (3 yrs). Two of my 3 are special needs kiddos. Maddie was diagnosed with diabetes at 5 yrs old. Chloe has a neuro disorder called verbal apraxia, which affects speech. Needless to say, I need to get my health in check in order to take care of my girls.

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LJMORKEN Posts: 21
10/26/10 9:26 P

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Wow! I cannot imagine having three children with type 1. I have a three year old with type 1 and that is challenging most days. It was his first day of preschool today and two of the other children had birthdays and brought treats. He could not have any and it really made me sad. Probably more sad then he actually was. How do you handle situations like that? I hope you the best and great job on your weight loss so far. Great job! emoticon

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LESLIEDECAIRE's Photo LESLIEDECAIRE Posts: 648
10/1/10 1:50 P

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I see noone has been here in a little while, but I'm hoping for people to come back! In the last 2 years all 3 of my children have been diagnosed as having Type 1...they are 15(also with autism), 7 and 2 years old. Needless to say, things are pretty crappy sometimes! Exercise has become my escape and I've ended up getting serious about diet and exercise, losing 60 lbs. so far. I would feel horrible if I got type 2 because of my weight and here are my kids, diabetic through just blind 'luck' and genetics or whatever the cause may be...All 3 kids test 3 or 4 times a day and get insulin 4 times a day. I wish they're numbers were always perfect, but especially with the 2year old, it's sooo hard to stay no when he's BEGGING and PLEADING for food! I wish I were stronger...

"I still find each day too short for all the thoughts I want to think, all the walks I want to take, all the books I want to read, and all the friends I want to see"

John Burroughs


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TLKGT76 Posts: 8
6/9/09 4:18 P

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Hello! My name is Tracie, I'm a third generation diabetic and my seven year old daughter is going through testing because she's showing signs of type 2. My husband's parents and grandparents were/are also type 2. Here's the crazy part.
We have strived to instill healthy eating habits in her, yet she is showing symptoms of diabetes. She has yet to drink a soda in her lifetime and picks apples or bananas over candy. She also loves vegetables and makes great choices now, even when we are not by her side. She does have the occasional cupcake at other kid's birthday parties, but rarely ever eats the whole thing. Somehow though (I'm guessing through genetic distribution) she is showing signs and they are exactly like type 2. I'm so confused.
I'm having a hard time finding diabetic information for kids. There's plenty out there for adults (although there's no such thing as too much information), but I can't find anything for children. We are already accustomed to sugar-free and low sugar grocery items due to my blood sugar problems, but are these healthy for children?
We have a doctor appointment for her next Monday, but he agreed that diabetic educational materials are difficult to find for children. This is a man who's had a wealth of information for me.
There are a lot of new studies on type 2 onset in children and genetic relationships. What I need now are things like menu plans. How many carbs should she have as opposed to me? I'm so happy to find this information and this group.


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DCARMONEY's Photo DCARMONEY Posts: 57
5/28/09 5:46 P

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My name is Darla and my 11-year-old step-daughter was just diagnosed as Type I Diabetes. Since May 19th, my world has been spinning out of control. I also have a 9-yr-old son w/health issues and a 9-yr old stepdaughter w/ADHD-Hyper. Diabetes does run in my family, but I am unsure about the girls' biological mother's family. I am so glad that I found this team, and I look forword to getting to know everyone.

Darla

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KURLYO's Photo KURLYO Posts: 58
1/18/09 1:04 A

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Hi Kimberly, welcome to the team! Cassandra sounds like a trooper to have to test 7+ times a day. So far we have been very fortunate and test just 4 times a day and of course for lows. Sorry she is having black-outs. We have only had one, and luckily we were in the hospital at the time. I do not know what a CGM device is. Perhaps you can share more especially in 2 weeks when you get results. I am glad you are here, and welcome.


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CASBEANIE's Photo CASBEANIE Posts: 57
1/16/09 10:10 P

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Hello! My name is Kimberly. I have two daughters, Cassandra and Sabrina. 4 years ago Cassandra was diagnosed with type 2 diabetes with type 1 tendencies. She has been controlling hers with diet. She currently checks her blood sugars 7+ times a day and eats accordingly. Recently she has begun having blackout spells again. Some days her blood sugars are low (50's) other days they are high (300's). At her last check she was set up with a CGM device we do a follow up visit in 2 weeks. The doctor will review the results of the CGM and then discuss placing her on medication.

Kimberly NOT Kim


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KURLYO's Photo KURLYO Posts: 58
1/16/09 11:06 A

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Khristie, I am glad you found this team and welcome. Your struggles seem daunting. It is hard for me to imagine your fears. 7 grandchildren with diabetes in your family seems astronomical and would be an enormous stress to carry. By the sounds of it your son is borderline type 2? Do you know if the other children are type 2 or a mix of both type 1 and 2? Again, welcome to the team.
RaShell from Oregon

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*KHRISTIE*'s Photo *KHRISTIE* Posts: 60
1/15/09 3:16 P

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Hello, my name is Khristie. I have two boys, ages 5 and 2. My oldest son, Kaiden, was diagnosed borderline diabetic at the age of 2 1/2. He was really big for his age (46lbs at 2 year check up) and they ran all the tests. He has not had to take any medicine yet for it, and we have been able to maintain with diet. I am also borderline diabetic, although I do have to take medicine daily.

I am hoping that we will be able to continue regualting his diet and not need to put him on any medications. He is much healthier weight now.. 5years and 2 months...and weighs 48lbs..so much better! Although he has GERD, and takes medicine daily to control his vomitting, his lack of eating keeps his levels stable. Right now my main concern for him is the issues that he's having with his stomach. Since feb of last year, he has been waking through the night and vomitting. They said that this was a reaction to his GERD, and then started him on his med. Although the medication has helped, he still throws up 2, sometimes 3 times a week. He has had ct scan, mri's, all the bloodwork possible, and they show everything ok of the brain (they thought he had a tumor)...he's been seeing a g i specialist since sept every 3 weeks..well the week before christmas, I took him in for an upper g i. They found a small spot on his esophogas that is detroyed from all the vomitting, along with a large mass in his stomach. He's to go back next week so they can set a time for them to do exploratory surgery. They are going to have to take a biopsy of the mass to determine if it's cancer. With all the damn troubles we have in our families with cancer, I am just praying for the best...

I guess i have gotten a little off subject..sorry..i guess i am just worried and thought maybe anyone would have some insight on this??

and with the diabetes part..on my husband's side, there are ten grandchildren including my two, and 5 of the 8 others are diabetic also, so this definatly runs in the family....

thanks for listening..or reading i guess

*Khristie*


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KURLYO's Photo KURLYO Posts: 58
1/8/09 11:45 P

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Wow Jenny, you really have so much you can share. It seems so scary to me to have your infant diagnosed. It is already such a challenge with a child who communicates well. I have tested my 9 month baby's blood several times now just in case. I am inspired by adults with type I. It makes me realize that this is disease is livable, and I can trust that when my daughter becomes an adult, I can feel confident she will survive.

Edited by: KURLYO at: 1/8/2009 (23:50)
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SPUNKY35 Posts: 2
1/7/09 4:43 P

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Hi I am new here! Just signed up on Sparkpeople yesterday. So happy that I found this team! I am a type 1 diabetic. I was diagnosed when I was 5 years old and am now 33. I have three children-8, 5, and 3 and my youngest was diagnosed with type 1 at 3 months of age. While I have good blood sugars and exercise I do weigh a lot and want to get in shape and slim down. Can't wait to get involved here!

KURLYO's Photo KURLYO Posts: 58
12/3/08 1:23 A

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My name is RaShell. I joined SP yesterday and live in the Pacific Northwest. I have been counting calories and carbs for decades. Little did I know, this was a prelude to my 9 year old daughter’s type 1 diagnosis last year. At the time of her diagnosis, counting carbs was already second nature. A week after her diagnosis I discovered I was pregnant with a high-risk pregnancy. All my weight-loss efforts came to an abrupt halt. To say the least my stress and fatigue has all led to a 40 lb weight gain. Like Barbie’s post before me, it is time to take those baby steps back to a healthier me. I believe my daughter’s honeymoon phase is over, she is pre-puberty, and her BG shows. I am anxious to try new yummy recipes with low impact carbs for my family. I look forward to reading and posting with this team. Until then, Hello!

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BARBIEM6's Photo BARBIEM6 Posts: 33
11/4/08 9:04 A

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Hi my name is Barbara I have a 6 year old Diagnosed with type 1. 12 months ago and I'm rejoining sparks people to help me get back on track since she was diagnosed I have gained a good 75 pounds. Has not been easy dealing with her diabetes. I now realize I need to get back on track and loose the weight I gained and then some for her since she wants to play with me. I need to get back at least in better shape since being sick myself with other issues, I need to try to be here for a long time for her. emoticon

Edited by: BARBIEM6 at: 11/4/2008 (14:47)
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JERRIGRIFFIN's Photo JERRIGRIFFIN Posts: 196
10/17/08 8:10 P

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I can really appreciate that fact that you want to set some sort of example. When it became painful to bend over and tie my shoes - that was defining moment for me - I decided that my kids were going to NEED me to be around for a while. That was 65 lbs ago, and I feel sooo much better.

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CSPENARD Posts: 1
10/16/08 8:44 P

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Thank you, I will welcome the support; being a diabetic mom is hard work and sometimes we don't take the time to care for ourselves. I hoping that joining spark people will help me remember that taking care of me also benefits my daughter and shows her that I value my health too.

JERRIGRIFFIN's Photo JERRIGRIFFIN Posts: 196
10/16/08 4:50 P

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WELCOME CHRISTI - and good luck on your spark people journey. My son now 10 (diagnosed at 23months) is also on a pump. We are struggling with getting him to remember to test before he eats, and teaching him how to count. Let me know if you need any support with being a diabetic mom, or with your new health goals. - Jerri

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CSPENARD Posts: 1
10/16/08 12:57 P

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Hello,my name is Christi also and I just just joined SparkPeople yesterday, this is my first team to look for and first post. I have a 16 yr old daughter that was diagnosed at 10 and is now seeking her independence but not testing or counting like she should so it is very stressful. She has been on a pump for 4 years and would never go back to the daily shots but hates having something attached to her all the time. It will be nice to get to know other people who deal with T1 diabetes on a daily basis and the hard work it involves.

JERRIGRIFFIN's Photo JERRIGRIFFIN Posts: 196
10/9/08 4:46 P

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Welcome!! This is not a very active team. But I check it often for activity. I am sorry that you have reason to join us, but glad that you did. My son Jamison, now 10, was diagnosed at 23 months, so it sound like ours were close in age at diagnosis. Please let me know if there is anything I can do for you. I have found that the more active I am on this site, the better I do. I have been slacking for a few weeks, but started new today!

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PKNPAM21's Photo PKNPAM21 Posts: 110
10/7/08 4:42 P

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Hello! I went in search of a group for the parents of diabetic kids and I found it! I told myself that if I didn't find one, I would make one! Glad to have found you guys!

I am Pamela, SAHM to Jacob (3) and Chloe (7). My son Jacob was diagnosed in Jan 2008 when he was still 2 yrs old. He is taking daily shots for his meals & his long-acting insulin at night. My daughter is in 1st grade. My husband is in the US Navy and is currently on Recruiting Duty here in our homestate.

I look forward to getting to know all of you! Best of luck to you all!

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JERRIGRIFFIN's Photo JERRIGRIFFIN Posts: 196
8/29/08 10:46 A

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OOOPS, I did not see this topic before I started a new one. Sorry. My son age 10, was diagnosed just before he was turned 2. I also have a husband that is T1D, and I believe I read of another mother that her husband is diabtetic. Interesting. Hy husbands brother is also T1D - strong genetic link here. We live in Texas and I am so glad I found this team.

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MOMMABUG2's Photo MOMMABUG2 SparkPoints: (24,032)
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8/23/08 8:19 A

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Welcome newcomers!

We've been going to a weekend family camp for the last few years. It deals with the whole family and my girls love it. Trinity was not ready to sleep away by herself at first, but now she is ready. I can't say enough about the camps. It's a great experience. If your child has the chance to go to one, I highly recommend it.

(:|:) })|({
Fools think their own way is right. The wise listen to others. Proverbs


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GENEVADIVA Posts: 164
8/15/08 11:46 P

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Hello Everyone!

My name is Gwen and I have a wonderful 10 year old son who was diagnosed with Type 1 Diabetes on 4/20/06. Very Very scary at the time as I'm sure you can agree, but now we're doing ok and getting better every day. Today, he finished Clara Barton's Day Camp at Mt. Sinai Hospital in NYC and he loved it. He never wanted to go to camp, but finally agreed to go and he hated that it was only a 1 week day camp and is already talking about going to sleepaway camp. This past week has been so good for him finally being around other kids just like him.

Edited by: GENEVADIVA at: 8/15/2008 (23:44)
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ADVOCATEMOMMY's Photo ADVOCATEMOMMY Posts: 321
8/13/08 3:25 A

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My name is Andrea and I have a 9 year old daughter who has Type 1 Diabetes since she was 3. We are big advocates to finding a cure. We have lobbied and worked with our governor as well as publicly speaking around our state.

Live day by day......


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WENDESS7's Photo WENDESS7 Posts: 148
8/10/08 6:41 A

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Hello everyone.. My name is Wendess and I am the mother of a wonderful 10 year old boy who was diagnosed at the age of 5. I was VERY excited when I found this team.. It is nice to be able to find some people that understand more of what goes on in your life. Anyway, wanted to say hello.. emoticon

If you think you can, you can. If you think you can't... YOU'RE RIGHT!!

Wendess Carter
Professional Beauty Consultant
www.marykay.com/wendess7
wendesscarter@gmail.com


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HSWANTS2BFIT's Photo HSWANTS2BFIT Posts: 28
7/21/08 5:59 P

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Hi! I'm Heather and my 8 year old daugher Lauren was diagnosed in Oct 07. I also have 2 boys 13 & 6. My daughter still struggles with her shots. I am happy to have found this team and look forward to getting to know you!

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CALIELK's Photo CALIELK Posts: 30
7/15/08 11:25 P

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Hi! My name is Mary and I am the mom of a lovely daughter who has JD. She is 14 and was diagnosed at the age of 10. I am in a small town and it is nice to finally have contact with other parents. No one understands it unless they've lived it.

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CINNIEMAY's Photo CINNIEMAY Posts: 2,753
7/3/08 2:59 P

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Hello, I have a type one diabetic daughter who will be 16 one the July 12th. She was diagnosed on April 5,2008. What a way to spend spring break. But it was a really close call. We get our first A1C in August since the being diagnosed.

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M_DENNIS Posts: 6
6/27/08 8:48 P

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Hi everyone I am new here I have 3 girls. My oldest daughter is 12 has diabetes 1 since she was 10. I find it to be a struggle. It is so hard to tell her she can't have the things that her sisters can. Her A1c is very high so we are working on that. I think her major problem is she hates to exercise as I guess she inherited that from me unfortunately. But hopefully this site can help us both. emoticon

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GLAWHORNE Posts: 37
6/10/08 11:39 A

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Hi guys, I'm the better half, uh, I mean other half (yeah, that's it) to JLawhorne. As she said, we have a 7 year old with Type 1 diagnosed 4 years ago. How awesome to find a group of people who understand.

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JLAWHORNE's Photo JLAWHORNE Posts: 11
6/10/08 11:09 A

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Hello everyone. I have a 7 year old daughter who is a Type 1. She was diagnosed when she was 3. She has been on the Medtronic Paradigm 522 insulin pump with the CGMS since September 28, 2006. We are actually going this Friday to do a trial run with the Omni Pod. I'm glad to find a group for parents with D kids. It's nice to have someone that can relate to what my husband and I deal with on a daily basis.

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KIMBALL24's Photo KIMBALL24 Posts: 97
5/22/08 7:04 P

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New to SP and not sure how active this team is but I"m the parent of 2 Type 1 kids. So, Hi everybody.

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MOMMABUG2's Photo MOMMABUG2 SparkPoints: (24,032)
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5/18/08 8:22 P

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Arlene, I thought this might interest you.

Blogger Round Table Discussion: Insulin Pumps

www.jdrf.org/index.cfm?fuseaction=ho
me
.viewPage&page_id=39B4F250-110A-9BB5R>-F809C81E76DDFFDB


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5/16/08 11:51 P

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Arlene,

Consider also that it's not as if there's no going back. You can easily go back to injection therapy if the pump doesn't work for you. There are costs to consider, but insurance may cover quite a bit or even 100%.

Good Luck!

Cynthia

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ARLENE1967 Posts: 10
5/16/08 11:47 P

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Cynthia and Velma -
Thank you both so much for shedding some light on the pump. I have a friend who's child was dx'd just about 1 year before my son and they now have him on a pump and just love it. I know my husband is against it because he knows adults that have all kinds of problems with the pump. My friend has said that their quality of life has changed for the better. The more information I have on the subject the easier it may be for me to get my husband on the same page as me.

Thanks again.
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VELMA76 Posts: 23
5/16/08 9:58 A

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Hello Arlene.

I have 2 kids on the pump and we love it. My youngest will be 3 in July and has been pumping for a year now. While it hasn't brought down his A1C much, it has given us a great deal of flexibility in life. We don't have to worry about meal times anymore--if he doesn't eat I don't have to try and get something in him to counteract the insulin he was given pre-meal. Make sense?

Pumping has made school much easier for my 8yr old too. Many schools no longer have a nurse on hand to assist with injections and I find educators are much less intimidated by the pump then with needles and insulin vials. Plus most pump companies will send their reps out to the schools to train teachers how to use them.

We've never tried to hide the fact that our children have diabetes so we've never tried to hid the pump. It's part of who they are and I would never want them to feel that they should be ashamed of having a medical condition. There are plenty of places where you can get cute bags to hold the pump in though.

Hope that helps some.

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5/13/08 5:38 A

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Your welcome Arlene.

Not all endo's care for the pump. I've been told our does not, though he did not give me any trouble when I asked for the script.

As far as people knowing . . . Most people think it's an MP3 player or a cell phone. The general public is not aware enough to know what an insulin pump is. The pump does attract less attention when eating out than drawing up a syringe. I would get looks sometimes when I would do this. People don't notice though if you push buttons on a "toy". We don't hide Trinity's diabetes. I wouldn't want her to be ashamed or embarrassed.

As far as the A1C goes, don't be surprised if it doesn't change at all. Sometimes they don't. When we went on the pump, it was still early in her diagnosis and her A1C was still moving up. It peaked @ 8.5% and we were on the pump. This range is normal for children. I've been aggressive with her treatment over the last year and her numbers have dropped. Her last A1C was 7.2%.

You must do frequent BG checks when on pump therapy. I think 4x/day is recommended, but we do 6-8x/day. If insulin delivery is interrupted, the child can easily and quickly go into DKA. Sometimes the infusion site is kinked inside where you can't see it or blood clots in the catheter. On the other hand, there will be no more forgetting the long acting injection.

School. It did help a lot to have her on the pump for school. Hopefully your area will have a nurse on campus. You will still need Dr's orders though. We've been pumping for 2 1/2 years.

Your sister in the fight against diabetes,

Cynthia

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ARLENE1967 Posts: 10
5/12/08 11:26 P

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Cynthia,
Thank you so much for the information, it was very helpful. My son has an appt at the end of the month with the Endocrinologist. I am going to ask them what they think of him going on the pump. My hubby just sees it as if our son has the pump then people will know he has diabetes. I keep telling him that the pump will be hidden under his clothing. Plus he does not see the benefit of him having the pump. I really think that the pump would lower his A1C quite a bit. He is at 8.5 right now. I am thinking that when Henry goes to school we should have him on the pump, it would help with the school situation.

I have talked to other people who have children on the pump and they really love it. I think we really need to talk to the diabetes educator so that my husband can get some of his questions answered.

How long has Trinity been on the pump?

Thanks for your help!
Arlene

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5/12/08 8:43 P

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Hi Arlene,

Welcome.

My youngest was diagnosed @ age 5. She had just turned 5. She asked to go on the pump that summer. Her father and I never argued about it. He lets me make all the decisions.

In the end though, it's Trinity's diabetes. She wanted the pump. That's what matter's. If she's not on board, it won't work. She loves her pump by the way.

What I really like about the pump is that you always have insulin with you. You can withdraw insulin with a syringe from the reservoir (Medtronic) if you need to give an injection. I understand the Omnipod has a built in BG meter (it is NOT automatic). You can program the basal rates. It is easy to manipulate the basal rate temporarily (sick days or exercise), to either cut it back or increase. Once you learn how to use all the features, you'll probably really like it. When she's low, I can cut her basal rate, or even disconnect her pump. This is especially handy at night. If she's say 80 mg/dL, I can give her a temporary basal rate of 75% (for example) over 4 hrs (example). That way I don't have to wake her up to drink juice.

Furthermore, pumps allow you to give a smaller insulin bolus (0.1 unit) than injections. This is part of the reason children sometimes do better after going on pump therapy.

Also, the pump has allowed Trinity to be more independent. 6 months after starting pump therapy, she started giving her own bolus. She needs supervision and help counting carbs. Also, my mom has diabetes and couldn't see well enough to draw the syringe, but she has no problem seeing the pump screen.

Your husband may be scared of the pump. Either the technology or changing the pump site, or perhaps pump failure. Has he given you a reason?

Talk to a diabetes educator and other pump users. Before I started Trinity on the pump I had her hooked up with saline twice before I made the decision. She reacted OK to having the infusion site attached. When she was first diagnosed I literally had to sit on her to check her BG.

I'm sure you understand how important it is for you and your husband to agree on treatment. I divorced my girl's father. After the divorce, I got the continuous glucose monitor for her (with his consent). The first unit was defective, and alarmed all the time and did not track well. My ex decided it was trash and let Trinity know. Now she doesn't want anything to do with it.

Hope this helps. Good luck.

God bless you, and your family.

Cynthia

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ARLENE1967 Posts: 10
5/9/08 11:49 P

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Hi I am Arlene and I have 2 children 6 and almost 4. My 4 year old was diagnosed 2 years ago with diabetes. He is my hero....I am trying to talk my hubby into putting him on a pump but he does not feel he needs it at this age. Does anyone out there have a little one on a pump? Did you have a hard time convincing your spouse/partner to put them on a pump? I am so glad there is a forum like this.

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DAWNSLITE's Photo DAWNSLITE Posts: 153
5/5/08 2:58 P

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welcome all!

glad to see the activity. my name is Dawn and my son Brett turns 14 today. he has been diabetic for 4 years and on the pump for 2. we love it!
i have another son who is 16 and so far no signs but we watch for that family thing. i was type 1 during my pregnacy with Brett, and will at some point have type 2.



"Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly! Laugh uncontrollably......and never regret anything that made you smile "





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5/4/08 9:13 P

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Hi! I'm Kerry, mom of 5 kids, ages 4 thru 19. My 4 year old DD was diagnosed with Type I when she was 2. We have all started eating more healthily (is that a word?) since Sarahann's diagnosis and I would like to steer us all towards the healthiest possible lifestyle.

I am a Microbiologist, I live in Maryland but will be moving to Dayton OH in about 6 weeks.

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MARIPOSALOCA's Photo MARIPOSALOCA Posts: 171
4/16/08 3:02 P

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Welcome! I'm Marci, mom of 5, Air Force wife. My 12 y.o. son was diagnosed 4 years ago and also uses a pump. We would never go without it again! It makes life so much easier. :-)

Marci

JAMIEL1977's Photo JAMIEL1977 Posts: 708
4/16/08 2:19 P

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Hello,
My name is Jamie Lee,
I have a son named Brendan who is now 5 years of age. He was diagnosed with diabetes at the age of 1 1/2 years. He has had an insulin pump now for 3 years and it has made a difference in the care of his stability with his blood sugars. Even though things are constantly changing and Brendan is growing, I never stop the worrying. Brendan has been a very strong boy through it all and it goes with out saying these children with diabetes seem to grow up faster then most. I am looking forward to getting to know you all and meeting some new friends along the way. emoticon

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GYMMOM007's Photo GYMMOM007 Posts: 658
4/7/08 9:24 P

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Velma76 Welcome to the group. I am learning my way around this team myself. I look forward to getting to know you.

VELMA76 Posts: 23
4/7/08 7:31 A

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Hello. My name is Amy and I have 4 kids, 2 of them with diabetes. My older son is 8 and my youngest son is 2. Both of them were diagnosed at age 1. It's hard to believe that my 8 yr old has had diabetes for 7 years already.
I'm looking forward to getting to know other parents of diabetic children. It can be very lonely sometimes.

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MOMMABUG2's Photo MOMMABUG2 SparkPoints: (24,032)
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4/6/08 2:59 P

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Welcome Terri,

More information:
This is from the American Diabetes Association (ADA) website www.diabetes.org/advocacy-and-legalr
es
ources/state-legislation/schooldiscrR>imination.jsp

From the JDRF website www.jdrf.org/files/General_Files/Lif
e_
with_Diabetes/2008/SchoolAdvisoryTooR>lkitFull.pdf


Edited by: MOMMABUG2 at: 4/6/2008 (15:17)
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GYMMOM007's Photo GYMMOM007 Posts: 658
4/6/08 1:36 P

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Hello my name is Terri. My 11 yr old daughter was diagnosed with type 1 8/2/07. She is entering the teen years and we are struggling to have good habits with the monitoring glucose etc. She is on basal bolus. She is wary of a pump. I need some support. I tend to be an emotional eater and I am trying to not do that. I want to do what is best for my daughter without having to be the "heavy" It is hard to talk to family sometimes because they just do not know what it is like to struggle to get your child to check their blood glucose when you say it over and over. I have 3 additional children and a 22 yr old stepdaughter who is pretty much on her own at college.

Thanks for being there. I was scanning the internet for support groups and did not find any. I know they are there just have to find them. I am already on sparkpeople so this could be the perfect match for me. I don't have tons of time for the computer so I need to be efficient as possible with my time.

Thanks for being there and listening

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4/6/08 12:41 P

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Welcome newcomers! I wanted to reply to HGREEN9479. I'm sorry to hear you're having trouble with the school. I'm always surprised to hear a school reluctant to establish a 504 because the way I see it, the plan can protect them too. I kind of went through the same thing, but got lucky cause we changed schools right away and the new school was very cooperative.

Any how you may want to check out www.childrenwithdiabetes.com/ . It's got a ton of information about 504 plans etc. There's even a free downloadable copy of Helping the Student with Diabetes Succeed ndep.nih.gov/diabetes/pubs/Youth_NDE
PS
choolGuide.pdf
. I'll also email you some links for welcome packages for newly diagnosed kiddos. You'll get a backpack with meter and strips, and book etc. Another site I like to visit is www.jdrf.org/ . God bless you and your family

Your sister in the fight against diabetes,

Cynthia

Edited by: MOMMABUG2 at: 4/6/2008 (12:42)
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ITSMEJENNY's Photo ITSMEJENNY Posts: 19
4/6/08 12:09 P

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Hi everyone!

My name is also Jenny and I am 31 years old. My 3 year old son was diagnosed as Type 1 last July.

It was a horrible time, but he is great now!

I am so glad to see a group like this.



it isn't easy being green, but hey, who said life was going to be easy?!


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MOOREJENNIE's Photo MOOREJENNIE Posts: 14
3/26/08 3:43 P

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My name is Jennie and I live in Highland Park, IL. I am 30 years old and have an 11 year old son. I have a wonderful boyfriend of 10 years who is so supportive!
I started my weight loss journey in January. My son was diagnosed with Type 1 diabetes 1/2/08 and that made me realize I need to make a change for him.
My goal is to lose 82lbs. I am on my way!
I work out at local gym that is very small and and I love it! I couldn't do this with out the help of the wonderful trainers!
I am ready for a change!

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MARIPOSALOCA's Photo MARIPOSALOCA Posts: 171
3/13/08 9:40 P

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Oh he most certainly DOES qualify for a 504 plan! They'll wiggle out of it if they can. I've known parents of kids with diabetes who have had to hire lawyers in order to get the schools to take care of their kids. Here's a FAQ section about 504 plans:
http://www.chtu.org/504.html It tells who qualifies. When I went to my son's school and asked for a 504 plan, the counselor said she gets a lot of parents asking for 504 plans when their kids don't qualify but my son definitely does.

The site says:
Q. How is a student considered for a 504 plan?
A. A student with a physical or emotional disability, or who is recovering from a chemical dependency, or who has an impairment (i.e. Attention Deficit Disorder) that restricts one or more major life activities.




Q. What are examples of "major life activities"?
A. Major life activities include caring for one's self, performing manual tasks, walking, seeing, hearing, speaking, breathing, working, and learning.

Hello! That's diabetes! Maybe you can print this out and shove it... I mean show it emoticon to the people at school. Either they're confused as to who qualifies or not or they're being stubborn. Yes, the school year will be over in 9 weeks or so, but things could still happen in those 9 weeks. Plus, the 504 plan will follow him to the next school. Good luck with this!!

Marci



HGREEN9479's Photo HGREEN9479 Posts: 13
3/13/08 7:21 P

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I have had all sorts of problems since he started school there. They keep telling me he doesn't qualify for a 504 plan. My healthcare providers keep telling me he does. we have had so many meetings and discussions about this it's not funny anymore. I just keep telling myself it will get better. Lucky for us he starts middle school next year and I am going to get all my ducks in a row before he starts. They will know all about diabetes and how important it is for Jacob to keep his BG's under control and all the possible side effects that BGs can have on him. They are going to meet my expectations on care. Right now I don't think he is getting cared for properly. I think they expect him to do too much and he still needs alot of supervision.

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MARIPOSALOCA's Photo MARIPOSALOCA Posts: 171
3/13/08 1:21 P

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emoticon My son was diagnosed at age 8 also and he also has a Cozmo. What kind of school problems are you having? Do you have a 504 plan for your son? I tell ya, I was the exorcist mom (head spinning and everything) until the 504 plan was put in place! LOL!!

Marci

HGREEN9479's Photo HGREEN9479 Posts: 13
3/13/08 1:10 P

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Hello. My oldest son was dignosed with type 1 diabetes at he age of 8. He is now 11. He has been using the cozmo pump for the past 2 years now, and we love it! My youngest son is participating in the Trialnet study. His blood work has come back good for the past 2 years now! I have been having problems with our school system ever since Jacob was dignosed! Next year he switches school and i hope that it will be much better.

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MARIPOSALOCA's Photo MARIPOSALOCA Posts: 171
3/4/08 2:19 P

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Hi everyone, I'm new to this team and pretty new to Spark People, too. I'm Marci, married, mom of 5, living in NM. My husband is active duty military. We were stationed in Okinawa, Japan when our then-8 y.o. son was diagnosed with Type 1 diabetes. They wouldn't let us stay on the island so we had to move back to the States, My son started on a Cozmo pump a few months later and is now 12 y.o. We'll be commemorating (hard to say "celebrating") his diagnosis date on April 30th, which also happens to be my birthday as well. (Kinda hard to forget his dx date!)

Years ago, I lost 30+ lbs by doing Weight Watchers. Now that I'm counting every carb that goes into my son's mouth, I can't stand to think of counting points again. There's just gotta be a better way! LOL

Marci

BARBARADJ Posts: 7
2/21/08 7:18 P

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Hello All,

My name is Barb and my oldest son, Will (age 6) was dx with T1D at the age of 15 months. This May 31 will make the 5 yr anniversary of his dx. His father, my husband Dwane, also has T1D and was dx almost 10 yrs ago.

Will is not pumping yet - we are hoping to have that in place before he starts 2nd grade (currently he's in K) and takes 3 shots a day. 70/30 in the am, Humalog at supper, and NPH at bedtime.

We also have a 4 yr old son, Robby, who is participating in the TRIGR study (TRIGR - Trial to Reduce Insulin dependent diabetes in the Genetically at Risk). Because of that we know he is genetically high risk for developing T1D but so far he has been fine.

Will, Robby, and I all struggle with our weight, which frustrates me to no end since the boys eat healthier than 90% of the kids I know. And since I teach kindergarten in a public school, I know a lot of kids! Anyway, I'm hoping that if I get my own weight under control and establish more healthy eating habits for myself I will provide a better example for my sons.

Skimming the posts it seems like I have one of the younger children with T1D on the board but have been dealing with it longer than many. I hope to gain valuable insight from you about things will go in Will's future!

Barb

 
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KATBOURNE's Photo KATBOURNE Posts: 29
2/17/08 8:18 P

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My oldest stepson is a type 1 diabetic. Diagnosed 2 years ago. He was 12 at the time, now 14. He is going great now, but we went through a million trials!
Weight loss has been hard during this time since I have to spend so much of my energy on him. I also have a 10 year old and a 3 year old.

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2/11/08 8:42 A

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Hi and welcome to the group.

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TENNALYNN's Photo TENNALYNN Posts: 142
2/9/08 1:29 P

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Hi Rdlewis,
Welcome to the group. My son is 17 and was 11 when he was diagnosed. We have had the pump since he was 12. It makes things easier in so many ways. But, it is easy for him to forget to bolus. I still have to keep on him about it. It takes getting use to. You will survive! I am sure you can take a breather now and start working on you. It is important to take time for you and be healthy. It took me some time to learn that I was not being selfish by working on me. My kids even tell me from time to time to go take time for myself. They see I am better at taking care of everyone when I do. I look forward to hearing from. Have a great weekend!

Lets get looking great in 2008!!
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2/9/08 12:26 P

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Hi! I am a Texas mom of a 13 yr old Type I diabetic son. He was diagnosed last February and recieved the pump in September. This has been a WILD and emotional ride for me. In this year, I have gained 30 pounds that took me 2 years to lose through WW. I am so glad to find SP!! It is nice to know that I am not alone in both of these journeys.

 
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LITTLESECRET's Photo LITTLESECRET Posts: 47
1/4/08 3:10 P

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thanks so much. Have a Great weekend.

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HI and welcome to the group. Fantastic job on your weight loss success!

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TENNALYNN's Photo TENNALYNN Posts: 142
1/4/08 10:59 A

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Hi, and welcome to the group! Congrats on you weight loss and maintaining it! I look foward to hearing from you. Tell your son congrats on the pump. It is such a life changing little piece of equipment. My son is 17 he has been diabetic since age 11 and been on the pump for almost 5 years now. Have a great weekend!
emoticon

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LITTLESECRET's Photo LITTLESECRET Posts: 47
1/4/08 10:42 A

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Hi. My name is Angela. I am a mom of 3.(ages 10,8 and 3). My oldest is a diabetic.(since he was 5). He has been on the pump since August and loves it. I bee na spark member awhile just noticed this group and I think its a great idea. I lost 140 pounds and have maintained it for a year now. My son has been my insperation.

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Hi and welcome. My son is thinking about getting an insulin pump. He didn't like the idea at first. We are looking into it now.

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12/30/07 3:40 A

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Hi, my name is Cynthia. I have two daughters ages 9 and 8. The youngest girl has type I diabetes. She was diagnosed about 3 years ago. She's on an insulin pump and continuous glucose monitor (still new). My oldest girl is a love. She is a great helper and rarely gets jealous of her sister.

I strongly believe in education when it comes to diabetes. One of the best books I've read is Think Like a Pancreas. Also, for the girls (and maybe boys too), I read somewhere that pills to regulate T2D may also help T1D teens with poor control. Ask you endo about that. Menstrual cycles can play havoc with the BG numbers. As if just being a teenager wasn't enough to handle!

Edited by: MOMMABUG2 at: 12/30/2007 (03:44)
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Hi I have a 17yr old son with type 1 DM. He was diagnosed 2yrs ago. His blood sugars had been pretty well under control. Think he was in honeymoon phase. They are now starting to run high. We are working on increasing his lantus at night. Hope he gets them well controlled soon.

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TENNALYNN's Photo TENNALYNN Posts: 142
12/9/07 4:03 P

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Hi, I have a 16 year old son type 1. He has been diabetic since he was 11 and on the pump since he was 12. The teen years are rough ones. Look forward to talking with everyone.
Tenna emoticon

Edited by: TENNALYNN at: 12/21/2007 (18:30)
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11/21/07 7:12 A

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Not much action on this board. I wish everyone a Happy Thanksgiving. emoticon

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8/28/07 4:06 P

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Hi, my daughter has type 1 diabetes, been 4 years now. Can't seem to get her numbers under control anymore. She will be 11 years old in two weeks, puberty is not fun! emoticon

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CHRISTI131313's Photo CHRISTI131313 Posts: 63
6/5/07 8:34 P

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You do need to do some homework to find out your rights and more importantly, the rights of your child as far as daycare is concerned. I was lucky enough that the school district my daughter's in has experience with diabetics and they do a pretty good job most of the time.
YOu have more rights than you think you do and don't be afraid to go with your gut and ask for what you want from the daycare.
Good Luck to you in that and your own health,
Christi

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DAWNSLITE's Photo DAWNSLITE Posts: 153
6/5/07 5:34 P

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Welcome! I am also hypoglycemic. you will find ideas and support here because we deal with low blood sugar all the time. we are a new group and if you know anyone else or have any questions we would be glad to help! ps- you have definate grounds for attention to her needs. I will see if I have some info for you.
take care -dawn

"Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly! Laugh uncontrollably......and never regret anything that made you smile "





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JONIMCS Posts: 8
6/5/07 3:48 P

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Hi, I'm new. My daughter does not have diabetes but hypoglycemia and it's unbelievably hard to find support. So far I've foud support through other mom's of diabetics because there is a correlation. Anyway...my dd just turned 5 and was dx'd at her 5 year check up. I'm pretty much known this for about a year and have been managing it quite well before the dx. Now we just have some grounds to get the daycare to listen to her needs.


DAWNSLITE's Photo DAWNSLITE Posts: 153
5/25/07 7:30 P

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Hi Christi, Today was the first day of this group, I really felt like there is a need for us to share ideas. I am thought the same thing as you have. My son is 13 and a knuckle head so I count his carbs but I lan this diet and I am doing healthy things for him why not me. he eats like a horse. talk to you soon

"Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly! Laugh uncontrollably......and never regret anything that made you smile "





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CHRISTI131313's Photo CHRISTI131313 Posts: 63
5/25/07 2:43 P

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Hi, my name is Christi and I live in Columbus, Ohio with my husband and two children, Anna (8) and Jack (6 1/2). Anna was diagnosised with Type 1 diabetes this past February. She is doing really well, but struggles as to why she has to have this disease. She is really the reason why I'm getting back on track with my weight and exercise. If she can help track her carbs and keep track of what she eats, I can too!
My husband is even on the weightloss track.
I'm so glad that their is a Parents of Diabetic Kids forum. I can't wait to discuss weightloss and our children together.
Hope everyone is on track! Glad to be here.

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DAWNSLITE's Photo DAWNSLITE Posts: 153
5/24/07 1:58 P

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Welcome, Welcome,Welcome. Please let us know alittle about yourself and you child(ren) with diabeties. I am really glad your here!
My name is Dawn and I am a single mom of 2 sons , 15 and 13. My 13 year old Brett was dx'd 2 years ago and has been on the pump for 1 year.

"Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly! Laugh uncontrollably......and never regret anything that made you smile "





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